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CALLING ALL STAGE I SISTERS

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Comments

  • Sherryc
    Sherryc Member Posts: 4,503
    edited June 2011

    Melmes glad you are hanging in there, I did not do chemo but when I started tamox I broke out with acne.  It did go away.

  • Viranyani
    Viranyani Member Posts: 15
    edited June 2011

    Granny and Ducky, I'd really hate to crimp anyone's style, so fire away...but watch out for the bars of soap lying around Laughing

    Thanks everyone, your posts make me laugh.

    Oooooyyy, Melmes, adding insult to injury...zits on top of chemo...well, may they go away soon and may you go from strength to strength! There's something you can get in healthfood stores that might help if the acne continues...Desert Essence Tea Tree facial wipes...they've helped me in the past with that--they're cleansing, astringent, and naturally antiseptic....

  • mimi1964
    mimi1964 Member Posts: 851
    edited June 2011

    Isn't it strange how everyong that takes Tamoxifen has different side effects (or of course none).  You had some acne and I got the weight gain, of course I no longer take it.  I now take Arimidex.  I guess the hormonal/steroidal factors that make up the medications just react differently with everyones body chemistry, even the chemo.

    Melmes I hope you con't to "hang in there" and things get better for you.  I didn't go through chemo with breast cancer but I did when I had Hodgkins Disease years ago, that was one of the hardest times in my life but it was doable.  It is tough but the the meds are much better they give you now.  But that still doesn't make the side effects less real or that much easier to deal with. 

    Take Care Sisters

  • tinat
    tinat Member Posts: 2,235
    edited June 2011

    I'm having a horrible acne flare-up on Arimidex.....just when I thought those days were FINALLY over!  Yell

  • mimi1964
    mimi1964 Member Posts: 851
    edited June 2011
    Oh Tina I'm sorry that really stinks!Yell  How long have you been taking Arimidex?  I have been on it since April and no problems so far.  I had much more side effects on Tamoxifen... it gave me what I called "crunchy knees" from decreased estrogen and they were painful also had really bad shoulder pain while on the Tamox plus the weight I gained back I had lost.  It made me stay hungry all the time. LOL!  So far the Arimidex doesn't do me that way.  I am staying very hopeful!!
  • jo1955
    jo1955 Member Posts: 7,545
    edited June 2011

    Sorry to hear some are having acne flare ups. I tried Armidex for 3 weeks and could not deal with the nausea - tried to take Promethazine to counteract the nausea but then did not feel comforatable driving.  No side effects with Tamox - it has reduced my hot flashes to warm waves most of the day.  I do get a few bad hot flashes for a couple of hours in the evenings and am able to sleep through the night.

  • tinat
    tinat Member Posts: 2,235
    edited June 2011
    mimi1964:  I also started Arimidex in April so I've been on for about 2-1/2 months.  Had some pretty bad GI distress and headaches in the beginning, but that has definitely improved.  Also feeling a bit teary sometimes so don't know if I can blame that on the Arimidex or just pent-up emotions trying to get out now that reconstruction is underway and life is sort of getting back to normal.  I don't know.  But, hoping this breakout thing will ease up.  Spent my whole adult life dealing with it so feels especially depressing for it to be rearing it's ugly head yet again.  Aargh! Tongue out 
  • Beetlebum
    Beetlebum Member Posts: 26
    edited June 2011

    I started Arimidex the first of June.  It didn't take me long to figure out I didn't want to take it.  I was also having Radiation so I quit the Arimidex until after Radiation.  I may try it again and see what happens. I was having the "foggy" brain.  I don't know about ya'll but if I have fun I want to remember it.  I'm 65 next week and all I want to do is live me life.  In my case the drug only gave me a 2% benefit.  We'll see.  I hope everyone has a great weekend and July 4th.  I'm going to have 3 days off from the radiation business and I'm so looking forward to it. 

