~* The Waiting Room *~

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  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Good luck Hope! THe doc is probably right... I am going next month for my first mamm since dx. Sugery for reconstruction is now set for March. WooHoo... to be whoel again with nice barbie boobs - at least some good will come out of this exp.

  • thegood5
    thegood5 Member Posts: 284
    edited January 2012

    barbie boobs....love it!

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    thegood5, Yahoooo!   for still dancing with NED!  Let that breath out now and relax.

    Hope60 here's hoping it's just junk that's left over but no matter what it is, the waiting for results is always the worst part.

    Love n hugs all.  Chrissy

  • Hope60
    Hope60 Member Posts: 150
    edited January 2012

    Thanks for responding, ladies.

    thegood5 - it's all in your name, too -- congrats on the good results of your scan!!!  ckgrayoh and chrissyb, thank you so much for your words of encouragement.

    Feeling much better now, after a long nap and a chat with my sanest friend, another BC survivor.  It's so easy to go over to the "dark side" while waiting for results.  Have to try to fight that! Thanks again and hugs to all.

  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Am gonig to onc tomorrow for neck and back pain.  Neck feels stiff and sore, but if I run my fingers down my spine, about 4 inches of it, my bone hurts  WTF??  So hoping he will give me a scan.  I just read about a girl that I thought was a survivial story. Turns out she had bc, after 3 years went to her spine and in a year she has passed.  I did not think bone mets could kill? In fact I was told that someone could live for many years with bone mets, like if you were to have it spread, bones are the best place. Anyone hear any different? I know some people have no pain wiht bone mets and I am hoping this pain is just muscular. I feel like I am walking around with my shoulders hunched all the time.

  • buckanddoe1261
    buckanddoe1261 Member Posts: 7
    edited January 2012

     I am 8 years after BC. Had yearly mammy. Told tech be sure report goes to PCP and Onc. I was in the middle of the holiday season and was not particularly concerned about hearing results as they have always been good. 10 days later  between Christmas and New Years, I am at work, very busy stressfull job, and hubby calls. His words still ring in my ears! ...."Doctor says you need to schedule a biopsy". I went into a near panic attack, put whole office in turmoil. I was engulfed in that old constant unending fear that I thought I would never feel again! Now, here is what is so upsetting to me..... First, the doctor (oncologist) had his receptionist call who should not have told my husband and should have told him to have me call them back. Second, The doctor should call me personally to relay such frightening news not a husband who is terrified already by this news. I am scheduled for a biopsy wednesday this week. If the news is not good I am going to go to a" Breast Center" where I hope I will receive more caring and comfort than this. I have had some very bad experiences by not doing this in the first place I think. I called my PCP to schedule the biopsy and she had never received the report. Just one more thing to add to my anxiety. 

  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Good luck!! Keep us posted!! I am crossing my fingers for you!

  • BarbaraJo50
    BarbaraJo50 Member Posts: 44
    edited January 2012

    I fear I am in waiting too.

    But for now...buckanddoe; you will remain in my thoughts. Hope; hang on to that sane friend and keep away from the dark side. The good 5; CONGRATULATIONS! Good news is always wonderful to hear and NED is such a good dancer! We are neighbors!

    PEACE

  • wren44
    wren44 Member Posts: 7,948
    edited January 2012

    I'm waiting for the path report from my surgery last Wed. I called about noon and they said it is "in process" whatever that means. I'm trying hard to keep my imagination in check. It has gone from 'they've lost the samples' to 'it's bad news and my BS wants to tell me herself' and everything  In between. In addition, we're taking my beloved cat to the vet because she has a lump on her leg. We lost a dog to cancer which presented that way, so DH and I are both worried. She's supposed to nurse me through treatment, not get sick herself.

  • Hope60
    Hope60 Member Posts: 150
    edited January 2012
    Still waiting for results of my Friday biopsy, and the stress is really wearing me down. Have been alternating between total denial and completely freaking out...there is no middle ground.  ckgrayoh - hoping it's something muscular, and there's a good chance that it is. I have also heard that bone mets can be managed for a long time. BuckandDoe, Wren, BarbaraJ - I am keeping my fingers crossed for all of us "waiters"! 
  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Hi girls.............wow there are a lot of you in the waiting room today!  Here's hoping that all test come back with a good report.  A collective ((((((HUG))))))) for all.

    Love n hugs.  Chrissy

  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Hi all, got back from onc, blood work is perfect!! Got some muscle relaxers, hoping that helps!! Whew. <sigh of relief> See onc again on the 20th of this month, hoping to score a scan in a few months or maybe before my surgery in March.

  • Hope60
    Hope60 Member Posts: 150
    edited January 2012

    Good news! Got the results of my core biopsy.....benign!!! So relieved and very grateful. Thank you all for helping me through this.  Hoping all the other waiters get good news too!

  • BarbaraJo50
    BarbaraJo50 Member Posts: 44
    edited January 2012

    Some great news here ladies! Wonderful.

    For me; biopsy results Friday. DH still wants to think it is a rash.

    What will be will be...

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Ckgray and Hope that's really good news. Now you can relax! Good luck!

