CALLING ALL STAGE I SISTERS
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Leaving for mamo now. Hands are shaking but I feel calmer than yesterday. Talk to you later.
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Chabba - I am on your shoulder and will be there for you. Let us know how it goes. You are going to do just fine.
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Chabba we are with you
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almost 2 years out from rads & my armpit hair has never come back on either side!
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Eph - One less place to shave - that's what I'm talking about.
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I'm Home. Same tech as hurt me so last year. She had my records, asked if I had had RADS, told her yes. She said she would be careful and didn't hurt me on either side.
The bad boob was tender but not painful. After I had to wait, ONC had ordered an ultra sound "if indicated". A Dr. came in and gave me an all clear.Happy Dance
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Chabba - Happy dance time! Congrats on the all clear.
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WooHoo Chaba, doing the happy dance for you girl!!!!!!!!!!!!!!!!!
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Thanks Jo. Glad yours went well and know the news will be good.
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Chabba- how did it go????
Sherry- I am pretty hairless already but the radiation has completely zapped the hair under my left arm. No sign of it so far....
Jo - YAY!!
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Sandee - no pain, clean mammo
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I'm going to jump in here. Glad to hear the good news Chabba. I'm sure you will have a great weekend. Went to the rad today. Was really shocked at the equipment. Way scarry! But I got used to it. Will probably have my first treatment a week from this Monday.
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Chabba & Jo great news about the mamo's!
Beetlebum did they give you tatoo's? The hardest part of the rads for me was holding still...I closed my eyes the whole time and tried to relax.
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Chabba- YAY!!!YAY!!!!YAY!!!!!So relieved to hear that!!!! You and Jo are beacons for the rest of us!
Beetlebum- bring your ipod with you when you have to be an amazon woman...it takes about 3 songs by the time they have you all lined up and the machine goes over you a couple of times...it is not as loud as an mri but I found if I had my music on my ipod instead of over the speakers, I wasn't able to hear th eclickingof th emachine...it was the clicking sounds that did me in...I also concentrated on deeeeeeep breathing
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Beetlebum - The rad machine scared the hell out of me the first couple of times but I got used to it. I also took my iPod and listened to music. It really helped keep my mind off the treatment. You will do great and the time will pass quicker than you think.
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Sandee and Jo... you were lucky, they didn't let me have an iPod! Bummer!
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samsue - That is a real bummer. At first my rad techs would not let me either but I threw such a fit they finally gave in. I know, I am such a brat.
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Jo ~ I just know you will have clear mamm results on Monday. I KNOW you will - - cos I said so!
chabba ~ Very, very happy for your clear mamm & NO pain! YAY!
Sherry ~ My rads split my hair in two in my armpit area as yours. Bottom half: no hair yet & it's been since Jan/Feb 09, so 2 yrs/4 mos. Top half, still hair as always. I've been wondering how long it will last as well. Good Q.
I didn't ask to use an iPod during rads, they had music there; I just picked whatever CD I wanted to hear or I could have taken my own for them to play for me. I just closed my eyes & "went" elsewhere, most of the time to play with my G-Dau. ha-ha!
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thats me old granny dancin just fer you! chabba.. 0 -
sure ill do it fer you, also, JO...deep breathes.. we'll be " in your pocket with ya... 3jays
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Congrats Jo and Chabba!! Must be a great feeling :-)
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Valjean - i will take you up on that. If you say my results will be clear them I going with that.
3jaysmom - Too cute - love the dancing grandma.
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so glad so many tests went so well...as mine was a friggin NONEVENT
I saw my BS this week for what I thought would be my followup mammo ultrasound and she decided to wait until December saying that the lymph nodes following surgeries are often inflamed and she likes to let things settle. Huge letdown for me but then she had me work with a prosthetic boob filled with the kinds of lumps that can occur and we need to watch for...small hard pebble like things...she had me feel my alloderm/muscle spots so I could differentiate what is expected while healing from a potential problem. She was thrilled with progress thus far (after a heated discussion on my taking DIM/Grapeseed extract as opposed to AI) and said my next visit with her will be in a month or two for tattoo (following my nip surgery this Wednesday June 8) with artist (the artist does it in the BS office)- that was exciting looking at the skill level of this woman, who had BC herself....which puts a whole new spin on it.
