Sign the Petition Against the new Mammography Guidelines
Comments
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I too went round and round to "sign" the petition, and then when I re-read the invitation, it looks like BreastCancer.org is looking for replies to original site post to gather our names, and no actual petition is ready yet. This has all happened really fast, so I think they are going to contact us with the petition and a way to sign it. I hope!
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Lisa Rosner
Diagnosed at Age 47
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I am against the new mammo giudelines. When my sister was diagnosed ten years ago there was no bc in the family. Even though my bc wasn't caught with a mammo, I think it is SO important to start having them before 50!
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I agree
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My childhood friend, Ursula Crommie Guidry, died of breast cancer at age 41. A former colleague, Melodie Wilson, died after a 15-year struggle at age 59. My sister's mother-in-law died of breast cancer in 2004. Our paternal grandmother died of breast cancer in her early 70's.
My health care provider (Georgetown University Hospital) is very aggressive about getting every woman into a regular mammogram program; my first was at age 39. We need more information, not less, to save women's lives -- and we need insurance companies to cover the expense. We need all 50 states to require the expense be covered in insurance plans.
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Jill Janicki - Diagnosed at age 44 from routine mammogram. Low risk. No family history. No previous issues detected. DCIS, LCIS, 7mm microinvasion IDC. No positive nodes. Hate to think what my outcome and treatment would have been if I had not been detected early!
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I believe the guidelines should stay the same. dx age 51, but found on mammogram - large tumor, 4.5cm, spread to lymph nodes. Should have been found earlier.
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I was diagnosed about 2 1/2 weeks after turning 29. If I had to wait until I was 50 I would be DEAD!!!!! My mother was diagnosed 6 months before I was at 46 and died at 49 from breast cancer with mets to the lungs,brain,ribs, and breast bone. Why should women have to wait so long for mammograms????
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I had a 5.5 cm tumor at 44. How big would that have been when I was 50???? Women don't wait until they're 50 to develop breast cancer, they shouldn't have to wait until they are 50 to have a mammogram.
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I was diagnosed age 44 with DIC as a result of self breast exam and then were able to see it on mammogram.No family history of breast cancer. Why do they preach about early detection?
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With no family history, I received my diagnosis this year at age 60. These new recommendations worry me because I have a 36 year old daughter and a 7 year old granddaughter. My breast cancer was caught very early, before I could even feel it. I did not need chemotherapy and was able to have a lumpectomy. I wonder if these recommendations become standard practice would the same be true for my daughter or granddaughter? The suggestion that the members of this board be persons who have fought breast cancer or watched a loved one fight it is an excellent one. Until you have embraced "the dragon", don't be so presumptuous as to tell me what tools I can use in my battle.
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diagnosed at age 45!
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Diagnosed at 51 yrs IDCC....have a 31 yr old daughter....she definitely needs to start mammos before 50!!!!!!!!!!!!!! Tumor was very small, could not be felt and mammo was the only way I am here 7 yrs later. Everything in this country is based on what big bussiness wants...always the bottom line. Insurance should pay for mammos for every woman, and man if needed, regardless of age or costl. Guidelines my butt!
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These new guidelines are outrageous! If anything, we need to revise, and start doing baseline mammograms at age 35 - even 40 is too late for many women.
I was 34 when I found my lump. I had a mammogram, then an ultrasound, and then a biopsy, never expecting to have breast cancer. I was told I was too young, I did not fit into any high risk, nor did I have any family history. My lump was small, ( 1cm ), but was told that this lump had probably started growing 8-10 years previous to even finding it...so, let's see, that would have made me about 25 years old, the age I was when I gave birth to my first child. Seems pretty darn young to me.
At 41, I was diagnosed with stage IV, with mets to bones and pleura. I will be turning 52 next week! Even if I had waited to do a baseline mammogram at age 40, I probably would have found stage IV at that time.
