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CALLING ALL STAGE I SISTERS

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Comments

  • don23
    don23 Member Posts: 213
    edited September 2010

    Granny - glad to hear things went well!!!!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Michelle...Good luck tomorrow♥

    granny...thinking of you.

    Reneeeeeeeeeeeee

    Valerieeeeeeeeeeee...i keep missing you.

    Can you hear me?

  • valjean
    valjean Member Posts: 1,110
    edited August 2013

    Hey Sheila ~ This was one of those days where one feels so blessed. My DD (the one 7 hours away) & her little ones were within sight of their home when a stupid neighbor pulled out of his driveway right into her car. He was driving fast out of his own driveway & never looked, just hit my DD broadside. Thank God they were not hurt, smashed in both doors, blew out the back tire & spun her right around. Now they have to look for a new car, & in these times do not have a ton of money to spend on one. She is so upset, & I wish I could be there to give her a big hug & tell her I am so happy my grandchildren & she are okay. (this is in the country with long driveways - she has (had) a Chevy Blazer, he a BIG truck. only hurt his big bumper)

    Things happen in a split second. My granddaughter is in pre-school & she was happily talking about her morning & what was mommy going to fix her & her brother for lunch, & then BOOM! Just like that! I am so mad at that stupid neighbor, he admitted he never looked to his left, what an idiot. He almost changed so many lives in an instant.....My DD & I have decided we are going to egg his house & tee-pee his trees! Just kidding, but it would be soooo much fun!!! (&, no, I have never done that!)

    I can breathe again....

  • barbaraa
    barbaraa Member Posts: 3,548
    edited August 2013

    Oh Valerie. How awful! Thank God she was driving a Blazer. If that had been a sedan, I shudder. Glad everyone is OK.

    (((HUGGS))) for GD.

  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    Thank the Lord they are okay.  Vehicles can be replaced, loved ones canot.

  • jpmercy
    jpmercy Member Posts: 94
    edited September 2010

    hi ladies, i was wondering if anyone is in a similar situation. i started off original dx with DCIS grade 3 multifocil BMX on Sept3 final pathology showed Grade three multifocil microinvasions and a 2.5mm tumor that is HER2neu +3 and grade three 40% ER/PR anyway i jsut turned 30 so im confussing to my oncologists and ive seen a few one at a major cancer institute. they are recommending a year of herceptin and four doses of light chemo with taxol and something else but i cant remember the name anyone go this route for such a small IDC? i have an 8 month old baby and i feel like ill through anything at this at this point i just want it gone! and im hoping to eventually have another baby lots of wondering and worrying about what lies ahead any insight would be great!!  also what exactly does HER2 +3 mean? thanks ladies!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Valerie.. Thanks God the family is fine but i can imagine what you all went through especially when you cant go and give them a hug. i will be thinking of you and your family.

    ((((((♥HUGS♥))))))

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Hi Jennifer...i cant really give you much info except i was HER+ and given Herceptin for one year weekly. I also had 4X Taxol and 4X A/C chemo.

    Someone with similar situation as yours can give you more insides.

    Good Luck and Hugs♥

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    granny...How are you feeling?

    ((((Hugs))))♥♥

  • elimar
    elimar Member Posts: 5,890
    edited September 2010

    jpmercy, I cannot speak from first-hand experience either, but your cancer was aggressive (Grade 3) and you are very lucky to have caught it so small.  With Grade 3, your young age, and because the tumor did not have a high receptivity for ER/PR, but did have HER2+, it means that chemo is what will harm the cancer cells most and is your best weapon to fight it with.  (I really don't know what the (+3) stands for in regard to the HER2, maybe it indicates the degree to which your tumor growth is stimulated by the HER2 protein.) 

    Getting B/C while trying to plan a family is horrible, but the fact is that it never comes at a good time.  There is no good timing as far as B/C goes.  Why not have a talk with the doctor about the length of treatment, and what kind of timeline you would have as far as trying for another baby?  That way you can have a realistic picture, and then you want to do the best treatments that will give you the best chance to be around a long, long, time with your kids and grandkids.

  • jpmercy
    jpmercy Member Posts: 94
    edited September 2010

    Thanks Seyla and elimar!

    i know having found this early and knowing how aggressive it was it what is making me feel thankful and not so upset about the upcoming treatments, Seyla your 4x chemo sounds simlar and the herceptin what were your side effects did you loose all your hair with the 4x chemo? and any problems iwth herceptin?

    thanks!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited September 2010

    granny is sore,drugged and bored.I MISS MY SISTAS.thank you for holdin my hand.GOD BLESS

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    granny....give yourself some time for recovery. glad you were able to post♥

    Hugs

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Jennifer...first the good news if you are getting Herceptin its like a maintenance drug.

    I had absolutely no SE and doesn't effect the hair.

