CALLING ALL STAGE I SISTERS
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For Aus and Nannalinda. 0 -
I also had SNB without a drain.....I really didn't want one. I did end up with a seroma but it seems to be resolving.
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Welcome to our thread jodimaca.
♥
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grannyD ~ I am so happy for your wonderful news.
{{{{ ♥ gentle hug ♥ }}}}
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Such sad, sad news that we have lost 2 more beautiful souls, our sisters.....when will this end?
Michelle ~ I am relieved for you that you have at least gotten some answers to your questions re: scars, LE, etc. Hopefully if it is nerve endings, the solution will be forthcoming for you. I'll keep my fingers crossed that you will be able to get one of those LE pumps.
Welcome jodimaca ~ What will your tx (treatment) be?
I am so thankful for all of you, I just want you all to know that. ♥
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Good news, granny!
Michelle, glad you are getting some answers.
Ditto to what Val said about being thankful for all of you!
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Thank you for the welcome. Treatment decision was/is the hardest part - it seems when it comes to cancer, I am the same as in all other areas of life - "medium" "intermediate" and the like. This essentially means that with a grade 2 tumor and an oncotype of 23, the decision is really mine. I have seen FOUR medical oncologists with the following recommendations: 1. you really should, i know i would 2. I don't recommend it, there is too little potential gain, wouldn't have my wife or daughter do it 3. i am 60/40 for chemo, just to be safe and 4. i am 50/50 - this is really a philosophical decision. ARGH! I have read and read through these boards and find very very few people who have said no to chemo in this situation. I am pretty sure I will go with CMF over TC (my two options). I am not happy to be in chemo for 6 mos but because I am highly allergic and reactive to meds, I am more afraid of TC. Any thoughts are welcome as I have a few more days to decide. I have a few messages out to people asking for specific thoughts on their CMF or TC experiences, dosages, etc...the more info I have, the better my decision..
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jodimaca, look at my Dx line below. We are almost identical, but I had an Onco score of 18, and did skip the chemo. If my score got into the 20's, I am sure I would have taken the chemo course too. Do you know the percentage of ER/PR response your tumor had? I had 90%/85% on that, so am hoping that Tamoxifen alone is enough insurance against any stray cells.
It IS hard to decide about treatments. The Onco score is a helpful tool, but there are quite a few of us who have scores near the borderline, so it's still questionable. Good Luck with chemo. You are doing a good thing, getting advance info. on the two options.
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jpmercy - I am praying for you and have to let you know I am new to this group as well, but the support and people are fabulous. It helps so much and means so much. I am awaiting a date for a dbl MX and will have Herceptin, Taxol and the onc. is recommending Tamoxifin for five years. This is all new to me as well and if it helps please feel free to PM me.
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I apologize for asking this, but is there a list of the abbreviations out there? I feel as though I saw it awhile back, but can't locate it. Thanks.
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Grannydukes-I am so happy for your news. It is so great.
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onestep...I just bumped it for you.
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Thanks so much, seyla888.
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granny - what a relief!! I know how I felt when the doctor told me my lymphs were clear! I was so happy that the nasty bugger was out of my body and hadn't spread.
jodimaca - the hardest part of BC is waiting for results, the second hardest is making decisions regarding treatment. My tumor was just under 2cm, hormone positive, strong family history of BC and 50 years old, so my choice was basically made for me by my onc and I had 4x TC every other week. He didn't do the oncotype test. Now I'm on tamox for 2 or 3 years.
-Theresa
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Hi Everyone,
This is also my first post to this forum. I was diagnosed in May - had a lumpectomy & sentinel node biopsy. This found 8mm IDC, ER+/PR+, her2negative and also found 6.5cm of high grade DCIS w/necrosis. I was pretty much told at this time that tamoxifen would be my only proposed treatment (I am 36 years old) and was recommended to have the one breast removed because of the DCIS. I opted for a bilateral mastectomy and had that in August (I had reconstruction at the same time). In the meantime, I asked for the oncotype DX to be done. I am in Canada and this still seems quite new here and wouldn't have been offered if I hadn't asked. I was a bit surprised when my score came back at 30 (=20% recurrence over 10years). My oncologist is still not recommending chemotherapy because she feels that the benefits would be minimal compared to the risks. She has however recommended Zoladex x 3 years in addition to the Tamoxifen. This apparently has been shown to be equivalent to atleast the CMF regimen - especially in premenopausal women. I am so torn about what to do and going against her recommendation. Similar to JODIMACA I am learning that I seem to be quite an allergic person and am therefore worried about that w/chemo. How many other Stage 1, Grade 2 folks out there have skipped chemo? I also have yet to read about anyone with an Oncotype Dx score similar to mine who hasn't done chemo (in fact most seem to go for it even in the low 20s)....Any thoughts? This is one tough decision.0 -
Hi Sheila! Sorry that I have missed everyone this week, but i haven't been on much, actually not at all since last Sunday. My daughter has been really busy with school and slipping off and getting married on Monday (which quite upset me by the way, but we won't discuss that). I have been so tired from working late every day and going to pick up my granddaughter after I get off work and then coming home by 7:30 to cook supper. But it's all good!
