Sign the Petition Against the new Mammography Guidelines

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  • LC815
    LC815 Member Posts: 5
    edited November 2009

    Diagnosed at 42.  Kept putting that mammogram off . . . by the time I found the lump, it was palpable and had spread to nodes.  Five years cancer free, but the beast is back and I'm currently stage IV.  If I had gone to those first two mammograms, I might not be looking at what I'm looking at today.

  • cherrilightsey
    cherrilightsey Member Posts: 1
    edited November 2009

    I am 55 and was diagnosed in August with Stage 1, ER/PR-,HER2+, 0 lymph nodes, but microinvasion.  I underwent a partial mastectomy and am taking 6 treatments of Taxotere and Carboplatin and one year of Herceptin.  I have no risk factors other than being female.  My mammo last year was normal.  If I had skipped this year as the new guidelines recommend, my Stage 1 could have been Stage 2 or greater with other involvement next year.  I am outraged.  They have little value for our lives.   

  • ellenj
    ellenj Member Posts: 1
    edited November 2009

    Diagnosed with ILC at age 50. Found lump, did not show up on mammogram. BRCA2 positive. Yes, where's the petition? These new recommendations are a step backwards for women's health.

    Diagnosis: 1/23/07, ILC, 1.4cm, Stage II, 5/16 nodes, ER+/PR+/HER2-

  • NewBride
    NewBride Member Posts: 126
    edited November 2009

    DX at 49 yrs.  with routine mammogram

  • bre
    bre Member Posts: 6
    edited November 2009

    Diagnosed at routine mammogram at age 49 - no family history. 

  • deb3girls
    deb3girls Member Posts: 2
    edited November 2009

    my mother passed at age 44 BREAST CANCER...her mother predeceased her BREAST CANCER...I  started screening mammo's at age 30...at age 36 stage 1 BREAST CANCER...caught by a MAMMO...and then again at age 52 stage 4 with a MAMMO>>>

    who are they kidding??? themselves.......>??????????   This sickens me!!!

  • mbrown7615
    mbrown7615 Member Posts: 1
    edited November 2009

    I'm a Breast Health Specialist Nurse.  I work with breast cancer patients.  I was furious over this report.  We have made so many advances in Breast Cancer.  I feel this was a big step backwards.  One of my patients called this week to say that "It would seem my life is not important to the government."  I would like some of those "advisers" to sit across the table from a 40 year old woman and tell her, there just isn't any need to have a mammogram till you're 50.  "Let's gamble that you'll be okay. And remember it isn't necessary to exam your breast either." Is this what they want for their wives, mothers, and daughters.  Unfortunately, I have patients who already wait too long.  These kinds of reports just confuse them. We work hard to educate women to know their breast and now this is a complete set back.

  • karen43
    karen43 Member Posts: 1
    edited November 2009

    I started screening at age 40 and was diagnosed with a rare form of invasive breast cancer and DCIS by age 43.  I had a painful lump in my early 20s (was always told breast cancer lumps weren't painful..NOT TRUE).  I definitely would not have sought treatment until it was too late.  I don't understand why people aren't more upset about these new guidelines.  Don't they understand that the insurance companies will deny coverage once this becomes standard practice?

  • Chellle
    Chellle Member Posts: 1
    edited November 2009

    This educated insanity must be stopped.  Everyone must fight for their health regardless of age, gender or statistics! 

  • srussell
    srussell Member Posts: 1
    edited November 2009

    Sharon Russell - diagonosed at age 40!!  Digital mammogram and ultrasound confirmed that it was cancer.  Two doctors had told me, "Let's just prove it negative!"

  • floridaeyes
    floridaeyes Member Posts: 2
    edited November 2009
    At the age of 45 diagnosed with BC, mamo confirmed, lumpectomy, radiation..........with the new bill I would not be here today........Second diagnosis 50 years old BC 6/12 lymph nodes, stage 3a........ Mastectomy and Chemo. With the current guidelines of one per year my second bout with cancer almost progressed to the point where I would have been another statistic. If anything changes in our current guidelines I would like to see more mamo's not less. I would challenge the people that are devising this bill to walk a day in my shoes, walk around with one breast, try to work while going through chemo, try walking around with no hair, try gaining weight with all of the steroid's they must give you with chemo. Try going to go shopping and have to be constantly reminded of the clothing limitations you have, no cleavage will show the prosthetic..........better yet wear my prosthetic stuffed bra around on a day when it is 100 degrees outside. Do I support this bill? NO, NOT IN ANY WAY SHAPE OR FORM, DO NOT MAKE WOMEN A VICTIM OF GUIDELINES THAT YOU FEEL WOULD ONLY CAUSE A FEW WOMEN TO DIE. WHAT IF ONE OF THOSE WOMEN WERE YOUR MOTHER, SISTER, AUNT, CHILD, ME? THINK BEFORE YOU SPEAK, ASK ME FOR MY SHOES BEFORE YOU SIGN THIS STUPID RECOMMENDATION!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  • cellobrate
    cellobrate Member Posts: 1
    edited November 2009
    I feel so sad for all the women who will be harmed by this information.  I was diagnosed at age 49 (had just turned 49) the first time and again a year and a half later; both times as the result of a "suspicious" mammogram!!  There was no family history, no detectable lump.  My BC was Estrogen receptor negative, Her2 +.   While I understand the statistics behind the new guidelines, I believe that even one life makes the early testing "worth" it!  Which of the women on this list would be dispensible?  Not one...please!
  • Unknown
    edited November 2009

