Sign the Petition Against the new Mammography Guidelines
Comments
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A change in the guidelines would be a travesty. If the proposed new guidelines had been in place and I had followed them, I wouldn't be alive today.
Women have to stand up to this.
I saw the best breast cancer awareness t-shirt the other day. Its intent is for probably for women going through breast cancer, but it can apply to all of us coming together to oppose the new guidelines. It showed a pink ribbon and said:
"Fight Like a Girl".
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My cancer was discovered during a routine yearly mammo at age 54. The previous year everything was fine. The 2 cm mass was not palpable as are none of the other masses in my breasts. I have no family history of breast cancer. Had 2 years passed between mammograms, I would be dead or living with metastatic breast cancer, since my tumor was Her2+. The cost of the mammo is cheap compared to the cost of treating the cancer. I am here TODAY to say MY LIFE COUNTS! I will continue to fight for appropriate screening for myself and for others.
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Am I just an expense? I was diagnosed through routine annual mammogram. There was no lump. ever. Without the mammogram, I don't want to think about where I'd be.
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My Aunt was first diagnosed with breast cancer in the late 60s she was 32. When cancer was found in her other breast she had a radical mastectomy. She was told to go home and enjoy her preschoolers she wouldn't live to see them grow up. Her cancer had metastasized. Over the next 28 years she endured more surgeries, rounds of radiation and chemo.At 60 when she was again told she had developed another tumor she decided she had had enough. Her husband and sons stood by her decision as did most of the family. Her passing left a hole in our family and we began to drift apart. She is still missed daily years later.
Sign my name in 3in letters so like John Hancock's it can be easily read. This is one of the most foolish announcements I have ever heard from the medical community. Whomever dreamed this up should be drug out in the street and shot like the mad dog that they are.
Susan Giroso Ellendale DE
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I was 39 years old when I was diagnosed with invasive ductal carcinoma. I found the lump myself and the surgeon told me he was 99.999 pecent sure it was not cancer. After surgery to remove the lump because I wanted to get it out of there ,he was shocked. The notes say that he was suprised . I was not. I got to know my body by doing monthly self breast exams. I was told by many people to not worry I was too young .I had no family history worked out at least 5 days a week and ran 3 miles 2 to 3 times per week.That did not stop it from happining. I would not be here today if not for self breast exams and knowing my own body.
I am mad mad mad that people still think age and family history is the key no it is not, Mammograms ultrasounds clinical breast exams and monthly self breast exams are just as much the key as the other things. I am 44 now and alive to see my family grow up and hope to see my grandchildren some day due to early detection. Invasive ductal carcinoma ER/PR+HR- oncotype 18 Had mastectomy hysterectomy and take famara.
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Hi, was diagnosed with ER/PR+HER2+3 positive breast cancer. I am now 30 was diagnosed 2 months ago. Went for a lumpsectomy and undergoing 1 year's treatment of Chemo then radiation. I have two small boys, what now.. does the goverment have an awnser for children who will have no mom with their stupid law. No family history of breast cancer. The goverment is stupid that want to enforce this rule. Have any of their family members been diagnosed? This looks like that we are going to the old days where women have no say.
I am disgusted....
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Daughter was first DX with bc at age 31 with no family history, i was Dx at 53 by digital mamo, i dont want to worry about when my grandchildren are of age and cant get a mamo till there 50- BC is higher than it ever has been and now they want to change the guidelines they are screwing with our lives, how dare them screw with our lives as if we dont matter
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I am also outraged about this - everyone I know, with only one exception (my elderly aunt) has been in their forties at diagnosis, including my youngest sister. I am concerned the insurance industry will jump on this bandwagon, and not authorize or fund mammograms.....this will save money?
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Ronda Sue Sullivan, Diagnosis: 8/1/2007, IDC, 1(+/-) cm, ER+PR+, HER2+, No nodes, diagnosed at 62. No family history known; I chose lumpectomy; I had 4 chemo treatments and Radition twice a day for 1 week. I Have to Say..I had no pain during my whole treatments. In addition no skin change from Radiation (not even pink). Docs were surprised. The worse part for me was the Nausea and being tired. I had to take Ferritin treatments for 4 weeks for 3 times a week. . I hated the smell of A/C chemo treatments. But NO pain. I started out being anemic and it got worse with treatments. But I was very blessed. God is Great!! I cannot believe they are not even wanting the women to check their own breasts at home!! Are they Crazy?? And my daughter is turning 40!!
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I don't understand the reasoning behind the changes. I know of 4 women that have had breast cancer under the age of 40 and one under the age of 30! There will not be any good come out of this. I'm going to keep doing self breast exams and getting anual mamograms. My aunt had breast cancer so it runs in my family. I will not let anyone keep me from getting my mamograms. Everyone needs to speak up about this!
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I was diagnosed at age 45 with no family history at all. A routine mammagram is the reason it was caught early (stage 1 and no external evidence of its presence).0
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A routine mamogram found my breast cancer. I had just turned 50. My doctor wanted me tested for the BRCA gene, but the insurance company wouldn't pay and I could not afford $4000 fo rthe test. I went through surgery and radiation. Six months later my younger sister was diagnoised with stage 3 breast cancer. Her insurance company did pay for the BRCA testing and it was confirmed that she had the BRCA 1 gene. Because we now knew what gene we were looking at, our youngest sister, myself and our brother were able to have the test done at a reduced cost($400). We are all positive. All three of us girls have had double mastectomies since last January. Had I been able to have the test early it would have saved me so many surgeries. I have had nothing but trouble with the irradiated skin. Mamograms are so important.