Granny glad to hear you came through surgery and have negative nodes!!
Jodimaca and Green1 ... Welcome and big hugs on decision making!! It's tough, probably the toughest decision you'll ever have to make. Green1 - I know it's hard to go against what your doctor may be advising, but do what you feel in your heart feels right for you.
Renee
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I have found just a few with the courage to say no to chemo - which is just as hard as saying yes and doing the chemo (just my opinion). I have searched the boards for someone with my score or near my score and haven't found anyone who turned it down which makes me feel like I better do it as well! For the weekend, I am telling myself that I will do CMF. All input is welcome on that regimen vs. TC.
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Welcome green 1...i do not have a similar DX but I just want to welcome you to our group.
Renee....So nice to see you. You must be very good for what you do thats why they want you there all the time. but sometimes too much is too much.
you take care of yourself okay!
Hugs
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Thanks. Sheila, for inviting me to join this group even though I'm stage 2. Actually by breast surgeon said she'd probably classify me as stage 1b, so I think I fit. I have ILC and had a lumpectomy 8-18 with re-excision 9-1. The tumor nodule was 1 cm but with the "tendrils" maximum length was 2.5 cm. Prior to the actual surgery I'd been told it was .6 cm, so go figure. Anyhow, I'm 60 years old and retired early 2 years ago to do all I could for my father, who was nearly blind from macular degeneration and insisted on living at home. My husband and I finally persuaded him to go into assisted living in January of 2009, where he soon fell and broke his hip, never to walk again. He passed away in January of this year, but I still look after my aunt who's in assisted living and is 98 years old. Yes, 98!
We have 2 adult children and are grandparents of a 16 month old boy, who we keep full time on weekdays while his parents work. So, we've been and continue to be busy. I honestly don't know how I found time to work now, and in view of the bc diagnosis, I'm glad to be busy!
Like Jodimaca, I'm wrestling with the chemo decision. I was stunned when my oncologist, who I've seen twice, suggested it. I posted on the chemotherapy forum asking if it could be postponed and got several replies. Now I'm waiting for the oncotype test results, which were supposed to be in Friday and weren't, so now the onc is to call me Monday. I just don't know. I will willingly have radiation and take whatever is prescribed for 5 years, etc, but due to complications with my sister (who also had bc) I'm really frightened of chemo. Hopefully I'll know Monday, at least enough to make a decision.
I've read this entire section and know I'm joining a wonderful group of women!
And, YAY for grannydukes!
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green1 ~ Welcome! I didn't have chemo, I was 56 when dx'd & my Oncotype was 14. I had a lumpectomy & Rads. You will know in your heart what tx is best for you, & you will become stronger every day after. {{hug}}
Renee ~ We ARE so lucky to be so busy, aren't we? But, as Sheila said, take care of yourself, okay? You can't do it all!
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QCA....So glad to see you. Welcome to our very friendly and caring group.
VAL....I cant sleep again so i will be sinning with my goldfish LOL.
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I'm still up, too.
How is your family? I hope everyone is well.
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Everyone is well Val.
DD called before they are not coming home for Christmas.
I said its okay. Ill come to Hawaii myself. That makes me happy.
Next May
Im sinning now.
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I'm so happy to hear your family is doing well. Can we ask for more? Next May a trip to Hawaii - ummm - room for one more??
I'm going to my DD's (youngest) this coming Saturday for a week (home on Oct 11). Christmas we will be with them, as well, but my other DD (oldest) & hubby are joining us later in that week, so I will have my entire family with me for the holiday. That will be wonderful & make for some great family photos.
I suppose I should head off to bed, tons of laundry to do tomorrow!
Good-nite, sister-friend!
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Good Night sister/Friend♥
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Sheila, what kind of sinning do you do with a goldfish????????????????????
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Hi Green,
I had an oncotype dx score of 27 and did not do chemo even though onc's recommended it. The way it was finally explained to me with the stats, it only gave me a 4% advantage. It took me a while to decide, made several lists and in the end chose what was best for me. I'm sorry to say, only you know what's best for you but once you make your decision it feels like a giant load is lifted. Take care and keep us posted.
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I am fairly new to this website but have found it so helpful! Only wish I would've found it many months ago. I had chemo (onco type score of 28) and am 8 radiation treatments from being done!
It was a hard and personal decision to do chemo, but I didn't ever want to look back and say "I wish I would've done chemo". Yes there could be SE's now and maybe for the rest of my life, but to me it was the risk I needed to take.
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Joni...one bag 840 calories.
Calories from fat 270.
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Welcome SweetMarci.......
We have to do everything possible to get rid off this disease.
I'm glad you are done with chemo and almost midway of your radiation.
HUGS
Sheila
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