Sign the Petition Against the new Mammography Guidelines

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  • KimberSue
    KimberSue Member Posts: 1
    edited November 2009

    Kimberly S. Brown, completely against the new Mammograpy guidelines....family member diagnosed at age 28 while breast feeding her first child.....Triple negative.....

    Mom diagnosed age 73...chemo and rads.....a survivor....if she had been 75, nothing would have been found....do we have no value as human beings after age 75....I feel the new guidelines are saying that if you are older, you can just die...

    My diagnosis....age 52.....had avoided mammo's....knew there was a lump that should have been diagnosed back in my 40's......bilateral mastectomy 2007, ER/PR+, Her2-, neg nodes...no chemo, no rads....hormone therapy for 10 yrs.....

  • bchrissy
    bchrissy Member Posts: 1
    edited November 2009
    Diagnosed with DCIS at age 43. Partial mastectomy.  Mammogram and my doctor saved my life!
  • MonicaSmith
    MonicaSmith Member Posts: 1
    edited November 2009

    Diagnosed as result of mammogram in 1997, sharp gynecologist detected a lump in 2006 in same breast, confirmed with mammogram.  DCIS.  Lumpectomy and radiation first time, second  time a mastectomy and Arimidex.   Radiation from mammogram does not cause breast cancer.  It is there in your genes.  I am the only female in my family to have it.  Mine is estrogen positive The nasties were fed by my estrogen.  

    Thank you to all the gynecologists who insist we have a mammogram.  Never forget Susan Love was one of the pioneers in the field of breast cancer treatment and detection.  AND never forget George and Barbara Bush never raised a finger to help, it was that army of women so don't be too eager to condemn her.  Read what she has to say.  She was not on the panel.  Most panels of this sort consist of PhD.s who no-one knows what to do with, who analyse statistics, the results dependent on the test  and data used. 

  • Dawn1205
    Dawn1205 Member Posts: 1
    edited November 2009

    I strongly believe this new recommendation is absolutely the wrong direction for health care.  Since when does health care not include routine screening when in fact there is a known number of breast cancer cases diagnosed well before age 50, and in particular the 40-50 age group.  I feel strongly especially since I was diagnosed at age 47 based initally on mammography.  Six months earlier the mammogram appeared questionable, and the subsequent testing 6 mos later confirmed more locally advanced disease than expected.  I am grateful that my insurance provided coverage for mammograms before age 50.

  • Rose47
    Rose47 Member Posts: 33
    edited November 2009

    Rose - diagnosed at 47 - early detection saved my life

  • susanb2
    susanb2 Member Posts: 5
    edited November 2009

    Susan Blume diagnosed at age 55 by a routine mammogram. As a RN for the last 33 years, I have met many women who were diagnosed in their 30s and 40s.

  • onenewboob
    onenewboob Member Posts: 1
    edited November 2009

    I am very blessed of God.  I am 57 and diagnosed 9/24/09 with Stage 2a DCIS 1/6 nodes Grade1 ER/PR+ HER2- .  I chose a mastectomy.  Even though I am "older"  I began having regular mammograms at 35 years of age due to history in my family.  It took two years of every-6-months having a mammogram, sonogram and finally a biopsy to determine that what was developing was indeed cancer. NEVER COULD FEEL THE TUMOR!  What if the developing tumor was totally hidden from the mammogram in year 1 and I had to WAIT 2 years to have another????  I would be a candidate for Mr. Obama's "counselors for end of life".  Who are these cold-hearted, N.O.W., estrogen-challenged, battle-axes who would vote for or even come out in support of such a "recommendation" as this?? Have you read it?  They actually use the words "public financial interest out weighs potential loss of life"!!! OH MY GOD!!!!  Only misogynistic FOOLS would condone such a thing!  This makes me very, very, very, VERY angry for my daughter, daughter-in-law, and TWO granddaughters!!!!!

  • 2z54
    2z54 Member Posts: 29
    edited November 2009

    Diagnosed at 54, with strong family history on father's side; my grandmother and 2 aunts died of bc.  Genetic testing came back negative.  I still want my neice to start early mammagrams, in her 30s even!  These new guidelines are barbaric, and ridiculous!

    Sue

  • jlefever
    jlefever Member Posts: 1
    edited November 2009

    Julie - This makes me truly angry!   I was originally diagonosed in September 1995 at the age of 42 with no family history of breast cancer.  Even after that diagnosis, insurance questioned the yearly mammograms that did not fit in their guidelines.  These guideline changes send the wrong message exclude an important group of women.

  • magshamilton
    magshamilton Member Posts: 1
    edited November 2009

    In memory of my beloved sister, Heather Hamilton diagnosed at age 45. Rather than focus on changing guidelines to reflect the mindset that somehow less is more, and that somehow the risks outweigh the benefits (not one woman should be sacrificed)! the medical community should redouble their efforts to identify and publicize risks and develop a cure. What happened to the war on cancer? As long as so many women are affected in their forties and younger, we should not change the guidelines!

