CALLING ALL STAGE I SISTERS
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Amy.....sorry to have to welcome you here but a great place with great women.
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Feb 17 - 1 year ago I heard the words "you have cancer" First year down and what a year it has been. I'm happy I'm alive but feel like I'm falling apart. Next Tues I go to the Spine and Pain Clinic and hopefully will find some relief. I'm tired 23/7 (the first hour of the morning I feel pretty good), still fighting a healing issue regarding my radiated breast going to the wound clinic 3x week (after 2 months its starting to make some progress), AL are making my skin look like crepe paper and feel like I'm aging 2 days for every 1.
It doesn't sound like I'm very happy but I am. Cancer has turned my world up side down and I will never be able to think of the future in the same way. Every ache and pain ends with the question "is it cancer?". Before this I never thought I would die of cancer or deal with it, always thought I would go in my sleep or sking down the side of a mountain.
Believe it or not I've come a long ways this year and hope I make as much progress next year.
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Seal......just commented on another thread...Feb 15th was 2 years for me....none of my 6 kids mentioned it.....my dear ladies agreed that was a good thing......guess what Seal.....the day passed me by too...why.....was out shopping and spending money, having fun with my daughter.....do I feel like crap more then I feel good....yes....rads did it, and 2 years on letrozole.....but I do appreciate the good days....I know it will never be the way it was.....like the song says....Memories......of the way we were.......I live for the good days.......hugs.
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Seabeal and duckyb1......I feel like both if you together just read my life story now......
I'm a bit of both if you....lol....thank you for putting it into words for me.0 -
So your back Ducky...Welcome home.....I too had 3 yrs.out this month....dont remember the day and i could give a crap less....I really try not to give this crap that much power...As most of u know i do have bigger fish to fry right now....
Amy welcome.Please listen to these sistas....been there done that...all of us.
hugggs everyone Grannydukes
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Granny.....so glad to hear from you....don't forget the BIG pockets tomorrow...❤❤❤
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I think everybody needs a hug tonight/tomorrow....In your pocket, Granny...I'm bringing only health snacks. (Can somebody else bring s'mores?)
Putting cancer years behind us is a milestone. Congrats to those who are counting...it's a good thing, but not as much fun as birthdays
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Joan....thanks for the hug....❤
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Welcome to the newcomers. I so agree birthdays are better and no longer complain about them...lol..
Right there with you Granny..And thanks for the hug Joan. Some days we really need them.0 -
Anyone out there with Stage 1b grade 1 IDC who opted for chemo? 1st MO saying may not be necessary due to highly positive hormone receptor status, but I am 38 y/o, and feeling unsettled about that. Mets in lymph node just at the border (2mm) of being considered micrometasteses vs a fully positive node. The fact that I had any cancer in node and am younger than 40 lead me to expect chemo. It seems crazy to "want" chemo when it may not be highly beneficial, but I can't shake that feeling. Had 2nd opinion and awaiting oncotype and BRCA results....hope to have more clarity then but worried I may have same dilemma. :-P
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Mnmom38, welcome here...sorry you are having to think about all this. I can't help with your decision, but do get multiple opinions if needed after the testing.
I saw your signature...did you have recurrence or was the 2nd surgery decided later? Are you doing radiation? I hope your tests come back in your favor and that you have clarity about the chemo.
(it's quiet on this thread today)
Hugs,Joan
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Mnmom38, I understand how you feel and don't think you are crazy for wanting the chemo. I am Stage 2b, grade 2 with IDC >5cm, onco score of 18 (this was taken on only one tumor when I had 4 tumors which were not related to one another). I was told by my surgeon that if I was his relative he would strongly advise chemo but Oncologist really blew me off. I'm just too freaking tired to fight anymore.
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Thanks so much for the support and encouragement. Joan811, second lumpectomy was a surgical biopsy of cysts found on opposite breast. That was clear. Just overly cautious as my first lump was presumed to be a benign fibroadenoma until it came back positive for IDC. It is so refreshing to see the posts from Stage 1 sisters on here. I have had moments of feeling like "just a little breast cancer patient"...like I don't have a legitimate reason to take this so seriously or be so consumed by something that is in an early stage and low grade. Sounds crazy but sometimes just need validation that I am not just dealing with a "runny nose" and have a legit reason to feel how I feel. You all are great!
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Welcome, AmyQ and Mnmom38. Hang in there, you guys can get through this! Lots of ladies who can share their experiences with you!
