~* The Waiting Room *~
Comments
-
hi ladies
please can i join
i am in the waiting phase at the moment and its not a nice place to be
i just had my diep flap surgery two weeks ago and got a phone call Tue to say while in the operation they noticed my intramammary node was enlarged and there not happy with it
back to the scan room for pelvis abdo and chest scan grrrrrr
its frightening times just when you think right all done put it behind you and get on - oh no
i get my scan thur 2nd feb results fri
i am hoping for the best but trying to mentally prepare for the worst
i have 2 girls 7 and 12 and i haven't told them about this set back - i think there's no point worrying them with something that i don't know what it it myself do you agree ???
thanks for letting me vent Alison x
0 -
Hi Allison, vent away. There is nothing worse that thinking all is done only to find that may not be the case. Being told that the intramammary node was enlarged would naturally make you think the worst. Here's hoping that isn't the case. I agree with about not saying anything to your children yet as you still don't know if there is anything to actually worry about. There is time enough to say something when you get some answers yourself. Good luck and do let us know how you get on.
Love n hugs. Chrissy0 -
Thank you Chrissy xxx
0 -
Just had 2nd mammogram on my single remaining side. All clear!! Yea... reconstruction surgery date has been moved from April to March 19. Whew, am excited and nervous!! Getting LD flap with one implant and one TE. Can't wait to see how I pull that off!!
0 -
Yay ckgrayoh!!!!! That date will be here before you know it and I'm sure you will do just fine. You are one step further down the road..............way to go!!!!!
Love n hugs. Chrissy
0 -
Hello all-- I hope I can join you. I went for an ultrasound of my uterus and the doc found an ovary with "shadow" around it. She said not to worry,
and she just wanted to have a second opinion. Of course I am in a panic and trying not to think the worst, but it is hard. I go on Monday for an improved ultra sound so they can get a clear picture of the ovary. On the order form, she wrote in ovarian cyst. Of course I looked up the stats and (BIG MISTAKE!) I am even more worried. ARGH!0 -
Hi Jess any thing that is 'unusual' is always a panic button thing for all of us. Deep breathe and try to relax as more often than not, a cyst is just that, a cyst. Hang in there, we're on the bench waiting with you.
Love n hugs. Chrissy
0 -
Thanks, ChrissyB-- I love this thread. Plus, I know everyone here "know what I know". My husband tries to be supportive and so do my friends, but still......"they don't completely know!, ya know??!!
0 -
Jess, yes I know exactly what you mean.
Love n hugs girl. Chrissy0 -
well ladies i come with good news
scans clear
i was told today that when i had my op they removed the intramammory node and got it biopsied
yes it had breast cancer in it this is the reason for the full body scan
next step now is to see the oncologist on tue to discuss some treatment
they dont think more chemo will be recommended but different hormone blockers and overies out
will know more next week
thanks for your support0 -
Yay Alison, that is great news!!!! I'm so happy for you, and I am presuming that because they are talking ovaries out that they will be putting you on an AI. They are Arimidex, Aromasin and Femara. They all do basically the same thing they are just put together differently. Good luck with it all!!!
Love n hugs. Chrissy
0 -
New here too, sure enjoy the games
I too am in the waiting phase, my Do wants me to get ct of chest,ab,& pelvic and a bone scan, insurance denied it.The Drs office is trying to get it through and more than likely my Dr will have to give them hell. So in the mean time I have desided to get a second opinion @John Hopkins,I go Wed, then after what they have to say I will decide on what I will do. My DO want me to do chemo first, so if test aren't approved I will just get my bdx first. I like how it is said stress is not good for bc patients and thats all you get from insurance co. guess they want me beyond help befor they will approve, idiots...yes it is being appealed
0 -
Hi jap62, good luck with your appeal and I hope your Doc gives them what for. Waiting is the hardest part of the dx time but once all information has been gathered it goes so much quicker you almost want to say stop so you can get your breath.
Love n hugs. Chrissy0 -
Well, friends I am one hour away from the ultrasound of the ovarian cyst. I pray I get the all clear........Hugs! It's been a long weekend! Plus, I had meetings today; I think I functioned okay.
0 -
JR, what's the news? Do you know the results yet? Hope they are all good!
Love n hugs. Chrissy
0 -
Here I am again.... waiting. I did have BRCA testing - family paid for it THANK GOD and FAMILY! The BRCA showed no genetic factor.
I'm here now because I have been having abdominal pain. It seems to be the whole pelvic area. It was coming and going. I asked my onc if I could be having phantom menstrual pain (since I have chemo induced menopause) and his answer was yes, some women have that. However the pain has become constant for the last week. After seeing my primary physician she ordered an ultrasound. Exterior and transvaginal. I had that procedure today. Most of my pain seems centered on the left side but the tech spent an inordinate amount of time on the right. I know I shouldn't have but I peeked at the images when she left the room and saw an area with lots of blue and red and arrows. Hmmm. I know much of that is blood flow markers and whatever but this just freaks me out. She told me that my doctor requested a fax of the information so she would send it right over. Why didn't I ask if she saw anything? Why didnt' I ask when my doctor would call? I was doing pretty good not constantly worrying about cancer but in a week or so I will mark one full year since the end of treatment and I'm so worried about recurrence. I wonder about the recurrent people. I KNOW everyone is different but I really wonder what the average time frame is for recurrence. Ugh! Waiting...
