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CALLING ALL STAGE I SISTERS

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Comments

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Good Night Sisters!

  • etk02038
    etk02038 Member Posts: 33
    edited February 2010

    Hi All,

    I am new to this thread. Currently I am waiting for my oncotype test to come back. The oncologist at Dana Farber feels it should be very low. This has been too much of a rollercoaster ride and months of waiting...so I am just putting it out of my mind as best I can. I am ready for chemo or not. Not sure what number would be the cut off. The thing that worries me the most is my very dense tissue. This doesn't factor into chemo I believe but it is a constant worry.I loved my breast surgeon but I am not feeling all warm and fuzzy about the oncologist and radiologist . They both said yes "very busy breasts" but they don't recommend scans or anything further. Maybe that is good, not sure at this point.

    Ellen

  • Jaimieh
    Jaimieh Member Posts: 925
    edited February 2010

    Ellen,

    Sorry you are waiting right now.  I hope your onc. score comes back REALLY, REALLY low so there is not question about if you need chemo. or not.  Don't stress over not getting the warm and fuzzy over your oncologist.  It seems like the first appt. is all about facts and where you are at that point.  BTW, you are lucky that your BS is warm and fuzzy we called mine the breast Nazi but she did her job VERY well. 

  • deborye
    deborye Member Posts: 2,441
    edited February 2010

    This is from all of us to all of us.  The wonderful lyrics to the theme song, The Golden Girls.

    Thank you for being a friend
    Traveled down the road and back again
    Your heart is true your a pal and a confidant.

    And if you through a party
    Invited everyone you ever knew
    You would see the biggest gift would be from me
    And the card attached would say thank you for being a friend.

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    lalalalalalalalalalala lalalalala

    Thank You.♥

  • deborye
    deborye Member Posts: 2,441
    edited February 2010
  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Is that your foot Deb?

  • deborye
    deborye Member Posts: 2,441
    edited February 2010

    Nope.

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Hi ..I hope everything is okay with everybody.

    Susan/Denverdiva.....You haven't being here for 2 weeks.

    I'm worried since you are one of the regular poster.

    Good Night Sisters!

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010

    deborye...thank you for posting the Golden Girls!  I choked up reading and remembering those lyrics, and I sent them to three of my bestest friends to remind them how thankful I am that they are in my life and have supported me, especially through this BLASTED cancer and losing my dad in law this year (and will probably lose my mom in law waaaaa).

    I had my pre-op appointment and admission testing today in the city...one week and two days till my DIEP surgery!  Excited and scared!

     And only 8 months to Disney,YEAH!

  • deborye
    deborye Member Posts: 2,441
    edited February 2010
  • deborye
    deborye Member Posts: 2,441
    edited February 2010

    Have fun in Disney♥

  • mimi1964
    mimi1964 Member Posts: 851
    edited February 2010

    Hey everyone I went to my docs today and got the go ahead to go to the weight loss docs... so Yeah!! My medical oncologist is starting me on Tamoxifen 10mg daily (which was his idea, not mine, even though I am post menopausal).  My follicle stimulating hormone test shows greater than 60 so he told me that I didn't need more than 10mg of Tamoxifen.  He said he was concerned about bone loss because of my age.  I also expressed some concerns to him I had about the possible side effects of Arimidex or Femara so that was his decision.  He told me if I had any bad side effects I couldn't handle to call and let him know and we would do something different.  He did tell me the one thing that makes most women stop taking it is weight gain.  LOL!  I pray not.  I've already done that. I'm praying with the weight loss doctor it may help reverse it and cause loss. 

    Hope everyone else is doing good.  Cake good luck!

    Renee

  • Nicole112
    Nicole112 Member Posts: 130
    edited February 2010

    Mimi, Cake and DEb- So nice to hear from you ladies... Cake, I will be thinking of you before your next procedure... so as far as my next steps, I am on the fence...

    Some of you who may have been following my threads have known I have been a little left of par when it comes to my recovery... I have had a number of infections which have made me crazy, and each time I get a mammo, a month later I get the infection symptoms... puffiness in the breast.. I went to dr yesterday because it was inflamed again... they say my scar tissue is thick, it is hard and I have lymphedema in my chest through my back... but it is not infection.(GOOD NEWS) At this point they are recommending PS for recon and to help with the scar tissue... I keep going back and forth on this as I am afraid of going under the knife and me being susceptible to infection.

