Calling all TNs
Comments
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have fun FernMf I am glad to here that surgery recovery was good because I still have that too go. I sure do hope that this chemo stuff stays like it is now everyone around me is amazed that I am doing so well.
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Hello ladies-
New to this site. I was dx on 6/20/12 with IDC TN grade 3 1.7cm. BMX surgery planned for August. The info you have been providing has been wonderful. I have been worrying about the next few weeks and then chemo, but your views have given me a great understanding of what is going to happen. You ladies are an inspiration and brave to tell it like it is. No sugar coating.
Inmate - thank you for the pictures. You don't know how much I appreciate seeing those.
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Tookybum,
I didn't even think about the mastectomy scars when posting the pics. Right after my Mx I whipped off my shirt to show my brother-in-law. I have known him since I was in 4th grade and didn't want him to think of me as hurt/different or weak in any way. So, like a bandaid, I ripped it off and said "see, it's not so bad". Talk about deer in head lights. Poor guy, I may have ruined him.
Luv.......awwwwwww what a cute baby!
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Inmate, I had to laugh when I pictured your brother-in-law's reaction to your little "display". I remember how my nephew reacted when my Mom whipped off her wig without any warning - of course, he was only around 16.
But, thank you for sharing your pictures with us. I think it is very helpful for those about to go through the surgery to know what to expect.
I hope that you have a complete recovery from the skin mets and never have to deal with this FC again. You've gone through more than your share. It's time to get on with your new future.
Doreen
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Thanks so much Doreen. Did your nephew recover? 16 is such a delicate age for boys. Well, 16-30 are really delicate years for boys.
The neighbors are having a Quinceanera party tonight. It started out with lots of mexican polka and digressed to hip hop with a little ACDC thrown in. Oh the modern 15 year old birthday party.
Love to you all!
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Thinking of the families in Denver
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Ladies-- hope everyone had a good night. I am sad today that my son has to go home to FLA tomorrow. Have really enjoyed seeing him on the sofa next to me! Hate that I felt so bad, I didn't leave the house, yet. Twisted the arms of DH, & DS to have dinner out with DD & family (grand kids 4 & 5) on Friday. We r all going to her house this afternoon & have dinner later. I may hang out on her sofa, while they swim in neighborhood pool. Or, if I can manage the heat, go down & watch for a while. This Taxotere has been hard on me--still taking oxycodone at night so I can sleep. Bone pain, especially knees & shins, is really bad. Don't know it my osteoarthritis made the pain strike there, or not. But, felt like I had to force my brain to tell the legs how to walk for a couple of days. Weird!
Trying to force the looming thyroid issue to back of mind--focusing on getting rid of SE's for a weekend trip to Chicago next weekend. Going with grand kids (& their Mom & Dad!) for a pre-kindergarten BIG CITY adventure. Squeezing in fun times between chemo is a needed goal, don't you agree?
Enjoy the rest of your weekend, everyone.0 -
GMA- I don't remember seeing if you are getting the Nuelasta shot after treatment. If you are, it is probably the source of your bone pain. Are you taking a combination of Claritin and A pain reliever? It really helps! I hope you get to enjoy your family time!
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Hi Ladies!
Sorry for being so off topic... Someone put the name of an ant killer on this site, was it you cocker? I would appreciate it if you could name it again. It must have worked for you because they came to me ! Cocker and Bernie I really enjoy reading your posts Tks
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Cocker... where are you ? Hope all is OK with you and your old feller.
Good wishes to all with much love and happiness.
Take care xx
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Hello Dear Ones,
HMP12- welcome! So sorry you have to begin this journey, but we'll all help you anyway we can. And believe me when I say, you can ask us ANYTHING!
LuvB - sorry you are sad over your son leaving. Hope you had a great visit. Your visit to Chicago soundsike fun. Standing on the glass platform off of the Sears tower is on my bucket list :0 I am terrified of heights!
Inmate - I hope the party didn't go on for too long.
I am still working on my car trip up North. We're tent camping - oh freaking joy! My MIL has a 6 bedroom house on the water in E. Boothbay ME and I have to camp! MIL is 85 and my evil SIL lives with/off her. It gets into the 50's at night and if it rains, I may go ballistic! Anyone have a basement around there I could camp in?
* Note to self - refill Ativan0 -
HMP Welcome to this band of sisters. Sorry you have to be here, but we are all about support, as you can tell. Keep in touch and we'll cheer you along.
Inmate Thanks for being a role model for so many sisters.
Cocker Annie Where are you? I miss your daily messages. I've been concerned about your hands and hope hope hope you are just out having fun with the old feller and his cafe.
My best thing recently was the several days I was able to spend with the grandkids. They alone make cancer worth fighting.
I see MO Tuesday for a 3 month follow-up. My list of questions and anxiety is growing.
Prayers to the people of Colorado. And to all of you in treatment. Jan
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Inmate - "16-30 are really delicate years for boys" and 31-60 are really delicate years for men.
I posted the story of my Mom and her wig late last night and I have to blame chemo-brain for the fact that I forgot to mention that she was going through chemo and was bald at the time - adds a little something to the picture, doesn't it?
Want to hear something sad (well, pathetic, anyway)? Last night I DREAMT my hair was growing back in. I'm 5 weeks past my last chemo treatment so I guess I have a few weeks to go. The good thing is my hair was growing in brunette, unlike the grey it's actually going to grow in.
