Calling all TNs
Comments
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Heather.....so sorry your husband decided to share the sick. i hope you both are doing much better today. vacation is great but being home in your own bed when sick is much better. sending you lots of healing thoughts.
Nicole41....welcome to the board. you couldn't have found a better place to be for support and love. take it all in and don't hesitate to call on us when you need a friend. isn't that a great 60's/70's song?
Charb22.....keep paying it forward. i have met some of my new best friends through this journey. nighty nite!
swiftbird.....ah the wait. don't it suck?! it will come back hunkey dorey. i just know it!
thanks all for the wonderful woot woots! you just can't slap the smile off my face today. very happy to have another chance at avoiding the jump to stage IV. if i could send you all a bouquet of flowers from my yard i would. i will have to post pics instead.
have a wonderful evening everyone. love to you all!
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I am still reeling from our losses this month.. I am a lurker, but this really took me into a bad place for a while. I am back and regaining strength. I start rads on the 9th and am trying to prepare for the SE's . Anyone have any insight/suggestions? I am currently siffering from truncal LE and am in pyysical therapy. I am hoping to get it under control before rads start.
Inmate, you inspire me!! I so love your frank attitude and thought process.. so much like me..Keeping you in my prayers fro this recurrance..
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Music is just what keeps me going. With that said here is a link to one of my old faves:
http://www.youtube.com/watch?v=2Wpof8s5ZTgBill Withers: Lean on Me.
That is what I get here on the board......THANK YOU ALL!
Is he just not the smoothest? And check out the clothes. Yes, we all looked like that back then.
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Oh, I think I posted my first picture! Just traded my old film cameras for a new compact digital! Love it! We have a big digital camera, but this is one I can take everywhere!
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An old pic I ran across.0 -
Just popping in. I have not been here for awhile. Sorry I need to go back and read all the posts so I can see How everyone is doing. I see Bak got a new camera. How fun. I love technology so any new techie thing catches my interest. Have a great day everyone!
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Lory48--today I am two weeks since finishing 35 rads. I too had trunkal LE going into it and I must admit it did get a bit worse. Today though I feel great. The pain in the side from the LE is dissipating and my skin is already getting back to "normal" I used the aquafor cream 3x a day along with hydrocortisone for the itch. It was not as bad as I had imagined. Hopefully it will be the same for you. Look at the threads of ladies who tread the path before under the radaiton thread. I was in the Jan rads group. Wishing you all the best
Inmate--so glad only local!!!! You are a true inspiration
Meeting an old a dear friend today for lunch...cannot wait...will be the best thing that has happend in a long time. Love her so much
Maggie
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Inmate so happy for your good news! You are very inspiring to us all! Cannot wait to see pics of the flowers.
Bak so happy you got a new camera. My camera is my BF!
About rads, my tip is to use Miaderm 3 or 4 times a day, don't scrub the area just pat it when washing and drying. My biggest se was fatigue so rest when you need to.
I am 9month pfc and 5 months pfr and I feel great! Getting on with my life as I did before cancer!
Have a great weekend ladies! ((hugs))
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First day back at work since vacation and I got caught in a 2 hour traffic jam!!
Bak, congrats on the new camera, have to wait until I get home to see the pic or pull it up on my phone, work blocks it.
I think Its KS - beautiful baby picture.
Tifj - congrats on the new job.
Heidi, if possible would you please re-post or pm info on where to send donations for both LJ and MBJ
I feel so behind, and chemo brain struck before vacation. Apparently I missplaced the water bill, it didn't get paid and thankfully I decided to go thru the huge bag of mail the nieghbors collected for us in the middle of the night when I couldn't sleep. They were planning on turning our water off monday for non-payment!
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Hi everybody. Just poppin in for a minute to catch up on our little corner of BCO.
Oh boy, the forgetfulness is just awful...mine seems to be getting worse. Misplacing things, making mistakes as to what time to be places(including a flight to see navyson-caught that one before it turned out to be a disaster) and remembering peoples names....I was never very good at that before chemo....hopeless at it now!. I try writing notes and lists and such but then I leave them on the kitchen counter! Yikes....makes me so mad!
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NavyMom, I am in your boat with the forgetfulness..... my short term memory gets worse everyday. I write notes but I lose them all over the house. When was your last chemo? Mine was feb 2011. I can't even multitask any longer and sometimes just trying to remember the words to get a sentence out is hard. I am a type A person with a lot of energy... sometimes I find myself literally running in circles LOL !! Your not alone :
If you figure out how to make your memory better let me know. 0 -
Tracie, my last chemo was 12-1-09. I am also a Moderate level type A personality. I think that makes this mushy thinking even worse because I am used to being organized and on top of things. I am trying to pay better attention to things..like being a better listener instead of talking so much.
I will be seeing my PCP next week and will be talking to him about my memory issues and of course METFORMIN.
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Mccrimmon I just love your posts they are so dramatic and make me giggle. First your hubby sick on vacation and then you, then a two hours traffic jam, now misplaced water bill. Just love them. Annie
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As requested:
Follow-up from LJ's friends in breastcancer.org----- it appears that LJ's friends in BC.org are planning to donate to the Fund(s) already set up at Key Bank at 418 S. College Mall Road in Bloomington, IN 47401.
We felt that this action best represented LJ's wishes and concerns. Please consider donating to either:
Laura Jane Shively Benevolent Fund (estate expenses, etc.)
OR
Joseph Shively Educational Fund (for LJ's son)
You must send your donation to the bank's address above and can note "ATTENTION: Karen" (I have spoken to Karen; she knew LJ)
You should also state how you wish the donation to be made (list your name or anonymous) AND the fund to which your donation should be made (Benevolent or Educational).
