Australian Sisters
Comments
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No Linda, no sign of him, i have left the matter with the police and i rang up phone company lst evening to see if any calls had been made on the phone he has, there were two texts made on wed morning about 4am and 4.15, but nothing else, apart from the several missed calls made from us and i texted it about two hours ago and said, that i hope you ok and if you are, you need to make contact with us and we need our phone. if no contact, i will be suspending calls and any useage to that phone and you will have to come and see us, but for now, more hoping you are ok is what i texted him. so with him being known to police am hoping they will find him quite quickly. it is very stressful not knowing and wondering, what if. and at the same time you want to deck the little brat, have tried to help him so many times.
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Hello everyone!
Well, I am three days post op and doing fine. I got a bit tangled in the drain tube last night and pulled on the site a bit so I was a bit tender this morning, but still no pain. I have only had 4 panadol since the surgery, and they were for this damn toe which is still giving me grief. I have a bit of "anaesthetic head" so if I am not writing completely rationally, please forgive me, it will pass. When I feel a nap coming on, it is almost immediate!
My daughter arrived today, yay! I had a meltdown when I saw her, not my usual style, but she took it well. The cry did me good I think. I am looking forward to having her here for 10 days. This is our first summer here, and apparently we have the best position for the fireworks display, didn't even know they had fireworks here, but it will be great to see them together on NYE.
I hope all of you are doing ok and looking forward to the Holidays. Take care!
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Wonderful Ariom, so pleased your healing well. Those drains are a pain in the neck, but will soon be gone. Have a fantastic time with your daughter and happy holidays lol
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Hi All
I thought it was time I introduced myself as a new Oz sister. I'll copy a paste a bit from my first thread in "waiting and worrying". Apologies to those of you that already read it.
I am 59, 10 years post-menopausal, on HRT. Week before last I found a lump in left breast, close to skin surface. Feels large to me (about 2-3cm diameter). Last mamo and clinical breast exam was 18 months ago and clear.
Went to GP, referred for diagnostic mamo, ultrasound and FNA. Got an appt for Monday last week. Mamo found the lump and micro calcifications (BTW - a magnified diagnostic mamo hurts a hell of a lot more than a normal one doesn't it?!). US found lump. Was told to comeback next day for biopsy (stupid government doesn't cover biopsy if it's done within 3 hours of imaging).
Funny story - went back for biopsy and surgeon did US guided core biopsy (4 samples). Then said OK - all done - get dressed. I'm half dressed and she comes back and said "Oh - yesterday's report asks for a biopsy of the other mass". I said "WHAT OTHER MASS" (loudly). Apparently US yesterday showed another (smaller) mass right next to chest wall (nobody told me and it didn't show on mamo). So, back on the table, redraped, swabbed etc and try to get the huge core biopsy needle into this tiny little shadow right on the chest wall. Every time she got close and gave it the last push, it just sort of slid by the mass. I think she was worried about puncturing the wall. Anyway, she gave up after about 15 mins and did an FNA instead - much easier.
I got biopsy results on Wednesday (less than 24 hours - really good path lab).
Main lump shows IDC of at least intermediate grade. 20x18x22mm. Also "regular islands and cords of maligant cells infiltrate desmoplsatic stroma. There are also foci of intermediate and high nuclear grade" - whatever all that means. Google hasn't been a lot of help.
Got in to see the BS on Friday (Mr Richard Martin at Mt Street in Perth) and he's scheduled a BMX for 9th Jan (he's on holiday over Christmas/New Year). He suggesting taking the left breast then, and then waiting a while till I've recovered and then doing another op for the right breast. Apparently medicare doesn't cover the second breast if it's not medically essential and so he charges an extra $500 which will not be covered by insurance. Decisions decisions - as if I didn't have enough to think about!
Anyway - apologies for the long essay. It's great to meet you all. (although I haven't read all 176 pages of the thread
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Welcome Jan, youve certainly been put thru the wringer this last few weeks. So sorry youve had to join us, but glad youve found us here. A great bunch of women if I do say so myself lol. Fancy skipping all 176 pages - not sure we can forgive you for that
Theres a few of us over there in and around Perth and Im sure they'll be along shortly to introduce themselves.