  • happy-I-am
    happy-I-am Member Posts: 2
    edited November 2009

    Hi Ruby,

    You are just great! Keep it up and yes, thanks for the Mammo's.

    Everybody needs the Mammograms...... 

    Jacoba (Happy-I-am)

  • rumoret
    rumoret Member Posts: 45
    edited November 2009

    Diagnosed by monthly self breast exam. Found lump and had surgery on April 20th, 2006 which was my 49th Birthday (Happy Birthday to ME!). My mother was the first to have breast cancer in her family at age 69 years old, found lump by monthly self breast exam....she is triple negative. 

    I had missed 3 years since having my last Mamo and thank heavens a voice told me as I was laying back in my recliner that this was a great position to give myself a quick breast exam -- so I did. As my hand came across the upper part of my left breast I felt the lump -- knowing immediately that it was Breast Cancer -- even though everyone in my family thought it wasn't. Thank God I listened to my inner voice and followed my heart and got a doctor appointment.

    I was dx at stage IIa with no lymph nodes involved. My life will never be the same -- but at least I don't have a GOVERNMENTAL TASK FORCE to blame for delaying my treatments!

    I am also 100% against the new Mammography Guidelines! 

    Terry Rumore 

  • aries44
    aries44 Member Posts: 1
    edited November 2009

    In my early 20's I had a lump that a few doctors told me not to worry about, it was only "fatty tissue". I was a size 32A & weighed about 100 Lbs...  Then another Dr told me to have it removed & biopsied which I did.  The tumor was the size of a grapefruit when taken out & I was told I was a very lucky girl.  In my 40's a mammo found some calicifications & again they biopsied with needle placement...not fun...but again benign. I stopped having mammos after the needle placement.  In Oct 2007 I noticed a pinkish rash on my breast & looked at it for 3 weeks b/4 going on the internet & googling "red breast".  I had myself dead & buried after reading about "Inflammatory Breast Cancer", which I knew I had.  It took me til Jan 24, 2008 to get properly diagnosed & one look from the breast surgeon he knew it was IBC. I also had DCIS & IDC. I went thru 4 rounds of Adraiamycn & Cytoxin (AC) & 4 of Taxotere.  I opted for a double mastectomy down to chest wall,with no reconstruction,  followed by 28 radiations.  Today I am NED. 

    All ...from age 20, 40 & 60 were in the 9 0'clock position.  Coincidence?  Don't think so.  There was no history of breast cancer in the family, but I have 2 daughters in their 30's who need to be  able to get a mammo & I have 7 grandkids, 4 girls & 3 boys who will need to be ale to get a mammo b/4 50.  My mom had 11 granddaughters!

  • msmpatty
    msmpatty Member Posts: 35
    edited November 2009

    Patricia Westbrook, DX at 56, found via mammogram

  • tantepat52
    tantepat52 Member Posts: 1
    edited November 2009

    multiple biopsies due to mammography's early detection; both me and my daughter. all benign, thank God! alhumdulilah

  • libby
    libby Member Posts: 3
    edited November 2009

    I was diagnosed in early 50s via mammogram, no mass found by anyone.  As an active member of this board, I know lots of women diagnosed in their 40s and younger by mammogram or self-exam.  Not only do we need continued mammogram screening in the 40s but need a better screening tool for cancers that don't show up on mammograms - by the time those can be felt, they are no longer small.

  • kar22
    kar22 Member Posts: 1
    edited November 2009

    I am totally AGAINST these new guidelines!

    Since when does waiting until someone is at stage 4 make any sense, when we have the technology to actually cure cancer if caught early, and prevent needless treatment and suffering?

    I was diagnosed at age 52.  If not for my ANNUAL routine mammogram, my tumor would not have been found early.  It could not be felt by me or my doctors because of the proximity to the chest wall.  Because of this early diagnosis, I only needed a lumpectomy, radiation and Arimidex.  I was spared chemotherapy, other treatment, and possibly my life.

    DX age 52, 1/24/2005, IDC, <1cm, stage 1, grade 2, Her2+, ER+/PR+, 0/2 nodes, oncotype score 12.

  • knowledgeforpower
    knowledgeforpower Member Posts: 9
    edited November 2009

    Age 58 at diagnosis.  If I had had a mammogram every two years the tumor would have been much larger and likely spread. I needed chemo in addition to surgery and radiation. My tumor was small, it couldn't be felt, but aggessive. Please don't change the screening guideline.

    Cathryn Chiesa

  • pbandj
    pbandj Member Posts: 6
    edited January 2010

    Paula age 32 and already stage IV at diagnosis. I found my lump.  Have 2 aunts with breast cancer.  Both diagnosed in their 60's.  As far as I know that does not constitiute "high risk".  Yet, here I am. No way I would made it to 50.  

