Calling all TNs

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Comments

  • JazzyJ
    JazzyJ Member Posts: 124
    edited July 2012

    Brower-I get a sore throat and sensitive mouth with every treatment..... I gargle with 1/2 teaspoon of salt mixed with a cup of warm water. I also use Biotine mouth rinse after every brushing and eating. During the first and second cycle, I also got a few mouth sores and rinsed with the "magic mouthwash" your Onc will call in for you. This time around, I didn't get mouth sores but I was gifted with an earache along with the sore throat. An important point, check your temperature every few hours to make sure you do not have a fever. Good luck!

  • Lory48
    Lory48 Member Posts: 266
    edited July 2012

    Thanks Shar! Haircut #2 under my belt- just trying to get a style out of this. All day today I have not been able to get a breath. Been using my inhaler (first time in a yr) but still no help. Coughing and coughing oh my ! Am hoping it's just a bad allergy attack.

  • Spica16
    Spica16 Member Posts: 71
    edited July 2012

    Lory - Is your air still smokey from the wildfire? The sky looks dirtier towards Boise from here. We need a good rain to clean things up. 

    My hair is getting longer, but sticking straight up! No wonder the dog looks at me funny!

    Hope they find an answer for you tomorrow ~ Shar 

  • browerl
    browerl Member Posts: 77
    edited July 2012

    thanks for all the advice ladies.  I have been gargling with salt water and it does feel better.  So far my blood work had been great so no shot after chemo.   I have read that salmon helps keep blood levels up so I have been eating that a couple times a week.  Lory hair looks great, I am still waiting to loose mine should be next week.

  • christina1961
    christina1961 Member Posts: 450
    edited July 2012

    Bernie,

    I love Calva!  What beautiful jowls, a very distinguished looking dog!

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    edited July 2012

    Hello christina 1961,

    Thank you for referring Michael to the UK thread. I shall do all I can to help. I saw the new thread and was just about to read that post when it popped up on  my own.

    I do hope all is well with you.

    Thinking of you,

    Sylvia.

  • borntosurvive
    borntosurvive Member Posts: 194
    edited July 2012

    Hi Ladies

    I am hoping everyone is having a good day today.  Good luck Lory with the tests.  I hope all comes back okay and you can breathe easily again.  I think our minds make it worse for us then it is but yes any and all tests are nerve wracking.  Hang in there!!!

    I woke up this morning with a bladder infection so I am on antibiotics for a week.  Not fun but there are way worse things.  Happy Tuesday xoxo

  • minxie
    minxie Member Posts: 239
    edited July 2012

    Hi Guys, just poking back in to say I finished all my rads yesterday. I have a long bad burn right under the scar, and some more higher on the chest, but other than that am OK. I also started back to work yesterday. Boy was I tired! It is good to getting back to a "normal" life though, whatever that may be. Hope you all are doing OK.

  • wrsmith2x
    wrsmith2x Member Posts: 127
    edited July 2012

    Minxie, 

    I had been wondering about you....wondered what all you had to endure with your local recurrence and how you are doing emotionally about it?  Hope all is well.

    Namaste'. 

  • borntosurvive
    borntosurvive Member Posts: 194
    edited July 2012

    Has anyone heard from Hope60? Just wondering if she is okay.  I have been thinking of her as I'm sure we all have been.

  • Luah
    Luah Member Posts: 626
    edited July 2012

    Hi ladies: Back from my holiday to Newfoundland and Labrador which was fabulous. Loads of interesting history and breath-taking scenery. Remote and peaceful. And the hospitality? - well let's just say it lives up to everything we heard about 911 and immediately after, when Newfoundlanders opened their hearts and homes to planeloads of stranded passengers.  

    I finally got through all the pages of posts and unfortunately can't keep up with everyone's news. Just want to shout out "cancer fuckin' sucks" to Inmate. Jeesh, you deserve a break... but that indomitable spirit of yours carries on and will prevail!!