I did have a few words with her about my course of treatment. When she started to tell me off and said, "I can only speak from what I know and the two women who chose DIM had recurrences..." I kind of flipped (as I do respect her). After my head calmed down from surge of fear (which is truly there in little bits anyway), I said hmmm, what is weird is despite the blood tests backing this up the best (?not sure if this is correct term) reassurance I have got is the feeling of hormonal activity (which I know is dangerous) thanks to my having to stop supplementation prior to surgery due to bleeding issues=I said funny that is what all the oncs seem to say about AIs and Tamox working judge by SEs...I have those as well on my supplements and blah blah...ANYWAY...she shook her head and said I feel it important to tell you about those two women...and I said I appreciate that but have you read the latest NCCN guidelines...and she shook her head again and said those experts change their minds all the time - all disagree to a point about all therapy ...so by this time I am hyperventilating and then I say I will stay on this course as long as blood work, SEs, etc maintain and my exams continue to be good...I sat back and then sat straight up and said "What stage/grade and type of surgery did those two women have? And before you tell me that all stages and grades can return so I am not living in lala land, I know that, but I need you to tell me about these two women specifically. I evaluate all FACTS to the best my pea brain allows and as always-am open to rethinking everything -have always been that way in my life...she kind of muttered and tried to change subject...I said nope, tell me, not cool to toss something like that out and then say the stats make no difference. since all we have is based on stats...and how are they NOW? well, it lands up both had different stages and grades and surgical options and are doing well now-with nobody really sure if the protocol or lack thereof caused it...so then I GOT MAD...I asked why on earth would she not have said that to begin with? I would have digested it and filed it away with all the other data I acquire....she said, well, i just thought you needed to know...FINE I KNOW, THANKS...I calmed down and we finished the appt (I did not BEGIN to address my thoughts on the announcement she gives following BMX surgery-HELLO YOU ARE NOW CANCER FREE....argh, i think it iis much better to say it went well, etc..I was even chided for being hesitant to get up and do a hokey pokey over the news...this whole thing is just such a mind(*)*....
ahhh, we can all see Annette is in fine form today:)
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Hi ladies just wanted to say good morning..................horrible day, can't stop crying.......its the LE wrapping, and told yesterday 3 more boosts..............33 instead of 36............sounds stupid, but I guess the "brave little soldier" was an act all along..........in reality I'm a friggin coward, feeling sorry for myself when I get bad news.................Oh well Happy Saturday
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sorry ladies I can't get my head out of my ass........I am getting 36 instead of 33 which was the first plan......shit I might just go back to bed and stay there till this pity party ends.
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On our way home after my mammo yesterday we stopped at our local grocery store for a few things. Every employee was wearing a fight cancer shirt. A few of the women had pink ribbon shirts but most wore cancer society shirts. My husband was so excited about my good news that he blurted it out to one of them and instantly I was getting hugs from about half a dozen if them. They were getting ready for the 24 hour cancer relay for life which started at 5 last night.
My DH gave them a significant donation which got them as almost excited as I was about my mammo. IGA sponsors a team every year. The team captain is at least a ten year survivor. I can't remember just when he was Dx'd but the whole town supported him in his fight. He invited me to join the team next year and walk the survivors lap with him. I think I will probably do it.
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You are so lucky, jo. They always call me back for more views. it is really stressful.
Sherry, I am nearly 7 years post rads and my armpit still has half that never grows hair. If I were to opt for laser removal I'd doboth sides so I didn't have to think about it again.
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{{{CHABBA}}} Oh Annette, so sorry you didn't get the mammo. It bites when when psych ourselves up to get something over with then they mess it up.
I am with pretty much everyone. Top half/hair, bottom half/bald.
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Ducky, the thing about being a brave little soldier is that even brave little soldiers can have overload. Been there, done that. I always put on a chick flick that I know will make me cry, and then when it is over, I usually feel drained, but better. (((((Ducky)))))
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Thanks Meece..............I live alone, husband dies 19 years ago..............maybe having someone to help living with you make a difference............but then I'm not sure how he would have handled this either,,,,,,,,he handled his cancer amazingly, but not sure had it been me what he would have done..............he never handled stress very well........it was always me being the glue who held eveything together..............My kids are fantastic, but I won't put all the pressure to be my "servant" on them.............I would rather do for them, and now I have some limits and it is driving me nuts......................Made cookies yesterday for my grandkids, wrappings on the arm and all............guess th at was something to celebrate..............maybe I can overcome this new hurdle............thanks Meece...............hugs
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Happy Dance