If you have any further questions or concerns the bank's number is:
(812) 331 0600For MBJ- her husband suggested donations to BC.org
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Navymom, please let us know what your PCP says about memory issues. I have huge memory issues myself. This has been going on for sometime and sometimes I shock myself. Is it because of low hormones or something? I wish I could get my memory back!!!!!
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I have memory issues also. Notes taped to my purse help;). I also got an iPhone and set an alarm if I need to remember I'm supposed to watch grand kids or anything. I am two years post lumpectomy and still have chemo brain fog some days.
Have a nice weekend everyone!
Thanks for the info on donations Heidi.0 -
If I had a dime for every time I had to wipe my ass with paper towels because I for got (again) to pick up toilet paper................
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....and if I buy one more jar of kalmata olives because I can't remember if I have any at home, I'll scream. Honestly it's like I also need notes to remember what I don't need when I do the groceries. Pre BC, I could go without a list and get everything and in an orderly fashion. Now I wonder back and forth from one end of the store to the other with my list. The only good thing is I'm logging a lot of extra steps on my pedometre!
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Wow..I think chemo brain lasts a long time...my garage door opener isnt working...so my dh and I were talking about it..and I said well..I'll just take it to the Toyota dealer and get a new one...he just looked at me like I was crazy..maybe I am...it was kinda funny but kinda freaky at the same time...he just stared and me and I was like..ok...he said that he didn't know that the car dealers had openers.....wow...it freaked me out.
Where in the hell do you get new garage door openers anyway?
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From the garage door dealer? God, I hope that's right.
My memory is gone, too. I can't keep new coworkers straight, I find the grocery list and then can't remember what I came to write down. I've literally wandered from room to room with the list, trying to remember what I need. And I've done that, too, Sugar! The one thing that sticks in my brain at the store is the thing I've already bought twice in the past week! This CRS syndrome (can't remember s***) is for the birds. What is that saying? "Of all the things I've lost, I miss my mind the most."?
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Home depot or other hardware stores have garage door openers.
The tp comment cracked me up!!!!! Yes, I too just bought an item, salsa at costco nonetheless to find I already had a large 2 pack in my pantry, plus an opened jar in the fridge! Now, I do like salsa, but that is over kill!
I love my new camera, you guys may not so much in the future, as the chicken pictures are soon to come!!!! Wasn't there a photography/art thread somewhere? That way I don't have to torture you gals!
It felt kinda like a normal life the past two days. We were talking about adding a room onto the house and a garage. Then I freaked out, what if I don't have a future? My hubby told me to knock it off:(.
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I have been being very good about not freaking out about this, but I have a hard area where my infected port was taken out. It is like a flat, kinda hard, but a bit squishy area right where my port scar is. It hurts and is very tight. My ro and pt has seen it and felt it and have not said anything. For some reason I really haven't thought much about it until the last couple of weeks, I think it has been there since my mastectomy. I am even sure my mo and bs have felt it. When they fixed my scar there they did send in tissue for a biopsy and it came out clean, but I am still worried about it. I see my mo on Tuesday and will have him look at it again. Anybody have a scar tissue area from their port? My infection was really bad and that is exactly where the infected pocket was, and they did many biopsies/cultures on it a few months back, but should I have them biopsy it again? Am I being overly cautious about this, as it had been biopsied before? My pt says it is scar tissue, would she know? Sorry for my freak out, I was doing so well earlier. Funny how quickly my mood can change!
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Thinkihg of you all.0
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Bak94 my port area is quite hard all around it but I think it might be a bit quishy if it was taken out. and then again mine has only been in for a wee while. Could it be a bit of extra skin that has stretched now you have had it taken out. It could be scare tissue as you had an infection but I don't think with this you can ever be overly cautious. I would check it out again. Not sure if this helps you.
I can never understand how I can feel so horrible on my 4th and 5th days after chemo. If ever I feel sick its them days. Tired, worn out, a few ulcers in the mouth and constipation yet I have been drinking until I am like a sponge. It always on these days I feel my worst. Can anybody remember feeling the same. All the other days I feel ok. Annie
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Cocker Spaniel-It makes since that you do not feel well on those days, I felt the same. I think it is called nadir, or the low point when your blood counts are low.
Nice picture Bernie! I can't wait to go to the tulip festival!
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You guys are cracking me up with the memory issues. I seem to have escaped that problem, surprisingly. But my DH, on the other hand, has a really bad case of CRS and now we joke that I got chemo, he got the chemo brain!
Annie - days 4 and 5 are pretty typically the worst days after chemo. I got mouth ulcers after the first treatment. My MO gave me an RX for Valtrex and I never had another mouth sore.
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What were we talking about?
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Love the TP comment. Chemo brain is absolutely terrible for me. Hubby has actually gotten frustrated with me a few times because I just don't retain anything. I over buy the salsa, and I'm big on crackers. We have boxes and boxes of crackers.
A friend of mine from Philly and I "voxer" everyday, it's an app for your iphone, it sort of makes it like a walkie talkie. She's awesome, she's at work by the time I get in the car for my drive in so I tell her a list of all the things I need to do for the day and she sends me a email so its ready for me when I get to work because by then I've forgotten most of what I've said. I don't know what I'd do without her.
Heidi, thank you so much for re-posting all the info.
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OMG! I am actually peeing in my pants laughing at you all with the memory issues! Excuse me while I go change my poise pad - which I hope to hell I have some left otherwise I will be driving to the drugstore with a wad of paper towels stuck inside my pants - so comfortable to sit on. Kind of feels as though I'm riding a camel.
Have a wonderful weekend gals, and Bak - go take some pictures - don't think anything else, but pictures!
Linda
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Oh my...now Linda's got me laughing. Off to buy some olives
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