Great saying about depression
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barbe - I'm thinking of you. I'm not one to pray but in my head I talk to you and hope you can feel my heart is with you. Also, as a nurse, I have to say there is no excuse to keep you waiting for results! Some of these people in the medical profession should try and be a patient once in a while - except if it's a Dr taking care of a Dr they would never make the other wait. I can be naughty when I know radiology or pathology results are sitting in an office and I am not advised ASAP of them. I just sweetly call and call and call. I have to say it's sarcastic sweetness at it's best.
I was so fortunate with my breast surgeon when she did the original lumpectomy and SNB. The next morning before I left the hospital she said she should have the results by Tuesday and did I want her to call me or wait until I came into the office Friday. I asked her to call me. Good or bad, I wanted to know ASAP. And, she did call me the following Tuesday afternoon.
You know, it's our bodies, our results and we have a right to them!
Diane: Gal, you are one amazing strong woman to be managing all of this on your own. When I went through my first two surgeries and the chemo, Jerry (DH) took care of all the medical bills and dealing with the medicare and insurance. By the time I started to do the radiation, he had had his fill. I just let them bill me weekly and I paid weekly and when the 30 treatments were over and I had receipts for all I had paid, I packaged it up and sent it in to medicare and private insurance. All I had to do then was bank the two checks and I got lots of points on my visa account.
In fact, I charged all of my medical treatment on my visa credit card, as I found it a good chronological way to keep track of what was what. The only 'ouch' was paying it off.
WHY IS BREAST CANCER TREATMENT COSTING US SO MUCH? I see $18,000 here and $7,000 there and $3650 here. I do think when insurance companies and the government provided health care hear the word 'Plastic Surgeon' they think it's frivolous and superficial, and all we are trying to do (or I guess I should only speak for myself) is regain a sense of self and normalcy.
I am actually afraid of how mad I will get if I sit down and add up how much 5 surgeries has cost me, along with chemo and radiation and Femara at $37 a month for 5 years!...$2,200. Enough of my ranting.
Thanks for listening.
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OMG I CANNOT believe the extra stress involved with insurance companies!!!! Bad enough to be sick. I know there is a lot of misunderstandings about Universal Healthcare, but take today as an example. We will pay for our own dental work today. (I have coverage from my work though, and pay extra each month off my pay to get 100% coverage - no deductible.) Then, my husband gets his CT because the doctor ordered it. No insurance company to say why? Who knows better what you need than your own doctor!!! So the CT is totally FREE. My biopsy last Monday - FREE, along with the ultrasound!! It just goes on like that. No government intervention at all.
My heart goes out to you all....!
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Claire,
Maybe your next job could be in a doctors office and you could show them how to keep proper records!
...did you ever go to work today?
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Insurance co.: Bite me!
and Barbe: Best wishes to both you and your DH. You are lucky to live in Canada, I'm from Sweden myself and can totally relate when it comes to universal healthcare. USA is great....if you're healthy and/or wealthy.... 0 -
Barbe been following the posts just not enough energy to jump in yet. I hope you hear something today.
It is interesting how we have discussed BFFs before but now that summer is over and friends and family, including DH are teaching again, it is much lonelier this time around. My drains were over 50ccs on Sat so I probably won't get them out tomorrow and DH can't be available to take me to the doctor again until Friday. My Mom too is in the hospital with multiple tiny blood clots in her lungs and I can't be there with her. now we both are taking the same injections so we are "blood thinner buddies." I would prefer to be hiking buddies or coffee mates!
I guess we have good days and crapy days and yet we always have each other. Thanks for all the hugs and prayers!0 -
Lindsey- So glad you're finally getting your pain under control. I know it's been a challenging week or so for you. I can relate to the BFF situation. So many think once the MX is over everything is over. Each surgery seemed to get a little less support than the one before. I think people really don't get what a long process this can be. (((hugs)))
So I was feeling kind of sorry for myself today (long story) but then I watched this. Get the kleenex ready.....
