Sign the Petition Against the new Mammography Guidelines

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Comments

  • kschaller
    kschaller Member Posts: 1
    edited November 2009

    Kay-Lynne Schaller, diagnosed at 50, lump discovered by my nurse-midwife health care practitioner.  Sizeable lump, stage 2, 2 lymph nodes positive, bilateral mastectomy.  FILM mammograms every year did not detect this, but digital might have, MRI definately would have detected earlier.  Let's advocate for the better technologies, but not drop the current technology and education on Breast Self Exams! 

    www.kaylynne50.wordpress.com

  • energy
    energy Member Posts: 1
    edited November 2009

    JAS- DX at 49, found lump 6 months after mammogram

  • dmaresca
    dmaresca Member Posts: 1
    edited November 2009

    I was diagnosed with breast cancer over a year ago, which was found on a routine mammo.  I was having them performed yearly because of a strong family history.  Luckily, when I was diagnosed. I was stage 1 and basically have been cured.  I feel very strongly about women getting their screening mammography done yearly.  I also work in a  small hospital upstate New York and we pick up new cancers on young patients all the time.  Breast cancer is rampant and we need to do everything we can to try and prevent it and/or detect it early.

    Debbie

  • fastlucy21845
    fastlucy21845 Member Posts: 1
    edited November 2009

    As a breast cancer survivor of 4 years, I urge that these recommendations be changed to include 40-50 year old.  Too many young women are now being diagnosed with breast cancer with catastrophic results.

  • MBCR
    MBCR Member Posts: 51
    edited November 2009

    I was diagnosed @ 49 w/ no family history or risk factors. Had 4 kids that I breast fed & got my period @ age 15 , so where did all this estrogen come from giving me cancer?

  • l8dybug2u
    l8dybug2u Member Posts: 1
    edited November 2009

    I felt a pea size lump.  That was the beginning.  I now get mammograms every 6 months.  I've had 3 surgeries in 3 years.  This all started when I was in my mid 40's.  No breast cancer in the family..but it has to start somewhere, does it not?  I have LCIS.  You better believe I WILL continue to get my mammograms to save my life and yes, my breasts. 

    I'd love a list of the qualifications of those that changed the guidelines.  Who are these people?  This is something that should be decided on between physcian and patient.  When we throw guidelines out, people get sloppy and make poor or NO decisions. 

    We have taken 10 steps forward to get where we are today.  With this decision, we took 20 steps backwards!  Good freakin' job!!!!  I keep shaking my head wondering, what just happened here?

  • rottie1
    rottie1 Member Posts: 1
    edited November 2009

    I am appalled at these new guidelines.  If I had followed them I would be dead by now.  I was 40 when I was diagnosed.  They did get something right - mammograms do miss a lot.  But that of course is no reason to not do them since they do find cancer in some women.  My doctor sent me for a mammogram and it did NOT show the lump.  Then they did an ultrasound and the cancer showed up.  I was stage 2 with two positive lymph nodes.  They recommended a mastectomy on the left but I opted to have the double and reconstruction.  I'm here 5 years later, cancer free because of it.  I believe they should do ultrasounds on younger women instead of mammograms but I guess the insurance companies would never pay for that.

  • gmw
    gmw Member Posts: 1
    edited November 2009

    Diagnosed 2/09 with stage 1 during my yearly mammogram.  My ob/gyn did not feel it on exam.  I could not feel it even during the ultra-sound exam that followed.  If I had to wait another year, my diagnosis could have been much more severe.

  • mvaassen
    mvaassen Member Posts: 1
    edited November 2009

    My mother was diagnosed with an early breast cancer at age 45 in 1991. This was found on a routine screening mammogram. She felt nothing during her self examination the month before nor could her Doctor feel anything after viewing the mammograms. There is no form of any cancer at all in her family history, today there still is not. Thankfully my mother has survived. But what if these new proposed guidelines were in effect. Who knows how long this cancer would have grown before it was detected. By then this cancer could have spread to the lymph nodes invading the rest of her body...something I hate to think about. I am a nurse and I work in a general surgeon's office and am seeing very young women being diagnosed with breast cancer after undergoing their first screening mammogram in their 40's. We can not change the guidelines for mammograms. This is very dangerous territory that will only lead to more deaths from breast cancer that, otherwise, if detected early will have a high rate of survival. EARLY DETECTION...two very powerful words.

