Sign the Petition Against the new Mammography Guidelines

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Comments

  • SueJ
    SueJ Member Posts: 1
    edited November 2009

    5 year survivor, diagnosed at age 49.  Would have been sooner if I had followed the guidelines in place.  Maybe I wouldn't have had a 2 cm lump already...can't imagine if I had waited longer.

    No family history, no symtoms.  Mammogram is what saved me...

  • WendyInCalif
    WendyInCalif Member Posts: 8
    edited November 2009

    Wendy D - 49 - My tumor was visible on my mammogram 2 years prior to actual diagnosis -  placing me at age 47.

  • mimiandcoco
    mimiandcoco Member Posts: 1
    edited November 2009

    My BC was detected by yearly check-up Mammo at age 46. No one has a right to take away women's surrvival tool. Eveyone has mother or sister or daughter. So this new guideline is taking away everyone's survival tool. I am strongly against this new guideline.  

  • roznoba
    roznoba Member Posts: 1
    edited November 2009

    I found my own lump in 1995, had a mastectomy and am OK still after nearly 15 years.  What is that task force thinking???  I am active in a breast cancer foundation in my area and our data indicates a peak of our recipients in mid to late 40s.

  • healthycom
    healthycom Member Posts: 5
    edited November 2009

    How about telling the public about the safe form of examing the breasts with Thermography? Its been around since the 1940s, it is the only thing I get now for examinations, besides self exam. SAfe, no xrays, doesn;t squeeze our parts, and is available. The American Cancer Society states "the only known way to get cancer is from xrays", their next sentence is, "every woman should have a mammogram (xray) every year". Now they are changing their tunes, why? Because you are finally becoming aware that having that much xrays every year could be harmful? Because if no mammograms are giving, more cancers will be undiscovered, and the pharmaceutical companies can then charge consumers for cancer drugs. www.publicsright2know.org

  • healthycom
    healthycom Member Posts: 5
    edited November 2009

    Are you aware of thermography? Safe form of examining the body for cancer? I will never have a mammogram again, have only had thermograms for past 10 years.

    I cannot understand why this org does not tell consumers of their healthier choices for examination. www.publicsright2know.org

  • healthycom
    healthycom Member Posts: 5
    edited November 2009

    My Mom died of breast cancer in 1982, age 56. She had worked for toxic Revlon cosmetics putting chemicals on women across the US 8 hours a day.I started to get mammograms because of this, but then learned they are horrible xrays, and they were always painful. I found out about thermography and only do thermograms once a year. The public has the right to know about thermography, been around since 1940s. wwwl.publicsright2know.org

  • healthycom
    healthycom Member Posts: 5
    edited November 2009

    Wondering why this org does not tell consumers about the dangers of chemicals in daily used personal care and beauty cosmetics, how to read lables and know what to avoid. I am a cancer survivor and learned about these chemicals over 12 years ago. I am the Director of the Cancer Prevention Coalition for Los Angeles, giving semianrs to the public on awareness of avoidable risks of cancer from daily used environmental toxins. www.publicsright2know.org

  • healthycom
    healthycom Member Posts: 5
    edited November 2009

    SAfe form of examination is from thermograms, thermography, been around since 1940s, detects cancer faster than mammograms. Non xrays, non squeeze, no pain, no suffereing, just results.

    www.publicsright2know.org

  • erfogarasi
    erfogarasi Member Posts: 1
    edited November 2009

    My cancer wasfound by self exam. It  did not show up on mammogram;  no lymph involvement, and 1.8 cm.  Just a little longer and I would have had to have chemo.  What a waste of emotional, physical and economical resources that would have been.

     I can't think of one women who would rather undergo the temporary stress of a false positive than have her life threatened by an undiagnosed cancer. 

  • patsgirl
    patsgirl Member Posts: 1
    edited November 2009

    Jacquelyn Radano 57, diagnosed @ age 49;  Mother, Patricia Belfi, deceased-cause of death: BC. Please don't make my daughter (34) wait until 50 for her first mammography.