Chrissy or one of the others can probably help with the terminology better than I can.
Im a bit curious though, he's scheduled a bmx but wants to only take one breast? a BMX by definition is both breasts and unless theres more to your dx than what youve said, it seems a harsh move so early on. I almost begged my surgeon to take both and he refused and would only take the one with cancer in it. I still wish he'd taken them both tbh but ive learnt to be happy enough with one real and one removable lol.
If theres good reason, or your happy to have both removed, personally i would have him take both at the same time, otherwise you are extending your recovery unnecessarily in my opinion. Having to pay extra also doesnt sound right to me, but Im not an expert in medicare. Would have thought it would qualify as being less traumatic to the patient, but hopefully others here will voice their experience or knowledge and help give you information to take with you to your next appointment. You didnt mention whether you intend to reconstruct? I and Trish havent bothered, but Jenn has recently had a reconstruction and im sure can tell you all about it, if thats the route you intend to go.
As usual Ive rambled on too long. Lovely to meet you, hope we can help you thru the coming time and that you feel like one of our sisters in no time.
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Jan! You found us! Good for you! Welcome to the thread.
Just to let you know, because this is an American site the date is turned around so your date for surgery should read month/ day/ year ie 1/9/2013. Lol, I'm being a school teacher here, sorry but it will save a whole heap of confusion when you are reading other posts.
It's good that your surgery is scheduled and please don't think that it's going to spread in that time between now and then because its not likely. I know this is all so very new and you will have a million questions, ask away and if we can help we certainly will.
Love n hugs. Chrissy0 -
Ariom I'm so glad to hear you are doing well, apart from your toe lol. I know what you mean by the anaesthetic it usually scrambles my brain for a while.
Jan, you poor thing, you've been through a lot and we can all sympathise, we've all been there, but yes you've found a good place here. I'm a bit confused about the bmx v mx too, I also asked my bs to take both, but he talked me out of it. I would rather have one surgery and have it all done rather than go in and have to do it all over again later. Also it sounds to me that you may very well be a candidate for chemo - it's a large tumour and having a second one near the chest wall isn't good. High grade makes it suspicious for being her2 + so just be prepared for it. I could be wrong, I'm not a Dr lol and you will find all that out around 10 days after surgery. You'll get your hormone receptor status soon after, but her2 takes longer.
I don't want to scare you, but I've found drs don't always tell us the whole process.
Please let us know if you have any further questions. Are you in Perth temporarily from another state?
Trish
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Linda1966 - thanks for the welcome. I'm finding it hard to believe how amazing friendly and supportive everybody is on here. I've not had the best of experiences with my family - sister-in-law basically wants to pretend it's not happening and doesn't want me there for Christmas and step-grand-daughter seems to think it's a competition and her answer to the news was "oh wow, I know how you feel, I had an abnormal mammogram 10 years ago and had to go for an FNA and was lucky it was only blah blah blah ..." - never even said sorry to hear about your troubles or anything. Anyway, mustn't grumble - my husband is a tower of strength and my brother's been great. Can't win them all, but it's amazing how sensitive the emotions seem to be. It only takes a tiny thing to set off the tears.
The surgeon has scheduled a BMX because that's what I asked for. He questioned me quite stringently to make sure that I knew what I was asking for and that it really was what I wanted, but then he was quite happy to do it. What he's saying is that he feels it might be better for me to have two separate ops. He thinks the recovery from a single MX would be easier than a BMX (more comfortable to have an unaffected side to lie on etc) and then he could do the other one later. Personally, I think a single op (and a single general anaesthetic) would be better. Might be more pain and/or discomfort initially but much better to get it all over at once. I'm going to check out the financial side with my insurance company on Monday. I've only the surgeon's comments to go on so far.
I'm not planning on a reconstruction. I've been pretty large and heavy all my life and I'm really quite looking forward to being flat-chested. Also, from what I've heard and read, the reconstruction is much more painful and a much longer recovery time than the actual BMX.
