Calling all TNs
Comments
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You got it in a nut shell Lisa. A beautiful and true post. This is now the beginning of your new life. ooxxoo
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TasiaB - I have had small things show up on my scans that are not there the next time. I'm told that an injury can temporarily show up. My first instinct was that it was a hair on the equipment. I know that sounds silly. I would have jumped for joy when the dr. said it wasn't a tumor.
Congrats Lisa - A day to celebrate for sure!
My hearts in my stomach with the news of FierceBlueBird.
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Congrats Lisa! I love what you learned.
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Congrats Lisa! What a beautiful post. It is so true about all the things you learn. We tend to forget the positives (big and small), when we are feeling down. You look like a million bucks! Now go celebrate!
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Lisa, a big congratulations! Love your post and feel very much the same way. We are forced to look at our mortality and be truly appreciative for each day and the beauty which surrounds us. Today I truly celebrated my 56 th birthday. I made it! Very grateful for each day and especially each year as 17 months ago I wasn't sure what the future held. My birthday cake read " yahoo 56!"
I hope everyone has a good week end and spreads a bit of kindness in bluebirds memory.
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Happy Birthday, slv! And a big loud YAHOOOOO!
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Lisa, Congratulations!!!! What an awesome post! I absolutely love it and agree wholeheartedly! You have whipped it and learned so much in the process. You shine and you look amazing.
XOXOO,
Paula
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Lisa, Yeah for you. Now go live the life you deserve! Jan
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Great news Lisa, very happy for you!
To all the fine ladies here, hope the days are getting better for us all, SLV I was so glad to start my day with our group hug the other day. ((((HUGS))) to you all
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simplelife4- hi I'm just wondering how you're doing today in terms of your lumpectomy and wishing you all the best!
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Sally, I'm fine. I found a lump right under my scar a few weeks ago. The did a mammo and ultrasound on it and told me they thought it was fat necrosis. They said I could have a biopsy on it if I wanted. After thinking about it for a week or two, I decided I wanted to go ahead with the biopsy just to be on the safe side. It's scheduled for Thursday and I'll probably know the results next Monday or Tuesday. I'm a little nervous, but not much. I tend to believe them that it's fat necrosis, but I also think TNCB is nothing to take lightly.
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Simple, I'll say a prayer and will be thinking of you in the days ahead. I'm sure all will be fine. ((((HUGS))))
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Simple - keeping you in my thoughts. You're wise to get the biopsy to set your mind at rest. Nat
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I agree Simple, with getting the biopsy That way you can not worry.
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Simple, yep opt for the biopsy to put your mind at rest. Here's hoping for fat necosis. xxx
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I agree with all of you. Get the biopsy. Fingers crossed for fat necrosis...
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Simple...glad that they think it's nothing..sending positive thoughts for your biopsy. I know it's still stressful for you. hugs.
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Has anyone had their cancer metastasize to spinal fluid? I am in that situation now and it seems quite rare.
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Oh BunnyGirl, So very sorry to hear spinal fluid mets. I've never heard of it so I have no suggestions. Hopefully someone comes along soon with information. Please take care and keep us updated. Jan
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BunnyGirl, I'm so sorry to hear this. There is a triple negative stage IV thread that you might want to post the same question, or just start a new thread on the stage IV forum. Hopefully, you will get a response. Wishing you the best. (((hugs))) Kay
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simple...all will be well. Happy you are doing biopsy. I had the same thing happen a few months ago that was fast necrosis. I didn't biopsy but it was removed during recon. Thinking of you.
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Bunnygirl, like the others said, the spinal fluid mets are new to me too. What did your oncologist say regarding treatments? Try to stay postive, keep us informed. Thinking of you.
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Thinking of you, Bunnygirl, and hope you will keep us posted. Sending (((hugs))) your way. Nat
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anyone interested in reading Joan lundens blog the link is here. Dx with TNBC and undergoing chemo now. I like her idea about the water intake and how to keep track of the amount and also her most recent post about her "breathing" meditation/reiki/stretching session
http://blog.joanlunden.com/search?updated-min=2014...
(I think you'll have to cut and paste the link. Not sure why you can't just click from here)
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Hello Sisters,
Forgive my absence but I'm almost never on the computer. (Thank you Apple for destroying my phone's capabilities with your upgrade).
I've scanned back to check back on everyone. I'm sorry that another sister was lost. (My condolences to FBB's family). Other's back in treatment (hugs BAK). And the best part, that most of you are doing well!!!
You are all in my daily prayers. I'm doing well. Had a negative PET this month. (Very happy but not tap dancing. It's only 6 mo. and my cancer raises it's ugly head at about a year.). My onc also chose my case to present at a breast conference because of my 99% AR results (I do love telling people that I actually have prostate cancer.) The info she got was discouraging. First, my type of cancer is chemo resistant. (Nice to find out after two rounds of hell, lol.). Second, my best chance is to be placed on an anti-androgen prostate chemo (works similar to Tamoxifen for ER+ BC) but I can't get it because it's considered experimental! GRRRRRR!
Despite what I typed, I'm alive today and grateful.
Hugs to all my sisters
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Praying for you Kathyrnn!
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Bunny,
I have heard of someone who had mets to spine (not sure whether that's the same as spinal fluid) who did well with eribulin. Best wishes to you.
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Kathyrnn,
I'm sorry to not be positive for you but I just feel like your situation is unfair!
My dear friend had bc twice (over 10 years apart) then ended up with pancreatic cancer. She was not a candidate for most of the trials because she had already had breast cancer. Anyway, we all know how pancreatic cancer goes so she's having a tough time right now...
I feel weird saying it, but thankfully yours is prostate cancer... it's still incredibly unfair and hit very close to home for me. Good luck and love!
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Kathrynn,
My drs ran some genome tests on my cancer and found it is also chemo resistant. Not only that but I also have high AR receptors ( like yours also). Do you mind if I ask you if you finished the act tx or did you end up doing a different chemo? Are you on an androgen blocker? You can pm me if you'd like.
Bunny, I so sorry about your spinal fluid..I hope you find some positive answers.
Hugs to all.
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My best friend since 1st grade's mom had been stage 4 for 5 years and fights every day. My good friend Naomi has had a tough battle with BC as well as pancreatic cancer. She is nearing the end of her time in my life. Her birthday is August 5th. I'm not even sure she will make it.
One would think this would make me sad (and it does) but more importantly, it reminds me to live! Even if there were no such thing as cancer, I could leave this world at any moment. My friend Naomi taught me through the years that I don't need to live anyone's life but my own. I should always strive to meet and beat my own expectations, not those of others. I wrote a poem about the way I want to always live my life and have others remember me, no matter when my time comes. I am giving Naomi a copy as well because this was how she lived her whole life.
With the loss of FBB, I thought it might be appropriate to share the poem here as well. I'm hoping it will remind us all to live our lives, and NOT in fear!
...and it looks like you'll be reading it side-ways!!! LOL0