  • Nisey6
    Nisey6 Member Posts: 1
    edited November 2009

    Felt lump had not had mammogram yet have had them since age 20 due to lumpy fibroid breast. Had mammogram...and a biopsy same day.Cancer 3cm stage II B with 2 nodes positive,with 12 nodes removed,  oncologist said cancer had been growing 8 years.  Hard to detect have had mammograms every year.  Not to say that they are perfect but you have to have every test available to WOMEN.  This is crazy, cancer does not discriminate.  Everyone is at risk.. I know 20 yr olds getting breast cancer...WE NEED MAMMOGRAMS period.  I have had chemo, and radiation last CT scan clean..I am lucky I did not put off mammogram thinking it was just another benign lump.  It is a journey that no one should have to take, but thank goodness we have made strides and having mammograms for ALL women is paramount.  Nisey detected right before my 51st birthday

  • lenelle
    lenelle Member Posts: 10
    edited November 2009

    LeNelle Stephens diagnosed at 43 with IDC by mammogram.

  • Bernie642
    Bernie642 Member Posts: 1
    edited November 2009

    Diagnosed 2003 at 43, no previous cancer in family, lump under arm that drs said was an infected hair follicle. When the cancer spread to the clavicle the drs finally took a proper look and found it was in the lymphatic system, bones and had started in the breast, stage IV. I had had a mammogram and they missed the lump!  Mammograms should be sooner than 40 never mind 50, these people obviously have no relatives with cancer!

  • clariceak
    clariceak Member Posts: 12
    edited November 2009

    Clarice Johnson dx at 49

    younger sister dx at 43

  • rogersmesilla
    rogersmesilla Member Posts: 1
    edited November 2009

    Diane Rogers advanced breast cancer  Breast cancer can be very agressive.  We must have yearly mammograms.

  • Celina
    Celina Member Posts: 1
    edited November 2009

    I want to sign the petition, but this web site keeps going around and around, with no place to add my name.  Very annoying...and 15 min., still can't find a place to sign.

  • Tonijay
    Tonijay Member Posts: 1
    edited November 2009

    Diagnosed at age 41.

  • Mona-Me
    Mona-Me Member Posts: 6
    edited November 2009

    Ramona A - Diagnosed on yearly mammograms in March of 2009; if not for regular mammograms, I would be worse off than I am now,  Caught early.  Don't take this benefit from us all.  Cancer knows no age limits.

  • VickieNashTN
    VickieNashTN Member Posts: 1
    edited November 2009

    To those making these decisions.....put your own Mothers, Daughters, Granddaughters, Sisters and Friends in your mind with breast cancer, think of what they may suffer.  It is not pleasant, it is not beautiful, and nobody is the same after. 

    I found a lump 6 mos. after annual mamo-Stage 1 IDC, age 44.  A breast MRI detected three other lesions on my other breast. I underwent bilateral Mastectomies with reconstruction.  My mother was diagnosed, one year prior to my diagnosis, with bilateral breast cancer Stage 3.  She too underwent bilateral mastectomies.  Hers was detected through mamo.

  • holligoog
    holligoog Member Posts: 10
    edited November 2009

    Holli Simpson Gough

    at age 45, found lump Dec. 2008 followed by mammogram which confirmed a lesion.

  • holligoog
    holligoog Member Posts: 10
    edited November 2009

    Holli Simpson Gough

    at age 45, found lump Dec. 2008 followed by mammogram which confirmed a lesion.

  • denny123
    denny123 Member Posts: 1,553
    edited March 2010

    Denise Ohr.

    I had yearly mammograms without fail.  By the time my mammogram finally found my bilateral breast cancer at age 53, it had already spread to my liver, which made me an immediate Stage 4.  That means that I had 8-10 years of false negatives with my mammos.

    If I had skipped the mammo the year that my BC was finally found, I would have been dead 7 years ago.  But I have now enjoyed 5+ years of remission.

