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Calling all TNs

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Comments

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited August 2015

    Amy and Murphy we are all so sorry you have been diagnosed with this, but welcome you to our group! We will be here to help you and love on you! Don't trust Dr. Google and stick with us. I'm lifting both of you up along with everyone else on here in prayer. Just hang in there! XOXOXO!!

  • relocatedtarheel
    relocatedtarheel Member Posts: 22
    edited August 2015

    Amy and Murphy. I too welcome you to the club you never wanted to join! It sucks and it is hard and sometimes horrible...but then one day you wake up and it all seems so long ago that you felt bad. You will get through this and you will see a time when this all a distant memory.

  • Peabrain
    Peabrain Member Posts: 34
    edited August 2015

    Amy & Murphy and other early stage triple negs - there is a lot of good info in the rest of the breast once.org site. This link also helped me put everything into perspective: http://www.healthline.com/health/triple-negative-b...

    Stef - you may want to also post in the thread regarding lumpectomies to get more opinions. I went with a full BMX but I am BRCA1 positive so there were other factors.


  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited August 2015

    Welcome Amy and Murphy, - hugs to you and to everyone else here this August 1st!

    As I have written many times before, - these boards are the BEST! This strong, supportive, understanding and well versed group, that is here 24/7, has made this last year and a half do-able for me!


  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,940
    edited August 2015

    Hello Teka

    I was looking through Calling all TNS and recognised your name. I was so touched when I saw the card you had posted for me. Thank you so very much.

    How are you doing these days? Please let me know.

    Fond thoughts.

    Sylvia xxxx

  • shorfi
    shorfi Member Posts: 437
    edited August 2015

    Simple...congrats on your 2 years. Hoped you remembered and thanks for helping me along the way 🎊🎉🎈💥

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,940
    edited August 2015

    Hello Amy,

    I was so glad to know that you had taken my advice and looked at and joined TNs. You will get amazing support on this extensive thread. Thank you for leaving the message on the other thread. I was glad to see that Murphy had also decided to join you here.

    I think it is a good idea for the two TN threads that have been ongoing for some time now to support each other and exchange information.

    I still think you American ladies get a lot more information forthcoming than is still standard in the UK. I have just recently watched a programme about virotherapy on the television here. It is described as a new and promising way of treating cancer. Do you have any information about it?

    Sending very best wishes from the UK to all of you newly diagnosed women. You can get through this.

    Fond thoughts.

    Sylvia xxxx

  • little-k
    little-k Member Posts: 6
    edited August 2015

    StefLove,

    I had lumpectomy rather than mastectomy. I discussed it with the surgeon and she explained to me that without the BRCA mutation, ten year survival is the same with lx and mx. I did some other research and found the same information. We did additional testing to look at addition lumps/cysts in both my breasts, found that only the one lump was cancerous, and the surgeon felt it was fine to proceed with the lx. I sometimes worry about the decision but not too often.


  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited August 2015

    Amy and Murphy I am adding my welcome to you both but feel so sorry for the reason you have come to find us. AL Husband is right triple negative is not all doom and gloom as painted on the internet and you will find the courage and strength to get through this nightmare. I am 3½ years out and yes it is a long and bumpy road but you will get there. Once that plan is in place you will find that somehow things fall into place and believe it or not the time will go by quickly. As for a lumpectomy or a mastectomy it is your surgeons and your own decision on what would be the best treatment for you. Take your time to make that decision so that you are fully informed but I don't believe one is better than the other and there are no statistics to indicate otherwise. We will all be here for you through thick and thin and remember you are only a click away but remember you will be fine and you will be able to cope through all of this. Sending big hugs. xoox

  • StefLove
    StefLove Member Posts: 201
    edited August 2015

    Thank you peabrain, little k and cocker spaniel! I don't have any genetic mutations, we checked for every single one of them, 22 or 32 or so. So I def feel more comfortable going the lumpectomy route. If any of them had come back positive then my decision would have bee much different. I still will have a few more heart to hearts with my MO about all of this though!

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,940
    edited August 2015

    Hello Teka

    I am glad to know all is well with you. I do understand that you are getting out into the countryside to get as much benefit before those cold chilling winters. I remember how long those winters could be from my time in Ontario and Quebec. It was so wonderful to have the spring thaw and watch nature come alive so quickly.

    Take care.

    Fond thoughts.

    Sylvia xxxx

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited August 2015

    I am having terrible computer problems. So I think this little baby needs to see a computer doctor. Cost will be an arm and a leg for sure.

  • JAN69
    JAN69 Member Posts: 731
    edited August 2015

    So sorry Cocker. I think I'd go crazy (ier) if my computer got sick. Hope you find a solution that's not too costly.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited August 2015

    Jan the darn thing is driving me crazy already. I think I have a virus and something is wrong with the fan at the back. It's a wireless one so it's not going to be cheap that's for sure and then they will probably take a couple of days to fix it and I will be like my best friend has gone away.

