Calling all TNs
Comments
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Kentucky??? I'm in Kentucky also!!! I would love to know how to contact the healer, could you PM me the information? I need him for my daughter, who acquired Hepatitis C from her birthmother. She is doing ok and new medicines are in the pipeline, but her little immune system is so stressed.
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I want to meet this healer also! My hubby has had 3 back surgeries and hurts all the time, even on pain meds. I wanna see if he can help him.
Laura I am truly amazed at your response and I am sooo happy for your good news!
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Suze- I'm hoping Monday comes quick for you and you have had a wonderful response
My healers info is his name is David cell phone 502-552-34310 -
Laurajane, David's going to be very busy now!
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Quote of the day:
'Whatever you give a woman, she will make greater. If you give her sperm, she'll give you a baby. If you give her a house, she'll give you a home. If you give her groceries, she'll give you a meal. If you give her a smile, she'll give you her heart.
She multiplies and enlarges what is given to her. So, if you give her any crap, be ready to receive a ton of shit.'0 -
LJ- THAT IS FREAKIN' AWESOME!
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Greetings Ladies,
All of you are such an inspiration to me and my new journey!
I was diagnosed with TNBC in Sept. and started my chemo last week....8 rounds of AC followed by 8 rounds of T....I will then decide on lumpectomy or masc. but leaning towards lump. Then I would do 6 weeks of rads. My first week of chemo was as bad as I thought, I just hate that my energy levels have plummetted...I was always called the "Everready Bunny". I will be using my down time to work on special projects and triple negative bc adovacy and awareness. I have embraced chemo as my "new best friend" so we are going to becoming very intimate. "She needs to do what "she" does best....kill cancer!!!
I am learning to adjust to my new "normal" and I feel very blessed to be alive & able to be a warrior and soon to be survivor.
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Denise welcome to our board, sorry you have to be here. There are alot of great ladies on here and will be happy to answer questions.
During chemo just be sure to stay hydrated, watch what you eat, and take your nausea meds. It is doable and not to bad.
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LauraJane-your posts lifted my spirit! So happy for you! I would guess your good response is from the combination of all you are doing. I used to work with a gal that says she does healing work, she has learned from others. She offered to work on me when I was first diagnosed, I haven't talked with her since, maybe I should give her a call!
Suze-I hope your cough gets better with the steroids. Hopefully you will be able to get the new drug, but do hope the abraxane is working for you also. It seems kinda difficult to hope the scan shows a little progression so you can have the new drug! This last abraxane has just wiped me out! I just need to toughen up like you gals and get on with it!
This thread does move swo fast! Please know I am thinking of all of you and wishing the best for everyone! You are all such an inspiration with how you live your life. I feel like I am in limbo and I need to do something to get out of it!
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laurajane...how uplifiting to read about your response to this new cancer killing machine! I have looked for you everday to see if you posted because you are such an inspiration to us all.
I am almost done with infusion #4 of taxol..my 1/2 way point and will start AC for the next 4tx. Scared of the nausea but have the meds in place and not afraid to take them. I have gained 11 lbs back since surgery from the steroids UGH. I eat like a pig for about 6 days after tx. I think I am looking for something that does not taste like dog poo.
Maggie
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Absolutely LOVE the good news on this thread..and welcome to the new kids here..plus the ones posting now and then..this thread DOES move fast and for you guys posting and maybe not getting a response right away..please know that we are reading your posts and are with you all the way...I love this thread and how we are all togther..but sometimes I feel that some of us don't get the individual attention that you deserve (hey I'm a Mom..ok)...but know that everyone really does care..oK???..I always feel that I'm at home here...hope everyone else feels the same way.
I saw both the BS and the ONC today..they said I'm doing fine..asked about triple negative and the 3 year thing...he said yes..that is true..BUT..here we go..unfortunately..he said unlike cancers like colon..after 5 years you really don't have to worry anymore...you just can't say that with Breast Cancer..dang..I KNEW that..but I was hoping to hear better news...ah well..it is what it is..I did know this..from reading on here but..man..it would just be nice to hear...you are cured..ah well..not going to happen...
He did say that there was no evidence of any kind of reoccurence...and my bs said no lumps or bumps to worry about..soo...at this point..I guess I can live with that.
My dh (who is a little tight with the $$)..said..they will suck the $$ out of you as long as they can until you die...I was like excuse me..let's hope they suck those buck out of me for a very long time...ha ha
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LJ: Such wonderful news to hear - I can only imagine the joy you are so rightfully experiencing.
Suze - sending love and continued wishes for complete success.
MBJ: A new home and a healthy you! Doesn't get much better than that! Much, much happiness in your new home (and in your life as well).