  • Just_V
    Just_V Member Posts: 436
    edited June 2011

    My SIL sent me this info:


    If you know of any woman currently undergoing chemotherapy, please pass the word to her that there is a cleaning service that provides FREE housecleaning - once per month for 4 months while she is in treatment.  All she has to do is sign up and hav her dr. fax a note confirming the treatment.  Cleaning for a Reason will have a participating maid service in her zip code area arrange for the service.  This organization serves the entire USA and currently has 547 partners to help these women.  It's our job to pass the word and let them know that there are people out there that care.  Be a blessing to someone and pass this information along.
     
    http://www.cleaningforareason.org
  • FireKracker
    FireKracker Member Posts: 5,858
    edited July 2011
    Thanks JO JO for the dove soap.you know thats all i use....even if you put it in my mouth.....I dont see Ducky....did we scare her away????????Ill be good...I promise...its gonna be hard but im really goin to try.I was on another thread a while back and someone complained about my cursing.well the group jumped all over her saying that at the end of my rant i always say GOD bless everyone.....so ill say it again God bless all my sistas.Stay safe this weekend.we are having a wild solar eclipse early tomorrow morning...hugggggggggggggs K
  • FireKracker
    FireKracker Member Posts: 5,858
    edited July 2011
    oh i forgot..Amyjo---the kids are soooo cute.and you my sista look GREAT!!!!!!!
  • 4faith
    4faith Member Posts: 3
    edited July 2011

    I'm in tears of joy as you all welcome me and provide me with great words of wisdom.My onco gave me two weeks (one week after July4th) to provide an answer for chemo or not. The onco said that for the chemo treatment to be effective, the treatment must be done as soon as my surgery. Meanwhile, I have an appointment with my hairstylist (for over 20 yrs), so I'll have to break the news to her.I'm looking at getting a short blunt cut which will be about 8 inches shorter than now. Yes, I'm leaning more to doing a chemo b/c of my mother and aunt. I have my 9 year old son to watch grow. :)

    Both Diagnosis 6/2/2011:  Grade 2, Invasive duct Carcinoma, 1.1cm, Stage 1, nodes all negative.  

  • Barb1126
    Barb1126 Member Posts: 1
    edited July 2011

    Hi Everyone,

     My name is Barb and I too am a Stage 1, Her2.  Had my chemo, 34 radiations and tomorrow I start Arimidex for the next five years.  Did really good on the chemo and rad, now hoping I do as well on the Arimidex.  A little scared right now.  I just signed up tonight so it will do me good to be able to go into this forum to see what all you ladies have to say.  My sister and I are in treatment at this time.  She has fallopian tube cancer.  We're fighting this together.  Stay strong, stay positive.  Smile.

  • sheila888
    sheila888 Member Posts: 9,611
    edited July 2011

    Hi Barb......Glad you are done with your treatment.

    Another HER+ sister. It's only handful of us here.

    Are you doing Herceptin/

    We are all here for you.

    here we laugh together, we cry together. All the Sisters are very caring.

  • sheila888
    sheila888 Member Posts: 9,611
    edited July 2011

    Good night All

  • Meece
    Meece Member Posts: 10,618
    edited July 2011

    Oh, I hate to see there are so many too welcome!  But welcome you, I will.

    To 4Faith, Viranyani and Barb1126, I extend a warm welcome.  On this rocky road which you have set your course, may you gain comfort and advice from all these wonderful and generous women, 

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2011
    Barb1126 - Welcome to the sisterhood but sad we had to meet this way.  I was not able to take Arimidex and now on Tamoxifen. Hoping you have no side effects.  This is a great place to be.  These gals are so caring and full of good information.  We do tend to have some fun along the way.  Come as often as you like to ask questions, vent or have a laugh or two
  • Sherryc
    Sherryc Member Posts: 4,503
    edited July 2011

    Welcome 4faith and Barb1126

    4faith did the Dr's do a oncotype dx test? That has helped alot of us make a decision about whether to do chemo or not.  It is a tough call to make sometimes.

