Calling all TNs
Comments
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Cocker I'd love to see your garden, it sounds like a slice of heaven! I ended up getting a purple leaf sand cherry standard and it's planted just outside our bedroom window so hopefully I can see birds visit it! Last year when I discovered this garden's birthday special, I got a Korean lilac. It's blooms were amazing this spring, I pruned right after the spring bloom and I'm getting a second lesser lilac bloom now! Here is a pic of it in the spring on the left.
Your cherry trees sound gorgeous, they are spectacular in the spring, there is a town in a South Korea that is well known or their cherry tree festival. Every street is planted with cherry trees. It is so beautiful.
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Shari! That view is amazing!! What a beautiful, calm setting!!
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Shari, that is absolutely beautiful. Hope you are feeling a wee bit better.
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Hello everyone,
I was just wondering if anyone knows what has happened to Titan? She is special to me because we both started threads in 2010 for TNBC that still continue. I do hope she is fine and has perhaps moved on.
Shari, I do like your garden.
Cockerspaniel, your name is about the only name I recognise these days. Obviously a lot of women have moved on. I read your posts with interest as they are always full of wisdom.
Sending best wishes to all of you that are going through treatment. I have now passed ten years since diagnosis. You can get through this journey.
Best wishes to all from the UK.
Sylvia
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Thank you Sylvia for all you do for us on here. Congratulations on going over 10 years. What a blessing. 😊
G
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Thank you for the words of encouragement, Sylvia!
*(Sorry, "delurking" here in the TN forums; I'm mostly over in the Chemo in July 2015 group, at the moment)*
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Shari, I'm sorry to hear that your chemo has been wiping you out so much. It's nice that there are only two left. Your garden is absolutely beautiful!
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Shari, it is so calming: you did a wonderful job! Prayers for feeling better
Sylvia, so appreciate your post!!!
Almost Friday girls ---- day by day, week by week we do this, and WIN!!
Kath0 -
Another thank you for your kind words. If I can lift some lift someone's spirits or help them get through this journey then I will, just like you always do.
Shari your garden is lovely and peaceful and I love that you can see the water from your home, that is just perfect with your lilac bush. I love your gorgeous little humming birds you have in your country they are so lovely, I wish we had them here. I put out food for the birds every day with my hubby and they know now that we won't hurt them so they sit all around us waiting for us to drop the food. It's a good thing my cat is an old boy now and not interested in chasing the birds, he would rather sleep all day until dinner time. Only one more to get through but that view will help you to get there.
Sylvia thank you for your kind words and ten years out, wow that is just great encouragement for all of us on here. Congratulations. As for my beloved Titan she is out there LIVING. She has just run a 5km race and is doing great. Every time I see her she is surrounded by a group of great looking guys (the floozie) but seriously she looks fantastic and is doing very well. I just love that lady.
AL thank you. I am totally useless at maths. Did your Kathy manage to find out what was causing the pain in her pelvis?
Arlene hope you are feeling better and better and enjoying your exercise. Don't overdo it you have only just had your surgery but enjoy.
LUV hope your anxiety is not so fierce today and you are managing to get out and enjoy your day.
Jan you have gone AWOL again. I suppose you are sitting in that lovely leafy glen beneath the mountain reading a good book. I cleaned my house from top to bottom yesterday so today I don't have anything to do except enjoy a good book.
I haven't heard from Linda for a while. That's another lady that I just love. She is beautiful inside and out.
Shout out to Eileen and anybody I have missed. Hope you are all doing well.
Have a good day ladies. We have frost but sunny here so it should be a beautiful day.
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I don't post often, I can't seem to keep track of anybody or any thing, for that matter. But I do care about you all and remember so well that help I received when I was in active treatment. Cocker, yes I go AWOL now and then, but I am NOT sitting in any leafy glen reading a good book. We are in our 4th year of a drought and we are beyond dry. In fact, our little mountain town is trying to breathe through thick smoke from the forest fire. More than 2,000 fire personnel here and the fire just doubled today. DH and GF helped a friend haul out some important things as she was being evacuated. They put her things in our guest house. We are across a little valley from the hot spots, so we feel safe, well sorta. I had doctor appointment this afternoon down in the "big city." My car said it was 103 F. We are all praying for El Nino. Frost sounds good.
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Geez Jan that's a far different picture to the one you painted for me before. I hope they get those fires under control and you get some rain soon. Thank goodness you are safe. Hope your doctors appointment went ok. Keep well and safe my friend. Thinking of you.
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I all...I have very rarely posted here. I am almost exactly 2 yrs past diagnosis and my on found a lump on top of my tissue expander and scheduled an early f riday morning ultrasound for me. Says it is probably a fat nodule but she wants to make sure. Then the nurse comes in to go over the Friday scheduling and starts talking local recurrence and now I'm freaked out for Friday. This lump is the size of a freakin marble and is just about where my first tumor was. Anyone have any experience with this?
