Calling all TNs

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Comments

  • JAN69
    JAN69 Member Posts: 731
    edited July 2012

    Inmate--You and your sister are so right.  He is the definition of happiness.  What a precious little person.  What a different world we would have if all children were loved and cared for as your nephew.  Give your little guy a big love from me. He'll no doubt give you strength as you face your continued battle. 

    Getting really worried about Cocker.  Wish she would check in.

    Newbies, sounds like you are doing well.  Keep it up.

    My MO appointment yesterday yielded a US for "other breast."  Probably nothing, but.........

    Got more peaches and cucumbers.  More jam and pickles coming up.  Christmas gifts, I guess.  Just planted beets.  Hope they don't roast in the ground.

    My best healing wishes to all, Jan

  • BarbaraJo50
    BarbaraJo50 Member Posts: 44
    edited July 2012

    Hope 60, What a struggle you have been going through! I am sorry. I wish the best for you.

    You will remain my thoughts.

    BarbaraJo

  • BarbaraJo50
    BarbaraJo50 Member Posts: 44
    edited July 2012

    Inmate, Sorry about skin mets again. Stay strong. You inspire me.

    That little Baker James; such a beauty! Oh, I just want to smooch his cheeks over and over to hear him giggle!

    BarbaraJo

  • TifJ
    TifJ Member Posts: 804
    edited July 2012

    Hope- Thank you for posting- we have all been a little worried. I am so sorry to hear your troubles confirmed mets. I really, really hate cancer. I hope the surgery and rads can eliminate those damn things and get you feeling better.

    Inmate- Well crap! It sure is true that life just isn't fair or this wouldn't be happening to you. I admire your attitude and hope your docs can get an effective plan of action going.

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Hope......thank you for checking in.  I will continue to send all my love your way.

    Jan.....so sorry you have to go through the test and wait.  Sheeh!  Little Baker James has had a rough start in life but is surrounded by his "village" that love him dearly.  I will give him an extra smooch for you.

    Barbara....He is the happiest little man I have ever seen.  That smile is plastered on his face all day long, only interrupted by giggles.  He gives me strength.   

  • Luah
    Luah Member Posts: 626
    edited July 2012

    Damn, Hope, so sorry you're dealing with brain mets. It sounds like you're in good hands with your docs and I hope the rads blast whatever lingers to smithereens. Thinking of you and sending healing vibes. Thanks for checking in. 

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Cocker honey, where are you?

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Luv....thanks on the info about rads.  I will be chatting with my doc on Friday and will ask him again about the options for rads.

  • ksmatthews
    ksmatthews Member Posts: 743
    edited July 2012

    I did have labs done, but no feel up lol!

    Inmate so sorry for your skin mets, I really pray this next chemo kicks some cancer ass!  I love the pictures!  You look fabulous and what a cutie he is!

    Hope so sorry you are dealing with brain mets.

    Praying for all you wonderful ladies!  It is so nice to have a place to come where everyone understands each other.  (((hugs))) 

  • JAN69
    JAN69 Member Posts: 731
    edited July 2012

    Hope  I am so very sorry you have to face mets.  I'm sending you strength and courage to fight this evil invader.  Please know your TN sisters are all holding your hand with compassion and understanding.

    We had a Disney event here recently.  You may recall we live in the Sierra Nevada mountains and our neighbors are pretty wild.  This day we had to stop to watch 2 young bunnies, several tiny chipmunks, and the whole family of quail as they held a neighborhood gathering.  Way too cute!  Of course we couldn't take a picture as they would scatter if we got any closer. Other years we have had foxes.  Not my favorite animal as they made their den under the deck and mom and dad would bring all sorts of fresh meat to their young.  Wild turkeys, bears, coyotes, deer, mountain lions, and more make life interesting.  We need to move closer to medical care, but we won't because of the trees, the animals, and friends. There's nothing like the sound of whispering pines to soothe my anxiety.  Jan

  • borntosurvive
    borntosurvive Member Posts: 194
    edited July 2012

    Hope: NO!!!!!  I am SO sorry that your worst nightmare was confirmed.  But it sounds like they were quick to act on it so here's hoping you'll be good as new soon.  Thank you for checking in and updating us, we all were worried and thinking about you. xoxo

  • Titan
    Titan Member Posts: 1,313
    edited July 2012

    Hope....thanks for checking in...missed you lots..and dang on those freaking brain mets...hoping your treatments kill those freaking buggers out of you...blah...I hate cancer...

