CALLING ALL STAGE I SISTERS

16465676970512

Comments

  • Meece
    Meece Member Posts: 10,618
    edited February 2010

    Welcome to you, too, Tic. 

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited February 2010

    hey tic, if you haven't already, go to the Forum for Femara under "Hormonal therapy-before, during & after". I post there as do others and there is quite a bit of info about Femara on it...some of it scary, some not.  My best advise-take it just before bedtime.  Of course this forum is perfectly lovely also-some of my breast friends come here!

    Joni 

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Hi tic..Another lumpectomy and femara sister here.

    No complaints about Femara

    Sheila

  • sue-61
    sue-61 Member Posts: 262
    edited February 2010

    I wanted to pop in and say hello to everyone. I want to go to DisneyLand, too. Great pic, Sheila. (you are so clever) Sue

  • Meece
    Meece Member Posts: 10,618
    edited February 2010

    Come on out, Sue, we'll go to Disneyland and paint the land pink!

  • Lynbob
    Lynbob Member Posts: 27
    edited February 2010

    Hi everyone :D  I had a routine mammo the Thursday before Thanksgiving and by December 4, 2009 had my diagnosis. It has been a whirlwind ride. I had bilateral mastectomy, SNB and immediate TE placement January 13, 2010. I was so relieved to be Stage 1a and have a clear nodes. Hugs to all :D

  • sue-61
    sue-61 Member Posts: 262
    edited February 2010

    Meece, I am there! And you are so very very clever with all your cutting and pasting.......Sue

  • etk02038
    etk02038 Member Posts: 33
    edited February 2010

    I so want to go to Disney or anywhere warm and where I can go into fantasy land.

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010

    welcome Lynbob!  Yes, very exciting to be here, right?  ha ha!  But I am glad to have met you and all these wonderful ladies that I would never have met otherwise.

    Let's all grow old together!  I'll be 87 when I go...50 years from now!

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Welcome Lynbob.

    Cake the countdown is Wednesday or Thursday?

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010

    Thursday, yikes!  I am getting nervous...but I know it's the right thing to do.  eeekk!

  • mimi1964
    mimi1964 Member Posts: 851
    edited February 2010

    Cake you will be fine.  We will all be here praying for you and waiting to hear from you post surgery as soon as you are able to get us word.  Untill you go to the hospital we are holding your cyber hand. 

    Welcome Lynbob!

    I'm with you etk I want to go somewhere warm... Disney World is good!  I'm closer to Florida and I love the beach.  :=)   It's been really cold here this winter.  They are giving a chance of snow again here for Tuesday morning.

    Renee

  • Nicole112
    Nicole112 Member Posts: 130
    edited March 2010

    Happy Sunday ladies!!!! What a beautiful day in California!

    Cake-  I will be thinking of you, you have inspired me to go see my PS and see what they can do for me... I have an appt. nex Monday. I have gone back and forth on this so much... but it is time I see what options are out there as I have so many issues with seromas!

    Sheila- Can you believe the tsunami warnings!!! Right where we are going in Hawaii! Good to see it was precautionary!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Hi Nicole..I was thinking about you yesterday. You would have been evacuated.

    DD woke up at 6AM with sirens. They didnt know what was going on she said she tought missiles were coming. How are you?

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 25
    edited March 2010

    I just started to take tamoxifen about a week ago and have not yet started my rads.  Will commence rads on March 8th. (Surgery was January 8th).

    The only side effect I've noticed so far is my appetite has actually decreased and I've got a small amount of white discharge which I understand is common.

    I have night sweats but had them anyway (I'm 58) so nothing new there.  Other than that....I can't tell that anything much is different in my life...other than the cancer of course.  LOL.  Good luck to you.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Hi...I just got back from my 4 months follow up.

    Now I have to wait until he gets the TM blood work back. usually takes about 2 days.

    Waiting starts.............I'm calmer now, I think I exhausted myself these last few days.

    I cant help itEmbarassed

    Sheila

    PS  Linda I'm also 58.

  • Meece
    Meece Member Posts: 10,618
    edited March 2010

    It will be All Good, Seyla. Sending you good thoughts as you wait.

  • elimar
    elimar Member Posts: 5,890
    edited March 2010

    Hi seyla888, waiting along with you to hear of your good results in a few days.  Is the TM test for those that are HER2+?  They only seem to give me the CBC and blood chemistry testing.  

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited March 2010

    Mimi and Nicole...thanks so much for the prayers and thoughts!  There are so many people on these boards that have gone through this, but now that it's my time, I think, yikes...I hope I get through this!  Nicole, I'm glad I inspired you ;).  No one outside these boards gets the bc thing.  I'm glad they dont...I wish none of us "got" it either!  But it is so good to have you guys in my life...I dont care if it's cyber.  It's so great to have others that know what I am going through.  I would have felt so incredibly lonely without you guys!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Hi Elimar...No the test that half of the oncologists don't do it has nothing to do with HER+.

