2010 Sisters
Comments
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Shelley: I did fine with the infusion, no signs of allergy or anything; thanks for the positive vibes. I feel fine right now so hope that keeps up. I feel a little itchy every once in a while but I don't know if that's the tax or the steriods. Today is the last day on the steriods, so maybe that will go away.
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Hello again,
I met with a BS yesterday and am going to use her moving foward. She had her pathologist look at my slides and there was a slight difference in opinion of grade - this new pathologist said grade 2. He also wrote "a focus suspicious for lymphatic invasion," which of course made me a bit nervous. I am going for my MRI tomorrow and then next week for surgery (currently a lumpectomy and SNB - which surgeon said she takes 3 lymph nodes out right from the start). If the MRI shows something suspicious, then this course of action may change. Again, it's the unknown that is so scary. I can deal with treating the known. Does anyone know what it is like to have the dye injected into the nodes? That is happening the day before surgery. Everything is happening so fast, but I guess that's good since I don't have time to dwell on it!
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BarbaraA- Sounds like you had a great getaway. Very nice. May we all get the time and the health to enjoy some of life's simple pleasures.
Shelley- Sounds like you know your stuff. I haven't made it there yet but I'll keep that info in mind for when I do.
AmyJo - You are dealing with so much now. Sorry so much pain was involved. Wishing you the best and hoping many better days lay ahead for you.
LadyinBama - WTG girl! I love it when I hear very little SE's. Hope it keeps up for you and hope I am to be close as you in little SE's a week from Friday when I get my first Tax tx.
Cathy
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Oakley-I did not have to do anything the day before surgery. I had a lump as well as 3 nodes removed. The dye they did at surgery time so I did not feel a thing, but you will pee blue for a couple of days afterward which my surgeon did tell me about. I healed really well except that I did have a hematoma but I am very prone to those. Only took pain meds the day of surgery and some the day after and Tyleno after that. I tried the sports bra thing but it rubbed on my node incension so my reg bra was much better. You will just have to see what is comfortable for you. Good Luck with your surgery and keep us updated.
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oakly, I had the dye the day of surgery as well but was awake. The dye was not put into the node, it was shot 4 or 5 shots around my nipple. The shots had lanacane in it as well as the dye. I would check with your BS how it is done at the hosital. It seems to be done different ways at different hospitals. I was also given something by IV to calm me down because I was scared about the whole thing.
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oakly - my BS used both the blue dye and radioactive tracer to find the lymph nodes. I had the tracer injected about 2 hours before surgery at one place. She did a numbing injection and then the tracer. It didn't hurt much that I remember, I was more nervous than anything. The BS must have injected the dye during surgery. Best wishes to you.0
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Oakley, I also got the dye when already under. I was not told of blue pee so I'm glad I did not have that! I ended up with a trace in sentinal node so they took 14 more during same surgery, all clean. That caused me to spend the night in the hospital. As soon as I was released I went to work. Not much pain, but also had numbness which is still there somewhat so as that wore off it hurt more. Still nothing awful and I went without bra and just wore a jacket, seemed to be most comfortable. You will be just fine, the unknown will be known soon and you can move forward and deal with whatever comes next. Not fun but now you have tons of others going through it with you!
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oakley I had the same procedure as Kira1234. Little sting from the 4 shots of lidocaine and that's it. I had 4 nodes in my sentinel. Sometimes they stick together. I don't remember peeing blue.
The dye was injected before surgery. I was in street clothes from the waste down. After it was done I put my clothes back on and preceeded to the surgery area about 1-2 hours later.
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YAY BARBRA...GLAD you had some FUN you deserve it. I too got a surprise trip to morro bay Ca. I live in Los angeles...We even visited the Hearst Castle as I have always wanted to see it... well I am trying to read up on all your postes . Amyjo I hope you get some relief just keep up hope and tell the dr. until you get relief none of us should be in pain...To those inquiring about weight loss during chemo,I am a personal trainer and a runner but can only power walk because I tried to run and my breast swelled and inscisions were sore so nix that for now as I tell all my clients WALK ,WALK,WALK, good for mind and body, get books on tape or Ipod I only allow myself to read it if I'm exercising, I also do the elliptical, but no arm swings just hold,I have an appt. next week with a nutritionist because those steriods are throwing me off, first week after chemo NO appetite , then second week Iam starving, the nurse told me it is the steriods but they are necessary, I will let you all know what she comes up with so I can eat more evenly... wishing you all a stress free we3ek,HUGS CAT
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I think its time for a group hugggggggggggggggggg
Amyjo.....sending prayers your way.
God bless my sistas.
We are gonna beat this monster. OH YES WE WILL.ONE SISTA AT A TIME
.
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((((HUG))) to all. And yes we will.
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The bone scan went well today and the pain is down to a minimal level. I actually got some birthday shopping done for my grandson, daughter and DH. They all have birthdays next week. I still don't know what I am going to do for sure. I did find a book "Chemotherapy and Radiation for Dummies" maybe I can find some answers in there. I also found a new cookbook Betty Crocker with some information and recipes for living with cancer. Hopefully that will help keep my weight and nutrition on track. Tomorrow I just have the physical therapy and the radiation is on Thursday and that is when I need to have an answer for what I want to do.
