Sign the Petition Against the new Mammography Guidelines
Comments
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Too many friends in early 40's and under diagnosed and fighting breast cancer.
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Monica Caruso
Diagnosed stage 3c breast cancer at age 34, no family history
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My sister turned 50 in July 09, she was undergoing chemotherapy for stage 3 breast cancer diagnosed in April. She is now just starting her radiation and hopes to be finished in Jan. We have no family history and even with the mammogram it was missed. She was getting a mammogram every 6 months, plus an ultra-sound in-between. WE NEED TO INSIST ON A BIOPSY IF THINGS DON"T SEEM RIGHT. It was read as scar tissue. She never had anything done whcih would cause scar tissue in her breast.
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Had a baseline mamo at age 40. Found a lump 10 month after my mamo at age 58. Did not show up on any previous mamos and it was 1.3 cm. Waiting and not needing to do self exams is insane!
Evelyn Grasse
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Age 44, diagnosed last year. I had suspicious lumps but this was common for me. The lumps turned out to be completely normal but a mammogram found calcium deposits. A biopsy found cancer. Thank God my doctor sent me for the mammogram because I am one who wouldn't have gone on my own. Turns out, I have a family history and didn't even know it.
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Janine Diagnosed stage 2a at age 31. No family history
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Kelly Middleton - diagnosed at age 46. No family history.
Everyone deserves the best preventative and medical care available. Cost/benefit analysis have no place in my health care decisions - especially considering the exorbitant cost of health insurance!
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Age 48 DX Stage II IDC 4cm ER/PR- HER2+-chemo,rad NED-DX after mamm-they must not change this guideline.
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Tami Meyer - dx at age 48 (found at yearly mammo). mass was too deep to be felt.
Sister - diagnosed at age 42 and died age 47.
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Lori from Newport Beach, CA. Diagnosed at age 51 with three tumors, one of which was 5.8 cm (stage III, grade 2) and had likely been growing for years. The other two were 1.6 and 1.0 cm. Despite multicentric locations, my tumors were difficult to detect on mammograms and ultrasound due to extremenly dense breast tissue. It wasn't until after biopsy of the large mass that an MRI showed the two smaller ones, which were not seen at all on mammogram or ultrasound. We need better imaging for younger women and those with dense breast tissue.
I also find it offensive that the statistics used were for mortality rates. If the new guidelines are imposed, how many women will not find their cancer until it is more advanced and need to be subjected to much more serious and debilitating treatment?
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Kelly - dx at age 44 stage 1. Detected by a mamogram tumor was deep could not be felt in self breast check. Thankful for mamogram detection, if I had to wait until I could feel it the consequences would have been a lot worse. The new guidlines are outrageous!
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I'm Ineia. I was diagnosed with stage IV breast cancer last March at the young age of 38. I have no family history, I have never been on hormonal therapy.I was waiting until I turned 40 to get my first mammomram. During a self-exam I found the lump that lead to my diagnosis. Please do not tell women to stop checking for lumps and delaying their mammograms another decade... 40 was too late for me, what would 50 do????
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I am 37 was no family history of BC and went for a reg mammo which saved my life!
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Carol Wilson - diagnosed at 41 - stage 1 - no family history - found on routine annual mammogram. I have an excellent prognosis because of that routine mammogram and doctors that let me follow my instinct!
My younger sister has very dense, fibrocystic breasts. Because of my history, her doctor watches her very closely and she has had several biopsies for suspicious spots. Yes, the waiting for results are stressful but I can guarantee that she would rather deal with the stress and find the cancer early than wait and find it when it is too late!! Let it be our choice!!
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Lorra Greene - diagnosed at 51 - no family history - found on routine annual mammogram.
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Melissa Lang. I'm 29 and found a suspicious lump. I needed a mammogram and breast ultrasound. The mass is a BIRADS category 4. Could be benign, but it might not be. THANKFULLY I was able to have a mammogram and catch it early if it turns out to be malignant. Did I mention I'm only 29? Yeah, DON'T change the guidelines!!!
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Chris Amos - diagnosed this year. I'm 48 years old with no risk factors, but i have been getting yearly routine mammograms because that's what was recommended. Found the cancer - not invasive yet, thank god, but I still needed surgery and radiation therapy. It could have been much worse in two years. Don't change the guidelines. It's our lives they are messing with.