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Yes, my green mountain paradise has changed into a dry desert with mountains. Experts expect 50% of our trees will be dead by end of summer. The drought weakened the trees and then the bark beetle finished them up. And western US is having the worst fire season ever. Our pond serves about 6 or 7 homes in our area and it is just a mud puddle now. Helicopters used to be able to suck up water here, but no more. I leave tomorrow for a few days in Southern California and fun with my grandchildren. I want to take them to do some back to school shopping. I had a steroid shot in my knee this afternoon. Now it hurts to walk. I can't promise to write often, guess I've gotten lazy. (I do miss the "old" days). Jan
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I miss the old days we well Jan (just not the same). Have a great time with the grandchildren and hopefully it will rain whilst you are gone.
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relocatedta a lot of the ladies have fat nodules and it may well be that. At least your doctor is on to it quickly and she will know a lot more than the nurse. Take a deep breath and try not to worry until you have to. Sending big warm hugs for a good outcome and will be in your pocket.
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Relocatedta...Hoping it is nothing but fat necrosis. I've had many lumps also, and they were always fat necrosis. Hugs.
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Just checking in to wave a big HELLO to everyone. I catch up on this thread every couple of days. And like Jan, I have a hard time keeping track of where everyone is on their BC journey. Pray every night for someone to find a cure and equally important, a cause for this dreaded monster.
Waiting patiently for my Navyson to return to the states (38 days to go) He has been overseas since January and as the young people say "I am over it!!" Miss his sweet face and can't wait to hug him. Had a wonderful long visit with my DIL and 2 grandsons. They are a true joy in my life.
I am feeling well for the most part. Although I have begun an additional medication for my heart. My Cardiologist feels that my resting heart rate is too fast and is affecting my heart muscle. I have lost some heart strength (decrease in ejection fraction). When I asked him if this were due to Adriamycin (red devil chemo) he said it very well could be. I see him again in December....I know he will up the dose....wants my Heart rate in the 60's and its still in the high 80's or low 90's. So its just one more thing......But I can deal with it. I am grateful to be here. Period.
Wishing everyone a pain free, worry free day. Don't forget to smell the roses.
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Cocker...the PCP put Kath on an anti inflammatory medication (Mobic) which seem to be working! Thanks for asking.
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oh this site makes me crazy! Just wrote a long post and lost it!
I just got back from 2 days at the beach---wonderful! New boobs in the sea water, as advised by PS to help clear up a small infection in suture line. And the cool water helped the neuropathy, too! A nice seafood dinner by the beach and 2 glasses of Pinot noir, hmmm--I felt almost Normal! Yaya! A good time with my good friend and sister. Am I getting my life back?!
Shari, don't worry...those pounds will melt right off. I went up 16 and am down 8, without diet, just a lil sta bike riding. So much was chemo/decadron fluid, I think? You will lose walking around that scenic yard, for sure!
Cocker, your garden must be wonderful, thoughtful and creative like you, I'll bet! And I thank you for the compliment. Lol, I haven't seen 25 in 32 years, but I remember it-ha!
Navymom, i hope the next 38 days go quickly, i know u ca't wait! My stepson is a Marine, we saw him in april, and he is to be deployed soon. He's a tank driver. Worried, but proud!
Relocated---hoping for some fat necrosis for you... Good news soon, I hope!
Thank you, Sylvia. Your words send strength.
And a shout out to simplelife, another, luv, alhusband and toby. I hope everyone is feeling good. I hope I didn't forget anyone!
3 weeks out from surgery, feeling good, can't wait til I can Spin and lift. I so appreciate all of you! Let's beat the crap outa this!!!
Love, arlene
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Hello everyone,
I'm brand-new here and wanted to introduce myself. I'm Amy, and I was just diagnosed last Friday after my "welcome to 40" mammogram caught something. Two days ago, I learned that in addition to being Grade 3, I'm also triple negative. I've learned just a tiny bit and just enough to realize that's an additional complication.
I'm glad to have found this board! I'm generally a positive person, but I'll admit that the diagnosis and additional information have me rather flattened. There's no history of gynecological cancer in my family, so this happening with my baseline mammogram was a shock. I have two young children (my baby starts kindergarten in two weeks) and we are in the process of trying to adopt our teenaged host orphan. This diagnosis could very well put that in jeopardy and leave her aging out in a Ukrainian orphanage. It's devastating on so many levels.
I have my first appointment with my surgeon on Monday the 10th. We'll be at the beach this coming week for our one vacation, and I'm hoping to enjoy it rather than wish the time away and find answers.
Looking forward to getting to know y'all and to sharing good news with one another!
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Awwww CarolinaAmy, welcome to the group you never wished to join! You are with a great group of women, and a couple men, who have been a very reliable resource for just about anything you can think of as you embark on this trip.
