Ladies in their 30s
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SLL, hahaa. I know that feeling. I went back and forth in my head over my surgery decision for a while. But I wasas confident as I could be about it. I don’t regret the choice
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hi ladies, I have a question..for the ones taking Tamoxifen: How are you protecting from pregnancy? I am a bit worried since I can't use birth control pill any more.
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Valentina - When I’m all said and done with chemo I will likely be getting a copper IUD.
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Condoms for now. Hubby will get snipped soon.
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I am currently also just using condoms...
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hi clarrn,
I’m sorry to hear about your failed attempts due to infection. Congrats on your new baby though 😊 I am scheduled for a lattisumus flap on June 19th. I have heard the flaps are more successful. The lat flap from what I have been told is less recovery time than if it was abdominal. It is definitely frustrating and upsetting that these infections keep happening. I think my biggest concern is the fact that my PS has me scheduled 2 1/2 months after the removal from the last infection. I see other postings of waiting 6 months after a staph infection, so I hope I’m not being scheduled too soon
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hi Valentina 7,
I have the Paraguard IUD. My breast surgeon said that is the only type of BC I can use as it contains no hormones. I was worried about becoming pregnant on Tamoxifen as well.
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SLL101984,
Sorry to hear about your new diagnosis. I still remember that same phone call. I’m glad your doc sent you to get your lump checked though. I hope things are going as ok as can be expectedfor you right now.
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I can not be the only one who stresses about every little ache and pain right now?!?! My surgery is 4 days away and I have to keep talking myself down from freaking out that it’s spread already and we didn’t catch it as early as we think! Ughh the waiting is horrible!!
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SLl101984,
You are definitely not the only one who stresses about every ache and pain, and wondering if it has spread. When I was diagnosed on September 21st, I had to wait until october 20th to have my surgery. I worried every day. I worried if waiting another month to have surgery would cause it to spread more. Well, the day of surgery, I had to go through all of the pre op stuff such as injecting dye into my lymph nodes and all of that. After surgery, my BS said she only had to remove 3 lymph nodes that the dye caught as possibilities that the cancer could have spread to. I also had a PET scan done as well which did not show anything spread to my other part of my body. I remember the first time I looked down my hospital gown and said Wow! My boobs are right under my chin! LolI know it’s easier said than done, but try not to worry too much. You got this!
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Kms2016.....please tell me it was swelling!!?? That’s one thing I’m worried about....cleavage in my collarbone!!!
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SLL, i still worry about spreading too, six months after my diagnosis, but I am getting better. Because my sentinel node was clear I never had a PET scan, my MO didn’t want me going for one. I had to wait 2.5 months from diagnosis to surgery, which was a five whopping months from finding my lump (and I went to the doctor a week from finding my lump). I felt way better after surgery but before I was stressed out too. Your surgery is so soon! You will be so relieved.
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Diagnosed on 5/21 at the age of 34. I am married and have a 7 year old. I have Stage IIA grade 3, and just found out that I am BRCA 2 positive. My oncologist and BS have me scheduled to start chemo first. Having port put in on Monday 6/11 and start first infusion 6/14 of A/C every 2 weeks x4, then T weekly x12 doses so a whooping 20 weeks. After chemo is finished I will have a recovery period followed by bilateral mastectomy with reconstruction. My husband and I were trying for another child when I found my lump and this whole rollercoaster started, but that is now obviously on hold. My BS is also recommending ovary removal at some point. My husband is supportive, and I'm trying to explain as much as I can to my7 year old without scaring him. We've got this ladies
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Staylynn sorry for your diagnosis but remember you are not alone!
I am 33, diagnosed in November..married and no kids, most probably I won't have kids at all. I am on Tamoxifen...At least 5 years, my husband thinks we will be then to old. That makes me sad sometimes, funny I never wanted kids but now it makes me sad I can't have kids at all.
the treatment was Oki, and in general physically I feel great: I became vegan and exercise a lot.
wish you all the best and feel free to contact in case of ques
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Staylynn - just got diagnosed too last month. Married as well with 2 kids (7 and almost 9), I have yet to find out what stage on Monday (waiting for my doctor to call) but from biopsy I am a grade 3 as well. I also hope that my girls don't get affected with all these things happening. I told them that mama is not very healthy now and that I need to do some treatment to well again. So far I don't know yet if I will have chemo, but seems like - from the stats of the other ladies with similar result that I might have to do it. So cant wait for final Pathology. My little kids don't seem very affected, I don't want them sad. But they did ask me is I will be in pain and it broke my heart.
