MIDDLE-AGED WOMEN 40-60ish
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That's terrible Kay...I think I would have definitely been crying after that long!! Awful...
None of my rad treatments took more than 10 minutes. I can't imagine why it had to take that long...
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Kay, I agree with the others...no reason to feel bad about your reaction. It sounds like you were super patient in a near intolerable situation!
I want to share GOOD news! Since it seems things have been aweful the last couple weeks with kid drama and sickness from Chemo, I wanted to share now that some really nice things happened yesterday. Yesterday, I got a call from a LiveStrong who is helping me find resources to get counseling help for my daughter and some help for me. Then, the pastor from a local church came by...we have only been there twice, but he heard and wanted to extend the offer for one of their Stephen Ministers to come meet with me once a week to see if I need help and walk through this with me. He is also contacting a woman who had breast cancer and children about my son's age a year or so ago to see if she would be willing to transport the kids to church events so they can get out of the house and do things at least once a week. That's not all! My son's guidance counselor talked to him yesterday at a teacher's request (because of Monday's issue of him missing for lack of sleep) and she is going to work with him. In addition, she contacted the reading specialist who had triple neg 2 years ago and she called me. She does a lot of work with breast cancer and is setting meup with free house cleaning through a company that cleans cancer patient homes for free. She is also giving me a juicer to help me when eat veggies and such with the mouth sores and bringing me bean soup.
The fact is, with being new in the area, having family all live 3 hours away, and being couped up because I can't drive...I was feeling pretty alone. So it is amazing to go from that to feeling like support is coming out of the woodwork! I was pretty sick last night, but it didn't matter as much as it has other days.
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excellent news leeann
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I just re-read my post and need to qualify something. I have felt physically alone. All of you ladies have kept me from feeling alone, alone and have provided invaluable support that has gotten me through. I'm just excited to see someone in person
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Lee ann.. I am so happy to hear all the positive things that are happeing!. That is all very good
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That is such a wonderful story Lee Ann!!! To think it all happened in just one day! It reminds me of a scripted happy ending to a movie where everyone rallies to help out someone in need. Guess it happens in real life too, and what a lovely way to for your new community to connect with you.
(Of course I also like it a lot because it is the story that goes perfectly with my picture at the top right now; people coming together, hands that are willing to help.)
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Wonderful news Lee Ann!! 0
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Wonderful news Lee Ann. There are really lots of nice people out there.
Thanks for the comments on the radiation yesterday. It was supposed to be another set up before the radiation. And things were just not lining up the way they were supposed to, that is what was taking so long. I think the lymphedema in the arm may have been the problem. I hope in the end it was right. No extra x-rays on anything with the radiation today, so it should go quite quickly, we'll see.
Saw one little boy in a wheel chair in the waiting room yesterday. It made me feel so badly. He looked healthy other than being bald and in a wheel chair. I'm not sure why he would be getting radiation where I am, Children's Hospital of Phila. is right across the street. Maybe they didn't have a special machine or something he needed. It is very said to think of such a young boy going through this. He must have been about 10.
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LeeAnn.....that is such good news, I am so happy for you and your family! Sometimes just when you think you can't take much more....a great thing like this happens. I understand isolation...we moved to Idaho last year due to my DH's health. I have had a hard time sometimes with all friends and family almost 1,000 miles away. This place has been a wonderful support for me as well. I am so glad you are here!
Kay, I hope things go quickly and smoothly for you today hon!
I am off to my LAST treatment! In less than an hour it will be over and done!
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Yay for that Janis!
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Janis - Congrats on finishing rads! Now let the healing begin.
LeeAnn - Such goo news - we like hearing those kind of stories.
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janis, this jump is for you...Hooray! Now, heal skin, heal!
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Great news LeeAnn, just goes to show that there are really good people out there. Janis, YIPPY for you! "Done" is such wonderful word when it comes to treatments. Kay, here's hoping for a good day today with rads. Celebrate today, no need to wait till the weekend! The kitty happy dance!
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Yay Janis! Happy day for you!!!0
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Thank you everyone! I am home and DONE! It was pretty uneventful. Techs thought the burn looks pretty bad and said it may get worse over the next few days. I got a prescription last week for pain meds, but was running low and told them. They went to talk to my MO and he wrote me a fresh script. Maria and Juanita were the best techs! Juanita gave me a small box of fancy chocolotes, so sweet. Maria told me that now I need to go home and stay in for a week, elevate my arm as much as possible and go braless of course. They gave me some more Domeboro soaks to use when it gets 'weepy". I have fresh peeling under my breast now and a nice rash. Still, I am DONE and it is such a great feeling! I am going to try hard to take it easy and focus on healing this up.
Thank you all for being my sounding board, my shoulder, and most important, my friends!!!!