I hope you have an enjoyable weekend at the beach. Remember to just breathe and we are all here if we can be of any help or answer any questions.
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Carolina I'm sorry you have to be here but you're in a great group. The most important thing to remember is that TNBC is NOT the horrible terrible lethal BC that you'll think it is if you read everything on the internet. Yes, it is harder to treat than other types of BC...but it IS treatable and responds very well to chemo regimens, etc. These ladies here are a great source of information, a great group to just vent to, no topic is off limits, and they will provide love and support from now until 30 years from now when YOU are in this forum supporting others who are where you are now. There IS a light at the end of the tunnel.
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hi CarolinaAmy
Ditto!
BCO has helped me thru dx, testing chemo and 2 surgeries...IMMENSELY!
You can do this, and we are all here for support, venting, crying and laughing...and some good ole bitchin' too!
When I was diagnosed in January, I was clueless and terrified. I have been thru mx, chemo and reconstruction and am now planning my vacay to North Carolina. I am saying this because in January I could not picture being "normal," again. Well, not sure if I ever was. Lol.
Please enjoy your vacation and know that everyone is here for you. When you have time, check out the different threads. And when tou want to forget about this stuff for a while, know you can always jump back on, and someone will be here for you. I know you didn't sign up for this "trip," but we will try to make it easier. Everyone has cheered me on and made this so doable.
Love, arlene
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Amy, I'm joining in on the welcome. And I'm glad you found us so early in your journey. I was diagnosed with triple negative 4 1/2 years ago, had a MX, chemo, rads, and have done just fine. You will find your strength to face the treatments heading your way. I feel for you with your little one and the adoption situation. That's tough. Check in here often and someone will come to help. We understand. Jan
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Hi all,
I seem to be following CarolinaAmy around these sites as I find them.
I was also just diagnosed with triple negative cancer. The worst part of all of this has been the waiting and not knowing what to do. Then I find out that they did not get all of the cancer in the lumpectomy. Had I known it was triple negative before surgery I would have had a mastectomy. Oh, filled with regrets now. I am 43 and my youngest is going into grade 3. This all seems surreal. Reading all of the literature on triple negative I thought I was done for. I began imagining mets running through my body. I had lost hope. Then I came across this site and read all of your marvellous stories of Hope and courage. I saw how all of you support each other through this. I am not going to lie to you all. Being so new, it is hard for me to feel hope and courage right now.
Isee an oncologist for the first time on Tuesday. I am scared, but ready to start teatment.
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Hi Murphy and Amy. I'm sorry for your recent diagnosis, but I'm glad you both found this thread. It will be very useful over the next few months (and years). I think the first few months are the hardest emotionally. It does get better.
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Welcome Amy and Murphy, I'm happy you found this thread- the women and men here are so supportive and full of good information. You can vent here because we all understand, sometimes those closest to us don't quite get it.
Your both at a difficult stage right now, once you get a treatment plan you will feel better and find your strength. Right now you both have been told that your facing a fight against an enemy but you havnt been given any details of 'your army' and feel helpless. Once your given a plan, you will feel empowered- we all go through this. TN usually responds really well to chemo.
Come here often and don't be afraid to ask. We are here to support each other.
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haven't posted recently but ...oh my what a beautiful group of women (and men)! I am so proud of us! Jumping right in to help. That's what we do. Hang with this group girls. We/they will help you through. You'll get so much info here. Just ask away. Some are so eloquent in their writing and spot on. I tend to lurk lately but sending my strength to lift you up. Your stories resonated with me, bringing me back to my dx in oct 2013 and treatment. I found reading and educating myself helped me feel a sense of control and helped me to know what to ask and be somewhat familiar with the terms. It is an ongoing process. Hang in there and remember to do something physical everyday and learn to breath. We will hold you up whenever you need.
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Welcoming you Murphy. I think you'll find lots of support as you face the dragon. We hold hands, give hugs, and help in whatever way we can to help you. Best wishes. Jan
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hi ladies I'm usually a lurker and have popped in to say hi just a few times but always come here for a little emotional boost.
Welcome to the ladies that just joined, it's a great gang here!
I'm not sure if anyone has asked since have been in this group but is there anyone that decided to just have a lumpectomy instead of a mastectomy? My MO seems to think either is a viable option and it's really only up to me. I wish she would lean more one way so I'm more comfortable with my decision but she's not.
I had a lumpectomy originally before we knew what we were dealing with. We thought it was just DCIS. I will need another lumpectomy after chemo is over because I didn't have great margins and the surgeon left the metal biopsy marker in there. Don't even get me started on that whole debacle. Obviously having a diff surgeon for the next one. I just don't know if I want to deal with recovery of a mastectomy, expanders, more surgery after radiation, etc. At least if I can have the same results with a lumpectomy.
all thoughts and first hand stories welcome! :0