To all the newbies that have come on board - I hope for each of you easy chemo journeys, with as little side effects as possible, and wonderful results at the end - you will get to the end, I promise!
To all my other wonderful sisters - I send my thanks for being on this ride with me.
Linda
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Oh yeah Teka!
LJ...I did read your post and I'm soo excited...and Suze (waving at you too!)......shout out to Jenn3..I've been creeping on your posts (ha ha)..glad that your pain is under control and you are feeling like yourself again...good good good..
Let's all hang on to this good stuff..hope it stays with us for a very long time.
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Denise, I'm sorry you have to be here, but I wanted to say welcome to the board! I had neoadjuvant chemo also - TAC. From what I've heard when people have it split up in AC then T, the AC is the worst part. I will echo the "drink lots of fluids" - I had to really take it easy for about 4-8 days following each treatment but it is really different for everyone. There are some on here that actually were jogging through chemo- not me!! But I did start walking about the 8th day following each treatment and tried to get as much exercise as I could. If you have any questions, please ask - there is lots of support here! 0
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Denise..yes..probably don't jog..but walk if you can...along with the fluids...your body will tell you when to rest...I had issues with sleeping though....alot of us have alot of excess energy from the drugs they give you before the actual chemo...it was like being wired all the time...
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Laurajane: I think that I read about Solomon Wicky many years ago in a book. I would love to go see him. I am a huge believer in healers -some people are just incredibly gifted. I can't believe he is in Kentucky! My arm is in such incredible pain. I will call you today when we take a break.
I haven't really explored our city yet-busy painting over the horrible clashing colors the former owner used-just a blank white slate until I get my furniture here (one more week to go) and can decide on colors. I am thinking a crisp green and white for the living room-something bright and healing.
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Laurajane: Is Solomon Wickey still around, too? I didn't know that you could train someone to be a healer, but I guess if you have the gift. Bottom line, I am so thrilled with your positive results. Hugs!!!!
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Laurajane, more great news. This is fabulous!!!!
Heidi, love the quote of the day. So very true!
Denise, welcome. You have such a great attitude...that helps a lot.
Titan, don't you hate when you get those kinds of answers. I had a similar conversation with my ONC a few weeks ago. It's very scary. I guess we just need to try not to worry too much about it...much easier said than done though!
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I have been finding myself organizing things that I have put off in the past....photo albums, christmas ornaments, life in general...My husband thinks that I have lost my mind...I want family traditions to continue if something should happen to me - cancer coming back or even the unexpected car accident. Are others experiencing this or am I starting to lose my mind?
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Hi guys, missed everyone and wow what a lot of news. LJ: so happy for you...doing the happy dance!
Heidi: Thank you for always making me laugh
Titan: I too am longing for a day I can hear, your all clear..although I know that day will never come
Kelley: I just staring working on making scrapbooks (for the first time ever) this past week. It's a "for the long-term" issue as well. If anything should happen to me, I want to know that I have left something for my children that they can look at and remember. I think the BC just brought the reality of my own mortality into focus and made me ask myself, what if I was gone tomorrow? IDK if I am crazy or not, but I feel comfort about knowing it will be there for them and right now I will take any comfort I can get.
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Kelly, I'm 5 weeks PFC and I'm in total decluttering mode and updating kick. My husband and I currently live in Florida and will eventually move back home to Philadelphia. I'm on this cleaning out kick that God forbid anything would happen to me the house is well organized and easier on him if he should have to move by himself. Very morbid thinking on my part, but I am enjoying a sparkling clean house and all the little fixes we've been putting off forever. This weekend I'm going to tackle cleaning the grout on our tile floors. I think this might be normal. I believe when I was first diagnosed I read a thread about it.
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I think we all do a bit of that. I've been an avid scrapbooker for years and want to keep the books as up to date as possible to preserve those memories for my girls!
When I'm done chemo (less than two weeks now...can you see my happy dance
?), decluttering is next on my list!0 -
I do hope everyone knows how welcome they are, and I echo Titan and Teka - please don't be afraid to repost any questions! I am really going to try and respond to any and all questions, I know how I felt in the beginning, just looking for answers
.Denise - hang in there, and get your fluids in! The AC was the roughest for me, I really felt it when my WBCs were low. I would just sit on the couch and stare out the window, I didn't have any energy for anything else! You have a great attitude - that will help you so much down the road.
bak - don't worry, I totally get hoping for a *little* progression just to get the experimental drug. In reality I know that if the Abraxane alone didn't work, the Tig is less likely to work, but who knows? I at least want to find out. I am trying to get by on the least bit of steroids - right now I'm at 3mg/day and I think I'll need to go up to 4. But this cough is just miserable, so I guess I'd rather deal with the other crap. I just started losing my hair today - not in clumps, just strands here and there - and I was feeling off the day after my last infusion. So I know the not feeling good is coming... I just hope I can hang onto my hair over the weekend!
