Catholics
Comments
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Tink------so happy for you and your son-------understand well about the disruption in schedule for DD---------Sounds like a nice spa day for the two of you or at least an out of the way quiet lunch.
Gina---clueless about Rads---it's a total subspecialty in nursing----sorry I can't help. By the way what does SAGINA mean?
Hope you both have things improve have missed you both L&H&P's sheila
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Sheila~ sa was for San Antonio, it made sense when I signed up with it, but it can be pronounced so many ways - so I added my name to my tag....
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Congratulations to your son Tink! I know exactly how you feel about the company. I hope your daughter is feeling back to herself soon. Summer has always been a nice, relaxing time for my kids.
Sent you a pm Gina. If I can answer anything else, let me know.
Thanks for the prayers Anne! I am pretty nervous about Wed. The doc told me steroids make you nervous as well, so that isn't helping. Will be taking an Ativan (or 2?) on Wed.
Prayers for all. Kay
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Kay - it sounds like you're doing everything you need to do and we're all behind you! I had Cytoxan and Taxotere. Was on steriods before, during and after each treatment, then they gave me Benadryl in my IV before they started the taxotere drip. They watch you very closely. I don't know if it's a coincidence, but I did the ice on my fingers and toes while the taxotere was dripping. The ice kept falling off my toes, so I had a little discoloration of my toe nails, and I was reading, so my right hand (which kept turning the pages), had a little neuopathy, but the left hand (iced the whole time each time) had no issues. All are back to normal.
The dance recital sounded great. I remember being worn out with my own kid's events, but now that I have grandchildren, I'm able to take more delight in them!
Maria - congratulations on your son's graduation! You had the bishop?? Wow. I, too, completely understand about company. Love it when they come, love it when they go back home. I feel that way when I am company to someone. I love to visit, but I love to come home too.
Have a great day everyone!
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Thanks Ladies..
sas.. great idea about the quiet lunch with her! thanks
Theresa yes we had Loverde and sister Bernadette was there but she didnt speak . Baldacci was awesome though!!!!.
love to all my sisters!
Maria
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http://community.breastcancer.org/forum/44/topic/753120?page=73#idx_2184
Anyone having trouble with bra fittings and migrating foobs, this is the site you want to go too. Amazing information. Will be back want to post this on some other sites
) sheila0 -
Hi ---I posted the above message on 12 threads. Anyone having LE problems, they have some great insights and suggestions. They have effectively lifted a great burden from me. Breast / axillary/ upper arm swelling/pain/limitation of function for 2 and 1/4 years. They taught me why. Sure wish the PS had done it. Perhaps one of your prayers here lead me to that thread---must be so, b/c multiple people were praying. Wish I had added in the message re: the reduction of LE symptoms , But hopefully anyone seeing the message will be curious enough to check it out. I'm HAPPY--------Thanks
Kay------So happy for you that they have a plan. They are not doing paintball treatment. They are making sure which drug is the troublemaker without discontinuing treatment altogether. My only Chemo almost killed me. I asked them why? Multiple doc's and no one suggested what they are doing for you. There was no effort that I now can say, based on your description that my team was willing to decipher the problem. I said no to anymore treatments as a result. So, Kudos to your team. It's scary, but the approach is good. Therasa's suggestion re: the ice is very interesting.
But it does bring back a forgotten memory, I had itchiness of the extremities and someone suggested ice packs. Greg would lay them over the legs and arms>>for say ten minutes>>>>itchiness gone and then we would repeat as necessary. Hope I don't loose that memory again.
So, glad you had so much fun at the recital. America's Funniest Home Videos has recitals over time. They are always so much fun just seeing the kids.
Theresa---- the ice thing, is that a well known thing>>>>details please. AND based on your description, it was as if you were doing a controlled study on response, but it was by accident. SO, many scientific discoveries were made in such a way. There is a taxotere thread it might be something to post there. Since my chemo knowledge is real limited. It might be good to post on other threads on particular chemo's.
Sagina--------love it ---San Antonia Gina------
Tink A special lunch in a beautiful setting can be a lovely momentary solution to so many things creating a beautiful memory
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"Dear Lord, help me to be my true self, by trusting you completely."
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Amen lmfsm~ I pray for you too.
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In the Chemo chair waiting for chemo to start and scared to death
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Kay - peace be with you.
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With you Kay--you will do it and we are all praying for you. xo
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Kay
Sending prayers up for you RIGHT NOW.
Lord be with our Kay, help her to feel your comfort and love. Let her make it through this with peace and good health.