Please don't apologise for rambling on. It's so nice to have people actually interested enough in me and my troubles to take the time to type a long reply. I feel a bit like I've gained a whole new family
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Chrissy - thanks for the pointer to this thread and the welcome. It's a great community.
Thanks also for the pointer on the dates. I know about the American convention, but just forgot. As you can see, I've changed it to a less ambiguous format. And don't worry about being a school teacher. I feel exactly like I've gone back to school with all the new info I'm trying to absorb. I wish my brain was 40 years younger!
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Hi Jan - glad you found us. If I were you, I'd go cold turkey on the HRT - I totally blame it for my bc. Scary stuff having such major surgery, I was too chicken to go that route. Family can be a pain over bc - my mother actually said "How could Susan do this to me". Also, a lot of people are scared off when someone they knows has cancer. That was very obvious when my DH had bowel cancer and also for me with 2 lots of bc. Hang in there, sounds like your man is a good one and we're here for you any time.
Sue
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Trish-Anne - thanks for the sympathy. I'm not normally the self-pitying type, but I'll take all the sympathy that's going at the moment!
You can see my answer to Linda above about the MX vs BMX thing. The surgeon is quite happy to do a BMX, for which I'm very grateful. I had decided very early on what I wanted, even before the formal dx.
I hear what you say about chemo - I'm also thinking that's likely - although I'm hoping for the best.
The in Perth temporarily is a bit of a logistical nightmare. We're from mid North Coast in NSW (near Port Macquarie), but we decided to have a touring holiday. We put tenants in the house last April, put the furniture in the store and set off for a year in the caravan. We have a unit in Perth and the tenants gave notice in September, so we came over mid October to jolly the place up and put it on the market (as the Perth market is just starting to move). We moved into it and did a bit of renovation and bought some display type furniture and it looked really great. We got an offer, talked him up a bit and accepted it on 11th December, with settlement for end of January. I found my lump on 13th December and got the confirmed dx on 19th! So at the moment, we're due to move out of the unit and back into the caravan at the end of January. Not really the most ideal situation for BMX and possible chemo !!
Quite honestly, we're not sure what we'll do. We're going to wait and see what the results of the op are. According to my understanding of what the surgeon said, he takes the sentinel node during the op and it gets tested then and there. If it's positive, he takes the rest of the nodes and I'll definitely be up for chemo or radiation or whatever. Either way, I'll know straight after the op. In that case, we'll need to make arrangements to find somewhere stay in Perth for a while as I really don't think I can mange chemo from a caravan park.
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Welcome Jan.....I too am in Perth.
Richard Martin wasn't my breast surgeon but he did put my port in when I was diagnosed with secondary cancer recently.....I found him very nice & helpful & had no problems with him at all. Although it was only a port placement so I didn't really see that much of him!
When I was first diagnosed 2 years ago I had the lumpectomy first & was then advised I had Triple Negative Breast Cancer & would need chemo followed by a unilateral mastectomy.
After much thought & consideration I decided to have a bilateral & it didn't cost me any extra! That it sounds a bit confusing to me, perhaps check with Medicare & your health fund.
I also have my treatment at The Mount, so if you do need chemo we might just meet up in the chemo ward... I'm going for chemo this Thursday & the following one. I'm on a 3 weekly chemo cycle.
Everything happens so fast for all of us & it is so much to take in......so many questions, ask away! There is always someone able to answer your questions.
Not everyone gives us the support we need & those are the people we need to keep at arms length. My mother is a bit like Sue's.......she thinks it's all about her! So I make good use of practicing boundaries!!
Where abouts in Perth are you living? I'm in Iluka.
Once again welcome & take care...:)
Ariom....glad to hear you are doing well - except for your bloody toe....LOL
Angela....I hope you aren't feeling too bad after your chemo....thinking of you (((hugs))) x
Hope everyone is almost ready for the festive season..
Karen x0 -
Jan if you are to do chemo you really need to be somewhere a little more comfortable than a caravan........beside the fact that your immune system will be really compromised a caravan park could leave you wide open for infection etc. Trying to deal with the SE's of chemo will be a little easier in a unit as you will be close to the bathroom that is exclusively yours.
