MIDDLE-AGED WOMEN 40-60ish

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  • ellen1dg
    ellen1dg Member Posts: 2

    Thanks for the warm welcome, everyone.  I will keep you updated when I hear my results.  

  • Meece
    Meece Member Posts: 10,618

    Here comes a show of my ignorance.  I have looked through my records thoroughly, and cannot find any reference to an oncotype.  Is this part of the pathology report?  Is it found in a blood test, and if so, is it only present before treatment? 

    I am very interested in things I learn here, and every so often I go through my records I learn a bit more.  Like, today when I read through I found out that they referred to my surgery as a Partial Mastectomy.   I knew I had a chunk taken out, and have had two surgeries so far to try to make it up, but never did the doctor ever verbally use that term.  I wonder if he thought I'd freak out.  I also found my brain MRI report that flat out said suspicion of metastatic lesion, but I did not find this out for months after the MRI, when my Rad Onc called me and told me hehad received a copy opf the report and wanted to see me about it.  My Onc at that time NEVER mentioned anything to me at all.  I would never recommend that center to anyone, although people swear by it.  Maybe ignorance is bliss.

    Okay, deep breath, rant over.

  • Meece
    Meece Member Posts: 10,618

    I just found out the answer to my question...

    " The Oncotype DX gene expression assay is intended to be used by women with early-stage (stage I or II), node-negative, estrogen receptor-positive (ER+) invasive breast cancer who will be treated with hormone therapy." 

    I am TN  so no oncotype testing for me.  Okay so the cancer center gets one point back.

  • sheila888
    sheila888 Member Posts: 9,611

    I'm wondering if Oncotype test was done routinely in 2005 or you had to ask for it.

    Maybe I should ask the oncologist next month. I'm just curious.

  • PatMom
    PatMom Member Posts: 322

    The Oncotype test was first introduced in 2004, and even in 2008 wasn't routine, so it was probably pretty cutting edge in 2005, and we all know how slow doctors are to embrace new technology until it's been fully proven. 

  • Meece
    Meece Member Posts: 10,618

    Well, there is another reason I didn't get it.  I was dx'd in '03!

  • elimar
    elimar Member Posts: 5,886
    Seyla888, besides it being so new back then, you are HER2+ and chemo was probably already planned for you.  The Onco test is most helpful in figuring out if women with early stage B/C need (will benefit sustantially) from the chemo.
  • sheila888
    sheila888 Member Posts: 9,611

    Thanks PatMom.

    I made it to Herceptin just in time. It was approved April or May 2005 for early stage BC and  It was interesting for nurses because I was their first case.

  • elimar
    elimar Member Posts: 5,886

    Did anyone else watch the tele-fundraiser (SU2C) Stand Up To Cancer?   I tried to donate, but phones were tied up.  I went online, filled everything out and then got the "problem loading page" screen after I clicked "donate."  I tried again, got the same screen.  For all I know I have donated twice, or else not at all.  Guess I'll wait and see what's on my charge statement.

    Somewhat related:  About 10 days ago, I filled out the online registration for the Making Strides rally in my city.  I am not walking to raise funds, but planned to volunteer.  I called the same day because I wanted to ask what would be best to sign up for, that I could do side by side with my son who said he would volunteer with me.  Never got a call back.  I called again this morning, still did not get a return call.  

    Much as I like helping for a good cause, I don't feel so good about it when it is not organized well or I have to keep pestering them to allow me to help.                                    

  • sheila888
    sheila888 Member Posts: 9,611

    I watched the first 15 minutes and started to get anxious and turned it off.

    I dont know lately everything is effecting me. Maybe its age related.

  • heymoose
    heymoose Member Posts: 682

    HI to everyone,

    This is a very interesting site.  I have only been reading about 20 pages and have realized this is a wonderful group to be associated with. 

    I was diagnoised in March of 2008 and had many test and scans, two biopsy's and then a bi-lateral mastectomy w/ immediate reconstruction.  I have since recovered and feel fine.  However every once in awhile the cancer monster gets to me.  I dwell on the fact that I have lost my breast and my new girls do not feel the same.  They are bigger and I have a clevage but they are not mine.

    So I am very glad to have found this site.  I know a few of you on this site and am looking forward to getting to know the rest.

    Have a nice evening and sending (((((Hugs and Prayers)))))

    Your friend,

    Heymoose, Cheryl 

  • Meece
    Meece Member Posts: 10,618

    Heymoose,  welcome.  There are only two criteria to be on this thread (Elimar can correct me if I am wrong) 1) a sense of humor 2) a love of Cheetos

  • Meece
    Meece Member Posts: 10,618

    Oh, by the way, if you don't like Cheetos, I wouldn't admit it here.

  • elimar
    elimar Member Posts: 5,886

    Meece, I have to say that neither of those are actually required, but only with those two attributes will one fully be able to enjoy our particular brand of Middle Age Crazy!  

