Western New York Area
Looking for women/men on this site that are from the Western New York State Area to share stories, compare notes and plan a get together in the summer. What do you think?
Maureen
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Maureen, I am from South Buffalo, PM if your like. I just saw this site. Betty
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Hi Betty, There are a few women that seem to be from this area. Hoping more women join the thread. You have a very similar dx as I do. I'm encouraged you are three years out. Will PM soon.
Maureen
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How is WNYer's taking the weather? I'm freezing. Went to the grocery store today and wind almost took the wig right off my head. What a site that would've been, running down the street chasing the wig.
Maureen
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Dear Maureen, I think you were brave to go out, this weekend it is supposed to get even colder with temps in the single digits. I shopped on Thurs. at a farmers market outside, it was bitter especially with the wind. So, I am in hibernation mode, and will not venture into the negative wind chill temps. Hope all WNY's are able to keep warm. I did see a 30's in the long range forecast, it'll feel great. Heard from a friend in Va. where I used to live, her kids have had 2 snow days already due to 2 inches of snow, my grandchildren keep on hoping for one! Karen
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Hi Maureen,
I'm in the Southern Tier. Had my treatment at Roswell. You?
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Hi Ellie, Welcome to WNY site. Had tx by private BS and onc. Bauer and Soniwala. Still in active treatment, 7 more taxols to go and then onto radiation. I see your onco is 27. Did you do chemo? A couple of other women are being treated at Roswell, seem to like it too. Hope you're keeping warm in the southern tier? Great to see another WNYer on these sites. Think spring
Maureen
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I had my surgery at Roswell, but did chemo down here - cytoxan and taxotere. Then tried all three AIs and couldn't tolerate the SEs. Now on tamoxifen and doing fine.
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Glad to hear you're doing well. Hope the weather is okay. We should post pictures of WNY here too....when I figure out how to post a picture, anyone?
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If this is what the temps will be all winter, we will all be frozen stiff. About 4 inches of snow but with the windchill it will be below zero tonight. WNY'ers stay warm. Will have to prestart the car tomorrow for Dr. app't. Karen
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Unbelievable, right now my weatherbug says -2F. The snow is glistening. Wonder if the deer will be in the backyard tonight, I'd love to figure out how to get a picture in the dark of the deer by the pine trees. This is the coldest weather I remember in some time.
Looking for ideas for a get together in the spring, restaurant, my house, park? Any ideas? How many are game for getting together?
One other issue, was going to walk in the Susan B. Komen run, usually in June but with the lawsuit I'm leary, opinions?
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Maureen, I would love a get together in the Spring. I am not sure about the Susan B Komen run.
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Thanks Betty, I'll start a list
Having trouble sleeping cause next chemo tomorrow. I'm cold just thinking about it. My outside temp -10F BRRRRRR. Disappointed cause desperate houswives and brothers and sisters are repeats. Two of my favorite shows. Thinking they will close the schools on Monday due to the cold. Stay warm friends. Maureen
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I am from Rochester, sick of the cold already.
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Welcome D4Hope. Just watching the school closings and quite surprised they haven't closed/delayed area schools. My DS can hop in the car to stay warm but feel sorry for the little ones waiting at the bus stop in this weather.
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Rochester City Schools are closed. Our district is open but my kids get picked up right in front of our house. They stay inside until they see the bus coming LOL.
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Good idea. Temp is now in the 20's. Leaving chemo, I definitely saw the difference. Years ago I had to make weekly trips to Strong Memorial for DS. Trip was easy, right down the 90 to Henrietta and the hospital is right at the exit, made that trip for two years. Went for taxol #5(I think LOL) and doing okay. The onc added tummy meds and extra fluids. I'm doing okay, just want a nap from the Benadryl. DS, DD and DH all working late so I'll be along lurking the boards for most of the week. Next week I go back to work PT so company pays health insurance. Hopefully all will go well. Biggest complaint with this tx. is my mouth feels funny. I'm gargling like crazy but still feeling very tingly? Glad you joined. Looking forward to hearing from you soon. Bring on spring.
Maureen
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Maureen, rest and stay warm and cozy by the space heater. It was bitter yesterday, but today you can feel the dampness Karen
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Thanks Karen, will do. Glad we warmed up a little. I was surprised the schools were'nt closed yesterday for the little ones.
Elle/Betty, how are you ladies doing with this weather. I think we should save our pennies and plan a cruise to somewhere really warm, too bad chemo/rads will keep me local till the spring.
Betty, we have almost the same dx. What was your treatment in 2007?
Maureen
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Maureen, I think we had the same treatment. A/C -4, Taxol 12, Rads 33. RAds was no big deal for me I went back to work during rads (part time). Maureen you mouth will get better it will just take time. I know how bad that is, but it will get back to normal.
I am on Fermera now and it makes me hurt and stiff. I will be going to Soniwala's the end of Feb for a Zomenta treatment, as a revetment for bone mets. I still healing from my surgery and I have pain in my rib area, I don;t know whats causing it. Inflammation I think and this weather isn' t making it better.
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Wow maybe we'll run into each other. I go every Monday till the first week of March for chemo. Do you have bone mets? The weather is really damp today and just can't warm up.
Maureen
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Maureen, No I don't have bone mets it is a preventive measure. My insurance allows it. I will be there Feb 28 at 2:30pm. What time will you be there? Betty
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8AM. looks like we'll miss each other. Usually get there around 745AM and out by 11:30. My DD takes me to every infusion then she's off to school and work.
Maureen
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Hi everyone, Just wanted to introduce myself. I am from the WNY area too, specifically Williamsville. I hear we're headed fro another storm this week... Yuck!! Tired of the cold. Glad to have found some new friends..
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Welcome Bevin. Glad you joined. You are right up the street from me
Heard Wednesday was the day for the storm. Don Paul says so (LOL). At least this isn't 1977!!! Who remembers the Blizzard of '77? I remember both my parents were stuck at work for days, then they got home on snow mobiles with co-workers who stayed at the house for almost a week. My sisters and I held a burping contest (LOL). What can I say, we were teenagers with nothing to do but shovel. Thread seems to be starting to pick up. This will be the 3rd week I have chemo when the temp is hovering below or at zero!! Just thinking of an old man river hot dog on the river, sun shining and I'm warm, really warm and the bees are buzzing and the jet skis are humming along.....Any other "warm" memories out there??
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Jet ski's on lake erie are the best! Booked sumemr vacation to the NC Beaches and leave June 23 whooo hooo - so looking forward to it. Pool will open in early May - I cannot stand looking at that green cover!
Fond memories of the Blizzard - no school - that was enough to make me happy back then!!
Maureen - I hope chemo goes well for you this week and that you don't have too many side effects.
xox
Bevin
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I am from cold and snowy Rochester...ugh...and I too have had it with the snow and cold. My dad lives in Florida and my daughter is a senior at UNLV (Las Vegas). Why the heck am I here????Lol! Hope all is going well for those still in treatment. I too have met many nice people on these boards. It is the one good thing that comes out of our membership in this "club"!
Maureen-Avon is having their walk in NYC in Oct. I am planning on doing that! Nice to meet everyone!
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I am from cold and snowy Rochester too. Does it have to snow everyday?
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Hi kjbell and D4Hope, I am between you and Buffalo, in Batavia N.Y.. I too have seen enough of the white stuff and the bitterly cold temps, 2 more months, lord it sounds like forever doesn't it? Thinking positive thoughts for all those in active treatment, I am on my second year of AI's, that plus the cold makes for some achey joints. I don't remembeer last winter being this cold. My BS and onc are at Rochester General, both are superb. They were refered to me by EWBC clinic, which is a top notch Breast Care Center. I am from Buffalo, so my DD drives the Rochester trips. She is such a support to me and has been throughout this journey. Everybody stay warm, another storm on it's way. Karen
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Here comes the snow.... of course my daughter is hoping for a snow day!! She might just be right!
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Watching the weather channel and seeing the snow on the way is starting to make me nervous. I always think back to "77" all that snow, wind and mess. Watching channel 4 too and they've cancelled a lot of schools already. This is one benefit of being on disability and working from home, no driving in the mess. Told my DS to be home before the storm and for the first time he gave me no grief. Thinking he's keeping an eye on the weather too!! Stay safe ladies, it looks like we need to hunker down the next couple of days. I can honestly say, I'm really sick of this winter, bring on spring!!!!
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Hi fellow WNY"S I can't believe I saw this I read often but seldom post then I say this I'm from the southern tier near Jamestown .. We just got to Florida to flee the snow for a month and I the person that never minded the snow then BC will be 3 years in Feb since my diagnose. Its good to hear from you all and if I could would send some sun .. Oh we all need a little sun stay Warm.Janet
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We got about 4 inches last night, they jumped the gun and closed schools last night, so the kids did get their first snowday. Looks like Chicago got what people think of when they hear about Buffalo winters. It is snowing quite steadily now, forecasters are calling for another 2 inches. Some snow is forecast for Thurs., Fri., and Sat., but nothing to speak of. We dodged another bullet. Stay warm. Karen
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Hey Karen, Agreed, got up this morning and thought, that's all? The schools are closed for this? UB and Buff State too? When I saw that closing I thought we were really in for bad weather. Darling hubby is finally on the mend from the flu. He never gets sick, and I'm sleeping on the couch and far away from him. Onc put me on antibiotics anyway. Right now seems to be really snowing outside. Janb, welcome to the wny thread!! Jamestown is a pretty area, like it a lot. can you send us some sand and sun? Phil better be right this year LOL. I want to see the jet skis and the hot dog stands. Any of the ladies on the site have hobbies, sewing, crafting??
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We actually had about 8 inches in our driveway and about 12 inches where it drifts in front of our doors and in the back yard. Snow was up to my top of my high boots . I like the snow though. It's just tough when I need to coordinate child care. Luckily my husband was home so were all set.
I am not a crafter or into sewing, I never seemed to have the patience. But I love to walk, excercise, read, rollerblade on the bike path by UB, ski (slowly), go to Shea's..swim - go out to eat!!.
Maureen - you made mention you used to travel out to Strong, I did too about 10 years ago. Back then they were the only place that did donor services for IVF. Dr Queenan was my doc. We have a lovely daughter! What did you have to travel there for..?
JanB - welcome.!!!
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My son (4yrs. old at the time) developed seizures after a bad flu and Children's couldn't figure it out. Ended up going to the Neurology clinic, Dr. McBride who straightened everything out. He's now a healthy almost 18yrs. old young man graduating from HS in the spring. Love him to death. Also have a DD who takes me to all my chemo tx. and is my rock. Have DH who travels quite a bit but is very supportive. I'm so lucky to have such a great family around me. I've biked the UB path but never roller bladed. I like Shea's, last time I went was to see the Xmas show with the Rockettes, great show well worth the money. Prior to bc dx. I was walking 2 miles every night in the neighborhood. Maybe I'll get back to that some day. Not fast, from house to Dodge and back is 2 miles, house to bridge and back is one mile.
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Hi ladies from WNY, Its snowing and blowing right now, but its not as bad as I thought it would be. I had to take my sister for her first Radiation atp this morning and all night I was up thinking we weren't going to make it. It wasn't that bad at all the 90 was clear we just went a little slower.
Yes the blizzard of 77 that was a Storm, I have some great pictures of it. We do the Shea thing and we eat out to much, but I love it.
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HI Betty - glad your drive wasnt too bad to get to radiation. Both you and your sister have BC?
My favorite eating place...- The Left Bank- heading there for my Birthday this month!!
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Bevin, I was just to the Left Bank. I have a gift care for there also and my brithday is Feb 10.
Happy Birthday
All four of us sisters had bc my second sister passed 2yrs ago. She was 54. My older sister had Dics and has been clear for 6yrs. I was DX 3yrs ago and my youngest sister just DX at 50. I was tested for the Gene it was neg. and no other family history.
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The Left Bank? Is that on Rhode Island in Buffalo? Thinking I had a work dinner meeting there earlier in the year and the food was wonderful!!
Betty, glad you had a good trip through the weather. I really like a little place up the road, the original Rizzo's on the corner of Dodge and New, really small place, only sits ~40-50 people unlike the larger Rizzo's. They have a really good chicken parm dinner. DH and I can have a complete meal under 40.00 and it's close to home.
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ok YUM - now I'm hungry and just finished dinner...
, HI Maureen, yes It's on Rhode Island. Love it there. Its not very expensive either.Rizzo's sounds nice. I am sure my husband would love it there. He loves chicken parm..
ah well - off to sleep soon. Believe it or not, I'm exhausted..It must be the Snow! or the shoveling...
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yep, remember the Left Bank, great food!! You should try Rizzo's or meet me and DH in spring for dinner. It is really good. Didn't shovel this time, hubby was home sick so he plowed the driveway, thank god, at this point in the winter, I'd pay someone to get this garbage out of the driveway. Shoveling is good exercise but I'm getting sick of this snow. We can look forward to "in like a lion, out like a lamb" ?? maybe?? I do know my DD birthday is 2/12 and it's always snowing or really cold for her BD. I remember on her 7th BD, I invited 20 girls over for her outdoor party, had all these activities planned and on the day of her BD, the wind chill was -30 degrees. We moved everything inside....boy was that fun!!
I can't believe she will be 21 yrs. old this year, where does the time go?? Off to bed, have a great evening Maureen
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Here we go again, snow. Honestly, I don't recall such a lousy winter. Talking to coworkers in MD and they are overwhelmed with the snow. This is two years in a row they got hit. Bring on sun....and the end of chemo or rads or whatever, just light at the end of the tunnel.
Bevin/Karen/Kindone/Janb/Laura, how's everyone doing? Watching the superbowl? Even they have snow!!
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Hey, does anyone know if there is a lymphedema place/care in WNY? Thinkig I'll need to fly after tx and wondering if I need a sleeve/glove whatever. Searched the links on the lymph thread but doesn't come up with any in our area. Ideas?
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Maureen, did you try the Therapist Locator? It's here:
http://www.mylymphedema.com/therapist.htm
Try searching all four of the schools listed there. Some ask for your zip code and email but get back to you quickly with results. Hope you find help close by!
Binney0 -
Thank you Binney4. The closest one is ~60miles away. I was hoping someone from the area is seeing someone and can make recommendation. 60 miles is quite a distance is something happens and I need to work with them on a frequent basis. PT or whatever.
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Yes, I hope someone can suggest a closer therapist too, but if not do call a couple of those on the list and ask who they know that's closer to you. Sometimes they have a network and can recommend a colleague.
Good luck!
Binney0 -
Hi Maurren, Dr Lindfield on sheridan drive near Harlem has a lymphedema clinic within her practice. Here is the link to her website. Look under services. Good luck. Hope you feel better!!
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Kindone - I am sorry about the passing of your sister. I am sure that was a very difficult time for you. My thoughts and prayers are with you and I am really glad you have your family for support.
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Thanks Bevin, I will follow that lead.
Kindone: I'm so sorry you've had to deal with so much bc in your family, and so young. You're all Brac negative? Scary stuff. I wonder if there is more "Coke" plant issues in this area than we think?
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Hi all, looking forward to the SuperBowl game today, go Steelers!!!! I transfered my alligance to the next closest city after the Bills season, oh that was painful to watch - maybe next year. No snow here, but a few flurries in the forecast for tomorrow and I have an appt. with my BS tomorrow. I think I may have the breast infection again, it is red and swollen again. Had to go to two funerals yesterday, one for my granddaughter's best friends' mom from a cancer that usually affects only children, it was bitterly sad, she was so young. The other, one of my friend's mother, she was elderly and it was expected but my friend lost her dad last year to cancer, so it was very hard for her for her, lots of tears shed at both funerals. Sometimes it feels like it is all around me. My godmother was diagnosed Friday with lung cancer, she is 87, and has always been a second mom to me. I lost both my parents to cancer in the 70's, so her diagnosis has hit especially hard. Cancer is a !@#@%&^ dreadful disease. It is all around me, thanks for letting me vent and cry to my cyber friends, I needed to cry. Karen
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Hi Karen- I am so sorry about your situation. That's a lot to deal with. Especially after losing your parents to this dreadful disease. You can vent to us anytime - that's why we're here.. I hope you don't have an infection, but that sounds like at least something you may be able to take care of with antibiotics. Sending a big hug your way.
Try to watch the game, laugh at the commercials and take your mind away from all this for a bit.
xoxo
Bevin
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Karen, I'm so sorry for both of your loss ((((((hugs))))))))you've certainly had your share of crisis events. Cancer is a beast and takes so much from everyone, not just the patient but the family as well. Why the hell can't they cure this disease? I just don't understand it anymore. The progress has been toward tx, where the hell is the cure???
How's your Dgranddaughter and friend doing? So hoping they'll move toward good things and healing. If you have a breast infection, they can give you antibiotics to clear it up. Hope the weather is uneventful for the trip. We had quite the snow last night and son came home to get SUV to deliver pizzas because the delivery boy refused to drive in the weather. Not much snow 4-5 inches but really slippery out. I want spring
Everytime I think superbowl I recall Scotty, felt so sorry for him and angry at the same time. Really wish he would've made that field goal. Concerning teams, I'm not partial to either one. I think while DH is watching the game I'll get some work done. Monday is chemo day and usually don't feel the best. Oh well, after tomorrow, FOUR MORE TO GO!!
Love,
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Thank you Maureen and bevin for your kind words, I really needed to vent. I was able to enjoy the game and put all the crisis aside. Saw the BS surgeon today in Rochester, it is edema making it hard and radiation burn changing the texture of the breast. So all is clear and I can relax. I asked about seeing a lymphedema therapist, he did not think it necessary since it is not causing pain. No appt. for 6 mos, unless there is a problem. My Dgranddaughter and Emmie will be seeing a councilor at school today to talk thru Emmie"s feelings and Mica's role in supporting her. Both seemed in fair spirits after spending the day together. No snow today, quite the difference in temp.,but it is supposed to plumet again for the next few days. We need Spring. Karen Take it easy tonight Maureen, only 4 more and you are finished with chemo.!!!!
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Karen-- Sending you a hug and some warmth .... sorry to hear all you've had to deal. Glad your appointment was Ok . Maureen....sending you a hug .. I was lucky no chemo for me . I broke my elbow in Dec. that was part of our reason to flee to Florida for a month ..made for a very long Dec. Its been nice since we got here the 28th of Jan. I've been swimming orthopedic said it would be good PT for elbow.. We'er already talking about our trip home. Our son is keeping an eye on our place and taking care of our 2 dogs.. But he keeps us informed on all the snow. Stay warm and safe all. janb
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I'll take that hug, and you sent warmth, it was high 20's today. You know when you think high 20's - low 30's are nice winter days, even a little sun added in, are super days in WNY. Temps due to drop however. Karen
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Hi ladies, I am sick of the cold!!!!!!!!
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Ditto! time for a reprieve.
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Think Spring ladies!!! I'm sitting here freezing my butt off. I have to shop for a 21st birthday and dont' want to go outside. Where's the heat?
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Had to run errands with Dgranddaughter, 4 different stores, it is just bitter out there!!
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Yep, I'm staying in, too cold for me, collected garbage and will have DS take it to the curb, if he doesn't, it's not going out till morning, too windy, will blow away. Is it me? Is this winter been soooo long? We need sun, can I get a script for a trip to Cancun to increase my Vitamin D (LOL) Off to watch Criminal minds, one of my favorite, have a good nite ladies
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had a dentist appt. at 10:00, cold but no wind like yesterday, looking forward to the weekend, 30's, yes it has been too long, we need spring. Wouldn't be great if spring came in March,but are those just pipe dreams. Karen
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ok - so what a story w Chris Lee huh? Can't believe people can be so so so so stupid.
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I was talking to a friend today about the Chris Lee fiasco, how stupid is he to send a picture. And apparently he was already warned by the Speaker of the House, Baenor (Sp.) to tone down his ways as far as partying it up in Washington. Bright - I don't think so.
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It is so sad for his family. He was suppose to be quite the up and coming star. Now, career down the toilet. I feel sorry for his family. Did he think no one was going to figure this out?? I'm in his district too!! He'll be lucky to get out of this with his marriage intact. I was sick when I heard this news. What was he thinking??
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I agree Maureen, how very, very sad for his family. He obviously has a narcisistic personality that leads him to think only of himself, and not the embarrassment he has caused his poor wife. I would be contacting a lawyer if I were her, and surrounding herself with good supportive friend to see her through this difficult time. Karen
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Yes - it amazes me. I agree. Its got to be a personality that thinks your above getting caught, being turned in.. and with a young son too. Very sad. I think there's got to be even more coming out given the quick resignation. I was actually friends with his wife years ago. When they were just dating. She ended up to be a bit of a tool, but.. no one deserves THAT!
Ok- also tired of the snow. I sounds like a broken record. But to wake up early this a.m. and see more inches in the driveway UGHHH.
So my primary doctor is getting very old , I love him as he doesnt waste time referring you to a specialist (I see DR Berry Weinstein) but, his office hours are so limited. Do either of you ladies have a primary doctor you like. I am hoping to find a female. I think they relate better.. Appreciate any referrals if you feel comfortable referring me.
Maureen- any luck with the lymphedema doctors
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bevin, I'm in the process of changing PCP now. Her first appt. for new patients was Apr. 6, I've heard she is very good as are the other female doctors in her practice. But I am all the way out in Batavia, that would be quite a drive for you.
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Thanks Karen - Yes Batavia a bit far for a physician... but not far for a lunch- dinner date when we all decide to get together in the summer!!
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Can't wait til summer, both for the obvious reasons and to meet my new friends! For awhile this A.M. it was snowing horizontally, my grandson is getting sick of shoveling, and I'm sooo tired of seeing it. I usually reach this point in March, but this season I'm so over it now. I think because its been so bitterly cold and constant with a few inches of snow each day. Maureen may know of a physician in the Williamsville area.
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HI Ladies, I was aggrevated when I saw all the snow this AM too. DD 21st Birthday today and having party so plowing was another task to add to list. All went well, great dinner, cake and party but boy am I tired!! It was snowing quite a lot when I woke up, UGGGHHH!!!
Bevin, My PCP is in Kenmore, don't like him but do like the Physician assistant who is a women. It's on Sheridan Dr. I'm looking too and do want a women. I'm changing my gyn to all care for women on Transit, hear they are wonderful. My DD had an issue and went there....loved them!! Love my onc, Soniwala, absolutely the best !!!
Anyone else out there who can recommend a good PCP in the Williamsville area?
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Hi Ladies, Well we wanted warmer weather and we got it. It was so nice out today that everything was melting and guess what, my ceiling are leaking can you believe it. All the snow back up on my roof and eves and started coming through. My DH had to go on the roof and get all the Snow and ice off. It stopped dripping but now I have a mess.
Life in Buffalo you got to love it.. I did go ice skating to day with my son and grandson only 2 1/2 it was fun. It was the first time in 3 yrs since I went. I love it.
Maureen I hope your DD had a very happy 21st birthday it a very exciting time.
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Hi Betty, DD birthday was great,she had a lot of fun. Has the same BF for the past 3+ years and that's who she spent birthday with, just family and him. Her friends wanted her to go a bar but she wanted to stay close to home. Your ceiling inside the house? Oh man, hope homeowner's will cover. I'd give them a call. Today was a pretty good day, my thermometer said 41 degrees. Did laundry most of the day and watched the Sabres, good game, too bad they lost. I hope they make the playoffs this year.
Let's start thinking of where we're going come spring!!! Off to watch Desperate Housewives.
Maureen
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Maureen, I have to take my sister to Soniwala to marrow at noon. Its her first time and she very nervous but I don't think she will need chemo. I think she will like him.
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Hi Betty, Wish I'd seen this post earlier, I was at his office until about 11:30AM today for #9 Taxol, only 3 more to go!! Hope she doesn't need chemo, that would be a gift. Did she do the onco dx test? I know you mentioned all your sisters have the beast, that is really really scary. Sending big hugs to you and your sister today. I hope she liked him, I really do. Let us know how she makes out today. #9 is okay, just really, really tired with numbness in fingers and toes. They will weigh continuing tx vs. the loss of feeling every week now. Only 3 more to go, hope I make it through all 12 tx. Increased the Vitamin B to combat the numbness, but it can be annoying at times. At least we have a little warmer weather for a few hours. How's the roof?
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(((((((((((((((((((((((Karen))))))))))))))))))))))))))))))) thought you'd need a hug, sending PM
Maureen
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Maureen, I miss you about 1/2 hr. We had to wait a long time in the waiting room, but once we got in my sister loved him. I don;t know if she has to have chemo her onco test was not in yet. We were very disappointed so in two weeks we go back.
Only 3 treatments left, you made it girl. I had the numbness in finger and toes also, it takes time but it gets much better. I don't even notice it anymore just very little in my foot. Wear are you going for rads? It is nothing compared to chemo, you should do very well.
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Yeah, onc's office was REALLY busy today, even my daughter commented. We like to get the private room so I can sleep and she can do homework, when she saw all the cars, she went running down the hall to get our name on the list (LOL) She got the room sweetheart that she is, and I got my nap. What day do you go back? my chemo day is Monday, for the next 3 weeks. The numbness is getting on my nerves though, I will go on Kahlil (sp?) so don't know if it's at park club or spindrift, either way, from everything I hear, it's everyday and will take me longer to drive there. At this point, I just want this done.
Laura, not sure if you read this thread, if yes, Happy Birthday!!! and good luck with Tuesday chemo, we're getting there!!
Love,
Maureen
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Just stopping by to say hi to everyone. Beautiful day in WNY today, we're going to get spoiled. Hope no one has any flooding issues. Where I am, usually the creek floods a couple days after every other creek does funky stuff. My driveway and sidewalk are CLEAR Yaaaaahhh!!
Karen, thinking of you today, hope all is okay.
Hi kindone and bevin, hope all is okay and you are enjoying the weather.
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Hey everyone, well, the warm weather is gone. Have a wedding to go to this weekend and feeling way to fat for my clothes. UGHHHH.
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Why did we decide to take friends to Vidler's today? What were we thinking? The drive home was treacherous - snow, blowing snow, roads closed due to accidents in Arcade. Next time we travel to East Aurora we will be sure to do it in the summer! Made it home with all the essentials - Easter tatoos, parachuting rabbits, glow in the dark St. Patrick's day earrings. I think we're all set.
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Funny- I had a wedding to go to in OP yesterday. It was right in the middle of all the snow.. YUCK! well the Bride was beatiful and a beautiful day regardless of the snow.
Glad you found your holiday stuff. Love the earrinigs. May have to go get those !!
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I see I missed some stormy weather while I was in Pa., my 87 yr. old godmother passed away from cancer that had metastisized to her lungs. It was her 4th bout with cancer, and the one that took her. It was so hard to walk into the house and not see her there. I was there from Tues. til now, we had tears and laughter, and now an emptyness in my heart. She passed away surrounded by family and in no pain, I am thankful for that. Thru out all of it she was the strongest and most loved by all of us. I am glad to be home, I fear we have another storm coming?
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Karen - so sorry for your loss. It doesn't matter how old our loved ones are, we're never ready to say good-bye, are we?
I hear we might get a foot of snow. I think I'll stay home during this one.
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so true, never ready to say goodbye. I'm supposed to drive to Rochester tomorrow, no way if it's snowing and blowing
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Hi All,
Karen, glad to have you back on the thread. I'm sure it was a rough couple of days. Remember, she will always live in your heart. Be careful if you drive to Rochester tomorrow, I'm not looking forward to driving to Park Club lane with DD either! Calling for snow, sleet and freezing rain. Glad kids don't have school tomorrow.
Ellie:You make me smile, I love all that type of stuff. Never been to Vidlers
Put that on the list of things to do. Used to take DD to girl scout camp and summer camp that way and just didn't go. The earring sound great. I'm 100% Irish so we go all out for St. Patty's Day....corned beef and all! Those roads are unpredictable because it's so open and wind blows right across. Hope you had fun at the wedding. Bevin: Hope you had fun at the wedding.
Off to chemo tomorrow, wish me luck
Maureen
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Karen- I am so sorry to hear of you Grandmothers passing. It sounds like she was loved and really had a great family of support around her. I think the emptiness is hardest to deal with. Sending you prayers and strength. My mother is from Pennsylvania originally. Monesson area.( I think thats how you spell it.)
Maureen - good luck with Chemo. I hope you don't have too many SE's. We are so close to one another, please don't hesitate to let me know if I can help in any way. Errands, etc. Happy to pitch in where ever.
Wedding was very nice. I am feeling my age though. I used to be able to party on till the wee hours at weddings. I love getting dressed up , etc. This time, we snuck out at 10:30. I was exhausted and home and in bed by 11:30.
B
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Karen, So sorry to her about your Grandmother, Its hard to lose a loved one.
Maureen, Good luck with chemo, you must be near the end of treatment, yae. 100% Irish and you don't live in South Buffalo lol. I will be a Soniwala next Monday a 2;30 for zometa. More snow but the streets are not bad. You never been to Vidles? I can take you anytime just let me know.
Bevin, none of us can party like that anymore. I an lucky I get up in the morning. lol
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Hi Ladies, back from #10, doing okay, jsut tired and sick to stomach. I usually finish between 10:30-11AM so thinking I'll miss you. DD has to be to work by 1PM so we're on a tight timeline. When the summer comes we really need to get together. I feel like all of you have become my bff and got me through this one day at a time. Kindone/Betty thanks for the offer of help, I really appreciate the kindness. Right now, I'm really bogged down between work and treatment, sometimes a little overwhelmed and thinking I should've waited to go back to work. Feels good to get my mind off of the bc but keep getting so many e-mails from everyone, how are you etc.... I started just cutting and pasting reply, sounds cold but I'm sick of talking about it all the time, then my mind wanders.....well you know the drill. I said to onc today, my biggest fear is reoccurance. Not sure why, just don't think I can do all this again. BTW, found out today the RO moved his office from Windsong area to Essjay by Farber Lakes, actually it's closer to me. I go to see him next week to set all the stuff up, so I'll have a better idea of what to do. Onto the next step soon enough, two more to go!!! doing the happy dance for two more!!.
