Calling all TNs

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  • Stupidboob
    Stupidboob Member Posts: 330
    edited July 2014

    Marsha and Mags...........................YAY-YAY-YAY.................thank God.  

  • Stupidboob
    Stupidboob Member Posts: 330
    edited July 2014

    Nordy congrats and thank you....................yes, we all need to hear from the survivors.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014


    "No matter what happens, no matter how far you seem to be away from where you want to be, never stop believing that you will somehow make it. Have an unrelenting belief that things will work out, that the long road has purpose, that the things that you desire may not happen today, but they will happen. Continue to persist and persevere." 
~Brad Gast

  • Stupidboob
    Stupidboob Member Posts: 330
    edited July 2014

    Hey Ladies,
      I hope all is well with everyone.   I hope that those waiting will get great results.  I feel bad that I don't come here more often and stay caught up, but I think I just get lost in the computer and the tv.   Started watching Pretty Little Liars and I am addicted now.   I did not watch from the beginning and did not realize it was 2010 that it first aired.   I am on season 4 and they are on season 5 so I am getting there.   Hubby watches with me or I would already be caught up......so addicting.   At least I get away from myself for a bit. 

    I know that on a brain MRI we can't get things to go on our heads, but do you know I have never had music in one.   I have had them done at different facilities too.   I get music in the room when I get a Pet Scan. I did not know that they have movies for kids to get them through.   I think they should offer adults that too.  I had never heard of it until my cousin posted it on Facebook about her daughter getting the headset movie and she had to chose her movie. 

    Still not doing what I need to as far as eating or exercise and just can not for the life of me figure out why.  I fear cancer but can't seem to do the one think that might bring me the best results.   Human Nature.  I think one thing is that I just don't taste things well and I keep looking for that "one thing" that will satisfy.  I also feel like I am trying to fill a void with food, but it is only making all voids worse.

    Do you all avoid soy?

  • Stupidboob
    Stupidboob Member Posts: 330
    edited July 2014


    Very nice reminder Cocker............:)

  • allydp
    allydp Member Posts: 361
    edited July 2014

    Meadow - thank you so very much for your kind words. They actually brought tears to my eyes. I'm always a little overemotional right after chemos…gotta love the steroids. I just told Jules over on our surgery thread that you said hello! 

    Nordy - congratulations! Thank you so much for stopping by and sharing your news! 

    Cat - good luck with your upcoming appointment. Sounds like you're seeing one of the best which is wonderful. 

  • slv58
    slv58 Member Posts: 486
    edited July 2014

    results are in-I don't have mets! I do have some abnormality in my frontal lobe which is where memory is which is probably why I've been having problems, but my MO assured me it is not cancer related at all, however I have to see a neurologist. I can breathe again, I thank you for all your positive thoughts and prayers, you didn't let me down! 

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited July 2014

    slv, woohoo! So happy it's not mets!! Keep us posted on what the neuro says. 

  • allydp
    allydp Member Posts: 361
    edited July 2014

    Wonderful news, Shari!!! I'm so happy for you!

  • simplelife4real
    simplelife4real Member Posts: 341
    edited July 2014

    Hooray Shari!  What a relief!  I hope the neurologist has good news for you as well.  

    (((hugs))) Kay

  • slv58
    slv58 Member Posts: 486
    edited July 2014

    thank you everyone! My MO said it may just be age related but wants to make sure especially since I've had some cognitive issues. I know I'm not out of the woods completely but at least it's not what I was fearing!

  • jenjenl
    jenjenl Member Posts: 409
    edited July 2014

    Happy for you!

  • MomMom
    MomMom Member Posts: 334
    edited July 2014


    Slv58, Shari, I am THRILLED for you!!  I've been holding you in my thoughts for a good outcome.  What great news and relief.

    Paula

  • Stupidboob
    Stupidboob Member Posts: 330
    edited July 2014

    slv58..................so happy for you.........thank God

  • navymom
    navymom Member Posts: 842
    edited July 2014

    Doing happy dance for slv58.  WOOT! WOOT!

  • lilyrose53
    lilyrose53 Member Posts: 120
    edited July 2014

    Stupidboob, Cocker, and all others who answered my port question-thank you!  I think I will probably keep it for awhile as it doesn't bother me at all.  Cocker-sorry yours went wonky, but glad you were finished with it!

    slv58, so glad you got good news!  Hope your neuro appointment also brings more good news.

    To everyone who has had to have MRI's - hope they all came out well.  I had one once and it wasn't fun!

    Had Taxol #6 yesturday.  It's getting a little easier.  But now I'm getting dis colored fingernails.  They feel funny, so I'm hoping they hang on.  Fatigue is my biggest issue right now.  I'm wondering if it is the chemo or my ridiculously high resting heart rate.

    Wishing you all well.  Hugs, lilyrose

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014


    From a fan. Good advice--I'm sure most parents would agree.

    Out of the mouths of babes.

