2010 Sisters
Comments
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Sweet-good to hear clean margins
Mrs. Nice -good to hear you finish chemo
Grannydukes-hope your grandson is doing well
I went for a PET scan today and was a little freaked out when the guy told me that I had to stay away from pregnant women and babies the rest of the day because I would be radioactive. I knew it was not a good sign when they took me back and they removed a yellow caution radioactive barier for me to go through. I had to laugh afterwards and tell my DH that maybe I would glow tonight. I will get my result monday when I see my med onco. Hope all the results are good and I can go forward with getting my rads markup on Tuesday. Hope everyone has a great weekend.
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Sweet - that is great with the clean margins, congrats. and chongratulations to all that are finishing with Chemo. Had my first rad treatment today and it was not as bad as I thought. Just hoping that the skin does not get red and irritated. Figured out that so long as all goes well my last treatment will be on December 15th. Merry Christmas to me:) Hope you all have a great weekend.0
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Thank you all. Looks like Im just starting and you all are finishing up your chemo and moving on to rads. Congrats, Im happy for you all. Will I need to join another group or are there people still here that need to start chemo?
Kristy
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Hey all, what are we all doing here on a Friday night? Ugh. It's pretty bad when this is our entertainment! I'm glad to be here with you though. I'm so burned and my skin is so tight I don't really want to move at all. I feel like my skin will will break when I bend over to tie my shoes! Argh. I didn't think radiation was going to be too bad, and it wasn't until after it was over! Monday will be two weeks since my last treatment and I'm still so red and starting to have brown patches of skin slough off, gross. I have a couple of spots though that are getting better, so I'm hoping the worst is over. JenC I know you are just starting, so I hope I'm not bumming you out. I just needed to complain a little. It was a long week at work. I didn't even wear a bra for a couple of days and tried to cover up with my lab coat, how embarassing. I had to wear one today though and it was awful. I called the Rad Onc again and got the dosimetrist instead. She suggested I spend the weekend with my shirt off and a fan blowing on me. I told her my husband will love that! I ripped my shirt and bra off as soon as I walked in the door!!
So glad we gals are finishing up and moving on. It's a long road to hoe. Or is it row to hoe? I don't know. I took a pain pill so now i'm rambling.
Sweet, glad for your clean margins, that's great! I'm sure you are welcome here as this is just a class of 2010 thread, but you might want to see if there is a November chemo thread starting also. Many of us have been through it though so we can answer your questions, I'm sure.
AmyJo - blessed relief, glad you found some, Amen
How are my FEC-T sistas Rachel, LadyinBama, Teklya, and Cathy, I'm praying for you every day.
Hugs to GrannyD, BarbA, Karin, and all the new ladies.
Sorry for the venting. Hope everyone has a great weekend.
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Was Biopsied on Nov 1, Saw surgeon on Wed the 3. pleomorphic ILC ER+NR+.Lumpectomy will take place w Sentinel Node Biopsy on Tuesday next. Radiation to follow but no chemo. Hopefully Radiation over by end of the year. Anybody else out there just getting started?
Elle
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Sweetaerobabe,
Congrats on such great news! You can always post here about anything...we leave it open to all threads from those sisters that join in 2010. (Of course other ladies are always welcomed to check in on us, give us advice and just see what we talk about)
There will be a thread started for the month you start chemo, so you will be able to walk with those ladies that start that part of their journey and be able to share so much with them. But know you can always come back here with questions or to check on others...
It's a very open, accepting thread..we are all 2010 sisters getting through this journey together!
peace and prayers,
Tori
DE COLORES!