I will let you know what happens and what I decide later. Hope everyone has a good restful evening.
Amy Jo
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Amy - I have that book and found it intesting, with lot of detail.0
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I was given the book Breast Cancer for Dummies and it was good to peruse as well. Have a good night.
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Wow! This site is a bit overwhelming, yet I know it will become a wonderful source of information and support. Diagnosed on November 4, 2010, my 40th Birthday...... (interesting way to spend my 40th b-day) So far all I know is that it is IDC and I have a 3.5 cm tumor. I am currently being treated through The Rose in Houston, as I am unemployed and uninsured. The next step is to meet with my "navigator" through The Rose. Once we have met, I will go on medicaid and then start my journey and treatment at MD Anderson. (I have always been the one donating and volunteering to help, this is one side of the fence I never thought I would be on)
I am still absorbing the diagnoses and the reality of it all. My mother was diagnosed with breast cancer at 32 and passed away at 44. I have been regularly screened since I was 27 and NEVER imagined that I would be here at 40.
I am happy to have found such an amazing forum of women going through the same. This is going to be an interesting journey...................
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Welcome cec1970...
You have come to the right place to be with those of us who know exactly where you are right now and will be here for you every step of the way.
Come here to talk, laugh, scream, ask advice...or whatever you need....
One day at a time...
peace and prayers,
Tori
DE COLORES!
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Welcome Cec1970 - Sorry you have to be here! May I ask how you found your lump?0
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Welcome Cec1970 - this is a best place for you to be to find answers, encouragement and support. We are all in this together and here for each other.
I still do not know what I will decide to do about the reconstruction and he radiation, but I will let you what I decide tomorrow. Guess I a lot of reading to do this evening.
Hope everyone has a restful evening.
Amy Jo
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Cec1970, you are always welcome here I have found these women very helpfull, just breathe and ask any questions or ask for help and we all will do our best support you, you are not alone here, ever...HUGS,Cat
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Cec 1970 welcome although I hate that you are having to join us. I am from Texas as well about 2 1/2 hours from Houston. I have found this forum to be very helpful with information and questions that I can ask my Drs.
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Thanks for the posts, yet I am still so scared and angry that I have to go through this! I lost it today after reading all of your posts.
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cec - its rough. Big hug to you. Take care.0
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CEC1970 welcome to the message boards. There are lots of caring women here who have walked various portions of your path. Lots of good advice and hugs are available as you need them.
Hugs
Ginger
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Omaz..... I found the lump about 12 weeks ago when I was doing my regular monthly check. It originally was the size of a pea and is now 3.5 cm. I put off having it checked when I found it, as I had no insurance and was unemployed. Once it grew to the point I couldn't hug someone and not feel it, I had it checked and was diagnosed within the week.
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Cec - I found mine too, only I was watching TV. Did it grow from a pea to the larger size fast? I always wondered why I didn't find mine sooner because (it was 2.7cm) because it was so obvious. I thought that it grew fast.0
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Cec -
I don't know how much you feel like reading about things right now, but these are two websites that I found very informative.
http://breastcancer.evidencewatch.com/
http://www.nccn.org/professionals/physician_gls/f_guidelines.asp
On the NCCN site scroll down to breast cancer. You may need to register to have access to all the info.
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Hi everyone, It has been a while since I read the threads.
Grannydukes, glad your GS is getting better. I look at facebook to keep up with my kids. Sometimes its the only way I get info.
Have my 4th chemo on Monday then I will have only 2 left. Then onto to rads.
Peace and laughter,
Cheryl
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Hi 2010 sisters. I haven't posted much but I do keep up with the thread and hope everyone is doing OK. We should all mark our calendars for January 1, 2020 to come to this thread to celebrate ten years. Who knows - by then we may even have a cure! I, for one, can't wait for 2010 to be OVER:):)
cec - you couldn't be in better hands than at MD Anderson! And hell yes - it's enough to make anyone scared & angry. I will always be mad that all those mammograms, which I had religiously each year, didn't pick up my tumor. But, you will feel much better when you get started with your medical team. What we imagine is far worse than reality.
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cec1970--glad you found us here! So sorry you have to go through this. The fear and anger will subside a bit (but might not completely go away!) when you start actively treating the cancer. As much as we hate chemo/radiation/surgery, at least we feel like we are doing something to fight this.
Hugs to you! We are here for you!
Tina
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OMG, guys.... I just got back from my med onco, and can I say I am "A bit overwhelmed?" My god, I spoke to the Dr, 2 nurses, my social worker, my nurse navigator, and the receptionists.
Here is the lowdown.... Monday is my heart scan, Wednesday is my port placement, Thursday another Dr appointment and Friday I should be starting TCH. (It was too late to get an official Appointment for chemo, but will know for sure tomorrow morning.
I knew this wasnt going to be easy, but I didnt think the Dr was in such a rush to get me started. He said I was only 40 years old, and he wanted me in treatment like ... yesterday! Wow. I thought I would at least skim past Thanksgiving. So, I have canceled the plans I had to cook for everyone on Thanksgiving in case Im not feeling well. I knew this was comming, but reality just smacked me right in the face!
Kristy
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