Australian Sisters
Comments
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Thanks Jenn, it's great to understand the science behind results. You have answered some really 'sticky' questions since BC and I truly appreciate it.
Well I gave up on the 'growing my hair' idea. I looked at a picture of the Queen and decided my hair was too much like hers!! I got it cut fairly similar to your photo Jenn, but red - I feel about 20 years younger.
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Kylie - am luvving the description of your new hair style - 20 years younger, heck I may go the same way, need all the help I can get! DH once commented that my hairstyle made me look like Maggie Thatcher....I replied "does that make you my Denis then?", he soon shut up!....lol.
Tammy - I am taking Ostelin Vit. D3. 2000IU. have been on it now for 12 months and it has improved my Vit. D levels enormously.
Have not heard from Liv in a while, hope she is doing ok and results of MRI are good.
Trish - that must be a record time for a house sale, sure beats "home open" for months at a stretch as a lot of vendors seem to experience.
Wonder how Kates' resignation was taken. Probably tried to talk her out of it?
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Very interesting about the Predict test results - thanks Jenn. I have two reduced functioning alleles *9 & *41. I think I was surprised that we all had some impairment as I thought only about 10% of the population were affected but as you say Jenn, I suppose that's just chance....
Mel, I hadn't heard of Cowdens Syndrome before...sorry if this means you have to have regular colonoscopies
Seems like there is lots of change afoot....Kylie's new hair, Trish moving house...I hope it is all good....0 -
Gosh, my heart must not be in too bad of order. We have a blue tongue lizard and about three weeks ago he went awol, and as our house is in packing up mode, he could of been anywhere.
Well i was doing some banking on the computer earlier and i felt this cold feeling thing slide over my foot and i looked down and it was this blue tongue, my God everything went flying as at first it did not dawn on me what it was, i thought he had died, he poking out his blue tongue and i just got over that fright and our little shihtzu saw it, Heidi let out this screeching high pitched bark and i nearly went into orbit, hells bells. she can put the heebies up ya, it is so sudden too, well after i recovered, i got him back into his cage, gave him a feed and water and he is sitting there watching me sticking his blue tongue out at me, he was cold, so got him some hay, warm him up. I have been wondering why the cat food seems to go quicker and the water as that what he eats and that the cats have turned into pigs as there is always food on floor, it has probably been him.
I am having some lunch now and a cuppa tea, hoping that it brings me back to earth from the moments that seperated me from this planet to another, as i think i lept pretty high, if i had been doing a pole vault, the pole would of been left behind, did very well on my own i reckon. Flaming animals. lol
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Annette, that made me laugh. My Mum was flipping out over some skinks (tiny lizards) in her house. I couldn't see the drama but she said they leave little black poos everywhere.
I was thinking of you earlier because it is Coeliac Awareness Week. One of the ladies in the news said her only symptoms were anaemia and tiredness, that the gastro hadn't set in yet. Have you been checked for this?
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no actually i have not. i must bring that up to the Doctor. i will get and look it up too, thanks Kylie for bringing that up. wil check it out.
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Hi everyone. Well I did it. I resigned. Not on Monday as I said I would - just too darn busy, but I rang my boss who doesn't work on Wednesdays and resigned over the phone. She said she wants to talk to me on Monday about it, but my mind is made up. I tell you, I feel so strong having done this. My lovely ladies who work with me on a Wednesday said they wouldn't come in if I wasn't here, as I was the only reason they came into work and I was the only one in the office who ever had a smile on her face (forcibly plastered on at times I can assure you) but the sentiment behind their comments really warmed me.
...... and just to cap off a very interesting week, I have my last ever Herceptin tomorrow. Only thing I'm a bit peed off with is the hospital is just days away from opening up their brand new 13 million dollar oncology wing! It has been in the making since I was first diagnosed so I was looking forward to at least one treatment reclining in new plush surroundings (current wing is very old and dodgy). Now I have to say, I hope I never see the inside of it!!!
xxxx
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Thank goodness for last Herceptin Kate!!!!!!! Well done :-)
Jenn0 -
Kate is that at scgh? I'm still there after a week!!! I looked through the window and it looks pretty flash. I'll still be here tomorrow.