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Thank you all for your condolences, she was a very special lady and my parents picked well when they chose her for me. Maureen, getting close to the end of chemo now, bet that is a special marker for you. I'm glad the RO is close to you, it'll probably get the appt. down to an hour for you with the traveling time included. Just think, no more nausea for you!!! Fatigue towards the end of treatment but far less than what you are experiencing now. We are having a nice sunny day today, could use about 10 more degrees, but we are getting that tomorrow and then a 40! Bevin, Conneautville is 1/2 hr from Erie to the SW, don't know if that is close to where your mom was. It has a small Amish community adjacent to it. Mostly small farmers and woodworkers.
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Yay!!! 2 more to go. Thanks for well wishes. Did you know we're suppose to get another foot of heavy friggin snow on Friday. Time to up the medication, I've had it with this winter. I officially want to move (LOL)!!
Conneautville sounds like a great place. I love to browse through Amish things. When I was visiting family in PA they held a craft/baked good sale and I bought so much stuff. They are truly talented people. Don't knkow if I could do without the comforts of modern day though, that would make me crazy.
If this winter doesn't get over soon, I'm going to start drinking and I don't drink. Where the hell is that groundhog. We should give him to Don Paul weather guy and tell them both to get their act together
Maureen
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Maureen, say it isn't so, cannot stomach more snow. It is only Feb. and realistically we could see 1 1/2 mos.more. We will all be babbling idiots by that time. Conneautville is a lovely small town, no st. lights, 6 churches, 2 bars (for the babbling idiots), a post office, an Amish woman who makes homemade pies with fruit she picked herself, had red raspberry this last week and a post office. No polcemen, no crime, leave keys in the car and door unlocked. A huge coop of Amish bakers, butchers, farmers, woodworkers, carpenters, who all show at the coop. Most of the Amish here do have electricity but no cars, TVs,and keep to a strict code of ethics. It's like a trip back in time.
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Red raspberry pie is my DH and DS favorite pie in the world!! We have a small market on the border of East Amherst and Lockport with a lady who makes pies for that market. I go there weekly for cold cuts, meats and potatoes. I look for her pies and when they're in stock, I get one for the boys. It's gone in a day That market has a really good price on potatoes. Wegmans sells 1.5lbs of the same type of potatoes for 4.99/1.5lbs. The market sells them for 2.99 for approx. 9lbs!! and they last longer. BTW, my weather bug just came up with the alert. I will seriously need antidepressants before this winter is over. Here's an idea, let's get our onc's to write a script for a warm weather vacation and have our insurance companies foot the bill because we need to up our vitamin D levels and serotonin levels. Who's with me? 0
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count on me, I bet all of us are in. Wouldn't we make for 1 happy group, sitting on lounge chairs with tropical drinks by our side. Karen
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Count me in, I"ll talk to onc on Monday, let ya know what he says.
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I think we should all push for this, they'd save money in the long run (LOL)
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I love WNY weather LOL
Watching the weather and soap opera and laughing. This winter sucks!! There I said it. Hope everyone is warm and cozy today. Suppose to be warmer on Monday though. Hope all the WNY sisters are okay. Watching the weather closings scroll across the screen. I don't remember the TV stations leaving them on all the time when I was a kid, thought they were on in the morning and then went away. Does anyone remember this? Also, was reading the article on the easy bake oven converting from the light bulb to a heating element and including some recommendation for parent participation? What is that? The light bulb in an easy bake oven is what made the oven and easy bake?? What is going on? 0 -
Don't worry Maureen, you are right the messages were only on in the morning for about 2 hours, then disappeared. And you are right on the easy bake oven, the light bulb did the cooking. I think this consistant snow is playing with our minds, cabin fever big time at my house. My one cat, Sophie, is running from window to window at 40 miles an hour, looking at the snow. She only tries to get out when the lawn is showing. Yesterday she could see some grass and was crying to go out, today no crying just dashing. We all deserve scrips. from our oncologists for a nice island vacation, perhaps a plea for Seasonal Affective Disorder.
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I'm with you for the cruise script. Cats are funny characters, my cat, Iris, tends to pace and act funny when a bad storm is coming. She was acting very impatient yesterday. Today just sleeping on any blanket she can find.
Yes, I could see grass yesterday too. I thought maybe we're on the upswing but anyone living in WNY should wait until St. Patrick's day to hope for warmer weather.
Bought a SUV last week and sold old one to my DD. I'm hoping it was a good move because I really liked the trailblazer. The Santa Fe is the first foreign car I've ever owned but better gas mileage so I took the plunge.
Maureen
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we got about 8 inches too, it isn't snowing now, I don't know if more is expected. I drive a Subura, had a Toyota before, both have been very good reliable cars. Fantastic in the snow, my Subura plows through anything and holds the road well when it's like this. And I feel like it's been like this for 40 days and 40 nights. Sophie tired herself out and went to bed finally. I think that sighting of grass yesterday got her all hoped up, but as you say can't depend on anything til at least St. Patrick's Day. My grandchildren's birthday is April 22nd (both born on the same day, a yr. apart) has been known to have sleety nasty weather. Everyone stay warm. Karen
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Hi All, Weird news today. Just got notified there is a coyote living on the golf course. They are suspecting a den of these animals are close by because of their habitat style (travel in packs etc..) We are now warned to keep small animals inside, no birdseed and keep garbage secure. I'm not sure what a coyote looks like? Last year we had a bear right across the street, roaming the neighborhoods, until they shot it. Some people complained that the police shot the bear, WTH is that? Wonder what they would've said if the bear hurt their animal or child? Love bears but have camped in the Adirondack yearly for years and I've seen what they can do. One time, campers thought it was funny to feed the bears and they crashed through the screened-in porch costing thousands of dollars in damage to their camp. They're cute but nasty fellows when hungry or angry. We're not really a rural area either, wonder what is happening?
Finally stopped snowing today and DH plowed the driveway, what a doll. I like the look of the Subaru (sp?) and they get rave reviews for safety, gas mileage and performance but I'm an SUV kinda girl. I haven't driven a car since my DD was about 18months. We bought vans for sports and then to the SUV Hubby is a truck guy which surprises all cause he is a suit and tie guy during the week. Might change if the price of gas keeps rising, we're up to $3.43/gallon at Kenyons (N.French & Transit)
Karen, Your grandchildren's birthday is 6 days before my DS birthday. He's going to be 18 this year. We had two big milestones, DD = 21 and DS = 18....boy do I feel old
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my friend lives in a very nice trailor park near GCC. Her neighbor warned her last week that a coyote had killed a cat behind her trailor. They are getting too close to residential areas, my friend has a mixed breed terrier and has to go outside at night with her now. She absolutely wouldn't be able to protect herself. Maureen, wasn't sure of the spelling of Subura either, I'll have to check the car when I go out.
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A terrier, she should try to train him on those grass pads they sell. Going out with a dog in this cold/snowy weather....I love my indoor cat. I am a huge dog lover but they're a lot of work. My DD has a dog and her BF has a dog so when they get together it's like having two toddlers in the house. I told her to leave the dog with BF until they get rid of these coyotes. There is a dog park almost across the street from the golf course/creek area. It is fenced in and DD and BF used to run the dogs all the time there after work which is nighttime, I think they'll take a break from the park for a while. Like mentioned in the earlier post, I wouldn't know the difference between a dog and a coyote from a distance. I'll just stay inside and cruise the boards, watch a good movie, spend time with DH and enjoy the evening.
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My DD wants me to get a dog and I would if I had a fenced in backyard. She has a friend who owns 2 rescued English Mastiffs, beautiful and huge. The male, Luther , had been abused and is terribly shy. Must weigh over 150 lbs., he kind of sidles over and lays his head on your knee with these big sad eyes. I am such a sucker for pets. There is a rescue Mastiff in Pittsburgh, her name is Layla, and I love that song by Eric Clapton, leila. I am so tempted, but my cat would be terrified by her. I tried to add another rescue cat and Sophie started spraying, so Mellow moved downstairs to my daughters. And walking her in this terrific winter weather is not very appealing. I just have to keep talking myself out of it. Karen p.s. Subaru is the correct spelling, had to check the car.
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Hi everyone. getting ready to send my daughter backto school after a week of for winter break . lots of clothes to wash. Thank goodness just need to clean the uniform though!!
We have a small dog - so really glad to hear about the coyote warning. I'll have to watch her closely outside.
Maureen- my parents had one run down their street once. This one was low to the ground, kinda shaped like a german shepard. long tail - very scruffy looking.
My husband is looking for a new car - so now I am going to have to check out the Subaru you are all mentioning. I really hate buying new cars. I never feel like I got a good deal!
Karen- the Mastiffs look so darn cute. Big dogs though.. may saying is big dog big poop - so my daughter opted thankfully for a small one!! My girlfriend owns a pet website called tripswithpets.com they sell those pads. Great site for dog lovers as they have a huge list of pet friendly hotels.!
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Karen, the dogs sound beautiful. I'm sure if they've been rescued they've been through a lot and very deserving of a great life. My cat is the exact opposite concerning dogs. She terrifies most dogs. Jumps on their head, hisses, and actually bit my DD boyfriends dog's ear while he was sleeping. She doesn't realize that 100+ lbs dog would eat her (~10lbs) as an appetizer. He just cried out and ran away. I'm so glad DD boyfriend was right there and had control of the dog. The mere action of jumping up sent the cat flying. My cat is a snot, very moody and stuck-up (LOL). Why talk yourself out of the idea? Is it possible to have the dog for a visit to see your cat's reaction?
Bevin: I wore a uniform too, all the way to high school. I think they're a good idea and helps with peer pressure and getting ready in the AM. Thanks for the website for pets, will check out. Where we camp, they require you board dogs and can be expensive. Thanks for the heads up identifying physical characteristics of a coyote, I'll keep my eyes open. I like the Subaru, nice car, I'd buy it. The manufacturer of that type of car sells a nice SUV, called a Forrester maybe? We looked when we were shopping for the most recent SUV, expensive but really nice. We ended up with the Santa Fe. I loved my Trailblazer but Chevy no longer manufactures that style.
Off to #11 tomorrow, will be so glad when chemo is over, it's starting to take a toll. I cleaned the family room today and I'm ready for bed but I couldn't stand the dust anymore. I'll just take it one day at a time. Tues, I meet with the RO so I'll keep everyone posted.
Take care,
Maureen
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Maureen- good luck tomorrow. Hope its an easy session!
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Maureen, getting down to the last 2 aren't you? Hope it goes easy on you, no cleaning for the next few days, pamper yourself. You were supposed to discourage me, not give me a really great idea!! I'll ask Laura to bring Luther over this week, to see what happens. Better bring Lilly over too, Luther might get too scared, if Sophie freaks out. I bet what happened at your house, happens here. Bevin, I really love my Subaru, it's reliable, sturdy and plows through everything -and- it's a 1998. No major repairs, has 137,000 miles on it. Karen
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Just checking in. I had #11 today and all seemed okay. Took two bags of fluid to wake me up today. Had to come home and call into a meeting right away. Was so tired, I almost fell asleep during the hour long call in (LOL) When I didn't answer a question, they thought I left the phone on mute
Off to RO tomorrow to find out my fate of radiation: start dates, frequency, dosage etc. I have a list of questions to ask him for information. I'm just at the learning stage and tend to be detail oriented when learning new information. Wish me luck!Bevin/Karen: FYI, I just read on-line the Subaru is one of the top ten resale cars according to blue book value over ten year period.
Maureen
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Maureen, I was just checking in on you. Today is over, now you can put your body on mute and just relax with DH . I am not surprised that they retain their book value, I know a friend was searching for a hubcap (that I lost) in a used car dump and could not find one Subaru. Finally found one on Craig's List from a private party in Rochester. They are really well built cars, I've been bragging on it, have to remember to knock on wood. Karen p.s. hope all goes well tomorrow.
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Wish me luck. I'll post when I get home, nice sunny day and on steroid high, I think i'll do something fun, walk the mall with my purex, take a ride in the car, enjoy the day. The next step to my journey is starting soon and I want to start looking for a new normal. Does anyone have any suggestions for a counselor in the WNY area. I'm thinking I'd like to talk to someone. I looked through my insurance and she's booked till end of year, on cancellation list but still searching.
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Maureen, my therapist knows a woman in Williamsville, I'll check with him and get her name for you. Mine is fantastic, I drive to Rochester to see him, now once a month. He had been right here in Batavia, when he moved it was my choice togo to Rochester or to Williamsville, I chose Rochester because I trusted him and Rochester is closer. I find it so valuable to do talk therapy, he was my first call when my godmother passed away. He "knew" her since I talked about her so much and really enjoyed our little adventures and how loving and realistic she was. She had always been the most liberal of my relatives, so you could talk about anything and she didn't mince words. You will be fine on this leg of your journey, the lab techs at Batavia Oncology were fantastic to work with. They will be the ones you see everyday. I saw the RO once a week for an exam and to dicuss any SE. My only SE was a tiredness towards the end but you experience a whole new level of fatigue from chemo. I did get a radiation burn, so be sure to use the lotions they give you religiously. I have heard on other threads that coconut oil and pure aloe from a plant, or health food store (make sure it is pure no additives at all). work well. Karen
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Back from the RO. I will 28 tx with 5 boosts=33 total, Monday-Friday starting end of March. He seemed very positive and a 13 minute ride from my house. That will be nice. I liked him and he seemed to think this will go well. They will work around my work schedule and he's sending me to a lymphadema specialist to avoid that problem. I go for my simulation next week. Said that will take a good hr. or two and I'm okay with that. Think things will go well, feeling good about the next leg of this journey.
Thanks Karen, please PM me the name of your therapist, I'd love to find someone with a good rep.Maureen
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guess what, it's snowing. I am so over this, it feels like an insult. Karen
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Dear Maureen - I hope radiation goes well. Just make sure you moisturize right after treatment and right before bed. I used some great stuff the clinic gave me. It worked really well. I'll send you a note with the name of it. I know you can buy it at the medical supply store on bailey but I forgot the name of the lotion. I know I have some here so will find it and pass it along. So glad its a close trip and the worst of the weather is probably gone. You'll have an easy drive each day.
Karen- I know - the snow is tiring.Now its cold At least the sun shines.. oops dont know how my text got big, but now I cant fix it ..
Kindone - hope ou are well.
Who will go to the St Patty's day parade??? Always a fun time in Buffalo
Bevin
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Maureen - good thoughts to you as you start your next stage of treatment. It sure is quite a journey, isn't it? Tomorrow I travel to Roswell for my annual mammo. A bit of scanxiety, but I'm viewing it as an opportunity to go out to lunch and do a little shopping in Buffalo.
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Good Luck Ellie - I hope everything is good news tomorrow. Prayers sent your way!!
Bevin
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Karen, saw the snow this AM and seriously thought about increasing Vitamin D or taking antidepressants. I'm sick of this winter and want it over. How are you feeling? Hope all is well with family and you're working through the tough times without your godmother. Hope the grand-kids are well and no more snow days!!
Bevin, Thanks for the good wishes. I'm nervous about finishing the chemo and starting the rads but it's a journey I want to finish and win. Hoping to hear good news about your lung issue? Doc said creams if I need them. I go for the simulation next week and will ask again. I've never tanned, easily burned due to Irish heritage and want to prevent issues rather than react when they happen. BTW, drive is about 12-15 minutes from my house, good thing when I need to go everyday. I was required to go to the St. Patty's Parade every year when my parents were alive (LOL) not-negotiable. I'll wait for Don Paul's weather report before that decision is made
Will have corned beef and cabbage as the whole family loves that meal. My mom made every year since I can remember. As DD and DS say: "It's tradition!!" DD boyfriend is Irish too and he always make sure he's invited for that dinner. ElleD: GOOD LUCK tomorrow, remember, we are all holding your cyber hand. Please let us know the good news. We're praying for you. Enjoy shopping in Buffalo, do you go on Elmwood or stay to the main stores?
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ElleD, GOOD LUCK TOMORROW, I am saying a pray for you I know how scary it can be. My daughter works a Roswell in the xray dept. Keep in touch,
Hi ladies, just had my Tumor marker done and they are normal, Thank God.
Spring is around the corner.
Maureen, Good luck with Rads, I didn't find it difficult at all and my skin held up pretty good. I am glad it's close to your home, that helps.
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Hi Betty, Was just thinking we haven't heard from you in a while. How are things going? Did your sister get results or is that this week? SO GLAD to hear your tumor markers are normal, doing the happy dance with you. Glad to hear the rads were easier than chemo for women. I didn't like the chemo at all, I just want bc to go away and NEVER COME BACK!!!
Maureen
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my grandchildren are trading flu days, gs sick over wked, gd took her turn today and probably tomorrow - respiratory kind, slight fever, coughing and sneezing. Trip to walmart for Theraflu et al. I've had my sad moments and tears, more this week than last for some reason. I've been talking about the happy or silly moments more. I may start journaling, I did that with the BC and it helped. Have had 2 20 min. sessions on the bike each day, can now keep it in the red zone for full 20 min. couldn't have done that before I quit smoking. So, a great thing from quiting, it's been a month and a half. Karen p.s. Maureen, I had a 5 min. ride, it makes it supernice since it is every day.
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EllenD: How did the scan go? Did you get shopping done?
Karen, sorry kids are sick. It's going around everywhere. Journaling is a good idea. I have this little list I make everyday called things I am grateful for and somedays I was grateful for waking up, it wasn't snowing etc...but it got me through the day.
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Hi all,
Thanks so much for the positive words. My mammo was clear! Won't see Roswell for another year, if things go according to plan. DH and I went to the Melting Pot after and had a late lunch of cheese fondue, salads, and CHOCOLATE - a wonderful way to celebrate. Walked around the mall a bit and did a little impulse shopping. And the 2 hour ride home was accomplished with no snow! All in all an excellent day.
Maureen, have you heard about the book of 365 days of thank yous? I'm not sure that's the name, but it was written by a guy who wrote a thank you note to someone every day. It talks about how it changed his life and the lives of those around him. Kind of like your "grateful list". I think maybe that's something I should do too.
Hope you all have a good night.
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Ellie, so glad you don't have tests till next year, can't wait til I hear such magical words. Maureen, kids are better, I have it now, that happened when I was a pre-school teacher. The kids would have it one week, I would follow right behind them. If I count right you have one more chemo to go, or are you finished? If so, we shoud be doing a happy dance for you. Karen p.s. good idea to do right at the beginning of the day, I think I'll try to journal then, start the day off better with good memories.
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Karen, One more chemo to go!! Monday. Still trying to get ideas on getting a little something for the chemo nurses who were so nice and patient through this journey. Any ideas? Sorry your not feeling well
Boy, you're having a tough time lately. EllieD, never been to the Melting Pot, how was the food? I've never heard of that book, but will take a trip to Barnes and Noble and have a look, thanks for the suggestion, sound like a really good book. Always looking for good books, I love to read. DH has a kindle that he always takes on business and loves it. He's more of a sci-fi or classical book type of guy. I like a good romance or mystery.
Really busy at work today, not used to being so busy, I'm pooped. Wonder if I'll ever have energy back again and have to get up early tomorrow to take DH truck to the shop. Came home from out of town and the window is weird. Hoping it's nothing but still have to make the trip. Was looking forward to getting DS off to school and taking it easy. Friday is usually a really tired, bone pain day and it's suppose to sleet tomorrow.
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Hi Ladies, Its cold and tomorrow is suppose to be a mess for the AM driving. Welcome to WNY.
Karen hope the grand kids are getting better, never a daul moment.
Elle, Great news, now you can relax.
Maureen, my sister doesn't need chemo, Thank God.
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The Melting Pot was really good, but rather expensive. It was fun to have the fondue pot in the middle of the table and have the server prepare it right there.
When I finished chemo I brought the nurses a platter of fancy muffins I baked. They seemed to enjoy it. Take heart - your energy will return. Hope your Friday is a good one.
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Betty, GREAT nEWS with your sister. so happy for her. We both know the bullet she dodged avoiding the chemo. Was her onco score low?
EllieD, The restaurant sounds wonderful. When I get my taste buds back, I'll add to the list of things to do. Good idea taking the muffins for last treatment. Need to keep DS and DD away from the treats though, I'll hide them in the basement. I make banana bread with dark chocolate chips to take to the chemo nurses and the bread never made it to treatment, they ate before I could take it (LOL). Even made three loaves one time and they finished off in two days.
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YUM - Now I am hungy for Banana bread w chocolate chips!
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Easy to make from scratch too. Here's recipe:
1 cup of sugar
1/2 cup of butter
2 eggs (take out of fridge at start to take chill off)
1 tsp. vanilla extract
1 1/2 cups of mashed really ripe bananas
2 cups of flour
1 tsp. baking soda
1/2 tsp. salt
~ 1 cup of Hershey's dark chocolate chips
Preheat oven to 325F. Grease and flour a 9 in. loaf pan. Gather 3 mixing bowls; 1 for bananas, 1 for wet ingredients, 1 dry ingredients. Make sure the wet ingredient bowl is the largest bowl because all other ingredients get added to the bowl. Peel and mash bananas in a bowl (2-3 medium sized bananas yields 1 1/2 cup) and set aside. In the wet ingredient bowl, Cream together butter and sugar (takes a while using Kitchen Aid mixer) until creamy Takes about 5 minutes. Add eggs one at a time till well mixed. Add vanilla extract. In dry ingredient bowl combine flour, baking soda and salt till mixed. Add the dry ingredients to the the wet ingredients a little at a time until well mixed. Fold in mashed bananas then fold in chocolate chips. Bake in oven for about 1 hour. I bake for 15 minutes, tent with foil for 30 minutes, remove foil for last 10-15 minutes or until a toothpick inserted in the middle comes out clean. Cool on rack for 15 minutes and then just pop out of pan. You can double or triple ingredients and these loaves freeze well too. (need to keep from kids to get to freezer)
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How are you feeling Bevin?
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Maureen - Ok, I think these are going to be the weekend project. The recipe sounds delicious. Thank you for posting it!!
So I saw the Onco today. He wants to do a 'eyes to toes" aka full body Pet scan. Felt the results of the CATS scan warranted looking closer and seeing if they can definitively find out what the lesion is. Or at least get more information. So that is scheduled for Tuesday at Windsong.
A little nervous, but glad to be going. Depending on those results, I may seek a second opinion.
Anyway - I heard there was a mardi gra parade this weekend, Does anyone know anything about that? is it child friendly or for the drinking crowd?
Betty - so glad to hear about your sister. I hope her spirits are up and she feels well.
Ellie - I have been to the Melting Pot too. Loved it there. A lot of fun. Especially the chocolate Fondue!! YUMMM
Hugs
Bevin
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Hi Bevin, PET scan will figure out if lesion is concern or not? Yep, depending on the results, I'd get a second opinion. Is it too small to biopsy? Can they just watch for a few months? I will pray for you. Remember, don't worry unless there's a reason for worry. Easier said than done, I know. This damn cancer, I hate it. So sorry you are going through this crap.
Don't know anything about a mardi gras parade?? where did you hear about it? I'm guessing it would be more of an adult type thing.
Maureen
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Hi Maureen- It is 6.7cm by 2cm. in the upper and middle lobe. I dont know how thick it was. They didnt really say the PET scan would tell cancer or no cancer. but it can tell you probably malignancy vs something to watch, which is pretty much what we know from the CAT scan. Both Onco and Pulmonary said they dont like to biospy lung as it's a bit of a difficult surgery with potential issues like puncture etc.
I am a bit worried. But on pos side, they are ordering the PET so see if they can gain more info. Next Cat scan after the PET on Tuesday is scheduled in 4 weeks and then 4 mos. Onco said less than 5% of BC patients get fibrosis from pneumonitis from radiation... rediculous. My % chance of distant metastasis and reoccurrence (according to Onco test) is higher than my chance of getting radiation scarring.
I heard about the mardi gras from a girlfriend.I am not sure where she saw it advertised. Maybe I'll google it or check out what 2 do on channel 2.
How are you feeling?. I hope the post chemo was a bit easier this last time and I hope you're not feeling to crappy. Will give you a call this weekend. I'll send my cell number on PM so you have it. It displays as my work company so you'll likely not pick up!! I'll also send you the name of the therapist I used. I found it very helpful. I was going through alot with family and other issues when diagnosed and I became a mess. I found talking to this women was really helpful. Great coping tips.
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Hi Bevin, a full body PET scan should give a lot of good information and you are not having to wait long to have it. You'll be in my thoughts on Tuesday. I was on another site this evening and there was a college student who might have to come home from Colorado to seek treatment at Roswell. I gave her the name of our thread in case she comes back to WNY. Her name is snowlady, definitely from the Buffalo area. Karen
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Bevin, You will be in my prayes for Tuesday. I am sorry you have to go through this.
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Oh thanks Kindone, ... love your screen name!
I am sure its fine. I am glad they're doing more to try and detrmine exactly what they're looking at. How are you feeling? Going to the So Buffalo St Patty's day parade or the one on Deleware. I hope its good weather for both. I am a fair weather fan of both! So rain or super cold weather will keep me homw! My daughter loves the "old" original parade as they throw a TON of candy!!
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Hi Bevin, Understand the path docs are taking with your care. It's a common sense approach and really smart. If it's pneumocytitis (sp?), it is 100% curable with steroids which is good news. Thanks for the therapist name, I know about family crisis and bc dx. wreaks havoc with your mind. Downtown is a haul for me but I'd like to speak with her for recommendation.
Chemo is going okay but taking toll. Having bone pain, just achy. Out and about today and got really tired so I can tell the chemo is starting to get to me. Glad I have one more to go. Had to take DH truck in today, window was weird. Can't help but wonder if someone tried to gain access to the truck at the airport. It's fixed now and we move on.
Karen, we'll watch for the snowlady, hope all is okay with her. We'd welcome her on this site even if she didn't come back to Buffalo. Once a WNY'er always a WNY'er
How are you doing? Did you get over the flu? Hi kindone!!
I'm feeling like corned beef and cabbage. Have a good night ladies.
Maureen
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Maureen, feeling much better, it did not last long at all. Sorry you are achey, tomorrow with all the rain you can just R&R, Sunday also since we look to be getting snow. The temperature will be more seasonable thank goodness. Will you be starting AI before you start rads or after? I started the week after radiation, the RO had had a client that burned very easily while taking rads, so felt it was better to wait to start the AI. My therapist will be calling me on Monday with the therapist's name and phone number. I believe she is in Williamville. Karen
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Thanks Karen. Glad you are feeling better. Onc hasn't said anything about the AI and I'm not either!! I'll wait until something is said.
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Karen- so glad you're feeling better. Wow - I cant imagine being a college student going through this. If Snowlady is from the area hope she joines us here. It's good you were able ot reach out to her.
Thanks for your prayers. I am sure it will be fine but will let everyone know what they say.
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Hi Bevin, is today not the very definition of dreary and bonus: snow tomorrow! I did see in the long range forecast, 2 days of sunshine. I, too, hope snowlady will join us here, I can't imagine going through that diagnosis, being without family and without insurance. She spoke of returning home and contacting Roswell. I had a period of time that I thought I'd be without insurance and the whole time was like your worst nightmare. It was definitely a period of nothing more would fit on my plate, at the last minute I was able to get Healthy New York, Univera insurance and it has been a lifesaver. I even got to keep my own breast team
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Bevin, will be thinking of you on Tues. Hope It's all good news. I am supposed to fly out of Buffalo tomorrow at 7 a.m. Let's hope its not too snowy. I'm going to visit my sister in Florida. I hate to fly.
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EllieD, Have fun in FL. Warmer than here!!
Hi Karen, hope the weather is being good to you. It's been raining since I woke up. The creek is to the road. hope it doesn't flood.
I spent the day making muffins for my LAST chemo, yes, I'm excited. I made raspberry cheesecake, banana chocolate and blueberry...yes I'm hiding from DD and DS or they won't be here by Monday. I made xtra for them so hopefully the onc nurses will last until Monday.
Maureen
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Hi everyone,
My name is Christine, I'm from Jamestown. I've been in Colorado now for almost six years and recently started college. I have a lump on my breast and I've been having trouble finding a doctor to biopsy. I saw one through the Komen Grant and it was a horrible experience, and he wouldn't biopsy. I actually have two lumps now, found the second one about a week ago. I think I might have to come back if my family can get me into a doctor there. I have no insurance, I'm getting exhausted looking for resources, I finally told my father, he will pay anything he can for me to get what I need. Do any of you know a good doctor that will take self pay patients? My mom has a call into a social worker at Roswell. Hopefully I will hear something soon.
Karen, thanks for the invite.
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Christine, I'm so glad you found your way to us. I am in Batavia but go to Rochester for treatment. You are in the worst phase of this journey right now, finding the lump(s) but not knowing your status. Plus you have the added worry of no insurance, I thought I was in that place for a while and it is tortuous. I qualified for Healthy New York, Univera insurance, due to my lack of financial resources. Have you tried to get insurance through Colorado Social Services? Most states also have a high risk pool for those with no insurance for over 6 mos. If you do decide to come back to WNY I will PM you with the name of my Dr. (he is a love) and his phone number. The other ladies will be on soon with more information for you. I see you are a night owl too. I am usually up at least once during the night, I am glad I was able to greet you. You are not alone anymore. Karen
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Hi Christine, Welcome to the site. As Karen mentioned, this is the worst part of the journey. Any hospital is required to treat, regardless of your ability to pay. Not sure my doc's accept ability to pay however, I can IM you names, just let me know. Did the doc in CO document the reason he won't do the biopsy? Did you have a mammogram/MRI to understand the nature of the lumps, fluid vs. solid, spiculated vs. symmetrical? I'd make sure you have copies of the records to work with docs locally. Remember, lumps can be B9 and I hope/pray this is your situation. My first thought, your not working, do you qualify for medicare? The social workers at Roswell can be very helpful, glad your mom pursued. Can you call social security/welfare office in CO and ask for direction? Good luck and please keep us posted on your progress. Post often, we're here to help.
