Calling all TNs

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  • FernMF
    FernMF Member Posts: 274
    edited July 2012

    I am to begin Taxotere/Cytoxan on July 31 . . . any "helpful hints" or loving warnings . . . I'm scared . . .

    ONCOTYPE came back confirming triple negative (the doc was holding out hope that the PR 1-5% could help - it did NOT)

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2012

    Inmate you are beautiful inside and out.  Your courage knows no bounds.  Enjoy your time with your sister brave and courageous girl you deserve every minute of it.  This time things will be alright for you.

  • OBXK
    OBXK Member Posts: 689
    edited July 2012

    Inmate - loved the photos. For those of us who are battle scarred, it's good to know there are others out there. I am glad I took a photo of my boobs, the night before surgery.



    Michelle- beautiful baby.



    Pinky- I had ACT the first go round, and a MUGA. Couldn't have the A second time around, because I'd had my lifetime supply!



    Hugs all around.

  • phgraham
    phgraham Member Posts: 909
    edited July 2012

    Inmate,

    Georgeous images! ...and you have such a beautiful smile. Hope you are feeling good and have a wonderful weekend with your sister.



    Phyllis

  • dgcote
    dgcote Member Posts: 17
    edited July 2012

    I started the same cocktail  July 6th am going in next friday for the 2nd round, depending on the meds the only side effect i had was a few pangs of pain in the bones, and an upset stomach for a week or so.  Emotionally I was a wreck for days before hand but the nurses took good care of me during the whole session. Wishing you the best of luck, bring a good book or some form of entertainment it will be a long day. Mine took 6 hours.

  • Titan
    Titan Member Posts: 1,313
    edited July 2012

    Ah..Inmate...you are totally incredible...I hate cancer so damn much and  I see women like you that give it the freaking "f u" way to go lady...your hubby sounds like a keeper too...

    Hope everyone has a great weekend...seems like the women going through chemo right now are doing ok...that's good...I remember people telling me that it is only a short time and I thought blah..but maybe it is...

    Love you ladies.......

  • ksmatthews
    ksmatthews Member Posts: 743
    edited July 2012

    Luv congrats on the new baby!  Just precious!!

    Inmate you are so brave!  Thank you for sharing.   

  • FernMF
    FernMF Member Posts: 274
    edited July 2012

    Thanks dgcote . . . I am scared . . . have 11 days to dwell on it (OR NOT!) and then get started . . . hoping my experience can mirror yours . . .

  • PinkyWI
    PinkyWI Member Posts: 29
    edited July 2012

    Thanks OBXK, I'm scared of most of this 'stuff' but becasue I have my MUGA tomorrow, I am most scared of that right now. 

    For those who are going through chemo now, I had my port implanted Tuesday and the pre-op nurse, who had the cutest short haircut, shared that she just had her port removed about two months ago.  She said to ask for ice chips and chew/suck on them when you are getting chemo and that will help lessen mouth sores.  She got the same regimine that I will be getting and only had one small mouth sore.  There is hope!

    Also, she had more problems with the 'T' part -- ended up getting blood transfusions.  That part was not very encourging but it helped to see that she came through it okay.

  • Lovelyface
    Lovelyface Member Posts: 563
    edited July 2012

    Hi Navymom, and all you wonderful ladies!  I am so sorry for not posting in a while, just having eye problems and severe lethargy (don't know why), did not want to be on the computer too much as the glare hurts my eyes these days.   I mainly just go to sleep after work, hoping the monster isn't back.  Am due for check-ups in August. Just wanted to say Hi for now, also say that Inmate, honey, you Rock!!!!  You are still very beautiful!  I am so very sorry for those of you who are going through a tough time. Have a peaceful, beautiful sleep everyone!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2012

    The priest in a small village loved the cock and
    hens he kept in the chicken run behind the church.one saturday night the cock
    went missing.  The priest knew that illegal cock fights took place so
    he addressed the matter from the pulpit to his parishers in church the next
    morning.     "has anybody" he questioned with a
    stern voice  "got a cock?  all the men stood up.

    " no,no''  he said, that wasn't what I meant.  has anybody seen a cock?" 

