Sign the Petition Against the new Mammography Guidelines

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Comments

  • zoegr
    zoegr Member Posts: 6
    edited December 2009

    Zoe T - age 39

    Mammogram showed cluster of microcalcifications which finally was a cancerous lump.

  • gildita
    gildita Member Posts: 1
    edited December 2009

    Gilda Merson- I was diagnosed at age 39 with breast cancer. If I had waited till I was 50 for a mammogram, I would never have made it to 50.

  • susu1976
    susu1976 Member Posts: 94
    edited December 2009

    Susan A.

    Diagnosed with DCIS, Stage I & II, at age 51 by digital mammography, no lump felt.  Previous mammogram 15 months earlier was clear. No family history. Double mastectomy followed by chemotherapy.

  • lady4law
    lady4law Member Posts: 32
    edited December 2009

    Jean M - started having pain on a European vacation, three weeks later was DX with triple Negative Breast Cancer, IBC, and BRCA 2. (The lump appeared out of no where and grew to the size of a gold ball in approximately 3 weeks.) 

    Both my mother and Paternal Grandmother died from BC, my grandmother while still in her 20's. My mother's BC, originally DX in her 40's,  returned 4 times, before causing her death 20+ years later. Had it not been for mammos and other testing, her mets would not have been discovered the first time, she would not have had the additional 20 years with her family, nor seen her daughter marry, or held any of her three grandchildren, in her arms. 

     We can not, and must not stop mammos, routine PETs, CTs and (now) PAPs to be denied to those under the age of 50. 

  • Barbpadiak
    Barbpadiak Member Posts: 1
    edited December 2009

    Diagnosed at age 45 with Stage II Breast Cancer.

    I fully support early screening!  If I had waited till 50 I would probably be dead!

  • peggee
    peggee Member Posts: 2
    edited December 2009

    DX in 2006 at age 48, thanks to screening mammo - - so far, so good - - no recurrence

  • RACHAEL75
    RACHAEL75 Member Posts: 1
    edited December 2009

    As a mammography technologist I am very concerned about these recommendations. Our local family clinic is now denying patients under the age of 50 for screening mammograms and will not reimburse at all for digitial mammography (which is difficult because almost all the facilities in this area are digital now). 

    Last week I spoke with a 40 year old patient who came in for her baseline mammogram. We found an area of concern and biopsied it and it was cancer. No risk factors no symptoms whatsoever. If she would have waited until she turned 50 she would have died! This happens all the time. Women in this age group are more likely to have very aggressive, fast growing cancers. I have noticed a trend actually that we have been finding in increase in breast cancer in younger women under 40. With the development of digital mammography we can find many more hidden lesions in dense breast tissue. I doubt the task force took this into consideration. I am just so angry and sad. It starts with the low income/ underinsured women but who knows how long your HMO's and private insurances will cover screening mammograms under the age of 50. We need to do something to make our voices heard. As a patient care provider and as a family member of 2 breast cancer survivors I can't just sit here and do nothing while insurers run our healthcare system. It's time to become more involved.

  • leeinfl
    leeinfl Member Posts: 46
    edited December 2009

    I am 46 and was diagnosed with DCIS three days ago.  Who knows at what stage I would be at if I would NOT have gotten my yearly mammograms.  For the sake of all of us, our daughters and sisters - PLEASE retract the new guidelines. 

  • diandy95
    diandy95 Member Posts: 1
    edited December 2009

    Diagnosed in 2006, age 47, no family history, IDC, Stage I, ER+/PR-, HER2-

    Can I just say how frustrating this whole issue about mammograms is, but something like Viagra is seen as so important by the FDA, the health insurers, etc.?

  • delling66
    delling66 Member Posts: 1
    edited December 2009

    Kimberly Delling -  If I didn't have the mammo and mri when I did starting at 40,  I would be dead now.  I recently was diagnosed with Breast Cancer at 42.  Needs to be done asap even without a family history... Later screening increase deaths!  Not about money people but lives

  • akeefe7
    akeefe7 Member Posts: 12
    edited December 2009

    I was diagnosed in Sept 08 with Stage 1 at 33.  I fully support early detection.   A Self breast exam saved my life.

  • CarolRich
    CarolRich Member Posts: 1
    edited December 2009

    I would be dead if I didn't get a mammo at age 40!  Diagnosed at age 40 with Stage 2B breast cancer with no family history and no risk factors.  Now happily 3 years cancer free but want to make sure others have the same chance I did.

  • Bella_Rose
    Bella_Rose Member Posts: 1
    edited December 2009

    I just had an appointment with my breast care specialist.  He has been doing only breast care for over 13 years.  He sees hundreds of patients a week; he has been doing research and conducting clinical studies for years.  He cannot simply write a script for an MRI without doing an assessment of my risk.  My insurance company needs a comptuer program to prove the need for an MRI over the doctor's expert opinion.  He had to purchase assessment software to prove to the medical insurance company that sending me for an MRI is warranted.  Otherwise, they would refuse to pay the bill.  Whatever happened to the doctor knowing best?  This is another example of the insurance industry dictating to the medical community how to practice medicine. 

    I am 46 and have had two lumps and a few cysts removed.  I firmly believe that early detection prevented me from having cancer. 

     

  • bonnid
    bonnid Member Posts: 13
    edited December 2009

    Brahna Derr - Dx at age 64. No family history of bc.