AMEN
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I hope you are home by now Kay. I am probably a little over an hour away if you need me! xo
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Theresa ---It seems to me you had a prayer about fear----true or false memory?
Kay------prayer to Lourdes for you& 7 Hail Mary's and an Our Father. Namaste sheila
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Thank you for all the love and prayers. Everything went well. No allergic reactions yet at least. Shiela you are right about my onc being on the ball. She sent me for a chest scan this morning before the infusion. Her thinking was that if the lungs cleared up and I had the herceptin last week that if it happens again, they'll know it's from the Taxotere. The scan came back all clear!! So apparently the Herceptin is not a problem. I guess if it comes up again, it would have to be from the Taxotere. Fingers crossed.
Shiela, not sure why they wouldn't try harder to determine your problem with chemo? Were you on the borderline for getting chemo any way and they thought you would just be safer not to do it since you had an issue? I thought I was going to be done with chemo, but I guess the onc really thinks I need both types of chemo.
Namaste
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Kay!!!.. prayers and hugs to you! hope you are doing well!
Namaste sisters!
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God Bless Everyone, I am smiling thinking of you all. Off for another busy day, and I can't keep looking out my doors to the porch with all of my "little children" growing strong. I even asked the man at the Farmer's Market "how much does she cost" while holding a gorgeous flowering something or other...
So all is well, first MRI tomorrow post treatment (we are late due to tissue expanders...) Hurdles, right?
Kay, you are in my thoughts and prayers and glad your chemo went well. By chemo standards, right?
Laura, I love my Boobs! They are big (hee!) and I look right busty in a tank. Thank you so much for your support regarding not getting the Lat Flap. I don't know what the future holds , and I am getting some scar pull that I am working out, but I feel like it was the right way to go. No regrets with going the route first, or hopefully last! Thanks again, as we learn from each other's experiences.
Michelle and all,
I sincerely hope your foundation is growing and flourishing. (and your business too Laura!!) There may be other Sisters/Brothers with businesses? and certainly there have been some wonderful movements regarding sold houses, rented houses in the group.
I worry about not saying hello to all, and of course, SAS, Teresa, Janet, LMFSM, Tori, Paula, Laura, Tink,
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Anne and Betty
( I was lost on your name, wanted to call you Barb, I hope you can forgive, chemo brain rules,) Michelle,
and for you particular concerns and needs, my Prayers to you.
Have a blessed day all, including those I missed in name.
Much Love,
Traci
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Traci
So good to see and hear from you, Foundation is growing all the time. If you are on Facebook come follow us. It is such wonderful and centering work, I just wish I could do it full time. I get depressed going to my normal job (for the paycheck) as it gets so much of my attention.
I am happy you are happy with your new bustling (one of the very few perks that come out of this ordeal) although wouldn't mind having my natural ones back.
Blessings to all of you today would like to join you in prayer tonight. but will be a bit late.
Theresa our novena begins SAT?
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xxxooo
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Kay---don't know, just before discharge, I asked the hospital rotation onc doc, then next office visit my onc doc(there are 7 in the practice). why?. They had no answer, but I didn't see or hear any detective work being done, as has been done in your case,mine was neoadjuvant(SIC?). So, I figured , if they weren't going to try to decipher it, I was not entrusting my body to them. They suggested reducing Cytoxan by 11%. I asked why, The onc's response was that was the best that they could recommend and I said based on what? He looked at the window and was silent, he had no answer. That onc has never been able to face me ever since.
I heard the fear in you yesterday or now it's two days ago. Your doc's have really worked at being Sherlock Holmes. There plans have been solid in trying to determine cause. Each drug has it's merits and it's drawbacks. Which I can't speak to b/c in nursing , oncology is not one of the sub-specialities you can move into without serious new study. I just found the other day lecture notes that I used from 1998, it was for the local high-school career day, my portion was on nursing and it identified all the different certifications that were available in nursing ----51---that was then , how many now???? All but a few I could work with the basic patient, but neonates--birth to 4 weeks old and pediatrics(it's a special calling of God to be able to work with young sick kids). Oncology patients, I could work with everything ,but the delivery of the drugs. That REQUIRES a special certification. I can tell you I once considered it, but the only nurse I wanted to train me was going to leave. Her knowledge and attitude was so superior to any of the other nurses, I decided not to go for it(12 years ago). My consideration of it was that it was a career change. I hope that imparts how serious I consider the use of these drugs and there effects. So, again and it is repetitive, That is why I so respect your doc. She is not doing paintball drug therapy----Throw it at the wall and see if it sticks. MY doc was, I said nope not to me. If and how it will change my life---don't know. I can tell you, I have thought about it more then once, particularly since I have colon polyps now. Once I identified the drug interaction with norvasc , I asked to have chemo and the doc refused---said there was no research to support it's use that long after first chemo-- 10 months.
