2010 Sisters
Comments
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Sweet - Sorry to hear about you having to have a second surgery. You should ask your surgeon if they will place the port while you are in there for the 2nd lump. I had mine put in during my lumpectomy. Just a thought so you can get it over with. Hope it goes well, Chin up:)
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Jen, he doesnt want to run the risk of infection. I already asked.
Kristy
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Sweetaerobabe,
Good vibes, thoughts and prayers coming your way....keep us updated when your surgery is scheduled!
Take care,
Tori
DE COLORES!
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Jaismama - thoughts and prayers are with you. You will do great. And we are always here when you need us.
I had another Aredia treatment yesterday and so bones are hurting today, but not as bad as last time. My RBC was low yesterday so the onco said I needed a shot of something or the other or a transfusion so I opted to try taking some iron and then checking the RBC again in a couple of weeks and if it is still low I will go with the transfusion. I am not taking another drug with more SEs when there is another option. I go the the RO on the 28th to see if he can help with the bad bone pain in my back. We will see.
Everyone enjoy the small joys - they add up!
Amy Jo
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elaineg and jalsmama--thinking of both of you as you start tx. Let us know how you are doing!
Sweet--sorry about dirty margins! That happened to me too, and I opted for a mx the 2nd time, because there was no guarantee of clean margins after a 2nd lumpectomy. My MRI didn't show the idc tumor, or that there was DCIS throughout the breast. I wish there was better testing!
Amyjo--sorry you have to endure so much. I hope the RO can help you with your pain. Blessings to you!
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Thank you for all the support, I have a great BS and he feels that this one should get it all, if not, then it will be my decision to take it off! I just cant believe all we have to go through.
Kristy
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Kristy sorry to hear you are going under the knife again. But at least they found it.
I too am doing the taxotere,carboplatin and herceptin X6 followed by Armidex (since I will be in permanent chemopause at my tender age of 49).
I have my 2nd treatment next Tuesday. Hair starting to fall out today. Port placed the day before my 1st chemo… it's very cute because I got a kiddie port. As you know I call it Agent Smith. Had few day that were a little icky but not too bad. The worst for me so far had to be either dealing with nurse Ratched or the 1.5 days of some bad back pain. Not sure which was more irritating at this point.
The surgeon that placed my port… well that's all he does. I felt better about going to a person who does this regularly although I though it was a little weird that that's mostly all he does.
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lago, are you getting herceptin weekly? My onco mentioned I would be seeing him weekly for that. And the Armidex.... is that pretty much the same thing as tomaxifin?
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I am getting Herceptin every 3 weeks. Arimidex is for post menopausal women only. It works a little differently than tomaxifin. Both are used as hormone suppression therapy for hormone postitive cancers but not at the same time.
Arimidex: http://www.breastcancer.org/treatment/druglist/arimidex.jsp
Tomaxifin: http://www.breastcancer.org/treatment/druglist/tamoxifen.jsp
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Aw, Kristy, I am so sorry your margins were dirty. Mine were, too. You can do this. Group hug for SWEETIE!!
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((HUGS)) Sweet. Praying the second surgery gives you the all clear.
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IM IN FOR THE GROUP HUGGGGGGGGGGGGGG.
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Hey girls! Had first tx today. Did fine with Taxotere and cytoxan. Feel a little twinge in my tummy but more of a gassy feeling than anything. Also think I'm ovulating WOOHOO
so thats probably the REAL issue. Getting neulasta tomorrow afternoon. Good thing is that my WBC's were really high today from the steroids i started. but pre meds also included MORE steroids! GOOD GOD PEOPLE! I didnt sleep last night because of them, up until 4 am and then up at 6:15 to get me and the kids ready for school and my 1 hour drive to UCLA. mom and sister went with me, hubby stayed home with the baby 
. Feeling a little drowsy now, maybe I'll be lucky enough to get some sleep tonight. Although I'm about to take myt steroids again, so FAT CHANCE! HAHA! Prayers, love and good juju all around sisters!!!! XOXOXO0 -
Jalsmama55,
Glad to hear all went well today! Good vibes were sent, so I hope you felt them! I know the steroids make you have mega energy, but try to not overdo it...I did and kinda paid for it after my first treatment. I'm doing better this second round though...I wanted to clean the house 3 times, but made myself relax as much as I could...
Hope all goes well and you hardly feel any SEs...
Peace and prayers,
Tori
DE COLORES!
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Thanks Tori, I even took 3 Melatonin last night and NOTHIN! Oh well, wlil take last doses of steroids tomorrow and I'm sure when the SE's hit, ill get plenty of rest
Always time for sleep later, for now I'll enjoy my family for another night and day until that nasty neulasta shot tomorrow GGRRR! XOXOXO0 -
Sweet- I'm on the same therapy plan as you. I go in weekly for Herceptin and will continue throughout chemo to go weekly. Once chemo is done, I will go every 3 weeks for 9 months for the Herceptin. Also after chemo I will do rads and Tomaxifin for at least 5 years.
I went for my Herceptin treatment on Tuesday, one week post 2nd TC treatment. My white blood count was down to 500. Doc didn't want me to do Nuelasta this time around due to the horrific pain I had the first time. I'm meeting with my Doc next Tuesday if I don't land in the hospital before to see what we will do for treatment #3.
Hair continues to go. Almost all gone in the back. Eye lashes and eyebrows seem to slowly be going too. I am more tired this time around. Hand and foot pain from the Taxotere is constant.
On a personal note, contemplating starting divorce through all of this. Husband thinks I should be nice, sweet and Not Angry!