I would talk to the surgeon again and insist on the BMX if that's what you want.........having to do it twice would be a bit of a nightmare and I agree with you that even though it will be a bit uncomfortable for a while it will be done and dusted. The doc is probably thinking that you will change you mind once you get over the first one.
Self pity is the name of the game here ......... It's allowed........so don't worry about having a pity party as we are all quite happy to party with you.......lol.
Do you have any special plans for Christmas Day? Or are you just going to have a quiet one with your DH ( dear husband)? Take it easy and know that we are all here for you.
Love n hugs. Chrissy0 -
Hi Sue - every medical person I've spoken to agrees with you on the HRT. I've been asked, told and commanded to stop taking it.
You poor thing - that's a absolutely rotten thing for your mother to say to you. And I agree with you about people being scared off. Luckily I don't have to have much to do with my rellies that can't cope with me and my lump.
I'm really keen to meet some of the Perth ladies. I had the most amazing experience today. We went for coffee in Kings Park and had a wander through the gallery there and a assistant came up and said can I help and I said I'm looking for an aromatherapy burner as I'm going to be in bed for a while and I'd like some nice smells, and she said Oh, I hope it's not serious and I said well not really, I'm just going to become flat chested. She looked at me really strangely and said "Well actually, I had a mastectomy 14 years ago". It was totally surreal. We stood in the middle of the gallery and talked hard for about 20 minutes. My poor other half ended up going and sitting in the car. It was just so good to actually talk face to face with somebody who had gone through this.
This cyber community is one the most amazing experiences I've ever had, and I really appreciate the support and everybody being here for me, but just meeting somebody out of the blue like that was incredible.
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Jan, I might be out of place in this suggestion, but Id seriously consider that if you proceed with the op there in Perth as you have already organised, getting a referral to the North Coast Cancer Institute at Port Macquarie so you can be close to family and friends and all that is familiar if you have to do chemo. You should be mobile by the end of January anyway as in my experience it doesnt take long to recover from the actual masectomy, as far as pain and inability to use your arms is concerned, though perhaps your partner may have to do the driving home. That could put too much exertion on your arm where the lymph node is removed. If chemo is necessary, they generally give you at least a month to 6 weeks to fully recover before instigating the first course which would bring you into March anyway, perhaps tx could be delayed to April, youd need to check with the experts on that though.
If chemo cant be delayed, perhaps you can ask your tenants to move out early on compassionate grounds so you can be in your own home if that eventuates. Otherwise Im sure you could park at a family or friends place for a few weeks and still get the support you and your partner will need during treatment.
To me the ideal arrangement would be to get all your films and paperwork and head home and have the op back in or near Port Macquarie so that your initial BS (Breast Surgeon) can keep close tabs on you for the duration of treatment and the following 10 years or so that they like to keep tabs on us. I get peace of mind out of knowing that my BS who I greatly respect knows exactly whats been done to me, when, how, why and has seen me every 6 months for the first few years post dx. He worked with my oncologist in deciding what chemo I would have and if push came to shove Id trust him more than my oncologist. I had a bit of a recurance scare last year (mammo's and us came up with suspicious areas that biopsies showed to be cysts, but it wasnt till he personally did an ultrasound during my next visit, that I was finally at peace and believed I was still all clear of cancer. Now Im 4 years out Im going to see him once a year and my oncologist once a year, so I will be seeing "my" specialists every 6 months instead of 3 monthly- I graduated lol.
Anyway again with the rambling "sigh", just hope im giving you food for thought on perhaps making this whole experience not quite so scary with being so far from home. I know this throws all your plans out the window, but the reality is, having the support of family and friends during chemo cannot be underestimated.
Anyway i thought Id toss the idea out there to you. My understanding is the cancer institute at Port Macquarie is first class if that helps lol.
By the way, Ive met Trish, Kate, Suzie, Racy, Chrissy, Sandy and Jenn and believe me when I say we are all family here. Felt like Id known and loved each of them all my life from the minute we met. I hope you soon feel the same. The benefit of our little group is we can talk about the things that others who arent in our shoes dont want to know about or cant fully comprehend. We are our best reasurance and support and often we find our sanity here as well lol.