     

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014

    Brilliant news Shari.  You showed cancer where to go.  Hopefully the problem will only be aged related. 

      

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014

    ROCK 103's photo.

    I just could not resist sharing this one lol

  • lilyrose53
    lilyrose53 Member Posts: 120
    edited July 2014

    Oh Cocker!  Those are hilarious!!!  You have no idea how much I needed a good laugh tonight.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014

    Lillyrose I'm so glad it made you giggle.  It always helps me to laugh as well but I'm so sorry you are feeling down.  Hopefully tomorrow will be a better day for you. Big warm hugs xx  

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited July 2014

    Photo: Can we get three cheers for Friday!?

    Thank God for Fridays I don't think I could work another hour without a bit more sleep.

  • allydp
    allydp Member Posts: 361
    edited July 2014

    Lilyrose - I just finished Taxol/Carbo and can totally relate to your post. My fingernails are discolor and I'm losing a toenail. I also have had a very high heart rate and major fatigue. I hope the rest of your treatments go by quickly for you! Hang in there!

  • BanR
    BanR Member Posts: 238
    edited July 2014

    SLv: shari!! wonderful news..

    Ally: Great..Chemo is done! Whats next now? 

    NOrdy: Thanks for stopping by! Congrats for 9 years...wishing you many more!

    Cocker: thanks for all the fun stuff you keep sharing with us

    Cat: you are in my prayers...so glad to see a post from you

    Didnt hear from Inspiredbydolc since long, she used to be regular here sharing information with us. Anybody in touch with her?

    Love to alll...

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited July 2014

    Slv58,

    Soooo happy your NED. Happy

    As to frontal lobe, that's why I going to neuro too.  Headache starts in that area first for me. My massages have relieved it a lot. Had second massage yesterday & came home drank lots of water, rested, ate dinner & went to bed. Slept from 9:00 to 8:00 this morning. 

    My memory (short term) is shot. I write everything down. Even though I only had two doses of A/C I can tell the difference it left me with. Residual chemo brain is one. After all it is a poison we are injected with. Non discriminatory too. So all areas of our bodies are affected. Each of us in different ways. Therefore, AKA "Our New Normal"! It sucks. They need to find a target specific way to attack our cancer. 

    I go to neurologist on 23rd. She is specialist in headaches. Will keep posted on her findings, etc on me. 

    In reference to Inspired:  I have tried to contact her. No reply. I hope she has not abandoned us. We need all views, opinions & info we can get. She contacted me when I first joined & was so helpful giving me info. Hope to hear from her soon. 

    Best to all,

    Marsha

  • KSteve
    KSteve Member Posts: 190
    edited July 2014

    To all of our ladies that have gotten the good news we've all been praying for, congratulations!  Soooooo happy for all of you :)

    Cocker - You made me laugh out loud at my desk this morning.  All were good, but I LOVED the pretzel dog picture!  Great way to kick off my Friday.  Thank you!

    Two weeks until I leave for Mexico (Playa Del Carmen) for my niece's 10 year anniversary vow renewal.  I'm so looking forward to 8 days of toes in the sand with my entire family.  Life is good :)

    Happy Friday to all,

    Kathy

  • TifJ
    TifJ Member Posts: 804
    edited July 2014


    WOO HOO Shari!!! What a way to kick off the weekend!!

    I know chemo has ruined my short term memory as well. My husband jokes that I have early Alzheimer's! I do, and will continue to blame all my memory and "saying stupid things" issues on chemo brain...forever!! No sense in saying I'm just getting older!

  • simplelife4real
    simplelife4real Member Posts: 341
    edited July 2014

    I also contacted Inspired a few weeks ago and didn't hear back from her.  I'm sorry she is not around, she had a lot to offer and was very helpful to me.

  • jenjenl
    jenjenl Member Posts: 409
    edited July 2014

    Inspired seems to disappear for a few months and then comes back!

    I am so flipping happy it's Friday.  It's been a long week and hoping for a restful weekend!

  • Mom2two67
    Mom2two67 Member Posts: 3
    edited July 2014

    Hello TN sisters!  New here - actually I've skimmed the boards for awhile, but just now joined.  Tomorrow will be one year from my diagnosis.  I'm feeling good, just not like I felt before being bombarded with all those toxic chemicals.  I'm thankful they did what they were supposed to do, but now I'm really more interested in a more natural and organic approach to wellness.  I'm seeing a new nurse practitioner who practices "functional medicine" and has started me on several vitamin/mineral supplements as well as recommending a low-glycemic/epi-paleo diet.  Not sure exactly what that means yet - much to learn.  Anyway, just wondering if any of you are doing anything similar.  Oh, and I still see my oncologist and breast surgeon every 6 months.  So far, so good!  Also, anybody have pain in their wrist and hands?  My doctors aren't concerned, but I never had any pain before.  Think it may be tendonitis.  I'll ask again when I go back in August.