Sign the Petition Against the new Mammography Guidelines

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Comments

  • shadow2356
    shadow2356 Member Posts: 93
    edited November 2009

    MaryEllen Humphrey. Diagnosed age 44. BRCA negative.

  • st27
    st27 Member Posts: 1
    edited November 2009

    ST, age 43 at diagnosis. Found tumor through self-exam, diagnosed by needle biopsy. The protocol (at least here in Boston, with my insurance) seems to be that the mammogram is the gatekeeper for breast ultrasounds. As long as that is the case, mammogram screening is essential.

    Was I just supposed to let the tumor grow for another 7 years until I was eligible for mammogram screening? What stage would it have been by then?

  • MarieF
    MarieF Member Posts: 1
    edited November 2009

    Marie Fussman diagnosed 2001. Family history.

  • ACarroll
    ACarroll Member Posts: 1
    edited November 2009

    Alexis Carroll

  • lindabob7
    lindabob7 Member Posts: 1
    edited November 2009

    Linda Tucker diagnosed December 2005. Stage 3B - Triple Negative  8 cancerous lymph nodes

  • SANDER2
    SANDER2 Member Posts: 1
    edited November 2009

    I was diagnosed when I was 35.  Mammogram did not find the tumor; self breat-examination was the key along with needle biopsy. What a shame to see the age guidelines changed!  I do not agree with this decision in the slightest!

  • bejuce
    bejuce Member Posts: 6
    edited December 2009

    Marcia Chang, diagnosed on February 2009 at age 38 with a HER-2+, 10x12 cm tumor (on MRI) and positive lymph nodes.  Went to OB in March 2008, who noted my right breast was "engorged" in the upper outer quadrant due to breastfeeding.  Found swollen lymph node in July 2008 and was told by doctors that I had nothing to worry about.  Was only given an ultrasound of the lymph node (and not of the breast) then. Doctors told me I was too young and fresh from breastfeeding my 3rd to get a mammogram.  Got another check-up in October 2008, and still no mammogram.  Doctors waited until January 2009 to offer me one, by which time I was stage IIIC and needed neo-adjuvant chemo followed by a bilateral mastectomy and radiation.  Can't believe what would happen if I had not been persistent.  And can't possibly imagine what will happen to young women out there with these new guidelines.

  • carollynn79
    carollynn79 Member Posts: 331
    edited December 2009

    I was diagnosed at age 49 thru a mammogram, a co-workers wife at age 32 diagnosed thru self exam age 32.  Cannot agree with the new reccomendations.

  • l82jem
    l82jem Member Posts: 1
    edited December 2009

    A baseline mammogram at age 36 saved my life (and made my treatment less expensive). Please don't take away this life-saving screening test from other young women.

    - Janice 

  • Sable
    Sable Member Posts: 5
    edited December 2009

    Jennie Brown~ dx. age 37 ~ NO family history

  • RebeccaAnne74
    RebeccaAnne74 Member Posts: 1
    edited December 2009

    I was diagnosed w/Stage IV right after I turned 33....the new guidelines are completely absurd!!!

  • donnamariem
    donnamariem Member Posts: 6
    edited December 2009

    Diagnosed at 53 through routine mammogram.  Tumor was unpalpable and I needed ultrasound guided biopsy.  I have a third cousin aged 47 recently diagnosed through routine mammogram with triple negative breast cancer stage three.  I totally disagree with these new guidelines!!!!

  • debbashu
    debbashu Member Posts: 1
    edited December 2009

    please consider this my signature - my biological mom had both her breasts removed in her early 30's - early detection is essential...

  • ngcm05
    ngcm05 Member Posts: 12
    edited December 2009

    Gillian Morrison

    diagnosed at 40 with mammogram

  • raro
    raro Member Posts: 78
    edited December 2009

    Rebecca Cummings... diagnosed via self-exam at 39. Mammo confirmed. No family history! Recurrence at 43, in spite of ALL my doctors insisting it wasn't recurrence, now stage 4.

  • joyceva
    joyceva Member Posts: 20
    edited December 2009

    Joyce Van Andel - diagnosed at 44 years of age.  We've come so far in the fight against breast cancer.  Let's not step backward. 

  • sgr1
    sgr1 Member Posts: 1
    edited December 2009

    shannon rutherford, mis-diagnosed at age 36- palpable lump not visualized on mammogram because of dense tissue, was also told i was "too young to have br ca". Positive Diagnosis at age 39 with U/S and biopsy. Multiple tests needed for proper diagnosis of br ca in young women with dense tissue.

  • grainie1
    grainie1 Member Posts: 1
    edited December 2009

    First, we need to find out why cancer has become so rampant. Secondly, why is breast cancer occurring in more young women than ever before? Is it in our food, our air, our birth control pills, our hormone replacement ? My sister was just diagnosed with Stg II b bilateral breast cancer. She was a smoker until very recently. She healed very poorly because of reduced blood supply to her skin caused by her long history of smoking, and required a second surgery to remove a strip  2-3 inches wide along her whole chest that was dead tissue. We need to show shocking photos like those of my poor sister's chest to hammer home the harm that an unhealthy lifestyle can cause. She still has to undergo months of radiation and chemo. She lost her husband to cancer 4 months ago. She didn't want to spend the money to have regular mammograms or to pay for insurance for herself because they were both on fixed low incomes. Some will say she brought it on herself, but what kind of a message does it send when a medical task force (with no oncologist as a member) states that mammograms don't save lives. Luckily the government has decided not to adopt these guidelines. Be well informed before you decide to vote against the governments health plan. It may just save your lives.