Maureen
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Hi Christine - I am so glad you found us here. As I understand Roswell does take cases of no Insurance as they are supported by the government. I am not sure where Jamestown is as compared to Buffalo, but Strong Memorial in Rochester is a teaching hospital and may be a good choice too dependent on your location. I have nothing else to offer aside from what the ladies already said, I do wish you well. Let us know how you're doing and if you end up coming back to WNY.
Hopefully since you are so young, these are just cysts and nothing cancer related. I will add my prayers.
Bevin
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Maureen, last teatment tomorrow!!!!!!!!!!!!!! Yeah!!!!!!!! you have made it, hope DH,DD,and DS did not find the hidden cache of muffins. One more treatment, can you believe it. You are such a trooper to have gone through all of this and still find time to offer help to another person. You too Bevin, we are quite the group of ladies. love to you Karen
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Maureen, Congratulations on your last chemo, I know you are going to miss the great staff at chemo. They are all so sweet, When do you start raddation?
Bevin, I am praying for you.
Hi Karen
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Thanks for the well wishes Betty and Karen. I'm so excited and scared at the same time. So far, so good with the muffins. I have them hidden in a drawer in the fridge and kept vigil today when DD, DH and DS and his friends came home looking for food. Fed them all dinner, turkey tenderloin and gave them a muffin for dessert. I can't taste them but said they are good. DD likes the banana bread better than muffins. I have my simulation March 14th and start radiation 21st. Every day 33X. I finally feel like there's light at the end of the tunnel and it's not an oncoming train (LOL). I'll post tomorrow or Tuesday and let everyone know how it went. Hang on ladies, spring is coming, I can feel it. Daylight savings time, lent, etc...
Maureen
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Hi Betty, are you as tired of this dreary weather as I am, feels like it's lasting forever. I noticed another thread called something like Women in the Northeast. They too were complaining about the weather but were in Maine and New Hampshire. I think they really got it this winter, as so many of the storms went right along the coastline. Most of our snow melted on Sat. with the rain, but back today. Karen
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Maureen, congraulations your done!!!
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hi all, it's sunny and Maureen is finished with chemo, what a grand day! Karen
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I AM DONE!!! Finished my final chemo tx. today. The chemo nurses sang to me and presented me with a certificate. Then my DD had a really nice surprise party for me when I got home. Pink balloons and pink breast cancer insignias all over the house (LOL) Even the NP came and spoke with me, she was so nice and compassionate, I think we've turned the corner with our relationship. A really smart woman. Hoping it's all uphill from here. I'm so excited, not feeling the greatest but generally relieved, feeling like I reached the top of Mound Everest and going down the other side. Yeah!!!!
Thank you everyone for the kind wishes. I'm nervous but excited all at the same time. Yes, spring is coming. That's been my benchmark for recovery, spring. This week is significant for me, I finished chemo, my dad died and was buried 18 years ago. (in his 50's on a stair climber, remember cause I was 81/2 mo. pregnant with my DS) and my mom's birthday (she died of pancreatic ca 16 months ago). Wonder if there's some kind of karma thing with this week? I should plan a vacation during this week to keep infusing good memories into this week.
Love,
Maureen
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HI Maureen - so glad you are done! You'll be finished with all this tx soon and will be able to enjoy summer. I am glad you're breaking the Karma as I am certain you will win the war!! I'm super sad to hear of your parents. This time of year must be so hard on you.
Everyone : Thanks so much for your prayers and well wishes. I have to admit, I am a bit nervous today. Have the uncomfortable feeling. I am glad tomorrow is coming.
Bevin
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Bevin, GOOD LUCK tomorrow, sending ((((((((((((((cyber hugs)))))))))))))) your way. Please let us know right away how things went. When will you get the results?
Maureen
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Maureen, what a wondeful day it was, you even got sunshine!!!!!!!!! I'm so thrilled that you are finished, just get through any icky days this week, you are on the homestretch now. Bevin, sending thoughts and prayers your way for good news tommorow. Will be waiting to hear from you. Karen
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Hi Maureen - My onco said they should have them the next day or day after. My appt wont be over till the end of the day so I assume sometime Thursday.
Please let me know if you need anything. I am happy to help in anyway. Hopeful this last chemo is not as hard on you.
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Thanks Karen/Bev~~ all uphill from here, Day 3-5 seem to be the "iffy" days, so Wed-Fri will tell. Right now I'm on the steroid high, usually lasts for two days and then onto recovery. The office gave me a book too, life after cancer. I looked at the book and thought "oh yeah" after cancer.
Bevin, so nice of you to offer support. I'm okay. Please concentrate on getting through the next couple of days with good thought, good prayers, and good wishes. Everyone is rooting for good news.
Love,
Maureen
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Hi Bevin, Just sending good thoughts to you today. Let us know how you made out.
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Hi ladies- home and done w PET/CT , now waiting. Thank you everyone for your kindness and positive energy. I'll update you when I know more.
Maureen - glad you're still on the steroid high. .. be good if that can get you through on this final round!
YEAHHH its sunny and warm.
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bevin, now comes the waiting, hopefully it will be short with good news. If todays weather is an indicator it will be good news. I can surely stand this type of weather, warm and sunny, for the whole week. I don't think the weather forecast agrees. Sending you calm, quiet thoughts. Karen
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Hi Everyone, still feeling okay, sad the Sabres lost, they're our only hope for a big win. I think they're in 8th place. My DS will be angry because he accuses me of causing the team to lose when I watch the game. Big fan of hockey and always peek. Tonight I watched the game and yes, they lost
Bevin, we'll keep praying until we hear good news.
Karen, how are you doing these days?
Laura08, How is Sadie?
Hi Kindone/EllieD, haven't heard from you on the thread, what's new?
Beautiful day today, enjoyed the sun, maybe even made my Vitamin D level rise a bit LOL
Good night
Maureen
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Hi Maureen, missing the sun today, but in the long range forecast there are 3 sunny days coming. Maybe it'll just creep up on us (spring, that is). Just to catch up, my DGD and Emmie are both seeing their counselors at school, my DGD's said she is very resourceful and intuitive. She has been in contact with my DD. Last week, my DD was working late, so I had the door to my flat open and heard really loud sobbing and crying. I ran downstairs and it was Emmie, we got her settled down to where she could talk to us, the 22 yr. old sister who moved in after Mom passed, has been abusing Emmie verbally and that night pushed Emmie's face into her pillow so she could not breathe. Emmie strugled away from her and ran here to our house. Emmie had a mark on her back from where sister hit her. I called the police after seeing the mark, they spoke with both Emmie and the sister, who they had had calls to that house before. They let Emmie get her clothes and brought her back here. The dad was at work, so they briefed him over the phone and made an appt. to see him in the morning. Child Protective Services was called in to begin an investigation. The sister apparently is bipoar and off her meds., CPS will mandate counseling for her and a psychiatric evaluation to make sure she stays on her meds, as well as drop in visits to be sure Emmie is safe. So all the right authorities are on board, can you imagine just loosing your mom and having an evil sister abusing you! Emmie will see her counselor at school twice a week or as needed, our house has been designated a safe house for her to come to. And here I thought the sister moving in would make it easier on Emmie. There has not been any trouble since that night. One good thing is my grandchildren got to see the police as the authorities that make situations safe. I have been writing in my journal about my godmother and it has helped me to record the good and silly things we did and realize her quality of life was not good. She had been telling my cousin and I that and we were refusing to listen because we were not ready to lose her. That has helped me immensely, I will be going to Pa. in a few weeks to see my cousin and imagine that first trip will be difficult, but he and I will muddle through it together. I am 6& 1/2 weeks nonsmoking and I am amazed I did it, once you do cancer you can do everything!! I got a stationary bike and am riding it for an hour a day in 20 min. sessions in order to take off some of the weight I have put on with the AI's and quiting smoking. The people on the Stop Smoking thread are really nice and very supportive, so they are there for you whenever you are ready. I don't think I ever met not nice people on BC.org. So, that's what I've been up to, by my estimation this could be a tough day for you, Wed.-Fri., I think you said. If so cosy up with a good book, it isn't a nice day to be outside anyway. Karen
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Hi Karen, WTH, I feel so sorry for that family. Sounds like the sister needs some help. Let's pray she gets the help she needs. A lot on her, home, family and she lost her mother too. Taking it out on Emmie is no way to deal with grief and glad that was recognized. What a difficult situation. This cancer screws with everything and I'm sick of it all!!! Hoping Emmie is okay and will realize her sister might be acting out trying to deal with her grief. Hoping she's in a safe place and getting the help they need. Poor dad must be beside himself, dealing with loss of his wife and the aftermath of grief. WoW you're doing great with your quitting smoking, you should be very proud of yourself. especially through the loss of your godmother. On the bike 20 minutes a day is great. Yep, these next couple of days are really busy at work and not feeling the greatest, just tired. Had a lot of meetings today and with the weather, I think people get cranky.
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Hi Ladies, I am here in the rain, I read your posts every night. Bevin I am praying for you. Maureen and Karen can't wait to meet you ladies in the Spring.
Maureen, I an afraid for the Sabers, We are big fan also.
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Hi Kindone, glad to hear your on line and keeping in touch. Yes, I'm watching the rain too. Boy, we are getting our share of rain today. It's suppose to be this way till Saturday. I'm not far from Tonawanda Creek and Black creek, so we'll keep an eye on the water. The main road to our street was full of water last weekend. The deer have no where to go, so they eat all of our bushes (LOL). If it's not the coyotes chasing them out of their home, it's the water.
I'm keeping my fingers crossed for the Sabres, I'd like to see them go all the way. They've come so close. DH is a Bills fan, now that's hopeless
Off to watch survivor.
Bevin: sending prayers to you tonight. Just wanted you to know we're here thinking of you
Maureen
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kindone, I am a Sabre's fan also, and like you Maureen if they win and I didn't watch, then I am afraid to watch the next for fear I will jinx them. I think Buffalo sports fans are just hungering for a winning team from any sport. Would love to see the Sabres do it, the town would go wild. Hope tomorrow is less tiring for you Maureen. Karen
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Hi All,
I have just come upon this thread. My name is Cheryl and I live in Tonawanda. As with all of you I am sick of this cold and wet weather. Can't wait until spring and warm weather.
Maureen, so happy you have finished chemo.
Bevin, hope you have good news soon.
It will be very nice to meet everyone in the Spring.
(((((HUGS)))))
Heymoose (Cheryl)
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Hi Cheryl, great screenname
Glad you could join the thread but as everyone says, not the best circumstances. Looking forward to doing the spring get together too. Are you a Sabres fan too? FYI, Some of the girls, including me are in active tx. and need to get through these before enjoying some time with all the amazing women on this threadUpdate, today is not one of the better days, feeling kind of yucky bone pain, nose thing, etc.... Tried to get through work today and just gave up and went offline. I'm tired. Wonder how long the se from the last one will go away for good. Can't complain, the se aren't like A/C. Rain doesn't help the mood, but I opened the windows (52F) just to get some fresh air in the house. Walked around the yard looking for crocus to peek out of the ground but nothing yet.
DH is flying home tonight, looking like a no-go to get home, guessing his flight will be cancelled as the weather channel has dark green and thunderstorm warnings for his flight home. I'll keep all posted. At least it's not snow. I'm sick of the snow, and want it to all go away.
Bevin, still praying, please let us know you are okay? (((((((((hugs & love)))))))))))))
Maureen
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HI everyone, Heard from the Onco office late today. Thank you thank you thank you for all your prayers and well wishes. Welcome Cheryl!!
I did get the results from the PET. Good news, is no other uptake shown aside from the lung lesion. The SUV level on that area was 3.5 and as I understand anything over 2 is concerning for a potential mets situation. However, the radiologist who read the PET stated he thought it was likely consistent with fibrosis from the radition. I do have to have another PET in 3 months to see what any changes it might show.
So, not sure how I feel. I will see the pulmonologist next week, so he will see the results from the PET and hopefully concur with the radiologist opinion. Either way- good news, no other areas of concern lit up. Difficult for me to feel confident though this is not something to worry about from a mets situation. I wish I could worry less. I am sure in 3 mos, when no change is seen I will feel better
Depending on how confident the pulmonary doctor feels after looking at the slides, I may get a second opinion. what would you guys do? I dont want to look for trouble, but I dont want to have someone miss it either.
I'd love your opinions.
xxoxo
Bevin
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Hi Bevin, Sounds like okay news for now but wait to see what the pulmo guy interprets data. I PM'd you with some ?? I'd ask him. Gotta run, I'll get on the thread later.
Good Morning/Afternoon ladies, enjoying the weather
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Bevin, good news on the PET scan. You have asked a really tough question. I would wait to hear what the pulmonary doctor has to say. I would then do some research and make a educated decision. The pulmonary doctor may be in agreement w/ the radiologist and then wait the 3 months for the next PET scan to show no change.
I wish you good luck when you see the doctor.
Maureen, I am a Sabres fan.
I am coming up on 3 years of being a survivor. I went through a bilateral mastectomy w/ immediate reconstruction. I did not have to have chemo or radiation and turned down tamoxifin. My reconstruction went great and I feel really good.
If I may be able to help anyone while they are going through BC just send me a pm.
Well off to the couch to take a nap, trying to get over this cold.
(((((HUGS)))))
Cheryl
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Hi bevin, it's mixed news isn't it, nothing major going on but waiting on further testing. How many weeks of radiation did you have? The radiologist is saying it is fibrosis, is this the same radiologist who gave you the radiation treatment, I don't remember fibrosis even being mentiontioned by my RO when he was explaining the possible side effects. I didn't find this site until I was finished with all my treatment and so did not have access to all the fantastic knowledge my cyber sisters provide. The skin on my radiated breast is harder and has less sensation and is still darker than my R breast. Did you experience this? I have an appt. with my BS on Monday and want to ask all these questions plus have the benefit of all you women's experiences to ask my questions. I did have two infected seromas on the L side which were treated with two courses of antibiotics, maybe that had something to do with the texture and loss of sensation in that breast? Asking for all you ladies prayers and thoughts for that appt. on Mon. I defintely am having some anxiety about it, even though I know the anxiety is not profitable in the least Karen p.s. what day do you see the pulmonalogist?
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Welcome Cheryl, I have many relatives in the Tonawanda area. I am in Batavia and like you cannot wait till we all get together, It is such a wonderful group of women and I'm so glad Maureenn started this site. I too am a Sabres fan and am now convinced since I didn't watch either of the two games they won, now cannot watch any games for fear I will bring bad luck. It would be such a moral booster for this entire area if we won, I hate to even say it, will knock on wood. Karen
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Hi, back on after finishing meetings today.
Bevin, hope you are well. If I think of anymore ??, I'll PM you or post on this thread. You must be exhausted after all that anxiety of scans, waiting etc... hoping your weekend is restful and quiet.
Cheryl, yeah!!! another Sabres fan. Glad you joined us. So glad you dodged the chemo/rads bullet. The surgery is stressful enough. Glad you came through the mx okay. Everything is upward from the surgery. It's just so hard. I had lumpectomy because they didn't realize the size of the tumor until they got in there. If they did, I'd have the mx too. I hear the recovery is difficult and it sounds like you championed through. I'm so happy for you. I just finished chemo and will be starting rads soon. Where did you have tx? I heard tamox is no fun but many women report having no se at all. I think it's an individual thing. I will be having AI's after tx. not sure what the difference, but I guess I'll find out.
Hi Karen, Good luck on your appt. on Monday. I'll be praying for you.. I hope all goes well and good reports are in your future. Please let us know how you make out at docs. Hope the weather holds for you too!!!
When is the next Sabres game? tonight? I'm ashamed to say, not sure. I've been keeping an eye on the Japan quake, tsunami and radioactive plant. God help these people who live in Japan. Hope there's no big waves on the west coast either. I heard Hawaii did okay, 6 ft. waves. To me that's still really high. Praying for their families and lives.
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I believe they play tomorrow night against Toronto. I've been watching the news also, really kind off puts our snowstorms in perspective, I'd rather muddle through a winter, then face what other state's and country's do. Karen
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Agreed Karen. Hope the Sabres win tomorrow night. It was snowing outside, really windy, couldn't see very far and thought, oh well, I'm in a warm house, that's still standing, food in the fridge, family is safe, the snow will stop eventually. Still trying to get in touch with brother-in-law, they live in KY and watching their weather. They were flooding two weeks ago, now things look really bad. I'll keep trying. Have a good night ladies, I'll post tomorrow, tired today.
Maureen
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sleep well Maureen, you had your last tired week! Karen
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Thanks Karen, saying prayers for Japan. They've been so supportive of the US through the years. It's heartbreaking to watch the coverage. Watching their lives washed away, it's like a horror movie. I'm exhausted watching but can't stop watching the coverage, it's sureal. To think they were going about a normal day and their lives are forever altered.
Maureen
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Maureen, I had it on all day too. It is hard to watch yet hard to turn off. I hate to see that Breaking News logo on T.V., it usually is a great tragedy unfolding. Watching inside that one office, it seemed like the quake lasted just a minute, it seemed like forever for that shaking of everything to stop. That part of Japan will never be the same again, nor will the survivors ever be the same. They will either have survivors' guilt or P.T.S.D.. Karen
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Hi Ladies,
I'm Justine from Cheektowaga and am 3 years 3 months out from my diagnosis. Stop in here now and then and Just noticed the WNY post. Want to wish all of you going through your 'own personal adventure with cancer' all the very best.
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Thank you Justine, I lived in Cheektowaga for a few years, now in Batavia . I am a year and a half out from my lumpectomy and then rads. This is a super nice group of women who support each other here and have plans to meet in the spring. We certainly would welcome you to our group if you'd like. Karen
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Good Evening Ladies, Welcome Justine hope you join us.
Bevin, Good news on Pet scan you will feel better when you take to the Lung specialist.
I also have been watching TV all night, in Japan, I pray for those poor people how terrible. So much trouble in the world today, we better not complain about the snow.
Going to hit the hay now, long day. Good Night Ladies sweet dreams!
going to hit
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HI All, Welcome Justine, so nice of you to join the thread. 3 yrs!!! That's great, here's to having another 50+ healthy and cancer free. I have family in Cheektowaga as well. Notice you had + nodes, chemo, rads too? Post often, great women on this thread, I'm so excited to meet all of you in the spring.
Any ideas where we should go for our get together? Or what to do? Maybe a Sabres Stanley Cup playoff game? (LOL).
I'm watching MSN news, the news of the nuclear power plants is devastating. Radiation leaks of that proportion is scary. I pray for those people every day. The issues they face for recovery and survival is astronomical and that assumes the reactors stabilize.
Off to go with DH to sister's house, need to move her dryer to DD apt.. She bought a new one and gave her one for free, she's in school another year, why not? I'll look for a cheap used washer and she can do laundry there. Nice to be close to school, but sure miss her living at home. When I got sick, she basically came home to help me, hoping things get back to normal and she focuses on school.
What's normal BTW?
Maureen
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Hi Everyone,
Well, I have not seen normal in over 3 years. What am I talking about, I'm not sure I ever saw normal. But now I have my new normal. After diagnosis, surgery and reconstruction, i started my new normal. Not sure what that is but, I am not the same person as before BC.
Welcome Justine, hope you will be joining us for the spring get together and keeping in touch on this thread.
So sad about Japan. The devastation is horrible. I guess I can not complain about our winters, we really do not have it as bad as other parts of the world and the US.
Have a nice evening. (((((HUGS))))),
Cheryl
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Cheryl, Not sure what new normal is anymore. I loved my life pre-bc and want it back. On the flip-side I quickly learned who my friends were, not necessarily who I thought I could count on. Funny, some people I thought would just perform a "courtesy check" brought food, called all the time, offered so many things. Some people didn't even bother to call or did the courtesy call, you know the type. A lesson in friendships. I also let so many things go, things that bothered me just don't anymore. I just want this part of my life over and I know I'll get there. So many great women in WNY!!! That's a good thing that came out of cancer, new friends, more laid back, closer to my family, really good things.
Maureen.
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Cheryl and Justine, welcome to the group, it's going to be a good sized group meeting in the spring.I too am looking for my new normal, it's been a medical centered and side effects tolerated year and a half. As so many women, not only Maureen , but others on other threads have found, you find your true friends and mourn the loss of some you thought were your good friends. I have found I can be more real talking to women who have been in my place. The old expression "walk a mile in my shoes" is not a cliche but a trueism. And your real life true friends and your cyber friends are always there for you. Karen
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Agreed Karen. Hope you are well. Having trouble sleeping tonight. Maybe need to sleep with prince ativan (LOL). Heard from BIL in KY, lost his family room furniture in the flood but all is okay. Will need repair work on the lower level but hopefully nothing too costly. I love KY, beautiful hills, his house is built into a hill, and lots of farms, they grow acres of soybeans. They had a sunny day today in the 60's. I'll admit, I'm jealous. I'd be working in the yard, if it was a 60F day here.
My house is too quiet tonight. DS worked and off sleeping at a friend's house and DD worked and went to her apt. had too much homework. Yelled at me because I didn't tell her about the rads appt. on Monday. Chemo brain, thought I did. I can go by myself, she's such a sweetheart, wants to go with me so I'm not nervous. Wonder if my anxiety shows that much? I'm the mom, seems backwards lately. Wonder if this is the start of the empty nest syndrome? Another change, oh boy.
The Sabres lost but I think NC lost too so we're still in the running.
Back to watching the Japan catastrophe. I pray for all the people in Japan, such a devastating time for them. And the nuclear plant would totally freak me out.
Have a super night.
Maureen
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Hi everyone. Welcome Justine - glad you found our thread and congrats on 3 years out. Great great news!!
Ok Cheryl- got to know why "heymoose" for your screen name. Very unique that's for sure , I am certain there's got to be a good story behind it.:)
Betty- I'm sure you're right. I will feel better after I can ask a set of good questions to the Pulmonary guy. hey- mu Husband grew up in So.Buffalo - aren't you all related out there
, betting you know the family. Will have to PM you as I don't like my personal family name on the boards!!Aww Maureen - empty nest. can't even imagine that stage in my life given my daughter is so young. Gosh the thought of it makes me sad. I'm guessing you get used to it. did everything go ok w the appliance move?
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Hi All, Move went well. Boys did all the work. Empty nest will be hard, too accustomed to houseful even when DH is out of town. At one point, I'd cook breakfast based on the number of sneakers in the front foyer (LOL).
Sabres won, poor Rick Martin. Had the opportunity to meet him years ago, handsome, polite, not arrogant at all, RIP Rico!! Hope the Sabres get into the playoffs just for him. Made me tear up they wore 7's on their helmets and raised their sticks to his banner. Yes I watched the game and they still won, my son couldn't believe it. Didn't watch all of the game but did watch some of it. Much too young to have heart trouble.
Went to rads appt. today, Of course DD went with me, she couldn't go into the tx room, so she waited in the wating room doing her homework. 1 hr. appt. Arrived and checked-in, then put on a gown. They put me on the table, took some measurements, then put boards and a form under me while on the table. Arm on the bc side needs to be up over your head grasping a pole behind you. While you are grasping the pole, you turn your face to the opposite side preventing a sore throat. After forms are fitted, they are labeled with your name and used every treatment. Then I had to walk down to CAT scan, they bring all the forms and boards with the measurments and perform a CAT scan to confirm the right area is being treated. Once the CAT scan was complete, they did the tatoos. They are permanent. Initially they look quite large, size of 1/8 of an inch. This is just the dye, not the tatoo which calmed my thoughts. They do the tatoos, blood work is more painful than the tattoo, literally took 2 seconds to do the marks, ran through the CAT scan one more time and then finished. The final tatoo is about the size of the period at the end of this sentence. Get dressed and went to car. I timed from start to finish. Whole procedure took 55 minutes, from arrival to departure out of the building. I start next Monday with a dry run repeat start to finish, then everyday for 33 days. I see the RO weekly and have an x-ray every other week to check progress (reason provided when I asked reason for the x-ray.)
Feels really funny not going to chemo today.
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Hi All... just found your thread too. Glad to know I am not alone out here with BC treatments and the snow.
I'm done with the chemo and rads - and now just taking the Tam and seeing the onc every three months - hoping to go every 6 months after this next visit. Having an MRI on the remaining breast end of the month - just a tad of anxiety - I always think it is going to start all over again with every scan I have. 0 -
Hi starbeauty, welcome to the site. You are never alone here, can't promise the snow will improve though (LOL). Glad you're on the road to recovery. Understand the scan anxiety, Karen on the site is going this week too!! Hugs to you when you go for scan, we're holding your hand, right there with you. Today, when I went for the rad simulation, I kept thinking of all the great women on this thread are a phone call away, nice thought. Understand, I have that thought every single day of recurrence. What if it comes back. Everyone tells you well don't think about it. My standard response: Don't think of the color red, whatever you do don't think of the color red!! They look at me like I'm crazy and then I ask them what they are thinking (always the color red), they usually have this look of revelation, getting how a bc survivor feels. Yes, we try not to think about bc or recurrence but it's nearly impossible sometimes. We'll deal with it IF and when we have to but will always be in the back of your mind.
Keep posting, great ladies on the thread!!
Mauren
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Hi starbeauty, welcome to our group, it is a fine bunch of women, ready to support in any way. I have had the strangest day, I thought I had a scan today, I didn't have it on my calender which isn't like me, but the receptionist called last week to remind me of it. so I went into scanxiety. My DD thought it wasn't until after my mammo, next month, which I had marked on my calender. My daughter got the respiratory infection we have been passing aroud the house, so I called to cancel the appt. this morning since she is my driver in Rochester, I can find anything in Buffalo, but not in Rochester. I canceled the appt. - an hour later my nurse called me to tell me that my appt. was not till after my mammo., the receptionist was mistaken. It's a good thing I cancelled since DD was sick. I can get this confused all by myself, don't really need help. It must be the time for viruses since Wamart was running low on all the OTC drugs I was looking for. Hurry up spring - next week looks nice, I see 40's and 50's Yippee, maybe it will kill all the bacteria and viruses
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Maureen,
Live consciously, but don't let possible recurrance consume you. If it does happen, you now know the routine and you know you can do this. Maybe I'm jsut fooling myself, but I believe I've HAD my experience with cancer, and now I'm going to live to be an old blue-haired lady and die on that bus to Atlantic City! Maybe it's becuse I work in a hospital but there are so many other things that can happen to us healthwise, if we worry about this thing, we might as well worry that a car will hit us, lightenting will hit us, we'll fall down the stairs with the laundry basket and crack our head open... heck, we'll drive down a different street and a tree branch will fall on our car killing us. You CAN'T live worried about how you may die because that's not livivng.
I have become more selfish, I am sacrificing some other things to find the $ and make the time to take vacations with my husband, to see diffent places, even if they're just half a day away, but I've never been there. I'm not waiting "until we retire" because now I know there is no guarentee we'll see if. So last year for my birthday, we took a long week-end and went to Alex Bay, Ogdensburg and Montreal.. all places I've never been, Cancun for our anniversary (and our Christmas present to ourselves ) and looking for another long week-end for this years BD. So, while I don't worry about recurrance, I'm living like there may not be a tomorrow.
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YUMMY, I like your thought proess. Makes sense to me, we should all follow suit.
Karen, They messed up the appt? Unbelievable. Hope she apologized.
Just watching the Rick Martin legacy. Such a young man.
My DD was watching the sports tribute today and asked me " Why aren't they wearing helmets while they're playing hockey, are they crazy?" It's funny how our kids don't remember bicycles, hockey without the helmets etc....I think that's a good thing. Didn't tell her I can remember people riding in a car without seatbelts, etc... I think the kids wear helmets for soccer now too?
Maureen
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Maureen, I just said that's OK. I think sometimes I am a doormat and don't let my anger or displeasure show. Glad your session with the RO went well and it was such a short period of time. What time of day is your appt. so I can send good thoughts your way. I remember no helmets in hockey and on motorcycles. In Pa. you still don't have to wear a helmet when riding a motorcycle, pure idiocy. Hugs to you Karen
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Morning appt. 8ish. There are two people ahead of me with 15min. between each one. No helmets on a motorcycle? That's a special kind of stupid. Just watching the bachelor. RO sent me to a lymphedema specialist going to this week. My arm looks fine to me, did anyone who rec'd radiation on the thread have issues with lymphedema from rads? Have a great night ladies. Sun is suppose to shine tomorrow too!!! Great day.
Maureen
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Maureen,
Not sure if actually WAS lymphedema, or in hindsight, I just sprained my forearm with wii boxing, but 2 months after radiation had what I thought was lymphedema in my arm on the radiated side. nothing too significant, but i was concerned and saw Tara (reall sweetheart) at WNY Breast Health on Sheridan. (at the time I think she and someone at Roswell were the only lymphedema therapists in town) I never needed a compression garment, but she gave me some exercises and worked with me in the office and taught me how to wrap my arm as I was going to be flying to Florida and was worried with the lower cabin pressure that it would blow up. No problems, the swelling subsided after a few months and no problems with the arm blowing up since. BUT, I do have a lot of tightess on that side still, and have to work to keep it stretched and lose and radiation can cause inflammation, so it doesn't hurt to see someone who can tell you what to look for and maybe advise on what to start doing if you have some symptoms. And the FUN just continues, doesn't it? Remember, as in all things, this too shall pass. Here's to the warmer weather!