    All the women stood up.   ''no no" he said somewhat flustered by now.  
    that wasn't what I meant.   Has anybody seen a cock that doesn,t
    belong to them.   Half the women stood up.   "no no'
    that wasn't what I meant at all.  Has anybody seen MY cock?  All the nuns, three
    alter boys,two priests and a goat stood up.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2012

    Any chance of our hair coming back like this!!

     

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012
  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012
    A little boy comes down to breakfast. Since they live on a farm, his mother asks if he had done his chores.

    "Not yet," said the little boy.

    His mother tells him no breakfast until he does his chores.

    Well, he's a little pissed off, so he goes to feed the chickens, and he kicks a chicken. He goes to feed the cows, and he kicks a cow. He goes to feed the pigs, and he kicks a pig. He goes back in for breakfast and his mother gives him a bowl of dry cereal.

    "How come I don't get any eggs and bacon? Why don't I have any milk in my cereal?" he asks.

    "Well," his mother says, "I saw you kick a chicken, so you don't get any eggs for a week. I saw you kick the pig, so you don't get any bacon for a week either. I saw you kick the cow so for a week you aren't getting any milk."

    Just then, his father comes down for breakfast and kicks the pussycat halfway across the kitchen.

    The little boy looks up at his mother with a smile, and says, "You gonna tell him or should I?"

  • fishinurse
    fishinurse Member Posts: 26
    edited July 2012
    Yesterday was a bit tough,ended up with thrush,nasty sore throat,wickedly tired and sore,it was 4th day since AC,had neulasta on Tuesday,took Claritin as advised> Not gonna lie,my mood was low,THEN, My daughter Andrea who is 5 months pregnant with my 1st grandbaby had an ultrasound ,i got to see the ultrasound,that baby was like a fart in a skillet! So active! Found out she is having a boy!They gave us so many pics of the ultrasound,keeping them posted where i can see them so that when i get low,  can experience that happiness that made my day %100 better!!!!
  • mags20487
    mags20487 Member Posts: 1,092
    edited July 2012

    Inmate...you rock!!

    fishinurse...congrats on the baby grandbaby soon to come.  I always got the wicked throat pain too...think it comes from neulasta cuz had it for all 8 treatments.  Should only last a couple of days . Keep your chin up.  You can do this!

    Luvrving--love the baby pic...so awesome that you are sharing with us.

    Just had 2 spots biopsied on my back.  Here's to hoping it is not melanoma. 

    wondering about Minxie now and glad you checked in Lovely...we get sad when a sister goes AWOL

    Maggie

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012
  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012
  • Gemmy1
    Gemmy1 Member Posts: 31
    edited July 2012

    Fishinurse,

    Congrats on the grand son! Wonderful news can certainly make your day.

    I had thrush 4 times! That stuff is nasty. Tried three different treatments plus homeopathic stuff. Fifteen days of Diflucan worked best. Also, if you get mouth sores, ask for a scrip for magic mouthwash. It's a pharmacy compounded blend of malox, benedrill and peptobismol. Numbs your mouth and throat and heals things up quick!



    Funny thing yesterday, I had to tweeze a stray eyebrow hair! Still have 12 eyelashes but brows seem to be coming back!



    Hope you all have a wonderful weekend!

    T

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited July 2012

    For you, BE!

  • Lovelyface
    Lovelyface Member Posts: 563
    edited July 2012

    Mags - what kind of spots did you have biopsied?  On your back?  I have lots of them especially in my back these days as I get older.  How did you notice these new spots appear?

    Additionally, I have a brown spot appear on my nose, which is really obvious.  It is kind of dark and sometimes gets darker other times lighter.  It is really scaring me.  But I know that during menopause many women get dark patches on their face. I have another lighter, larger dark patch near my ear, and I have seen that in a lot of other women.  But now, I am so scared about this spot on my nose.  I should get this checked.

    I heard on the news that maybe melanoma is getting to be a bigger threat for women than breast cancer.  Is this true?  Did anyone else hear this?

    I hope both our spots are just liver spots or something.

  • onvacation
    onvacation Member Posts: 521
    edited July 2012

    Inmate, thanks for posting the pics.

    Luv, what a beautiful baby! 

  • sugar77
    sugar77 Member Posts: 1,328
    edited July 2012

    Hi everyone, hope you're all doing well.

    Inmate, thanks for sharing your photos. You are very brave and such an inspiration. I know helps so many of us to see your photos.