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Hi Aussie. No, I'm down in Bunbury. Obviously lots of $$ being spent on new oncology buildings also up in Perth. Good thing too.
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Congratulations Kate.....two reasons to celebrate, the end of Herceptin (can't have it myself so don't know what it's like, but still feel the celebration!!!) & telling that awful woman to stick her job where the sun don't shine....he he!! I bet you feel like a weight has been lifted from your shoulders..... You go girl!
Aussie....how much longer till they let you out into the wide, wide, world?? You must be looking forward to getting home by now
Trish......wow! Congratulations on the sale of your house & the success of your business....it's all happening for you. Good to hear your life is back to 'normal' & no longer revolving around cancer
Annette....you do have funny stories to tell! Hope you're starting to feel better.o
Mel....sorry to hear about your Cowdens disease, but guess it means by knowing you can be pro active.....
Kyle....your hair description did make me laugh, but you know since I lost my hair (again!) I get the most compliments with my short wig! And I do remember when my hair grew back last time it looked so much better when I kept it cut short & stylish...I'm sure you're rocking the short look!!
Not too much happening in my world.....I think the Xeloda SE's are kicking in, very fatigued & it looks like the hand/foot syndrome is also rearing it's ugly head! I have small red marks on the palms of both my hands but have been waking in the middle of the night with quite severe pins & needles & numbness in my right hand....oh well, if it kicks the beasts a##e it'll be worth it.....:)
On a happy note, my daughter who went to India came for dinner last night & gave me some beautiful pressies she gave me 2 gorgeous handmade Pashmina's, a lovely handmade necklace as well as 2 stunning stones (one is a ruby, can't remember the other but it's a gorgeous blue). Now I want to get very clever & imaginative & have them made into some lovely jewellery that I can wear but also leave to my 2 girls when the time comes.....:)
Hope everyone is having a good day....
Karen xox0 -
Jenn......can I ask a favour of you?
I often send through reports/studies to my onc, which he says he appreciates as it helps him also...
Anyway, he did say to me last time I saw him, if I hear of any appropriate trials over east I should let him know & he'll get on the phone & see if I can participate (don't know how that works, I didn't ask). So my question to you is, if you do hear of any stage 3 Triple Negative trials that you believe are showing promise could you please let me know?
Hope you don't mind me asking the question & appreciate it may go against the rules, so just let me know if this is the case......:)
Hope you are feeling ok these days....
Thanks Jenn
Karen Xbox0 -
I'm still in hospital, maybe another 3 days yet until the drain is low enough. Feeling bored as I'm not sick, I feel pretty good. The
I
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Aussie - best place to be with a drain even if you are bored. I really got into mischief with my one remaining drain when I was discharged. Got it caught in the recliner over a weekend and had all sorts of drama....so hon...stay put but safe...lol.
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Lolalee that's funny, I just didn't expect to be here that long. The staff here are all really good and surprisingly the days haven't been that long.
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Hi Ladies, i rang up my GP yesterday to one find out if they had any notification regarding my procedures and asked for the nurse, well i was told from her that i need to ring the Hospital as now i am not their problem once it becomes a hospital issue and i wanted to ask about what Kylie had suggested re coeliac as couple of symtoms did sound like mine and she again thobbed me off and said, the Hospital will be able to to tell if you have any thing wrong, so now i am in no bodies land, apparently if i get worse who do i go to as i have A GP who don't want to know after they have done a refereral, makes you feel like discarded trash. and the Hospital says ring yr gp if condition worsens, i did not tell hubby this as he would be livid, i will tell him on weekend, he will of calmed by monday lol.
Bil is right, i have really had nobody managing my case, its been all about fobbing me off from one to another and this proves it as i got that from the same attitude from the registra i went to. Mind you it was the GP nurse who said that, not the GP, she may have ben having a bad hair day. so its one day at a time from here to the apointment time. have a good day ladies.
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Annette.......it all sounds like dreadful treatment & I wish I had the answers for you..:)
Have you thought about a new medical team....or GP at least?
