Calling all TNs
Comments
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I am kinda embarrassed to post here again:) My emotions were crazy after my hysterectomy, and I think I had just had it with cancer, just angry with everything and all the crap we all have to go through. Also, the pain medicines I was on were really making me crabby. It was not right for me to take it out on the women of one of my favorite threads. I so appreciate all the warm messages.
I am so sorry to hear of the new struggles many are enduring, and of the ongoing ones. I just don't get it, and never will. Cancer and illness just breaks my heart.
On a lighter note, I just love all the pictures of all the dogs! I will have to post one. I will also have to post a picture of my chicken that likes to give the "stink eye".
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Bak - I'm glad to see you posting again. Sorry your having issues with th hysterectomy. I dont know what was said but was sad to hear you were leaving.
Having just tested positive for BRCA 1 I'm feeling pretty bitter and pissed off that I have to have my ovaries out and a double Mx. Guess that means I have to finally give up the hope of having kids. Although I'm 42 I still wasn't facing it. Now I'm mad I have to go thru surgeries again and now its a new job and they are so much more strick on hours and crap!
Minxie it would be nice if people understood but the only way to make that happen is to have them go they the experience and that would be awful.
I'll have to post my favorite pics of my dogs. One is currently dreaming and barking up a storm.0 -
bak - so glad you're back! Hun, most of us have those days when we're so sick and tired of where we are and what we're doing that it only takes one thing to make us explode. I recently had that kind of day when I went to MO for 3-month check up. It wasn't pretty...I imploded and the appt was a nightmare. Don't be embarrassed - we're all in this together!
minxie - its great to see you. I know how you feel. Although I don't hear it, I get the questions like "where are you with this project?" "how much longer will it take to get this done?" Just that underlying hint of "you're not doing your job satisfactorily." I want to scream out - "I'm fighting for my life...I've worked here through surgery, chemo and radiation...how dare you question my performance!" Of course I don't say that...I plod along and do the best I can. I think I'm due a little compassion...maybe an atta-boy. I doubt I get it though...
Gotta get to work. Enjoy the day to the fullest! hugs to all
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Minxie and Journey - I don't know how you have worked through treatment. I'm so sorry your companies haven't at least cut you a little slack.
I think a lot of people have trouble with illness - some even see it as a weakness worse are the ones who are jealous of the attention you may get.
I hope the Universe puts some more evolved and empathetic people along your path soon.
In the mean time, for what it's worth - ladies you rock!!!!
Bak - I recently had a day when I strongly suggested to my beloved husband, that he limit his answers to me as Yes, Mam. The week before, I licked the paint off a stupid bank teller. We get it - no shame or blame here. Hope you are feeling better.
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I'm feeling pretty good this morning!!!0 -
Sorry if this is a daft question, but what are the implications on having an mx followed by reconstruction if you've previously had a lumpectomy followed by radiation? Does it make it out of the question, or does it just limit the options?
Karen--Yes, ma'am--love it! Last weekend, when I was feeling crappy from the Taxotere, I yelled at my husband for looking at me the wrong way!
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Too many posts to respond to all but (((((gentle hugs)))))) to you all.
Some of you are going through so much more, puts my feeling shitty from rads into perspective. Thanks ladies, you are such an inspiration.
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English Rose - no such thing as a daft question where BC is concerned. I had a LX then had BMX with TEs. You should talk to a good PS about your options.
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mccrimmon--I had bmx last year followed by rads and am just in the recon process...the flap that failed was my rads side but doc said she thought it would b the other one that would not make it. Failure is rare being radiated or not. So make sure take you time and talk about the options. NOLA has the best experts anywhere! they can make things happen that are not possibily anywhere. They also worked well with my sucky insurance. I am truly sorry for your pain right now
Maggie
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Bak- I am so happy to "see" you again!! We are all entitled to bad days where our mouths have a mind of their own!! I also don't know what happened to make you leave, but it doesn't matter because your back!!!
Karen-Glad to hear the Gemzar is being kind to you!
Michelle- You amaze me. Here you doing WBR and you are still posting encouraging words to all. I send good thoughts to you everyday!
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Thank you, Luv. I will get the genetic testing done after radiation in January, and am already thinking about what I will do if the tests return positive. Everything off and out probably.