    I had just seen my gyn who thoroughly checked my breasts and found no lumps. 

    The digital mammogram found my stage 2 tumor. Micro-mets were found in lymph nodes removed during surgery.

    I might have been facing a much more advanced cancer now if last year would have been the 'off' year' for the mammo.

  • ellynd
    ellynd Member Posts: 1
    edited December 2009
    I was diagnosed with breast cancer at age 36 without any knowledge of a family history of breast cancer.  I found my cancer through a breast self-exam.  Following my diagnosis, I learned about the BRCA 2 mutation that caused my breast cancer.  I firmly oppose the new screening guidelines. www.ellyndavidson.wordpress.com
  • Hazel
    Hazel Member Posts: 1
    edited December 2009

    Thank god for yearly mammograms!!!! my cancer was found at the 1mm size - I had a mastectomy and am here to see my four children grow up.  I believe that every woman should be given the opportunity to have an early detection and have her life saved. I am 49 and have had yearly mammograms since the age of 40 because I had a feeling that I would get it even though I didnt carry the gene from my mother who died of it.  Cancer moves fast and needs preventing - It has been documented on TV that early screening is important and now they are saying leave the screening until 50 - if that was my case - I know I wouldnt survive - my cancer broke out of the ducts within three months, that was 2 years ago, I am 49 now, so according to the guidelines I would still be waiting and the cancer would be doubling. 

  • JillAnnB
    JillAnnB Member Posts: 2
    edited December 2009

    Jill B - DX age 40 - found on mammo - microcalcifications

  • ruthbru
    ruthbru Member Posts: 47,688
    edited December 2009

    Any recommedation that discourages early detection will KILL women. I discovered a tumor myself through self exam (which is not recommended anymore!!!), and I could make a long list of women I know personally whose tumors were discovered by a yearly mammogram while they were in their 40's, and another long list of older women whose tumors were discovered in an annual mammogram; a year earlier than they would have been with the every other year recommendation! It doesn't take a rocket scientist to figure that the longer you wait; the harder the treatment and the worse the prognosis will be. If you don't care about individual people; think about the expense to the health care system of treating advanced cancers, and the loss of productivity to the work force!!!!!!

  • tbaker59102
    tbaker59102 Member Posts: 2
    edited December 2009

    Diagnosed with stage 1 grade 2 idc @ age 48 on my second ever mamogram. Not sure where I would be if I had waited until I was 50.

  • waldengoddess
    waldengoddess Member Posts: 1
    edited January 2010

    Cancer runs in my family. 

    I started mammograms at 35 and push all my

    friends to do the same!!!!

    WE ARE RESPONSIBLE FOR OUR OWN BODIES!!!!

    NOT SOME POLITICAL INTEREST GROUP! 

  • lolo720
    lolo720 Member Posts: 4
    edited January 2010

    I was diagnosed at age 46 following a routine mammogram, followed by ultrasound and biopsy.  I had been getting yearly mammograms since age 39 and a baseline at 35.  No family history of bc. 

     The new guidlines are absolutely unacceptable.  I can't stand to think of the situation I would be in if I had to wait until 50 for my first mammo. 

  • LiveNLearn
    LiveNLearn Member Posts: 1
    edited January 2010

    Diag at 38. Cancer could not be felt.  Had a mammogram because I had a Aunt to die of breast cancer 2 years earlier.  If not for early mammogram I probably wouldn't have found out until it was too late. 

  • etp49
    etp49 Member Posts: 1
    edited January 2010

    Diagnosis: 9/2009,  <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-. Found early  on routine mammogram  Age 60, no family history. Node and margins negative. Tx with lumpectomy, radiation and Femera. God bless digital radiology and astute radiologist! Please do not change guidelines to omit younger or older women. Friend diagnosed at age 25!

  • meandcancer
    meandcancer Member Posts: 1
    edited January 2010

    I am a firm believer on rountine mammograms! At age 40 and getting a routine done, I found out I had cancer! It was only detected on the mommogram!! I thank God that they found it so early!! 10 more years who knows what my outcome would be..wouldnt look so good! Stage 1... and .6cm!!

  • GiraffeDebbie
    GiraffeDebbie Member Posts: 1
    edited January 2010

    I was diagnosed in November with stage II invasive ductal carcinoma and started chemotherapy last week. Oh - my cancer was found by my yearly mammogram.

  • ronqt1
    ronqt1 Member Posts: 565
    edited January 2010

    Ronqt1 -  Mx October 30, 2009, with tissue expander.

    Cancer was found by my yearly mammogram. Never ever missed a year. No family history.

  • NeelyN2
    NeelyN2 Member Posts: 1
    edited January 2010

    Diagnosed with breast cancer at age 30

    3 of my co-workers were diagnosed with breast cancer within the last 2 years and they are all in their 40's!

  • 1vamom
    1vamom Member Posts: 82
    edited January 2010

    Just diagnosed at 40.

    First mammogram, although my doctor has been telling me since last year to make an appointment.

    Like others, thought I was healthy until this.

  • michele2008
    michele2008 Member Posts: 2
    edited January 2010

    I think that there she be no age limit. I was 31 when i was diagnosed who wants to wait till 50. why do they have the right to choose cancer has no age limit why should they.

  • michele2008
    michele2008 Member Posts: 2
    edited January 2010

    i just want to say god bless you and good luck