  • tiffanygneiting
    tiffanygneiting Member Posts: 1
    edited November 2009

    my mom was diagnosed at age 42 and found her lump at 41 the doctor said it was probably a few years old so I totally disagree with not getting one until they are 50 I think it should be more like 35!

  • ctsmith122
    ctsmith122 Member Posts: 1
    edited November 2009

    I was DX 46 now 7 years later Stge IV on chemo 4years  

    My Mom is 83 had Breast CA 46 also.

    What about my daughter she is 16 now. Is her life one of the too few to be worth screening Mammo earlier than 50?

  • ascatt
    ascatt Member Posts: 1
    edited November 2009

    Amy S-  dx  age 45 9/11/07 (found on mammogram) less than 1 cm and already in 3 lymph nodes, though nothing at previous mammo year before.  Waiting til 50 for my regular...I don't think I would have made it to that birthday.

  • bmc4mk2
    bmc4mk2 Member Posts: 3
    edited November 2009

    Diagnosed with routine mammogram.  DCIS  mammogram saved my life. someone needs to point out how many women in their 40's are diagnosed each year to this committee. Thanks to breast cancer .org for taking a stand against this.

  • Denaself65
    Denaself65 Member Posts: 1
    edited November 2009

    If my sister would have whated tell the age of 50 we would not have her now. Because she was diagnosed with brest caner at age 45. So no I think it should be left a lone at age 40.

  • wackyjackie
    wackyjackie Member Posts: 107
    edited November 2009

    Jacqueline Sassi- dx age 46---runaway tissue on mammo helped discover large tumor that spread all over my right breast.....micrometastic spread to 3/10 lymph nodes.  Stage IIB...I don't believe I would have ever made it to 50yrs. old.  Also, large tumor (benign) discovered in left breast. 

    My sister Ann, dx at age 46 also.  Stage I......mass discovered on mammmo. 

    We both tested negative for BRCA genes.  Mammo saved our lives!!!!!

  • prunefig
    prunefig Member Posts: 1
    edited November 2009

    My sister was diagnosed at age 45 with no family history, and passed away 2 years later. My cousin, who is 42, was just diagnosed last week.  So much for age 50 and older only needing them.

  • Smalls
    Smalls Member Posts: 1
    edited November 2009

    Janet S. - Diagnosed at age 50.  DCIS - Grade 3.  I had a wonderful doctor who sat down with me and presented options for my treatment and who allowed me to make the decision that was correct for me.

    This is why the government has NO BUSINESS being in our health care!!!!  I think we should be looking long and hard at this Obama/Pelosi/Reid Government Health Care Plan and encourage our elected officials to vote NO.  I agree that we need reform. We need to address the situation of people who do not have coverage.  We do need to address issues with insurance companies who do not want to pay what is due to those who have coverage. We do not need to have the government taking over health care for everyone. We do not need the government to be making decisions about what test we can have or can't have and when we can have that test and when we can not have that test!!  I should have the right to talk with my doctor and make health care decisions without Pres. Obama or Congressional imput.  I do not believe this is the reform that will correct our problems.  And I can not understand how putting a fine on people who can't afford to buy health insurance is going to help.  Most people who don't have health insurance can't afford it, so how are we helping them by placing a fine on them???  Someone asked in an earlier post "What Washington was thinking?" " How is this going to save money?"  As I see it, they aren't thinking.  They will save money because we will not discover our cancer until it is too late and they won't have to pay for our treatment, we will die.

  • tanguera50
    tanguera50 Member Posts: 3
    edited November 2009

    Rebecca N. Dx 50, Found lump in dense breasts which only showed as calcifications on magnified digital mamo.  Ultrasound was very clear.  4/6 nodes.  Why would we NOT bse?

  • serena030309
    serena030309 Member Posts: 2
    edited November 2009

    February 2008.  Age 50 years 9 months.  ANNUAL mammogram.  Clean and beautiful.

    February 2009.  Age 51 years 9 months.  ANNUAL mammogram.  TWO tumors.  HER2 positive.  Estrogen positive.  (Fortunately Stage 1)

     ANY QUESTIONS?