  • sparky6420
    sparky6420 Member Posts: 1
    edited November 2009

    Jeana Sorg

    Diagnosed at age 29. Have 4 women family members all diagnosed under the age of 46. Found my lump with self exam as did all the other family members diagnosed.

  • notme
    notme Member Posts: 4
    edited November 2009

    Pamela Hix

    Always got an anuual mamogram until 2005.  Decided to go 2 years as I was missing too much work due to medical appointments.  Found large lump by self-exam before time for the 2 year mamogram.  Dx Stage 3A, locally agressive IDC, 10 nodes positive age 55.  Should NOT have skipped that annual mamogram!  In my experience both annual mamograms AND self-exam is necessary.

  • Chrissie
    Chrissie Member Posts: 1
    edited November 2009

    If it wasn't for early detection, I would still be walking around with cancer; NO history of cancer in my large family EVER!!  NED for a year and loving life with my two girlies,ages 4 and 5 and husband who is a doll.

    Pink Sisters Unite!

  • mastectomyat44
    mastectomyat44 Member Posts: 1
    edited November 2009

    A mammogram at age 40 would have saved my right breast.In Canada the age for beginning screening is 50. I was diagnosed with infiltrating ductal carcinoma at age 44,had a lumpectomy and 6 months of chemo and then pathology showed multple sites of cancer,so I had to have a mastectomy...I had no family history,no risk factors.Keep the age at 40 for screening. 

  • Gerry
    Gerry Member Posts: 1
    edited November 2009
    Mammograms are the most important tool in a woman't arsenal.  Breast cancer found early is treatable in a much less invasive manner than one found late.  If a woman requires a mastectomy, radiation, chemotherapy, she will have many years of problems.  Mine was found early but not early enough to avoid a mastectomy.  However, the nodes and margins were clean and no radiation, chemo, etc. was required.  I was very lucky -- all thanks to a timely mammogram.
  • Shrek4
    Shrek4 Member Posts: 519
    edited November 2009

    Diagnosed at age 48, DCIS, LCIS, ILC, ICC. Mammogram only found the DCIS (after it was already extensive), the rest was either suggested by the following MRI and/or confirmed at pathology after mastectomy. I wouldn't probably have reached the age of 50 to be able to benefit from the rountine mammogram by the 'recommendations' of these idiots.

    Not only do I think that the recommendations of the so-called 'Task Force" are ridiculous. I think the routine mammogram screening should be offered AT ANY AGE, if the patient so wishes, and also, that breast MRI's  should be made available as free screening procedure if the patient so wishes. better false positives than false negatives.

    The members of the "Task Force" should be allowed to make this kind of "recommendations' after they have had BC, or fought along a beloved one suffering from it. I am tired of seeing all kinds of white-collar incompetents who draw their fat paychecks from my pocket  - all the taxes I'm paying -  to try to dictate to me when I should live or die.

  • murph17
    murph17 Member Posts: 1
    edited November 2009

    Murph17

    Diagnosed twice with breast cancer, Nov'06 & Nov'08.  Both were found on mammograms.  Had a lumpectomy in '06 and Mammosite radiation.  The 2nd cancer was found 6 mos after a negative result-  I was being checked every six months on the breast that had the cancer.  The second one  was DCIS because it was found so early but I had a mastectomy.  Neither would have been found without mammography and my prognosis could have been different.  I am cancer free at this time.  I am outraged at the new guidelines- I am a strong proponent of annual mammograms beginning at 40.  I was diagnosedat 69 and had no family history of breast cancer.

  • klsh51
    klsh51 Member Posts: 1
    edited November 2009

    "Oh, my friend, it's not what they take away from you that counts--it's what you do with what you have left." H.H.

    Diagnosed a year ago at 57, and was told that I was considered an "old age" incident even though there is a history of 4 aunts with breast cancer.  I was also informed that my three daughters and even my son should start screening at 35 or 40.  The new guidelines could prove deadly. 

  • DiDiT
    DiDiT Member Posts: 11
    edited November 2009

    Di Di Terbrak - Diagnosed at 45.  No family history, no 'risk factors'.