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Connie Cassidy-Samson: In Oct. 2003 after a shower, discovered had hard lump left breast. I was 39 yrs. old, and my mammogram of less than yr. b4 had not shown anything. By being aggressive, got mammogram, ultrasound, core biopsy, which showed had 1.5cm tumor, grade 3. Four weeks later had breast MRI, tumor had grown to 6.9 cm - Invasive Ductal Carcimo. Week later had left breast removed.
After going thru 6 mos of chemo (AC/TAXOTERE trial), had two months before starting radiation when discovered BCO chat - a life-safing coping room.
My doctor had not found my lump, the mammogram earlier had not found it, and if I had not found it, would probably not be here at the rate it was growing. Eventually had other breast removed after being dx with: IDC, STAGE 2B, N2, M0, ER/PR-, HER2-. Had reconstructive surgery that was horribly complicated, six months of surgeries, six operations, 3 "normal" staph and 3 HA-MRSA staph infections, finally had tissue expanders removed.
To suggest that women NOT get screened before age 50 is irresponsible to the highest degree. While in BCO chat, have met FAR too many woman who have BC under the age of 30, much less 40, and some under 20! This message MUST BE STOPPED, as I feel it will provide the "medical community" with yet more ways to make more money for themselves at the risk of thousands of women per year in the U.S. alone. I'm shocked that Dr. Love would agree to this, as her book was one of my BC "bibles."
Please lower the age of mammograms not just back to 40 yrs. old, but YOUNGER - do the research, come to the chat rooms, and see how many YOUNG WOMEN are getting BC and either hopefully surviving... or sadly not.
Thank you for hearing our petition.
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Michele Sasso (age 46)-Bilateral MX
Can't imagine if I couldn't have mammo until 50. How far would cancer spread by then?
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I was diagnosed with breast cancer in April of 2009. I have had my yearly mammograms faithfully each year and if not for this I would be walking around with breast cancer, but in the most severe stages. So please rethink your decision about this change. I am a 67 year old woman; my mother, who was 88 when she died of breast cancer complications also had her routine mammograms, but had skipped a year, she found a lump in her breast and by that time it was very advanced. I feel if you change the ages for mammograms, it is like so many more women will be in the last stages of their cancers. I also ask that you lower the age limit for mammograms; my daughter's best friend was only 28 when she died of breast cancer; her family physician kept telling her she was too young to have breast cancer; she is now deceased and I think if only her doctor would have listened to her.
Thank you for hearing our petition.
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Ann C-52(found on mammogram) Although I was 52, had it not been for my mammogram I would have never had any idea something was wrong. Please don't change the age limit. Someones life is not worth the few dollars the insurance company will save.
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Ann Coffey
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I am 34 recently diagnosed with mammo and MRI.
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Rebecca M. Age 22. Still in the waiting process. If it turns out I don't have cancer and have had an "unnececessay biopsy" it will still have been worth it.
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Age 56 at diagnosis. Daughter (29 years old) dx 2 weeks later. Know of several women less than 35 with breast cancer---must they die due to new guidelines????
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Dx at age 39 - no family history.
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Antoinette Coe
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Diagnosed with DCIS following a routine annual mammo at age 50. No need for chemo or radiation because it was caught so early. My mother had it at age 40, and her mother had it at age 67. Please don't allow insurance companies to cheat us and allow us to slip throught the cracks.
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My first breast cancer was found at age 44 was stage 4, very fast growing. If I had been told to wait til 50 then, I would not be alive today. I'm 53 now and just had another diagnosis of breast cancer (very small, no chemo nor radiation). Had breast removed and implant. Previous breast was a tram flap. Anyway, after my first diagnosis my doctors watched me very closely and this is why the second breast cancer diagnosis was found early. I have a 20 year old daughter and there is no way she's going to wait til she's 50 for first mammo as my sister also had a diagnosis in 2001.
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No family history. Clean baseline mammogram at 39 and again at 40 - lump felt in breast 5 months later - Stage 2 invasive ductile carcinoma. 8 rounds of chemo, lumpectomy and 6.5 weeks of radiation. What was that about not needing them until your 50 with no history of breast cancer in your family?!?!? Leave it alone, government. You can't run the Post Office successfully. You can't run Social Security successfully. What makes you think you can dictate health care successfully? Pulease.
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