    No family history age 47. Every women should march on Washington maybe then we would be heard!

  • annabanana61
    annabanana61 Member Posts: 1
    edited November 2009

    Calcifications found at age 41.  Monitored every 4-6 months for 4 years.  Diagnosed with cancer at age 45 (w/ no high-risk family history of breast cancer).  Lumpectomy soon after. Despite the frequent monitoring, the cancer had already spread to the lymph nodes (much to the surprise of my surgeon); had pre-radiation images taken, and more cancer was found (again, much to the surprise of my doctors); ultimately had a double mastectomy as a reactive and proactive measure.  All of the above occurred before my 46th birthday.  Following the newly proposed guidelines, I shudder to think where I would be at 50 (I'm 48).

  • Mimirod
    Mimirod Member Posts: 1
    edited November 2009

    Mimi Rodriguez, diagnosed July 29, 2009 at age 44 with IDC.  Previous mammogram in December 2007 showed no cancer.  Found dimpling of the skin on Self Examination.  Hve good prognosis because of early detection.

  • jillisucat
    jillisucat Member Posts: 104
    edited November 2009

    Dx at 45 with DCIS by routine mammogram.

  • catwils63
    catwils63 Member Posts: 1
    edited November 2009

    I have triple negative cancer. I was diagnoised 2 years ago at 46.

    I can't believe that they are trying to pass these new guide lines.

  • hallsnj5
    hallsnj5 Member Posts: 6
    edited November 2009

    Dx during annual mammo screening at 47. Microcalcifications turned out to be DCIS with microinvasion. During Bi-MX LCIS was found in both breast. I would never had known I had cancer had it not been for my annual mammogram!

  • FACECRAFTER
    FACECRAFTER Member Posts: 433
    edited November 2009

    For all my friends who would have had advanced stage cancers to treat if they didn't have mammograms and didn't do BSE.  We cannot sacrifice even one life, if the life is yours, or your mother's or your daughters, or anyone!!  We should get more screening not less!!  
    Judy Newdom

  • Curlylocks
    Curlylocks Member Posts: 61
    edited November 2009

    Diagnosed at age 41, no family history.  I shudder to think of what would have happened if mamograms were not available because I was "too young" to have breast cancer.  This bill is outrageous and will give younger women a sense of false security because they now WILL THINK THEY ARE TOO YOUNG TO GET BC, ARE TOLD THAT BSE'S ARE USELESS, THEY DONT NEED A MAMOGRAM UNTIL AGE 50 ---AS THE GUIDELINES HAVE BEEN CHANGED!!!

     Michele

  • IngridM
    IngridM Member Posts: 1
    edited November 2009

    Ingrid Mueller - Have had three calcification clusters biopsied in my 40s, all with B9 results. I am OK with the little bit of anxiety that I had to deal with. I am not OK with having a little bit of breast cancer. The new mammogram guidelines are irresponsible and wrong. My two friends who were diagnosed with breast cancer in their early 40s also had suspicious calcification clusters that were caught during their annual mammograms. One of them is in Heaven now.

  • Carol64
    Carol64 Member Posts: 1
    edited November 2009

    While I can understand that there might be concerns of false positives and over treatment, I believe that the previous guidelines helped many women discover their cancer early. Breast cancer awareness has increased and benefited a lot of women.  It makes no sense to go back on this progress.  

    I worry that with the new guidelines some women will wait too long.  My cancer was found in a routine annual mammogram and could not be felt by any of my doctors or myself.  Without the excellent expertise of the radiologist, my developed lobular cancer might not have been detected until too late. 