Anyway I hope you dont mind the unsolicitated advice/recommendation.
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Hi Kazzie - it's good to hear from somebody in Perth. I'm glad you found Richard Martin agreeable as well. He seems a really nice man to me, and he has no issues with doing the BMX, I think he's just making sure I'm aware of all my options. I'm also puzzled by the extra cost if done in one op and I'm going to chase it up with both medicare and my fund. The unit is in Nedlands, nice and handy to the uni and Charlies, so it's ideally placed for being ill. Unfortunately, it's now sold
I'll look for you in the chemo ward if I go that route:)Chrissy - I really don't intend to do chemo from a caravan - it's just the unbelievably bad timing that has me facing the surgery 2 weeks before we're due to move out of the unit and back into the van! If I have to have chemo, we'll rent a flat in Perth. I'm thinking something maybe in South Perth looking out over the river with a nice sunny balcony and a lift and handy to the hospitals. Well, that's the ideal any way.
Christmas day is going to be quiet, although if anybody wants to join me for a pity party, I'll bring the wine and crackers
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Jan......lol. I just read Linda's post and her suggestion if you need to do chemo is a good one and well worth consideration. Mind you, a unit in Perth is a good idea as well.
Christmas for me will be flat out as my kids and grand kids all arrive on Christmas morning. I usually only have the ham to put in the oven and make a green salad as I try to get everything else done prior so I'm not stuck in the kitchen all day......anyway, my legs won't let me stand that long anyway. So far, so good and I'm keeping to the schedule I wrote for myself..........lol........tomorrow is get the two bedrooms cleaned and beds made........just have to put the mop over the floors and flick the duster around so not much effort needed. I've been doing a bit and resting a bit that way I can get more done without feeling totally exhausted......yay!!!!!!
Time for this little (well not so little) duck to be in bed. Hope you all sleep well and you can relax tomorrow
Love n hugs. Chrissy0 -
Can't sleep - just took a melatonin - hopefully it will work.
Chrissy - I'm not doing any cleaning except for the bathrooms - I wore myself out before you came up. The only guest we are having is my mother - I read the riot act to her today and told her not to come until 9:30 or 10 - she usually arrives at 6 or 7 am. I don't care that the floors are dirty again. The leopard tree out the back is still raining leaves, so there is no point in being too fussy about the floors. Steve will just track the leaves in. I might give it a swipe over with a broom if it cools down - terribly humid here at the moment.
Jan - I hope you do find somewhere to be comfortable if you do have to have chemo.
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Jan....is he doing your mastectomy at The Mount??
Lovely hospital, fabulous, caring nurses......I've had nothing but good experiences there!
Maybe we can catch up in the new year.
Take care
Karen x0 -
Linda - you're not out of place at all and I really do appreciate the advice.
We've given this a lot of thought (in the whole week we've had to think about things). I think the decision to have the op here is going to stand. I don't want to delay that. The recovery time however, is much shorter than I thought it would be and it does open up the option to return to Port for any further treatment.
The thing is we're both from Perth originally and our families are here, although it's complicated by the fact that of our relatives here in Perth, only one out of the four of them (my brother) looks like being of any support, and he's hampered by his wife who doesn't want to have anything to do with the whole issue. We've only been over east for about 3 years, and only finished building the house in Port about 6 months before we went on holiday. In fact, one of the reasons we took the holiday is we didn't have a very good build experience and the house was annoying us. We thought if we had a break away it would help.
While we love the area in Port, we don't really have many close friends or any relatives there, so the decision of whether to go back or stay here is a hard one. It's complicated by the fact that the tenants in the house are actually friends who were building a house themselves. The whole logistics thing is a nightmare. We've left a boat parked in the back yard, a gun safe in the garage and shed full of stuff because they are friends and we expected to be back there when they finished building their house.
