MIDDLE-AGED WOMEN 40-60ish
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how could i miss so much about so many?????????? so sorry for anyone ailin and so happy for anyone celebratin (excuse the Texas twang- getting geared up for the ride to San Antone and meeting up with all the bc kinfolk tomorrow:)))) I wish ALL OF YOU could be there and you will...in our hearts
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I hope everyone meeting in San Antonio tomorrow have a wonderful time!!
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Janis-you passed the problem on to your NN, let her deal with it! Now lets just focus on getting you that B9 result on that biopsy!! Barbe, it scares me to think that anyone would have a needle around my throat and I would be AWAKE!! I think after the first missed jab, I would be passed out on the table!!!
Reesie, glad to hear you are healing. Gentle ((hugs)). Make room for me in your bag for Monday!! I'm bringing the chocolate.
Sherryc, CONGRATs on celebrating your anniversary. Have fun with all the gals tomorrow. I'm so jealous, it sounds like quite the party. Wish I could be there for a margarita or two. . .
And welcome Carebear, welcome to our little group that no one REALLY wants to be a part of. But we always love to throw a party and welcome our newbies!! Baked you a cake just to say welcome
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Hi all,
I would like to join your conversation. I'm 58, a schoolteacher, got the diagnosis on the first day back at work this August and met my surgeon on the morning of the first day of school. Diagnosis to end of local treatment took exactly one month, since I had brachytherapy instead of external rads. I guess it's good to be done with, but it kind of left my head spinning. I am just ending my second week of trying to do my whole job, get extra sleep, and still spend an hour or two (or more) reading up on bc every night. Good info was hard to find until I got turned onto breastcancer.org!
I am another one who changed MOs. The first guy had a hot rep but to me he was fast-talking, not really listening, and left me confused and feeling like I'd heard a rap he'd done a thousand times. Went to a different one, a university research type, and felt listened to. Their risk numbers for me were similar (my oncotype was 18) but with the first I got the message that I'd be irresponsible not to do chemo, while the second said he was "not enthusiastic" about giving me chemo because of the low probability that it would change my risk appreciably, and chemo SEs can be so serious.
Things I'm worried about: preventing lymphedema, whether I'll have SEs from Femara (waiting for the 90 day Rx to come in the mail), and why my breast has gotten more pink and hard and lumpy rather than less so. Don't think I have an infection -- not hot, no red streaks, pus, etc. Advice welcome!
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Welcome Ellen!! I wish I had some answers for you, but there are so many fabulous women on here, I'm sure that someone can help you out. Glad you found a MO that you like, trusting your doc makes the whole BC journey easier. Have you called your MO about the changes in your breast? Don't wait for your next appointment, let them look at it and make sure its ok.
and just in case Carebear doesn't want to share her cake, I made one just for you!
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"All she could say was WOW." (I think that's from a book called Lily's Purple Plastic Purse.) I'm salivating!
Thanks for the advice... I thought of calling but didn't want to be a wimp. The post-surgical papers do say to expect it to be hard for a long while... just expected it to be gradually diminishing. As bc SEs go, I guess a hard, bumpy breast is pretty minor stuff! I had the illusion I would get treated and go back to being the same woman I was before.
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can i have some cake. back in work boo hiss!, if your bringing the chocolate claire i will bring the chips
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Eli, as far as "old timers" chiming in to let us know how they're doing ... there is just not enough time or space for some people and I get that. I pretty much only come on weekends and I can see how some of us might think ... Oh Geez...15 pages have gone by since I last posted so I can't keep up, I might as well not say anything. I just hope in my heart that our "old" friends are okay and just busy with their lives and might not post. For me, just know that I welcome all newcomers the best possible outcome on your tests, surgeries, treatment, etc. I'm 6 yrs out and living life to the fullest every day I can. Many cyber hugs to you all
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Welcome treeskier! AnotherColorado member. I lived in the Denver area in the 70's and 80's and I still miss it. My sister lives in Castle Rock, my son and DIL in Conifer. I moved to Idaho just last year from Cheyenne. I so miss that part of the country.
Your breast may continue ro redden for a bit. This is common with radiation. There are others here who have had mammosite rads who can advise you better, but of course talk to your doctor if you are even a little concerned. The changing of the incision site is usually normal. The radiation does irritate it and it will take awhile to calm down.
Claire...your cake choices are AMAZING!!!!! Good job!
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Welcome, treeskier! If it makes you feel any better, our Dx are very similar and my Onco score was also 18. My MO said I would have a 2-3% further benefit from chemo and for that reason did not recommend doing it Also, although I had whole breast radiation (WBR) it stayed firmer for at least 6 mos.. Besides it taking time for the fluid in the tissues to resolve (I had PT to massage scar tissue and do some lymph drainage too) I think you get kind of a microscarring from rads and the whole area seems to become less elastic. After those months, I finally got back to my age appropriate sag. Takes longer than you would think.
annettek, Wish I could come to the S.A. get together. I know so many of you going. Have fun!