Congrats to everyone with new babies in their lives or soon to be - that's what it's all about, right?
Good luck to everyone having treatments this week or dealing with SEs.
Doreen
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Hello ladies, I started chemo this past Tuesday. I am happy to report that I am doing well however, I have this really annoying sore throat, to the point that it wakes me up. Is this a side affect? What should I do?
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TifJ--yes, I am getting the Neulasta, but I have already had three, and had no pain with them. Yes, I am taking the Claritin, and have been on the oxycodone, most of the time for the pain. After constipation for 3 days, now i have diarrhea, and running a fever. Dr on call said to alternate Tylenol & ibuprofen, and call MO in morning. Since I am suffer from the big "C" , I wasn't prepared for the big "D", all I have in the house is Pepto tablets. Taking my Ibuprofen now, and going back to bed.
OBXK--yes, we had nice visit, but hated that his visit came during my max SE days. I don't think i can do the tower in Chicago--I can barely do escalators that are open on side. :-((
SallyO--I think the name of the ant killer was Terro ant bait, but I don't remember who posted it either.
hoping for a better day tomorrow :-)0 -
browerl...do you get a neulasta shot the day after chemo? I did and had swollen glands in my throat after each chemo. It was like a sore throat on steroids--haha. Both sides of my neck hurt and it went down into my shoulders too. Hope this is all it is for you. Ask the doc about it if it is too bothersome. No need to suffer needlessly! Glad you are doing well otherwise.
Maggie
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No Maggie I have only had one chemo treatment but I have not had the neulasta shot at all.
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Gma- Well shoot! I had bad diarrhea as well. I took Immodium and it cleared right up. Definitely see your MO. I developed neutropenic fever after my first chemo and had to go into the cancer center everyday for a week to get antibiotics through my port. Hope you feel better soon!
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Brower - the mucous membranes in your mouth and throat can and often do get irritated from chemo. I found that I couldn't eat anything remotely spicy nor drink red wine because it burned all the way down. Ice cream was a good antidote! If it is bothering you, ask your doctor for a prescription for "magic mouthwash". It's a concoction that the pharmacist can make up for you. It should relieve your sore throat.
GERD or heartburn can also cause a sore throat. I took Prilosec during A/C and both Prilosec and Pepcid during Taxol.
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Calva taking life seriously 0 -
sorry browerl...hope you get some relief soon!
Maggie
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Bernie.. Calva is very serious but beautiful. Love him.
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Getting IV fluids in the infusion ctr, cant get bood from port yet. Hope they can, after some hydration. Sad that i couldnt go with my son to airport, but like he said "its just a car ride to airport, mom, stay home take care of yourself" how'd he get to be so smart.
Hated that i was in such pain last night, broke down & sobbed. Think i scared DS & DH both. I try not to cry in front if them:-) didnt know what i should take for pain, & if it would mask fever, if they sent me to ER.
Nurse mentioned C-diff, that scares me. Just finished augmentin last week for the parotid infection. Who knew this road to recovery could have so many side streets & detours!!0 -
Inmate: Sorry you have to go through this sh^t again! Sorry I can't even sugar coat it, it stinks and sucks! Enough is enough.
Nuelasta-I gave myself the shot six times. YIKES! I still can't believe I did this. I never had too much discomfort, but hey I never inserted everything fully in either. I would give up about halfway and say I think that's enough.
This board just seems to keep moving right along....
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OBXK - I hope you at the very least brought insulated underwear and a very large bottle of whiskey!
Inmate - thank you for those pictures. I love your delightful impish smile.
Jan - good luck tomorrow.
LuvB - I'm glad to hear you're at the center and getting treatment. Feel better. (thanks for giving SallyO, that info)
Brow - LuvR and everyone already gave you great advice. Like she said, make sure they check for acid reflux. (when mine is bad it presents as a sore throat, and it will wake me up with severe pain and an awful cough during the night)
LuvR - how you doing Grandma?
Bernie - *kisses Calva*
Tazzy - are you in rads yet, and how are you doing?
Cocker - hope you are just busy getting ready for your rads?
Hope60 - still praying for you.0 -
Inmate thank you for posting your picture. It's nice knowing what to kind of look for.
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Kathyrnn... nope not in rads yet, that comes after surgery of which I am still awaiting a date. BS said first couple of weeks in August sometime... so they had better get moving. Really frustrating not knowing. But least I am jut over 4 weeks PFC and getting stronger. And the BS did say he wanted me to recover for 6 weeks after chemo before surgery so.... ??
Hope everyone else is doing well and enjoying the Summer as much as you can if you are getting ready for more tx or suffering SE's.
Take care all, thinking of you xxx
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Hi Ladies, tomorrow morning is the CT on my organs.. they are trying to figure out the source of my pain and diarrhea (sp). I am a nervous wreck about this- but it needs to be done.
Loretta, I had the same cocktail. I also had the sore throat- try gargling with some baby liquid bendryl. So, you are not getting the nuelasta shot on teh 3rd day after? I guess each doc is different.
Inmate- you are a true inspiration of strength to all of us.
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Hey Lory - you're rockin' the 'do!!!
~ Shar
P.S. Good luck tomorrow
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