Sign the Petition Against the new Mammography Guidelines
Comments
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Mammo showed "pre-cancerous" indicators with microcalcifications. My breast exams had zero lumps. So far I've had bilateral mastectomy, reconstructive surgery and will see my onco for treatment in one week. With out the mammo showing the microcalcifications, by the time I would have been "old enough" to get the mammo, I would have been in serious trouble. The mammo started because i had some nipple discharge. The doctors thought the mammo would "put us at ease". Now, one month later....here I am, up at night, cant sleep and have drainage tubes coming out of my body. Let's keep up w/ early detection!
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AGE 48 - Multi focal in left breast after mamagram picking up calcium deposits only. No lumps felt ever. In one year's time I went from a clear report to having a bilateral mastectomy. I asked for both breasts to be removed. I later found out when reviewing my pathology with my oncologist that my right breast had changes taking place that made it ripe for DCIS to begin there as well. If I had to wait until I was 50, at the rate that the cells were changing, it might have become invasive. Woman are getting it at younger and younger ages. My breast surgeon had 60% of her patients last week under age 46. The new proposed guidelines are totally out of line and crazy!0 -
Elizabeth A. Rumpf...
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2X survivor.......Diagnosed the first time at age 34. Had difficulty getting diagnosed even then since I was considered too young. We know better by now so please let's not go backwards in saving women's lives.
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Erin Armstrong. Diagnosed at age 43. Found by annual mammogram. No lump or other indication of cancer prior to mammogram. No close family history of breast cancer. If I'd had to wait until 50 for a mammogram I don't think my cancer would be at this early stage and my life expectancy would be significantly shorter -- if I'd made it to 50.
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Micki Bowers diagnosed at age 39 with mammogram no family history.
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I am a 40 year old female that went for her first mammogram and I was diagnosed with DCIS Breast Cancer, If I had not have gone for a mammogram it would have been way to advanced for me at age 50.
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Judy - Age 53. Mammo showed DCIS....led to discovery in other breast of IDC. We need to keep the same screening guidelines. One more year would have been too late.
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Diagnosed at age 43 - No history of BC, don't carry the gene. Regular mamos, but dense breasts. Self exam resulted in diagnosis of Stage II. Doctor told me the cancer had been there a long time.
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Jennifer A Lawless, RN
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As a person diagnosed at the age of 43 after dealing with 4 years of mixed opinions as to whether or not I had breast cancer, I would say leave this alone, we need people to continue getting mammograms no later than age 40 for the baseline, this is crazy what the so called experts are doing. How many insurance companies do they have paying them to make these decisons????
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Life is much to valuable to sent limits on ways to diagnoise disease. Please do not change the Mammography guidelines. Many womens lives have been saved by early screening. It is frighnting to think of how many lives may be lost if the guidelines are changed.
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I found my lump myself 8 months after a clear mammogram. I was 52 at the time. If I had not found the lump and waited another year before my next mammogram my prognosis would have been very poor, as I am triple negative. I was surprised by how many younger women, both in their 30s and 40s that I saw while I was undergoing chemo. I was physically ill when I read the new recommendations for screening. It is a huge step backwards and frightening to think how many of these women would have died if they had waited until 50. Also breast self exams are extremely important. Many triple negatives found the lump themselves.
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Please add my name to these strong ladies. I know there is an insurance company behind this somewhere. Let's save the ta-tas ladies!!!!!
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Please don't change the guidelines. I was diagnosed by mammogram at age 47. In one year, I went from a clear mammogram, with never a call back, to a bilateral masectomy for multifocal DCIS, with microinvasions that were Her2 positive. In another 3 years, I would likely have been in a much worse situation, with Her2 being more aggressive and the microinvasions likely to have invaded lymph nodes and outside of the breasts, decreasing my chances for survival and increasing insurance costs to treat the cancer on a long-term basis, with less liklihood of ultimate survival anyway! NUTS!!!!
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Diagnosed at 45, no family history.
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Rhonda kay age at time of dx 46, FIRST mammo ever,totally blindsided by this. no prior family history of bc. Had I waited another 4 years............I don't even want to think about the ramifications.
"we are made strong by difficulties we face and not evade"
Diagnosis: 11/17/2008, DCIS, 1cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-0 -
Mammogram saved me.
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Theresa Maschino dx 53 no family history
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Lisa O.- Diagnosed at age 39. Found lump about one month ago during a breast self-exam. Thank goodness doc sent me in right away for a mammogram/breast ultrasound. NO family history.... in the fight of my life now, with lots to live for. Mammography screening needs to be available for every woman!!
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Lisa O.- Age 39, diagnosed about a month ago. Found lump during a breast self-exam. Thank goodness my doc sent my in right away for a mammogram/breast ultrasound. NO family history.... in the fight of my life now, with lots to live for.
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Robin Aylesworth
Diagnosed at 34, no prior family history.
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Sue Genau
Diagnosed at age 44 - DCIS discovered during regular screening mammogram (no lump or mass), no prior family history.
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I was diagnosed in Nov of 07, at the age of 44, with no family history, no risk factors (except for fibro cystic disease and being a woman!!). If I had waited until I was 50? Well, there would not have been a 50th birthday celebration, as I would have been dead by then. My husband's cousin went for a mammogram when I was diagnosed (her previous one was a mere 2 years earlier when she was 46), and she was also diagnosed with breast cancer, unfortunately hers was more advanced and she passed away this year, never having reached the age of 50.
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If the new guidelines had been in place I would not have known I had a stage three agression breast cancer. I had a clear yearly mammogram in January and in April found a lump that was over two centimeters, and I found it simply by taking a shower and I felt it while washing. In four months it went from 0 - over 2cm. My doctors sent me in immediately for another mammo and unltrasound. The urgency due to a clear routine mammo 4 months before. By the time I found it and had it removed it was in the lymph nodes. I see no reason to fool around with the mammogrm guidelines. One reason I read was that it keeps women from needlessly worrying and upseting them. Another spot was found in Ocotber of this year that resulted in negative biopsy results. That week or so of worry was worth it to find out there was nothing wrong. I would rather worry for a few days and find nothing was wrong, or even find out something was wrong and this is how we are going to take care of it. Like what happened to me. Fear and worry is an assinine reason.
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Jessica Kwiatkowski-mother of 2 living in Chicago. No family history - 35 yrs old - BRCA negative - If I had not found my lump when I did via self exam, who knows where I would be now.....already spread to two nodes.....
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I totally disagree with their new guidelines. If it weren't for the old ones I wouldn't be here. This sounds to me like the GOVERNMENT is already trying to interfer in our health care and our LIVES. If the the new guidelines go into effect I will still follow the old ones and pay out of my pocket for this life saving step. I agree something needs to be done about health care but not the current proposal. IT SUCKS!
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I was 39 and had too fight like hell too get a mammography that was 13 years ago... I was Stage 3 with a 9cm. tumor with 17 positive nodes It was IDC, no family history one of five girls???????????????I an currently dealing with bone mets,liver mets,neck mets and brain mets..
MarshaB marshab56@hotmail.com
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I was 48 yrs old when I was diagnosed with DCIS. It was found on my yearly mammo. My family history is unknown. I totally disagree with these new guidlines.Early detection is the way to go!0
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Gabriele Anderson - recently diagnosed with bc at age 43 with no family history. Found my own lump and was confirmed by mammogram - first mammogram ever. Could not have survived another 7 years.
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