Your doc is so thorough in her approach, I know it's scary for you, but each move she makes is well considered and thought out. She's a Sherlock Holmes and that's the best kind of doc to have. Her approach, is yes-- there are two drugs appropriate to your treatment, but she's not going to let them hurt you by continuing to just give them. She's making sure that if one has to be discontinued, the right drug will be d/c'd.
In hindsight, I would have been better able to push the system, had I known then what I know now. In your case, you are in better hands then I was. My previous doc has all kinds of awards and recognitions for leadership and best stuff etc. Well they are just plaques on the wall. I hope this gives you a better insight into her management of your case. AND lessens your fear. You may have bumps in the road, but it's not for lack of due diligence on you onc's part. I, also, hope that it increases your faith and trust in her. Faith and trust in your doc is paramount. Compare it to the description of mine, way different. That's why I have asked people in the past " do you still trust your doc". If the answer is no. Then I strongly recommend changing doc's. Trust is imminent. I changed doc's. Namaste sheila
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Squid-------??????????????? Namaste sheila
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Radiation fatigue got the best of me, I finally feel like I'm crawling out of it with baby steps. I wrote in my journal the other day how physical fatigue must be the same as being spiritual fatigued....that's when we use our poor judgement...
So here's praying that we all are renewed in God's love everyday, that we drink from the well of His nourishing water, and allow Him and others to carry us on the days we need to be carried.
See you all tonight!
~gina
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God bless you Gina - you will get better.
Kay - you sound so much better! Angels are with you and your doc.
I've not been well again... don't know if it's the heat or another virus cooking inside me. Between the heat and the hot flashes, I'm going to come out well done.
Yes, we're starting the Blessed John Paul II novena tomorrow. Say a rosary or Divine Mercy Chaplet or both for 9 days. I'll have to go back and find my post.
Traci - so good to see you pop in!!
I'm trying to keep my eyes open for 10:00 prayers. I didn't sleep well last night. But I am excited about our SFO meeting tomorrow!! This month's Chapter has been on Evangelization and Obedience. I'm having trouble with Evangelization ... I keep thinking of evangelists as outgoing missionaries and such (like Michelle!), but have to remember St. Francis' lesson on the topic .... go out and preach to the community but try not to speak. :-) Good works, good deeds show the goodness of God.
This was a nice reminder about obedience: Obedience seeks freedom from all stubbornness, selfishness, self-centeredness. This effort will have one great result: release from self-seeking and pride.
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I am here. Anyone else?
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Short reading Galatians 5:16,22-23,25
If you are guided by the Spirit you will be in no danger of yielding to self-indulgence. What the Spirit brings is love, joy, peace, patience, kindness, goodness, trustfulness, gentleness and self-control. Since the Spirit is our life, let us be directed by the Spirit.
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Intercessions:
To the Lord be glory and honour for ever. May he fill us with hope and with the power of the Holy Spirit:
- Lord, bring us help and salvation.
Almighty Father, you know how weak we are even when we pray:
give us your Spirit to speak on our behalf.
- Lord, bring us help and salvation.
Send your Spirit, the blessed light,
to shine in the innermost corners of our hearts.
- Lord, bring us help and salvation.
Lord, we are the work of your hands:
do not abandon us to the domination of our sins.
- Lord, bring us help and salvation.
Give us the gift of accepting the weak and the sick,
not hastily and impatiently but with love and reverence.
- Lord, bring us help and salvation.--------------------------------------------------------------------------------
O Lord, hear my prayer and those of all Your children. Let us not go to sleep hungry. Bless and keep all of us: Make Your face to shine upon us and be gracious to us. Look kindly, Lord, upon us and grant us a lasting peace. Amen
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Tomorrow's Novena is posted on the Prayers Site:
http://community.breastcancer.org/forum/38/topic/760274?page=2#post_2441754
There is a link to the Intentions page. It's easier to have 2 tabs of your browser open, so you can read the one and not lose the other.
Good night!
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oops, better late than never.
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Well if I came here first rather than checking PM's I would havee been on time-------Thank you for the prayer Theresa, And thank you for your work on the novena, I truly look forward to them,
A thank you to anyone who prayed for my insomnia it's improving , not perfect , but leap years from where it was-------sheila
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