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Hi everyone - just diagnosed mar. 27 - I’m 38 yrs old - stage 2 triple positive IDC - I start chemo jun. 18 (6 x TCH) which I’m trying not to freak out about. Then onto radiation. I’m just hoping I can handle the chemo side effects ok. I was planning on getting married in sept but that in hold now. I’m trying to save my hair with cold caps and my lashes/brows with latisse.
I found my lump over a year ago and kept being told it was nothing by 4 diff docs - just extra tissue/fibrocystic breasts - now all of this - I feel I knew deep down the whole time it was cancer But when 4 docs tell you it’s nothing you start questioning if your over reacting
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bheg79- That’s awful! I can imagine the stress and worry. I was very lucky that I got an appointment with my gyn quickly and he took it seriously even though I had just finished breastfeeding a few months prior. I actually sent him a thank you note after my diagnosis, because I know I could have been in your situation.
I hope you sail through chemo with minimal side effects. Sorry that it messed with your wedding plans. My niece’s wedding had to be postponed this year because her fiancé has had some medical problems this year as well. These things do happen, not that it makes it any less disappointing.
Wishing you the best.
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I had a bilateral nipple sparing mastectomy last month, and I have not had a bra or bandaging of any kind on since before surgery. I will be looking to go back with work in the next 2-3 weeks while we finish up he expanding process (exchange surgery hopefully by end of summer). My question is what were your favorite bras right after surgery? I know I don’t need it for support right now but id like to have that extra layer of coverage when I go back to work, wish I could wear my big zip up and button up shirts but I can’t....thx
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Bheg79, that's a crazy story. Very frustrating, but sounds as though you are getting good care. We hope the cold caps work well, and that you can re-schedule your wedding very soon!!!
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Hi SLL101984- I had lumpectomy 2 weeks ago and bought a front zip up bra from amazon called WANAYOO Zip Front Sports Bra. It's very comfy and I sleep with it at night, I only take it off during shower. It has medium support and compression.
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Bheg79- you're not alone. I was diagnosed at 37 and I just finished surgery. I am getting chemo too but will have to postpone a little bit as I need to do another surgery as my margin is “close". My oncologist recommended this book called Susan Love's Breast Book. It's like the Bible of every BC patient. It has perfect review and is such a great book to have to keep you guided on all the aches and pain etc. Very valuable resource for all the question we have.
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Hi Bheg79--so sorry to hear about your diagnosis. Ours are very similar. I am stage 2a and triple positive as well. My doctor told me we should just "watch" my lump and well, here I am. I was 31 and I found out 2 months before my wedding. I ended up having a mastectomy on my right side 5 weeks before my wedding and then I started chemo the week after. Please let me know if I can be of any help. I have completed a pretty tough 4 rounds of AC and I have 7 more Taxol treatments to go. I have worked through it all though. You can do it. I will start radiation in August so I can keep you posted. Hang in there.
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All of your posts are so inspiring. I feel so new to this world and at other moments like I've been a part of it for years. I found my lump on June 5th and was officially diagnosed after the biopsy on June 18th. I am 32 (just shy of 33) and married, no kids.I am proceeding with a BMX and a reconstruction soon. I have another biopsy on my right breast for a mass found during the MRI. I can't tell why I'm so scared - surgery complications, post operative pain, or any number of things. ANY advice is greatly appreciated
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Lavenderlee- first of all welcome, but sorry you need to join us. I wanted to response back to you because I was diagnosed on April 18th if this year at 33 years old. Since the original biopsy I have gotne through 2 mri’s, a bilateral mastectomy and sentinel node biopsy,tissue expanders placed and I am currently in the filling process of the expanders and just started tamoxifen 10 days ago. Please do not feel like you are ever alone in this journey because you are definitely not alone! Please do not hesitate to reach out either here or private message if you have any questions or just want by to talk! You got this!
