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  • Lovelyface
    Lovelyface Member Posts: 563
    edited March 2012

    CharB22 - so sorry to hear of your kids' pop-pop's passing.  Cancer is so cruel and so sad.  Although I must say that you are one of the luckiest ladies on this board, having being stage I and a 1 cm tumor.  Hope it is all smooth sailing from this point on.

  • Lovelyface
    Lovelyface Member Posts: 563
    edited March 2012

    Does anyone have fibromalgia on this board, anyone who is triple negative and has fibromalgia.  If not fibromalgia, then anxiety disorder?

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited March 2012

    Good morning ladies, although I think for most of you its evening.  Time here in New Zealand is 7.42am and I have just started work.

    Inmate - thinking of you with your surgery. The next thing for you is a stress free and HEALTHY summer. Lots of hugs.

    CharB22 - It will be lovely for you to get rid of some bills and stress.  I never get a tax rebate in fact I have to pay some this year. Not really fair cause Mr IRD is much richer than me. Its just the old saying steal from the poor to pay the rich. 

    Has anyone had a urine infection through all this cancer stuff.  I had my third chemo yesteday and when I got home a pain started about half way from my belly button to the pubs in a  straight line. Then later in the evening it was across the bottom of my tummy.  I haven't got a temperature.  The pain came intermittently.  So far this morning I haven't had the pain but when I go to wee it is very warm.  I am going to ring my cancer nurse but just wondered if any of you had experienced anything like this.     

    Sounds like you are all on your way to summer whereas I am just into Autumn and then the dreaded Winter.  You lucky people.  

    Have a beautiful day ladies.  Keep well.  Keep free from stress and keep your chins up (supposed to help).

    Annie    

  • Luah
    Luah Member Posts: 626
    edited March 2012

    Hi ladies, the very best thing that is happening to me tomorrow is I am finally going on my dream trip: cruising the Galapagos Islands on a 16-person, 100 ft. catamaran.

    Back in December 2009, I sat in a chemo chair and said, "If I ever get through this treatment and land on the other side healthy, I am doing my bucket list journey." We were supposed to go last year, but DH ended up having surgery and a complicating infection. Finally, we are both well, and ready to go. After 2 years, I am so excited I could bust. 

    Will check in after the Easter holiday, and maybe post a few photos of the wildlife if I can figure out how - lol.   

  • mags20487
    mags20487 Member Posts: 1,092
    edited March 2012

    cocker spaniel...yes I got a terrible infection after my last chemo--saved the best for last I guess...also the one that made me vomit.  I called the doc and gave her my symptoms of pain, burning and peeing blood and she called the prescription right in for me and after the first day of meds all symptoms were gone.  Hope you get relief soon.  Just another thing to worry about I guess.

    Maggie

  • Babs37
    Babs37 Member Posts: 320
    edited March 2012
    Luah- Have a great trip!! From what you both been thru, you guys deserve it. Have fun!
  • Summer38
    Summer38 Member Posts: 96
    edited March 2012

    Luah - That sounds wonderful! Have a great trip - well deserved!

  • Lovelyface
    Lovelyface Member Posts: 563
    edited March 2012

    Hi Ann, good to hear about New Zealand as my heart is there (my mom).   I swear bladder infections are the worst thing to deal with.  I didn't have any during BC treatments, but had several in a row before my diagnosis.  I went to ER for one of those and begged them for an injection or something.  I couldn't stop going to the bathroom, it was like every second.  I hope you are drinking lots and lots of water.  It is still cold out here and raining intermittently.  Winters are very cold and windy in New Zealand, I experienced.

  • HeidiToo
    HeidiToo Member Posts: 965
    edited March 2012
    Minxie & Hope- for me, the pain you describe *was* sciatica. Amazingly, one visit to the chiropractor (hadn't been in years) got me readjusted and pain-free. May be worth a try...
  • HeidiToo
    HeidiToo Member Posts: 965
    edited March 2012

    Luah- Galapagos is one of the places i want to see also. My son went there on a Study Abroad. I almost went a year or so ago. Looking forward to your photos!

  • sugar77
    sugar77 Member Posts: 1,328
    edited March 2012

    Luah - so happy for you.  Enjoy your trip and hopefully we'll see you on the 15th!

    My bucket list calls for a trip to Tenerife in the Canary Islands when I turn 50, in two years. 

  • sugar77
    sugar77 Member Posts: 1,328
    edited March 2012

    Me again with the eyes...today I picked up my new glasses and wearing them makes me feel like I'm in a "funhouse"...only it's no fun.  I think the script might be off. The astigmatism correction is throwing me off and I can't stand wearing them. I miss my old "pre-BC" eyes :(

  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    Luah - want a wonderful sounding trip, that is on my bucket list too!  Have a wonderful trip!

  • Hope60
    Hope60 Member Posts: 150
    edited March 2012

    Thank you all for taking the time to respond about my hip...you helped me put it into perspective. I'm thinking its most likely nothing too serious.  Will try some heat, stretching, etc until I see my onc in a few weeks for my regular check up.  But if it gets worse, I'll see her sooner.

    Luah - your trip sounds great, and I'm so excited for you! I was just  thinking today about my "chemo chair bucket list."  Seems like once treatment ended, responsibilities rushed right in again,  but you've inspired me to get going on that list!

    Sugar - I know what you mean...having eye problems too, but I'm putting off the eye doc visit......3 doc appointments in the next few weeks is more than enough for me!

  • ksmatthews
    ksmatthews Member Posts: 743
    edited March 2012

    Luah have an awesome trip!

  • lrm216
    lrm216 Member Posts: 534
    edited March 2012

    Luah:

    Enjoy, enjoy and then enjoy some more!  Bon Voyage!