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HAPPY BIRTHDAY DIANE!!!! Hope you're having a day as wonderful as you!
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HAPPY BIRTHDAY DIANE! Hope you're having a birthday as wonderful as you!!!
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HAPPY BIRTHDAY DIANE!!!! Hope you're having a day as wonderful as you!
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---{~*~*~*~*~BIRTHDAY~*~*~*~*~}
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OMG thanks Kate!! That video was very touching and of course made me cry. So far a quiet day but heading to dinner tonight with friends at this new wine and tapas place. Its half price bottle night and most of my peeps will be there so that will be nice to chill with a glass of wine. I do feel a little guilty for not seeing my twin tonight but I will be up her way Wednesday so we will celebrate our bday together then. Sorry you are feeling down...I just hate this rollercoaster of emotions we go through. I hope something comes along to lift your spirits.
and thanks to everyone for sympathising with me. Its for sure been a rough road alone my biggest fear through all of this is losing my house over bills. I feel like every time I have a $1 saved I get a bill for $10 I just cant get ahead I know you all can relate. Hopefully this time next year I will be caught up on everything and out of debt. UGH.
Barbe hope everything went well today and that you got some good news on your biopsy and your hubbys scan. You are very fortunate to have such great health care.
Lindsey sorry about your mom...I hope those clots are cleared up soon. I have never had one but had a friend get seriously ill from a giant clot. I wish both of you a speedy recovery. I always say no rush on removing the drains. I had my drains in for 3 weeks following mx and as much of a pain as it was it was still better than having fluid build up. gentle hugs
I will make a special wish as I blow out my candles tonight and you will all be included!!
Diane
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Diane- Sounds like a perfect evening! Hope you can shelve all this BCs*** and just have fun! Half price bottle night? That means you can have 2, right? Hope you have a GREAT time! BTW, I didn't know you were a twin! Must have missed that on FB!
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Kate my twin is Dani on FB...now that my hair is short we look more alike than ever. We are identical twins. My niece that I love more than life is her daughter...and Natalie calls me mom all the time by mistake.
What does it say when your own parents dont call text or email to say happy birthday. Nice right??
Two bottles of wine it was...and lots of molten chocolate cake. It was a very nice evening and I made a special wish for all of us!!
Good night all!
Diane
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Diane,
HAPPY BIRTHDAY!!!!!!! So glad you had a great birthday night!! Wine and chocolate, what a perfect birthday combo. Thought after your two bottles, you might need this latte this morning!!
Lindsey so sorry to hear about your mom! My dad has had issues with phlebitis since he broke his leg over 40 years ago. He has been in the hospital several times since then with blood clots in his lungs. He never has one, always seems to be too many to count. Hope your mom gets better soon!!
Debbie, yep I went to work, and crawled home exhausted. Had one of those days that was one issue after another. Just tired. Still wish I could be on a tropical island with that cute cabana boy.Someday.
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Diane, so sorry I missed the birthday wishes. So sorry you didn't get a message from 'Mom'. Life can be pretty sucky at times.
Lindsey, keep the drains as long as you can stand them. I had one pulled too soon and developed a seroma!
No result yet from biopsy...
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Are you kidding barbe??? Lets me and you go storm that lab and tell them we want the results NOW!! How is your DH doing? You amaze me at your strength in dealing with both y'alls struggles!!
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I just called the docs office and they STILL don't have the results!!!!! That's after requesting them from the hospital!! I'm wondering...my cancer was a very, very rare Papillary Carcinoma. If it's mets, whoever is looking at the sample may know it's not 'normal' but not know what it really is...?
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Didel: HAPPY BELATED BIRTHDAY!!!!! Sorry, my DH cam home yesterday after being away for almost a week so I wasn't on line once. Sorry about your mom-I can so relate to that. Big cyber birthday hug to you-wine and chocolate are my favorites!