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shelly- Are you very fair skinned? My BS told me they may have "fun" with me in Rads due to my very fair skin, being blonde (or was when I had hair haha) has it's costs. I also am allergic to surgical tape and almost all tape. Still getting reactions with my covering for my picc line but slight. I hope you and hubby had a fun night, lol. I'm still having daily nausea, not steady but on and off. Yesterday (over a week since my last FEC) I figured it must be something I ate and didn't take a nausea pill. Guess what? Yup, threw up. Ughhhhhh. Still this morning same nausea. I took a pill though this time. Every day I think it will stop but it just goes on. The first 2 tx's were killers the first few days but then I continued to get stronger w/o nausea daily. Guess when it ends it will be gone as they say Taxatore isn't as likely to make you sick.
Sweet- congrats on your good news and I will still be here into the new year and longer as I still have another chemo run to do. Your stuck with me.
Cathy
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Shelley - Sorry you are in so much pain. real gentle ((HUGS)) I am thankful for the information so that I know what I may be "looking forward to" Hope you start feeling better soon. Have a great weekend with yhour Husband 0
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Sweetaerobabe/ Kristy I'm doing chemo now. Will have my 3rd treatment of 6 on Nov. 16th. Check out the October chemo thread. You can see what is in store… for most of us it really isn't that bad so far.
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Elle45: Hi. I am going through the same thing you are right now, but you are a little bit ahead of me in terms of surgery, etc. I was diagnosed with IDC on 10/27 and am seeing a second opinion on Monday (which can't come soon enough!). I have been told that my case is pretty straight forward - lumpectomy with SNB, radiation for 5 weeks, tamoxifen for 5 years. I suppose unless the pathology report from the surgery shows something different, that's what's in store for me. Also a little worried that the MRI might show something. Most worried about the unknown right now versus what I know! The waiting is so difficult. I actually have a third opinion scheduled on 11/18, but at this point if I love the surgeon on Monday I may just schedule everything at that point - I just want this out of me.
To everyone: LOVE this site. Wealth of information and support. Positive thoughts for everyone.
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SWEET:::::your not alone I go for chemo training Tuesday have surgery again on Thursday. I think my start date for chemo is Dec.3.LOVE this thread also HUGS LADIES!!!!!!!!!
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Sweets, great to hear you had clear margins. I know it's difficult when they don't get everything the first time in. Also had two surgeries in same location. MRI between first and second so guess that really was good, just want to make sure they get everything.
Jen, I'm with BarbaraA and the emu oil. I had 33 rad treatments that included 5 boosts. I used aloe most of the time. Took a bottle with me in my purse and put it on after the treatment and during breaks at work. I slathered it on. I'm tanned on the rad side and darker still where they did the boost but I never broke out and got really sore. Hope all goes well with you. Also check out a site that rads are starting ie: October rads thread.
Amyjo pain is the pits, glad they gave you something you can tolerate and it's helping.
Hey to everyone else, don't want to miss anyone. Blessings and hugs!
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Oakley, Hi! Hope you find your surgeon soon, My FP found me the best in the area when she saw the US & Compression studies. Lucky me, I guess. When we got the partial biopsy he cleared his calendar for me as soon as he could. He said if I waited over 3 wks , he would probably find lymph node involvement. Evidently these little demons are on the march!
Did you have any symptoms or just caught it on a routine Mammo? Wishing you all the best . If you like we can hold hands & hugs online & tears online as we face this
Hugs'
Elle
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hey everyone
gosh this is the busiest thread.i wonder why???so much shit goin on here.thinking about all of you every single day.
my gs is lucky to be alive.he will heal in time.i could not go to the hospital bc i couldnt look at him that way but his girlfriend made sure we had to see picture by picture detail by detail on face book.i wanna kill her.im a mess.period.i dont know what i would do without you girls now.and with all of you having so much goin on in you own lives...YET we have the time to listen to each and every story.I love you girls for that
wishing you pain free days.everyone of you.God bless.hugggggggggggggs
k
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Amyjo - I am finishing up 34 rads - have 32 done and 2 to go. There was a woman there getting rads for bone cancer in her hip and back (I think). After two weeks - she couldn't believe how much better she felt. At the beginning she was very stiff and had to rest several times after treatment. At the end - she moved well and felt great - had a big smile on her face. Hope your treatments are as successful!
