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CALLING ALL STAGE I SISTERS

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Comments

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2011

    Barbara A.............thanks girlfriend, will put that on my "to do" list.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    who ever plans on comin with JO JO on vacation listen up here----i do not bring any suitcase.ill bring $$$$$$$$.im gonna be in her pocket......soooooo fight it out.

    It sools like sheila annette and ME.....comeon foget the luggage just bring $$$$ and we will buy everything NEW>>>A shopping spree.yay.

  • samsue
    samsue Member Posts: 599
    edited April 2011

    Granny it sounds like a great idea... I was wondering how I was going to get all my shoes in that suitcase if everyone else was in there too.

    Sheila that was probably why I was dizzy... still stuck in Meece's pocket. Now I have practice to jump in Jo's.

  • lestwin
    lestwin Member Posts: 20
    edited April 2011

    Grannydukes:  OK You WIN.  I started the aloe vera today ( I have not been using anything for two weeks as everything looked good) but I got good advice on here (Rads forums) and you ladies must be doing something right.  I still feel pretty good, starting Arimidex Saturday so keep your fingers crossed.  I figured if I can handle the leukemia meds, with horrible side effects for some people, I should give it a go (not that I really WANT TO).  If I can quit smoking cold turkey, surely I can handle yet another medication.....we'll see.

  • jo1955
    jo1955 Member Posts: 7,545
    edited April 2011

    Now ladies - stop pushing and shoving - I have room for everybody.  You can still bring lots of $$$$, I won't mind one bit.

  • annettek
    annettek Member Posts: 1,160
    edited April 2011

    jojo- i am sorry to tell you this, but there is simply no room for you. it looks like you willhave to spring for a cabin of your own!

  • Melmes
    Melmes Member Posts: 38
    edited April 2011

    Hi, I am new here. I have just been diagnosed with stage 1, grade 3; 0 nodes, and 0 metastats as far as they know. It was an IDC tumor, 8 mm, which has been removed, but they have also found DCIS in the tissue sample and some cancer cells in the blood cells, so although it's clean margins, they're only "just" clean and that's just not good enough - so it's chemo and radiation for me. I'm not going to lie, I'd pretty much rather lose both boobies than my hair. But we are going to have aBonfire of the Vanities and cut off the ponytail next month.

  • tinat
    tinat Member Posts: 2,235
    edited April 2011

    Melmes:  Sorry we have to meet under these circumstances Undecided but glad you found us.  Sounds like you've got a handle on things.  For me things seemed easier once a plan was in place.  Things seem to happen very quickly at first then just when you want to get on with it the waiting begins.  Good news on the nodes, etc. 

    Best wishes and hang in there - one day and one thing at a time!!!

  • jo1955
    jo1955 Member Posts: 7,545
    edited April 2011

    Melmes - Welcome - This is a great group of gals.  Sounds like you have a plan in place and the waiting is the worst.  You tend to want to hurry up and get things done.  Initially, it is like a whirlwind and then you begin to think when will all this be over?  

    Best wishes - I got this from another gal on this website but I now live by the 24 hour rule.  Or like Tina said - one day at a time. 

  • sheila888
    sheila888 Member Posts: 9,611
    edited April 2011

    ♥((Our New Sisters))♥

  • valjean
    valjean Member Posts: 1,110
    edited April 2011

    Melmes ~ Welcome. I am so happy you have found us. I have found so much support & love here, it's almost unbelievable. Ask anything at any time, someone is always around to help you. Don't be afraid to rant, vent, cry or tell a dirty joke even, okay?

    {{hugs}}

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2011

    Barbara A...............Where did you purchase your Emu Oil............Did you get it from a Health Food Store, or did you order it online...........A little skeptical about online.......thanks

  • Sherryc
    Sherryc Member Posts: 4,503
    edited April 2011

    Melmes welcome to the group, but sorry you had to join us.  Good luck with your chemo and feel free to come here and ask questions or rant if you need to.  We have all done it.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    Lestwin---you wont be sorry creamin..i can promise you that.come back to the after the rads thread and let the sistas know how your skin feels.ok?

    Melmes-welcome to the best group of sistas.as you can see by the amount of results 7,152 we are quite active.and fun.come have a cupa with us.

    sheila----still prayin for your dad.

    JO I guess you are on your way to your vacation.gonna miss you.

    hugggggggggs to all my sistas.K

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011
    sorry-i forgot this-i just got a email that today is world cancer day.wont you please say a prayer for a cure/vacine???i posted it on my facebook.please sistas pass this along.I do believe in miracles.huggggggsK
  • barbaraa
    barbaraa Member Posts: 3,548
    edited April 2011

    Ducky, health food store. The brand they carry at my closest store is Laid in Montana.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited April 2011

    GrannyDukes...............A cure or a vaccine...................my prayer too................no more "me to" drugs that keep us alive, but kill us with SE.....................or find a different drug that will keep us alive,.....................and make us feel good, lose weight, cure our arthritis, our osteoperosis, take away the hot flashes,............help us to sleep a true 8 hours pain free, and above all else...............be as cheap to take as aspirin

    Now there's a challange for the Drug Companies..........................hugs ladies.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    Yes Duckyb1 a cure or a vacine....ill take either one.im sure all the sistas will too.

    when i tell my internist about all the s/e of the ALs she tells me read about the s/e on tylenol...welll i dont want to take that either....we all know every damn pill has s/e.right?but when my dr has a cold i asked her what she does and she told me all kinds of holistic stuff.what am i missing here??????

    another thing when i started my menopause i went to many drs.i had all the s/e.one dr.my friends son who i knew since he was 12 yrs old and dont believe in drugs did tell me that small frame,european parents,yadda yadda yadda he thought i should take the drugs...well 2 yrs later my friend his mother went into menopause and he told her suck it up...nice....then after taking prempro for over a decade they say OH NO. shit.no ALs for me.end of rant.