  • chrisvictoria711
    chrisvictoria711 Member Posts: 1
    edited November 2009

    Hearing the news about this insane guidelines, I am totally against it. I always had a mammogram since 1988....I had my first breast lump, had a lumpectomy,..it was benign. Mammogram saved my life many times. During the course of the years, I have had many biopsies, all benign, as well as mammograms and ultrasounds. In 2000 I wasn't feeling well, complete fatigue even though I went to my personal physician for B12 shots. It affected my work and then I went to my GYN and she discovered I had a lump in my breast. She suggested a mammogram again, sometimes they are good as the radiologist that reads it but found that I had a big problem. I was sent to 2 oncologists who diagnosed breast cancer. I had to go for chemo before surgery and in 2002 I had a masectomy...removal of my right breast and lymph nodes which also had cancer in them. No cancer history at all in my family. It was frightening. During the course of diagnosis and treatment, I met many women, young women, who were also diagnosed with this terrible disease. It seems to me that more young women are diagnosed. At work, one of our professional staff, a teacher with 4 young children, in her 30's, had both breasts removed. I started a breast cancer support group on campus as well as other cancers. There were so many who suffered. Through this, I met a women who had been diagnosed with BC, maxed out her health insurance over a million dollars, had to go on disability but fought for 15 years against this disease. She passed away several months ago. She was an inspiration to all of us. Mammograms are very important to all women, and don't forget MEN, who have this disease. One of the sororities on campus started a breast cancer banquet, and we invited many breast cancer survivors who told their stories of their battles with BC. Men even attented this function and were surprised to say the least to learn they can have BC. We must write to our government to stop this recommendation to change the mammogram guidelines.

     In all, I have survived to see my grandchildren grow up, go to college, get married and even became a great granddaughter. I am happy that I am able to experience these great gifts.

    POWER to all women....

  • pickles26
    pickles26 Member Posts: 1
    edited November 2009

    Pamela N - dx at 59. Negative mammogram. Self-breast exam has awarded me many more years of life.

    I wonder what the high-and-mighty Task Force would say if we told them we "recommend" that 3% of them be forced to die every year, just like they've done to us.

  • MysteryWriter
    MysteryWriter Member Posts: 1
    edited November 2009

    Margaret Fenton

    I was diagnosed at age 34 by self-breast exam.  NO history of breast cancer in my family so it was a total surprise.  I would also like to sign in memory of Chris Reves, my good friend, who died of metestatic breast cancer on August 10, 2001 at age 30.

     Diagnosis 7/1/2004, Mucinous Carcinoma, 3cm, Stage II, 0 nodes, ER+

  • peasmommy
    peasmommy Member Posts: 1
    edited November 2009

    Jennifer H - dx age 31, no family history

  • vdelchiaro
    vdelchiaro Member Posts: 1
    edited November 2009

    V Del Chiaro, Age 40 diagnosed at 39, ductal carcinoma in situ, only detected through mammography. I had surgery and now I don´t have cancer, thanks to early mammography, wonderful  physicians and positive mind.

  • Made
    Made Member Posts: 9
    edited November 2009

    Diagnosed at 46 thanks to Mammogram.  It gives me chills to think that the cancer would still be growing in me if the new guidelines had been in place.

  • JulieC
    JulieC Member Posts: 11
    edited November 2009

    Julie Cutright - IDC diagnosed at 45 by mammogram - lump not palpable.

  • Maldo10
    Maldo10 Member Posts: 1
    edited November 2009

    Who are these people and what is their problem?!!!  Are they intentionally trying to kill us off?

    I was diagnosed in 2007....I was 48 years old.....had i already been 50 I might not be able to respond to this ludicrous recommendation these idiots are trying to push.  Obviously "they" have never lost a loved one; nor have had to watch a loved one suffer through chemo and radiation.

    And now "they" want to also change the guidelines for PAP exams!!!  ENOUGH IS ENOUGH.

    If we don't stand together on these issues, men and women, we will all certainly pay the price!

    E. Prokay - 2yr breast cancer survivor - no family hx!

  • LauraZ
    LauraZ Member Posts: 3
    edited November 2009

    Laura Adkins 

    Age 43 at diagnosis.  No family History of BC. 

  • mytwogirls
    mytwogirls Member Posts: 3
    edited November 2009

    Jennifer Richards    Mom to Maddie and Katie , Wife to Jim.  Kiss

    DX IDC on 9/2009  at 39 YO.  Detected by first mammogram - digital.   Refused to watch a cluster of calcifications for 6 mos.  Active and healthy.

    THANK YOU DANA FARBER for saving my life. 

    Incidentally, by REFUSING to IGNORE CANCER, we saved our insurance company tons of money.   I had a lumpectomy, started radiation, and will take tamoxifen.

  • mytwogirls
    mytwogirls Member Posts: 3
    edited November 2009

    Nice post.  ditto.