Rads has not been bad for me - definitely better that chemo. Only some minor pinkness and transient pain in breast.
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glad to see positive posts on the rads.im still pondering it.i told my onc.NO.so much negativity.
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Shelley: Hope you find some relief for your skin. This FEC-T sister is just an FEC sister right now. My T keeps getting delayed. I'm on deck for Monday if it doesn't get changed again! I'm ready to get on with it. I was on tap to be done by Thanksgiving,now I'll be lucky to be done by year end.
Granny: Young people put everything on Facebook, it's disgusting. Glad your grandson is going to be ok.
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Shelley: Hope you find some relief for your skin. This FEC-T sister is just an FEC sister right now. My T keeps getting delayed. I'm on deck for Monday if it doesn't get changed again! I'm ready to get on with it. I was on tap to be done by Thanksgiving,now I'll be lucky to be done by year end.
Granny: Young people put everything on Facebook, it's disgusting. Glad your grandson is going to be ok.
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I thought my gs girlfriend put the pics on facebook...it turns out it was him.these young kids think facebook is dear diary.everytime they go to the bathroom it goes on the news feed.
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Hey thanks all for the well wishes. Yes, I am fair (not blond, but blue eyed and never tanned a day in my life, the burn and peel type). I did expect to have some trouble, and I guess I'm lucky to have made it through all the treatments without a break, but yowsa! I guess it all built up at the end.I'm feeling a little better today, since I haven't had to wear a bra all day....TMI. This too shall pass, as they say. I did use Fruit of the Earth 100% aloe and Aquaphor (CVS brand) all the way through successfully. The problems started after the doc switched me to the silvadene cream without giving me the right instructions on how to use it.
LadyinBama, good luck on Monday, sorry for your delays, I know it is upsetting. I hope it goes well.
Tryn2 - it sounds like you got a little food poisoning or a bug somehow, were your white counts down? I don't think you should be nauseous so long. It should have been more like the first two tx, just a few days. I tried very hard to make sure I didn't get exposed to anything, washing fruits & veggies, NOT eating out unless it was FRIED, doing the doorknobs with lysol wipes, etc. and staying out of crowds. It was easier in the summer though, not so many folk sick then as now. Hope you recover and can continue. Argh, like it's not bad enough!
Hugs, Sistas!
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Welcome to all the new sistas. So sorry we have to meet here, but this is the best place to come for comfort, encouragement, information and support. It does not matter what your dx is or how far along you are on the journey, we are all here for each other. We cry, vent, laugh and share whatever it going on in our lives. You can join in on other threads, but keep us in your favorites and come often. There is comfort in numbers, just wish there were not so many that have reason to join any thread on this site. We need a cure and we need it NOW!
Sweet and dianemoe - keep coming here and let us know how you are doing and let us help if you have any questions or just need some encouragement.
Thank you sistas for the encouragement about the rad I will be starting this next week. The pain medication is working well although they may need to up the dosage since I still need to take at least 1 Aleve everyday and some days I need 2. At least the most of the pain is gone and the places that were the worst are greatly eased. It feels great to be able to function like a somewhat normal person.
Amy Jo
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Thinking and prayin for you amyjo.just tryin to catch up.
I wish you pain free days FOREVER.
Yes we do need a cure. NOW.!!!!!!!
God bless.huggggggggggggggggggggggs
K
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shelley- I do pretty much all that you do also. I think I go overboard staying away from people and places I'd usually go. I have sanitized everything. I really don't think its a bug as it comes and goes as it pleases. I really think its just a build up of the drugs. It's not steady enough to be anything else thank goodness. No more FEC's for me so it won't build up anymore either.
I did figure you must be fair to be having so much trouble with your skin. Hope it's feeling better today. Do you find it makes you overly tired too?
LadyinBama- Sounds like we'll be doing T together pretty much. Good luck with your first one (hopefully Monday) and keep us posted on how it's going for you.