  • Melmes
    Melmes Member Posts: 38
    edited April 2011

    Thank you for the warm welcome. I'm very hopeful and positive right now, although of course I have my moments of little-girl fright about it. I know my diagnosis so far is more or less "mild" compared to that of others, and I feel very lucky for that, mild anxiety attacks aside. I don't see the oncologist until the 26th. This all happened so fast to this point - I found the lump three weeks ago today. I managed to get a same-day doctor's visit and mammogram/ultrasound at the hospital, then the biopsy last week and the lumpectomy this week. My doctor is recommending re-excision for a wider margin, because there was DCIS a few millimeters from the margins of the first sample. But they didn't find anything in any of the nodes and found no sign of IDC beyond the initial tumor. Because there were cancer cells in some blood vessels in the sample, I don't think a re-excision is necessary - we know there is a possibility, however faint, for more cancer cells somewhere in my body, so I am pushing for chemo as well as radiation, oncotype or no oncotype (they're doing one, apparently). Regardless of what they say, I don't want to assume that was all because there was so little, and then wake up with stage 3 pancreatic cancer in five years because we didn't go more aggressively now. I just want to hit it with everything and feel confident we handled it. I'm not going to lie and say I'm not scared to death, but I do feel that my prognosis is good, and I'm going to hang on to that.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    Melmes----love the way you have it all figured out.usually sistas look for all kinds of answers....you rock sista.you know what you want and you are gonna do it...good for you.I pray that your journey is easy and the end result is NED>God bless you.hugggggggggggsK

  • mimi1964
    mimi1964 Member Posts: 851
    edited April 2011

    Welcome Melmes - so glad to have you here.  Sounds like you have it going on!  Duckyb1 - you definitely rock! I hope to be as spunky and sassy as you are when I'm 76!  Way to take up and defend yourself and your health.  No one else will be an advocate for you but you.  Good luck with your rads.  I am a stage 1 and I went through 39 rads txts burnt to a crisp and the breast shriveled to a nub (LOL) but that is "fixed" now after reconstruction.  All is well.

     I just went to see my Med Onco today and received a clean bill of health.  Yeah!  We discussed why he spontaneously combusted last yr in November and increased my Tamoxifen without discussing it with me since I've been menopausal by hysterectomy for 9 yrs now (no ovaries either), and since he increased my meds I've gained 13 lbs.  Anyway he changed me and started me on Arimidex.  I told him I would try it since I was being non-compliant with taking the Tamoxifen.  I haven't taken it since last Sunday and have already lost 4 lbs with dieting.  yeah!!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011
    gotta make this short and bitter sweet.im on this puter all day.question.i have a very very slight case of lymphedema in the breast.very slight according to the BS.nothing to worry about.i read somewhere not to take the shingle shot if you have it.do you consider it lymphedema if its very very slight?can i take the shot?i had a case of shingles years ago that landed me in the hospital for 7 days and you can get it again.IM SCARED TO DO IT AND IM MORE SCARED NOT TO.HELP
  • Sandeeonherown
    Sandeeonherown Member Posts: 1,781
    edited April 2011

    melmes- welcome!! Great attitude..when  had my lumpectomy in August I told my surgeon "to take a HEALTHY portion...we can always go back and fix he other one later....I do not want to come back here!"...and while I am dealing with scar tissue / breast pain now....I know it was for the best.

    Letswin- great to hear you are going to do he aloe vera...makes a heckuva difference...I was good right up until rads #14...they kept commenting on how well my skin was doing bu I used aloe vera every day ...btu the wo weeks following rads, my skin became red and itchy and burnt so make sure you take the cortisone cream they offer you when you are done rads, ok? and keep the cream and aloe vera on it when you are finished rads...it will make those two weeks easier...and a sort t-shirt or tank top instead of a bra with elastic under the boobs

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    sorry sistas.i read the damn thing wrong.its not lymphadema its lymphoma....made myself nuts for nuthin..gotta get some sleep.i knocked myself out for nuthin....im losing it.huggggsK

  • sheila888
    sheila888 Member Posts: 9,611
    edited April 2011

    Good Night granny.

    Hugs♥

  • FireKracker
    FireKracker Member Posts: 5,858
    edited April 2011

    i was just gettin ready to delete the entire post.im beyond dead.

    good nite to you my sista/freind.hugggggggggggsK

  • sheila888
    sheila888 Member Posts: 9,611
    edited April 2011

    And NO you are not loosing it.

    Are you in Jo's pocket right now??????????

  • samsue
    samsue Member Posts: 599
    edited April 2011

    Hi Melmes, welcome to the sister's group. Gosh, I wish too that you didn't have to come her because of BC but life takes some bumpy rides and you end up here with a great bunch of ladies.

    Nite everyone....  This reminds me of the walton's .... Nite John Boy!  Nite Elizabeth...

  • valjean
    valjean Member Posts: 1,110
    edited April 2011
    Renee, I am elated at your news of a clean bill of health! 6 months till the next visit (I shouldn't say Visit- you can come Visit me- I should say 6 months till next Appt. Laughing I didn't post much of a reply on FB cus there is someone that is a "Friend" that I don't care to see my bc news or comments because they pass them on to someone that I don't care to know any of my business, so I really watch what I post unless I'm in one of the Locked groups. My next onc visit is in 6-months, too, & I'm very happy about that. I hope you have no or very mild SE's on the Arimidex. Hugs!
  • barbaraa
    barbaraa Member Posts: 3,548
    edited April 2011

    (((RENEE)))) Great news!!