Calling all TNs
Comments
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I haven't been here for a while. Coming back here is hard for me. Reoccurance is always in the back of my mind.Just want to let everyone know that this week signifies 3 years cancer free for me as a TN Survivor. WE ARE SUVIVORS!! Life is good.
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IslandGirl,
Hard to visit or not, I'm glad you did! Congrats and thank you for giving us hope!
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Congratulations Island Girl!
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Islandgirl, coming back here may be difficult, but I'm very grateful that you did, it gives us all hope and is a positive affirmation to hold on to! Congratulations and thank you-I hope you are celebrating!
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Islandgirl congratulations. Some retail therapy might be in order now!.
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Headed to the hospital for stage 3 of reconstruction (more fat grafting) - this is it, the end of it is here. So excited!
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Islandgirl, Congratulations!!!! And thank you for posting. 3 years is a significant milestone for TNs!!!
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to those that are taking metformin, when did you start on it? Some might have told me, but I've forgotten. I'm finishing radiation on Friday 7/25 but I dont see my MO until 8/19. She said she would start me on it after radiation but I realized I won't see her until 3 1/2 wks post rad.
I've also seen some comments on % of hormone negative or positive. I dont have that information or it was never discussed with me. I have heard it discussed on hese boards that if you are just a little but positive that they may treat you as positive. All I know is that I'm hormone negative. I'm sure someone on here can explain this
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Lisa,I was treated as triple negative from the beginning, it was only once all treatment was completed that I was offered Aromasin as my ER receptors were 2%! I tried the Aromasin for several months, but my quality of life was Nothing, so I stopped taking it!
My path report showed the 2% ER+!
I have not been offered the metformin, but I see my MO in August, so I'm going to try to remember to ask about it!
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well I had an MRI last week and yesterday my oncologist called and told me in my left breast I have a non specific finding at the three o'clock position it is a line not a tumor or cyst. It did not take up much dye so she doesn't know what it is. It's only a third of an inch long and very thin I am panicking feels like a roller coaster. So Friday I go for an ultrasound to see what they say about it . Also forgot to say on the report they called it lenear not sure what that means has anyone else have a scan that showed something like this
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I am sorry to report that FierceBlueBird has passed. I read it in another thread, she posted here often. She was precious and encouraging always. So sorry. She is free of all her struggle.
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Thanks for letting us know, Meadow. Such sad news. Cancer is an evil thief. I hate it, hate it, hate it.
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Meadow that is terribly sad news. Special thoughts to Bluebirds family. May she rest in peace free of pain.
Yes Navy I hate it too with a passion. There is no other word I hate as much as the word cancer.
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Meadow, Such sad news. I hate hearing that this horrid disease has taken another one of our sisters. My thoughts and prayers are with FierceBlueBird's family. May she be at peace.
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Meadow and all, Such very sad news. May she be at peace.
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I am so very sad and sorry to hear this. My thoughts and prayers go out to her family. May she be at peace.
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how very very sad, I hate it when I read of another one of our sisters has passed. It's so unfair. Blessings and hugs for her family, I hope they know how much we will miss her, she was always a positive contributor here. Bluebird, you can drop the fierce now, fly free, free of pain. Rest now.
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Lisa, I started on metformin after neoadjuvant chemo and surgery and before rads. I don't think it matters much that you won't be starting until after rads. Your MO may just want to be keeping things easier for you going through rads.
I am so saddened by Bluebird's passing. (slv58, I like your thought that she can drop the "fierce" now.) Her battle is over and she is no longer in fear or pain. I was shocked at the suddeness of how quickly she went from being diagnosed with brain mets to being gone. I absolutely hate this disease....it seems so unfair.
Meadow, thank you for posting about Bluebird.
One thing I do is whenever I'm in exercise class and feeling sorry for myself, I think of people I know who have died from cancer and I dedicate my workout to them. Each of them reminds me of how precious life is and that it is to be enjoyed and savored while we are here. Today as I'm trying to keep up in my ballroom dance aerobics class, I'll be thinking of Bluebird and dedicating my workout to her. It will be a long time before I see a bluebird and not think of her.
Fly high and proud Bluebird....you are free!
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So sad to hear of FBB passing!! It envokes so many emotions from me! Anger, sadness and fear!! To think that she as a fellow TN just takes my breath at how fast things moved!! I'm going to try to take a break from the boards for a few days to gather myself!!
Sending hugs to her family!!
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My most sincere sympathy to Fiercebluebird's family. Simple, like you, I had no idea she was so close. Damn cancer.0 -
And yet another star to shine down upon us in the nightime sky. My deepest condolences to Fiercebluebird's family and friends. So tragic to lose yet another mother, wife, daughter and friend to this disease. May she rest in peace.
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My deepest condolences to FBB's family. I'll pray for them. This just sucks. I echo what Nettie said. God help us all. I wish more than anything that they'd find a cure for this damn disease!!!!!!!!! I cry every day. Nobody except us who have been through it can understand why we can't go one day without fear of recurrence or mets! It just sucks. Rest In Piece sweet FierceBluebird.
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Dear ladies I know we have all been rocked and saddened by the news of losing our friend Fiercebluebird. I, like so many of you I am sure, had a rough day. My thoughts are with her family, the preparations for the service and all the shock and loss they must be feeling, is just so much to shoulder.
