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  • Estepp
    Estepp Member Posts: 2,966
    edited January 2011

    TORI

    THE RADS WINDOW IS 8 WEEKS.

    8 Weeks out of surgery...... or 8 weeks out of chemo. Some will even tell you that you have a 10 week window.

    I had a bilat..... and 8 weeks later.... started rads. I had 7 weeks to get my TE fully expanded. I did it.

    ANYWAY..... so many do not know their " windows"... I know ladies who started rads up to 12 weeks after chemo or surgery.... PLEASE do not pass up this in your life...... this trip....

    if your LIFE depended apon starting the reads in 4-6 weeks...... we all understand.... but it does not....... you have a minimum 8 week window.

    I was the rads QUEEN here on BCO a year ago.... plus......

    if you wanna PM me... feel free...

    GO ON THAT TRIP!

  • Estepp
    Estepp Member Posts: 2,966
    edited January 2011

    Michelle...... MY BREAST CENTER WILL NOT EVEN TO TUMOR MARK tests for BC. They follow the MD Anderson protocol..... they say tumor markers... for BC do not work... they give WAYYYYYYYYYYYYYY too many false positives.

    If I ever left my Breast Cancer center here.... and they wanted me to do tumor marker tests... i would decline. I would never have them done. Remember this.... ok.... I worry about your fears and anxiety. If your marker tests EVER come back high...... blow it offf.... and get a second opinion. Again...... I would never allow myself to get these tests. I would MUCH rather have a yearly Pet and Bone scan...

    xxxooo

    You are going to be GREAT!

  • janet in virginia
    janet in virginia Member Posts: 923
    edited January 2011

    Lost power last night & thankfully back on this morning.  For those of you who live in DC area -- my daughter left her office in Tysons Corner at 3pm and got home at 10pm - 7 hours to drive about 10 miles to City of Fairfax!!!!  It was a nightmare.

    Know that I listen & say a quiet prayer as I read each of your posts.

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    JANET.. Glad your power came back on! What a night right?. My husband took 8 hours to get home from the Dulles area to Woodbridge, guess that was good compared to 10 miles taking 7 hours. Glad and thankful everyone got home safely.

    I hope this isnt a  silly question, but what is a tumor marker?

    Blessing to all today, safe travels. a light heart and all healthy reports

    Maria

  • theresap60
    theresap60 Member Posts: 849
    edited January 2011

    Laura - great advice for Tori and Michelle!!!  I'm not sure what tumor markers are either, but my doctor's don't use them either - saying the same thing, too many false positives.

    Tori - I hope you can make the cruise happen!!  What a wonderful treat!

    Maria and Janet - Skip and I drove 5 miles from Crystal City to our hotel on Lee Hwy and it took an hour.  We were so happy not to be driving the 70 miles home - my daughter said they shut down Rt 7 anyway, so we would have been stranded.  The hotel power went out at 8:30pm and never came back on.  We left there about 9am to get me to work.  It was the worst emergency preparedness I've ever seen!!  My sister drove from Arlington Hospital to Falls Church and it took her 4 hours plus a utility line fell on her Subaru, but she was able to drive on!!  I hope everyone got home safely.

    Peace of mind, body and soul to all here.

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    THERESA glad everyone arrived safely too, Sorry about your daughters car though., I agree the snow fall was not even a great amount and it shut everything down wow!!! IS  Arlington Hospital the same as Virginia Hospital Center? If so thats where I had all my surgeries, great hospital.

    Peace and blessings to all!

  • janet in virginia
    janet in virginia Member Posts: 923
    edited January 2011

    I have to share what I woke up thinking in the middle of the night last night!  My daughter's 7 hour commute was definitely on my mind when I went to sleep.  She called me throughout the way home and I was getting more worried by the minute.  She only had on her high heels & work clothes - no boots.  Her gas tank was almost on empty and impossible to get into any gas station parking lots.  Traffic lights were out & cars spinning out of control - and roads not plowed.  You get the picture of how helpless I felt.  It was a reminder that as much as we think we can control things and protect our children - many times it is out of our hands.  All I could do was pray for her safety.  It was a big sigh of relief when she finally got home. 

    So...when I woke up later in the night I felt like someone had been talking to me!  And 'they' said - God feels just like you do - only about ALL his children on earth.  He can't always protect & doesn't control his children either.  Man has free will by design - all God can do is be the father, love his children and the rest is out of his hands too - because people will either choose faith or not.   And he worries about us just like we worry about our children.  I have NEVER thought about it that way that I can ever remember!  It was either a jumbled dream or a message.  It's not exactly the same as getting stuck in a snow storm but just seemed like it was one of those little veils of understanding life that gets lifted every once in a while for a peek inside.  In any event, I found it comforting.

    God bless.