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Thanks YUMMY, Just curious, like Karen, what's the story behind the log in names? I'm creative handicapped and often wonder how people think of these sign on names? Onc sent me to Ortho place on Main St. in Wmsvl. I will ask if they're lymph specialists, thanks for the great suggestion. The only information I have on lymphedema is the exercises that were given to me right after lumpectomy. I do those every day. When I'm on the computer sometimes, my arm gets stiff, but think it's from too much typing/talking with my bc friends (LOL) Agreed, this too shall pass. I'm starting to see buds on my rhododendrons so there is hope.
Bevin, good luck sending HUGE HUGS TO YOU!!!!!!!!!!!!!!
Sending hello to all WNY friends, Karen, EllieD, D4hope, Cheryl, YUMMY, kmbj, Bevin they are growing!!! Let me know if you haven't posted in a while and I missed someone. Would love to hear how you're doing.
Maureen
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Hay what about me. lol
Hello Ladies, I know its late but I worked a double today and just got home. I was very sadden by Rick Martins death. I had my picture taken with him about 3 yrs ago at a Sabers game. Nice man.
Maureen, did you see that Linda Pellegreno just announce she had breast cancer and had a double mast. and she went to Dr. Bauer. She will be getting chemo in the spring but they didn't say who her onc is.
Thinking about you girls and good thoughts.
Good night.
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OMG, I can't believe I didn't type your screen name.
Please accept my sincerest apologies. I'm so glad your humor reflects your screen name. You worked a double? You must be exhausted. Doubles are a dual edged sword, good for the money, tough to do. Hope you can rest today. I saw a blurb on Channel 7 news about LP. My prayers are with her and family during this difficult time. I hope she finds us on this thread. Many great women with good, solid advice. I like her choice of surgeons as my experience was very positive with him and his support systems. Thinking she'll choose the same onc. as they seem to work as a highly functioning team. Didn't hear what stage etc.... however numbers don't matter, we're all in this together praying for a cure.
Off to lymph specialist today, then work, then blah, blah.....busy day.
Bevin, (((((((((((hugs)))))))))))) for today. We're praying for you. PM or call.
Maureen
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Maureen, et al...
My login is for my DH. her refers to me as 'my yummy bunny', 'my yum'. he actually surprised me with a huge "yum" ornament on the christmas tree this year. since it's taking forever to get from my cell phone to my work email, maybe i'll send it later... but that's why i am who i am.:)
also, it's very early, but if anyone is interested in doing the 'strides' walk this October, we started a team last year, "Whatabunchaboobs", had about 20 walkers and are planning on doing it again this year. Even as out of shape as I am, it's an easy 3 miles and you can do it in about an hour. Something to think about
Happy Tuesday, all!
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I'm in if I can get my butt off the couch (LOL). I think I'll be healthy by then and maybe even HAIR
Maureen
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Went to see LE specialist. Liked her, really nice lady in Clarence. Said everything looks good but wants me to get sleeve for flying. Have to for work, infrequent, not my favorite task but required so the sleeve I will get oh and hand garment? not sure what she meant by that. Will have me do routine that I've been doing since they took the drains out. BS provided a PT the day after surgery, she showed me the drill and I do them religiously every day. I will see her LE specialist after radiation is complete. Said rads can sometimes trigger LE. Really need to work now, don't feel like it though, nice day, sun shining, my hair is on (LOL) maybe call sister to go out to dinner or invite her over for dinner or sit with the cat and open the window.
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Yummy and Maureen, it's just a beautiful day today, and all week is supposed to be nice, just a little rain tomorrow. Oh - it just might be spring. Got the windows open to freshen the house. My cousin wears a sleeve for flying Maureen, not the gauntlet though, and like you only when she flys. Has never had trouble with it. Karen
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Thank you Karen and Maureen for the warm welcome.
Maureen - I have LE that I am fighting off most days - who knows whether it was the MX and removal of all my nodes or the rads that went all the way up my neck and down to my stomach and over to my sternum that "did it", but something did. At the worst the upper arm is about 1.5 inches larger than the other upper arm. I manage most days to keep it under .5 inches, but I can feel it - sometimes it migrates onto my back. I wear a sleeve when I exercise. Just one more fun part of the BC surprise... Esther
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Hello all you wonderful WNY women. I'm back from Florida and trying to get back into the working grove. So glad to read up about you all and to know you are well. Maureen, hope the LE is bearable. Sad to hear about Linda Pellegrino. BC sucks, doesn't it?
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Hi everyone,
I am just a smidge south east of Rochester! Not to far away - we occasionally visit your neighborhood going to the Sabres & Bills game
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horse-n-around
Then you probably drive by us on the Thurway...
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starbeauty, I live in Batavia, where are you N.S.E.or W Karen
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Hi Karen, Glad your cousin has kept LE under control. I'm okay with wearing a garment as long as I don't get full blown LE, insult on injury if something else goes wrong now.
Hi Ester, reading the material on LE has me concerned and you deal with every day? From your measurements, sounds like you work hard to keep under control, good for you. Doesn't sound fun. My PT said rads can aggravate the LE hence the reason for going back to see her after radiation. Nice lady, very caring and wants to go the extra mile, I'm glad to have her as my LE PT.
Horse-n-around, Welcome to a site of amazing women. They have become great friends. I'm so excited to get together in the spring for a meet and greet we're planning. Is that your horse in your picture? It's beautiful. Yes, another Sabres Fan, my DH is a bills fan, I try to be a Bills fan but sometimes they are painful to watch week after week.
Did watch some of the Sabres game tonight, then DS called me and asked (nicely) to turn off the game. My sister was watching the game and remarked my son might be onto something prohibiting me game watching as the Sabres weren't playing very well. I'm jinxed.
Funny Story Today: My son was on the way to his buddies house to watch the game tonight and stopped to give me a big hug before he left the house. I was so touched by the moment because teenage boys are tough to open up (more so since my illness). So I rubbed his head and joked I messed up his hair the same way as when he was a little boy. So my son runs to the dining room (where I removed and placed my wig after my appt. today) and fluffs the wig commenting he messed my hair up too!!!! I'm still smiling/laughing as I think about the moment.
Have a great night ladies!!!
Maureen
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I too try to be a Bills' fan, but you are right, sometimes it is painful. The Sabres always seem so committed to winning it is infectious. Hoping the LE is just a precautionary measure and not something you have to worry about. Karen
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Thanks Karen, me too!!
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Hi Ladies, Its quiet tonight did everyone enjoy the beautiful day today?
Bevin how are you doing?
Welcome new ladies.
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Hi Betty, Did you forgive me
You're right quiet tonight, where is everyone? Busy day today. Lots of meetings starting at 8:30AM right through 4:30PM. They had a lunch meeting but working from home, I don't get the free lunch, just the meeting. (LOL). Did you recover from your double shift?
I'm getting a little nervous about radiation. Just another new journey but I'm still nervous. I did enjoy the day from inside. I opened all the windows and listened to my cat cackle at all the birds in the bushes. She went ballistic when my neighbor's cat came and sat on the porch. She doesn't take well to other cats, dogs or any animal. Today was the weather I love, sunny but not too hot. I see more hair, I'm so excited.
Happy Saint Patrick's Day Everyone. Off to sleep, a couple of meeting tomorrow then off-line for the weekend. Yipeee!!
Maureen
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OK, now I'm worried. Suppose to do dry run for rads on Monday. Get a call 1st thing this AM from rads place. They want to do x=rays and diagnostic CAT scan because of the results of the routine CAT scan. They won't provide anymore information, my first question was, did you find something? They replied, we're on a fact finding mission. What the hell does that mean? I kept questioning them but doc if off today, have no further information, etc.... My first thought: they found something, my second thought, they want to differentiate good from bad of what they found, my third thought, this is a problem. Any of the above is freaking me out. Have to work for a while today and can't keep my mind on anything, and I hate that dye makes me weird. Need help here, has anyone had a dx. CAT vs. routine before rads?
Maureen
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I dont' remember it all but I believe I had a CAT just to confirm I had been marked correctly and so they could program the rads machine and that was it. I know there wasn't a daignostic ordered by Rad Onco, although my ChemoOnco did do a PET after my treatments were done with her.
call your medical oncologist or breast surgeon..... or at the very least your PCP. all 'critical' findings should be reported, EVEN if the Rad Dr is off, they should be able to get hold of him/her.My RadOnco was actually hiking and called me back when I had a question.... I could hear the cars going by when we were on the phone. I HATE when you get a call... 5pm on Friday when you know you can't call back until Monday... that's just cruel. So make some calls, I'll pray its nothing, and keep us posted.
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Maureen, I know I Had an X-ray that first day, but no Cat Scan I don't think, I don't remember much from that first marking day as I was scared by it all. What are they thinking leaving you hanging like tthis, it is barbaric. Plus it's a weekend, don't they know how anyone would react to the no explanation. Call your BS, and talk to him about the state you are in, don't even try to calm down, cry if you can. You said he is a very compassionate man and brilliant in his field, he should be able to pull some strings. This makes me so ANGRY that they should do this to you. Sending prayers and many, many hugs. Karen
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Thanks ladies, tried all of the above, no luck. I'm going to have to wait till Monday. This pi&&es me off.
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Maureen, praying it is a routine, proceedural glitch, and has no connection to a negative outcome. You will be in my thoughts all weekend. I won't even tell you not to worry and when you get through to that RO on Monday, give him h^**. Karen ps stay pissed off, and I hope the weekend flies by.
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Oh gee, Maureen, that sucks. I didn't have rads so I'm of no help other than to say prayers for you and hope you can enjoy this weather and the weekend. I'm with Karen, I hope it flies by for you.
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Thanks Ladies. I'm just going to enjoy the weekend the best I can. On Monday, the RO and I need to talk. Thinking this through all day, (with DH sensible logic) if the RO thought is was something to worry about he would've called me himself. He must think it's really no big deal HOWEVER, scared me to death, that I need to let him know. This is assuming nothing comes from the CAT scan. If it does, well haven't thought that far yet, but I'm not leaving without the results.
Maureen
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Maureen, my prayers and warm hugs will follow you through the weekend and into Monday.
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Maureen, I had a cat scan then I did rads. The tech meet me at southtowns rads.with this borad I had to lay on for measurment. So yes I had a cat scan before I started rads. Try to relax until you find out more. I know this sucks. You will be in my prayers.
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Hi Kindone, I already had a CAT scan at the simulation. They called and requested I didn't eat anything when I came on Monday for the test run because they want to do a CAT scan with the dye. So pretty sure they're looking at something specific, really has me worried.
M
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Betty, did you have Dr Norland for Rads? The tech brought me from his office to Southtowns for my measuremnts too! I thought he was a sweetheart... and almost as talkative as I am! lol
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Maureen, try not to let this take up your whole weekend. Easier said than done , I know, but I hope you can enjoy the Sabres game. I am sending you "Strength and courage" to get through this weekend and to complete your rads. Wishing you good luck with rads.
I hope everyone is doing fine. Sending all (((((HUGS and PRAYERS)))))
Cheryl
P.S. When we have our get together I will let you know how I received my name - Heymoose. No big deal, just some personal info. and do not want it mentioned.
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Thanks Ladies, freaking out a little today. Two CAT scans in a little over a week is making me jumpy hopefully for no reason. Going to hang out and make homemade pasta, do laundry and try to relax. Tomorrow will come soon enough. And I'm trying to think of how I want to communicate my concern to RO. I'm thinking I'll request from this point forward, if necessary, to have someone call me with the authority to answer my questions or have someone available I can speak to from this point forward. No accusations, just need to change the protocol. Or is this a unique situation? Either way, don't want to be in this position again, no one should.
Maureen
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Maureen, you have today scheduled out, that's good, then sleeping I hope, and tomorrow will be here. You've done well in a worrisome situation. On the way to handle if this ever comes up again, I can see doing it both ways. Be reasonable and give him the new plan of action so this never happens again or let him have it, but I think I favor #2 because you're my friend and how dare he make you upset for a weekend, just no excuse for it. Best road is probably #1 since you will accomplish the objective, let him know it was really upsetting and make it so it never happens again. I've been sending calm thoughts all week end and will be thinking of you tomorrow morning, I think your appt. is at 8:00, mine was at 8 also. I will be checking the boards for you my friend, hugs, Karen
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Heymoose, Yes I did go to dr Norland for rads, he has since retired. I Liked him alot, and it was close to my house.
Mareen, my prayers are with you, try to relax. Every time I go for a scan or MRI I call Onc office and I make them call for my results or I will have a nervous breakdown. I all most did a couple of times, when they made me go back into the pet scan so they can have a better look. Because my tumor markers went up three times in a row, so I was convinced I had mets.
Thank God that wasn't the case. I also call for my tumor markes the next day. I can't handle this damm disease.0 -
Thanks Ladies, I'll let you know how I make out tomorrow. Appointment starts at 8:30AM and DD is going with me.
Karen: Option 1 is last choice but that's what I'll do. I'll be spending a lot of time with them and quite honestly they've been absolutely great to this point. I think DH is right, it's not a big deal. If the opposite is true, then I'll exercise option 2 cause I don't care what they think (LOL) Don't know why doing additional testing, hopefully worrying about nothing. Kept myself busy all day today but evening has it, hubby packing for out of town trip, DS working late and DD is doing homework, this is the tough time. Mind runs when you have time. I think I'll make banana bread (LOL)
, do laundry, do something..Love,
Maureen
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Dear Maureen - just caught up on our WNY thread. I am so so sorry you are worried and the doctors office didn't explain what they were doing and why.
I can say I had a CT before my RADs. It was to ensure they know where the beams should be lined up etc. It was done at my planning session along with the tatoos. I also would get xray every week during RADs tx. They make sure with breast changes from the RADS they are still lined up they way they want to be.
I hope this is all it is for you. I don't like that the office said they were on a fact finding mission without stating what fact they were trying to confirm or deny. Thats not fair to a patient and I definately think you should say something too.
Praying you are ok and sending lots of strength your way. I'll give you a call tomorrow .
Hope you can sleep tonight. try some melatonin or antihistamine or ambien if you can't get your mind to relax and allow you to sleep.
Hugs
Bevin
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Thanks Bevin, I am so humbled by all the support on this thread. God Bless you all. BTW, made the bread, did DD laundry cause I'm all caught up, now that's nervous.
Maureen
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Starbeauty - welcome to the wny thread. I just was catching up on everyone and see you joined us. I am sorry I missed you earlier.
Ok - so feeling a bit bad I didnt go to the parade today with my daughter. My husband was working so it would have been the two of us. I just didnt feel like dealing with all the people and finding parking. Boy.. I feel like I am getting old when I say stuff like that.
Did any one make their way there?
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I skipped the parade today, shame on me!! It was such a beautiful day for a parade too!! Hoping someone went and had a great time. You're right bevin, parking is a pain downtown. It was the kind of day would've been nice to take the subway downtown. Did anyone ever do the park and ride?
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Maureen, am waiting and praying, we are here for you. Hugs Karen
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Hi All, here's the scoop. I went to RO, went for the CAT scan with dye and requested to see RO. He was very understanding and explained there are cysts on my kidney and liver and he want to CONFIRM they are cysts vs. mets. It was confirmed they are cysts, GREAT NEWS. Then I requested he doesn't call on Friday with requests like this and no information as it stresses me out. He was very nice and understanding and quite cooperative. I was impressed! Looks like we're all on the same page. All that stress for nothing. Thanks for all the support during my weekend freakout. Officially start rads tomorrow but RO is not recommending any cream or anything, is this normal?
Love,
Maureen
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Maureen, thank God, such wonderful news. That was a long weekend for you and it sounds like he will never do that again, you did great! Make sure one of the nurses or techs give you cream before you leave, I got a little bag with facts about radiation and a few bottles of Radx cream and a few tubes of Aquafor. Whenever I would run out, I'd just let them know. I'm so glad it was good news. hugs Karen p.s. they also gave me a specific kind of deodorant, can't think of the name of it, you can also use pure corn starch, like you'd use in baking.
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Maureen, GREAT-GREAT news, thank God, Don't these Drs office know what they do to us. They just don't think. So glad to here good news. I didn't get cream until the end of my treatment, I didn't need it until then.
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Betty and Karen, Thanks for the well wishes very scary time. Got a lot done, when I get nervous, I clean or have really high energy. Most energy since chemo so I go a lot done: laundry, baking, even cleaned one of the bathrooms (ok, 1/2 bath but close enough ). I asked about cream and they tell me they're no benefit to prevent, just to treat when and if the problems occur. Geesh!! Have a great night
Maureen
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Maureen, so gald to hear your good news. onward and upward and time to get this all over with! woohoo!. I didn't receive or use anything special for rads.... just no deodorant, and watch long hot showers (and don't rub when you wash) as they just dry out your skin. Since it's winter you're not going to get that sweaty anyway for the most part so it shouldn't be too bad. Actually, I don' t know if it was losing all the lymph nodes but my armpits really don't sweat that much any more. When I did get a little burn in the last few treatments I was told to use diaper rash cream, which worked fine. I have no permanant rad burn marks. Also, avoid bras if at all possible. I got some cotton 'wife beaters' and wore those. Good Luck and congrats again!
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Thanks Yummy for good thoughts and suggestions, never thought of the wife beaters but know exactly what you mean (LOL). 1st treatment today, no big deal at all, like laying on a spa table getting eyebrows waxed (if I had eyebrows
Feel occasional tingling in arm and breast but could be positioning when working on laptop today. It will be tough to avoid a bra, kinda busty Maureen
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post TRAM with DD's during radiation... layers do wonders at work... and if anyone complained, i would have whipped out the twins and asked them 'so, do you REALLY have a problem with me not wearing a bra to work? oh well, i guess i'll be taking some FMLA time... see ya!" really, i would!
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you are hysterical, I laughed out loud. I need your attitude.
Maureen
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Maureen - really really great news. I am so happy for you.
I was told to use Lindy cream or eucerin cream. I put it on right after my tx. I brought a small bottle with me and used it right after treatment session and again at night before bed. I loved the lindi cream. It was kind of silky and not greasy at all. They sell it at the medical place on Bailey Ave or on -line. I definately suggest staying on top of the tx and use cream from the start. My RO shares that thats the best way to help the skin heal, keep it moistureized so it hopefully wont peel.
Just dont put cream on 4 hours before TX.
I also wore camisols under my clothing.Bra's were very uncomfortable. I did purchase some new bras without underwire and those were OK if I needed to wear one. My tumor was at the back of my chest wall, so focus was underneath and the area there really was tender and sore.
The shooting pain you feel is normal and does go away after tx ends. Def do your stretching excercises to keep the arm and lymph gland area flexible.
Good luck, I am so happy for you that those little buggers were cysts and nothing worrisome.!!
Hugs
Bevin
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Thanks Bevin, How did the pulmonologist go?
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Hi Everyone, enjoying the snow?
Just shoveled for the THIRD time. Why does it always snow when everyone is working? Watching the weather channel and they said we had record snowfall today. Had rads today, did okay came home with upset stomach, anyone ever get this? Hope everyone is well, warm and plowed out. Quiet thread tonight, everyone watching survivor or something? Maureen
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Hi Maureen
Can you believe this snow?? Yuck Yuck Yuck.
I just got home from work about an hour ago and am just logging in. I am sorry I havent gotten a call to you. Work has been busy and I have been busy checking on my parents too. Lots of bad excuses and I feel like a terrible friend.
I will say, I had a bit of a slight stomache ache the whole course of radiation. lost my appetetie a bit. Unfortunately that didnt translate to weight loss!!
How is your skin doing?
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Maureen, so not enjoying the snow, it did everything today, rain, snow, sleet and wind. My poor grandson is so not enjoying being the man in the house. Never had an upset stomach, towards the end of each week, the cats and I would take a short nap. I don't think I was ever so aware of being a cancer patient than going each day and lieing in the quiet and watching the machine. I hate even seeing that building now. Hope you are not getting that virus that is going around. Did have a migraine last night and today, I thought I had outgrown them, had them 15 years ago. I wonder if it is because of the severe weather change and my hormones being messed up with the Arimidex. I've had a ice pack on my head, that seems to help. Karen
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HI Karen - ditto on headache issues with the weather change. I find my body is like a barometer that way. Can you take anything to help? I have a script for treximet which is a god send.
Hope you're well.
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bevin, I used to take Imatrix injection years ago when I was getting them regular basis. They were triggered by weather change, the week before my period, not enough sleep and stress. I am going to a new PCP on April 6th, may need something to take for them. Great way to diet though, smells of food really bother me, and light and sound. Hopefully I can sleep it out. Karen
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Hi ladies,
Bevin, Give a call when you get a chance. Hope work slows down and parents are okay.
Karen, how are you feeling? I used to get migranes years ago, haven't had one in a long time and I don't miss them at all.
Hubby on his way home, so don't know when I'll get back onto the threads.
Maureen
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Maureen, still have it, got it Tues. afternoon. Used to get them too, haven't for 15 years and like you didn't miss them. I've taken Excedrine Migraine and been laying down with a ice pack, only thing that helps a little. hugs Karen
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Karen: Hope you feel better really soon. Migrane's are nasty stuff.
I received such a nice surprise tonight. DH flew home early to take me out to dinner. Yes, we went to Rizzo's and had a really nice dinner. DS "found" us at the restaurant and joined us for dinner. Just quiet, fun and delicious. Took almost the whole dinner home with me cause the salad was huge. Then DH offered to go to treatment with me tomorrow and grocery shop. What a sweetheart. For St. Patrick's Day he sent me a Vermont Bear all dressed in St. Patrick's day dress. He is so thoughtful, I'm so lucky, married 23yrs. end of April. I hope my DS follows suit and becomes the same type of man as my hubby.
Have a good night ladies, think spring
Maureen
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Karen, I hope you feel better, headache are the pits. I also use to suffer from them better now since I am post menopausal.
Maureen, What a great husband you are very lucky. I know what you mean about your DD. We want the best for our kids. I have to work another double tomarrow, so I won't be on.
Bevin, hows it going?
I WANT SUMMER! Good night ladies
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Kindone:Good Luck with your double shift Betty, hope it is kind to you and not too stressful.
Karen, hope you are feeling better
Bevin, you are a good friend, just a busy friend sandwiched in-between generations. Remember those days, very rough and busy, give a call when you can.
Hope all our other WNY friends are warm and healthy.
I'm doing okay, 3/33 rads today, more of a routine than anything. They do put a piece of gauze under my treated breast so there's no air pocket? Let's see how it works. See the RO on Monday for weekly appt. I'll let you know how I do. Going to sister's house for a fish fry from her church tonight, it's lent season so you can always find an area church with a fish fry.
Have a great night
Maureen
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Karen - sorry I didn't get right back to you... been so busy... hope you are feeling better...
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Hi all, just a short post, I still have the headache, it's not quite as bad, I am sick to my stomach and lightheaded. You all know where my mind is going on this. My appt. with my new PCP isn't till April 6, if I still have the headache on Mon., will call and see if she would see me on an emergency basis. Take care, stay warm. Starbeauty, I live on Tracy Ave., so not far from you at all. When this all settles down - maybe we could have coffee at the new coffee house, the one next to where Jubilee was. Thank you everybody for your concern. This headache is getting old. hugs, Karen
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hi all, headache is gone, finally. Definitely going to ask PCP for meds to deal with this, if it ever happens again. I was halfway to brain mets, boy how the mind works. Karen
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Hi Karen, so glad you are feeling better. Guess what, I watched the hockey came and they won!! so excited, maybe the curse is broken? Anyway making pasta today. I'll freeze some so it's ready when we need it. Getting some of my energy back. Waiting for the second batch to rest so I can roll and cut. Anyone have a good pasta recipe from scratch, I always have to adjust water, oil to the day. Sometimes I think it might be humidity related?
Maureen
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Aww - Maureen - you are so cute.. I don't have a pasta recipe but me and Danny Wegman can share one with you!! The only reason I have a kitchen is that it came with the house.. Not much of a cook, though I do enjoy it when I do, but seems I'm usually home too late so my husband does most of the coooking or we eat out.
Karen- So glad your headache is gone. I know how you feel. Every ache and pain takes on a different potential source doesn't it.??
Kindone - I am well. Had a breathing test this week. It was an odd machine . You sit in this enclosed case and breathe into a machine following their directions. I see the Onco this week and need to call Pulmonary. Another CT in 3 mos. The updake was 3.5 so worrisome as over 2 is a potential issue, but Radiologist thought it was more likely fibrosis from radiation. so hopefully he is right. I haven't talked to the Pulmonary doc since the PET, but I got a great set of questions to now ask.
So so ready for spring. whooo hooo Lets Go Buffalo,Lets go..Another win!!
We're gonna win that cup, we're gonna win that stanley cup yeah yeah..me and the buffalo sabres yeah yeah yeah!!
Ok - did I just age myself with that song or what??
Bevin
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Hi Bevin, You are so funny. You did not age yourself. I was singing the sabres song right along with you (LOL). I used to go in the standing room only and watch every game. Remember the fogged out game with Lorenzo killing the bat? Such fun memories. I agree with the Danny Wegman idea, use it often. I used to cook with my kids all the time, they had fun but what a mess, kitchen and them covered in flour. (I confess, had a cleaning lady and didn't care, those were the good old days). When you decrease your working time from 50+/week to 20, you bore easily and I'm suffering from pre-empty nest syndrome. DD and DS are so busy with work/school, I bore easily. Cooking seems like a hobby. And I freeze a lot of food for later times. I freeze in single containers and kids just grab, microwave and eat. I'm hoping the snowy days are finished for the year, I saw some green poking through the snow, crocus maybe?
L. Pell. was interviewed for her bc journey in the Buffalo News today. Nice article. Seems her journey is going well. A few things I would've added to the article: 1.) mammograms aren't the end-all, it missed my lump. Had one every year and still was dx. at SIIIa. IMHO women with dense breasts should have an MRI yearly or bi-annually. 2.) Her choice was a mx. based on her dx. (IDC and LIC-one in each breast) and I don't plan on being back at Dr. B. 5 years later for another surgery. I had one lump in one breast all else was clear, bothers me should I chose mx route? Time will tell. 3.) Dr. Bauer's practice will probably increase 10-fold (LOL). He's a good doc, surgeon and nice man.
If you get a chance, review the article and let us know what you think?
Good Sunny Sunday morning to all!! I'll post later.
Maureen
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Bevin,
lol.. since I've heard that song before, and the name 'king king korab'! I think you're in good company so I wouldn't worry too much about 'aging' yourself!
Happy Sunday all. There's frost on the roof here in Chicktovegas, but the sun is out, I'm meeting a HS friend for breakfast, and all is right with the world!
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karen - I would love to have coffee anytime - just let me know. Have my MRI this week... so a tad of scan anxiety, but the sun is shining today... so somehow it just feels like it will be ok.
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Starbeauty, where are you having your MRI? I always get anxious before tests too. As much as I try not to, the anxiety hits. I think all the women on this site get anxious too. It is such a beautiful day, love the sun shine, it really does lift your spirits. An old friend is coming to Buffalo to visit, haven't seen her since 1984, on the 8th of April. We will be visiting all the friends we worked with, it should be great fun. Maybe the following week for coffee, this is exciting. Can you PM me your phone number, so we can make plans? Karen
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Hi all, isn't it a beautiful day, I had forgotten what the sun looked like, now a few more degrees (like 20) and we'd be all set. Am driving down to Pa. tmorrow to help my godmother's son pack her clothing, jewelry, and knick knacks to give to a shelter that helps women set up their apartments and prepare for job interviews. I know there will be tears but the whole family will be there to help.and it will be nice to see them and to comfort each other and talk about all the silly things we used to do. Then her son will be bringing in some of his belongings that had been in storage, so life goes on. I lived with him the summer I went to Sports Massage School so his stuff is familiar to me. I will be taking my journal along, I like to write in it while I am having my morning coffee, it sets the tone for the day. Maureen, I remember the empty nest after my daughter went off to the University of Maine, it takes a while to reorder your life, so while you are searching for the new normal, there is another normal to adjust to, the quiet was the first thing I noticed, that was fixed by keeping the TV on so there was the sound of people talking and starting a new music collection for myself. Sounds like cooking will be a part of the new normal, I'm like bevin, I have a kitchen because it came with the house. All that you have mentioned cooking sounds so good to me, especially home made pasta. I used to have my mom's recipe for that but it was lost in a move and her Italian cookie recipes. A lot of the recipes were a pinch of that, about a tblsp.... I wish I still had those. I'll be off the boards for about a week - will check in when I get back. Karen
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Good Evening Ladies, I just came home from the hospital my daughter just had a beautiful baby girl. Ava Marie, 7 pounds even. That's her second one and my second grandchild. We are so excited she came a week early. We were having a birthday party for my grandson today with 27 his third birthday. DD had the whole house decorated the food ordered and cake ready. Well Mom and dad had to go to the hospital just before the party began. My sister had to run the party, but everything turned out great.
Starbeauty, good luck with your MRI.
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Yummy, Hope you had fun with your HS friend and breakfast. I love the term Chicktavegas. I have a sister who lives in the town and I want to mention your reference-she'll laugh out loud.
Starbeauty: Good luck with your MRI, Hope everything is fine. I'll say a prayer for you. I hope you and Karen can get together for coffee, have one for the rest of the girls on the site....coffee I mean
Karen: Hope you check the boards before you take your trip to PA. Cleaning out the house is very difficult, I remember from my mom's house last year. Be kind to yourself and journaling will help. There were brighter moments when we found things that made us smile and you may learn something you didn't know about your godmother. Please take care during this difficult time. Just remember she's an angel watching over you. Have a safe journey and let us know you're okay. I'm thinking cooking will be on my list. The best recipes are written with a pinch of this or that, finding I'm adjusting recipes all the time. In addition to cooking, I started making wood advent calendars for both my children. They're in the shape of a Xmas tree with Santa and reindeer holding the tree upright. The tree is filled with the wooden drawers for 25 days so when I finish the calendar I'll fill the drawers with hand made ornaments. I've always purchased the calendars every year since they were little so it's become a real tradition. I hope I finish them by Xmas. I'll buy the chocolate filled calendars this year and give them the hand made calendars for a Xmas gift. The TV noise sounds like a great idea. Funny, I think I'm somewhere in the middle of empty nest, they both drive, work and go to school but I still have the laundry, meals, etc...
