Ladies in their 30s
Comments
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Hi! I wanted to introduce myself. My name is Jamie, I have been married to Kevin for 13 years and we have 3 boys ages 12, 10, and 7. I was diagnosed on April 11 2011 with multifocal invasive ductal carcinoma. They found a micromet in one node, it was .28mm. I had my BMX on May 26 and had TE placed and have had one fill since. I was so worried about turning 30 and no longer being a 20 something but now that is no big deal since I am 30 with BC. Wrinkles are nothing now, lol. My kids are doing okay with everything but I too feel guilty for not being able to do as much as before. I had my first fill on Wednesday and I am still very sore and having spasms. The actual fill was nothing but a few hours later....another story. I am glad to meet everyone on here even though I wish none of us had to be here. It helps me alot to have people I can talk to who understand what I am going through. My family is GREAT and have helped so much. My hubby has done everything for me right down to helping me shower after surgery and picking the glue off my chest when it was being stuborn but having someone who actually knows what its like is a big help.
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Good morning ladies! Funny that you mention wrinkles, Jamie30. Because I used to be scared of getting old, wrinkles and all that comes with it. But now, I'm looking forward to it because I can say then that I made it. I made my kid's graduation, first love, watching them get married, being a grandma. I still intend on being there for all of that, it's just alittle different now. Its great to hear from everyone. My family offers incredible support and love but it's different from the support that you get from here.Because I know what all of you are going through.I'm living it too. And we can help and support each other through it. Thanks, ladies. Have a wonderful weekend! Hugs
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Thats the same way I feel now. I want to see my boys graduate from high school and college, I want to see them find the love of their lives, I want grandkids, and so much more. I guess BC has put somethings into perspective for me.
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Good morning ladies. Hope everyone had a good weekend for Father's Day. Mine was very busy. Had alot of company over. It's great because it preoccupies your mind on other things. And now that everyone is gone, kids are in school and husband at work; the mind starts wandering again. My social worker calls them just "thoughts" but how do you turn those "thoughts" off? How can you be selective on what you think. If anyone comes up with an idea, please share. I'm stumped! I have an appointment with my social worker tom. and maybe she has an idea. Hope everyone is having a good start to the week. Hugs! 0
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Hello ladies! I have not posted here in a while. Welcome to those who are new. To those of you in treatment praying you keep your spirits up I know it can seem like an endless ride. I've been really busy with the kids out of school for the summer. With the occasional doctors appt and scan in the mix. I basically am trying to live a normal life after cancer. However, it's so difficult to deal with people who think that now that I have hair that I'm "cured"! I don't want to whine and be one of those people who tell you their every ache and pain. Although sometimes I do have to tell people because they expect me to be able to so everything I did before cancer. I thought that after treatment was over I would just jump back into my life. Well I haven't. My body just hurts all the time! Mostly my legs, hips and back. No one can seem to tell me why. I have had bone scans, CT scans, MRI. Nothing. I've even been put on lyrica and anti depressants. Doesn't change a thing. It's just very frustrating to be 36 and hurt all the time and the fatigue is horrible. I have close friends who have had breast cancer and went through treatment who say alot o the same things. I hope that I'm sharing this doesn't worry anyone who is newly diagnosed or in treatment. That is not my intention. I have tried to except the fact that I might always be this way, but I can't! I have so many thing I want to do and experience! Is anyone else dealing with this?
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Hi everyone, my name is Amy, I am 30 years old and was diagnosed with BC on 4/7/11, and had a lumpectomy on 5/17/11. I was supposed to start TCH on 6/30, but am now going to push back treatments for 2 weeks to collect some eggs.. just wondering if anyone out there had this done??