Hugs to all including all our new sistas!
AmyJo - Hoping the Rads help you like the other lady's tx did. Good Luck.
Cathy
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Hi Cathy,
Yes Ma'am, I'm pooped out, but I'm not sleeping well and work, so when I get home I take a quick nap and then fix dinner, walk the dog, etc. Then I'm in bed by 10. Yesterday I got a nice long nap, but then I wasn't tired last night, ugh. Now I need another nap but I'll set the alarm so I don't sleep too long, I guess. Otherwise I will wake up at 2 am and not be able to go back to sleep. I have less pain today, and wonder if I will "turn the corner" by tomorrow, as they predicted. I remembered that I have an appt with my Onc tomorrow afternoon, so if I'm still miserable, I will tell him.
Question - tomorrow I see my Onc for my first checkup since finishing chemo and won't see him again until February. It seems like a long time. What questions should I be sure to ask him? Need advice.
Hugs to all!
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Shelley- Do you go on for Rads? You may see your Rad doctor in between those dates. Your chemo doctor will bring you in for follow-ups though. Has he advised you if hormonal therapy would benefit you? That's a good question I'd think. Good Luck!
Cathy
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I just dropped by after being out of town for the weekend to wish all my sisters a pain free, se-free stress-free week! Visited my maid of honor im Miami Friday then headed to Weston to meet up with 3jaysmom (Cherie) and Marybe. We had a lovely afternoon at a wine tasting place. You buy a card w/$ on it then you can try one of 100's of wines either as a taste, 1/2 glass or whole glass. I tasted my brains out! Yum. Then Cherie went home and MB and I went back to the condo she and 5 of her friends has rented. We oinked out on red snapper and salmon and then crashed! Great fun!
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Hi Cathy,
I did see the Onc today and he said my skin looked pretty good, not broken down. I feel much better today and moved my whining to the Sept Rads board where it should have been! I do see the Rad Onc right before Thanksgiving and plan to give someone an earful about their skin care sheet. My Onc was going to start me on tamoxifen today but thought I should wait until I'm healed so have another appt next month with him. I'm glad because he was running late and I didn't get time to ask him my list of questions. He did mention that he would draw blood for my hormonal status again and if I'm still showing postmenopausal he will switch me to an AI, which I want since the early results are so good. He beat me to the punch though, I had two journal articles that discussed their use in pre-menopausal women and in chemopause women (me). I'm glad we are on the same track.
LadyinBama- thinking of you today, hope your taxotere treatment went well.
BarbA- I'll be visiting yankee relatives in April on Treasure Island....look out!
Gonna go walk on the treadmill for 30 minutes before it gets too late.
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Hey sisters,
I got an the next fill in my TEs and then my DH had to take me back this evening to get some of the saline removed. The pain was so bad I could not breathe, talk or move my arms and that was after having a Fentanyl patch, 2 Aleve and a Alprazolam. Feeling much better now that 100 cc have been removed. Tomorrow is the full body bone scan then Thursday rads start. My RO is wanting me to have more surgery and to remove the TEs and forget about reconstruction, He thinks if I do this I may not need radiation. The BS says that more surgery will not be of any benefit. She does not think, nor do I, that it is possible to get clear margins due to the stage and progression of the BC. I think I want to continue with the reconstruction and the radiation. The PS says we can put the permanent implants in either before or after the radiation. He would like to get the TEs replaced with the permanent implants as soon as we can so that I can have the next round of MRIs that will be scheduled for late Dec or early Jan.
So does anyone have any suggestions or advice? This is more than I really want to think about.
Amy Jo
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Amy Jo that must be difficult to have three differing opinions to deal with. I don't have experience with any of that so I won't try to comment but I do send you a big HUG!
Ginger
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{{{AMYJO}}} I do not have any advice but want you to know I am cyber hugging you!
Shelley - you better PM me to get my # so we can have drinks at sunset!!!! And maybe even some dinner!
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