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OMG are you serious about the divorce. Maybe husband just needs some therapy.
I too had some numbness in my left hand but it's fine now. I will report this to chemo nurse and not Nurse Ratched. I think you are supposed to let them know if this happens.
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Lago - did I miss your post on Nurse Ratched? What happened?0
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Jag, sounds like I have alot to look forward to.
My bf thinks I should be so positive all the time, and not to worry, we will beat this, but he isnt the one with the constant worry. So I find myself keeping alot to myself. I worry in silence. I know positive thoughts will help, but come on, I cant be strong all the time.So sorry to hear about the problems with the husband. There should be manditory counceling for caregivers, at least a video to make them watch.
Kristy
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She's been uncooperative and adversarial from the start. But this was the latest.
It took 5 days to get the approval request form (filled out correctly) because of her 2 mistakes. (1st she forgot about our initial email and told the pharmacy to use prilosec after I just told her it wasn't working and she suggested the protonix. Next she didn't put the name of the drug she wanted me to be on so the insurance company wouldn't process the form)
She blamed the pharmacy and the insurance company for the delay. Then proceeds to lecture me about paging the chemo nurse on Friday to get this corrected.
I had no choice since Nurse Ratched's phone message said she was out that day, Chemo nurse phone message said she returns calls at the end of the day. Time was an issue since we are in the Midwest, insurance company is on the east cost, it was Friday and my initial email was sent on Monday! What I was supposed to wait another weekend!
There's a lot more but this was the worst and my final straw. BTW I also explained to her that my gastrointestinal doctor prescribes something else but she wouldn't listen. So the protonix hasn't really worked but I have been getting better because I'm now over 2 weeks out from my first treatment. I still get some heartburn though.
And I loved the fact that I told her I was having bad back pain. Ibuprofen was helping a little. Asked if it was OK to continue with this. She replied I should take narcotics that she discussed at chemo training. I told her that she never prescribed any narcotics but I do have some stuff left over from when I had my BMX that I never used. She said use one of those. I didn't. The drugs from surgery are very strong narcotics. She should have prescribed something from the list she had given me.
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Lago - Sheesh!! She needs to find a NEW JOB!0
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Jag, SweetAero,
My hubby had problems too. I bought the book "Breast Cancer Husband" by Marc Silver (used on Amazon). #1 surprise was that he actually picked it up and read it, #2 surprise was that it did him a world of good. You might be surprised, too. I think most men aren't sure how to deal with us, let alone after this diagnosis. Having a "manual" is something men appreciate. Maybe it would help.
Hugs,
Shelley
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a lot of not nice things goin on here.dont like this one bit.i just hope its the full moon tomorrow.
damn i feel soooo bad for you girls.what a mixed bag of crap with the nurse from HELL standing right up front.she needs a smack.
prayin real hard for all my sistas.God bless each and every one of you
hugggggggggggggs
K
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Husbands - We were so lucky in that my husband's office mate's wife is a survivor of stage 4 colon cancer. This man was able to talk with my husband about everything and ask the right questions and just listen. He was really great. I think it made a world of difference for my husband to have another guy to talk to about wife things.0
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Hugs to you Grannydukes!!0
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Don't worry about me and Nurse Ratched. I'm no push over. I just will not deal with this kind of crap.
Seriously we pay a lot of money to be treated. Some of that money goes to pay for her job. If they make me deal with her I will just go somewhere else for treatment. I mean there are 2 other hospitals in the area ranked higher than the one I'm going to… one is even closer to my home. I can take my business else where if it comes to that.
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I feel like I should clear something up. My husband and I were discussing (if you want to call it that) separation/divorce just before I was diagnosed. We have been having major problems for the past 2 years. Now with cancer I just can't and won't deal with the bull****! Don't have time for it! He now wants to be involved and I really don't want him to be. Totally disconnected on my part. I have a lot of resentment as well. Not to throw my own pity party or to be whiny, but where was he when I didn't have cancer?
Sorry for the soap opera!
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lago- I went in Tuesday for my short Herceptin apt and as I was sitting in the infusion chair (at a cancer center...this is all they do on the infusion floor is give chemo) I over heard my nurse tell another nurse, "I can't believe they scheduled an infusion at 4:00....." She came marching over to me, didn't even say hello and picked up my wrist to read my patient bracelet. Before she could do anything I told her I didn't want her taking care of me and to please find another nurse. When she asked why I told her I heard her saying she needed to get out on time and didn't want to hold her back. She thought I was kidding and was going to access my port, I told her not to touch me! I of course got an apology from the supervisor and I let her know I didn't want that nurse in the future. You are right we pay good money for our care and should be treated better even if it were free!
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topic of husbands- this whole ordeal is causing some stress btw us too, as his parents are away on vacation and he cant travel for work. Also he is doing as much as he can with the kids and then have me nag/bitch (which i have every right to) on top. But, he has been made aware by a few of my family members that- just let her be the way she is for now, its her way of venting out. So he has to deal with it. But I am trying my best not to over do it neither.Im just too friggin independant, and I cant stand relying on anyone else. Just not me!
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I just received my oncotype dx score and it was 23. I had a lupectomy Sept 30th and my rads onco and surgeon really did not think I would need chemo but wanted to make sure so ordered this test. They have set me up with a med onco on Monday to go over everything and decide what the next step is for me. I asked what my recurrence rate was from the test and was told 14% which sounds high to me. My initial thought is that I will go through with chemo if it can lower my odds. Not sure what others have experienced with their odds. Would appreciate any thoughts out there. Oh also I am 48 yrs old.
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