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    Janet your posting was beautiful and brought tears to my eyes... God does talk to us and it sounds like you were listening! Thank you so much for sharing these thoughts with us!!

    It has brought me some comfort as well... thank you!

  • pagowens
    pagowens Member Posts: 61
    edited January 2011

    Janet - that was a message, not a jumbled dream and it was very comforting to me as well. 

    The snow in Southern NJ was, thankfully, mostly rain and ice with a couple inches of snow - nothing like what fell in the rest of the mid Atlantic.  My oldeest son lives in Alexandria VA and also told me it was a nightmare there.  They are safe and sound.  These past two winters have been awful and I'm looking forward to the spring.

    My son's fiance is still hospitalized and was transferred to the psych ward where I am hoping she is gaining some stability and peace.  Can't go see her for the first several days of assessment but my son can call her and he says she is calming down and feeling physically better.  I hope they help her out of the morass of depression and she comes home well and positioned to get healthy again.  Thank you so much for praying for her and him.  I deeply appreciate it and believe in the power of those prayers.

    I'm up in the middle of the night because my husband just left with our faithful old dog to the vet hospital to help her move on.  She's an 11 year old pembrook corgi who was diagnosed in the early fall with a degenerative spine condition that has no cure or "help."  Over the past week she has really become feeble and tonight when we got home from work she quickly went from lack of ability to stand at all to paralyzed.  She's not been in any pain through this (lack of feeling, ability to walk but no pain) but tonight around midnight she started to have little crying and moaning spells.  We were hoping she could make it through the night to her regular vet tomorrow, but who could listen to those cries for help too long?  I said goodbye and am trying very hard not to cry too much.

    This is turning out to be a week that sucks.  If that ticket for the cruise trip is still available......

    Hugs to you all.  I don't mean to burden you with my sad tales, but it really helps to pour my soul out to you guys and I am very appreciative of your support and virtual hugs and hope I give some comfort back to you guys, too.

    Pat

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited January 2011

    Oh Pat, I sure know and understand first hand how that feels. You, your family and your dog is in my thoughts and prayers.



    Dear Lord, please listen to our petition on this thread. Amen!

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    Pat I am so sorry! I am glad you feel comfortable enough to share your troubles here. Sometimes this is the only place that feels safe for me. I am praying for you Pat and your Son and his Fiance.

    I am praying mostly for you to find hope, support, and some light in all of this difficult time. AS a dog owner (he follows me everywhere and is never 5 feet from me) I just am so sad for your loss right now. 

    I hope we can pray for Pat tonight and any others that feel the need please step forward.

    Janet your piece about your dream was moving and it has that feeling that is more of a feeling than a thought process so it makes me feel that it is real. God does not want us in our heads so much just feeling his love. (If only I could achieve this) 

    Have not heard on my blood work yet and I am stressed and don't want to call. Laura i agree about tumor markers but both my ONCS like to do them every so often I refused them last time so had to give in this time. I need the peace that comes after receiving a negative test so keep me in your prayers.  Traci so happy you are getting settled.  

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited January 2011

    Oh sisters-- so much going on--praying for you all and our families (human and animal) xo

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    Prayers too  all today!!!!! For ALL your special attentions!!!!

    God Bless!

  • torigirl
    torigirl Member Posts: 748
    edited January 2011

    Pat---our "fur babies" are so precious too, aren't they?  Prayers for you right now...that your son and his fiance find peace as well

    Tori 

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited January 2011

    Hi sisters,

    My sister Irene was discharged yesterday without a dx and with new chest pain symptom. Her left eye has drooped and her right cheek is paralyzed, mouth and nose are pointed towards the ears, hence eating and swollowing is very challenging. She'll need rehab.

    While asking about Irene with my other sister, my mom has an appt with kidney specialist so had a blood test. Her Creatinine level is now 700. Very very dangerous level but too old for dialysis. It will be a miracle if the creatinine level drops back to 300.

    My sister told me to be mentally ready.

    Our real estate business is again slow because the banks don't want to approve short sales listings quick enough There's so much financial stress.

    Thank you all! I appreciate it.

    God Bless Us All!

    So ladies please offer prayers for me tonight.

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    Prayers for Pat and her family and Paula and Laura's business this evening.

  • theresap60
    theresap60 Member Posts: 849
    edited January 2011

    Pat - I'm so sorry.... you *have* had an awful week.  Definitely prayers for you, your family and doggie.

    Maria - yes Arlington Hospital = Virginia Hospital Center.  Old habits die hard.  :-)  My doctors for BC were in PA and NJ, but now that I'm back home in VA, my docs are at VA Hospital Center.  My niece works for my new Onc.

    Janet - that was a nice message. :-)  Thank you for sharing.  It puts God's love for us in perspective... and why He does not intervene all the time.

    Michelle - may the Holy Spirit breathe peace into your soul.