    Love n hugs. Chrissy

  • Jessica42
    Jessica42 Member Posts: 2
    edited January 2012

      Hi all, had some high tumor markers last month....first time since finishing chemo almost four years ago...doc sent me for a bone scan...had that the Friday before Christmas...great present...have had some aching in one area of my spine off and on for a bit....got antsy called my doc the Tuesday after Christmas...she was out of town for a break and her assistant told me she saw bone degeneration but would have the doc look at it....( all ready know about that)....so had a bit of a freak out.  Posted here and talked to my hubby...both got me pulled back off the ledge.

      Sooooo, had my blood draw yesterday and go in on Thursday to see what the doc has to say and getting nervous off and on....sigh....waiting SUCKS!!!! 

  • Hope60
    Hope60 Member Posts: 150
    edited January 2012

    Ckgray - YAY! Congratulations!!!

    Chrissy - Thank you so much!!! 

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Barbara and Jessica, welcome to the waiting room.  Sure hope your wait is not too long and all results are good.  I'm right with you all. 

    Need a bone scan again according to my doc whom I saw this morning, soooooooo, that will be done first thing tomorrow and the results on Friday.  Not expecting anything bad this is a just to make sure scan..................but you never know.....lol

    Love n hugs all.  Chrissy

  • kal52
    kal52 Member Posts: 12
    edited January 2012

    Hello everyone, I wonder if anyone could help me.  I recently had a MRI of my thoracic spine as I have been having pain there and in a couple of spots on my ribs.  The report states no spinal mets found but likely met on 8th rib.  Had a bone scan which showed no evidence of mets.  Onc says bone scan wins therefore no need for follow-up.  Has anyone else been told that the bone scan is the definitive scan?  I thought MRIs were pretty accurate.  I hate not knowing what it is the MRI picked up if not mets. A facture was mentioned but it is thought not to be one. Thanks.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Hi Kal, your doc is right, bone scan wins over MRI as it has been known that MRI can return false positive for bone mets.  Relax and enjoy your life.

    Love n hugs.  Chrissy

  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Whew..load off my mind.  Onc says could also be achy from Tamoxifin, I just started it last month. 

    Jessica: It's probably just the degeneration that is bothering you.  I got some muscle relaxers and relaxed all day yesterday, feeling much better today.  You will be fine!! keep up posted!!

  • wren44
    wren44 Member Posts: 7,948
    edited January 2012

    I got the important part of my path report:  clear nodes!! There's still a question on the margins and I'll hear about that tomorrow. I'm very happy for the good results. Unfortunately, the path report on my kitty was not good. We're debating whether to do X-rays to see if it has spread. It would be nice to know, but wouldn't really change the treatment.

  • KrystalRose
    KrystalRose Member Posts: 9
    edited January 2012

     I read this on this site in the articles, it was very informative about BC that has spread: 

    "if you had breast cancer and you now have cancer in your bones, liver, or other places, it is probably not bone or liver cancer, but breast cancer that has spread to the bones or the liver. This is important because breast cancer-even when it has spread-is usually more treatable than a cancer that starts in the bones or liver".

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Got my results and they are not what I was hoping for......I have some progression so it's out with the Femara and in with the Aromasin!

    Hoping all you girls get good news.

    Love n hugs.  Chrissy

  • prayrv
    prayrv Member Posts: 362
    edited January 2012

    Chrissy - that sucks.  Hoping that the Aromasin works with little se's..

    Hugs,

    Trish

  • CherylinOhio
    CherylinOhio Member Posts: 149
    edited January 2012

    Chrissy, not the best news... but theres the Aromasin and new drugs are out there! Hang in there....

  • BarbaraJo50
    BarbaraJo50 Member Posts: 44
    edited January 2012

    Chrissy, I am sorry to hear you didn't have the best news. I hope that Aromasin kicks butt! Thank you for your warm feelings for everyone here...including me. It is felt across the ocean!

    I am still dancing with NED. Biopsy was clear. CAT showed build up of lymph fluid in my chest area. There was a small area of concern near my liver but the onc and the nurse facilitator think the radiologist is being overly concerned about nothing. Still, I will have another CAT with contrast to be sure.

    I truely thought I had IBC. I feel so grateful.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2012

    Well after talking with my doc we have decided to stay with the Femara despite the progression as they are small........yipeeee!  I'm happy about that as the Femara is very kind to me SE wise and I wasn't looking forward to the change.  He will monitor me closely and if I have trouble from the one in my spine, he says he will order some rads for pain control and we will scan again in six months.

    Barbara, so happy that you are still dancing with NED. It's always a good feeling when your scans come back clear.

    Love n hugs all.  Chrissy

  • BettyBoo
    BettyBoo Member Posts: 17
    edited January 2012

    Could I join please? Saw doc on Friday and she felt a "nodule" under my right rib/flank area where I have been tender. X-ray and liver function tests were clear, but CT has been ordered. Is it possible to have mets with clear nodes so soon after dx? My bone scan was clear last year.

  • lwd
    lwd Member Posts: 234
    edited January 2012

    Oh, Chrissy,

    That's good news.  So glad you can stay on Femara.  It's been so kind to you.  Remember I told you my doc might take me off hormonals altogether for a little while when I have progression?  Maybe your doc would consider that at some point.  A little scary, but some think it can work again after a little break.  Knowing each case is a different can of worms...........Anyway, glad you are staying on the tried and familiar, at least for a while.

    Hugs,

    Lane