  • donsuzbee
    donsuzbee Member Posts: 43
    edited November 2009

    Susan Beason DX at age 53, recur age 60.  Mod rad mast.  Radiation.  At age 64, left prophylactic simple mast due to precancerous crystalization.

    Daughter, at age 47, diagnosed at risk with suspicious lump, now has a titanium chip to mark the location and has a mammogram every 6 months.  She is now 51.

  • Sally543
    Sally543 Member Posts: 1
    edited November 2009

    Early screening and detection is critical and I strongly oppose these new guidelines!

  • rose847
    rose847 Member Posts: 18
    edited November 2009

    BREAST CANCER WAS FOUND TWICE OVER A 5 YEAR TIME FRAME BECAUSE OF A MAMMOGRAM! Both times it was caught early Stage1. If I had waited, who knows where I would be today.

  • MLB756
    MLB756 Member Posts: 1
    edited February 2010
    TOTALLY ABSURD!!!  No Family history - Had been monitoring a lump for 2 years for chg. Diagnosed at 51 - Why would health care take such a huge step back?  MONEY??
  • rmccoy
    rmccoy Member Posts: 1
    edited November 2009

    My sister died of breast cancer at 45 years old. She did NOT have any mammograms until a LUMP was discovered.

    I had my first baseline mammogram done at 35. I continued with yearly mammograms until 2002 when I was diagnosed with DCIS, undetectable with a self-exam. The milk duct was removed followed by 6 weeks of radiation and 5 years of tomaxafin.

    On 11/16/2009, I had my mammogram and MRI.  I have been diagnosed with Atypical Ductal Hyperplasia.  I see the surgeon on 11/25 to discuss the removal of this area.  It is very small, only 4.5mm in size but it could have been the precursor to breast cancer left unnoticed.

    MY only comments/ questions are to those in favor of the new guidelines are these:

      If I was your mother, would you really want me to be checked only every other year?

      If I was your wife, do you want me to follow the new guidelines?

      If I was your daughter, what would you want me to do?

      If you were me, what should I do?

    Please revisit the guidelines with these four questions in mind.

    Renee

  • JamieLeeGee
    JamieLeeGee Member Posts: 2
    edited November 2009

    Please sign me as one of your supporters. If it hadn't been for annual mommograms who knows how far my stage 2 with lymph node involvement may have gone. It was not palpable and not on the year before's mammogram. I have three daughters and would encourage them to start sooner NOT later on getting mammograms. Jamie Gerard

  • JamieLeeGee
    JamieLeeGee Member Posts: 2
    edited November 2009

    Please sign me as one of your supporters. If it hadn't been for annual mammograms who knows how far my stage 2 with lymph node involvement may have gone. It was not palpable and not on the year before's mammogram. I have three daughters and would encourage them to start sooner NOT later on getting mammograms. Jamie Gerard

  • sira
    sira Member Posts: 1
    edited November 2009

    I was diagnosed with bilateral multifocal breast cancer at age 49 as a result of a routine mamogram.  I was unaware of being high risk for breast cancer since my older sister , mother, and grandmother had never been diagnosed with breast cancer.  I had two positive nodes.  It turns out because I had two great aunts that had had breast cancer I was at risk, but I had never been told that by any doctors.  I've heard these new guidlelines claim that 15% of women who have mamograms between the ages of 40-50 are diagnosed with breast cancer.  That seems highly statistically significant, especially since I was one of the 15%.  If that statistic applied to men we all know that their getting screened routinely would be par for the course and not open to 'interpretation.'  Who are these people on that so-called task force? Who appointed them? I heard there wasn't even an oncologist on it. 

  • lxhale
    lxhale Member Posts: 1
    edited November 2009

    Lorrie,

    I was dx at 42 Feb 07 with stage 1, grade 3, 0/3 nodes, ER/PR-, Her2-.  Did 4 rounds of AC/DC and 4 rounds of taxol.  So hard to find others who are triple negative.  What treatment did you do?

    Charlotte