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Tracy B
Dx 41 - DCIS & IDC - Stage 1 Grade 3 - ER+/EP- HER2-. Rt Mastectomy & Chemo.
Found lump myself - No family history - BRAC 1&2 neg. Thankful everyday that I found
the lump and that my doctors acted quickly.
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Diagnosed at 45, no family history.
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I am a breast cancer survivor. At the time of my diagnostic, my age was 42 and according to my doctors, I already had cancer for about 5 years until discovered. That means that since I was very healthy, symptoms could not be detected unless a mammography was performed. I encourage that the age should not be an issue in this test. If a person fear that might have cancer, should be able to test no matter others opinion.
Apparently the government officials who are trying to discourage women to a healthier life, are male.... by discriminating against women with a right to decide.
What would happen if protate cancer test should be change to 75 years... instead of recommended 40 years. I guess that this will cause a big issue to men and his machismo...
I strongly disagree to recommend to change mammogram guidelines. My voice go in representation of the hispanic women that suffer high percentage discovers on breast cancer.
Before changing these guidelines, stop and think how many women are in your family including mothers, sisters and wifes who migh have undetected cancer and can die due to a late diagnostics.
Thank you. I hope my english can express my vote against all changes.
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In honor of my mother and my friends!
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Cecilia Lashley diagnosed at age 57 by routine mammogram, cancer non-palpable, not visible on ultrasound and bared there on mammogram was almost 3 cm. Lobular cancer beginning to spread.
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From Chris, This is the most ridiculous piece of legislation, bald-faced propaganda to suit the insurance companies, to the detriment of women. How have we come so far to take this giant leap backward????? Hopefully, this is so ridiculous it will not be an issue for much longer.
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Kim Bookholt - Age 40 - Stage 3
Also in memory of the following:
Michelle Coleman - D/X age 37 - Died Age 41
Deborah Parsons - DX age 41 Died Age 45 (I went to her funeral yesterday...)
Rowena Gillam - D/X age 40 Died Age 47
Minnie Osmond - D/X Age 32 Died Age 36
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Your petition should be in favor of better screening tools for young women, since the evidence clearly shows that mammograms are ineffective.
How about a petition asking research organizations to focus on PREVENTION and CURE?
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Kathy Mindrum, diagnosed with IDC at age 48. Very first mammogram.
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Let me tell you my story and you tell me if you think tha the new Mammography Guidelines are appropriate! I have been having yearly mammograms since I was 35 due to fibrocystic breast disease. The doctors have been watching one particular spot for the past 10 years. My '08 I went in for my regular mammogram and was told they found something "suspicious" and they wanted to do spot compressions and ultrasound. This was nothing new, happened every time after I had my mammogram. This time, however, they requested that I schedule a biopsy of the spot that they had been watching due to some unusual findings. After the biopsy, I was diagnosed with Ductal Carcinoma In Situ from a spot that had not even developed into a lump! After a MRI revealed that there were actually two spots that were identical, one at the top of my right breast and one at the bottem of my right breast, I was told that I was not a candidate for a lumpectomy. Given that my breasts were rather large, I opted to have a bilateral mastectomy rather than trying to make my left breast look like my newly created right breast. My surgery was in October 2008. After the surgery, the pathology of my left breast revealed pre-cancerous cells. Long story short-----if I had not had my mammograms yearly, the cancer would have been there for at least a year before being detected. The cancer might possibly have spread outside my breast ducts, don't know that for sure, but definitely a possibility. As it was, I was able to have the surgery done with no follow up radiation, chemo or hormone therapy due to early detection! Now argue with that!!!!!
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Early detection IS the key.
Summer Garner
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I support the Petition.
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I, Sara Grosky, support this petition. I am lucky to be cancer free but my mother was diagnosed four years ago. I believe these new regulations may have been created as a way for the new "govt sponsored" heathcare to save $$. BAD!!!!
Mammograms, however do not work alone (my mother found her own lumps). One exam every 1-2 years from age 40 onward is not a bad thing. Women should also be educated on the risks and be encourages to do their own self-examinations! Early detection is essential!
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I was diagnosed at 55. I am now 60
. I discovered the lump through breast self exam. Please continue with mammographies and self breast exam. Woman are not afraid of false positives that result in further biopsies and testing. We are afraid of missed cancers because of infrequent testing and self breast exam. Without mammographies and self breast exam what are we supposed to do? There isn't an alternative.0 -
I strongly support the current practice for mammography screening. At age 41, a mammogram showed a calcification. A biopsy indicated an early stage breast cancer. I chose to have surgery as my "cure". Early detection is still the key.
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Lorri Kiser, diagnosed age 49.
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After my diagnosis at age 59, I have met many gals under the age of 50 who have been diagnosed with breast cancer. I firmly support this petition. Early detection is the key and EVERY life is important.
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My breast cancer was detected by a mammogram in 2000. I was age 51 and had not started menopause. I had no other symtoms. I had gone for yearly mammograms. It was biopsied and found to be metastic. I went through chemotherapy and radiation from Sept 2000 - April 2001.
I still see an oncologist every 6 months. I just went for my yearly mammogram and pray each time.
If I had mammograms every other year, how much worse would my diagnosis and prognosis have been?
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