Love and hugs to all,
Janis
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Hoping and praying that you heal quickly Janis! Now you can join the After Radiation group... 0
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Don't forget 1/2 hydrogen peroxide & 1/2 water soaks for washrags. place over wounded area for about 10 minutes & let air dry. Worked like a charm for me.
Congrats on being done! Do something fun for dinner that doesn't involve you cooking!! You've cooked enough for the day!
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I wish these forums had a "like" button! I like your comment Eph3! 0
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Janis - YOU ARE DONE AND I AM DOING THE HAPPY DANCE FOR YOU!!!
I agree with Barb - these forums need a like button - Eph - you comment was great
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Yahoo Janis!!!!
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let the healing begin janis, enjoy your "free time" 0
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Janis- You made it!!!! Let the healing begin.
Lee Ann- Glad you are finding a support group that works for you. Teenagers are so fragile in ways and strong in others and each one is different.
Kay I hope today goes better. Hope the LE therapy helps.
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I hope your treatment goes much better tonight Kay!0
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Yay Janis! You made it!! I am soooo dancing the happy dance for you!!
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Thanks everyone! I would dance if it didn't hurt LOL! Today the area around my nipple started bleeding just a bit. I was relaxing...but it kept hurting. I went to put some more ointment on it and saw the blood. I am wearing two shirts, a black tank top and an old grey v-neck tee over that. I put my ointment on it as soon as I got home. A couple hours later it was so sore so I went to apply more ointment. The skin is just ceracked enough it opened up. Not bad and I will be FINE. Just really sore right now.
Kay, I am really hoping to hear a positive report about your treatment today! I'll be checking. You have been on my mind all day.
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Oh my goodness, 521 pages! I read through the first one, but I don't know if I can handle so many more... so I'm just going to jump in the middle here... start where you are, isn't what they always say?
I'm 49 and my name is Esther. Sounds like everyone is congratulating Janis for something wonderful, so I'll add my cheers as well. Hope to get to know you all.
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Hi Esther,
Welcome to the group, Sorry you have to be here, but it is a really fun and supportive group of women. I have only been here a short time, but they are truly fabulous.
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Welcome, orangemat! No, despite all those back pages containing some very funny posts, it just is not practical or neccessary to try reading from the beginning. Jumping right in is what you have to do. What surgery did you have? Are you on a hormonal drug now? I like the color of your mat, because if I got messy and dropped some Cheetos crumbs on it, you wouldn't be able to tell!0
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Hi elimar! Let me see if I can get all the abbreviations right... I had a UMX, a NSM with immediate reconstruction. Initial surgery was in May, recon in July. No radiation or chemo necessary, thank goodness, and I'm opting not to take Tamoxifen (my husband says the name sounds like "toxic", so no wonder I don't like the idea of taking it!).
I just got the go-ahead on Monday from the PS to return to practicing yoga (yay!), along with the news that I'll need revision surgery (boo!). Well, not exactly "need" it, but he'd recommend it. My mom had a radical mastectomy 35 years ago (I was 14 at the time). There was no reconstruction or anything, and was told she didn't "need" to have any additional procedures, she was "fine" as she was. She's lived with that regret and bitterness all her life, and I guess that sense of lack of entitlement has been my legacy. But I'm tired of having to settle for what's just "fine". I did tell her today about my news, and she was very supportive of my decision to go ahead and have another operation. I thought she'd tell me it wasn't worth it. Live and learn.
Yes, orange (as in Cheetos) is good. That's my husband's favorite color. Mine is green. Between the two of us, we make all the colors in the rainbow.
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Hi elimar! Let me see if I can get all the abbreviations right... I had a UMX, a NSM with immediate reconstruction. Initial surgery was in May, recon in July. No radiation or chemo necessary, thank goodness, and I'm opting not to take Tamoxifen (my husband says the name sounds like "toxic", so no wonder I don't like the idea of taking it!).
I just got the go-ahead on Monday from the PS to return to practicing yoga (yay!), along with the news that I'll need revision surgery (boo!). Well, not exactly "need" it, but he'd recommend it. Considering how unhappy I've been feeling with being uneven, I agree.
A little history on me: my mom had a radical mastectomy 35 years ago (I was 14 at the time). There was no reconstruction or anything, and was told she didn't "need" to have any additional procedures, she was "fine" as she was. She's lived with that regret and bitterness all her life, and I guess that sense of lack of entitlement has been my legacy. But I'm tired of having to settle for what's just "fine". I did tell her today about my news, and she was very supportive of my decision to go ahead and have another operation. I thought she'd tell me it wasn't worth it. Live and learn.Yes, orange (as in Cheetos) is good. That's my husband's favorite color. Mine is green. Between the two of us, we make all the colors in the rainbow.
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