    Oh Cocker...we can't do without you!

    Jan..your home sounds amazing....fox are pretty interesting aren't they? we too have some critters around our house...a few coyotes which I don't like..but I love the deer, the raccoons, chipmunks, groundhogs, etc...our neighbors keep a mountain lion and a camel...kinda freak about the mountain lion though...

  • Titan
    Titan Member Posts: 1,313
    edited July 2012

    and Bernie...keep those jokes coming...I don't know where you get them from but keep 'em coming..we all need the laughs

    soo..anyway..I'm finally reading 50 shades of gray...wow...Im just at the part where Ana is reading the contract...omg...not sure I could agree with that stuff no matter how good the sex is...hmm...I will keep reading

  • sugar77
    sugar77 Member Posts: 1,328
    edited July 2012

    Hope - sorry about your brain mets.  FC!!! We're here for you ((((((hugs))))))))

    Cocker - where are you?

    Titan - keep reading...the series keeps getting better.  Book one was good but two and three were much better.  

  • OBXK
    OBXK Member Posts: 689
    edited July 2012

    Hi Lovies!

    Lory - how the smoke is better and that you get great CT results.

    Minxie - woo hoo on finishing rads.

    Loretta - great news!

    Inmate - damn and blast!!! Loved your description of your nephew as having a cat on his head.

    Hope - so glad you checked in. Wow, what a lot you have through!

    I hope you get great results. Rest well.

    KS - hope your labs come back with all good news! Sorry you didn't get felt up. And is it just me, but whenever I see someone in a white coat, I almost take my shirt off :0



    I am 14 months post treatment and I just can't seem to get my energy back. Bloodwork is good, thyroid good... I'm in bed 14 hours a day. I hope I get my grove back soon!

    Decided against camping in Maine, booked a room. I just don't think my old bones could take it, if it rained.

    Wishing everyone sweet dreams...

    PS - I emailed Annie and asked her to check in.



  • onvacation
    onvacation Member Posts: 521
    edited July 2012

    Hope - wow, you have been through a lot - thanks for checking in, sending healing vibes your way!

    Inmate -FC!  you will kick it's ass this time!  Oh such a cute picture! 

  • Luah
    Luah Member Posts: 626
    edited July 2012

    I've been missing HeidiToo too. Hope her cough and aches cleared up finally. Maybe she's been busy with her horses, dogs and other critters....  

  • Hope60
    Hope60 Member Posts: 150
    edited July 2012

    Hi again ladies - I should be sleeping but I can't . Maybe I have too much to process or something.  My brain still feels like swiss cheese but i hope writing will help.i was so sorry to have to post my news here because I didn't want to scare anyone. I just never thought I would be in this position. Really I ran to the doc with every ache and pain....but nobody ever warned me about brain mets! So July 4 weekend I was at the beach with friends and I started feeling like my right arm was slightly weeker than my left, and everyone was laughing at me. Left the beach a day early because it was too hot, not unusual for me. By the time I giot home I was walking a little funny on my left foot but it never occurred to me that it was an onc emergency.  Went to my internist and she sent me over for an mri, and the next thing I knew I was in the ER with a neurosurgeon telling me I had "many" mets and he was going in asap to get a big one close to the surface. Then spent a few days in the neuro unit and then rehab and now on to brain radiation. It's almost too much to take in!Can I still post here among friends or sholud I move over to the mets foruum? Like I said I don't want to freak anyone out! Things arent making much sense yet but Inmate did  read something about new skin mets? Crap! And is  Cocker mia??More crap...need that humor about now! Well I think its bedtime...goodnite all thanks for istening and stay well. More tomorrow if I can.

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited July 2012

    Oh Hope honey, I am so sorry.  This disease just sneaks up on ya.  Just when you think you can relax a bit....BAM!  Don't you dare leave us for the mets forum.  Say it with me....Hell no, we won't go!  This is your family and we want to care for you like a loving family should.

