Calling all TNs
Comments
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Hi All....have been waning from rads and working full time plus I have a burning breast so I haven't been posting much.
I hope all are well and I have those same nighttime worries....wake up with some terrible thoughts...lots of anxiety I guess and it takes awhile to call myself down.
MBJ...glad you are moved..our house has been on the market 19 days and I pray it sells in the next few months.
lynniea...here are prayers that a job comes your way...
Suze....hope the scan goes well. You are an amazing advocate.
MonikaV ...what great news to share with us.
So sleep...what is with that!!!!
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laurajane, if you don't mind answering, how did you find your healer? What does a healer do? Is it advice on diet and supplements? Meditation? All of the above?
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LauraJane - wow...I'm so happy. The best thing to happen to me today is reading your wonderful news.
Michelleo - I did go on LTD for a few months. My six months of STD ended about four weeks after rads and I had thought I'd be ready to go back part time. My doctor wanted me to stay off for a few more months since I was already disengaged from work. She didn't recommend part time. Her thinking was I was either in or I was out and she wanted the latter. I found rads very tiring and am so glad I took the bit of time on LTD. I went back to work on a gradual return over a six-week period. Good luck!
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I'm on my second of four (every three weeks) taxol. (Already finished A/C.) Anyone else getting taxol like this?
Angelisa, I'm sleeping horribly too, just as you described. I have been taking a Lunesta AND a Xanex and still toss and turn all night. What's up with that? : (
I've just started getting mild hot flashes. Feels hot on top and cool behind the neck.
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LauraJane - incredible news. So glad you are feeling well.
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Thanks to everyone for all the encouragment. We go in for mom's PET scan Friday and then to meet with the oncologists. The chemo meds that she will more than likely get are Cytroxin and Adiamycin.. I probably butchered those spellings. Any personal experiences with either of these? I know one is the med that's been in the news about being in short supply. She is terrified of all of the chemo side effects and is really dreading it, but I keep telling her it will be over before she knows it. I'll try to go back through and read up on everyone. Just so hectic.. kind of slow going. But I'll get there. : )
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Congratulations LauraJane!! WOOT!
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LJ - Best news ever!!!!!!! You will have to tell us more about whole food diet and your amazing healer when you are all done with your chemo. You have made my day today!!!!! You have beat this monster, and this is a true success story. Like I have said before, we should all plan to meet in some remote island paradise, say in about 10 - 15 years and laugh our heads off at this monster, which we will all beat. I truly hope we can continue to keep in touch and meet up some day.
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Lindsey78,
I got both Cytoxan and Adriamycin. Side effects vary from person to person. Some say it's rougher on you than the Taxanes. Personally, AC was easier for me to deal with. I had less nausea than with Taxotere, but was exhausted and slept a lot!
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Laurajane: Wonderful news! Keep on chanting!
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Laurajane - What a great way to start my day - reading your post - you put a smile on my face that will continue thru the day! Have a great day everyone...
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Laurajane, What a way to start my day, with your wonderful news! I'm so happy for you.
and I'm also very interested in learning more about your healer and the whole foods diet.
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LJ: Great news, Girl!!!!
Count me in on the trip.....anywhere. Would love to meet all of you fine ladies...and 10 to 15 years from now. What a wonderful goal.
I don't post much but read a follow everyday. Care about each one of you.
Navy
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Good Morning...I haven't posted much since I joined last month. My Lumpectomy surgery on Oct 10th went good, SNB negative. I posted last night on the "starting chemo in November...anyone else?" Since I have TNBC, I find myself here reading and reading.
Wow for all the positive news!!! Thank you Ladies.
Cyndi
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LauraJane, Praise be!
Suz, Bak and you other lovely ladies, I'm thinking about you and sending love.
Susan
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My oncologists keep saying "no alcohol", which I hate hearing as I love my glass of wine. http://www.medicalnewstoday.com/releases/236958.php
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Also, this newsletter from Johns Hopkins has several good studies: http://www.hopkinsbreastcenter.org/artemis/
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Laurajane- I am so happy to hear your news!! Keep on doing what your doing!!
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So happy for you Laurajane. YEAH!!!!!!0
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Laurajane: Chiming in with my congrats too. Best news!!
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LauraJane - SOOOOOO incredibly happy to hear your news!
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LJ---do you see me DANCING!!! Keep doing what you are doing! I am true believer in advocating for yourself.
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Laurajan: WAHOOOOOOO!!!!!!! DOING THE HAPPY DANCE!!!
Titan: As soon as I recupperate from our 2100+ mile drive we absolutely have to all meet up! Right now I have been in lots and lots of pain in my arm-starting to think I tore a ligament or muscle and I just keep re-injuring it. Wearing a sling but it hurts 24/7 and the Vicodin is about to run out. Sleeping on an air mattress and we found out yesterday that our stuff hasn't even left LA yet
MonicaV: Congratulations on being able to get back to your life. I am almost 2 years out from the start of chemo and I still have problems remembering things. I now have to write everything down-twice or three times.
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Sugar77, I think your ONC was right. The more I think about it, the more I think it would be impossible to just work part-time. The reality of my job is I never really get to switch off completely, so even if I spent 4 hours in the office, I'd still find myself thinking about work when I'm not there.
Lindsey78, I just completed 4 rounds of AC. Personally I found the side effects to be manageable. Your Mom will get meds to manage the nausea which is the worst side effect. She should also take a laxative or stool softener to avoid constipation which I found to be really bad!
