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CALLING ALL STAGE I SISTERS

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Comments

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    I didn't have drains either, and can't give any info.  I think I probably should have had a drain because I could heart the fluid sloshing around for weeks.

  • oakley
    oakley Member Posts: 82
    edited December 2010

    HUGS for you Val and for your daughter.  BIG HUGS.

  • susantm
    susantm Member Posts: 71
    edited December 2010

    Praying for you and your daughter, Valjean.

    momofpatient, I was also fortunate enough to escape drains. Sorry I can't help.

  • valjean
    valjean Member Posts: 1,110
    edited December 2010

    In a bit of a hurry but wanted to give you all an update on my DD.

    She is to have an MRI, doesn't know appt date yet. Surgeon said the areas look like bc BUT they also look like the rest of her very dense breast. He is not sure, hence, the MRI.

    I will keep you updated.

    Thank you all so very much for your prayers & words of comfort ~ it is very hard to remain calm, as you know. I'm trying my best .... for her.

    motherofpatient ~ I had my drain removed 6 days after my lumpectomy/SNB. The fluid amt was less each day, maybe your DD's surgery track is still draining & she needs it in longer. I'm sure others will respond soon.

    Blessings & hugs to all of you.

    jo ~ I hope the visit with your rads onc went well & that your skin is improving each day. Be gentle with the area.

    Flo ~ 8 year survivor! You are an inspiration to me. {{hugs}} Welcome back!

    I think I'm forgetting something about someone but can't leave this post or I will lose it. Will read back & respond later.

    More tonight, am falling behind on things.

  • jo1955
    jo1955 Member Posts: 7,545
    edited December 2010

    Val - Thoughts & prayers go out to your DD that the MRI will be negative.  The waiting really sucks.

    Today was my last rad onc visit.  The skin is just a little pink in the boost area and the nurse gave me enough Aquaphor samples to another 6 wks of rads.  Couldn't believe how nice the rad onc and nurse were today.  They haven't been the best and let my skin burn before they would let me use anything.  Such a bad nightmare but it is now over.  Next step is to meet with the onc on Monday morning.  That is the only one I have to see now.  Doing the happy dance. 

  • catbill
    catbill Member Posts: 102
    edited August 2013

    momofpatient-

    I had drains in after bilat. mastectomies for 2 weeks and a friend of mine had her drains for 6 weeks.  It just depends on the patient's body and the doctor.  I figured if my choice were a longer time with drains or dealing with lymphedema, I'd leave the drain in a little while longer.  The other times she has had something drained might have been seromas.  They are kind of related.

  • deborye
    deborye Member Posts: 2,441
    edited December 2010

    No drains here.

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    I know how releived you must be, Jo.  Dancing for you!

  • deborye
    deborye Member Posts: 2,441
    edited December 2010

    They were so nice to me when I was having my rads, I miss them.

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    You sort of develop attachments to your caregivers during tx.  You see them so often.

     One of the nurses at my cancer center used to babysit my boys.  She ws so thoughtful and caring, then she disappeared.  They said she left her job because losing patients was too hard on her.  She now attends the same church as we do, and she volunteers in the nursery and we see each other there. There is even more of a bond because she knows where I have been.

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2010

    I still go and visit my oncology nurses.

    I was so used to seeing them every week for the Herceptin.

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    I had favorite nurses.  One of them was in the dating world, as I was, and we actually date the same guy.  We compared notes.  She would sit with me and pretend to be doing something for me, and we would have long chats about our families.  That seems so long ago.

  • jo1955
    jo1955 Member Posts: 7,545
    edited December 2010

    Meece - I love penguins.  Favorite movie is Happy Feet.

    I still go see my BS nurse and email her with updates.  She was my angel through this.  My BS and his nurse were the most compassionate caregivers I have had through this.  I would have been a total basket case without them.  Miss them already. 

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    I think the main compassionate caregivers I've had were my New Onc, and her DH whos is my PS.

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2010

    jo's Graduation dance.