Kindone: CONGRATULATIONS!!!!
WOW, she came at a very memorable time. Hoping mom and baby are doing well and healthy. Two-time grandma, you must be so happy!!!! I'm doing the happy dance with you. If you can, post pictures. I love the name Ava Marie. You'll have fond memories of her arrival into the world on her brother's birthday party. Your daughter sounds very organized and an amazing woman. What a story to tell Ava when she gets older, her mom had everything ready and then gave birth to her all in one day. You must be exhausted to work a double yesterday, then the birthday party and then a new grand daughter, what a weekend. Sleep well tonight my friend, you've earned it!!!Off to bed, tomorrow is a busy day, rads, RO appointment, Onc follow up and work meetings tomorrow. Have a great night ladies.
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Hi all, I am leaving for Pa. in an hour, and will not have access to a computer, back in a week. Talk to you then. Karen
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Kindone- wuch wonderful news for you.!! I cannot believe you are a gramma x 2!! I am so happy for you and absolutely love the name Ava Marie.
Starbeauty- Good luck with your MRI.
Karen - drive safe and wish you peace as you go through this.
Maureen - update us on your Onco appointment. How is rads going? I love advent calendars.! what a wonderful treasure you are making.
TTYL
Bevin
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Hi Bevin, Thanks for asking!! Rads are going okay. Met with RO and he gave me cream today, I'm red already...after 5 tx. and stomach is sick. Told me to take Zantac 2x/day, up the Vitamin D to 4000IU/day, took blood work, see me in 2 months. He won't take the port out yet, he wants to leave in for a while
Nice seeing the onco nurses, I really like them, they are like girlfriends having fun. When I was there, they had a posting for a breast cancer survivor luncheon that Komen is having locally, trying to find more info. I'll try to find more info if anyone is interested?
Have a great night
Maureen
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Karen - having the MRI at Wende Logan Young Clinic in Rochester. Will PM you.
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HI Ladies, Anyone interested in going?
Here's the link
10th Annual Survivor Luncheon (Komen sponsored event)
Saturday May 7, 2011
Buffalo Niagara Convention Center Ballroom
It's an online registration and free to breast cancer survivors (I think we qualify).
Let us know if you plan on attending.
Maureen
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Quiet thread the past few days, I miss Karen
I'm doing okay. Had #7 rad tx and pink skin has reared its ugly head. I have two creams: one right after treatment in the dressing room and one at night. I see the RO on Monday. Going to rads is easy though, just go, come home etc. Went to Timmy's for coffee today, figured I deserve the treat and I'm beginning to taste coffee!!! The taste buds come and go, has anyone else experienced that? Enjoying the sun today. Starbeauty: Did you have the MRI yet? Prayer all ok.
PS The luncheon is free for survivors
If you bring a friend (non-survivor) $25-30.00/person. I'd still bring money, they have basket raffles etc...Kindone, Yummy, Bevin,: Hi!!!
Hugs,
Maureen0 -
HI Maureen, I can't go to the lunch, but thanks for the info. Its my daughters communion day! It was good to chat w you yesterday. Good luck w Rads tomorrow and then you have the weekend off. Yeahhh!!
Hi Kindone! - checking in on you. Did you get your MRI results? Hope all is well.
Hope everyone has a great Friday tomorrow.
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Hi Maureen...
Yes - had the MRI on Wednesday and I am still waiting for results - I have been home during lunch both days to check my phone messages to see if they have called me - no call yet - so I think that means that they don't need to schedule me for a biopsy...
Not sure about the luncheon... need to talk to DH about it.
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Hi Everyone, Busy couple of days!! Rads are going okay, just got caught in a bit of a traffic jam due to the police officer's funeral. Police, govenor, etc... so nice to see the turnout for this young man. Such a sad event for a young man and a tragedy for the poor man that killed him in the accident. Still think the person who got the ticket should be charged with manslaughter....his speeding caused the whole mess. #9/28 rads tx. I have a cooling gel and cream I put on immediately post tx and another one at night, still look like a lobster with no bra LOL
Yummy, Actually went out without the bra and smiled the whole time with the visual of you whipping out your double D's I will laugh about that for months to come.
Bevin: Nice to speak with you, you're so friendly. Good luck with the 1st communion day, very special day for children, I still display both my children's pictures of their 1st communion. My son was the poster boy for JC Penny's.
Starbeauty: Still saying prayers for you and hoping all is good. Sometimes no news is good news.
Just going to hang out and watch TV today, really tired. Hope everyone has a great evening.
Hugs,
Maureen
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Hi Maureen - I cannot believe your son was on an advertisement. How cute!
Hope your skin calms down. Just DONT itch it!!
I hope everyone had a great Sunday. It was beautiful today!!
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Hi all, just got back from Pa., so just a short post. It was a bittersweet trip, packing up clothes and getting all to the shelter and some to senior center called Rolling Hills in Conneautville. It was good to see where everything was going, I knew my godmother would have approved. Special petting for her cat, Bubbies, who crawled onto my lap and just draped himself. It was good to be with family down there. I missed all of you. Will catch up on the posts I missed and will speak to you tomorrow. hugs, Karen
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Hi Ladies, How is everyone doing? I av been busy working and then spending time with our new baby. I got some sad news, A girl that lived next store to me when I was growing up pass a way this week of BC. She was younger than me. I will be going to the wake tommarow in Hamburg.
Karen, I glad your home and all went well.
Starbeauty, have you gotten your results yet?
Maureen, Bevin, hows it going?
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Hi All... thank you so much for the prayers and concern - my MRI results came back normal!! I am so happy - it truly is such a relief to know that life is going to settle down just a tiny bit and maybe I can ditch some of the MD visits this year.
Kindone - I'm so sorry to hear about your school friend...
Karen - glad you are home safely.
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Kindone, so sorry for your loss, this beast is just so terrible in what it does to families. I hope the funeral was not so difficult. I know the first one I went to affected me pretty strongly. Starbeauty, so happy for your good news, bet you feel like you can breathe again. I got your phone number and will give you a call later this evening so we can get together for coffee. Really looking forward to that and now that spring has sprung (I hope) all of us getting together. Karen
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Maureen, so glad to be back, it was so sad at times, then one of us would share a good or funny memory, and it would bring a smile. Her son who lived with her, has a dog and a cat that favored my godmother. If I sat where she usually sat, the cat, Bubbies would trot over. He is a Maine Coon Cat, so he's pretty big, probably 20 some pounds. He would drape himself over my leg, turn over for his tummy rub, he would lay there for however long I would pet. I know he misses her too. It was so good to be with family down there, but I was glad to come home too. It was hard to be without a computer and out of touch. Sorry to hear you are burning, I'm glad they gave you a cream for after the treatment and one for the night. The techs will keep an eye on it and may raise you to a stronger treatment cream, you see the RO once a week don't you, he will write the script if need be. hugs Karen
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Hi All, I wasn't on-line the last couple of days because my cat was sick. She kept throwing up so we took her to the vet, in a laundry basket. The laundry basket is the only thing we could trap her in, as she's a really feisty cat. What a site, laundry basket with a bungee chord keeping the top closed, even the vet laughed but thought it was ingenious. DH thought it up. The vet had to have an assistant in the room to handle her, she's not a lap cat. Anyway, long story short, she has a problem with hairballs and needs to have medicine applied to her paw every couple of days. She hasn't thrown up since Friday AM (great news), however the medicine is fun trying to get on her paw, we have to wait till she's sleeping and sneak up on her (LOL).
Starbeauty: GREAT NEWS!!! Go celebrate. I'm doing the happy dance with you.
Bevin, Hi, will try to call this week, a few projects reaching critical timelines, so a lot of reviews need to be completed.
Karen: WELCOME HOME, I missed you!!! Glad you finished the house clean-out, sorry to say I suspected it would be hard to do. Your godmother's cat sounds very loveable....and BIG.
Kindone, so glad you are enjoying that new grandchild. How's the birthday boy handling the adjustment? I'm so sorry to read the news of your friend. That must have been really hard. Sending you a big (((((((((cyber hug)))))))))))))
Yummy, heymoose, EllenD: Sending a big hello, stop bye and let us know you're okay.0 -
HI Maureen - I cannot even imagine what that scene was like trying to trap your cat. It would have been great to capture on video!!! Good luck with your projects - now worries - call when you're free.
Kindone - I am so sorry to hear about your friend. I hope the funeral was not too difficult on you. I think it's hard not to reflect on our own lives when someone who is similarly sickened or our age. I saw that book reviewed called "heaven is for real" It sounds good. A youn boy wrote about his experience in heaven- he had gone through a really difficult surgery and saw heaven, God, his grandfather.. except everyone was young. Very interesting and I really liked the concept. Hopefully where she is in heaven there is no pain and she is healthy again. Hellen Keller wrote that she wasnt afraid to die. It was like walking from one room into another, except in the other room God gave her back her sight and she could see and hear again. I like that. Maybe these thoughts will bring you some peace.
Starbeauty- Glad your mri is clear. Hope you have less doctors appointments to attend now
Karen - Glad ou are back - I am sorry you needed to go through this, but it does sound like you were able to see family and reconnect which is always good. The Cat sounds great. I love those big fat huge ones.. So cute to look at. Its so nice you were able to donate things to people who will need them and be thankful for them. Very kind.
Love the warm weather... not such a fan of the rain.
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Hi Everybody, I posted this info on another thread but wanted to let everyone know, I had my 6mo. mammo and US yesterday. They found a lump behind the location of my lumpectomy, Birad 3, radiologist said probably nothing, easy for him to say!! I'm nervous, so when I went to rads today I asked if the RO can re-read the films, he will on Thurs. Then I have an appointment with Dr. Bauer on 14th so we'll see what they say. I cannot believe I went through chemo and rads and anything would still be there. Have another question: When you had rads, did your breast get all red and dimpling?? I want to believe this is nothing but after everything we go through with this br. cancer shit, I've become very paranoid. Off to chase the cat for her medicine, I have to apply it on her paw and now she just runs from me, even ran from a deep sleep. She's a sneaky one sometimes. BTW, you're right bevin, I should get a video of this fiasco
Have a great evening
Maureen
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Maureen, I am so sorry you have to go though this. Please keep positive until you know something for sure. I am so surprised you would have a mamo a US during rads. I only had red burn on my breast during rads and the cream helped. Dr Bauer will get to the bottom of this. He is the best. You might have to get a biopsy. I was just at his office last week bc where I had my revision implant in January I have redness on my breast like a rash but not really. It stays the same, not getting worst or better, he is not concerned bc its on my non cancer side. But i worry a bout inflammatory BC. I also saw 3 other DRs and no one is concerned;. They thinks its vascular but it still bothers me. Bauer said he would biopsy it if I want. I just might for peace of mind. I will keep you in my prayers your in good hands. Betty
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Maureen,
That sucks! sorry to hear you have to go through more not knowing stress, but will be praying all is well.
Obviously, my breast got red... lets give ourselves a major sunburn... but no dimpling. It may just be inflammation from the 'trauma' from radiation... a histamine reaction. Ask your rads onco, or maybe try a benadryl and see if that helps... it certainly can't hurt.
One thing that caught me by surprise is that when they were radiating the cervical lymph nodes I ended up with burn on my BACK!. I'm forgetting that unlike the sun, the radiation goes right through you. That was a big DUH moment for me.
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Maureen, I'm so sorry you had to hear that there was a lump. Maybe it is scar tissue from the lumpectomy. Today is the day they read the films again and will be able to say it is nothing. Hoping your DD was with you for support. I have my mammo on the 21stof this month and I know I get scared when I think it is taking too long to read, if you want results on the same day, you wait about a half hour. And if they think it looks suspicious they do the biopsy right there. I am praying your's is scar tissue or a benign cyst. You are in my thoughts each day, I hate what this damn disease does to you, to all of us. hugs, Karen ps I got the redness but no dimpling, ask the RO to have a look at it, I hope he is there every day.
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Good Evening ladies, not much going on. Hows everyone doing? Its quiet tomight.
Maureen how are you doing? I am thinking about you.
Ladies soon we will be getting together, can't wait to met all of you.
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Hi all, just saw my new PCP, I really liked her and she spent a lot of time answering my questions about thyroid levels, blood pressure, and weight. I need to lose weight for myself, she gave me a copy of a book that she used and lost 40 lbs. last year. I think I'm going to join the weight loss site, E-LAB here since the quit smoking is working so well for me. I have blood work to do tomorrow and a follow up with her on the 21st, although if the thyroid is out of whack, she will call me when she gets it to change med dosage. Maureen, thinking about you and wondering how you are.
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Hi All, went to see RO with films in hand, he's not concerned at all, says it wasn't on the mammo it was on one angle on the US. From the angle, it looks like scar tissue, but will mark to review on the next mammo. Said the radiologist will always err on the side of caution because of diagnosis. I'm just tired of all the anxiety, always looking over my shoulder. Have to go back to work now, can't wait till next week, just too busy lately.
Kindone, Let us know if you get the biopsy and how it goes.
Karen, glad you like your new PCP, good for you, they are hard to find. She sounds normal and smart. Let me know how the 21st works out. Did you go for coffee with starbeauty? If yes, hope you had fun.
Hi Bevin!!! hope everything is okay.
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Maureen, lets hear it for scar tissue! After you get the diagnosis of BC anything else is a cause for celebration, no problem, it's a cyst, it's scar tissue, it' cording, that's OK. How is the infamous cat, all healed or are you still racing her around the house, it is so much easier to give a dog a pill, when the vet mentions pills, I absolutely cringe and think easy for you to say. I'm with bevin would love to see that on tape. hugs, Karen
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Maureen - I got a profound burn - lost a bunch of skin - had an area under my arm that was dimpled and heaved up. I had the burn on my back too - about a 7inx3in patch... made me worry about what my lung looks like now. I'm so glad your "spot" turned out to be nothing but scar tissue... and so glad you can let your breath back out... it is so stressful.
Karen - I'm sorry we haven't had time for coffee yet... next week looks pretty good.
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I still have the tingly feet/toes thing and my rad breast is red and swollen but the cream they gave me really helps a lot. called R1R2 and they give free samples every week, enough to get through the week. I put the gel on right after tx. and the cream at night, not greasy and the gel dries really quickly. Funny started taking PM naps too, not long 15 minutes or so but that's unusual for me.
Ahhh the cat, now I had to purchase a water fountain to encourage drinking water because vet called and she's slightly dehydrated. She will be more dehydrated because she won't go near the water fountain.
DD got the cream on her paw and you'd think we cut her paw off (LOL) whining, shaking her paw which flings the medicine on the living room rug and then runs through the house meowing, it really is hysterical, I wish I owned a camcorder because it's sooo funny to watch. My DD looked at me and said maybe the vomit would have been easier to clean LOL 0 -
Hi all, will be away for the weeekend, a friend I haven't seen in 20 years is coming through and we will be spending nights in a hotel in Amherst. Staying there since it is the middle stop for 5 other friends I started teaching with. I'll be in your neighborhood, Maureen. Back on Monday hugs to all, Karen
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Have fun Karen, wish I knew earlier, we could've planned a quick coffee or something. Guessing the hotel cluster about 20 minutes from my house. Marriott, Hampton, etc....across from the back entrance to UB.
Maureen
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Maureen, the hotel is called The Blue Indigo, it is on Flint Ave. I am staying with my friend, so the room is in the name of Sherry Stover. That would be so much fun to finally meet you, I feel so close to you already. I will take your phone number with me - so after I find out the times and places of our visits, I will call and see if we can go get a coffee. Talk to you soon. hugs, Karen
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Yep, the blue indigo is the hampton, just re-named. Like I said about 15-20min from my house. Absolutely let me know your schedule and we'll try to work something out!! Have a safe trip
Love,
Maureen
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HI everyone, wow, I missed alot. I am sorry, I wasn't around.
Maureen- I am so sorry to hear you were worried and troubled. That just rots. So so happy that it was not an issue. It is good they err on the side of caution though. I'd rather that so that everything is checked out. I also didnt get any dimpling, just burn and a rashy type pimple type rash. Sounds like you're getting some fatigue. It hit me badly toward the 4th week and onward.
Karen - sounds like your off to a fun weekend. My favorite restaurant is nearby where you're staying. I love Sienna on Main St in Williamsville if you're looking for a good place to eat and have a few drinks.
Betty- get the biospy for peace of mind. Its not worth the worry and if you can have a definitive answer rather than worry, I'd go for that!! Good luck, I hope everything is ok for you.
I'm thinking the Cat should be on Americas funniest videos and she/he will win you a bundle!
Talk soon - have a great night everyone.
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Hey Bevin, Karen is going to try to call this weekend if you can get free, we should all go for coffee. I'll call you when/if I hear from her. I'll try to call you tommorrow anyway.
Yes the cat is really funny even without trying.
Maureen
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Hi All, Just got home from a ride with DH. We just kinda drove around with the windows open as it's ~69F today, can you believe it??? Feels wonderful. I woke up really late today ~10AM, way out of character for me, ususally wake up at 6AM with or without alarm clock. Had the pleasure of having coffee with Karen yesterday, We had a lot of fun. Just talked, felt like I knew her forever. Love her hair, boy do I miss mine
Hope everyone is out enjoying the beautiful day. Came home with a headache again, Day 5 of the dull ache headache that comes and goes. I'll post later this PMLove,
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HI Maureen - sorry I couldnt join you and Karen. Hope your headache goes away. Mine have been bad lately too - the weather going up and down really does me in. Hopefully your headaches are just sinus pressure etc. I find if I take tylenol and sudafed or nose spray of some sort I do much better.
Karen - hope you and your friend had a great weekend. Would have loved to have joined you and Maureen but had family responsibilities this weekend.
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Maureen, It was beautiful out today. I love it. DD took the new baby out for a walk, so nice to see.
I am glad you met Karen yesterday, it nice to see someone in person you talk to. Soon I hope we all get to meet.
Nothing much going on I have to work tomarrow and a dibble on Tuesday. Wednesday I am meeting with a lady that is going to make a christenings gown out of my wedding dress, which was also my mothers. I am excited about that. I wonder how much that's going to cost?
How is everyone else doing?
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Kindone - love the heirloom of wedding dress turned christening gown. I have a really good seamstress if yours wants to charge too much. She makes wedding gowns and is fabulous.
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Hi all, just got back from my reunion weekend and it was wonderful to see old friends, althoigh I got a lot of the so now you are cured and keep a positive attitude. I accepted it all, I hope graciously, but it reafirmed what we all say to each other here. Got to meet Maureen and it was just wonderful, she is a beautiful woman, inside and out. It felt like I have known her forever, it will be grand when we all get together, we all share so much. Bevin - I understand completely that you had family commitments, sorry to hear about you and Maureen's headache, I too think it is partly weather related. It's good to be back with all of you. hugs, Karen
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Hi All, Rads #15 today. Still have the headache, RO said if it continues, another test
Getting sick of all the tests but glad they (so far) have been nothing. Bevin, hoping everything is okay with you and family.
Kindone, How is your new grandbaby? and big brother? The christening gown from wedding dress sounds like a wonderful idea!! Not sure how much that runs but seems to me the material is the most cost and you're providing to the seamstress so shouldn't be too much, not sure though. You sound like such a proud gramma, I'm so happy for all of you, love this type of news.
Karen, welcome back!! glad you had a great time. How was chef's? Did you get to see the new Sabres room? Glad you are home we're suppose to get quite the thunderstorm this pm.
I think I'm going to take a nap today, just really tired. I'll try to post later
Maureen
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Hi All,
I guess I have really missed alot. Not sure I can remember everything that has gone on while I was away.
My vacation was the best. We went on a Eastern Carribean Cruise. Weather was great. It was so sad to come home to cold and snow.
I am soooooooooooo looking forward to meeting everyone. I hope we can make it soon. Sending everyone (((((HUGS and PRAYERS))))),
Your friend,
Cheryl
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Welcome back Cheryl, Your vacation sounds WONDERFUL!!! Glad the weather was great and you had a lot of fun. Post pics if you get a chance. What cruise line did you go with? Not sure when you got home but the weather was really nice this weekend. Windy today. I went outside and pick up the garbage cans cause they blew away and the cover to the hot tub blew off onto the pipe that holds the umbrella so now have a dent in the cover. The cover is locked down and the force of the wind actually broke the locks, must have been really windy today, definitely a "hold onto your wig" kind of day
I have two doc appt. this week with primary and breast surgeon. I remember the first time I was at the breast surgeon at the start of all this, thinking this is a mistake, I don't belong here, so should be interesting emotional couple of days. Time for bed, rads come early. Maureen
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Welcome home Cheryl, sounds like you had a great time. I think we are still in store for a few more slushy days, but then it will be true Spring. The weekend was glorious, Maureen you and I are in the same cycle, Mammo and US on Thursday and BS on the following Thursday, so we will bothe be emotional. My friend Sherry noticed the right side of my face was a little droopy and that I had hand tremors, so on next Thursday I will mention it to my new PCP, and the migraines poping up again after such a long absence. Probably another Dr. and a test or else it is nothing. Any new symptom is suspect after a diagnosis of cancer. During the reunion weekend we also saw 5 other friends we had taught with from 1969 - 1979. We found we all groaned when we stood up, all have medications and all can remember what happened then better than what happened 20 minutes ago. It was a wonderful time, now we have our get together to look forward to! hugs, Karen
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Where is everybody? Is today treatment time for everybody, Maureen - you may be napping fom the rads. Karen ps will check back after American Idol is over. It's pizza time with DD and DGchildren
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Hi Karen, don't know where everyone is the past couple of days? Must be busy. Dear ladies, post soon and let us know everyone is doing okay and just enjoying the great weather. Today I had 19/28 rad today, spot under my arm but nothing too bad. Met with my breast surgeon today and everything looks good, see you in a couple of months YES!!!!!!! that's the kind of news I like to hear. Haven't had a nap yet today or yesterday, too much going on and I'm tired. Going shopping tonight, need to get clothes for Easter for kids and me and celebrate the great doc visit. WooooHOOOO~~ I'll check back after Survivor.
Maureen
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Maureen, great, great news, so happy to hear it. Have mammo and US tomorrow at 2:00, DD will do the driving as it is in Rochester. I'm trying not to think of it, doing fairly good about it. Took my car in today to have brakes checked as they felt like they were grabbing, not only were they grabbing, they were practically non-existent, dealer said I was lucky. They have felt funny, so I've been giving myself adequate distance to stop safely. Some angel has been watching over me! I'm so glad you are treating yourself with the shopping trip, you so deserve it and the DD and DS. I think I'm interested in the Sephora? brow you use, my brows are wild and shaggy, can you give me the info. Next project is the E-LAB thread for losing weight. Seaside is on that site, as well as the Stop Smoking thread. They weigh in on Fridays, I'll start next Friday. Kids are coming up for Idol, I'll let you know how the tests go tomorrow. Karen
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Maureen... so great to hear all is well with you! You sound better.
Karen... keeping you in my prayers for tomorrow.
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Thanks starbeauty, I'll post when I get back. Next week looks good for coffee, free Mon. and Wed., how about you? Karen
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Maureen, Great news. Thank God.
I am enjoying the new baby.
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Karen - taking our 23 yo Down Syn. son to Splash Lagoon Monday-Wednesday. He loves it... so we will be baking in the steam... I just hope my LE doesn't flare. Talk to you when I get back.
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starbeauty, have a wonderful time with your son, thoughts going with you for no LE flare, Just got back from mammo and US, all clear - yay, Bs on next thursday and I am all set till my yearly exams come round. Blood pressure did it's skyrocking thing of course, and I thought I was relatively calm. We have all had good news this month, hooray for all of us. hugs Karen
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Karen... I am so glad for you... so glad. It feels so good to know you have the "all clear" for a few months. I have been having problems each time with my B/P too - my PCP has put me on B/P meds and then pushed it up at the last visit... I just saw a thread with a connection to Tamox... yikes! Is there no end to the issues associated with this beast?
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A cyber friend on another thread has it too, so her PCP had her buy a blood pressure cuff from Walmart and has her take it when she is just at home. She brings the readings to her PCP and she has been able to avoid blood pressure meds, since when she is not going to any BC related treatments or appt's., her blood pressure is normal.I just started going to Dr. Mary Obear and told her my pressure would be high whenever I see a dr. for BC, she had some lab work ordered for me and said we wold discuss it on next Thursday and see if that is a feasible option for me or I truly need to take another pill. The gift that keeps on giving. hugs Karen
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HI everyone, sounds like there is much great news to celebrate. I am so glad for all of your good mammo reports and US's.
I am off on vacation next week. Heading to the beach with the family. Should be fun. But tomorrow brings to much prep. I'll be back Easter Eve - gosh - sure hope that Easter Bunny shows up for my daughter. Don't know how I am going to work that one out! We'll be home late so a bit of planning to do to ensure he hides a basket somewhere. Yes yes, I know she probably doesn't believe , she's a bit old... but I refuse to let go of the fairy tale and she has admitted anything else!!
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Hi bevin,have a wonderful time and I hope the weather is grand for you. We still hide Easter baskets for my grandchildren, soon to be 13 and 14, I know they don't believe but they love the hunt.
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Hi all, since yesterday was such a wonderful day, I am joining the E-Lab Project for loosing weight. I have clothes in size 10, 12, and 14 that I can't wear. Only 2 in size 16, because I refuse to be so big. Hope everyone enjoys this sunny day. I am still on a high from yesterday's results, so great to be NED. Maureen, still tired from the rads, I remember the effect being cumulative. Hop you had a fun shopping day. hugs to all Karen
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Hi All, sorry gone so long. Thank you for the cheers and well wishes. All my WNY friends keep me sane and I truly appreciate the support. Hope everyone is doing well and enjoying our warm sunny Saturday (LOL)...oh wait, wishful thinking.
Karen, hope all is well with you. congratulations on joining the E-Lab thread, remember everyone has to start somewhere. Our BC journey started and was successful so this journey will be successful as well. Good luck. The eyebrow kit is called Anastasia by beverly hills. It's purchased at Sephora in JC Penny's. There are templates to choose your arch and size. I use the petite although my daugher prefers the medium, I think it's too thick of a brow for me. Glad you had good report with docs. just watch the BP.
Kindone, so glad you are enjoying your new grandbaby. What a treat, they grow so quickly enjoy every moment.
Bevin, Have a great vacation, you've certainly earned it. Post and let us know how the vacation went.
Well my Saturday is so weird today starting at 7AM. It reminds me of that orange juice commercial where everyone tells you the bad day you're going to have and she says "Well glad I have my orange juice" Here goes so far: Went to go to the garage because DD forgot something for work and the adjoining door jam broke. Yep, detached from the frame and fell out, now what the hell is that? So took a mallot and hammered into place and out in this absolutely sucky weather to take the transmittor to DD. Stopped at CVS for meds, went to Lowe's to order new door and they can't come till next week (GRRRRR) and it's a fire code door so need to have 90 minute firewall, blah, blah, by this time I'm seeing dollar signs in my head but the good news, only 235.00 for the door + installation yayyyy. Stop at the bank to transfer money to pay stupid taxes on Monday which is more than my chemo bill (Thanks Obama and Cuomo) and come home to NO WATER!!! There is a water main break up the street and I have NO WATER!!! Of course all this happens with DH out of town, always does. I'm going to Bingo tonight, not even sure there is a bingo but I'm going Can't watch the hockey game cause I'm bad luck for the Sabres. Maybe we could stand out in the pouring rain and get a shower
Have a great day and enjoy the game tonight. GO SABRES. 0 -
what a horrible morning you had, I hate it when it's one thing after another, plus add this stupid weather. Hope it isn't a forecast of what our Spring is going to be. April is a tough financial month for me: DD's birthday, both grandchildren on the 22nd. then Easter. The kids still love finding their baskets, one is originally mine ,the other is DD's, we're big on nostalgia. When Mica was just an infant, Susan had a coffee mug made with Mica sitting in her basket. It's still called the Moo-mug, her nickname. On top of all this money going out, my brakes went, all that bragging I did on the Subaru. Grand total of $615, ouch. So hope tomorrow brings the sun but I think the weather forecast is for more rain. Everybody stay dry and warm, bevin, I hope you are having great weather, all sunny and warm. Hi starbeauty, kindone, and Cheryl. hugs Karen
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starbeauty, have a wonderful warm time with you son. Friday is a good day for me to meet and have coffee, is it OK for you? hugs, Karen
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starbeauty, Splash Lagoon I love it there. Have a great time with your son.
Karen, Good luck with the weight loss, its not easy, I know from experience.
Bevin, Enjoy the beach. I am so jealous. I with I was going with you. Next month I am going to Virigina Beach I hope we have nice weather.
Maureen, What a day. I hate when that happens, Try to relax tonight and forget the days stress. Go to bingo and win the big one.
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Thanks Betty, How are you doing? My day was all uphill from the no water issue. Water was back within a few hours, cleaned up and went to Bingo. I didn't win but was a lot of fun. They have a queen of hearts drawing that's progressive and up to $14, 000.00 jackpot. The place was a zoo!! I got close a couple times though. People are so funny, they are in such a hurry to go home. I just wait till the parking lot clears out so I can take my time. My DD was bowling and DS working so I went with my sisters and nephew. Stay warm and dry friends.
Maureen
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WNY weather is rellly filling everyone's expectation, this is not spring, did we miss it and go straight to fall. On my grandchildren's birthday, the 22nd, it is often just miserable and this year will be no exception, I don't know how many times we have had to move the circus party indoors. But we don't get the tornadoes, those poor people in and around Raleigh, my friend Sherry, who met Maureen, is now on Long Island, calls home each day to be sure her brother, dogs, and home are safe. She lives just outside of Raleigh, all OK so far.