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hi i am newly dia and started tx. on an emotinal rollercoaster waiting for the oncotype dx score.
all of this has been backdoor. started with a bad mamo had to redo. no problem had been on the 6mo plan for some number of years recently graduated back to the year plan. just figured would be back on 6mo plan... no
ultra ssound showed 2 spots right brest that could be cancer needed needle biopsey. results came in adh and benign set up for a surg consult for an insisional biopsey. when we met she flet something in my armpit that she was ent to be looked at so a mri was sche pre surg. surg scheduled for tue call onmonday from dr postpone surg they found something in the mri in the left wanted to nedle biopsey that first. ok needle biopsey done. had a meetin set with an oncologist to discuss the adh. well that day the results came back from second left biop. and he told me i had infultrating ductal carsonima in the left. he began talking about a lumpectomy and radiation on left and to continue with the insisional bio on right. I stopped him and said if it is cancer in left and pre cancer in right should we be looking at removing them both? He said if I was willing it was a good decission.
so I re met with the surg scheduled a double masectomy with reconstruction with TE.
Had the surg 1-18 went well work with a large hemotoma on the right. was in hospital 5 days had a very low blood count and need a blood transfusion 2 units the debated on a third. discharged with 2 drains left was removed at 2 1/2 weeks right one is still in an continues to produce between 50-70 in a 24 hr period , PS wants it below 30 to remove it. the site is so uncomtortable and a time bleads. the hemotoma has gone down some but is still large. PS says they will not need to expand the right side as the hemotoma did that already. I go weekly for the left to be expanded and hope that they will remove the right tube.
has anyone had tube remove higher than 30? nervous waiting on the oncotype dx to see if I need chemo.
Oh ya good thing I did the double path cam back cancer n both and the cancer in the right was not in the area that they were biop. the right one was small the one on the left was 1.7 stll not that large but they said to close to 2 which would be chemo. 5 nodes on the left all ok 1 node on right ok
so now I wait ride the rollercoaster, take pain meds, pray and read these boards. Thank You for being Here!
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sorry forgot to add I am 49, Stage I, Grade II/III
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Welcome SheaJ. You don't want to remove the drain too early. One of mine stopped draining and was pulled. Evidently it was just plugged because it immediately swelled with lots of fluid that had to be needle drained twice. I've read here that being active increases drain amounts, so slowing down might help.
All the waiting and wondering is the hardest part. I hope you get your results soon and the path forward is clear. Chemo is no fun but works really well on Grade 3. (((((HUGS)))))
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Welcome Shea.....I can't answer the drain question because I didn't have one...
Please keep updating us about your treatment.....
Hugs
♥
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granny.....Jumping in your pocket...i need a big space since i'm growing and growing......
HUGS my friend...♥
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Mnmom38....So sorry I missed welcoming you to our group
Yes you have validation from all of us......sometimes STAGE I falls into the crack.......some people think we shouldn't be worrying.......
Come and post and update us please
Hugs
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Welcome, AmyQ and Mnmom38 and Shea. So sorry you have to be here but this is a fabulous group of ladies.
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Welcome newbies.......your gonna love it here........you really want to vent at all the stupid shit we all deal with......go to the thread STFU......talk about pulling you out of the bottom of the pit....(where we all have been).......you can vent. Bitch, or just tell your story......and everyone listens, and no one tells you to STFU.......ya,ll come back now, ya hear...hugs
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Sheila, yes, thank you for your statement about falling through the cracks. At times, it really feels that way.
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(((((((((((((((((((((((Sheila)))))))))))))))))))
been thinkin about you
How ya doin?
Im goin for surgery march 12th.lots of crap i have to do before the surgery....just cannot wait till its onver.
I told the nurse I have a wedding on April 25th.I betta be in good shape by then.She said for sure.
Who is counting the days till the reunion???????
Ducky----watch out---i just might start to bug you again.Its comin closer and closer.ill be back K
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granny.....I'm fine...what's the sense of complaining....
Reunion is on April 26 Friday......
hugs.....
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Sheila---i keep on tellen u that my brains are mush.
lookin forward to this for a yr.now and get the damn date wrong.
as you can see how well im doin.ha.just a little shell shocked.
soooo lookin forward to it.
hugggs everyone K
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granny....I circled the date on my calender
The last Friday Month of APRIL
Do you have a wedding on the 25th...day before
♥
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No i do not.I told that to the dr cause i wanted him to know how important it was for me to go.I thought if i said reunion he would not know how much this meant to me..sooo im a liar too.This means more then the 3 weddings I really do have this yr.but not till the summer.
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Gran...I have a grandson getting married inChicago on April 6th.....I have to friggin fly...I never flew, and I am scared shitless....my ticket is bought, and its 6 weeks away, and I am having anxiety attacks already.....I wake up in the middle of the night to pee, and I think about it and can't o back to sleep. Laid there last night from 1 to 3:15, finally fell asleep, and was up at 7 drinking coffee. I kid you not, I won't have to worry about cancer killing me, I'm gonna die of a friggin heart attack first.
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Ducky, stop worrying....you've got wings to fly.
Shea, hope you are feeling better. It sounds like you are on your way to recovery.
It is true that those of us on Stage 1 have been through all of the emotions that go with a BC diagnois.
Granny, so glad to hear about your surgery date. You should be good to go in GCT!
nite all,Joan
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