Kate: So sorry you are feeling blue-Hoping PT will get you back on your feet and feeling better. I just went to the dr again for my shoulder and it seems my old injury to my shoulder is worse because of my fall and also becuase of MX surgery so it doesn't want to stay inn place. I have to now ice it for 20 minutes every hour and go back to the dr tomorrow. He is promising me I can start doing excercises next week but I gotta say, it is sooo painful. Hugs!!!
Barbe: So sorry they are keeping you waiting. Hope this is a good sign.
Lindsey: I am sorry you are feeling the loneliness of BC right now. I know this was the hardest part for me-I am not sure if I have ever recovered from that. It is such an isolating disease. Hope your mom does better and I am sorry you are both going through this at the same time. Hugs!!!
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I am thinking that if it was benign, they would have known that a lot quicker and let my doctors office know. Now I am at the point of digging my grave and planning the service....sigh.
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Barbe--how bout we throw those lab workers in that hole you're digging instead!! Lets start a bonfire!!!
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Thank you all for the birthday wishes! It was a good night indeed and tonight was #2 dinner at my fave local spot. 11oz crabcakes (YUM) followed by triple chocolate cake and ...more wine
Tomorrow night is pizza with my niece and my twin...no wine..I actually have dinner plans every night this week...and hold on..WINE festival on Saturday to round out the week.
Barbe I can not believe they dont have results. Thats insane. I know its hard not to think the worst but maybe the biopsy sample was not adequate, maybe they sent it to another lab or something. Still sending all the positive vibes I can your way!!
Good night all....I am in a crabcake coma...
Diane
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Barbe, I am too tired and sad, but reading you were going to dig a hole put me over the edge. Whaaaaa! It is so unbelievable to me that hospitals, labs, doctors don't understand the stress we go through waiting. I agree with Claire, but hey once we have some nice hot coals from those lab workers, let's make s'mores!
Then we could celebrate Diane's birthday together--again! Doesn't hurt to have several celebrations :-)
So, for two or three years I heard nothing from my parents on my birthday, which is so odd since I make a big deal out of theirs. But growing up my Mom always said "it is just another day." So a very smart friend told me in 2008 to call my parents the morning of my birthday and say "I wanted to start my day out talking to you." So I tried it. It felt a little self serving, but they wished me a happy day and it relieved me of thinking sad thoughts about them all day. I've gotten a card and call ever since.
Diane, I'm not down playing your hurt and disappointment, trust me I get it and truly understand. I was shocked when I tried my friends suggestion. On a final note and now I will start crying again, the next year in 2009 my Mom called and got our answering machine. She hemmed and hawed and finally said I want to sing you happy birthday and she giggled and said she was embarrassed but started singing. My husband transferred that to our computer, because someday when my Mom is gone I am sure I will play it often. As my therapist once told me "if you play the slot machine long enough, you will come up a winner once in awhile." I've put a lot of nickels in over the years to get a return from my parents, and that night I hit the jackpot!
Best to you all, Lindsey
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what a nice story, Lindsey..wish i had thought of that before my mum died. i HAVE saved some cards over the years, though.... happy birthday, late.Diane.. Barbe: they lost murs latest tsh for 4 weeks.. don't be too sure its bad, not just lost.. hospitals are doing it more and more. we go to labs now, and don't use the hospitals, just for that reason.. keeping everything crossed, in the meantime.. hope they let you know soon, im getting a cramp..hahaha. love you girls! 3jays
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Lindsey, what a great way to handle your parents.I can't imagine having a parent being so uncaring, I'm sorry. I may bitch about my childhood, who doesn't, but I guess I am pretty lucky that I always knew my parents loved me. We aren't huggy or the I love you type of family and we keep in touch a lot better now than when I was younger. Now that my boys are teens, I have been very aware not to repeat my parents issues.
Barbe. Hope you have something to keep you busy this week to keep your mind off of those annoying lab people. I'm with Lindsey--pass the s'mores!!!
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Those s'mores look so good!
