Sign the Petition Against the new Mammography Guidelines

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Comments

  • quilter5445
    quilter5445 Member Posts: 1
    edited November 2009

    Jane Knapp - diagnosed by mammo at age 56. Surgeon dismissed need at age 51!!! Afterr a mammogram every 6 months for 4 years and the fifth year without the half-year mammogram, I got the diagnosis. I can't imagine how many more lymph nodes would have been affected if it had been every two years.

  • teddypipcatz
    teddypipcatz Member Posts: 3
    edited November 2009

    In July 2000, I discovered a lump in my left breast.  I went to my HMO's walk-in clinic, where the physician told me it was "probably nothing," but after my insistance (because I was too young at 39) he scheduled a mammogram for the following month.  Within two weeks of discovery, the lump had quadrupled in size, my breast had become red and swollen, and the nipple had inverted. 

    Persistant calls to my GP's office got me an appointment in October! 

    I finally asked the office nurse when my GP would be scheduled to work at the walk-in clinic - fortunately it was the same weekend.  On August 10th, 2000 I was diagnosed with aggresive Inflammatory Breast Cancer.  The accompanying tumor was 5 cm at the excisional biopsy, and cells were found in 5 of 11 lymph nodes. One more year, and I would not have been here.  Without knowing BSE, I never would have found the initial lump.

    I frankly do not understand how recommendations regarding this widespread scourge of American women  can be based on data acculmulated from England and Sweden. Lifestyle, diet and exposure to carcinogens are completely different between the three cultures.

    Joan St.Germain

    Huntington, WV

  • AlisNana
    AlisNana Member Posts: 1
    edited November 2009

    Diagnosed @ 41 on a routine mammogram.  If I had waited until 50, would I be around to write this post?

  • chapter2
    chapter2 Member Posts: 1
    edited November 2009

    I do not support the new  Br Ca guidelines even though my tumor was found by self exam on both occassions. The studiy does not have sufficient power to make recommendations for black,hispanic and other ethnicities. Women need the choice of sitting down with their doctor and determining when they should have a mammogram. Insurance companies and managed care will have even more control over our health. We need to work on better early detection techniques before throwing out the baby with the bathwater.

    Chapter2

  • sylviag
    sylviag Member Posts: 1
    edited November 2009

    My daughter and I were both dx in in March of 2006--I was 57 (DCIS & IDC) and she was 37(DCIS). Lump and rads for me--double mast for her---and we are both doing well....I wonder what one of those politicians would say if it was their daughter being dx and she had to beg for a mammo because she felt a lump?

  • Mel18
    Mel18 Member Posts: 2
    edited November 2009

    Diagnosed at 41 and had total mastectomy in left breast at 5 months of pregnancy with my only son and first year of marriage. No family history. We are a lot of brave women fighting with courage against this terrible predator, but who proposes this new changes has no idea how it feels to have breast cancer and the risks of this changes on all the younger ones out there. What's going on with you?Check the REAL numbers and stop making decisions from a comfortable desk, get REAL and get in TOUCH with the people, we are REAL.

  • samanthatha1986
    samanthatha1986 Member Posts: 1
    edited November 2009

    I had Breast Cancer last year. Somehow I had been missed for nine years because of the changes in when a mammogram should be done, even though my sister died of overian cancer and her daughter had breast cancer. I think seing as you have more chance of getting breast cancer woth age then why oh why do they stop ding it at all. Prevention must be better than cure. By the time they found mine it was grade 3 and aggresive and 4 nodes.

    SParkes

  • burnscarnes
    burnscarnes Member Posts: 1
    edited November 2009

    I hate to be so stupid, but where do I sign the petition???

  • burlenek
    burlenek Member Posts: 2
    edited November 2009

    I was diagnosed at age 49 with a 5mm invasive ductal breast cancer.  My onco said that I had an "angry" tumor and that the mammogram saved my life.  If I had waited another year, I may not be here now, 4-1/2 years later.  Until there is a better screening tool, the old recommendations should continue.

  • jdugaro60
    jdugaro60 Member Posts: 1
    edited November 2009

    Yellhey why not!!!!!!!!!  womens lives have never been important--we have always been behind the men in importance--stop the prostate exams==our government will pay for viagra but dont want to pay for birth control pills. this is gotta be  a joke because our government just dont care if women live or die. government statistics 20 women to every man think about it--laws made by men-passed by men. ladies we cant let our government--run by men--get away with this asassination--take a stand today--please write-call-text-run-sign--do whatever you can to stop this from being pushed on us-we like life to---tell our government to jump off a tall building. so many lives have been saved by mammograms-----why single out the 40s  this should never happen--dont let this happen.

  • thankyoujesus97
    thankyoujesus97 Member Posts: 1
    edited November 2009

    I am also against the new Mammography guidelines. I was diagnosed with breast cancer when I was only 25. I felt a lump in my breast and mammography and later biopsy confirmed it was cancer

  • Mel18
    Mel18 Member Posts: 2
    edited November 2009

    Lol! I think this is our signature, 'cos I can't find where to sign either, you are not alone my dear

  • audrey1998
    audrey1998 Member Posts: 1
    edited November 2009
    I was diagnosed when I was 37, I am 49 now, I had stage 3b, it was in 6 of the 11 lymph nodes in my armpit, all my margins were clean. My mother and sister had bi-lateral breast cancer. I have always felt that they should lower the age to 35 for high risk women, and now they're thinking of raising it?? We all know it's the insurance companies behind it, heaven forbid they find it sooner and actually have to pay less to treat it. No offense to men but I don't hear them talking about changing the age that they should start having their prostates checked.Foot in mouth
  • Ruth1
    Ruth1 Member Posts: 1
    edited November 2009

    Although I was diagnosed the first time with breast cancer at the age of 53, and again at age 65 and my mother at age 80, I have two daughters age 41 (twins) that I hope that they can be tested long before they turn 50.  What are they doing to the women and their health, are we going backwards?  Please keep the testing where it is, and hopefully the insurance companies don't get the idea they no longer have to pay for the tests. 