  • jo1955
    jo1955 Member Posts: 7,545
    edited December 2010

    Sheila - You make me laugh often - feels good.  Thanks

  • Meece
    Meece Member Posts: 10,618
    edited December 2010
    crazies happy dancing Pictures, Images and Photos
  • jo1955
    jo1955 Member Posts: 7,545
    edited December 2010

    sheila & meece - You gotta tell me where you two are getting the great graphics.

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    Google

  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2010

    Mr. Google

  • outsidethebox
    outsidethebox Member Posts: 44
    edited December 2010

    Valj. Our thoughts/hopes and wishes for good news for DD is paramount. Do your very best to hang in there, taking it a day at a time as we do...or even an hour at a time, which some of us do still. Cry in the shower, it lessens the redness. She will come to you when she needs you, you know that in your heart. She is probably still processing what is happening. Remember that feeling?  

    Jo- Congrats! Yeah! 

    To everyone- Thanks so much for your thoughts for me... I got to ring the bell again today as I had my (hopefully) last Neulasta shot, Woo Hoo! plus a cert saying I made it through chemo. Hard to believe. I have meeting with onc doc on Tues, but hopefully no rad and just Tamoxifen for 5 years. I've met so many amazing people on this journey, medical people who are amazing and other patients, some of which I know will not make it due to their aggressive cancers. I think of them often. It helps me and my fam realise how lucky we are. BUT all that said...I still think I need to have the' what if it comes back' talk with DH. He reluctantly agrees. Got to be realistic. But today is a good day...  Think of one positive thing that happened today, all of you, and relive it...even if it was eating a bacon sandwich for brekkie or a lovely sunset or just a delish cup of coffee in the morning or the look on someones face.  My bliss later? A rice dream ice cream- delish but not nutrish. 320 cals.Ouch!  Whatever... I deserve it! Tomorrows another day ladies. Enjoy! Lots of Love XX 

  • barbaraa
    barbaraa Member Posts: 3,548
    edited December 2010

    Sheila, that's me in the polka dots! Whrere did you find that pic? I will KILL her!!

  • jo1955
    jo1955 Member Posts: 7,545
    edited December 2010

    outsidethebox - Congrats on finishing chemo.  Must feel great.  I did not have to do chemo but am elated to finish rads.  Next step for me is to meet with the onc for the Femara talk and find out what other tests come next.


  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    Ringing the bell for Outsidethebox.  I remember the relief of having that last Nuelasta.  Horrid reactions to it.

  • 3jaysmom
    3jaysmom Member Posts: 2,604
    edited August 2013
    oh ValJean! i will be holding you both up in prayer. its something we never want to happen to ourselves, much less, our children..  i will be here, holding your virtual hand, as all of us, are, waiting...3jays
  • sheila888
    sheila888 Member Posts: 9,611
    edited December 2010

    Im thinking of you Val

    Hugs♥

  • outsidethebox
    outsidethebox Member Posts: 44
    edited August 2013
    Thanks so much Meece. Love the Bell!!!... Ring ring! Here's hoping for few SE's from this shot. Got the meds at the ready just in case. Night night to all. XXXX
  • outsidethebox
    outsidethebox Member Posts: 44
    edited December 2010

    THANKS MEECE! Loving the bell! NIGHT NIGHT GIRLS XXXX

  • Meece
    Meece Member Posts: 10,618
    edited December 2010

    Nighty-Night

  • valjean
    valjean Member Posts: 1,110
    edited December 2010

    jo ~ Ring that bell, girl! I just loved my Rads onc & the nurses ~ They were so kind, caring & gentle.

    outsidethebox ~ I was surprised that my DD called me after her dr. appt. this morning on her way back to work as she had already told me she would call me after work when she got home. I think she knew how anxious I was to know what the surgeon had said/done. She is one to hold her feelings inside, unlike my #2 DD, who almost wears her heart on her sleeve. You have a very positive outlook on life, your suggestion to look at something positive that happened during the day helped pull me back a bit from the worry. I talked to my #2DD today & she put the little grandkids on, one nearing 4 yrs & the other 2 1/2 yrs. Such innocent love ~ that was my positive moment for today. Thank you ~ that helped me today. {{hug}}

    p.s. outside ~ Congrats on finishing chemo! I forgot to include that in my afternoon post.

    Thank you all for your continued prayers,

    Hugs to all