Maggie - yay on almost done with Taxol! I gained about 15 pounds during chemo, boy I hated that. But I lost it pretty easily when I was done, I'm sure you will too. As we all say, be sure to stay hydrated on the AC!!
Titan - those words are never easy to hear
. It just sucks that "cure" will never be in our vocabulary - well, not soon enough as far as I'm concerned. Keep the faith - you are going to be an awesome grandmother one day!Linda - thank you. Your words are always so comforting to me, you just make me smile.
MBJ - green and white? I like that! Are you thinking apple green or something more muted? I love all greens, so it all sounds lovely.
mccrimmon & Kelley - I did go through an organizing phase after I had my surgery. I've let it slide a bit, but am back to sorting and stuff now that it is more of a necessity. I think it is a great way to focus your energy on something positive - you won't NEED that stuff for many many years, but it will be nice to have it there to share with your family. It isn't morbid at all!
michello - happy dance indeed - 2 weeks!!
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So, me and my BFF are going on a girls trip tomorrow to Orlando, FL. We are actually going to visit a spiritualist camp - Cassadaga - and we are going to have a reading with a medium. We both love that kind of stuff, and find it fascinating! We are also going to a spa for some pampering and a great dinner out. I can't wait! Now, if the medium tells me I will live a very long life, I may have to ask for my money back, lol, but I think I'll be up front and let her know my diagnosis.
Have a great weekend everyone!
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wow didnt know the organizing thing was so popular! I started yesterday, by cleaning out drawers, tomorro I have closets on my list!
I too have bought photo albums, scrapbook stuff all hoping to get started on nxt week! I do have some scrapbooks I had done pre cancer. So I want to finish those and start new ones.
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I wish the organizing thing would kick in for me........maybe as I get more energy, hopefully before surgery!
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Tho my onc was very straight with me about a cure..he was also very quick to tell me that as far as he could tell I was NED....I didn't have any scans so I guess we can't know for sure..but I know he wanted to me to feel that at this point..right now..I'm ok..but see you again in 3 months.
I don't know if you guys remember but I ran in a 5K in June for a young girl that died of TN...all the $$$ goes to TN research...My onc is going to run with me next June..ha ha..I hope I can kick his **....he was the one who took care of her...I dunno...I think it really takes a special person to have his job...he's a sweetie and I love him...but I don't think I would want his job..for all the $$ in the world...how can he leave his job at the office..don't think he can.
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Why is it that the closer to treatment I get, the less I feel like sleeping?? I want to walk at midnight..and wake before the sun, just to watch it rise..my reality is changing
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Suze: Orlando sounds like a blast! Have a great time then come and tell us all about it. BTW: I was thinking anything but sage or muted colors-I want something bright and happy-a true green.
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Just an idea I want to throw out there to those who kinda feel like organizing their lives precious moments by putting albums, scrapbooks together..... well, I am into this big time and to date have made many for many of my friends and family - use windows movie maker. Scan all your pics, and put them in moviemaker, add some music, even narration if you want and you have a wonderful electronic movie of your life. I have done retirement videos, 50th birthdays, 21st birthdays, putting people's lives together in a story form. The happiness which I see on people's faces when they see their lives in front of their eyes, is priceless. I recently surprised a friend who was turning 50. Her husband brought a box of over 500 pictures, marking the back of the pics with comments and even some videos. The movie was a collage of pics, transitions of flowers, beaches, places they visited, moving videos, narration and even jokes. I had to sort the pics, before marriage, wedding, children young, teenage, their 40's etc. etc.
The surprise for her and everyone watching was priceless, unbelievable. These discs are easy to store and it is for lifetime, for all the generations to come. Moviemaker is an easy program to learn, very easy. Anyone can do it.
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Lovelyface: I think that is the nicest gift someone can give. I really admire you for the time and thoughtfulness you must put into it.
Lory48: Welcome. I think anxiety can bring on extreme activity - and insights we never had before. No question, starting treatment is a huge life step... all the best!
Titan: I've often thought that about oncs too - how do they do it? I recently watched a program about a palliative care nurse (who happened to be male) - it was extremely insightful into the rewards and yes, distress, that come with the job. I think it takes a very special person.
Suze: That trip to Orlando sounds awesome. Enjoy!
Hope everyone has a good weekend.
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