I forgot to say earlier that yesterday my team at work told me that they have all registered to do the "Moonwalk" in London next May to raise money for breast cancer research. I don't know if it's an international thing, but it's walking 26 miles over night. Needless-to-say, I burst in to tears when they told me (not good when one's chemo face is painted on with soft kohl pencil!). I'll join them obviously. After this chemo is done, better get training. My feet feel sore just thinking about it.
Thank you everyone on this forum for just being so wise, caring and supportive. I can't tell you how much of a comfort this group is to me.
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Hello everyone.
Bak, welcome back! Glad to see you post.
Mcrimm, Sending a hug your way. Cancer takes so much....I hate it.
Well, ladies, I have good news. My PET came back clean, and CA27-29 levels are normal. Big breath for me. Hip still hurts so going for a few xrays and some physical therapy. A HUGE thank you to all for your kind support while I endured the waiting.....Love to all of you. So glad you are here to help keep my sanity.
In a hurry today, will try to post again later
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Hello bak94
I was so glad to see you posting again and I hope that what I said to you somehow helped.
Please pop in to say hello to your UK friends when you can.
Keep well and happy.
Best wishes.
Sylvia xxxx
Hello mccrimmon324 (Heather)
I was sorry to hear that you have tested positive for BRCA1 but it was a good thing that you decided to get tested. At least now you can do whatever is needed to make everything safer for you. I hope you are well settled back in Pennsylvania.
Think of you often.
Best wishes.
Sylvia xxxx
Hello adagio
Thank you for your PM. I hope you read the detailed post I wrote for you on my own thread. Please do not be afraid of treatment.
Best wishes.
Sylvia xxxx
I just want to send best wishes from the UK to everyone at whatever stage of their treatment. You can get through this.
Sylvia
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That's wonderful news Navymom!!!!!
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Fantastic news, Navymom! Time to celebrate!
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Navymom- Great news!!!
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Best news all day Navymom.
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wonderful, wonderful news navymon - in amongst all the crap there is always sunshine !!
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BAK tears filled my eyes when I saw your post. So very glad you are back.
Karen your words made me giggle so much mam.
Wonderful news NavyMom.
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Navymom - YAY! I hope you're doing a happy dance and celebrating!
I don't feel much like posting but wanted to check in on you dear ladies. Peace to all.
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Happy Day Navy!!!
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YAY for Navymom!
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Navymom - Woo Hoo! Toasting you with my bottle of water.
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Ok, ladies i got my results back from my MRI and x-ray of my hip...good news first...My hip is good, joint pain now on a daily dose of aleve...MRI did not come back so good...It found an eraser size spot in my right breast right behind the nipple...of course they tell me its nothing to worry about, its doesn't have characteristics of cancer, but "were going to do an utrasound just in case" I wonder why they don't just do ultrasound regardless, it seems that they always come back to an ultrasound. I'm scared and worried, but don't want everyone around me to worry too... I just want to scream...between,mri's, x-rays, ultrasounds, vaginal ultrasounds, colposcopies, hips and heavy periods, i sort of feel like its just a waiting game...just a matter of time...does anyone feel this way? sorry for being a downer, just feeling sorry for myself tonight...
thanks all for listening!
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Navy - pleased to hear your news.
Glad you're back, Bak!
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Moe - I hope you get the all's clear soon! It is awful to be in that place of fear, waiting for the other shoe tp drop. When will you get your US? Deep breath...
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I will get the ultrasound next Thursday...sleep seems to be my best way to deal.... Thanks obxk
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Once upon a time, in a land far away, a beautiful, independent, self assured princess happened upon a frog as she sat, contemplating ecological issues on the shores of an unpolluted pond in a verdant meadow near her castle. The frog hopped into the princess lap and said "Elegant Lady, I was once a handsome prince, until an evil witch cast a spell upon me. One kiss from you, however, and I will turn back into the dapper, young prince that I am, and then, my sweet, we can marry and setup housekeeping in castle with my mother, where you can prepare my meals, clean my clothes, bear my children, and forever feel grateful and happy doing so."
That night, the princess had frog legs seasoned in a white wine and shallot cream sauce in her dinner.0 -
That made me LOL Bernie!!!
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moe - we all hope they're right - nothing to worry about. I'm glad they're taking it seriously though and not "keeping an eye on it" to see if anything changes. I know the waiting will be difficult. If it helps, we're all waiting with you!
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