Along with the new so called findings, they are now also advising against Breast Self Exams. So many women have found their lumps this way, do we really want to say STOP doing these? We also need to revise what constitutes "high risk". Most of the women have not been high risk for breast cancer, this really needs to be researched more, because it sounds like it was all made up. If you check on these boards, and take a look around your local cancer centers...you will find that most women being treated for BC are in their 30's and 40's, and alarmingly, these are the ages that we are finding these cancers.
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For my sister, who had her regular mammogram in 2006 which was clear, and her next mammogram in 2007 which showed a tumor, invasive ductal cancer which had already spread to lymph nodes. Every two years is NOT often enough!
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Age 51 - 2006 diagnosed DCIS - no lump - only found through routine mammogram. Mammogram in 2005 showed nothing. 2009 - lump found through routine exam - IDC
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I was diagnosed last year at age 47 with ILC. It was detected during my routine mammogram. I don't even want to think about how bad the fight would have been if I was forced to wait until age 50 the get a mammogram!
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While my cancer was not diagnosed through mammography, we have lost too many dear, sweet sisters because they were "too young" to have breast cancer. You are never too young - please don't change the guidelines - if you do, change them to have mammography at 30.
Kathleen McCraw
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For my mother who died at 46 from breast cancer and myself dx with LCIS-without mammogram, this would not have been found! Let our voices matter.
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I was diagnosed with B/C 10/30/08 due to Mammogram Finding in September 2008. Age 50 No Family History. Had bi-lateral masectomies. I am here this year for Thanksgiving with my Family. Mammography should always be available to anyone any age and paid for by insurance.
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Diagnosed at 47 with IDC and was treated sucessfully. I had one year between mammographys, two years would have made a huge difference in my treatment and survival. Keep the current standards!
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As a two year breast cancer survivor the mamogram saved my life
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Karin Popperwell. Diagnosed at age 61. Mom had breast cancer at age 65. My lump was found during my annual mammogram. I never felt it. The surgeon had trouble feeling it as well. Thankfully I have had annual mammograms since age 29 due to fibrostic breast disease. Cannot understand where these people issuing these guidelines are coming from.
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Diagnosed with DCIS at age 56, at routine ANNUAL mammogram. Needed only lumpectomy; no chemo, no rads. Today am a healthy woman in her 60's with two beautiful, natural breasts.
The task force new "guidelines" of bi-annual mammograms for women in their 50's put women like myself at risk of being diagnosed with more advanced disease and suffering the devastating effects of mastectomy, chemo, and radiation as they fight for their very lives.
And look: Since when is "anxiety" from FALSE POSITIVES considered a medical "harm" - when balanced against the risk of missing a life-threatening cancer? Do we resent the inevitable anxiety when a colonoscopy results in a biopsy of discovered polyps when the polyps prove benign? Do we resent the biopsy of the countless skin lesions we've all had when the results come back benign? As my physician instructs: IT'S NOT THE FALSE POSITIVES YOU WORRY ABOUT. IT'S THE FALSE NEGATIVES.
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Annual mammograms since age 40. Diagnosed IDC at age 54, stage 1, grade 3, triple negative. Bilateral mastectomy, four months of chemo, two months of radiation. Bewildered by the stupidity of the panel guidelines.
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Diagnosed at 49 by routine mammogram....I am not a statistic,I am a daugther, a mother, and a human being!
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I don't know if anyone has all the facts but all I know is my BC was caught during a routine mammogram at age 42. If I had to wait until I'm 50 (I am 46 now), I shudder to think how far it would have spread or if I would even be here at that age. Early detection is KEY!
Diagnosis: 8/2006, IDC. 1.7 cm, Stage 1, clear nodes (3), ER+/PR+, HER2-
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I was diagnosed at 45 with triple negative breast cancer and would be dead already!
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NO CHANGE!
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doing self breast exams AND mammogram, saved my life- diagnosed at 39- I'm sure a 10 year wait would not hve left me here today!
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