  • cassylou
    cassylou Member Posts: 40
    edited August 2015

    Hi ladies, it's been a while since I posted here but I'm hoping that maybe one of you can maybe help me out. I finished Ac chemo and I'm now on Taxol and Carbo neo adjuvant chemo. 3 of 12 due this week. I've noticed that my breast is swelling on the breast cancer side. I can tell mainly because it is spilling out of my bra on that side. I'm hoping it's the chemo kicking arse! Has anyone else experienced this after chemo? Google seems to have a million answers for everything but I can't find anything on breast swelling on neo-adjuvant chemo. Thank you, every one of you. I don't post often but it is great to know that you are all by my side x

  • 6feetover
    6feetover Member Posts: 97
    edited August 2015

    cassylou: Hey, there! I don't mean to be nosy, alarmist, or rude, but I think you should contact your onco doc immediately, just to be on the safe side. i think s/he is the best resource for a question of this nature...

  • mama26
    mama26 Member Posts: 4
    edited August 2015

    I just purchased a book from Amazon for my Kindle called

    Surviving Triple Negative Breast Cancer

    I recommend this to all of you TNBC ladies

  • shorfi
    shorfi Member Posts: 437
    edited August 2015

    Mamma26...I have that book and it is an excellent and very encouraging read. I even had it autographed by the author herself!!

  • WNYMom
    WNYMom Member Posts: 7
    edited August 2015

    Hi All!

    I tend to lurk on the boards and don't post much.

    I am 42 and was dx September '14 after a lumpectomy and SN biopsy. DX= IDC,TN, Stage 1, Grade 3, 0/7 nodes. I have completed chemo and rad as of April '15.

    My mom passed away at the end of January '15 from metastatic TN BC of the liver. Her original DX was in '10 and her mets DX in '13. Oddly enough ... genetic testing came back negative (for what they can test for now) yet we both had/have TN BC.

    I get so overwhelmed and caught up in the "what if's ...". I watched my poor mom struggle fighting this stupid disease and die from it. I can't help but wonder if the same will happen to me. It's a struggle each day to stay positive and "live in the moment".

    Thanks for listening and thank you for your truly inspiring stories!

  • Curlyq1974
    Curlyq1974 Member Posts: 87
    edited August 2015

    OMG WnyMom! Your timing could be any more perfect. My very dear friend was originally DX in 09 was just DX last week with mets to the liver. My parents came to my house to deliver that news to me. I felt like it was a significant blow to me. I have been a train wreck since and cannot seem to get my emotions back in check. I am devastated. I spent the night and part of today just crying. We can do everything right and this stupid disease can lurk and get you when you least expect it. I know, live for today, and all that other stuff, but it just sucks. I can't describe it. I am normally positive, upbeat, got this thing on the run, yada yada ya... but I'm out of whack right now, mentally. I know it is time wasted crying and pondering the what if's but my mind some times just goes there. Especially when stuff like this happens. UGH!!!! Stupid disease!!!

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited August 2015

    Sad sorry to read the last couple if posts, especially as I nervously await blood test results re liver panel. My numbers were too high in early July, went back for retest last Friday. I jump every time the phone rings.

    Hugs and BE WELL wishes to all here.

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited August 2015

    AnotherNYCGirl, I am hoping and praying your liver levels have dropped! Anxiously waiting with you hon! (((((HUGS))))) Let us know when you can.


  • slv58
    slv58 Member Posts: 486
    edited August 2015

    I'm joining the circle to hold hands. We are with you, positive thoughts and prayers.

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited August 2015

    Thank you luv and shari!

    Hope you are having a good day and feeling well!!

    oxo

  • SA8PG
    SA8PG Member Posts: 280
    edited August 2015

    Sending my love & prayers as well!!!!

    Xoxo

    G

  • meadow
    meadow Member Posts: 998
    edited August 2015

    Welcome Wynmom, Murphy and Amy, and Curly, and to those who pop in. And hello to all the lovely people here.

  • WNYMom
    WNYMom Member Posts: 7
    edited August 2015

    Curlyq1974

    I am so sad to hear of your friends DX. Many prayers for her ... and you.

    I, too, am/was normally an upbeat and positive person. I have been shaken to my core. This disease thinks it's going to rob me of happiness. I have to remind myself to take one day at a time. Some days are easier than others. I hate being depressed and hate complaining about all of the side effects I have been left to deal with. I feel like sometimes I suffer in silence. I miss my mom and I wish I had a sister. Scared


  • WNYMom
    WNYMom Member Posts: 7
    edited August 2015

    Hugs to you anotherNYCGirl. I will be praying for you.

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited August 2015

    Thank you all so much.

    (No call from dr yet. I called a few minutes after 5 and the office answering machine came on. Maybe I'll hear tomorrow.)

    OXO


  • shorfi
    shorfi Member Posts: 437
    edited August 2015

    NYC girl...hoping you get good results. I got you in my pocket

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