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Sitting here wondering what the heck is going on? It's snowing so much outside, I can barely see across the street. Lasted about 15minutes but I got chills just watching the weather. We've had some really wierd weather outside across the country. Karen, I hope Sherry's family is safe. DH is in Delaware and I was worried about him, seems midwest is really getting the crazy weather this spring. Just recieved a call, my BIL is pretty sick, hospital, MRSA infection. Wish I was done with tx. I'd be there.
Maureen
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Maureen, sorry to hear that your BIL is so sick, I know you'd be there in a minute if you weren't in treatment. How many more to go? Same here with the snow, it really came down for about 20 minutes, nothing stuck though, thank goodness. Hope it gets tired of snowing, I have 2 appts. in Rochester, one I can find by myself, so Susan will not need to go, the other on Thursday, to my BS. Not nervous so hopefully my blood pressure will be OK. Also have an appt. with my PCP, who is just 4 blocks away, to go over the blood work she had ordered. Hopefully will not need yet another pill. I ordered DD a light machine for her birthday, she is really affected by this dreary weather, Bday on Monday.It is supposed to be very effective for SAD. Hopefully because I ordered it, the weather will turn to 50's and sunny. Sherry's brother is her only family in N.C., she is originally from Long Island, both her parents have passed away. The 3rd year I taught, I team taught with another teacher, between the 2 of us we had 30 primary aged trainable children. We always took student teachers, since we needed the extra hands. She finished student teaching and was hired on immediately, we have been close ever since. I think she'd like to come back here to live, regardless of the weather, since so many friends are here. The only problem would be medical ins., since she has lupus.It has been in remission for 15 years, but they still consider it chronic. Karen p.s., this turned into a fair sized message, I'm trying to avoid getting on the bike again, I have 20 minutes left to do today.
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Hi Karen, Thanks for the good wishes for BIL, he's a cancer survivor so I worry about him. He's one of the nicest southern gentleman you will ever meet. I'm on 19/28 tx. as of friday. I think I get boosts to 33 total but honestly, I stopped listening after all the info starts coming at me. I want to take Good Friday off and go to the Broadway Market. I took my mom the year she died because she's never been there and the kids enjoyed the outing so I'd like to go again. Feels like Black Friday right after Thanksgiving, it's a tradition now and I'm all about traditions. I'll ask tomorrow. Only puts off tx for one day.
Good luck with your appts. hoping the weather holds for you and good news during Easter week. Sorry to hear about DD, does she take vitamin D? Might help with her moods.
Glad to hear Sherry's family is safe. Please send my regards to her, she was very nice
Shout out to WNY'ers, what are we doing for our get together? Any suggestions? Place, Time, etc...
Hope everyone has a wonderful Easter week. I love holidays, even more now that bc beast reared its ugly head. I even buy new outfits. My mom always did, Easter sunday = new coats, hats, shoes, dresses etc...I think I take after my mom. Make it special. Make it count. Off to watch Desperate housewives, then to bed. Have fun on that bike Karen
Maureen
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How about the first weekend in June, it should be warm by then!! There is a restaurant on Route 5 and Transit, I don't know the name, but it has a huge bison on the upper side. What we did last weekend was call ahead for the reservation, mention it was a reunion of friends that were seeing each other for the first time in 20 years and we would probably be there for an hour or two. We could say we are breast cancer survivors who have been communicating since Jan. and are seeing each other in person for the first time. I'll try to get up that way to get the name of the restaurant. Any other suggestions about a different place, more central to where we all live? There is a Bill Grays on the Transit side, it is in a little plaza on the right if you are coming in from Batavia. It's snowing again, grass is covered. Can't wait for all of us to meet on a warm weather day. Maureen, that's a good idea about the vitamin D, I just got a bottle for 2 for the price of one at Walmart, that is vitamin C and D. I'll have her try it hugs to all, Karen
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Karen where is Route 5 and Transit? I know Transit rd and I know Route 5 but they dont come together. Is this in Williamsville?
Maureen, I am going to the Broadway Market tomarrow with my DD. We also go every year. I have to work on Easter (hospital work) but I get out a 3 just in time for diner at my sisters and then go back to work at 7pm until 11pm. I hope you can take Friday off to go to the Market its so neet there, lots of good food and treats.
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Kindone, I must be mistaken on the address, I'll check with my daughter when she gets home. Thanks for catching that, I'd be sending us to a non-existent restaurant. Karen
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Kindone, I must be mistaken on the address, I'll check with my daughter when she gets home. Thanks for catching that, I'd be sending us to a non-existent restaurant. Karen
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Hi Ladies, Yes!!!! I am off from rads on Good Friday. RO said fine, I can take a break and add onto the end of the following week. So one week from Friday, I will be done with the regular radiaition and have boosts then done. Main and Transit meets in Williamsville. June is a busy month for me, son's prom, graduation, etc... but I can do early to mid June? First or second weekend? As long as the weather's good, I can go wherever? Karen, find out the name of that first place, does it have a website?
Kindone,I'm going to the broadway market with my sisters and maybe all the kids. Depends if they want to get up at 5:30AM because I'm going early. I was there once with my mom, and once with a polish man I was engaged to years ago (boy his mom could cook!!). Anything special you recommend buying?
What's everyone doing for easter? I'm going to sister's house for dinner. She usually has between 30-40 people for dinner every easter. Some times she has brunch but dinner seems to work out better with church schedules and such. Oh well, have to do laundry, DH is coming home tomorrow.
Maureen
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Splash Lagoon is a ton of fun kindone... my son and DH are downstairs working out in the great exercise area. Went to an Amish outlet - tons of very cool things to see. Glad we are mostly indoors... the "spring" is amazingly similar to winter. My daughter said some of the bad weather whipped through toppling trees where she lives... and I guess pretty bad flooding in VA too. Makes the snow less odious, but truly when is it going to end... the snow is still flying. Yikes!! Karen - not sure Friday will work... may extend our vacation a little. Will post when I get back.
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Maureen, I Googled it by looking up restaurants in Williamsville, it does have a wesite. It is called The Buffalo Bison Brew Pub, at 6861 Main St., 716 632 0552. The first weekend in June is perfect, could all the Western New York women please post to see if this is a goodtime for you, Sat. or Sun, It would probably be better to go after the lunch hour, so !:30. It's finally going to happen, I'm so excited to finally be getting together. Have a great time at the Broadway Market, my grandmother used to take me there during the week before Easter. You are almost done with rads, Yay!! The homemade horseradish is delish and it clears the sinuses really fast. hugs to all, Karen P.S. website is The Buffalo Brew Pub.
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Starbeauty, I don't blame you for staying longer, this is no weather to be anxious to come to. I'll wait to hear from you. So glad your son is having a good time, I was a Special Eduation Teacher for 20 years, and then an admistrator for 10 years. It is truly wonderful to work with the children and young adults. Tried to teach regular education for 1 yr. but it just didn't offer the same joy. Karen
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Just noticed this thread. I live in Kenmore, NY and am going through treatments at Roswell. I am in the middle of Week 2 of 7 in my radiation treatments. Had a lumpectomy and re-excision and will be done with treatments after rads. I am 42 years old and am married with a 6 year old son. Little upset about the weather as well, but pretty tired so don't mind staying in most of the time. Just trying to entertain my son during easter break.
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Hi Susan, Welcome to the site. Several women on this site and they are all great. Six year old, boy you must be busy!! So glad to hear you avoided the chemo route, it's not a fun journey. You won't be taking any hormone therapy? Right now I'm in the middle of rads in week 5or 6. I went to a private surgeon, oncologist and radiologist who all worked at Roswell at some point. Heck I even worked at Roswell for 10 years. Love the people I worked with. Currently employed in the private sector. My children are much older than yours. I do have a friend from the area that just had a baby in December, little flower. Hopefully she'll read the thread and jump on.
Karen, Of course, I'm in for the lunch. Anyone else?
Maureen
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Welcome SusanHG, we are all in theW.N.Y. area and are getting together the first weekend in June at the Buffalo Brew Pub in Williamsville. Hope you will get to know us on line and join us, it is truly a fine group of women, to gain support, vent, lean on. The thread has been going on since January. I was a school teacher and now a grandmther, my grandchildren live downstairs from me and on Monday they were bored! Vacation time, all their friends are usually here, so tonight I am supervising 6, 3 boys, 3 girls. They will turn 13 and 14 on Saturday, so really only need supervision. My daughter, whose birthday is tommorrow is going out to dinner ro celebrate with friends. again welcome. Karen
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Welcome Susan, I am Betty from So Buffalo.
Karen, I can make it May 7 or 8th, but not the following weekend, let me know if this is good. Now I know where the Buffalo Brew Pub is. I am excited to meet everyone.
I went to Roswell to Monday ti see a DR. about the redness on my revision, this is the 5th Dr I have seen about this. She said it is vascular which is what the other MD thought and it might take years if ever to go away. I guess is long as its not cancer I can live with that.
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Kindone, can you make it on June 4th or 5th at 1:30?
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Yes, I am sorry I was thinking May sorry. Yes I am off the weekend of June 4 and 5th that would be great.
Also I went to the Broadway Market today, it was very busy. I bought all my favorite things.
Poppy seed roll, The bread with the crumbs on top. (don't know the name) horseradishes for DH and of course chocolate.
Has anyone ever did the Seven Churches on Holy Thursday?
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Kindone, I did them as a high schooler with 2 of my friends, there are or were many Catholic churches in Buffalo. I grew up in Buffalo. I will wait for the rest of the WNYers to get back to me on whether or not they can make it and then call for reservations. That horseradish is potent, love it on beef and weck, my grandmother used to make her own and it was stronger yet.
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Hi All, never did the churches on Holy Thurs. something to put on my list of things to do. I've been so lax on going to church since dx., not sure why just didn't. Need to get back to the swing of things. I'll get in my groove. OMW to p/u DH from the airport, if he gets in, plane was delayed but only a few minutes. I can go first weekend in June. Brew Pub sounds good. I'd give the girls a couple of weeks to respond. A lot of people are on vacation during Easter week.
Will go to the broadway market on Friday, I'm sure it will be a ZOO (LOL) DH loves horseradish so that wil go on the list. rolls w/o seeds will go on list. The coffee crumb cake sounds delish, now I'm hungry
Maureen
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Sure, I'd love to join you all on Jun. 4th or 5th. I avoided chemo by 3 mm.! Immediately after my lumpectomy, there was a question whether I would need chemo or not. I was seeing an oncologist who specializes in hematology (a friend of a friend). She showed me the numbers for distant recurrence, but her numbers were wrong. I decided on chemo initially, according to her numbers, and ordered a wig, scarves, and hats. She then decided to send me to Roswell because I don't think she felt confident advising me. Two oncologists at Roswell agreed no chemo for me, and when they redid my pathology report, they found some errors. Also, my initial breast surgeon took out too many lymph nodes too soon (should have been done at my re-excision). I had calcifications on mammogram, so they thought I just had DCIS but there was a 3 mm. tumor hidden within the DCIS that was too small to see on mammogram. I got very, very lucky. Chemo doesn't start for Triple Negative tumors until 6 mm. (Well, it starts to be considered I should say). So, anyway, enjoying the trials of radiation. I am on my second bout of breast cellulitis and antibiotics, so side effects are really starting for me. Very short of breath due to inflammation of the chest muscles. Starting to feel better though! 29 treatments to go
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I forgot to add-there is no hormonal therapy for triple negatives. Not sure if that is a good or bad thing in my case. Instead, I was told to get down to the bottom of my weight range and try to take in 20% or less of fat. A lot harder than I thought! I am taking a little break on this for my rads. Triple negative breast cancer is thought to be caused by obesity and high fat intake. I have lost 30 lbs. so far, 30 more to go!
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Woops! one more thing. Never heard of the Seven churches of Holy Thursday, but I will be getting my feet washed tomorrow evening at my church. The pastoral associate thought it would be a great experience for me since I am ill, or one of the walking wounded I should say.
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SusanHG, that's wonderful that you will be able to join us, I am waiting for some of our women to return from vacation, then we will finalize our plans. How wonderful your church sounds, and we definitely qualify as the walking wounded. Congratulations on the weight loss, I am struggleing to lose my Arimidex weight and my QuitSmoking weight. I am using the Stop Smoking thread and the Elab project,thread todo so . I am the highest weight I have ever been including pregnant weight, I just started last week and have lost 3 lbs. I also bike an hour a day. Tell me how you are doing it, it certainly is hard. I had a lumpectomy and 6 weeks of radiation.. I too had 2 bouts with cellulitis, have edema and scar tissue from the radiation. Tomorrow, I go for my checkup with the BS, do you get scanxiety, we all do, it is one of the pleasures of BC. I live in Batavia, grew up in Buffalo, I think I'm the oldest in our group, I have a daughter and 2 grandchildren, who live downstairs from me, it is a wonderful arrangement for all of us. My grandchildren turn 13 and 14 on Friday, we are entering the uncharted land of teenagers, so far - so good. I go to Rochester for treatment since it is a little closer than Roswell, have a wonderful team of Doctors now, I have a new PCP and MO.I am so glad you are joining us. Karen
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Hi Karen- Have been at a standstill with my weight loss since my second surgery, but i lost the first thirty pounds the first couple of months after diagnosis. I cut out all meat (I eat only fish but have put back chicken during rads), no sugar, little white flour, and gave up alcohol and coffee. Coffee was a huge problem for me not only because I was addicted to it, but it gives me intense sugar cravings. I had a huge problem with sugar before diagnosis. Now i just allow myself dark chocolate (won't give that up). will get back to the weight loss and exercise after rads. Pretty wiped out already.
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Hello to all my friends in WNY,
Have been away on vacation and reading everything going on, just not much to report. Well, today I had an MRI w/ contrast. Was not expecting the contrast, having a little anxiety about the results. Will find out results tomorrow. Trying to keep positive thoughts.
I think I read something about a get together in June. Please let me know what is being planned. I can't wait to meet everyone.
Sending ((((((HUGS and PRAYERS)))))
Cheryl
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Cheryl, we are planning on getting together on June 4th or 5th at the Buffalo Bison Brew Pub. it is on Main and Transit in Williamsville, at 1:30, so we can miss the lunch crowd. Let me know if that works for you. Starbeauty is on vacation and are waiting to hear from bevin, EllieD and Yummy. That will make 9 of us, if all can come. Hope I haven't missed anyone. Karen
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Hi All,
Susan, WOW you lost a lot of weight, good for you!! Your church sounds so cool.
Heymoose, Welcome back!! Hope your vacation was wonderful. Where did you go? Sorry about the MRI with contrast, that stuff always gives me weird warm feelings. We're all there holding your hand through the scanxiety too!! Sending positive thoughts too.
Hi Karen, Hope all is well. June can't come fast enough, I want lunch with great friends and warm weather. Not sure if I will be wigless by then, one can only hope
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Hi Maureen, Met with my new PCP at 8:45, she had all my blood work results. Bad cholestral too high, but good cholestral is high also, she wants to give it 3 mos. as I lost 4 lbs. and am exercising too, to see if I can do it on diet alone. Thyroid is good, so the weight gain is me overeatting and under exercising. Then, onto BS in Rochester, all clear, so next appt is in a year, YAY. He suggested seeing a PS to get breasts symetrical, called my insurance co., they are sending med. forms for BS and PS to fill out. I currently have a 20 yr. old breast and a 62yr. old one. It's a wonder I don't list to the Right. Where else can you speak so frankly as on this site. I agree June cannot come quick enough, we'll need nametags as starbeauty's real name is esther.bevin, is? I feel like a little kid going to a slumber party for the first time. For those of us with screen names, can you just once sign your next post with your real name, so we don't have to wear nametags, it'll feel lke a workshop conference other wise Have fun tomorrow, they are expecting to have record crowds. If you are wigless, you'll look like a top singer with a edgie haircut! Everybody will think you're from American Idol! Hugs to you, Karen
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Hi bevin, EllieD and Yummy, we are starting to plan for our get together, are you three on vacation,have not heard from you in a while, Hope all is well with each of you. We picked the 4th or 5th of june. Does that work for you? hugs to you, Karen
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Shout out to D4hope, Yummy and KJbell, ru interested in joining us as well?
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Great news!!!!!!!!!!!!
MRI was a benign scan. So happy.
Just wondering if anyone will be attending the Susan G. Komen Survivor Luncheon on May 7 at the convention center. If you would like to attend please register on-line prior to 4/25. The website is wwwkomenwny.org. I hope to see everyone there. Let me know if you will be attending.
Sending (((((HUGS and PRAYERS)))))
Cheryl
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Hi Cheryl, what great news, I bet you are so relieved. Great Easter gift! Karen
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Happy Easter to all!
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Thanks heymoose, and a Happy Easter to you too. Karen
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Cheryl, great news!!!! Sorry no plans to go to the Susan B Komen lunch. Sent out an FYI on this thread a while ago and no one seemed to want to go. Have fun.
Happy Easter everyone.
Love,
Maureen
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Happy Easter sisters, have a wonderful day.
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Happy Easter to all our WNY crew. Getting closer to our June meeting. Maureen - thanks for starting this thread, It is a wonderful site with supportive, intelligent women, who have grown into a bunch of friends
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HI everyone,
Sorry I have been out of touch. I had a grand vacation and great weather. It'll be hard to get back in the swing of work, thats for sure!
Happy Easter to all of you celebrating and if you celebrate passover or other holy holiday this week, happy holiday to you as well. So happy the rain held off and the kids were able to have Easter egg hunts!
I need to catch up on all the comments but did see an early June event is planned. Can likely make that date but need to arrange a sitter. So when the date is confirmed let me know for sure.
Talk soon.
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Hi Bevin,we've been missing you. I'm so glad you had good weather and a great vacation, I know how hard it is to trade that for work!!! Ladies which day is better Sat. or Sun.? I have 6 people marked as going. Is there anyone else going? Responses from kindone,Maureen,Susan,heymoose, and starbeauty.
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Hi Bevin,we've been missing you. I'm so glad you had good weather and a great vacation, I know how hard it is to trade that for work!!! Ladies which day is better Sat. or Sun.? I have 6 people marked as going. Is there anyone else going? Responses from me kindone,Maureen,Susan,heymoose, and starbeauty.
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Hi Karen - back from vacation - what a great time... I even went down some of the slides and swam the "lazy river" and my foob was fine.
Looking forward to the late lunch in June... and getting to meet everyone... catching up on all the WNY news... can't believe the sun is still hiding on us. Esther 0 -
Happy Monday Ladies,
Would love to meet you all, and while I will more than likely be working 7-3 that Sunday, don't make plans around me. As I'm sure it is with all of you life gets confusing and I never know when I actually AM available for most things until that day.
Just realized we have Mothers Day in 2 weeks and sent DH a text "what r we doin for Mom's d?" to which he replied 'say "hi mom"'.. so much help! Still feels like winter and we've already booked most weekends this summer between showers and weddings! Oh well, if the weather's good, really can't complain. Back to lunch, and then 3 more of work!
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HI Ladies, I can do Sat or Sunday. Whatever is easier for people working weekends. Hope you holiday was wonderful. Thanks for reminding me about passover. One improvement I need to make: be aware of other's religion!!
Easter was good, daughter broke it off with boyfriend. I'm a little sad, I liked him and they've been together for 5 years. Better now than later with children involved I suppose. Just got so used to him being around, he's part of the family, but I don't have to date him. Don't know what happened but she's not saying much either.
Rads are going okay, having a terrible time with my skin, really raw. I'm trying everything. Glad when this will be over. Then onto hormones.
Maureen
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Maureen, my daughter broke up from her 4 yr. boyfriend too. DD doesn't say much about why, I liked him, but I Know he didn't relate to a 13 yr. old and a 14 yr. old and that was a problem, DD comes with her children first and foremost. She is a great mom, and she is a package deal. I remember when she was in high school I had to drive home the boy she had just broken up with, and he cried all the way to his home, I felt so bad for him. He was just so sad. About the burn, there is a prescription cream that is called Silverdine or something like that, that really works on burns, maybe your RO could prescribe it for you, I do know it is expensive without a drug card. I too am fine with Sat and Sun. waiting to hear from a few more of us Karen
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HI everyone- are you talking about June 4th or 5th? I'd like to come, so count me in. At this point, aside from getting a sitter for the chosen date, I dont have any other plans that would override this!! Lets choose somewhere we can sit outside, have a drink/lunch?
Maureen- sad to hear about your daughter and her Bo, BUT, I am really really happy to know you raised and developed your daughter into a strong young lady; and that for what ever reason she had, she was able to carry through with a tough decision like that. You obviously raised a strong young lady with a great sense of self esteem. !!
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I am a fellow Western New Yorker. I live in North Amherst/Getzville. I am a few years out from my diagnosis but I feel as if I can't leave breast cancer behind. I had a Bilateral Mastectomy with Immediate Reconstruction (Ha!). I developed Post Mastectomy Pain Syndrome since my surgeries that reminds me daily that I had breast cancer. I work full time so that helps me to not focus on it too much. I have two boys, one is almost 18 and my youngest is 15. My oldest is graduating from high school this year and going to college in the fall. I can't believe that I am actually old enough to have a 18 year old. In my mind I am still 25! Breast cancer has taught my kids to appreciate life more and to not take advantage of good health. My kids tell me of so many kids in their school that drink and take drugs. I guess that is one big positive of breast cancer. I would love to meet up with anyone in the area.I am not entirely familiar with this forum, so I hope that I am doing this correctly. Let me know if anyone would need any help since I am not in any form of active treatment and wouild be more then happy to help out. Oh I forgot to wish everyone a Happy Easter/Passover.
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Dear Pahsa, We are a group of about 9 women who bonded on this site and been communicating , some of us since January. Some of us are in active treatment, some finished except for the AI. We talk about many subjects, cancer, children, scan anxiety... We hold each other up, wait with those who are awaiting test results but have never met,Maureen and I did get to have coffee together. It was a joyful time. From the beginning, we had plans to meet in May or June. we have so far narrowed it down to the 4th or 5th of June. Waiting for a few more replies to pick the day. We would welcome a new member and have you join us in June. I'm sure others will stop by today to greet you.If you read a few pages, you will get an idea of who we are and what we talk about. Welcome pahsa! Karen
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Dear Pahsa, We are a group of about 9 women who bonded on this site and been communicating , some of us since January. Some of us are in active treatment, some finished except for the AI. We talk about many subjects, cancer, children, scan anxiety... We hold each other up, wait with those who are awaiting test results but have never met,Maureen and I did get to have coffee together. It was a joyful time. From the beginning, we had plans to meet in May or June. we have so far narrowed it down to the 4th or 5th of June. Waiting for a few more replies to pick the day. We would welcome a new member and have you join us in June. I'm sure others will stop by today to greet you.If you read a few pages, you will get an idea of who we are and what we talk about. Welcome pahsa! Karen ps your comments of leaving BC but having trouble with that and reminders of BC are some of our thoughts too.
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Welcome pahsa! Glad you could join us!! Understand your trouble with leaving bc behind, I want to everyday but still in active tx. so it's the reoccurring nightmare (LOL). I get the feeling I live very close to you. Thank you for the offer of help, one thing for sure, when you have bc, you quickly learn who your friends are and are not yielding surprising results. Please join us for our lunch in June, we have fun and keep posting, we're all in this together no matter how long it's been since active tx.
Karen: How did the birthday go? Did the kids have fun? BTW, how's Emily coping these day? Pray for her often.
Bevin, Glad you had a wonderful time, lucky you.
Star: Hope you had a wonderful time at the lagoon, that place is sooo much fun.
Hi YUMMY, hope all is well with you, Mother's Day, a yes, just around the corner. Men tend to think of these things AT THE LAST MINUTE!! (LOL) gotta love em though.
So finally getting the door fixed tomorrow, THANK GOD. Went to rads today and they're stopping the whole tx. and just doing the boosts for now cause my skin is sooo bad, have silvaderm cream and need to go out to dinner for DS 18th birthday,,,,,wait he can't be that old because I'm not that old!! Work is getting to me today, I just feel like telling people to go crawl in a hole, so unlike me. I think they're radiating my brain sometimes. Quick question, did anyone get blurry vision when going through irradiation or do I have chemo to thank for that? I will not chalk it up to old age because I'm not old, I want to get old but with grace and over many, many years to come.
ElleD where did you go?
Hi Kindone, you pick the day, whatever is easier for you. I remember when I worked in the medical field, prior to private sector, and you work any day, any time 24/7 most difficult part of that job. When I went to work in private sector, they asked if I'd be willing to work Xmas eve morning for a few hours, hell I didn't care, I've worked Xmas day double shifts that request was a gift, it's all in the attitude I guess.
Gotta get back to work and clear the area for MY NEW DOOR, that wasn't too expensive, life is good.
Hugs,
Maureen
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Welcome Pasha... I'm not sure we ever leave BC behind... just learn to cope better each day. I'm over 1 year post surgery - and had a little mini-meltdown last night when the PCP office called to schedule an appointment about my labs... freaked out... was a tad nuts on the phone. Just to say - that it is not behind me... it is still with me... but today - I am coping much better than last night.
Hugs to you Pasha - hope you find this wonderfully supportive group just what you needed. 0 -
Wow! What a warm welcome. I did not expect so many wonderful replies. Maureen,if you live in East Amherst then you are pretty close to me. where does your son go? I noticed that you mentioned something about the medical field, are you a nurse? I am a registered nurse. I would love to get to know people that live close to me but I don't want to just crash into your group and upset anyone.
starbeauty-I know how you feel about having a meltdown when your MD called . I get nervous at any kind of doctors appt, thinking that they are going to find something. . It does seem to get a little less anxiety producing as time goes on though.
Maureen- Sorry to hear about your skin. It sounds absolutely painful. Are you taking any medications that may be making you have blurry vision? Prednisone can cause visual changes. I am on Neurontin for nerve pain and I have noticed some visual changes from it.
Karen- Thank you for your warm welcome and intro into your group.It sounds like you guys have formed such a wonderful bond over time. I am glad that you have been able to help each other through the trials that breast cancer puts us through.
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Hi you wonderful women!
I haven't been online in a while, and when I looked for you, you were asking about me! I am doing fine down here in the Southern Tier except for this darn weather. Geez. I've been fighting a nasty cold but all in all things are good.
It's good to hear that you all are relatively good too. I have to look at our calendar to see if I can get away in June. I'd love to meet you.
We're in the middle of a huge thunderstorm, so I'm signing off for now. Take care.
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pahsa, crashing is most definitely allowed, it is even encouraged. We'd love for you to join our group. Maureen, the party just continues, DGS had his last Sat. with his friends, didn't want a cake, wanted to treat his friends to a Burger King excursion, 5 boys, they loved it, cake and ice cream on Sunday for family, one at their dada's house, then back here for our family and friends, Mica chose this upcoming Sat., a sleepover with 7 of her friends. And then we had Easter baskets too. I'm all chocolated out. Addison chose the cakes, triple chocolate fudge cake. They loved their presents, and had a great time spending their money gift from me on what they wanted, DGS on Ebay, DGD on a shopping excursion to Bflo, DD and DGD had a trip to Elmwood Ave to go to the little boutiques for her May dance dress, she looks stunning in it and to Marshalls for Track clothes. Now I have 2 teenagers. Now that's truly old, but I don't feel it, somedays my knees feel it, a thank you to Arimidex. Emily spent her Easter vacation in North Carolina with an aunt she is close to. Came back Wed. and spent the night here, she looked so at ease, C+ FS, will continue to monitor the home with drop in visits and counseling for both Emmie and her sister. It was so nice to see her smiling, hadn't seen that since before her mom passed. This is her designated safe house and either Susan or I are always home. Cannot wait to meet everyone, bevin - pick our day and I'll make reservations for our crew, which is nicely growing in number.
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Hi Pasha - welcome to our group. so glad you joined us.
I too live in Amherst/Williamsville area. I am 5 months out from finishing my radiation and we're keeping track of some other areas but all in all doing very well. Especially since I just returned from vacation. ahhhhh!!
I have a young daughter who goes to catholic school - not in highschool yet. I agree with you though, I am 46 and feel in my mind like I am 29. Except , that I am still carrying my post pregnancy weight gain !! Ha!!
Oh well, hopefully with the nice weather, I can get out and begin walking in the evenings. You and Maureen are close by to me, if you like walking let me know. Always looking for someone to go with. Better yet - I want to start rollerblading again on the North Forest path. But - definately need a partner to walk or rollerblade there!
Karen- I love that name Addison. The first time I heard it was on that medical show that was popular a bit back, I fell in love with the name then! Sounds like you had a really great holiday week.
Starbeauty- hope eveyrthing is okay with your test results. When do you go in?
Ok- gotta run, its count down to the Sabres Game!! Let's go BUffalo!!!!!!!!!!!!
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Hi Pasha, my son goes to north too, and a senior. I live very close to Lou Gerig park where son played ball for years. DD graduated from north too, she was into soccer until injury sidelined her, tough adjustment for her. Not a nurse, worked in Lab medicine at roswell for 10years, stayed home with kids for a few years and returned to bioengineering firm in GI for last 15years. Love/hate relationship with my job. Only meds are vitamins at this point but will start AI post rads, not looking foward to that med. You are not crashing anything, please don't ever think that way
I like to walk, just don't have the energy right now but will join when energy returns.
Sabres are making me mad so I just turned the TV off.
ElleD and southern tier friends, stay safe, watching the weather channel and Syracuse is really flooded. Geesh, what's going on with this weather. Try to join us, we'll have so much fun, I can't wait, maybe I'll go topless to our outing (LOL)
I WANT HAIR, MORE HAIR, MORE HAIR!!!
Love,
Maureen
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oh Sabres, such a poor performance. Changed the channel, too disapointing.
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Ditto!
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Hello Ladies, Welcome Pasha, I also not in active treatment except Al, out 3 yrs. Maureen and I also went to the same surgeon and onc as you. We have a lot in common and we will have a lot to talk about.