    ANYONE else having to deal with this so far out from treatment?

  • Hannahbearsmom
    Hannahbearsmom Member Posts: 266
    edited February 2010

    Nicole:  I usually just lurk on this thread and I can't remember if you ever post on the "Exchange City" thread. I'm am sure that there are women who can offer their experiences about recon after infections. That thread really has a great group of ladies and very knowledgable too!! Many of them have been through chemo and rads so they can give you that side of things as well. Good luck in your decision.

    TCK

  • etk02038
    etk02038 Member Posts: 33
    edited February 2010

    I also loved the Golden Girls lyrics...I gotta rent that show. I used to laugh my pants off!

  • dualgate
    dualgate Member Posts: 17
    edited February 2010

    I just finished up rads today and have appointment to see oncologist thursday for check and get started on Tamoxifen. Any ideas on how to deal with the drug? I've heard some stuff about it and want to clarify with people who have actually been throiugh it not just doctors and nurses. Jamie

  • Nicole112
    Nicole112 Member Posts: 130
    edited February 2010

    Thanks Hannahbear! I will definitely look on that thread!

    Cheers!

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010

    deborye--loved those pics, thanks!

    Nicole--sorry I wish I could help!  The only similarity is that I am doing two procedures...first did the lump, now the DIEP.  I DO also have scars from melanoma mole removals (one was melanoma and the others were the "pre-cancerous" type moles) so I have scars all over the place, and I absolutely plan to fix them.  I think revisions wouldnt be too bad to deal with if it made you feel better.  With the lump, they had to go back in for the clear margins and cut the same spot, and it healed...took longer, but healed nicely.  I'm sure I'm not being any help LOL.

    Hi, Sheila!

    Let's all be GOLDEN GIRLS!

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010
  • deborye
    deborye Member Posts: 2,441
    edited February 2010

    It is on the Hallmark Channel from 11 pm til 12 am.  I watch it while I am in bed, I usually fall asleep before it is over.  Only 2 are alive now.

  • deborye
    deborye Member Posts: 2,441
    edited February 2010

    Hugs nicole,

  • MBCR
    MBCR Member Posts: 51
    edited February 2010

    Ladies:  Be strong. Take time for just YOU. I started meditating: once a week w/ a group, & then 5-10 min on my owm daily. It has really helped w/ day to day stresses & particularly w/ medical appointments.

  • Nicole112
    Nicole112 Member Posts: 130
    edited February 2010

    Thanks Deb!!

    MBCR- I like your idea! I have been trying this approach and it is working out beautifully in my schedule (The alone time, not the group). I wake up before my 2 and 10 yr can get my day started :)

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010
    OK how do you guys put these cool pictures into your messages?
  • Susie123
    Susie123 Member Posts: 82
    edited February 2010

    Hello Everyone!

     My surgery was last month. I am stage 1, grade 1. Estrogen+, Pg+, Her 2 -.

    Nodes negative. YAY!!!   Oncotype DX score was 16, so NO CHEMO!

    I had a bilateral mastectomy with tissue expander reconstruction, which feels like a really tight barb wire bra! I got my first expander "fill" Monday. Ouch! Back to the pain pills for a couple of days. All in all, I feel very blessed to have had this outcome, I know my fellow early stagers feel the same. Great to find this thread. By the way, my name is Susie, and I live in the North Georgia Mountains. Nice to talk with ya'll !                                                                                                                               

  • Meece
    Meece Member Posts: 10,618
    edited February 2010

    Welcome, Susie.  Lucky girl, no chemo!  Nice to hear from you, too.

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010

    Countdown started for cakes surgery and Disney vacation

    The pictures you see, I google the images, copy and paste at the post where the green tree is on the top of your post next to smiley face. If you are asking about real picture posting I dont know yet.

    We have Gildas Club I called them but never attented. will be nice since they have all kind of activities like yoga etc etc. I used to meditade which was helpful, but I stopped, now I dont even know where to start.

    Nicole making alone time for yourself is very important and also difficult. I used to put the kids to bed a very early hour, then had few hours for myself every night.

    Hi Susie nice to meet you come back anytime.

    Sheila

  • sheila888
    sheila888 Member Posts: 9,611
    edited February 2010
  • tic
    tic Member Posts: 7
    edited February 2010

    Count me in- lumpectomy in early January, 2010,  doing rads now, starting Femara shortly.

    Any thoughts on Femara  out there?

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