  • jlp
    jlp Member Posts: 3
    edited December 2009

    Diagnosed at 44 - lump found by self exam - my sister was diagnosed at 31 - also found by self exam. (no family history of breast cancer, but ovarian and prostate cancer on father's side)

    For younger women, mammograms may not show anything due to the higer density of breast tissue (it did not for both of us), so we need research to make better screening possible, and we MUST encourage every woman to self-examine every month. Suggesting that self exam is not useful is a criminal act of negligence on the part of this panel.

    Louise Pattison

  • BPeters
    BPeters Member Posts: 1
    edited December 2009

    Barbara Peters, RN, I am a nurse who works as a breast care coordinator. I have devoted the last 10 years of my career helping women who are diagnosed with breast cancer. There is no discrimination of age when it concerns breast cancer. I can't tell you how many times I have talked to women who are in their 40's who are shocked to find out that they have been diagnosed with breast cancer. This is usually with no family history, no real risk factors other than being a female. These guidelines do not help women identify a cancer at a earlier more treatable stage. If someone waits until 50 years old to get a mammogram, the difference regarding treatment, stage and cost can be huge. On a personal note, my mother died at 43 yrs old from breast cancer. I was 5 years old and my brother was 7.

  • ktheo99
    ktheo99 Member Posts: 1
    edited December 2009

    On behalf of a 45 year old women..who has found open wound under breast..please leave the testing age alone, your messing with lives  

  • kathimdgd
    kathimdgd Member Posts: 84
    edited December 2009

    BC runs in my family on my DADS side.My grandmother had it in 1929,a couple of my aunts had it as well.I now have 2 sisters that are 11 and 12 year survivors and i myself am one year out.I worry about my DD and my GD'S,who are now in their mid 20's and mid 40's.In my opinion BC has no age requirements or boundries,it can strike anyone at any time!!! JMHO

    All my family members survived it even gramma,and she lived to be 93 and died from pneumonia.

    Kathi

  • Bonnygg
    Bonnygg Member Posts: 10
    edited December 2009

    Bonny Gazinski: 1st baseline mammo was at age 40. DCIS dx'd in 2004 @ 48 years of age.

    1.5cm, Stage 1, Grade 2, 0/7 nodes, er+/pr+, her2-. Nov 2009, BRACA1 postitive.

    Jan 2009, my 31 year old daughter tested BRACA1+.

    My future granddaughters are going to HAVE to depend on early mammograms. Don't you DARE take away their future. It's not yours to take.

    I want to know how early would this panel recommend screenings if the topic was penis rot that could save the penis if caught early????? I'll put up $100 that the panel would recommend screenings start at birth.

    It's getting really old fighting against what men *think* us WOMEN are supposed suffer through in the name of medicine. I suggest you (the panel) take your knuckles off the ground you slope-headed idgits!

    EARLY DETECTION saves lives. Get a clue.

    Or better yet, why don't you personally struggle through the treatments/surguries of someone with Stage 3 or Stage 4 BC. Let's just see what your recommendations would be then.

  • connie3
    connie3 Member Posts: 1
    edited December 2009
    dec 2008  i was diagnosed with stage 2b breast cancer at age 49.  they took out over 8cm  (size of a small lime} .and did not get clear margins.  at age 49 and over 8cm  to say mamograms are not necessary tell age 50 is a slap in the face.. for the future of my granddaughter,  nieces, daughter n laws, sister n laws and all other women and their futures let what im going thru help others by getting their first mammogram at age 40.  EARLY DETECTION MAKES A DIFFERANCE BETWEEN LIFE AND DEATH.  
  • mcdan130
    mcdan130 Member Posts: 1
    edited December 2009

    Cecily B. McDaniel, diagnosed at age 41; Triple Negative. Had first mammography at 39 as a baseline. 1 1/2 years later, small calcification showed up on mammogram; already spread to lymphs.  Mammogram ensured an early diagnosis; 10 more years for a mammogram would not have been an option.

  • heart2heart
    heart2heart Member Posts: 1
    edited December 2009

    I was diagnosed at age 45 through a routine mammogram.  There is no question that I am alive today because of the guidlines currently in place.  Mammography every year beginning at age 40 is critical to saving lives.

    Evie Hekking

  • cbs
    cbs Member Posts: 1
    edited December 2009

    age 46 at dx multiple sites of dcis and lubular, Discovered only by a routine mammogram.even the drs, could not detect any changes with a self exam!!...4 more years might have been to late to sign a petition.  Keep it going! cbs

  • kaeyreed
    kaeyreed Member Posts: 1
    edited December 2009

    Kathleen Reed, age 48 when diagnosed!

  • swastew
    swastew Member Posts: 110
    edited December 2009

    I was diagnosed with Invasive Ductal Carcinoma November 13, 1998, after finding a lump in my left breast during a breast self exam (I went to my Dr. and requested a mammogram and ultrasound). I opted for a lumpectomy, followed by chemotherapy and radiation - I was 41 years young.

    On January 27th, 2009, my annual mammogram picked up a tumor on my right breast that had not been there the year before. A needle biopsy confirmed that I had invasive ductal carcinoma - this time on my right breast. I underwent a bilateral mastectomy on February 23, 2009, followed by chemotherapy.

    I am alive today because I practiced breast self exams, and was diligent about having my yearly mammogram - there is NO family history of breast cancer in my family - maternal nor paternal side. Had I followed the "new recommendations" that the task force has come up with - I would be dead.

    I have two daughters, ages 19 and 20 - and am hoping we can find a cure - instead, the "task force" has set us back 30 years by their irresponsible recommendations!!! I am appalled!!

  • lillian1
    lillian1 Member Posts: 8
    edited December 2009

    Diagnosed at 45 already at stage 4, mammogram found the cancer.  Absolutely no family history.