0 -
Hi JR~ I hope all went well for you. Please post and let us know how everything went. Truly hoping the very best for you!
When i had my ultrasound today the tech told me I had "a lot of bowel going on" ... (does that mean I'm full of **it?)
so it is hard sometimes to see through the gas and stuff. Thankfully I had a full bladder when I went in also. I didn't know it was preferred for part of the exam. But ya know, that would be handy information to give us. If I knew that they would have better pics if my bowel was clear I would have taken a laxative and had clear fluids to be sure all was visible. More info sure would help us all not have to undergo additional tests if they can be avoided. 0 -
Wyattsmom, I had the same sort of pain i the ovary area and it freaked me out because they could not find one of the ovaries and my mind was taking me to places it should never have gone. The upshot was, I have diverticulosis which is inflamation in the bowel with small pockets and that is what was giving me the pain. Hopefully, yours will be something as mundane as that.
As for a time fame to get mets? there is none. If it's going to happen it happens if it's not going to happen it won't but there is no way to tell, sorry.
Love n hugs. Chrissy
0 -
Hi- Well , after 32 ozs of water and a 15 minute wait, I went in to the US. The tech was very nice, but would not tell me anything. (some of the others will) I hate that part. Thankfully, I had the opportunity to empty my bladder and we went back and she took lots of shots of my right ovary. Of course, now my lower back constantly hurts- only hurt intermittently - and so the worry is worse!
Wyattsmom--good comment about being full of **it! ) The tech made a comment about my "movements" too!!
0 -
JR I tink its the position you have to lay in for these US that make our backs ache like the dickins. Do you know when you will get the results?
0 -
Thanks so much ChrissyB! You are so kindI to stay here and give encouragement to so many! Well, my physicians assistant called today to give me the good news that nothing was found. Yay. Please understand that I certainly didn't want mets by any means!!! But an answer and solution to the constant and worsening abdominal pain would have helped ease my mind and body. Im self-pay up to the first $10,400 each year and since I've reached that every year for the last 4 and going on 5th year (still in debt to the hilt) I lack the resources to seek another answer. I guess I'll mask symptoms with meds, try to function and hope it passes.
My thoughts are with you JR. I called my doctor this morning to ask when they would have my results and they got back to me late today... just saying a phone call might nudge them to get back to you sooner. Good luck, God bless and please let us know what happens.0 -
Yay Wyattsmom, good news!!! Maybe you do just have an inflamed bowel. Have you tried modifying your diet to see if that helps? Good luck and I so glad they found nothing.
Love n hugs. Chrissy
0 -
Congrats to y'all with positive news!
Today is Feb 9th. Followup CT is on the 27th so getting close. Can't wait until I know something one way or another.
Wishing all the best to you ladies still waiting.0 -
Hanging here with you Mindy!
Love n hugs. Chrissy
0 -
I got the news yesterday. I have a fibroid and the ovaries are all shrivelled up--no swelling. They say fibroids are often very common and will sit there for the longest time.........Whew!!
Thanks to you who waited with me. I so appreciate having the support.
0 -
YAY!!!! JR that's great news!!! Whew indeed!!!
Love n hugs. Chrissy
0 -
Hello you guys,
My CT scan is coming up this Monday the 27th. I've been waiting since 12/27/11 for this followup scan. My last scan showed a spot on my liver.
I need some luck right now. I was just diagnosed with shingles today and it is frightening me. It could complicate things if I have cancer. I think the antiviral med I am on for the shingles is effecting my mood so I am scared and agitated right now. If I do have cancer, I don't know if I could have rads or chemo. My head is just spinning and it won't stop.
Wish me luck. Hopefully my ONC will be as prompt with the phone call on the 27th of February, as he was on the 27th of December.
0 -
Did not think I would be sitting here on Thursday night knowing I would not get last week's test results until next week! Bone scan, hormone test, thyroid details, but at least the tumor markers and CEA were normal enough to pass. Both my GP and integrative MD do not go into their offices on Friday. Been complaining all over the boards and then noticed this waiting room thread, so stopped in. Will try to breathe, just breathe like everyone else here.
0 -
Hi Essa, welcome to the waiting room. Sorry you are having to wait so long after doing the tests. I guess I ought to count my blessings that my docs are quick with the results once I do have the tests. I go to a multi campus clinic here in Houston and they are open at least M-F; some on the weekends, too.
0 -
Waiting for results is horrible. I have been lucky when it comes to the waiting room. I have been waiting for results through out the years and have completely appreciated the support. At one point the folk waiting told stories to pass the time. I guess it was just a way to provide a bit of release as we waited for the "news". This thread has helped me every single time I had to wait for the "news". Sometimes the stories were hilarious and other times you wanted to sob your heart out. Whatever the case, and all inbetween, this space is tremendously powerful.
0