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I'm so sorry, Lavenderlee. I was 31 and about to get married. I know what a shock it can be. Like SLL said, you are not alone. I was diagnosed on January 3 and I have been through a right mastectomy and some really harsh chemo. I have 5 treatments left and then I will move on to radiation. Please don't hesitate to ask any questions. There are a lot of caring women in these boards. My best advice would be to take it one day at a time. Get a plan and then just focus on what you can control. Let yourself have emotional days. You have to get it out. You don't have to be strong for anyone. But also don't stay down for long. It does get better. (I'm currently telling myself this too because this chemo has been rough!)
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Lavenderlee, I am in the same boat 34 years old when I was diagnosed. I am taking a little bit different course of action. I am starting with neoadjuvant dense dose chemo of AC every 2 weeks x4, then T weekly x12. I will then be having a BMX with reconstruction, with total hysterectomy due to BRCA2 gene. Take one day at a time and one step of treatment at a time. This is a rollercoaster ride with ups and downs, allow yourself to have both. Stay strong but allow yourself to rely on others when you to. Stay active! We are all here for you and let us know if you have questions, updates, or just need out input. This site and groups are great resources.
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Hi! I am 32 and currently recovering from a nipple/skin sparring BMX. It has been inspiring to read this thread and know that I am not alone. I love the cancer center I am going to and my docs so far too, but I hate being the only young woman there (at least I haven't run into anyone close to my age yet in the waiting room lol). I am married but we haven't started a family (we had plans to start trying in 6-12 months) and obviously that is all on hold.
And a small rant: my PCP was wonderful to refer me for an mammogram as soon as I told her about the lump, but the doc who did the biopsy was such a cocky *expletive*! I'm still fuming about how he treated me😤. During the biopsy, he told me he was POSITIVE I didn't have cancer, that it looked just like a fibroid, and he was so SURE I didn't have cancer that he was only going to take 4 samples instead of the normal 5. At least I slept easy the week I was waiting for my biopsy results, ha!
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Hi Ladies!
I am 33 and diagnosed with IDC in March. So far I have had a lumpectomy with sentinal node biopsy, a re-excision because margins weren't clear, and then started my first of 4 rounds of TC chemo on 6/13, round 2 is on July 5. Then it'll be onto radiation and hormonal therapy. I was reading through some of the posts and I really feel for everyone who was diagnosed right before their wedding. Both of these are so tough and stressful on their own, you just don't need them at the same time. I got married 3 years ago, and I lost my father to lung cancer about 3 months before my wedding. Now I got diagnosed with breast cancer about 3 months before buying a house (just closed 2 days ago, picked my chemo start date to allow me to feel well for closing and moving). I told my husband we can't have any more happy milestones, because something horrible always comes along with them.
How are you all doing with hair loss? I am currently pulling fistfulls of hair out whenever I comb, brush, or touch my head. I have noticable thinning and my hair just looks terrible, so I am wearing a buff when I'm out of the house. My wig shop will shave my head on Tuesday. I am feeling pretty anxious/upset about this. I feel like my hair is part of my identity. But I tend to be a pretty stoic person and I have just been coping by making morbid jokes that make some people uncomfortable. I just don't know how to react to this yet.
Ebronson19- I work in a hospital, so I went there for my US/mammo/biopsy. The first radiologist read my US and mammo and told me she wanted a biopsy but would not say anything else, but looked pretty uncomfortable with the whole thing. The radiologist who did the biopsy recognized my name since he reads my xrays all day long. He told me that he wouldn't normally tell anyone what he thought, but since he knows me, he'll let me know he has a pretty low suspicion. But he did the opposite and took extra samples just to make sure he had enough. He actually thought he might have gotten some of my pec muscle on one and was super apologetic and I could tell he felt really guilty about it (though it was really not a big deal). He even called me when I got to work the next day to see how I was doing. Anyway, I slept easy waiting for the results, too. They were actually delayed by a few days due to a blizzard and then a weekend. I was so not worried that my husband had forgotten all about it by the time I got my actual results.
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Hi. I just bumped into your comment here. How are you doing now?
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Hi IG10 we have exact same diagnosis although i am 38 years old. Will be 39 in august. No hubby no kids. I was DX on Sept 17 2017. Did chemo first then surgery. Also done with rad 3 weeks ago. Started herceptin May 1 2018. How are you doing?
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