You have certainly given me lots more to think about. It's easy if I don't need chemo, and I've been working on the basis that if I do need chemo, I'll stay here. In a large part that was to have continuity of treatment. I didn't want to start the whole relationship with an oncologist etc, and then move after a couple of months and start again. But it may be better to go back to Port before starting the chemo, rent a flat there until the house is available again, and then be able to move back into home. At least we'd be in our house, not some rented unit. Yes, this definitely needs more thinking about. Thank you very much for the suggestions.
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Hi Jebdra, I'm in Perth too and went to Sir Charles Gardiner in April and had my mastectomy, luckily I didn't need chemo. I am now waiting to hear from the hospital about my reconstruction. It's all very confusing and frighting until you get your final pathology after your operation then you know for sure what's going to happen.
There's a Perth site called www.breastcancerclick.com.au which is very good, we have chats every Wednesday night, I think will resume in 2 weeks. Take a look at the site it's got heaps of info on it. There's also a nurse on the site called Glenys, she works at RPH, I've met her and she's very nice. Everyone on the site is very friendly and you don't have to be in West Aussie to go on for any one else who is interested.
Hope you all have a good weekend.
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Karen - sadly no - the first week he can fit me in he is at Bethesda in Claremont. Fabulous coffee shop and view of the river, but I don't know what the hospital itself is like. If I wanted the Mount, I'd have to wait till the following week, and I really don't want to wait. I just want to get it done!
I'd love to catch up in the New Year. We'll see how we go.
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Hi aussie12 - good to meet you. Confusing and frightening are the right words. Thanks for that link. I'll check it out tomorrow. I took a sleepy pill about 20 minutes ago, and I think it's about to hit me
Good night all. Sweet dreams.
PS - I just tried that site and it appears to be down. Google's cache is OK, so maybe it will be back up tomorrow.
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WOW! Lots of conversation overnight!
Hi Jan :-) So sorry you are joining us... So many things you have to decide!
Single or double? - If you have the double do both together. Going through the risks of two anaesthetics etc would be silly (not make medical sense). hmmm - the only person/people that would be better off with that plan would be the surgeon and the anaesthetist who would both then get paid by twice by Medicare!!!!!?????? (paint me cynical on this one here...)
Recovery from one surgery is always going to be a better option than recovery from two. It's not like your body feels any less pain etc the second time, or there is less risks the second time!
I had the double after an initial lumpectomy. No regrets. It was easy for the doctors to tell me not to worry because if more cancer came back in either breast we could just "do it all again" ie: surgery, chemo. Uh, not so easy for me to live with that thought!
Lymph node clearance? - Latest research has shown that removing all the lymph nodes after less than 4 positive sentinal nodes is more risky than beneficial. Ask your surgeon about this. Look up the Z0011 study online. Don't have those nodes yanked out if it's not necessary. General feeling in the breast cancer research community is that the days of taking everyone's nodes out are over - it's just that some surgeons are slow taking this info on board (they like performing surgery - they get paid more for doing more). Ask your surgeon if he is aware of this research!!!!
Where? - Either of your options is great. I have personally been and seen the cancer centre at Port (NCCI) for work. They are a great team. Great doctors! Great nurses! Great care! I would be happy to be treated there in a drop dead minute! Stephen Begbie is the oncologist that runs the unit - wonderful guy and very involved in research so knows all the latest info. They had a woman on one of my trials with cancer (different type) who was going through a really hard time. I saw how far above and beyond Dr Begbie went to get an expensive treatment made available to her that wouldn't normally be offered here in Australia. I would love to have him as my doctor...
Perth hospitals are good too, but I've got no personal experience with them, so listen to the others on that.
Anyway, hope that helps... Jenn0 -
As to relatives and support - I phoned my mother (in New Zealand) last night to see if her Christmas hamper was delivered. Had a lovely conversation about how it had arrived.
She didn't ask me one darned question about how my surgery this past Thursday went. Not a word.
It was all about her as usual... :-/
On the other hand we went out to my cousin's place yesterday for a pre-Christmas gathering. All my cousins were so concerned about me. And I had to do my first "whip them out". Got dragged off to the bathroom by my cousins (female) for a show and tell of my reconstucted boobies!
Jenn0 -
Welcome Jan and Ariom.