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Do we have a Mystery pic in the works?? Not that I EVER know what it is!! 0
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HEALTH ALLIANCE YOU SUCK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! A pill that I have been taking for the last 3 months was a $0.00 co-pay. Now it costs me $9.00 a month to take. Just because you lost the State of Illinois employee contract the rest of us are going to be footing the bill. All so you execs can mantain the lifestlye that you have been living. You already screwed me over on my nuelasta copay, what else are you going to screw me over on? I know before anyone say its only $9.00, to me its the principle. Just 1 month ago those little pills cost me nothing! Havent I paid enough into your damn insurance enough already? For goodness sakes I rarely saw a doctor in the last flippn 10 years since I've had your dang insurance. Same goes for my family too! FREAKN money suckers is what you are!!!!!! O and by the way, thanks for jackn my rates up this year too! Ok enough of my rant, I feel better now. Thanks for listening girls!
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Feel better Paula? Good, that's what we are here for girl.
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Paula66, Health Alliance got you coming (premium hike) and going (Rx co-pay.) All I know is with our insurance, every year or two they negotiate a new plan that must be cheaper for the employer, and the employee OV & Rx co-pays always come out more expensive. Mine is so bad with prescriptions too. They make it into three tiers. The name brands you can't afford to get, the mid-range that has most the prescriptions you never heard of, and the cheap generics that you had better hope there is one for what you need. To think we pay good money to get screwed over like this!
Also, Paula66, hope you are still around to post the Mystery Pic today.
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Rant on Paula! Insurance companies have no souls that's for sure!
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It's not just feeling the needle in your throat, it's when they said " don't swallow!" that made it so hard. I just lay there with tears streaming into my ears...pitiful!!!
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Thanks for the reminder Eli. I completely forgot!
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justmejanis,
oh my goodness, just reading about your biopsy made me cry, everything but the spider was my experience as well back in April. I just finished my final chemo, and will start radiation in 3 weeks, but still the most painful part of the whole journey, besides first hearing the news, that I had cancer, was the biopsy. They took five samples, and two of the five, about made me come off the table as well, then they mamogrammed the very upset swollen breast right after, so they could get an image of the clip, they put in there after the five samples, only to have the clip removed 2 weeks later with the tumor.
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my guess for MP: indian flute.
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my guess would be fabric with pumpins on it
Trish
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Paula...sorry about the fiasco with the insurance and now having to add the copay. I can imagine how frustrating the new changes are. Glad you can come here and vent!
Barbe.....nobody told me not to swallow! I know exactly how you felt lying on that table...totally vulnerable. Someone leaning over you with a needle in your throat is just not a good experience at all! If my results come back inconclusive like yours, I am not having another unless it is a different doctor and they give me a ton of Valium first!
zumba.....I am so sorry you had such a traumatic experience with your biopsy. I hope I didn't make you relive it! My breast biopsy was not painful at all, and yours should not have been. Good luck with radiation, hopefully that will be easy for you.
I wonder how all the Texas gals are doing? I bet they are having a blast. I sure wish I was there. Can't wait to hear about their adventure!
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MP - Halloween shny paper(
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fish bait hanging in the store
Edited to correct spelling
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Something loooks jack-o-lanterny in that pic, and a couple look like ornaments, and a couple look kind of like apples with bites out of them. I am going to say Halloween ornaments hanging on a halloween tree. (I really haven't seen one ever, but I've seen an Easter tree so why not?) I'm pretty sure the pic is stretched vertically.
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I'll go with a Halloween flag that you hang outside
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Halloween flag?
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It looks like it's stretched. I am going to guess a Halloween balloon.
Welcome to the newbies! I am busy watching the post game from the Phillies game. Have a great rest of the weekend everyone!
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Thanks Barb58
I have had a lumpectomy and started Chemo, not going well though as I have been delayed twice now. I have to give myself injections of the drug Neupogen to try and get my white blood cell count up as it continues to be low thus the delay in Chemo. I have to do 8 rounds of Chemo and have 2 done after that I have to do radiation for 6 weeks - 5 days a week and then a mastectomy as they didn't get clear margins on the first surgery. A long road but having this now will help because I have many "sisters" who are here to listen to me vent and be supportive thank you
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Elimar
They just did a lumpectomy but have to go back after chemo and radiation to do a mastectomy as they didn't get clear margins the first time. It is good to read others stories and know that I am not alone in the struggles and yes we do make the best of our procedures but we sure as hell don't have to like them even a little bit.
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Janinnj . . . I am so glad to hear people on this thread talk about chemo brain . . . It's awful! I can't remember a thing . . I finished 4 AC treatments and 12 taxol on July 29 and nothing hasvchanged! In fact I think it has gotten worse!
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