Maureen, That is my weekend off so it don't matter to me which day we chose. What ever day is best for all. I'll be there.
I just want to throw this out, I am on the Catholic site also and in May we are doing a novena to The Lady of Fantma. I am taking our prayer request up to her shrine in Lewiston, so if any one is interested you may PM me or just let me know your request and I will be happy to take it along with me.
I am going to Virgina Beach May 12-17th so I think it will be after that. I am so excited to be in warm weather. I can't wait.
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Hi Ladies, Let's make it Saturday then, so we can rest on Sunday. Karen, ru calling in reservations or do you want me to? Let me know.
Guess what? THEY ARE INSTALLING MY DOOR, doing a great job, and the guy installing is cute too! Great day.
I had my first boost today went okay. Skin is a mess though. So here I sit with wig (too hot to wear wig) and I won't take it off because of the eye candy installing the door, two shirts because I can't wear a bra and hot boob (LOL)!!!
Kindone: Lady of Fatima is a beautiful place, please pray for all of the WNY girl's health and we beat this beast FOREVER. You are such a sweet woman, I can't wait to meet you and the rest of the girls
So the Sabres stunk, better luck next year, at their worst, they are always better than the Bills hehehehe
Also just found out DS ruined DH's tire. Took it back because it was wearing funny and they say it's caused by doing burnouts....don't think my son will be driving hubby's car anytime soon anymore. Teenagers, pain in the butt!!!
Gotta run, will post later
Maureen
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Hi Maureen, boy did the wind and rain just pick up, Both kids home, called practice off thank goodness. You can call for the reservation, I have you, me,kindone, heymoose, Susan HG, pasha, bevin,possibly Yummy, and starbeauty as going. They just announced tornado warnings in Chauttaqua (SP?) and Alleghany counties moving north. Stay safe ladies, the rain is coming in sideways sheets. Stay safe everyone Karen
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We really did luck out with the weather tonight. I had the weather channel on and they showed these horrible storms and tornadoes in Alabama and Mississippi. I heard that we had a tornado watch and really did not know what I should be doing during it. I am familar with what to do during a blizzard but not during a tornado.("buy a six pack and stay home")
Kindone-I never have been to Lady of Fatima. I am very interested to learn about it. I am Catholic and actually used to work at my parish before I went back into nursing. Believe it or not I do not know anything about it and it is so close.
Maureen- Could you PM your son's name? I am sure our kids probably know each other and who knows, maybe we have met before? I can't believe that I decided out if the blue to look at this website again and found people that live so close by. I truly believe in fate and am so glad that I was able to "meet" you guys. I have IRL friends but they don't always get the cancer thing. I had a melt-down today looking for a good sports bra. I want something to give good support but need to be careful how it will rub on the sides d/t scars from my skin grafts from my nipple reconstructions. Most people never have to worry how well a bra or certain materials will cover or not cover scars from our surgeries. I don't know about you guys but I have trouble wearing very light colored fabrics. I love those gauzy blouses but always worry about coverage.Don't mean to be a whiner tonight,just in a funk today. I'm going to go make a cup of tea and hopefully snap out of my mood. What helps you to get out of the cancer blahs? Looking for any suggestions.
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aww Pasha - feel so bad that you're in a blue mood. When I am, I find a nice massage is great ( obviously cost involved here) and if I need a quick easy pick me up, I walk my dog. She makes me happy and I love the excercise. It clears my mind. My girlfriend is a huge Yogi and she really touts the benefits of restorative yoga to relieve stress. Food wise, chamomile (sp?) tea is supposed to calm the nerves.
Good luck, hope you feel better.
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Pasha, so sorry you're having the cancer blues today. We get all the blues and it's perfectly normal. This weather doesn't help either. Usually when I get down, I get on the boards or call a friend or do some work at home. Wish I could help you more but sometimes you just need to have someone understand what bc does to a person. Sitting here crying for no reason, just need to cry and I will let it come and go. We go through so much and everyone expects you to just bounce back, it's more complicated than that. ((((((((((hugs to you)))))))))))))). I mourn my old life frequently.
We are having really strange weather, 40's 80's now 40's for tomorrow, what the heck? I just want warm, sunny weather well maybe sunny after radiation cause I already have such a burn right now, might take weeks for this to heal.
Just watching the news, is everyone okay with this weather? Please stay safe.
Karen, I'll call tomorrow night for reservations.
Maureen
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By the way Pasha, I laughed out loud with the buy a six pack comment. That comment reminds me of the blizzard of '77. Only on the WNY thread will everyone know what we're talking about. We are a very special group. And we're tough cookies to live in the area, put up with these taxes and weather and not lose our minds!!!
Hugs
Maureen
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Just got back from an assembly at our middle school. Both my grandchildren were inducted in the Honor Society. I.m a proud grandmother for sure. Is anyone having trouble with depth perception? hugs to all Karen
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The honor society, how proud you must be of your wonderful grandchildren, you and your daughter are certainly doing something right.
I'm still having problems with blurry vision especially in my left eye, been mentioning it since pre-chemo. I think this stuff effects your eyesight for sure.
Maureen
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Good Evening! I want to thank everyone for their words of support. I had a couple cups of Chamomille(sp?) tea and read a trashy mystery novel. Sometimes a good nights sleep works wonders on your psyche. Not much new going on other than dealing with the wind. If I could have put a sail on top of my truck, I would have saved on gas driving during the day today.
Karen- Congratulations on your grandchildren's success! You have every right to be proud. Have you just noticed a change in your depth perception recently? I did not see your stats, did you have chemo? What age range are you in? Sorry for all the questions, it is my nursing background trying to figure medical issues out. It also goes along with my TV show "House" addiction. Since I have gotten older, I have noticed a general decrease in my depth perception along with my reading vision loss. Certain medications can also cause visual changes.
Bevin- Walking the dog is a great idea. I actually have 3.I am seriosly not crazy. What kind of dog do you have? I have been interested in starting Yoga and went down to the Himalayan Institute on Delaware in Buffalo right after I was diagnosed. I really enjoyed the classes but I would rather find somwhere closer to where I live. I drive a lot for my job and don't really feel like driving when I am done for the day. Does anybody know of a good yoga place in the northtowns?
Maureen- How is your skin doing? I hope that it is starting to get better.
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Pasha, I skipped four posts and just reread to find you had a difficult day. Those just sneak up on you, don't they? I come on the boards, drink chamomile tea ( my mother used to give it to me when I was sick), read a simple book and take a nap, you got all the bases covered. My Gdaughter has her birthday sleepover tonight with 10 girls and then the party season is over for another year! I noticed it around Nov., I had a lumpectomy and rads. for 7 weeks. Also started taking Arimidex around then, can't remember actual date, I am 62. It has gotten progressively worse, yesterday at the induction, the stairs were 1 color on the step and a different color on the riser, and it was really bad. I have a vision test on Mon., thought it might be that. If it doesn't improve, I will call my PCP. It is scaring me, always behind any symptoms the big beast lurks. Hi Maureen, bevin, kindone,Susan,heymoose, starbeauty, and Yummy. Yummy, now that we have a definite date will you be able to make it? Itis on Sat. June 4th at !:30. Hey ladies isn't it nice to have a nurse among us!!! Maureen, I'm with you I think It's a side effect, lovely rads. or meds. Hugs to all, Karen
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HI Pasha- My good friend goes to a place in williamsville for Yoga that she just loves. Let me get the name of it and I'll send it along.
Karen- how lovely for you to be so young and a Grandma. You must be very proud. Honor society is a wonderful accomplishment.
Maureen- sorry your skin is doing so badley. It must be that irish blood! It seems like they are paying attention though and not letting it get out of hand. You dont want those open blisters to get infected. Make sure you keep the area covered.
Okay- so I dont want to sound paranoid, but are we planning on sending a PM on which restaurant we are meeting at? I am always leery of weirdos lurking on these boards and you never know.
Anyone watch the big Royal Wedding. I think her dress was really beautiful. I am sure they are making copies of it now for the wedding stores!
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I PM'ed bevin on the date ( june 4th at 1:30 at the Buffalo Bison Brew Pub at Main and Transit in Williamsville) Starbeauty and I are meeting on Wed. for coffee, she sounds delightfull, I'm off to bed, I watched the whole Wedding, it was beautiful, Kate looked beautiful, but I don't usually get up that early. Maureen, hope you are healing up and that it isn't painfull. So much for my comment that rads are a walk in the park. Don't hesitate to ask for a pain pill. It feels like a bunch of old friends when you first meet. hugs to all, Karen
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Pasha welcome!
To all my other wonderful WNY friends, HI!!!!!!!!!!!!
I have been away for awhile. Trying to catch up. Pasha you will enjoy this group of friends, they are very supportive and have a great sense of humor.
I will be a 3 year survivor the end of May and still have some really bad days. I have found that my way of dealing with them varys. One day I may just cry for awhile, the next I may be working out at the gym or just having a quite moment with a glass of wine and sometimes I call one of my friends for support. they all work for me and I hope they may help you.
It will be great to meet everyone. I am sending (((((Hugs and Prayers to all))))))
Your Friend,
Cheryl
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HI All, Calling tomorrow to solidify our get together. I'll PM everyone with the details as Bevin brings up a good point. I will make the reservations generous so if anyone hasn't responded don't fret, there will be room, we will make room.
So this is the start of the last week of radiation. I'm feeling, happy, nervous, relieved, scared, accomplished, deserted....this is ridiculous, so many emotions, I don't know where to begin.
Busy weekend: DS 18th birthday party, 20+ people at the house till after midnight including dinner, cake, decorating house etc,,,,haven't really tried to do a party since dx. last August. On Sat, Celebrated 23 wonderful years of marriage, a good marriage too. We went to the casino, I've been there 3 times in my life. Won money and lost money, had a great dinner and enjoyed DH company, then I got so tired, came home and fell asleep at 8PM, yep, no typo 8PM
Crazy, but hubby understood. Today I sat on the couch and did some laundry, don't know why I'm so tired these past couple of days. Is this a se of rads? If yes, when does it go away. DD is so busy I feel sorry for her, finals, work, breakup and me think it's starting to get to her. DH will be home all week which is a blessing, he can help out keeping the house clean, calm and orderly, things I really need to keep my sanity. I'll post tomorrow after work, the next couple of months will be crazy. Maureen
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Hi Maureen, I had the same feelings when I was finished with rads, didn't know if I was happy or sad. Was tired, I could literally fall asleep sitting up. As I recall, rads are an accumulating tiredness, the last week I was dragging, it lasted for a few weeks after that. Doesn't the whole experience feel like a blur now, the diagnosis, the treament all the appts., weeks of rads and for you those terrible weeks of chemo. I know with my daughter when she broke off a 4 yr. relationship 1 month ago, driving me all around, two birthday parties, Easter, Driving the kids to their track events, I was worried about her, especially since she didn't want to talk about it, as mom's you just want to fix things. I took over the track events, and after about 3 weeks she started to confide in me. Sometimes I'd just go up to her and hug her. Now it will calm down a little bit, both DGchildren will spend the weekend coming up with their other grandma and she'll have 2 whole days to just be her. Meeting starbeauty, Esther, on Wed. for coffee, talked to her on the phone, she sounds really nice, and 1 month later - all of us. Have an app't to change my hair tomorrow, so you'll see a new do in June, I decided I didn't like the gray haired lady looking at me in the mirror. hugs to you - Karen
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Maureen - you sound really positive despite the hit radiation is giving you. When I ended treatment I was seriously depressed for about 3-4 months. Onc put me on anti-depression meds - only made me worse... so I really hit the gym. It helped me so much... I HATE exercise, but something about doing it makes me feel better in the end. My DH has done it with me... so it isn't so bad.
I can't wait to meet Karen - we are having coffee this week. I am so glad I found all of you on this thread... it really helps me feel like I am not on this wild and choppy sea of BC madness alone. Looking forward to the June date!!!
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Maureen sorry you are feeling so tired. Fatigue is one of the big side effects of radiation. The postive of this, is that you are almost done so it will start to get better soon. Be kind to yourself and give your body the rest it needs for the next few weeks. I was at the casino in NF this past weekend also. My parents took our family out for my son's 18th birthday at the Italian restaurant there. It was our first time there and we were very impressed with everything, especially how crowded it was. The coincidences between our lives are amazing!
heymoose- Thank you for your welcome
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Hello Maureen- RADSs wiped me out. I think I was pretty exhausted for 2 mos afterwards. I also picked up colds really easily so stay away from sick people and wash you hands frequently!
Starbeauty, sorry the meds didnt work, did they try a lower dose or a different type. Glad the Gym is doing it for you. Natural endorphins work wonders!
The casino sounds like fun. I may need to get there one of these days!
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Hi All, Finished my boosts today and have THREE MORE RADS LEFT, then I do the happy dance Yahoo!!!! Feeling better today, RO did a MRI because of headache, dizziness, fatigue etc.... and it's normal. Boy that was stressful. I told him today I'm having more issues with radiation than I did with chemo. They RO and MO feel the issues are a delayed reaction to chemo, can be uncommon but real and can last for 6-12months geesh, will I ever move beyond this crap?
On a good note, I made our reservations today and PM everyone with the details. If you want to join us (ALL ARE WELCOME) please send me a PM and I'll provide details. I'm so excited, it feels like a sunny day Oh wait, it's been raining for days and days and days, the tulips, daffodils etc. ... really look pretty and can't wait to go to the farmer's market...with all this rain they should get a good crop this year. What farmer's market is everyone's favorite?
Starbeauty: No depression, not allowed at least not yet. I get so much support from my breastcancer.org friends I don't have time to get depressed. All the ladies on this thread just pick me up and make me move beyond that dark place, so thank you to all my friends.
Pasha, So funny about the casino, I'm still licking my wounds, not one to blow money easily and losing money is a sore subject, but we had fun, fun, fun. Probably walked by you at the casino and didn't know it.
Bevin, we should plan an outing to the casino, it is fun in moderation. I see people with cards and free rooms etc.... and think how much did they spend to get these perks? Beautiful place with shops and really good buffet.
Off to another meeting. Sometimes I feel like saying shut up already while the phone is on mute....really important to make sure the phone is on mute
Love,
Maureen
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Hi Maureen, 3 more to go - YEAH. So glad the MRI was normal, it must have been scary waiting for the results. Meeting starbeauty tomorrow morning at Tim Hortons, we have descriptions of what we will be wearing so can find each other. Wearing raincoat in honor of our lovely weather, is this spring? There is a farmers market in Batavia, also one close bye in Elba, where they make great homemade pies, the lemon meringue (sp?), is fantastic, as is the raspberry. Just got the pictures my friend Sherry took of us, they look great, bringing them to coffee tomorrow, so Esther will get to meet you too. See you soon, Karen
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My husband's favorite pie is raspberry. Glad you got the pictures, can't wait to see them. I'll have to remember to bring my camera to our outing!!! I'm planning on looking different when we meet cause I really want to go topless. Hair isn't that long though and still a little leery. Have fun tomorrow with Esther and have a french vanilla cappuccino for me!! ( I really need to pay attention to this meeting but my mind is wandering, coffee, beach, sun, music, buffalo brew, etc.... LOL)
Maureen
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rain rain go away come again another day.... UGHHHH. I know we need mother nature, but this is WAY too much.
Maureen - so happy you're almost done. Dont be surprised if you're upset on the last day. I was, I felt like I was losing a bunch of friends and then was losing all my support in kicking this to the curb. The transition to not going somewhere every day, while you quickly adjust is an odd feeling that day. Assume you'll be on an AI after?
Ahh Timmy Ho's, I am so jealous. I missed my morning cup of Joe this morning as I was running late. Have a extra large cup for me too Karen and Starbeauty.
I like Farmers markets too, but given I am such a cookie aholic, I end up buying the good baked goods and not the fruits and veggies
TTYL
Bevin
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Bevin...I am sooooooooo looking forward to it! I am so torn...do I have the ice cap or not....because it is terrible for me? Oh these huge decisions are killing me!
Maureen so glad you are almost done with rads... Rads were the hardest part for me... Couldn't finish... Skin devastated... And then the terrible fatigue and depression. I'm so glad you are putting it behind you soon!0 -
Hey all, had a great visit with starbeauty today, where else can you begin to talk bout the state of your cancer within 2 minutes of talking to each other. I think we have the strongest, most intelligent women in BC.org. I predict June 4th will be a glorious time. Esther and I will be driving up together. Our conversations, at lunch will be so validating to us, sunshine tomorrow, enjoy. Karen We've waited so long for it, summer better last thru to October!!
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Hi All,
Karen: glad to hear you and Esther had a great visit and good conversation. Agree with the strongest, most intelligent women. I spoke to another bc survivor from WNY and encouraged her to join our thread. Invited her to our get together as well so excited she'll be joining our group. Glad you have a companion to drive up for the lunch too. Did you go to the eye doc yet?
Bevin, I get the cookie addiction, I love any sweet especially since BC.
Quiet on the thread lately, where is everyone?
Me, Busy with six sigma training today, all day ughhhh. Getting ready to watch DVR of survivor one of my favortie shows. Guess what? TWO MORE TO GO!!!!!!! Yahooo!!!! Skin has healed nicely.
Maureen
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Pasha, Forgot to ask, Did you win at the casino?
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Hey anyone out there from the southern part of Western NY? I'm near the border...you know where we sneak across to PA for cheap gas and no clothes tax!
Diagonised in February, surgery march, just started chemo yesterday. Still uncertain about all these meds I'm taking, but they are helping. Neulasta shot tomorrow.
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Hi Linda and welcome to this thread. Sorry you joined the bc club but you've come to the right place. There are some women from southern tier hopefully they'll jump on soon to welcome you to the thread. Sounds like you're on the rollercoaster. I had surgery, chemo and finishing rads this week so totally understand your challenges. What type of chemo?
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Hello everyone! Hope everyone is doing well. I am waiting for my husband to get done with whatever he is doing so that we can watch American Idol and Survivor that we DVRed. I enjoy watching both of these shows. I think that it is an escape from reality for me.
I learned from another post on BCO about post mastectomy pain syndrome and its prevalence amongst women that have had breast surgery. I don't want to scare anyone, but I had no idea that it effects 20-30% women after surgery.I also learned of things that I could be doing that my pain doctor never mentioned,such as Physical Therapy by a lymphedema trained specialist and a compression vest. I found a Physical therapist that also specializes in lymphedema in the area. Before coming to BCO the only therapist that I could find was in Rochester,which is too far to go on a regular basis. The physical therapist is:
Garrett, Tara S
PT, CLT-LANA
Western New York Breast Health
3915 Sheridan Dr.
Amherst, NY 14221 USA
Phone: (716) 632-7465I am going next week for my first appt. Hopefully she can help with my pain issues. After explaining things to her over the phone she felt that she could do things to improve my situation. Yeah!!!!
Maureen- We did not gamble since we had the boys with us. A chaperone had to escort us across the casino floor so that we could get to the restaurant from the entrance we came in. My husband walked with the escort and our two boys and then I followed with my dad and me pushing my mom in a wheelchair. My parents are both in their 80's and not in the greatest health but were excited to try someplace new. So if you saw a crazy middle-aged women looking frazzled pushing a wheelchair with an elderly woman in it and elderly gentleman tagging along behind then you saw me! CONGRATULATIONS! on finishing treatment. I'm sure you will be glad to have it behind you.
I enjoy going to the market at Transit and Millersport Hwy. I also enjoy stopping at markets that I go by while I am working. I have the Southeast part of Erie County as my territory for work so I get the freshest best corn all summer.Yum! I can't wait.
Any kind of sweets are good, especially fresh baked. It seems that all markets and stands have the best baked goods.My theory is that the fruits and vegetables balance out the sweets.Linda- I am in the north towns but as I just wrote,I am in the southern tier everyday. Welcome and I hope for easy side effect free chemo for you. Was your tumor hormone postive?
Karen and Esther- I'm glad that you two were able to meet. I guess that one good thing about going through breast cancer is meeting wonderful women that you wouldn't have otherwise met. Sorry for writng such long posts but I am a talker IRL also!
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Maureen, did go see the eye doctor, I thought I had gone three years ago, last exam was2006!! I have the beginning of a cataract, but said we'll just get my exams every year to keep track, now I feel old. My near vision was way different, Had to boost up the strengh quite a bit, and the far vision had changed quite a bit too. He said the combo could be the cause of the problem of depth perception New glasses in, in 6 - 10 days,can't wait. Boy, another member, welcome Linda, you have joined a great group, supportive, nurturing, knowledgeable and just plain fun. Glad to have you. I drive down to Pa. about 1x a month, go through Ripley on the 90 - is that where you are? Karen
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Hi pasha, I love long posts, you'll see, some of my posts go on and on. That is the one good thing that BC brings, all these wonderful women who as you say, I'd never had met. Ready for bed, I've been pushing my exercise, Friday is check in time for the ELab project, I better have lost weight, my legs are like wet noodles.
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Hi All, Just enjoying a delightful day in WNY, sun shining LAST TX tomorrow, boy am I excited. Then onto the hormone therapy.
Pasha, Long posts are fun to read. I went to and LE in Clarence, she said all was good but to check back after radiation for additional measurements. The RO said not to worry about the air rides unless they are really long (Europe etc...) then consider the sleeve. Sometimes sleeves can do more harm than good. I'd discuss with the LE. Hope she helps with the pain issues. I go to "the market" too!! Love their veggies and meats. Pies, if you can get them are delicious too!!
Karen, good luck with the e-lab today hope numbers are down although I've met you and think you are fine just the way you are
Glad to hear the eye thing isn't too serious and new glasses should help. Hi everyone else today, post and let us know how things are going.
Maureen
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Hi all... Well what a great relief it was to simply talk nonstop to Karen! She is so thoughtful in her responses and I just enjoyed myself so much... How cool it will be when everyone gets together in June!!
Karen, thanks for being such a great listener!
Maureen...so glad it is almost over! I love your wig... You look adorable in it, but I know by now you can hardly wait until you have enough of an inch to toss it out...at least that is how I was last summer... Have about three inches now... Grows kind of slow...lost my eyelashes three times since chemotherapy ended. had the chemotherapy curl, but that is slowly going away now.0 -
Hi all, I know we are all feeling better in this beautiful sunshine, and the promise of more to come during the next 7 days!! Hi Maureen, I've never exercised so hard in my whole life as I did this week. I think once you do BC you can do anything. Hope the scales reflect it in the A.M. Although chocolate is just calling to me, the donuts at Tim Hortons were looking mighty tasty too.Can't wait to get my new glasses and I can see clearly, it will make it easier on the DGchildren who I need help from in seeing numbers on the prescription bottle and phone numbers. Last day off rads, congratulations, you are finished. Is your MO starting you on AI's? Boy, we get to learn a whole bunch of initials don't we. Hi starbeauty, had such a good visit with you yesterday. I am meeting so many good,kind, and bright women. It is so much easier to talk to women who are traveling the same road, we understand the thoughts, the experiences so particular to women who have heard those fateful words. And the more we share, the lighter the load gets. hugs to all, Karen
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Hi Ladies, just got home from Shea's saw Wicked it was great.
Karen, I also stated a cataract and Dr said it was due to chemo.
Linda welcome.
Good night ladies work in the AM.
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Dear kindone, I had the lumpectomy and radiation, I wonder if the rads could have done it or the AI's. I know I was OK till this cancer got started. I know I got the thinning hair, hot flashes, and had my first really bad migraine since the 90's from the hormone supressors (sp?) Karen
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I AM DONE, I AM DONE, I AM DONE
I want to celebrate today , DH will be home tonight and we'll celebrate. I brought the office Manhattan Bagels and muffins to celebrate. All the girls gave me a big hug and I was relieved. Then had to rush homne for a meeting. The sun is shining, it's almost warm and life is good. Now onto the AI's. They said I could start Monday. I felt like saying in the year 2045 (LOL) I'll start Monday. Hopefully it will be nothing. Kindone: I heard Wicked was a really good show, didn't the show receive awards too?
Karen: I think rads played a number on my vision and balance. RO says no but I think it did for me, if that makes sense.
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Maureen, you DID IT!!!!! You should be so proud of yourself, you are one strong lady, but then all WNY'ers are, it's because we live in the land of darkness, snow, scraping cars, I could go on and on. Have a grand celebration with DH,DD and DS. I think you are right about the rads, but the RO all deny it, I know I didn't have this problem before. I think a glass of wine may be in the cards for you, go for it and then continue the celebration on thru the weekend, you did good. hugs, Karen
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Whoo Hoo Maureen... happy dance.... What a relief!!!! And what a glorious day to celebrate!!
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Thanks for the well wishes Star and Karen. My sister made me steak and potatoes, DH home safe and sound. going to the club for brunch for mother's day, glorious weekend. Ran into DD old boyfriend who gave me a big hug and told me he missed me, broke my heart. DD said he needs to straighten up and get more drive so wondering if this is temp or permanent, confusing time that's for sure....
If I don't get back to the threads, Happy Mother's Day to all the beautiful women on this thread, enjoy your day and above all celebrate we're here today.
Hugs,
Maureen
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Maureen, I am so happy for you, you did it, and you have such a supportive family to celebrate with. Now you can relax awhile.
I don't know about rads with cataracts, I just know my eye DR told me chemo effects the eyes.
Hope ever one has a wonderful Mothers Day.
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Hi all, hope you all have a Happy Mother's Day with you and yours. hugs, Karen
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Hello all my WNY friends, Sending you all wishes for a very Happy Mothers Day. And if you're not a mom, wishes to your Mother for a Happy Day. ( or prayers for those of us whose Mothers have passed on).
Have a joyous day everyone!
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Happy Mother's day to all.
Pasha, Tara is a sweetheart. I saw her for lymphedema and she gave me exercizes and taught me how to wrap my arm for a flight. That was two years ago and I've had no problems since. They also have support group meetings on the second Wed of each month..May 11th is the next one at 6 or 6:30. I haven't been in a few months due to scheduling but they have differnt speakers each time and it's a nice group. you can check out the website and call for meeting information. Dr Lindfield was my surgeon http://wnybreasthealth.com/
Maureen et al, unfortuately, I will not be able to make the luncheon. A friend has asked me for some help moving and I completely forgot about the lunch when I told her yes. She's been a big help to me and it's time for me to return the favor. I do hope you all have a fantastic time and will look forward to maybe a fall? get-together? I tell you, it's not even summer and already I have every week-end booked with something thru the 4th of July! One thing about Buffalonians... we jam as much in as we can in the good weather months! Can't wait til I can retire and be able to just sit on my butt and enjoy the warm weather relaxing! Guess I'd better start playing the lottery... or find a richer husband!
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Hi everyone,
Just a breeze through to wish all a HAPPY MOTHERS DAY!!!!!!!!!
Will check in soon.
(((((Hugs and Prayers)))))
Cheryl
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Hi All!!! Hope everyone had a great mother's day.
Heymoose, so glad you'll be able to make it.
Yummy, Glad to hear from you and all is going well.
SusanHG, How is radiation going? You are on the downside now right? How's the skin?
Karen" How is everything going?
Kindone: Thanks for the well wishes, I'm glad to be done with radiation, not sure my skin could've taken much more. The silvaderm cream was an absolute lifesaver, within two days, skin was better. I even wore a bra on mother's day LOL!!
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Pasha, starbeauty, elleD, bevin, and Linda, just checkin' in to see how everyone is doing and hoping all is well?
Pasha, Didn't realize the sheridan drive had a support group. Thinking I need one, after finishing rads I'm a bit down today, tired, and keep thinking now what? I've been fighting so long not sure what else to do?
Maureen
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Maureen... you have done so much - it is exhausting... it feels like a massive fight - and now it is a little quiet, but you are still actively attacking this beast. You are going to see your onc for follow-up regularly, you will see the rad onc for awhile, the mri/mammo mds, and the surgeon... all checking you... all asking questions... all ordering anything that may be needed. Plus you are going to hit it with an AI...
Keep your chin up fearless leader... you are winning - don't let it get you down - keep the exercise and healthy diet going... (((maureen)))
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feeling a little out of sorts too, just a quiet day with housework to be done. Making shrimp scampi for DD and DGchildren, Addison is saying he will try it, the shrimp, I have a breast of chicken waiting just in case. He's a meat and potatoes guy. Mica will try anything,even as a toddler she would eat a salad with blue cheese dressing. Addison was going for a haircut on Sat.. morning and wanted a faux mohawk, don't think Nini (me) wasn't sweating that, he came right upstairs to show me when he got home, it is short on the sides and back, a little longer on top, he uses "bed head" sculpting paste and spikes the middle, he looks so grown up and it is nothing like what this older generation grandma was fearing. Karen Maureen, starbeauty is right, all the daily treatments are over, now begins the doctor of the week appointments and the AI's. Did your MO say what he wants you to use? It'll take a little time to get used to just taking a little pill.
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Hi everyone, I hope you are all well and enjoyed our sunny day!
Maureen- your feelings are normal and I can say, I felt the same way. I cried my last day of rads. It felt like I was leaving treatment behind me. My Rads Onco explained, I now have to think of active treatment differently. My visits to the Med Onco, scans, blood tests and the AI are all forms of treatment. They are just different than what we had all changed our lives to accomodate. It took me awhile to move on to that. Assuming you'll take an AI of some sort, know they are very powerful and keep cancer at bay.
Yummy- every day I see your name I get hungry. I think of yummy cookies. NOT good as I need to lose some LB's.
I am tired tired tired and going to bed.
TTYL
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Hello everyone! I hope that everyone had a wonderful Mother's Day and had time to reflect on how precious life is. I am very lucky to still have my mom but due to the nature of where I work, I have learned to appreciate the value of life and the uncertainity of our futures. I really appreciate everyone's quick acceptance of me into your group. It means so much to have all of you responding to my posts.