Might not be as easy as it sounds as I don't know how it all works in New Zealand.
As you say, maybe just a bad hair day...lol, but it does seem to have been going on along time.
Hope you get some answers soon.
Karen xox0 -
It has and i did not think that they seperated the issue of who is managing it, not our problem. As i said, when i tried to address the issue of my iron definency to a registra, it was, that is for the GP to sort out. I will sort it monday, at the moment i am holding together it does seem to be abit of fobbing off. i try not to moan and my hubby gets really peeved when they do this, that is why i don't tell him til i know he can't go in and have a go, as i don't think getting mad does any good, but i am not a person who will confront issues, abit of whimp, esp when it concerns my walfare, i am can stick up for others tho, hubby is the same too, won't stick up for himself, but will 4 me or others, funny humans we are at times.
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Annette, the kiwi medical system sounds so inefficient if you are in the public system. I guess I already knew that because my Mum is still over there in Auckland. It's been over a year since she was referred for a colonoscopy and she still hasn't gotten an appointment... When we were still living there we were much younger and had private health insurance so it seemed better. I'm so sorry you are having to go through all these hoops to get seen! Certainly concretes my opinion that we will never go back to NZ to live.
Hey everyone, I am reading along but am just so busy at work and with study. I actually had an evening off study last night so went and got a DVD to watch - Bachelorettes. Watched it but boy did it have a lot of drugs and s.x in it so I can't say as I would recommend it. The plot revolved around a group of friends who treated their overweight friend in such a terrible way - shameful to make it seem funny really.
I have a hair appt tomorrow afternoon and then am at uni all day on Sunday 9am to 4pm. So I really only have tomorrow morning to fit all those usual housework things into and no real time I can set aside for myself this weekend. The hair appts are still pretty stressful because my hair is so short and they keep messing up my colour and having to do it twice at each appt. Am almost "over it" with this hairdressers. It has to be done right since I am going blonde when my hair is very dark.
Congrats Trish on selling your house.
Congrats Kylie on moving. I hope you settle back in comfortably. What is hubby doing for work?
A hug to all who are currently on regular treatments - I do read and send you good wishes.
Luv Jenn
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Jenn, i feel sorry for yr mum, a whole year, i am getting it done in april, but a year, that is bad, what worries me that any problem that she could have gets worse while they make her wait. Yea well i am wondering if taking health insurance may be a good idea for us as it is all so inefficent. my main issue is just not knowing who to go to as they all pass the buck. thank you Jenn.
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Hello all
I've had a pretty eventful week. On Tuesday after lunch I started to feel quite ill and decided to go home from work. Once on the road had to get petrol or I wouldn't have made it home. Filled up with petrol ok, but when I went in to pay for it, I thought I was going to throw up, paid for petrol and was heading (in a hurry) to the loo but passed out on the way. Woke up on the floor with all these people around me not knowing where I was or what had happened.
They called the ambos and my poor DH, funnily enough I didn't end up throwing up. The ambos were really nice, but the guy who was looking after me had only been on the job 4 days and blew a vein trying to get a line in. They gave me ondansetron (sp?) which brought back memories, so maybe that's why I didn't end up throwing up.
The conclusion everyone's come to is that because I was feeling so unwell my blood pressure dropped too much and that's why I passed out, my heart was fine and blood pressure was low when they checked, but not super low.
Saw my onc this morning, it was scheduled, and he's of the opinion my bp dropped too. I'm really fine now, except I'm bruised and battered from the fall. Have a black eye, a big bruise on one shoulder, and an enormous egg on the back of my head. My neck was thrown out, so having spasms that are starting to recede now (went to my chiro who worked wonders), but I also haven't been able to sleep properly as every time I moved in bed I woke up as I was so sore.
Feeling a lot better today, and the aches have receded somewhat. It's been a big week. I really feel sorry for poor DH who had to rush into the hospital not knowing what he'd find. He did have the presence of mind to stop at my car on the way and take all my cameras and gear out of the boot though - he's a sweetie :-)
Will catch up on all the news here soon.