    The other chemos yes you loose your hair. Some of us got more SE than others.

    Its not very pleasant but doable. Taxol was easier for me. Light SE like indigestion.

    We are here for you.

    I have a daughter who just turned 30 in August.

    HUGS♥

  • valjean
    valjean Member Posts: 1,110
    edited August 2013

    grannyD ~ So good to hear from you, dear sister. Rest easy. {{♥gentle hugs♥}}

    Welcome Jennifer, honey. I am so very sorry you have to be here, but we are here for you with open arms, love & all the support you could want & then some. Love your avatar picture, what a little cutie-pie! {{hug}}

    edited to add: Thank you for your concern re: my DD & grandkids. They are doing well, still a little shook up. The insurance adjuster could not believe the damage done to the car by someone just pulling out of their driveway. She knew he was going way too fast. The car is totaled.

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Val...I caught you . I hope you are still on the boards.

    How is family doing emotionally?

    (((HUGS to YOU and The FAMILY)))))

    ♥                        ♥                          ♥

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    Sheila ~ My DD, Lacie, is still upset because little Jackson, 2 yrs, was on the side that was hit & he was really crying & that, of course, started 3 1/2 yr old Mackenzie to cry, also, which in turn turned on the waterworks for Mommy. She is mad at the neighbor guy & so scared that something worse could have happened.

    Sure brings us back down to earth so quickly when something like that happens. My DH called her when he got home from work & she was emotional on the phone he said.

    I know they will be saying special prayers of thanks when they go to Church this Sunday.

    Thank you for asking, my dear sister.

    Love & hugs,

    Hey, great to catch up with you "in the moment" as well !!!!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    My thoughts are with your Family.

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    Oh, I love that. I have a white ceramic pair of hands that my MIL made for me many, many years ago.

    So peaceful.....Thank you. ♥

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited August 2013

    Jpmercy - I had similar dx...HER2+++ basically means your are HER2 positive and Herceptin is THE drug of choice in treating HER2+ cancers.  Herceptin was only approved in 2004/2005 for early stage I and II BC girls but it was only approved on the condition that is given in conjunction with some form of Chemo (Herceptin is a targeted maintenance drug that only affects the HER2+ genes, unlike chemo with go after anything cells that have a high active/rapidly dividing cells.  That is why on so many of these chemos we loose our hair, our skin is so dry and we can have mouth and tummy issues.)  HER2+ BC is a very aggressive and unpredictable cancer, but with Herceptin our prognosis is much improved.  

    Val - I am so happy that no one was hurt ((((HUGS)))

    Granny - sending you HUGS and prayers for healing and a quick recovery.

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    Ok ladies here is the update on yesterdays appointments:

    BS did a very through exam, does not think there is scar tissue adhesion or nerve impingement.  BS thinks that my nerves are sending mixed signals (ie phantom pains/sensations), just like when some one has lost a limb, so she has referred me to a pain management specialist.  The most common treatment is nerve blockers to help calm the over active nerves and hopefully stop the misfiring.

    LE specialist was at first a total bummer, they are out of network and would cost $$$$$ for the LE pump my doc's are recommending. Yell I was so disappointed yesterday but this morning I got a call from the LE specialist and they are thinking that because the pump is a very specialized unit and they are one of only a few providers, they may be able to be a in-interwork rate approval,  translated, no out of pocket cost to me Laughing 

    My PS was a waist of time, he tried to convince me again to go for the nipple recon - must be a man thing.  of course he is very proud of his work (they are very nice).   I did get to ask about the scars and apparently my scars as good as they are going to get (they are not bad, but do pull a little on the R side). 

    So that is it in a nut shull - thank you so much for your prayers and well wishes.  I should now in 4-6 weeks about the LE pump so I'll keep ya'll in the loop.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited September 2010

    with all this rotten stuff im readin today i have to bring some cheer to our stage 1 sistas.

    dr called today.6 nodes removed.6 nodes were negative.

    i hope good news follows good news.im prayin for all my sistas.God bless.

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    granny.....I'm so happy for your good news.

    Are you feeling better than yesterday?

    Hugs♥

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    Whoooopeeeeeeee Granny!!!!! No Nodes!!!!!!!!!!!!!!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Michelle...Thanks for the update.

    One day at a time sister/friend.♥

    Hugs

  • barbaraa
    barbaraa Member Posts: 3,548
    edited September 2010

    WHOOPEEE!! ((((((((GrannyDukes)))))))))

  • shiramg
    shiramg Member Posts: 29
    edited September 2010
  • don23
    don23 Member Posts: 213
    edited September 2010

    Great news, Granny!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    For our 2 Sisters who are no longer with us.

    RIP  September 24, 2010

  • deborye
    deborye Member Posts: 2,441
    edited September 2010

    That is good new grannydukes.  Rest and Heal.