    Lovelyface, so glad to see you post again. We missed you.

    Anybody heard from Hope60? I'm sending her good vibes.  

    I've had a lipoma on my back for at least 20 years and I finally decided to see about getting it removed.  So, a month ago I got up the nerve and saw my GP about it.  I got a call yesterday with an appointment with the specialist and it turns out I'm seeing the same surgeon who removed my breast cancer.  It's going to be strange seeing him on Tuesday for this.  It's such a complete contrast from before as this is totally voluntary. Wish me luck!

  • OBXK
    OBXK Member Posts: 689
    edited July 2012

    Annie and Bernie- thanks for the laughs!

    Fishin- how exciting! Now that's something to look foward to. Hope the thrush leaves soon.

    Lovely - keep us posted on your spots. I hope they turn out to be nothing.

    Sugar - I hope all goes well on Tuesday.

    ---

    I have to leave at 2am to get my kid to the airport. Now, where did I put that Ritalin? Airport is 2 hours away.

  • browerl
    browerl Member Posts: 77
    edited July 2012

    FernME-I started the same cocktail 3 days ago and so far so good.  I have been able to control the nausea with the meds.  I was a little more tired today and my legs are a little achey but not bad.  Last week before I started was worse with the fear.  My scalp has gotten a little tender when I brush my hair bu,t as of now, no hair loss, I am sure that will be soon.  When I went in for the treatment I cried the entire time.  My onco came in and said take a picture of this because you will look back and realize that is was not as bad as you thought it was going to be.  Fear is a powerful emotion, drink a lot of wine and chill, it will all be ok and over soon.

  • browerl
    browerl Member Posts: 77
    edited July 2012

    FernME-I started the same cocktail 3 days ago and so far so good.  I have been able to control the nausea with the meds.  I was a little more tired today and my legs are a little achey but not bad.  Last week before I started was worse with the fear.  My scalp has gotten a little tender when I brush my hair bu,t as of now, no hair loss, I am sure that will be soon.  When I went in for the treatment I cried the entire time.  My onco came in and said take a picture of this because you will look back and realize that is was not as bad as you thought it was going to be.  Fear is a powerful emotion, drink a lot of wine and chill, it will all be ok and over soon.

  • mags20487
    mags20487 Member Posts: 1,092
    edited July 2012

    Lovely...there was a spot on my shoulder blade area that when my hubby was rubbing my back about a month ago he felt. It was a little scabbed over.  A few days later I noticed it had not changed much and was still scabbing over.  So when I went for my 3 mo follow up I had the onc look at it and she sent me to a dermatologist who did the whole body check.  She found another spot that she also wanted checked down on my back near the spine.  My mother had melanoma a few years ago so I try to be careful in the sun but realize that as a kid I did some serious damage to my skin by living at the beach most of the time.  If it bothers you i would go get it checked.  At this point I have used up my deductible haha

    Maggie

  • FernMF
    FernMF Member Posts: 274
    edited July 2012
    browerl THANKS . . . we are sisters - same diagnosis . . .looks like, anyway . . . I had bilateral mastectomy/no reconstruction on 5/7 and have spent the past 10 weeks figuring all this out . . . keep me posted . . . my PRE-surgery day(s) were THE WORST . then surgery/recovery was NOT bad at all . . VERY tolerable . . so I'm hoping and praying . . . going to the beach tomorrow for a week - - I am going to attempt to CHILL out the whole time and enjoy my family and the water and sun . . . and if I cry the whole time that first day, I'll just think of you . . . . let me know how things progress . . you are 2 weeks ahead of me, you'll be done 2 weeks ahead of me.
  • dgcote
    dgcote Member Posts: 17
    edited July 2012

    I love this pic.

  • browerl
    browerl Member Posts: 77
    edited July 2012

    FirnMe-I just started the same chemo as you on Tuesday, knock on wood it has not been bad.  I am really blown away about how this has gone.  I know it has not been very long but I feel great.  The meds have kept my stomach in check.  The day I got my treatment I cried the entire time.  My onco came in and sat with me she said "take a picture of this day because you will look back and realize it was not that bad".  Last week was way worse for me just because of the fear.  My advice would be have some wine and chill you can do this and I will do it with you.