But don't worry about me girls - all is good now.
Trish
xoxo
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Holy Moly Trish what an experience! Nerve shattering to say the least. Hope your BP is back to norm and you slow down a little, easy to say I know, human nature being what it is you are programmed to run at full speed.
Have a relaxing weekend.
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gosh, that is no good Trish, glad you feeling better now, but yr neck and head, hope it feels alot better soon. that is scarey. take care
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Trish, I hope that you are feeling better, the people at the petrol station must have freaked out. I'm still in hospital, 8 days now, my drain was only 10ml too much but they wouldn't let me out!!! I am feeling really well. I hope that everyone has a great weekend.
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So sorry to hear you had a fainting spell Trish. Take it easy this weekend as much as possible :-)
Jenn0 -
Oh that's terrible Trish. Lucky you only got an egg on your head and didn't fracture your noggin. Are you eating OK or could it be just too much running around and maybe on an empty stomach? very scary for you but glad you're OK now. xx
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Hey ladies, still reading. Trish, maybe you have a virus?
Kate and Kylie, good to see you back posting. And always nice to hear from Jenn.
Do you think we should plan another get together, maybe in Sydney in December?0 -
Aussie - I feel for you, being stuck in hospital, that sucks :-(
I'm almost back to normal now - bp is fine, but my neck is still spasming which is painful.
Yes Mum (Kate) lol I'm eating ok, I have been running around a bit too much though, I will admit. Did a full on wedding on Saturday after a portrait shoot every afternoon last week, then went to Sydney for the day on Sunday and walked around Darling Harbour with my business partner so we could check out good spots for a wedding next month. It was hot and humid, left home at 6.00am and got back at 10.00pm. Processed images all day Monday (was a public holiday here) then back to work on Tuesday. So - maybe overdoing it a bit and thinking I'm superwoman. I know I am, but I feel so bloody fantastic at the moment I forget my age and I guess what my body has been through recently.
I didn't have time to get the fixings for my normal lunch - a small breadroll with ham and homemade chutney, so bought a chicken salad roll - and it was too big, and I felt really uncomfortable after it, then started to feel sick. The rest you know lol.
I've been resting the past few days, but tomorrow we have to go out house hunting, looking at eight houses, but I'm not driving - DH is. My business partner has taken all my image processing off me and doing it for me, and I've been banned from picking up a camera until next weekend. So people are looking after me :-)
If only my neck would settle down more (and the lightheadedness ease off) I'd be almost as good as new! lol
Must remember my age, must remember my age. Aren't I suddenly 30 again??
Trish
xoxo
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Oh - and I'm off to bed now.
Racy - Sydney in December would be lovely - I can be there as it's not too far. The rest of you - start saving, and buy lots of scratchies or do lotto or something.
Trishxoxo
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Oh Trish, thats awful! One good thing though at least you weren't driving when it happened! Now that could really have been nasty! Take it easy over the weekend Nd give yourself time to heal a bit. That's really good news on your house by the way.......woohoo!
Kate, what did your now ex boss have to say........did she suck up?........lol. You will be missed I'm sure. Yay for your last Herceptin........done, dusted and time to leave it all behind. Congrats to your DH on the new job.........have you ever been to Darwin? Nice place but soooooo hot and wet!
Aussie, better to be resting in hospital than chancing an infection at home even though I know just how boring a hospital bed can be when you are basically feeling well.
Karen hope you are living life just one day at a time and acking it full to overflowing. (((((((Hugs)))))))))
Kylie, hope you are feeling better now you are back in your own surroundings........like Dorothy says in the Wizard of Oz, there's no place like home.
Just been taking it easy these last couple of days as I feel like someone has chased me up a hill and I'm still trying to get my breath. Been sucking on the ventalin like its going out of business........not with the amount I use....lol.....and it's kept me comfy but I think it may be a topic of my next appointment with the doc.......we shall see as that is still a few weeks away. Anyhoooo, I'm hoping a bit of rest will bring it well under control prior.
Take it easy all.
Love n hugs. Chrissy0