    Sleep tight my dear.  Love to you. 

  • OBXK
    OBXK Member Posts: 689
    edited July 2012

    Hope - don't jump ship! We love having you here! We can take it. My girlfriend had brain mets about 8 years ago. Before going to see her the day after her surgery, my dad, who was a MD, warned me that she may not be able to walk or her speech may be off. I walked in, she was sitting up in bed, visiting with friends and begged me to go buy her a cheeseburger - I was gobsmacked! She had rads and has been doing well, ever since.

  • bak94
    bak94 Member Posts: 652
    edited July 2012

    Hope-So glad you are posting here!!! Sorry you have to go through this, but we are here for you. I am so glad your treatment is moving forward and it better kick cancer a$$.

    Inmate-You and your nephew are both so beautiful! I can't believe you have to start chemo again. This cancer crap just plain sucks.

    OBXK-What a wonderful story about your friend, so glad she is doing so well!

    I have my 6 month bone scan next week. Whaaaa! I don't wanna do it!!!!!! I guess it is for my own good. If there is something going on it is going on whether I have a scan or not, right? Better to know than not know I guess. Sometimes I just want to stick my head in the sand and not go through the stressful scans.

    We bought a new car! I was tired of driving our suv gas guzzler, so we got a cute little fun economy car that is great on gas, it took a lil over $30 to fill er up instead of $85 like my other car. It is so fun to drive, hope I don't get a speeding ticket, as it is a turbo, and it is quick! At least it kept my mind off my upcoming scans for a bit...

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited July 2012

    to Hope

     

  • borntosurvive
    borntosurvive Member Posts: 194
    edited July 2012

    Hope: don't go.  Please keep us updated.  It is scary to hear that people are suffering but it could be any of us so please stay.  You're an inspiration to all of us xoxo

  • christina1961
    christina1961 Member Posts: 450
    edited July 2012

    Hope, stay here with us- or better yet, post in both forums because I also don't want you to miss any information you might find useful in the brain mets forum. I am so sorry you are dealing with this.

  • christina1961
    christina1961 Member Posts: 450
    edited July 2012

    Karen, What part of Maine do you go to?  I went to Baxter State Park when I was 19 and have never forgotten it.  I still want to go back but it is such a long drive from Tennessee. It was the most beautiful place I have ever seen.

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited July 2012

    Hope60-I am over here in tears. Our fears just never seem to stop. I feel sometimes that we live on a roller coaster. Please don't stop posting!!! Stay right here with us. Life is just not FAIR and I HATE that we have live our lives this way!!

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited July 2012

    (((Hope))) we're here for love and support, the brain mets sisters can help with specifics about treatment, side effects, etc.  If you can handle it, post in both forums.

    Karen - coming from NH, I have camped in Maine dozens of times.  Where are you going?  One of our most favorite vacations was Acadia National Park in Bar Harbor.  We also like camping on the ocean - there's a great campground called Hermit Island on Casco Bay - just spectacular!  Here's a link to one of our favorite areas of this campground:

    http://www.hermitisland.com/campsitesbyroad/joeshead/12njoeshead.html

  • LM50
    LM50 Member Posts: 7
    edited July 2012
    Hope60:  Welcome back.  You can tell if you scroll through the posts that you missed that we were all thinking about you and hoping for the best for you.  I am so sorry this happened to you.  You know you can always come to this group for love and suppport.  All the best.
  • OBXK
    OBXK Member Posts: 689
    edited July 2012

    We stay in Boothbay, ME. There is a nice campground in nearby Southport, which has tent sites with water & power, but they were booked on my dates, the other campground was primitive.

    I just can't take the chance of it being in the 50's at night along with rain. My old bones would hurt too much.

  • Tazzy
    Tazzy Member Posts: 1,442
    edited July 2012

    Hope - thinking of you and sending hugs.   Happy you will still post here.

    So much chatting going on I am not even going to try and catch up - but wish you all the best and thinking of you.

    Finally have my surgery date of August 2nd - one week away.

    To all those MIA - please check in soon.