    Linda

  • christina1961
    christina1961 Member Posts: 450
    edited March 2012

    Luah, That sounds fantastic!  I hope you have a great trip!

    Ann, I dimly remember something about cytoxan being irritating to the bladder.  I have suffered from bladder infections my whole life. I was so afraid I would get one during chemo but never did, but we are all so different in our reactions to chemo - my sister had the same chemo but had totally different problems from it.Hope you feel better soon!  You don't need that misery added to the mix.

  • Hope60
    Hope60 Member Posts: 150
    edited March 2012

    christina19 - I think you're  right about the cytoxan.  I remember having to have some kind of kidney test before I started chemo, and I think I was told that cytoxan can be hard on the whole urinary system.

  • TifJ
    TifJ Member Posts: 804
    edited March 2012

    Good evening ladies! Wow, going back to work after 10 years has been tiring!! By the time I get home then the kids 20 minutes later, dinner and household chores- it is bedtime! At least I am sleeping better because I am exhausted! I am enjoying working at the school though!

    Luah- I would love to see the Galapagos, but not on a boat! I would throw up the entire trip!! I hope you have an amazing trip!! Be safe!!

    Bak- so glad rads are over!!!

    Inmate- been thinking about you and hoping your surgery and chemo go well (as well as they can anyway).

    I have a 3 month MO checkup tomorrow. As always I am a bit nervous, but nothing feels unusual right now. I just have alot of achiness as usual- just geting old!!

  • ksmatthews
    ksmatthews Member Posts: 743
    edited March 2012
  • ksmatthews
    ksmatthews Member Posts: 743
    edited March 2012

    That is my new little nephew!  I am so proud of him, my sister had a rough 8 months with him, but it was all worth it when he arrived healthy.  Just wanted to share with you all!

  • TifJ
    TifJ Member Posts: 804
    edited March 2012

    He's so handsome KS!! What a joy!!

  • Titan
    Titan Member Posts: 1,313
    edited March 2012

    Oh Luah..have fun..lucky, lucky you...you certainly deserve this trip!



    Tif..you will work out a routine...congrats on the new job.



    Oh Karen..Carson is beautiful...such a sweet little boy...very precious



    That's weird about the UTI's..I had several b-4 I was diagnosed...haven't had one since...

  • mitymuffin
    mitymuffin Member Posts: 242
    edited March 2012
    Luah, Yahoo!  There is nothing like having been through the valley of fear and pain to give you appreciation for the beauty and freedom of the ocean and sky.  Enjoy.
  • onvacation
    onvacation Member Posts: 521
    edited March 2012

    ksmatthews- what a beautiful baby!

  • HeidiToo
    HeidiToo Member Posts: 965
    edited March 2012

    KS- congrats on the new arrival!

    Sugar- I bet you will get use to those glasses in a day or so. I've experienced similar stuff with new glasses.

  • swiftbird
    swiftbird Member Posts: 78
    edited March 2012

    Sugar77, I have noticed it too. My prescription has gotten a bit stronger, and now I need cheaters. I guess I could write it off to aging, as when I started chemo I was like 41 but geez!... what Lovelyface rings VERY true for me. I notice that when I don't get a solid night sleep, I wake up bleary eyed and that wasn't the case before chemo.

    Well I have my 6 month check up tomorow - blood work, compulsory boobsmooshing, etc. Praying I get out with just a "well, might think about losing 15 pounds..." I can live with that (in addition to, of course, lymphedema, which, all things considered, I won't complain about)

  • ksmatthews
    ksmatthews Member Posts: 743
    edited March 2012

    Thank you all so much!  I think he is precious!  (of course I am biased)  I took the photo.  I am a new photographer.  I cannot wait to do his newborn session in 2 weeks.

  • swiftbird
    swiftbird Member Posts: 78
    edited March 2012

    ((((((((Inmate)))))))) Thanks for keeping us up to date. We're all here and thinking happy thoughts for you. Am sure you have moments of doubt and wonder and frustration, but your positive and defiant 'tude is so cool. 

  • patsfan
    patsfan Member Posts: 13
    edited March 2012

    Ks- He's precious--nothing like a baby to brighten everyone's day--even if it is only a pic for us.  You're lucky you get the real thing!  Love the name.  My 10yo is Carson also.  He's what kept me going during chemo.  I had to be brave and not let him know I was scared, so he wouldn't be scared.  It would have been easy to curl up on the couch and become a potato, but I put on a good front for him, and before I knew it it was over.

    rachelvk- Wahoo for your last chemo tomorrow.  When people tell me "your lucky it was breast cancer."  I think they think if you have your breast cut off --poof like magic the cancer's gone.  I usually say something like, "actually it has a very high recurrence rate and no 2 breast cancers act the same.  It's really a crapshoot.  I Just keep my fingers crossed and am diligent with my follow-up".  That let's them know that for us we are living with this everyday for the rest of our lives!

    Inmate-Sorry about more chemo for you. 

    michele-Were you in menopause when they took your ovaries out?  Am I right in thinking that if I am postmenopausal, that my ovaries are doing absolutely nothing?  I think I want them both out.

    I went to a new Dr. yesterday.  She is at a breast cancer treatment center.  She is setting me up with a gynecological onc and a bc onc and is scheduling an MRI for the bone pain under my arm.  All are in the same building.  It's about a 2 hour drive for me, but I left there with a feeling of security, like I have a whole team now watching over me.  I truly have felt like the past month I've been passed from one dr to another.  Her words were "Let's do an MRI and we'll start fresh."  Finally feel confident that every concern I have isn't written off as "scar tissue" without even checking.  Hopefully I can get in next week.