    Its actually 2 different blood work I didn't know until today. My DR said its been nice and steady range. Also I'm more nervous this time because I want to go to Hawaii in May and visit my DD and DBF. But I wouldn't dare buying the ticket until I get the green light.

    Thanks for thinking of me Meece and Elimar

    I cant talk about this follow ups with outside world, I can but nobody understands me the way we do here. Sometimes I get yelled that I shouldn't even thinking about it because everything is behind me now. i feel like slapping instead I change the subject.

    Hey Cake 2 days and counting. We will do the same thing when its time to go to your vacation. That will be more fun.

    Hugs

  • cw89134
    cw89134 Member Posts: 62
    edited March 2010

    Seyla888,

    I recently changed oncologists because onc #1 said that he didn't do tumor marker tests unless the patient presented with symptoms. Well, I thought to myself, isn't that a bit too late?

    So, I did some research and found onc #2 who does do these tests. I just saw #2 for the first time last week and had blood drawn before I left his office. Two tumor marker tests were done (1)  CA 27-29 and (2) CEA. I called his office Friday and got my results over the phone (and also faxed to me). Both of my numbers were well within the normal rangeSmile. Onc #2 also ordered a PET scan which will be taken one week before I see him again in three months. I had had a PET scan a year ago when I was diagnosed. However, #2 said that since I had an "abnormality" on the PET one year ago (namely the malignancy in my left breast), a follow-up scan should be done to make sure that it is gone. Now that's what I liked hearing!

    I know that a lot of oncs don't do these tests routinely but I feel more comfortable having them done.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Hi cw/Carol.....i feel good about the idea of the tests but waiting for the results is another story.

    Cake....one more day and anticipation will be over.

    Think Florida. Think Florida...........

    Good Luck again, on Thursday.

    Hugs and Hugs and more Hugs

    Sheila

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Hey Nicole...Where did you disappear too?

    How is everybody, its been too quiet lately.

    SheilaWink

  • valjean
    valjean Member Posts: 1,110
    edited March 2010

    Hi everyone!



    Just back from my mini-vaca to see my Grandkids. I had the BEST time!! Those little kids are the sunshine of my life!! I was up & down the stairs (guestroom in basement) carrying kids, playing games (not ones at a table either!), dancing to any & all 'kiddie' shows on t.v.; good grief, I got in so many workouts! :) I probably lost a couple of #'s except for the fact I had birthday cake that had "Diego" on it (didn't have Alicia, or she would have chosen that decoration).



    It was so frigging cold; of course, what do you expect when you are so close to Lake Superior, you can see the waves crashing on the 'ice mounds' making more ice! It was so darn windy! Try running with a 32# child in the blowing, icy wind just to get to Target!! But, we laughed the whole way!!



    cake ~ thinking of you.



    Welcome to dualgate, tic, Lynbob & anyone else I may have missed as I read back a few days of posts.



    Missed you guys,

    {{hugs}}

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited March 2010

    Valjean...now that's embracing life!  Sounds like you had so much fun!  Thanks for thinking of me...one more day!

    It's snowing outside!  AGAIN...not used to this weather, LOL!

    Seyla--thanks for the prayers!  I really need it.  Had dreams last night that the docs gave me all the "sleepy" medicine they could and they couldnt put me to sleep.  Ugh!

  • LauraM
    LauraM Member Posts: 41
    edited March 2010

    Cake - One more day!  Prayers and lots of hugs to you!

  • westiemom
    westiemom Member Posts: 86
    edited March 2010

    Hi Sheila. I'm Cindi. I have Stage 1, Grade 3, Multifocal Invasive Ductal Carcinoma, waiting on my BracAnalysis. I was told yesterday that the best treatment is a mastectomy, needless to say I'm devastated. The main lump is ductal carcinoma in situ, but when they took tissue from around the lump they found another spot that was invasive ductal carcinoma, grade 3. The surgeon told me this wouldn't have shown up on the mammogram, she is concerned that the probablity of it recurring is high or even other areas of my breast could be affected. Radiation is not an option at this point. She stated at the time of the mastecomy, lymph nodes will be tested. I meet with the plastic surgeon today, oncologist next week. I'm confused, angry and sad. Based on everyone's experience, does this sound like the best treatment?

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited March 2010

    Hey, gals! I'm off to the city! Please pray for me while I'm gone. I really need them. Will check back soon!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Welcome back Valerie, it sounds like you had great time with family.

    Welcome to our little corner westiemom....I cant help you with your question, since I had a lumpectomy, someone with more knowledge will come along. WE are here to support you anyway we can.

    Thinking about you cake......

    Hugs to everyone.

    Sheila

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2010

    Today I got my blood work results back and everything is Okay. yippieeeeee

    Hawaii here I come.Cool

    Nicole...I booked my Oahu vacation right after I talked to my DR.

    These are the dates.

    I leave NY May 6.

    I return back May 26.

    Its non stop 10.5 hours. I need to medicate myself.   Lol

    Hopefully we will meet there. Looking forward to have a cup of coffee and a nice slice of high calorie dessert.