    Barb1126 glad your treatments have gone well and hope you tolerate the Arimidex as well.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited July 2011
    Just wanna say a big HI to the new sistas......welcome.....
  • Viranyani
    Viranyani Member Posts: 15
    edited July 2011

    Thanks for the warm welcomes, everyone!

    In a lovely post BMX interlude...won't see my oncologist til the 8th; have already ordered the oncotype dx, just waiting for results. I'm not in any hurry to jump ahead of myself and do anything but heal, but it's really good to read how different people respond to different meds. 

    4faith, I agree w/ sherryc and others who've suggested the test..10% of us T1 N0 M0 are at higher risk, and so benefit from chemo...and that's really the only way of telling.

    Hey, Granny, you're good, no matter what! Thanks for the blessing of your laughter and big heart. And Ducky...where arrrreeeee you? Thank you both for being you!

  • sheila888
    sheila888 Member Posts: 9,611
    edited July 2011
  • mimi1964
    mimi1964 Member Posts: 851
    edited July 2011

    Thank you Sheila for the 4th of July wishes!  Didn't your daughter come this week from Hawaii?  How was her visit?

    Barb1126 welcome to the group Laughing all of these wonderful ladies here are great.  Glad to know that you are finished with your treatments and starting on the Arimidex.  We can travel that road together.  I just started it a few months ago.  So far so good!  I already did a yr on Tamox so I only have to take 4 yrs of the Arimidex.  I finished rads Feb. was a yr ago.  Sorry to hear about your sister as well.  Praying all goes well with her also.  The big C is no easy road to travel but with the loving support of friends and family it definitely eases the load... right my friends and sisters Wink.

    Granny we won't make you wash your mouth out with soap... you and ducky always keep me rolling on the floor laughing, and they do say laughter is the best medicine. 

    Love to you all!

    Renee

  • 4faith
    4faith Member Posts: 3
    edited July 2011

    Viranyani, got my oncotype results 20. So I'm in between but on low level. My oncologist says that it's a personal decision, but recommends that I do chemo since they found two cancers. I'm also have an appt. for genetic testing. The testing is for future decision down the road not to help me make a decision for my chemo. I really appreciate everyone comments and feedback. 

  • sheila888
    sheila888 Member Posts: 9,611
    edited July 2011

    Renee....She arrived yesterday afternoon.

    NEW Avatar♥♥♥♥Smile

    So who is replacing J LO?

  • mimi1964
    mimi1964 Member Posts: 851
    edited July 2011

    Yes Sheila, I decided to put up the Carrie and Stephen pic from the AMC awards this yr. when they performed together.  I've had it saved for a while.  It seemed appropriate to use it since the AI tour is kicking off on July 6th and the tryouts have begun for season 11.  Let the fun begin.  Don't know who if anyone will replace JLo, last I heard she hadn't made her mind up.

  • tinat
    tinat Member Posts: 2,235
    edited July 2011

    4faith:  I also had 2 cancers (ILC and DCIS) and an OncotypeDX of 18.  My oncologist recommended AGAINST chemo.  But, my cancers were small and found very early.  In fact the DCIS was likely mostly removed with the core biopsy as at surgery pathology it came up as ADH in that area.

    Just a suggestion - you're likely to get better and more specific answers to your posts if you take a minute to fill out your profile (the info that pops up at the bottom of the posts). This is information regarding your type of cancer, size, grade, etc.

    All the best!

  • annettek
    annettek Member Posts: 1,160
    edited July 2011

    HI everyone...missed you all while i was in DC....more than you know:)

    Welcome 4Faith, Viranyani and Barb1126- as all have said sorry you had to join us but glad you found us...these kind brave bright women have helped so much to light the way. It makes it all bearable.

    we do get kind of weird sometimes and are apt to go off on tangents that make no sense, which is a good thing in my book:)

  • deborye
    deborye Member Posts: 2,441
    edited July 2011
  • sheila888
    sheila888 Member Posts: 9,611
    edited July 2011

    Hi Annette.♥

  • jo1955
    jo1955 Member Posts: 7,545
    edited July 2011

    Hi Annette - Missed You!