Jan, Jenn has given you good advice about the lymph node surgery. The standard of care changed just after I had a full dissection. It is no longer considered necessary if the sentinal nodes are clear at least. There are research articles on this site about it.
Low battery so must go for now! Will come back later. Happy Sunday all.0 -
Hi girls. Sorry it has been a while,lots have happened.Welcome to The new ladies and has already be mentioned this is a great group and very supportive. I might also say welcome to the roller coaster ride called Breast Cancer.Definitely confusing and the problem is you are given all the information you can get. But on the other hand too much information overloads the brain! As my breast care nurse explained Imagine you are dropped into a foreign country ,you don't know the language or the customs,how the heck are you meant to make life changing decisions? My good news is no chemo or radiation. And will be starting Arimedex.
All the results from the mastectomy are negative cancer at this time and it was all in the breast that they removed! Still considered a high risk but that is their job as for me I am doing the happy dance.As Peter says I have dodged another bullet! A bit of peace and quiet would go down well at this time ! Lol0 -
Bummer I just wrote an essay and lost it...
Welcome Jan. This is a fabulous group and have been a terrific support.
I know several of us had ops over Chrissy last year and the waiting seems for ever. It will be over soon enough and don't stress about the delay.
Blame chemo brain but I know we have a member who is from around Port Mac. Apologies for forgetting names.
I found my BC when we had moved 3 weeks previously last year. I had left all my friends, was in temporary accomm. and was in a really bad place. This site was a life saver. I moved during chemo and it would have been so much easier to move before it started. (I would think your friends renting your house would take your BC into account). Sending info from surgeons to oncologists etc is not a problem with the computerised systems. The best advice I got was 'do what is best for you'.
I hope you are in touch with a McGrath Nurse they are fantastic. When I moved the McGrath nurses rang each other and discussed my case so that was a great support.
Ariom - I hope your toe and the rest of you feels better soon.
Jenn - I hope you are sleeping and not too sore.
Chrissy- I wish I had your enthusiasm for cooking, we should all drop into your place for next year.
Linda - I hope you get a bit of time off over Christmas.
We are going away tomorrow to spend Christmas with my Mum. Wishing everyone a very, very relaxed and enjoyable Christmas. Ginormous hugs to you all. Kylie xxx
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Jenn - Thanks for your very informative post. Your thinking on the MX vs DMX is the same as mine. I'm really not sure just why the surgeon raised the issue unless it's purely a financial one. So far, everyone who's had a BMX had both done at once.
Thanks so much for the reference to the Z0011 study. I've had a quick read and will do some more in-depth study and then talk to my BS again. At the moment, I'm not scheduled to see him again before the operation, but I think I'm going to change that. I really want to talk to him about some of the issues that I've found out about (mainly from helpful people on here). The initial consultation was only about 20 minutes and was pretty superficial. I just didn't know what to ask.
Where to have all this done is still up in the air. I thought I had decided, but now I'm second guessing myself - and with good reason.
The funny thing is - when my GP prescribed my anti-anxiety meds she said "don't make any serious decisions while you are taking these"
lol - these are some of the most important decisions I've ever had to take in my life!I hear what your say about your mother and your cousins. Some people are just self-centred and there's nothing we can do about it. The problem I think is that insensitivity that we would usually just shrug off hits us pretty hard when we're so vulnerable. Your cousins sound a great bunch and I'm sure they gave your new boobies a admiring welcome.
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Morning girls. my mum has been at me about this new thing they have found, well maybe not new and that is cutting all sugar in our diets as sugar feeds the cancer cells and makes it spread, they feed sugar and it activates them to grow and this guy had 3 months to live and about 5 years ago, went on this non sugar thing and still here. that means all weat products, so no bread at all. no carbs at all. they say the pharmasutical companies know this, and know there is a cure, but they would lose money. so it is kept under wraps. but the elimination of sugar is way to go to kil the cancer cells/ just thought i would mention it. my sister is doing this liver clenz as they everything is stored on the liver and when its got no where to go, it breaks down and causes problems. dont know if anyone interested in the no sugar things, ????
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