  • Navalex
    Navalex Member Posts: 3
    edited November 2009

    My opinion....the new 'guidelines' are actually a 'death sentence' for all women & men, young and old. There was no history of breast cancer in my family.  Mammograpy and Ultrasound procedures never detected DCIS because I was always told my breast tissue was too thick to see anything.  However, the mammogram did detect unusual shadows. The increased tenderness in my breast and the inability to see what the 'shadows' in the mammogram actually were, caused my physician to require a breast MRI for me. What we found was the DCIS, which they told me by the extent of the tumor, I probably had for at least the past 5-8 years. The size of the tumor was 1.8 centimeters and was close to my chest wall.  Now, in light of this, if I had skipped another year of mammogram or any other diagnostic procedure I KNOW AND MY PHYSICIANS KNEW that I would have progressed into stage 2 BC and would have had lymph node involvement - a case of BC worse than the stage I that I was diagnosed with 3 years ago.  As a result my treatment time with chemo was shorter and with less damage to my body.

    The new recommendations by the panel of 'experts' is an attempt to slowly manage health care costs (the Obama plan) without regard to preventing premature death of women and men diagnosed with breast cancer. Also, I can't help but feel that this is also an attempt, for those pushing the new 'Health Care Takeover', to free their conscience's of causing early pre-mature death of our population - legalized genocide.

  • MelodyG
    MelodyG Member Posts: 1
    edited November 2009

    I was 41 when I was diagnosed by a routine mammogram. My Maternal Grandmother and Aunt both had Breast Cancer. Although I am not sure of the type they had. Had they at that time been able to get Mammograms they may have had the same prognosis I do. Had I not found it when I did my prognosis for recovery would surely not be the same. EARLY DETECTION SAVES LIVES. With 1 in 6/7 women being diagnosed what are they trying to do play God and have more women die from this Diagnosis??? This is going backwards in the fight agains Breast Cancer.

  • deb102307
    deb102307 Member Posts: 120
    edited November 2009

    Diagnosis: 10/23/2007, IDC, 3cm, Stage IIb, Grade 3, 2/13 nodes, ER-/PR-, HER2-

     I can't believe that once again the medical community would fail in women's medicine.  If we were talking about an exam recommended for a man, this would never even surface.  The fact that Dr. Love and others that have been followed faithfully through all stages of their illness from diagnosis to survivorship, would abandon the recommendation for yearly mammogram,  is such a let down. 

    Even with the recommendations for monthly self exams, women just are not that faithful with them.  Mammogram is for those women.  Please do not take away one of the mechanisms that has helped contribute to higher survivorship rates.

  • teharring
    teharring Member Posts: 6
    edited November 2009

    Diagnosed at age 30, after I found a lump.  

    Theresa 

  • rubyj16
    rubyj16 Member Posts: 1
    edited November 2009

    I was originally diagnosed when I was 47 years old. At that time I was getting mammograms every year because of previous cysts. I am now 69 years old, have had a double masectomy because of a recurrence in 2007. The original diagnosis was in 1987. I say Thank God I started having mammograms when I was 43.

  • Mayay
    Mayay Member Posts: 1
    edited November 2009
    I'm 33yrs old, mother of 2.  Diagnosed w/Triple Negative something-something Stage 3 breast cancer which has now spread down to my pulmonary lymph nodes.  I'm just out raged on whoever is trying to make these decisions about our health care.  Seriously whoever these people are, they need to go thru what breast cancer patients have to go thru and to understand.. I so wish bad karma on them right now for being so stupid!!!!
  • Ohbother
    Ohbother Member Posts: 1
    edited November 2009

    Cydne Connor, age 40 at diagnosis following a routine FIRST baseline MAMMOGRAM... Already spread outside the breast at diagnosis / 3 positive nodes and vascular invasion....I shudder to think what would have happened had I not gone for this test... I was a ticking time bomb and had NO idea!

  • happy-I-am
    happy-I-am Member Posts: 2
    edited November 2009

    Dear Everybody,

    It's all in the mind, a great positive approach!

    But, breast cancer is a tough illness.Many people are panicking at the first sign or talking about it.

    You can only cure yourself before/during/after surgery........whatever you do, keep your mind positive. Support groups are great if you are in the right one, same for other Tx's, you have to have your annual checks and do your routine self-exams. Just make it part of your hygiene and taking care of yourself. Mammograms and if you have/had breast cancer Ultrasound's are imperative to survive. START at the age 40 to take care of yourself, get that MAMMOgram and COLLOnoscopy if you have to have one done. Let nobody fool you, especially yourself! You want to live; take care of yourself.

    Jacoba....11 year survivor, thanks....