    Hope60, thinking of you too and hoping it's all a terrible mistake... or, if worse, that the good docs have put together a good plan for you to move forward with. (((hugs)))

    To all the newbies, welcome, welcome. And to those in treatment, healing thoughts -- it does get better.  

  • christina1961
    christina1961 Member Posts: 450
    edited July 2012

    Sylvia, thank you! I just read your very warm welcome to Michael and I am glad he is receiving some input on his efforts. I am doing well.  I certainly have been staying busy with work the past few months. 

    Hope60, I just want to say that I am thinking of you. 

    Inmate, sending you positive thoughts, too.  I hate this disease so much and wish we had a cure now.

    Annie, You out there?  Did I miss a recent post?

    Love to all,

    Christina

  • ksmatthews
    ksmatthews Member Posts: 743
    edited July 2012

    I went to onc today for another follow up.  I was not there long.   She asked how I felt, I told her fine and she said can I do anything for you.  I said no and she said see ya in 3 months!  lol

    Waste of time?  I think so! 

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited July 2012

    KS - no labs, no physical exam, no nothing?  That would be a big waste of time!

    Luah - your trip sounds fabulous!  I would love to see those areas of Canada, and it's not that far away from me!

  • Titan
    Titan Member Posts: 1,313
    edited July 2012

    Hey Karen..gotta love the waste of time!  I do hope though that you got felt up and examined at least a little???  I don't have blood tests or scanned but I am examined very thoroughly. 

    Miss you Cocker..and the ol' feller and that dog of yours..hope everything is ok with you.

    Hope...miss you also...I don't like to pry but we are here for you...ok???

    been meaning to tell you Luv..how beautiful that baby is....and there is now way no how you look like a great grandma but you are truly blessed with that little man.

    Hey wrsmith!  we have known each other along time haven't we?  Hope that you and Minxie are done with this FC...like now!

  • Lory48
    Lory48 Member Posts: 266
    edited July 2012

    Shar, The smoke is still hanging around causing me some bad allergy crap. Spent most of yesterday coughing and unable to get enough air in my lungs to do much. I have allergy induced asthma and the fires are kicking it into overdrive. I saw that there was a new fire near Caldwell and now one near Micron. The ct today was interesting as they could use my right arm (my good arm) for the IV. She did good and found a decent vein. Now the wait is on for the results.

  • mags20487
    mags20487 Member Posts: 1,092
    edited July 2012

    minxie...so happy that you checked in ...congrats on finishing rads! 

    Hello newbies and HOPE 60 check in to let us know what is up.  I keep thinking that I am going to take a break from this board for a while but I just cannot seem to do it.  I want to know what is going on with all my sisters!

    Maggie

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited July 2012

    Thanks, Titan!  At 62 I guess I would qualify as a young great-grandma! 

  • browerl
    browerl Member Posts: 77
    edited July 2012

    Hello all hope all is doing well.  It has been one week today since my first chemo treatment and I am so excited to report, my tumor that was visually noticable last week, can barely be felt.  I had to really feel around and try to find it, when all this started, you could look at my chest and see it.  It is truley amazing, this is why I wanted surgery after chemo I wanted to see it working!  Can't wait to go to the doc on 8/3 and see what she says.

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    hi ladies,

    brow.....how's your throat?  hope it is feeling better

    minxie.....so happy to hear from you.  yeah for being done and happy first week back to work.  remember to take it easy.  slow and steady to start.

    luah....your trip sounds wonderful.  are you going to post pics?

    lory....thinking of you and sending good thoughts for your tests.

    ksmatthews.....yeah.  a free summer with no tests.  good for you!

    oh born.....yuck on the infection.

    gma....did the fluids help?  extra fluids can make a big difference.

    thanks all for the nice comments on the pics and the swear words.  both were very welcome.

    i don't want to miss anyone so i will split my message tonight so i can read back a few pages. 

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    brow......YEAH!

    Hope......sending you my love.