    Welcome, heymoose!   A lot of us here are past the active phase of treatment, just trying to live like we did before all the B/C drama and connect with others doing the same.  While others are newly diagnosed, and they need help with info. and support just like we did at the beginning.  So we do our best with that.

    It is no longer even realistic to think someone would go back and start to read from the beginning of this thread, so Newbies, don't even worry about it.  Just jump right in and we'll go from here.

  • elimar
    elimar Member Posts: 5,886

    Those not in active treatment, maybe with a little time on your hands, perhaps you can help me?  I'm putting out an APB on this little avian "shopper."  That's my kind of pet...I want him!

                                       ima get them CHEETOS!!!! Pictures, Images and Photos

                              Ooooh!  I find myself mesmerized by this little video clip.

  • eph3_12
    eph3_12 Member Posts: 2,704

    OK E-how did you photoshop that little shoplifting sequence?

  • Meece
    Meece Member Posts: 10,618

    E~

    Maybe we should go for another Cheeto Fest to get everyone up to speed.  I'll be over in a few so we can plan it all out.  Just got to find the keys to my new car.

    I don't understand...my pictures won't post!

  • marlegal
    marlegal Member Posts: 1,482

    i'm going to VA on 10/6 with chatters ... anyone interested is more than welcome!! we're doing busch grdens one night while there ... hope to see this :)

  • elimar
    elimar Member Posts: 5,886

    What's that?  A Li-ger?

  • barbe1958
    barbe1958 Member Posts: 7,605

    Heymoose, you're also not allowed to mention the weather....uh oh, did I just say weather??? OMG I said it TWICE????? AAAAAAARrrrrrrrrrrrrrrrrggggggggggggggghhhhhhhhhhhhhhh

  • elimar
    elimar Member Posts: 5,886

          

                        twin towers <img class= Pictures, Images and Photos" width="366" height="238" />

  • Kleenex
    Kleenex Member Posts: 310

    Elimar - I can tell by the way the video was created that the bird is, indeed, your pet. It is obvious that you filmed him from your car using a phone while you waited outside for him to bring you the goods.

    Wonder if I could train my guinea pig to shoplift cheetos?

    Y'all should be proud of me: we had 9 inches of rain from tropical storm Hermine and I didn't even mention it here due to the moratorium on weather rambling. Ooops.

  • faithandfifty
    faithandfifty Member Posts: 4,424

    HEYMoose!!!!!!

    Welcome to middie-ton!!!

    Middies, you don't realize what an angel IRL (in-real-life) our Cheryl is..... she has done so much for so many. Myself at the top of the list.

    (((((((((((((((((((((moose))))))))))))))))))))))))))

    Welcome, newbies.

    Cheese-doodles & cheetos unite!!!!

  • eph3_12
    eph3_12 Member Posts: 2,704

    Awesome coaster picture!

  • 3jaysmom
    3jaysmom Member Posts: 2,604

    welcome CAROL2, and WINTERMOON6.. so sorry you had to come, but glad you came to us... light ad love, 3jaysmom

  • 3jaysmom
    3jaysmom Member Posts: 2,604

    welcome CAROL2, and WINTERMOON6.. so sorry you had to come, but glad you came to us... light ad love, 3jaysmom

  • 3jaysmom
    3jaysmom Member Posts: 2,604

    welcome CAROL2, and WINTERMOON6.. so sorry you had to come, but glad you came to us... light ad love, 3jaysmom

  • 3jaysmom
    3jaysmom Member Posts: 2,604

    new  header is great!!when can I get off this roller coaster.. uhh never.. 3jays

  • OG56
    OG56 Member Posts: 377

    Elimar- love the roller coaster this ride with BC is certainly that!

    I am going tomorrow for a Mamogram and am sweating it already! A couple of days ago I noticed a hard, painful lump in my Rt. breast. I already was scheduled for the Mamo but I don't want them to squish that boob, so maybe I can talk them into just an ultrasound. I had a baseline MRI of this breast a month ago so hopefully it is a seroma. I had no idea about those clips, I wonder if that is why my boobs feel so hot while I am in the MRI?  Why don't we get all of this information it really pisses me off.

    I didn't get an Oncotype either in 2008 because they weren't being done routinely on women with less than a cm. tumor. However, when my BS at Sloan asked me if I had one and I said no she went on to explain why not.. my DH said "can she have one now?" Oh yeah honey I want to do chemo a year later!

    Having LCIS pleomorphic style is so annoying I really hate that I will forever be on the 6 month schedule yet at the same time I would be more nervous if I wasn't and they just kicked me to the curb LOL...but it is so good to be here with all of youSmile

    Congratulations Faith, your talents abound

    Seyla- when I was back in Omaha I was thinking about NE Grandma too!

    Holding all of you in the light that are waiting for test results or starting treatment.

    Linda

  • cookiegal
    cookiegal Member Posts: 527

    Hi....just got home from NYC race for the cure!!!!