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I am sorry you have to join Amy:-( but you will get so much support here from women who are currently undergoing treatment or have gone through treatment. I will be 38yrs in less than 2 weeks:-) on july 3rd and will be starting chemo on july 7th:-( I will have 6 cycles of TC and am planning on using the Penguin Cold Caps to preserve my hair during chemo. All the Best on collecting the egs, I have not done that (i have 2 kids), I was told by my Med Onco that she could give me a shot (cant remebr the name how as i have my notebook at home) that will help reduce the cehmo damage to my ovaries. Still thinking if i'd like to get the shot or not. All the Best & Hugs to you:-)
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Hi there , I am new on, here 3 years cancer free next week YEA for me. I have been reading your stories on here and I would like to join in LOL!! It is nice to chat with our girls who has or have B/C like me. I just had my nipple made and tattooed. But I am not happy about the nipple turned out. It is not sticking out much LOL. Can anyone tell if they had it done and what they had done. I am tthinkin of a implant to go in there. So it will be permently erect. thanks Nataie
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Hi TiffanyF4, I am sorry you are feeling down and in pain... I can just imagine what you are going through, trying to balance a normal life with kids etc and your own feelings. I hope today is a better day, and I hope you will get answers to your pains soon. We are thinking of you, Hugs(()))
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Hi Amy:
I was also concerned about preserving my fertility before starting chemo. My onco pushed his buddy a fertility doctor on me, who wanted me to spend like $5k on freezing my eggs. I was too stressed out from the mastectomy and the BC to deal with all that, and didn't have the money, so I didn't do it. There is a shot you should get called Lupron which will shut down your ovaries during chemo so there is less risk of infertility from the chemo. MY onco, who I ended up firing too late, FAILED to either mention, recommend, or give me this shot. So now, I'm not sure if the chemo destroyed my fertility or not - I think there is like a 30% chance that chemo makes you infertile. I really want kids too, so I'm going to end my tamoxifen after just 2 years and try to conceive and hope I still can... I think there is another thread here about having children after chemo.
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Yes, the Lupron shot, Thanks JenXX:-) My Onco mentioned that and asked if i wnated the shot; I am still not sure abt it becasue I have 2 kids now and (would love another one) but i am not sure:-) I am 38 now, so by the time i am done with tamoxifen (even the 2 yr one) I will be atleast 41 (still high risk preggo) I have until next week to make a decision.
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Hi Jenn, I'm so sorry to hear this, but thank you for the info, I left a msg with my oncologist regarding Lupron. I've already signed up for the egg retrieval thing so I was hoping to do lupron on top of that .. I'm paying $6,200 for freezing the eggs.. the medicine I'm getting for free because they have a program for cancer patients... I'm surprised my oncologist did not suggest this to me and I have to do all my own research..?? argh!!!
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Hi Snoopy!!! Good luck with TC, I will be on TC + Herceptin because I am HER2+ .. are you nervous???
I thought about penguin cold caps but my oncologist advised against it .. I have really long waist length hair, so I get really sad when I think about losing my hair, but I have gone wig shopping and there are some really good ones out there! 
good luck with chemo and cold caps; please keep me posted .0 -
Amy: in my experience oncology is not an exact science. my first onco seemed more interested in pushing the latest and greatest chemicals and less interested in my other priorities. The only time he sat with me during a chemo treatment was to tell me that my insurance company owed him $80,000 (due to an error from his staff in billing). I had the TCH chemo and was in the tiny percentage of people that had a severe negative reaction to it so I quit after 4 of 6 treatments. I've since read conflicting articles about whether chemo does more harm than good, but that's a philosophical argument for another thread.
When I first met with my first onco, he recommended getting a second opinion, and I was too frazzled from it all to deal with that. But now I think I should have done that.
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Hi ladies,
I'm 35, newly diagnosed and brand new to this community forum tonight! It still baffles me to see so many young women fighting this with me!!!
I'm post BMX with TE (6/14/11 surgery) and was just given the news that I am going to need 6 chemo treatments and it looks like it'll be a TAC regime, I'm being told this one is TOUGH? I'm very prone to nausea on a regular day to day basis (I gave up social drinking because 2 drinks would send me into a hang over tailspin for a day) and basically am terrified at what's ahead of me.
Anyone put on TAC that can share? Anyone have suggestions for what anti-nausea meds I should start to research????