    Skip joined a men's group at the little church in Colonial Beach and attended the first meeting last night.  It has to do with St. Joseph covenent keepers.  The group has a dedicated statue of St. Joe and each of the men take turns bringing him home until the next meeting.  Skip walked in with the big statue last night! :-)  Fr. told them that he was amazed at the turn out.  This is a tiny parish and 30 men signed up.  He's been to other parishes with thousands of parishioners and only got a handful of men to sign up.  He was so happy.

    10:00 prayers tonight!

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    I thought I would post some great prayers for tonight:

    Prayer to Saint Agatha (This is a Novena and lets pray it to help all of us dealing with the anxiety of bc)

    Oh. Saint Agatha, who withstood the unwelcome advances from unwanted suitors, and suffered pain and torture for her devotion to our Lord.. We celebrate your faith, dignity and martyrdom.

    Protect us against rape and other violations, guard us against breast cancer and other afflictions of women, and inspire to overcome adversity. 

    Oh Saint Agatha, virgin and martyr, mercifully grant that we who venerate your sacrifice, may receive your intercession. AMEN

    Prayer to know my Vocation

     Lord Jesus, I believe that you have created me for a special mission. From the moment I began to live in my Mother's womb, you have been preparing my path to Heaven. Lord, show me your will for my life. Help me to trust you, no matter the cost. Help me to believe that I will be happiest doing your will. Give me the grace to say yes to what you ask of me today, so that I can say yes to my vocation. I make this prayer through Christ our Lord, AMEN. 

  • kindone
    kindone Member Posts: 435
    edited January 2011

    Healing

    Dear God, in these days of illness give me patience, understanding, and strength.  Bring healing and peace to me and to those who are here with me in this place.  Renew my mind and body so that, restored, I may serve you faithfully.  Amen

    Bless the Lord, O my soul and all that is within me, bless His holy name, Bless the Lord O my soul, and forget not all His benefits, Who forgives all your iniquity, Who heals all your diseases.

    Psalm 103:103

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited January 2011

    Hi Sweet Sisters! I am getting here early for prayers, and catching up on your lives.

    Pat,

    Bless you. My very first dog was a pembroke corgi, and he and I grew up together. We talk about him to this day, and he is cherished in memory, to be seen again. I am terribly sorry for your pain and loss, and you did a very loving thing by letting her go. She will wait for you, promise.

    Theresa

    What a wonderful comforting beautiful message. I really want to here more about your feelings and the impact for you.

    I am with cable/internet and phone :) I have enjoyed the silence as well, and will make my bedroom for reading only. What a concept! So much to share, and had the wonderful help of a friend of a friend who took it upon himself to get two of his friends to help me for 3 hours last night, in the slush, snow and wet. so generous of spirit, and I have my final help on Sunday. but will chat more later.

    Michelle, I saw your wonderful prayers....and do we have a few people for focused prayer as well?

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    It is so hard to lose a pet. I lost 2 cats within a year. My sweet little Rex was only 6 he had kidney failure and when I had my first surgery he was always by my side slept by my feet and the same with the 2nd surgery. Unfortunetly in Sept he got really really sick and was suffering and we had to put him down... still miss my little furball.....

    sisters may God hear all your prayers and intentions!

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    Hi I thought we could pray for pat an her son/fiancé

    And Paula and Laura's businesses!

    I could use prayers for normal test results too!

    Anyone else have anything you would like us to lift up?

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    Prayers for Pat and her family and for normal test results for mmm5!!!!..

    Prayers please for my daughter she started with a new therapist today. She is 15 and suffers from depression and my son who is 18 and graduating this June. He has Aspergers and has made incredible progress but still has a road ahead of him

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited January 2011

    sounds perfect, I am here and ready to pray.

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    Dear Lord

    Please shed your healing light on Pat, her son,and fiancé!

    Heal them with your grace and love.

    Please show paula and Laura your Mercy in their professional endeavors.

    We trust that you will carry and lead them to your will!

    Amen

  • mmm5
    mmm5 Member Posts: 797
    edited January 2011

    I pray this evening for Tinkertudes children!

    Bless them with your peace,complete health, and guidance for their successful futures!

  • kindone
    kindone Member Posts: 435
    edited January 2011

    ready

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited January 2011

    I'm here too.

  • tinkertude
    tinkertude Member Posts: 1,998
    edited January 2011

    I pray for all those women out there that do not have a support system that they may find one. May God comfort them in their times of need and guide them to thier angels here on earth!

    Maria

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited January 2011

    Amen!

    Thank you all for praying with me this evening.  I have to get off now because I am doing Skype with my sister in Hong Kong.  I have to fill her in with the news re our other sister. 

    Also I was told today that my mom is eating packets of sugar every day now :(

    It's very disturbing to me.  My sister Irene may possibly had a stroke.