Mitymuffin, I'm with you on the wine front. I haven't been drinking at all during my chemo but I'm sure I'll be craving a glass of wine when it's all over. Everything I've read though indicates that a glass of red wine a day is a good thing, so maybe I'll ditch my Pinot Grigio for a nice glass of red!
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LADIES the WHOLE FOOD diet is just what the title is....
Eat most of your food in its natural form (raw is even better) don't over think it...
Like an orange, apple, lettuce, tomato and olives you get the jist now. Shake a little salt/pepper/olive oil & vinegar and ENJOY.
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I did Taxotere, Cytoxin and Adrimycin all at the same time. Once every 3 weeks. I worked the whole time. Just take your nausea meds.
Laura Jane I am soooooo happy for you! Bless you!
To all the other girls keep fighting and we will keep winning!
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Linsey78 - I also did the Taxotere, Cytoxin & Adrimycin, once every 3 weeks. I worked as well but on an adjusted schedule. My worse days for day 3 & 4 after each treatment, just felt worn down and crappy. If your mom is getting the Nuelasta shot for her WBC, have her try taking a clalritin the day off and for 2 days after the shot along with tylenol or aleve, it's supposed to help with the bone pain. I took it and had none, don't know if it helped or I was lucky but it's worth a try. Overall, I'd say Chemo is doable, there were some bad days but there were days when I felt good too, AND it will be over before you know it.
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Good morning ladies. Excited to share more happy news. I got the call from my onc just now and my tumor markers went from 184.9 in September down to 66.5 yesterday. I truly expected them to be at 0 but I will take these results with a smile on my face and in my heart.
Lindsey78 most of us have done A/C and for me it was the roughest, but got through it. I agree with others the nausea meds make a huge difference. I wish I could remember the kind I had it was like Emend or something where I took one before and one each day after for two days. Soup was all I could eat but mint and Ginger tea helped so much too. It will be over before you know it. I know of many women that actually continued to work while on A/C.
Michelleo&lizardbeth- I remember taxol well. I would be up for 48 hrs after from all of the steroids I just accepted it and actually that's when I wold just work on one of my paintings. I also would crave
chocolate and actually planned on it and would bake a cake or buy cupcakes the night before my infusion. Funny because I've never really been a big chocolate fan.
Painting- CD on it's way. This will truly help you calm down
Riley- a friend set me up with my healer. He was trained by a man named Solomon Wicky, you can google him. People from all over the world come to see him. He has helped many. I spoke with a woman who was diagnosed with lymphoma and melanoma and was told she would die unless she had surgery that was 6 yes ago. There is more to her story but I'll let you googl. There was also a book written about him. I have heard wonderful miracles have happened to more than you can count and sadly he has not been able to help some. I know when I first saw him I was in such incredible pain that morphine wasn't touching, I could barely walk my hips and lower back were hurting so much. I sat across from him in a chair and he just lightly touched me on my knee, shoulder etc. When he was done my pain was gone. He told me my hips were totally out of alignment. I could not feel my tumors in my clavicle area the next morning and within days my skin mets had disappeared. Now whether this is all from the healer, my meditations or chemo all I know is something is working
and I feel great. I know that my onc had pretty much given up on me and with good reason. She was very honest with me. She had just been to a huge seminar and my FC was discussed and she said she could hardly wait to call the other once and let them know about my response. Today life is great. I'm looking forward to sharing more good news with all of you it is so much more fun.
MJB- I'd love for you to meet my healer. Hopefully he could help you with your arm. He is from Kentucky but travels all over. For the record he doesn't charge anything. He just does it because he wants to help people anyway that he can.0 -
Laurajane!!!!!! I'm so happy for you!!!! I have been checking the boards to see messges from you and so glad to see this one!!! I am on Halaven right now, too - in a clinical trial for those who did not achieve complete response from neo chemo. Side effects not too bad. 0
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Laurajane - I am so very happy to hear you are doing so well! There are things in this universe we will never fully understand, and maybe we aren't meant to - and maybe it is all of what you are doing that's helping - but it is amazing, regardless of why! And it shows me exactly why we keep up the fight, because there is still so much of life left to enjoy. I completely understand when you say there was still something you needed to learn (although I don't think that's why we have this FC) - I feel like I have grown more as a person in the past year than ever before in my life, and amazing things are happening around me. For example, me and my DH introduced my beautiful sister to a friend, and they are now head over heels in love. She has spent the last 5 years alone, making such bad choices, I was so worried I would not get to see her happy. And now I do! Good things
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Painting - sleep, oh so elusive! I hope things are moving forward with your house, any nibbles?
MBJ - Blech to the air mattress! I hope your stuff comes soon! How do you like it so far in Kentucky?
Titan - waving hi!
Lindsay - I hope all goes well for your mother. AC can be rough, keep an eye on her fluids, and take her in for an IV bag of saline if she isn't drinking enough. I got extra fluids each week on AC and it really helped.
For those I've missed, I hope you are all well. This thread can move fast!
I have a CT scan set for Monday, everyone just wanted to make sure it was ok within the parameters of the study, and that I could switch to the Tig this early if there is progression. Thankfully it doesn't seem to be a problem. I'm expecting "the worst," since I did have resistance to Taxol, but I'm willing to stay on the trial and give the experimental drug a shot - but only for another round.
I unfortunately had to go back on steroids for my cough, it was getting horrible. I'm trying a very low dose, so I only have to use the least amount necessary. But boy I'm going to be a raging B**** lol. And gain even more weight. Ugh!
Have a good day all!0