*hugs*
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hi madismommy79 sorry u had to join this "club" it's hard I did 8 cycles of ac and taxotere... I was given emend and sofran for nausea it's great, the thing is to take this meda before the nause hits you! you will be fine make sure u tell it docs that u r prome to nausea, so they can manage it. don't worry chemo is duable, make sure u chew in ice cubes, try to go to dentist to get a waning and ask how to deal with thrush that was one of my side effects not fun at all!! this is were the ice helped me a lot, ask doc what can u take if this happens, also stomach acid as well, I'm telling u this to prepare for it... but I promise u will be fine! if u need to talk u can pm Anytime... I'll be praying for u! u r strong Nd before u know it chemo will be done! trust me if I did it anyone can I'm the biggest wimp ever!!!
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I did TAC also. It is doable. I didn't have nausea, but did get thrush. Losing your taste is the worst thing ever.
Good luck and we all will be here for ya!
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Has anyone done DD AC and DD Taxol- I start in a few weeks and I am very scared! Any tips? Port surgery is next Friday, chemo starts 7/11. Thanks so much for any insight!
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Misswim: I did DD ac & taxol. Like Coni said, take the anti nausea meds before it hits. Stay on top of the meds and rest. That is about all you can do and DRINK WATER!!! I got dehydrated a couple of times because I didn't drink enough. This will also help flush the chemo out of your body. Hang in there and we are here for you!!
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Hi All! Just wanted to check in tonight. I have my first chemo tomorrow. I am a little nervous but I think I am okay. I am packing a bag now and writing some questions down. I have the chemo information session at 9:40 and my infusion at 11:40. I am a little confused about some of my meds. I have two for nausea and I dont know if I take them at the same time or what. I am going to ask. I have most of the stuff under the tips section. I need to get maybe 3 more things which are eye drops, biotene, and immodium. Will pick them up on the way home...maybe...or send hubby out. I hope these nerves calm down a bit.
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Jaime30 good luck tomorrow. I hope your SE are minimum to none. It isn't as bad as you think, and alot of the stuff on the list I have never needed.
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Eat ice chips during it, it helped me not to get thrush! Good luck u will be fine! I'll be praying for minimal side effects, dont forget to take nausea meds as prescribe the minute u feel a bit of nausea take meds!! Drink lots of water!!
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Good luck tomorrow Jamie, I'm still waiting for my final chemo plan/start date so I have no advice.....
But, here's a big hug!!! {{{{{Jamie}}}}}0 -
amiska: I also had some eggs retrieved before I started chemo and I am doing the lupron shots as well. My fertility doctor told me that chemo ages the ovaries by about 10 years. I am glad that I was able to have the eggs harvested, though the procedure was not that much fun. Make sure to stay really hydrated. Drink stuff with electrolytes (like gatorade) and whey protein shakes. Not sure why those help, but my doctor recommended them and they did seem to help. Prepare to be really bloated and uncomfortable. I had to just keep my goal (of harvesting the eggs) in mind. Good luck! Feel free to PM me if you have any questions or just want to commiserate about the process. (I was diagnosed a week after you, but started chemo sooner because I am doing it before surgery).
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I saw a fertility specialist before I started chemo but turned down collecting my eggs since it consisted of me shooting myself with estrogen to release more eggs. I didn't feel right about it since I'm Est+ my onc assured me it was fine since I would've started chemo after but I still didn't want to. But she also told me about 'putting the ovaries to sleep' thing. From what the fertility specialist said freezing an embryo was the higher success rate for later.
@Jenn- get emend it helps!!! I got it thru my IV so insurance covered it, pill form is $$$. Lots of H20 also.
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@Queenbee1-my sister works for a cosmetic surgeon and they can bunch ur skin together to form a nipple also.
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I will definatley do that. I have "chemo class" on Weds. and a list of questions a mile long! I want every anti-nausea med I can get. I had awful morning sickness with my son and so I have made them aware that I am prone to nausea.....
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Misswim, ugh...sounds like you had a similar morning sickness experience as me! When I was pregnant with my daughter I had "all day" sickness from day 1 until I was into my 6th month....day and night nausea and actually throwing up.
. It was my first thought when I heard the word chemo, followed by the words "hair loss".
I have faith we're all gonna get through this!!!! And come out the other end stronger than ever!0 -
I basically have already demanded EMEND! I am off to chemo class tommorow...... I'll report back on the nausea fighting plan!
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Emend it's great, it works great!
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