  • paigelise
    paigelise Member Posts: 4
    edited November 2009

    I found a lump at age 40....mammogram confirmed a 3 cm mass.  I have no family history.

    The new guidelines make no sense at all to me. 

    Wendy

  • silent_warrior
    silent_warrior Member Posts: 1
    edited November 2009

    Laurie Quadracci diagnosed age 43 at 2nd annual mammogram with DCIS and IDC in one breast and DCIS in second breast.  Had I followed the current proposal there is a certain chance I would orphan 3 children and widow my husband.

  • sabrinasahib
    sabrinasahib Member Posts: 1
    edited November 2009

    Sabrina Sahib - Age 28, Family History

  • Nancyj
    Nancyj Member Posts: 1
    edited November 2009

    I had my first mammogram at age 40 and went every year thereafter.  Diagnosed with invasive ductal carcinoma at age 48. Stage II, 2 cm tumor, 4/7 lymph nodes.  The tumor was detected by my yearly mammogram (it had been missed by my physician just a month earlier during a routine exam and I had not found it).  

  • DENRulzBC
    DENRulzBC Member Posts: 99
    edited November 2009

    Dawn - NO risk factors, dx @ 44yrs.

  • Debbie1218
    Debbie1218 Member Posts: 3
    edited November 2009

    Debbe: DX age 55. My cousin died at age 32 and my aunt at age 48. I don't want my daughter and grandaughters to miss testing and die at an early age. I'll take a false positive any day.

  • pattyinarnold
    pattyinarnold Member Posts: 1
    edited November 2009

    Diagnosed in 2005 with invasive cancer stage 1 in the tissue of my left breast.  Not seen in 2004. If I took mammorgrams every other year by 2006 I would have been in stage 4.  This cancer was fast moving.  Diagnosed in 2007 with High grade DCIS in my right breast.  It would not have been cought until 2008, by then I could have been in stage 4.  Having a mammorgram every year from age 35 saved my life twice.  Stay with the old guide lines and save your life.

    A live and Happy!

    Pattyinarnold

  • Debbiem425
    Debbiem425 Member Posts: 27
    edited November 2009

    Diagnosed at age 46.  With this reccommendation I would not have found it until 4 years latrer at 50??  Why is this task force suggesting that we wait 10 more years.  So many of us were in our 40's when breast cancer was found. 

  • sissyjo55
    sissyjo55 Member Posts: 1
    edited November 2009

    Diagnosed at 38 with atypical hyerplaisa. Diagnosed with stage 3 node positive breast cancer at 53.......more needs to be done not less! MRI 's standard for pre cancerous breasts.. No more wait and see and then being diagnosed at later stage cancer! Keep the guidelines as they are or even improve them!

  • monicar
    monicar Member Posts: 1
    edited November 2009

    Monica R

  • Triciaski
    Triciaski Member Posts: 7
    edited November 2009

    Patricia Schodowski: My tumor was detected on my yearly mammogram. It was not picked up the year before, and who knows how much it would have grown and what stage it would have been if left to grow for another year while I waited two years between mammograms. 

  • trags88
    trags88 Member Posts: 1
    edited November 2009

    I am so glad to see the passion around this topic. I couldn't believe it when I saw it. I have no family history, did my mammograms faithfully every year, bse when I remembered. Clear mammogram the year before. Felt the lump in November 2001, mammogramed was already scheduled for late January 2002. They found it, and it was already 3.5 cm and in one lymph node. If I had waited, as these guidelines are trying to tell us, because I had no family history, I would not be here today. Hail to all of the groups and women who are standing up and not allowing a group to tell us how to take care of our bodies!

  • friendadvocate
    friendadvocate Member Posts: 1
    edited November 2009

    I am a male, here on behalf of my friend Maria, who at 49, has been diagnosed with breast cancer.  It is INSANE to not have early detection for breast cancer.  Please rethink this new guideline. 

  • bhull
    bhull Member Posts: 3
    edited November 2009

    Barbara Hull - found lump with BSE at age 38. No family history. Stage 2B - triple negative cancer. I would never have been alive to reach this new recommendation of age 50. Since my diagnosis 6 years ago, I have meet many women in my community (late 30s/early 40s) being diagnosed with Breast Cancer (via BSE or Mammo). Don't limit early detection procedures just to save some Insurance $ - Aren't women's lives worth something?

  • dontel972
    dontel972 Member Posts: 1
    edited November 2009

    Patricia M - dx - age 54 with ILC stage 2 - detected through BSI - didn't appear on diagnostic mammogram - I still get mammograms regularly.

  • cptmorgana
    cptmorgana Member Posts: 1
    edited November 2009

    My sister was diagnosed at 38 yrs, my daughter was also diagnosed at 38 yrs.  We all have to stand strong together.