We have had our our fears stirred up. Fears that I kind of thought I had a handle on have shown me they are still there, not far from the surface. We share the TNBC diagnosis with FBB, and for many that is what brought us to know her so it is only natural that we think of our own health, and mortality. She was also IBC, which is so very aggressive, and BRCA, so she did have a fight on her little wings. I am pointing this out to remind myself that although we know her as TN, the fight is also with onco type, the genetic component, and so many other factors, so sisters, please do not give into fear that is telling us..."you are next". "If it can happen to her why not you". We must grieve our dear friend and honor her, and stay strong and focused on sharing the positive energy she handed us every single time she posted. On another thread she frequented I saw where Bailey said "to make sure no cancer ever appears on my soul or spirit." And I like that so much I told her I would share it with you all.
Please share your thoughts here and with loved ones and friends who are your support system. Hugs to eveyone.
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Meadow, Thank you so much for your beautifully said posting. I also can't get FBB and her family out of my thoughts and prayers. And yes, something like this shakes us to our core as it hits our fears about our own mortality. We can only wish our sisters and ourselves well and have confidence that each of us is doing exactly what she needs to do to fight it.
Paula
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Well said Meadow!
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Meadow, beautifully articulated what I'm sure we all feel. This has hit me particularly hard having just gone through a brain mets scare, but sometimes I think it's a good reminder to accept our mortality and LIVE for the now. I think we all need a group hug in bluebirds memory
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Meadow, thank you for your beautifully spoken words.
Shari, you are right....we did need a group hug. (((hugs)))
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So beautifully said, Meadow. I, too, can't stop thinking of her and her family. And I would by lying if I said it hasn't stirred up fears for myself, as well. I love the quote from your friend Bailey. I hope to never let this disease touch my soul. FBB was certainly a testament to that.
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So very, very sorry to hear about FierceBlueBird (Kristine). My sympathies and prayers go out to all her family and friends. She fought a good fight but now she is at peace and free.
Doreen
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my beautiful TN bc warriors! I'm done with radiation today. Here is my post on facebook, dec chemo thread and rad thread. So sorry also to hear of fiercebluebird, but for today I'm living in the moment and will channel her spirit as she flys above and gives all her strength
I feel great today! They played the song Free (Donavan frankenreiter) through the speakers during treatment, which I requested (find it on YouTube or I posted it on my fb page recently) and then the graduation song, lol!. www.facebook.com/lisa.r.boyce.
NO MORE CANCER!
My Breast cancer journey started 9 months ago on 10/18/13 and as of 7/25/14 I can now say my cancer is GONE! (and my doctors agree!) It has been cut out, poisoned, and radiated to smithereens! It is a journey that I never ever thought I’d go on.In some of the books I’ve read on breast cancer, some women would say that breast cancer was a blessing or that they were thankful for having breast cancer. Well I can’t bring myself to say those words but I now see how it has changed me, and in many ways for the better.
You know the quote that says, “You never know how strong you are, until being strong is the only choice you have” well, I get it now. From day one I knew the fight was on and my strength and courage emerged and became stronger as each day, week and month progressed. This has been the most challenging journey of my life, physically, mentally, emotionally and spiritually. But I have made it through and I am proud of myself and I am stronger and maybe even a better person for it.
I want to share some of the things I have learned, some of them are serious, some are funny but all of them are all part of my life now and part of what I have been through.
I have learned:
How important it is… to… just… breathe…
How music really does help you feel… and heal
That blue sky, green grass, flowers, clouds, soft rain and strong storms are really beautiful
How beautiful the beach REALLY is
How wonderful salt water air smells and that icy cold ocean water feels great
How amazing warm sand feels between your toes
How important nose hairs really are (you’ll never realize until you’ve don’t have them!)
That eyelashes really do keep the dust out…as well as make your eyes look good
That there are so many ways to tie a head scarf
How difficult it is to draw on eyebrows
That I do look OK with really, really short hair
That really, really short hair is still better than NO hair at all
That white/gray hair is also better than no hair at all
How nice it is to have a husband that says he likes this look with my new short “hairstyle”
How great it is to have a husband that will do anything for you
How great it is to be surrounded by a loving family when it is really needed
How wonderful it is to have sisters
How great it is to have friends that make you laugh
How good water tastes…when it tastes the way it should
How good food tastes…all food
That just putting your feet on the ground in the morning is a really big step
How great it is to just take a walk
That running 3 miles is not nearly as big of a challenge as it used to be
The benefits of one handed techniques and front closure shirts (thanks to my OT
background)
That having normal ROM in your arm is really important and how to regain it (thanks also
to my OT background)
That great friendships can be made with women all over the country that you have never
even met and how those women can help you through tough times because they “get it”
That nurses are the backbone of any medical office
How important it is to be your own advocate
How important it is to be an active part of your treatment
How it is OK to have people help you
How important it is to talk about difficult subjects and how it helps to lighten the load
How a person can turn a difficult situation into a reason for positive change
I have completed my journey, my story.I have won this fight!I thank everyone that has wished me well, prayed for me, kept me in their thoughts, sent me food, gifts and positivemessages, lifted me up, cried with me, laughed with me, and sometimes pulled me along when I didn’t want to go. You are also part of this journey and I thank you from the bottom of my heart. Now on to surviving and thriving!
Lisa
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