    Luv......really? Nah, you can't be 62!

    Titan......that is the best part of going to the doctor, isn't it?

    Hey Mags!.....thanks for checking on us girls.

    Well, I'm sure I missed some of you wonderful ladies, but I think of you all often.

    I finally got my official results from the biopsy today.  Shocker, it was positive.  Huh, really?  Well, the little buggers have spread to both sides of my chest since last week so I will be starting chemo again next week.  Looks like rads are out of the question because I cannot have any more on "lefty".  The good thing with the skin mets, we will be able to see if this chemo (don't know which one yet) is working.  I feel a little like a turkey with that done button.  Funny, I just want to be done!

    As far as I know the clinical trials are for people who still have evidence of disease.  When I first talked with the research group I did not have any.  Two days later my skin mets reappeared.  As much as I don't like having to do this again, they may very well be saving my life by qualifying me for the trial.  Friggin silver lining.  How come mine seems to be so tarnished?  Off to look for my silver polish!

    I hope everyone had a great day!  Love to you all! 

  • browerl
    browerl Member Posts: 77
    edited July 2012

    Sorry inmate hang strong you are a beautiful and powerful women.  My throat is doing great as long as I keep up with the salt water.

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    This is who I got to spend my weekend with.....this pic was of my last day of my last chemo.  my great nephew...Baker James

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Okay....here is one from last weekend....as my sister said...this is the definition of happiness 

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012

    Brilliant pictures, Inmate.Little Red Riding Hood is skipping down the road when she sees the Big
    Bad Wolf crouched down behind a log.

    "My what big eyes you have, Mr Wolf", says Little Red Riding Hood.

    The wolf jumps up and runs away. Further down the road Little Red
    Riding Hood sees the wolf again. This time he is crouched behind a tree
    stump.

    "My what big ears you have, Mr Wolf", says Little Red Riding Hood.

    Again the wolf jumps up and runs away. Some distance further down the
    track Little Red Riding Hood again encounters the Big Bad Wolf, this time
    crouched behind a road sign.

    "My what big teeth you have, Mr Wolf", taunts Little Red Riding Hood.

    With that the Big Bad Wolf jumps up and screams... "Will you eff off,
    I'm trying to take a s**t !"

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Bernie....I was trying to recite it to my husband and I couldn't even get the whole thing out before bursting into laughter, then tears.  Thank you!

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited July 2012

    Too funny, BE!!!

    Inmate, so sorry you are staring at skin mets AGAIN!  That is just so not fair!  I am sending love and hope for a treatment that works, once and for all.  And oh, you CAN have rads again under certain circumstances...I had both Mammosite and external radiation on my left side.  I've definitely reached my lifetime limit.  But if you've had rads just once, there may be an option.  And your great nephew is just adorable!  I can see he brings you great joy!  And he has quite the head of hair...I advice you not show this picture on the Hair, hair, hair thread...it'll kill those ladie waiting for theirs to grow in...lol!

  • Tookybum
    Tookybum Member Posts: 27
    edited July 2012

    <BE> Thanks for the laugh.  Need to bring that one to my husband.

    <Inmate> So sucks...The pictures were great.  What a cutie (well both of you).  Sending you some "silver polish" thoughts your way.

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Luv....thanks for the sound advice.  He was born with a full thick head of hair.  I swear he looked like he had a sleeping cat on his head.  Or an old man with a very unbelievable toupee.  He is now 7 months old and his hair is long and luxurious.  Both his dad and grandpa have very little hair.  So the envy abounds in our family.  Including from auntie Dawn.

  • Hope60
    Hope60 Member Posts: 150
    edited July 2012

    Hi beautiful ladies- sorry for my last scary post and inability to check in before now.  Just got home from hospital today....have been there 2 and a half weeks I think.  Had brain mets, brain surgery, going for brain rads to hopefully shrink other mets.  Wanted to let you know that I';m alive and kicking and willl be  back to post and read more later.  Thanks for all the  good  wishes.