I have Bipolar disorder... and the best line. I have learned is " Isn't it nice to know that tomorrow is a new day with no misstakes in it yet..."0 -
Thanks for the distraction to s'mores Lindsey, I'll take it!!!!
Great line zom....
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Diane- Sorry about your parents not calling. I think some people don't mean to be hurtful. They're just completely clueless floating around in their own little world. I think it would be so hard to do what Lindsey did but she did get an amazing pay off. My BC resolution is to start asking for what I need. I think the majority of people who let us down have absolutely no idea they are doing it. It sounds like your birthday week is shaping up to be a great celebration, though! Have a glass of Cab for me!
Lindsey- I loved your story! I could hear your Mom's giggle in my head (only she sounded like my Mom- lol!) You definitely hit the jackpot and so glad you have the recording to enjoy over and over again. When my Dad died my Mom said her biggest regret was she didn't have a recording of his voice. (We're not big on video cameras in my family.) My Mom is coming over on Saturday for her birthday and I am going to dust that camera off and charge those batteries.
Zombean- What a great quote! Might have to be my Facebook quote today!
So I woke up feeling like a 100 years old today. I overdid it with the yard work yesterday which makes my fibro flare even worse than normal. I found out from my PS in Miami that the PT and US I was doing can dissolve and break up all the fat grafting I had done so he wanted me to stop immediately. Not sure what to do now with all the scar tissue I'm dealing with. And don't trust the physical therapist to advise me since she didn't know that would happen. Sometimes it just feels like when I fix one thing I break two more. I'm just so tired of being in pain all the time. I feel like it has changed so much the person I'm meant to be. (If that makes sense.)
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Oh Kate!!!! I CANNOT believe you are still going through the crap with your breasts. Unbelievable that what you thought was helping was actually making it worse. What the heck are you supposed to do? New breasts should come with a manual!!! My heart goes out to you with all your hopeful efforts.
LOVED the story too, Lindsey. I do know that one year on my daughter's birthday I was thinking about her all day and then realized I hadn't called!!! Doi! She was about 25 at the time, so didn't really realize that it was SO late in the day, but I felt really bad. I figure she was in my thoughts all day, but she didn't know it!
We really have to be our own advocates: My docs office still didn't have the report so today I spent the morning on the phone with the hospital. Talked to Imaging. They don't have the written report yet. Made me feel better. Called the Oncology department, but it was all automated. Got smart and called the Lab. They had to transfer me "upstairs". Upstairs had to transfer me to "Biopsy Dept." That department told me the report had just been released and they'd send it to my doctor.
I called my doctor about 10 minutes later to tell them and they told me that the hospital had already called to say they were faxing it! Why call???? Just fax the bloody thing!!!
Anyway, the receptionist and I had a bit of fun trying to figure out if I should come in and see the doctor today. If it's benign, we really don't have to waste an appointment, but if it's cancer.... So she said she'd show the doctor the report when it came through and let him figure out what to do. So I figure I'll get a call either way. Benign or come in and then I'll know it's cancer.
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Didel: I am so glad you are having a great birthday week!!! I loooove crab cakes and I ahve never had one that large!!! Yummm!
Lindsey: Thank you so much for sharing that touching story about your mom. Makes me yearn for a family I never had! Hugs!!!
Kate: Damned if you do damned if you don't! I thought FG was supposed to help with scar tissue. I am so sorry you are going through this. Today I go see the dr again for my shoulder. I am so afraid I am going to be like this the rest of my life-I so get the feeling a 100 years old! Did Dr. Khouri have any advice that could help you??? Big hugs to you!
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(((Barbe))): Hoping the best news possible for you! Hugs!!!!
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Thanks MBJ. Can they strap your shoulder for you until it 'heals' in place? There must be SOMETHING they can do??? What about sports people when they get the kind of injuries they do? They don't walk around hurting all the time. I pray he has a VERY good suggestion for you! Pinning????
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