Yummy- It is great to hear that the PT that I am going to tomorrow is good. I am putting a lot of faith in her ability to help decrease my pain. I had no idea that there was a support group in their facility. I may attend a session when I have the time to do so. It seems that the evenings fill up so quickly.
Maureen- glad that your skin has improved so quickly. Silvadene is a great product. I use it frequently with my patients.
Karen- I would be nervous about the mohawk hair-cut. Glad to hear that it isn't too extreme!
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Hi All,
Karen, my DS went through the mohawk stage too, goes away quickly. Funny how they try to find themselves using so many venues. If that's the worst he does....thank god!!
Bevin, thanks for the pep talk. All the women on this thread are wonderful, you are my safety net. I'm better today, thanks. Yesterday was a rough day, not sure why either.
Pasha, Let me know if you attend one of their meetings, I'd like to go to.
So I'm thinking I should talk to someone now that all of this is over, some type of counselor.
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BTW, still have no energy, cleaned the bathrooms, changed sheets on the bed, and took another nap, I need that to go away, my treadmill is waiting
Have a great night ladies.
M
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Hi All, I'm sure everyone is enjoying the great weather we're having in WNY. I even sat on the deck during some of my meetings yesterday. Boy, could I get used to that!! Today seems muggier to me? I love the flowers, trees, etc....and just being alive today. Not up to much, have many appt. coming up with MO, RO, BS, they seem to give me my security blanket.
When you get a chance, drop a line and let us know how you are!!
Also, have a really personal question: Did anyone ever go to a psychic? What is your opinion? I confess, I'm considering one. I went to one with a girlfriend a long time ago when we were kids. I have to say the woman was dead on with predictions, right down to my husband. I was engaged to one man, date set everything and she told me he wouldn't be my husband and things about the man I was going to marry, to make a long story short, she was sooo right. Fiancee was not who I thought he was and never looked back, within 6 months, I met my husband. Best decision I ever made!! When all this happened, I was so freaked out, I never went to the lady again.
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Hello. Hope everyone is feeling wonderful with spring finally arriving. It's amazing to me how much weather can change your moods. I drive all day so it feels so good to open the sun roof and allow fresh air and the sun to touch my winterized skin. I joke that our skin is covered up for so much of the year that it is winterized.
I have never been to a psychic. I am nervous to go to one. I guess I am scared of finding out about my own mortality.
I went to PT with Tara. She is wonderful. I really enjoyed my visit with her and she feels that she can help. She also told me that things would probably get more painful before they get better. I am willing to go through anything if it makes it better. She was annoyed that nobody ever refered me for PT 3 years ago. I was the one to refer myself now. Has everyone noticed a disconnect with care with breast cancer?
You see the breast surgeon for the mastectomy,then the plastic surgeon takes over your care for the surgical care. You do not see the breast surgeon after your check up for discharge shortly after the surgery.. I was referred to the oncologist,who followed me medically but doesn't cover any surgical aspects. I feel that you get bounced around from specialist to specialist and need to have a manger to keep everything in order. I don't know what I am trying to say. I just feel as if I fell through the cracks and I am in the medical profession. I worry what happens to a person that has no medical knowledge if this could happen to me.
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Hi Maureen, I did go to a few psychics when I was in my teens and then again in my twenties, I basically had no great faith in them and just went because my friends were going and it was a lark. I think they are able to question you very well and read alot into your answers and body language. I think seeing a counselor or therapist is the better idea because after active treatment you can kind of flounder around, I know I did and still do on occasion, I was lucky to find a LCSW who I really meshed with and have benefitted greatly from. I wish he was closer to you, he is just such a valuable sounding board and helps me to think of my life and how I handle it. He is just a plain good kind man in general, sometimes we just chat other times, I have specific things I want to talk about. I go to see him 1x a month and just feel more centered after a session. He uses the phrase "it is what it is", and I used to hate that phrase, now I know when something is bothering me if I can get to that phrase, I am all set and I can put that problem behind me. Hi pasha, I'm so glad you followed your own dictates in pursueing a PT and have established a good relationship with. As far as falling through the cracks in the medical community, my BS takes the lead in my treatment plan, though all the other MO, RO, have made it clear that I can call on them with any concern. I have a particulary good relationship with him, maybe that it is why I am so comfortable in him taking the lead. hugs to you both, Karen
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Pasha...know what you mean... No one took any lead at all nor really appear to talk to each other. I am my own case manager... They each focuson their own area and sometimes give me conflicting advice...like getting an MRI or not... Some said get it and onc actually gave me grief about it. Very. Aggravating.
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Pasha and Starbeauty,
I guess I should count myself as lucky because my breast surgeon, recommended my PS,MedOnco and RadOnco and has always followed up with me, now every 6 months through. My MedOnco, who sees me for blood work every 4 months always asks if I've seen either surgeon as well as my ONGYN and if she hasn't gotten reports from them, if I can have them sent. (at this point, I make sure anything to do with my Cancer is released to my GP, BS and MedOnco, and it's been 3 years since my treatment was over. So, even though I know from working in the medical field, albeit non-clinically, that you have to be your own advocate, I'm glad to have had a good 'team' caring for me.
Enjoy the sun while you can, ladies!
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Agree with Yummy. The first visit to BS post lumpectomy, I specifically asked; "Who will be my coordinator of care? and Who is my advocate of care?" Both answers were the MO. When I visited the MO at the planning session I told him what the BS said and wanted to confirm this was the case. He agreed and stayed on top of everything, so far. Whenever I have testing, I request copies sent to BS, MO and PCP. I want them to have complete records. I learned this lesson with my mom's pancreatic a few years ago, stay on top of everything, be nice but direct, very direct. It's worked so far but only 9 months post dx. so time will tell.
Enjoying a beautiful Friday PM with sunshine. Still a little tired from rads thing but I think it's getting better. I started the hormone therapy AI on Monday, no issues yet, just had a few really vivid dreams. We'll see, hope they work to keep the nonsense at bay. I inquired about my hair to Capello's and the sr. stylist said when ready, he will provide a private room for cut/color/brows. Looking at my hair, won't be ready by our get together but absolutely will have done by my son's graduation end of June. I really want to go topless to his graduation. I need to be free of this and just take away the good...the phenomenal women from this site, the great relationship with family, the appreciation for everything I always did at my job, and just life in general. Yes, the breast cancer, I'm leaving that in the past.
Love,
Maureen
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HI everyone, Hope you're all well.
Maureen and Yummy - I agree. My med onco makes sure their on top of all tests, mri, mammo's blood etc. They gather all records from my Gyn, BS , pulmonary , cardiac etc. I don't need to do a thing but show up for my appointments.
One thing I do make sure of, and I highly recommend, is I get a CD copy of every PET/CT Mammo, and I also make sure I get a copy of all written reports for mammo, CT's PETs, etc. I always want to keep my own copies. I also keep copies of all blood work.
Enjoying the night. My Daughter is at the annual Father Daughter Dance and she looked lovely heading off. School is almost over and I dont have child care yet.. UGHHHH! I need to sort this out quickly.
Have a great weekend eveyrone,
Bevin
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Hi bevin and Maureen, yes the school year is flying by, soon it will be time for our get together and putting names with faces. This is the first thread I look at when I come on the computer to see what everyone is up to and what valuable information is being talked about, bevin, I didn't know you could get a CD of all my mammos and US's and my MRI. I go for my annual mammo and US in August and will ask them to prepare one for me. Hasn't the weather been glorious, we did get a touch of rain tonight and could hear thunder in the distance. The Annual Lilac Festival is in Rochester this weekend and it sounds like we might have rain, but I don't think the lilacs are quite ready, so it may work out well anyway. My DGD has her May school dance in two weeks, she looked so grown up when she came upstairs to show me her outfit, the years just fly. Maureen, I did get used to the faux mohawk, it's just a little longer on top, he uses pomade to spike it up, it's funny seeing him working on his hair, he always just plopped a ski hat on it before, can girls be far behind. See you soon - hugs Karen
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Hi Karen, Good to hear from you. Glad you enjoyed your day. I suspect your grandson had his eye on a girl? I can always tell when my son is sweet on a girl. He dresses for school. When he doesn't care, it's the hat, shorts, t-shirt whatever gets him to school on-time. If he's late for school, he loses the car. When your DGS gets to the car stage, you have real power with privleges (LOL).
Starting my container garden with veggies this year. Some years I have good luck, other years the animals have a feast. Growing tomatoes, peppers, cucumbers, beans, onions. Not a lot of plants just enough to get that fresh grown taste in the middle of summer. My mom's family owned a farm in Eden so that fresh grown taste for veggies/fruits needs to be satisfied every year.
Maureen
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Hi Maureen, I had to laugh at your description of your DS when he is rushing to get drssed for school - you could have been describing my DGS. But when he fusses with his hair, there's a girl around somewhere. Today was a fuss day, he and his buddy are going to Wendys to eat, girl alert! I've seen him wear his shirt inside out till you bring it to his attention. What changes they go through. Your container garden will get enough rain this week, it is going to be as rainy as last week was sunny. It must have been great to have fresh veggies and fruit from your family's farm, I don't think there is anything better than a fresh tomato sandwich, an ear of corn, or a peach where the juice dribbles down your chin. In Buffalo when I was little, a man we called the huckster would drive down the side streets in an open bed truck with fresh produce for sale, calling out his wares, now that was a long time ago. I have lost 12 lbs. om the E Lab project, I am biking a lot, walking and doing crunches ( Those hurt) but that's where my AI weight settled in.That and achey knees are the only side effect I get, glad to hear you haven't had side effects. I'm sitting in the den on the computer and the rain just let up and the air smells so good, like after a thunderstorm. Those poor people along the Mississippi are losing their homes and fields due to the spillways being opened to avoid massive flooding in New Orleans and Baton Rouge, we are certainly lucky in the weather we get. Snow is inconvient but it eventually melts. and the season is over. Eventua;;y comes down to a couple of months of cold and snow but no loss of life or property. The poor people in the plains and the midwest have truly been bombarded with disasters. Overall, WNY is not that bad, plus its got a great support group!
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hi Karen, My mom's family was the original settler's in Eden so I didn't know anything but fresh veggies until I was well into my teen years. It seemed perfectly natural to run out to the field and get corn, strawberries, whatever you wanted. The taste of just picked cannot be reproduced unless you pick them and eat. The market at Millersport/Transit intersection is the closest taste I've found. I wish I appreciated that gift when I was young.
Your DGS sounds right on schedule for the girl thing. I laugh when DS gets all "gussied" up for a trip to Tim Hortons or some fast food restaurant, you know there's a girl alert somewhere
The AI seems to be going okay, just pain in weird places, sternum, back, wrist etc.... not show stopping, just annoying. Are the SE immediate or get worse over time?
My BIL lives in the very outskirts of KY and dealing with all this mess. Lost part of his roof in one of the many tornadoes they've had; flooded streets, flooded garage, office, lower kitchen etc....claims it's the worst weather he recalls in all the years he's lived in KY (~40yrs.). Maybe there's something to this global warming theory.
PS you are absolutely correct about the support group. Could you ladies say a quick prayer for a friend of mine? She's a young, new mom, BC survivor and struggling with new mom changes. I know she's strong and will get through this time but could always use that extra help from God.
Off to plant my containers on the deck, because of the rain, I'll hang out there today. I'm sure DH will help out, always does.
Maureen
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Hi All,
I hope you are staying dry. DH and I went to BJ's for home and work stuff. We were soaked after loading the car. I can't believe it's May and I had to turn the heat on, it is very cold in the house.
The DS and DGS hair and girl alert stories are great. I went through that stage with my DSD, not with girls, but with boys (lol). She was cute trying to get the clothes and hair just right. What a great memory.
I remember when I was released from BS' care and felt scared about loseing one of my BC doctors. I am still a little confused on my follow up. PCP is my GYN and said that the MO should be following me. PS has asked who is following my care and I said, I am not really sure. Well last visit to MO, they ordered the MRI so I think they will be doing the follow up. Will need to get a definitive answer on next visit.
I would like to ask you to pray for a friend of mine that has BC and is not doing very well. Frankly, I am not sure how long she will be with us. Your prayers will be greatly appreciated.
Gotta run and feed DH, he gets really cranky if he does not get feed. LOL.
Your Friend,
Cheryl
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Cheryl, said a prayer on the power of prayer thread on this site. I'll keep her in my prayers as well. Looking forward to seeing everyone soon, hopefully it will be warm by then 0
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Dear Maureen, sent a prayer up for your young mom, she has a lot on her plate, just having a baby comes with enough challenges and then to add BC on top of that, she must be a strong woman. That kind of troubles to deal with compared to some situations people stress over, certainly makes you see the whiner in perspective. A farmers market here in Batavia is the closest I get to fresh veggies and fruit, can't imagine going to the field to pick out dinner, what a great memory. Sorry to hear of your BIL situation, all that damage in a few minutes. You must not know where to start in a situation like that. Cheryl willl add your friend to my prayers, and pray for a calm, pain free respite from BC.Just pulled the portable heater back out of the closet, this is the second time this season. I'm chilled, jeans and a turtleneck weather indoors!!
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Cheryl... Just lifted your friend in prayer... For complete peace, pain controlled days, and no fear.
All the rain and cold is hard to take... But at least my house is dry and there isn't a river running through like half the county!
thinking about all of you...
Karen... Have a good week!0 -
HI everyone,
Now I am hungry for a giagantic salad. !!
Maureen- my AI symptoms got worse over time. They switched me off arimidex and changed to aromasin. Its a little less on the pain meter and more on the hotflash meter
Oh no Karen- I cannot believe you have a tutle neck on. I havent worn one since I went off my hormone replacement!! Too many hotflashes. They better now on the effexor, but I still cannot bear the thought of wearing a T-neck. Great job on the weight loss. What are you doing and eating?
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just diagnosed - from O.P., facing surgery soon, have elementary school aged girls - not sure how much and when to tell them - anyone have suggestions?
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HI Luvmygirls, Welcome and glad you joined us.
I was diagnosed last August and have a very young daughter. I spoke to a psychologist and BS before I even considered telling my child to see what they advised. All consults agreed not to say a thing until I know what kind of cancer and treatment I needed. This would be my suggestion to you too. I felt strongly a young child doesn't need adult worries.
If you have DCIS or a very small cancer and are early stage , you may only need surgery and radiation. In those cases, you can have all of that done without telling young children. You can have all your treatment and she/he would never need to know you have Cancer; until they are older and you'd want to be sure they receive proper monitoring.
My child was way to young to understand what this disease is and all she needed to know was that I went in for a short surgery , I told her I might stay a day or two and the doctors made me well. I told her she could have a sleep over with her aunts and that made her day! When I went for radiation, I went in the morning when she was at school . She never knew. When she is 18 I will tell her so that she can get early mammo's and mRI's.
If you find you have a need for chemo, you could tell your children that you have tissue in your body the doctor is going to take out to help you get better, then you will have medicine to make you completely better and it may make you look funny and lose your hair. They dont need to know the tissue is cancer. Only yucky or bad tissue.
My advice is to really tell age appropriate information and not too much , talk to a BS or psychologist for advice, and only tell information that they are old enough to know and understand. That to me would be any age over 15 and again - the delivery of what you say differs on your feelings and what types of treatment you may need.
Good luck to you and feel free to send me a note on a private message if you want to chat. I'd be happy to give you a call.
This is the hardest part when you don't know what you need for treatment, and what your pathology and next steps are. If I could give advice, get a few surgical consults, there are many good breast surgeons around. And ask for copies of your pathology and MRI's and mammos. Keep a book with you to take to your appointments and a friend. It helps to have a second set of ears listening to all the information you will hear.
Good luck - this is a great group. Let us know how you're doing and PM me if you need to chat.
Hugs,
Bevin
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Hi luvmygirls,
What a perfect name. I really luvedmygirls, but now I have bigger ones, they are good. They are what you want them to be.
Bevin has given you some great advice. She really knows her stuff. If you need a shoulder to lean on while you are going through BC, I am hear for you.
Thank you for those who have prayed for my friend.
Good night, your friend,
Cheryl
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Dear lovemygirls, You have gotten really good advice from Cheryl and bevin, mainly in keeping it simple and age appropriate. My daughter is a mother herself now and was my rock throughout my treatment, she was my driver, my extra set of ears and my emotional support, she in turn had others supporting her. She found this website for me but not until I had had my surgery and completed 6 weeks of radiation, I wish I had it while I was going through treatment, this site in particular was invaluable to me in mending all the little and not so little pieces that BC causes in your life. My daughter and I told my grandchildren together after I had my treatment plan in place, they are 13 and 14 years old and very bright. They also have a friend whose mom had bone cancer and had to have her leg amputated. We told them that I had cancer,but a different kind, that my Dr. would be removing it from my breast, then I would have radiation to kill any stray cells, then I would take a medicine that would keep the cancer away. We did keep them informed about every step, answered every question, most were based on their friends experience. During my treatment their friend's mom was diagnosed with a rare cancer and passed away - they wanted reassurence that this would not happen to me. We keep them informed about the tests, mammos. MRI's and US's as a way of reassuring them that my team is always checking me and making sure I am OK. They handle it well, and questions now are when I am going to meet my computer friends. This is an exceptional group of women, and we are glad to have you join us, yet sorry you have to be here. Anytime, any question, we are here for you. Karen
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Hi starbeauty, anytime in your week, except Thursday, for a Tim Horton break? You pick day and time. Karen
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Maureen, I missed your question about AI side effects, my ankles are achey in the A.M. and I have to walk the stiffness out, my knees are a side effect and probably some arthritis. I take plain Bayer aspirin in the A.M. for the inflamation. My knees did get a little worse as time went by, but I am really lucky in that the side effects are few and not severe. Pray that yours are the same. Karen
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Hi bevin, I'm on a role now, thanks for the congratuations. I bought a recombent bike at Walmart for $148 and use it every day for from 1&1/2 hrs to 4 hours a day, I am retired so time is not an issue. I bike till I am sweating, usually 30 min. blocks of time also do crunches for not long enough, I do so hate doing them, but that is where my AI weight is and my Quit Smoking weight. Last week when it was nice I did my walking outside for some of the time. I eat a lot of fresh fruit and veggies, drink tons of water, eat chicken and fish, diet jello for the sweets, if I cheat one day - I watch myself for the next few days and add more biking. The ELAB Project stands for eat like a bird. One of the members summed it up with "eat less, move more" Karen ps. having to post your results on the computer is a great motivating tool for me. Time for bed.
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Karen...how about this Friday at 10a?
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great = meet you there. Karen
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karen, Perfect...happy dance... Happy dance!
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Hi All, Go away for one day and holy cow so many posts!!
Luvmygirls; Welcome to our site, sorry you had to join. Bevin provided you with the most sound advice. She speaks from experience and is very thoughtful with her answers. I know it seems like a very long road right now however you will feel better once you have directions and plans. My daughter and son are much older than your girls and I was upfront from the beginning. Between them and my husband, they got me through some very dark times. It seems very overwhelming at first, but it will get better, I promise. Lean on us, that's what we're here to do, hold each other up during hard times and celebrate success of the good times. You are in my prayers.
Heymoose: Hope your friend is pain free and comfortable. I'll keep her in my prayers.
Bevin: Hi!! How are things going? Haven't talked to you in a while, sorry so busy right now.
Karen: You are doing so well with everything, smoking, weight loss, will I know you at our luncheon? Hope you and starbeauty have fun and don't forget to have a French vanilla cappacino for me!!
Kindone, Pasha, Yummy, Linda614, Susan HG, ElleD, Laura and horse-n-around: Haven't seen you on this thread lately, hope all is well and living life to the fullest.
I'm doing okay, had such a dizzy spell, nausea yesterday, literally slept the day away, wondering if it's a result of the AI or still left over from my chemo days? Feel better today but will mention to the onc next Friday. Really don't like when that happens, makes me nervous.0 -
Maureen, had some of those spells immediately after rads. noticed that my finger nails all have an indentation about half way up them...so about 6 months back with how slow they grow now... In other words crap was still happening in me even after they stopped rads and chemotherapy. I would venture a guess the same is true for you. I slowly pulled out of all of that about 5 months after rads stopped. Hugs Maureen...
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Thanks Starbeauty, getting so disgusted with feeling yucky all the time. Hopefully this gets better.
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It will...be sure no matter how bad you are hurting that you exercise ... Even a little helps bring you away from the fatigue, depression, and sick feeling. We will get better...we truly will! One moment at a time.
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thanks!!
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It's raining, it's pouring, the old man is snoring.....
This is worse than snow, well maybe not but enough already. I have a really funny story: We had burger king for dinner (I know poor choice) and I asked DH to get me a kid's meal because I don't want to upset tummy. We sit down to eat dinner and guess what the "prize" was? A Thor headband complete with wings!!! Of course I put it on and we had a good laugh. Posting a picture is out of the question though!! DD got 4A's and 1B at college, so proud of her. She's upset about the B, typical Type A personality. DS is doing well too, will graduate in June, then onto pull through program at ECC. Starts in business, switches to criminal justice and if grades are good, they automatically switch to Buff State after the 2 yr. all credits accepted. Neat set up. Tommorrow the nasty work day, 7 meetings grrrrr. Only can walk 1/2 mile tonight, then I feel lousy again, pre-bc a mile every night was easy. Take care ladies. Maybe I'll bring the headband to lunch, might look okay with the wig
Maureen
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Good Evening Ladies, I missed you all when I was on vacation VB. The weather was not great I only got a bout 3 hrs of sun, it was cloudy all week. I was was nice to get a way for a while but I wanted sun. It's just not nice anywhere weather wises. I am looking forward to our lunch to met every one. Now to bed I have to work another double tomorrow, life goes on.
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Hi everyone, Maureen, you must be so proud of your children, DS and DD sound like wonderful people with a lot of compassion for their mother. You raised them well, I was one of those Type A personalities, not satisfied with a B+ if I could of gotten an A, I think the Type A got leeched out by the radiation, I'm pretty easy to please now. We are getting closer and closer to June 4th, almost time. It seemed like such a long time to wait, but now it is upon us, now if we could please have sunshine, this rain is indeed getting to be a bit much. hugs Karen
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Hi Karen, yes the rain is crazy lately. Still waiting to finish planting my container garden. We're doing better than BIL in Kentucky. Just spoke with him and the main road in the town is gone as a result of the tornadoes. All the buildings less one are no longer standing. The flooding is just starting to recede but that's hard to imagine. Busy day at work today, tired. Can't wait to meet everyone, looking forward to the day!!
Kindone, where did you go for vacation? Sorry you're working the double again, I admire your stamina. If I had to work a double today, I'd have to sleep for two days before and two days after the double shift. Does this rads/chemo fatigue ever go away?
Love
Maureen
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Kindone, how is your daughter's new baby? About 5 weeks old now?
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Kindone, Happy Grandmother, is this your first. Bring pictures with you on the 4th. Maureen, I think I'm just getting over rads tiredness now. Plus fatigue could be the result of the AI, so many extra gifts. Your poor brother in law, where do they even start to rebuild? Just the town over from Aunt Teresa is a little town called Albion that had a tornado about 14 years ago, it just cut a neat slash through the town and they were years rebuilding that. Tomorrow - SUNSHINE. I think I remember what it looks like, met starbeauty for coffee today, had a great time, brightened up an otherwise gloomy day. Turns out we both went to the same RO here in town, he did less than a stellar job on both of us! Both waiting for the 4th, who is the reservation in the name of, "Maureen", "those who keep plugging on", or "can't wait to hug all of us'. Watch out everyone - I'm a hugger. Karen
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Hi Ladies, just checking in. Beautiful day in WNY today. I helped my sister clean up her house cause boss will be there on Wed. She works full time, single mom and is going to doc appt. with me. DD started summer school cause the only time she could fit in a class. College is funny. They don't care if you have conflicts between classes. oh welll, light schedule for her and she likes to work as much as she can in the summer. Then came home and finished planting container garden cause it's suppose to rain again tomorrow. These stupid mood swings are getting to me, first I get dizzy, then sad, then tired. I know only two weeks post rads but I read other sites where ladies are running marathons and doing all sorts of things and think what is wrong with me? Can't wait to meet everyone either. I love my new friends and relationship with family...the only good thing that came out of cancer.
Maureen
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Maureen,
Quite frankley I think they are all nuts and you are doing fine. Okay maybe I was a baby during my recovery. However, I liked it when my husband took care of me. (I can't believe I really said that) HA HA.
I really wish I could offer more advice. I had a bi-lateral mastectomy, with immediate reconstruction, no chemo and no radiation. So I am not able to offer any advice on the sideeffects of chemo or rads. However, I can talk about the expands and implants and my new GIRLS!.
I also am able to sympethise with your feelings and offer encouragement everyday. I will let you in on a secret, prior to BC I did not work out at all, now I am walking 2.25 miles about 4 days a week and working out at a gym. This feels really good. I am still in training and hope to be able to run/walk the Komen race on June 11.
Have a great Monday! ((((((Hugs and Prayers)))))
Cheryl
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Thanks Heymoose (and Karen for the PM). My DD has run the Komen race the last two years. Advice: Do not leave anything in your car including the trunk. They broke into my daughter's trunk of the car in seconds with a tool they have that leaves a pin mark right next to the lock. Her girlfriend's mother's purse was stolen and the police said it happens in seconds every year. I feel better today, just can't get by these mood swings, wonder if it's the AI's that are doing this? Anyway, back to work, talk later. BTW, am back on the treadmill but only doing about 1/2 mile/day
Thanks for the hugs/prayers too!!Maureen
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Hi Ladies, Hope everyone is safe after the storms last night. The lightning was unbelievable. Thought to myself, yep DH is out of town so power will go out. Flickered but didn't go out. I was driving home from a friends house when the storm hit, so I walk in the door and DS meets me at the door asking where did I go in this terrible weather? Who is the parent? (LOL). It was only 9:00PM at night. Working all afternoon, so took the morning to catch up with friends. Tonight I have to go for my consult with Capello's to see if anything can be done with my hair. Yesterday, I had RO f/u and doc said everything looks great. Has no explanation for dizzy spells so I guess I just hang in there. DNephew graduated so have graduation parties, etc. to attend in the next couple of weeks, then back to work full-time. Glad to be busy, keeps my mind out of dark places. My container garden seems to look okay too, surviving all this rain. Keeping all my friends in my thoughts and prayers today to overcome all the challenges they face in life.
Hugs,
Maureen
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Hi everyone, all is fine in Batavia, we must have been on the outskirts of the storm. Seems like the storms are just piggybacking their way through WNY with a sunny day thrown in here and there. This seems to be a time of f/u's and scans that one or the other of us is having to do. Maureen, I'm glad the f/u was uneventful, and that the container garden survived the storm, they have checked your ears for any sign of infection I would assume. I'm glad that keeping busy keeps the dark thoughts at bay, but remember to rest when your body is calling out for it. The cat, Sophie doesn't want to go out and it is getting windy, I assume more rain is on the way. I, too, am so thankful I have my friends here to rely on, I remember before I found this site feeling so alone, not anymore! Karen
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I hear you Karen, my cat, Iris, is really spooky today. She usually acts this way prior to or just after a bad storm. I hope we have no more storms today, getting sick of them. All last week, DH kept saying: "Oh look, it's raining outside!!" It was funny the first 5 times he said it, then it got old. My container garden has weird brown spots on the leaves, thinking just too much water. Have to get back to my meeting. This site is addicting sometimes. (LOL)
Maureen
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Hi All,
I hope everyone is doing fine.
Maureen, I have a great system for the Komen race, my DH chaufers (?) the group of us back and forth, from my house to the Rose garden, so no parking cars. He is a doll, but his ulterier motive is to not participate in the walk. LOL. I am happy your check up went well, another step in your recovery well done.
Karen, so glad to hear you are well in Batavia. Sorry Sophie is a little upset today and hope she calms down.
Last night prior to rain, I went and surveyed my side yard gardens and am very worried that I lost a bunch of perenials. I hope they are just a little slow in growing due to the cold and rain we had so long this spring, by the way did we even have a spring, not sure can anyone tell me? Okay, have to run DH just came home from a meeting and now I have to feed him, looks like dinner out.
Have a great night. Looking forward to meeting everyone June 4th.
Hugs, Cheryl
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Hello Ladies, Hope all is well. I will bring pictures of Ava Marie and Aiden to out lunch on the 4th.
My cat Tigger had to have his eye removed today because of cancer.. He has to spend the night at the vets. He will come home tomarrow. I miss him, I hope his pain is under control. When I called before he was resting comfortable.
I finally got some yard work done yesterday planted some flowers, between the weather and working, I did find time.
Glad everyone is good and looking forward to our lunch.
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Hi Ladies,
Kindone, so sorry to hear about your cat's cancer. What a stressful time for him. Hope he arrives home painfree and well on the road to recovery. Can't wait to see the pictures of your grandchildren. I'll try to remember to bring pics of my son & daughter too, pictures are my weakness. Thank God my mom took pics of kids or I wouldn't have any at all (LOL)
Heymoose, great plan for the Komen run. My DD wants me to walk with her that day. We have the area garage sale, my nephew's college grad party and the run all in the same day. There is another walk for Roswell in the fall in East Aurora for breast cancer too. I'll talk to her for maybe doing that walk vs. Komen run this year. Hopefully by then, I'll have hair and energy. We should all meet there to do the run/walk in the fall.
Karen, Hope your cat has calmed a bit as the day went on.
Update: I went to Capello's today and he'll be fixing my hair end of June, right before DS graduation. I'm so excited. I'll be wigging it at the lunch so you'll see the color he will dye my "real" hair.
Praying for all on the site tonight for the struggles of life. Love you all!!!
Maureen
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Kindone, so sorry to hear of your cat's cancer. I know you won't feel calm until he is home with you. Our little furbabies are so dear to us, it is hard to relax until they are home safely with their family. I'm excited that we are all bringing pictures so we can fill in our mental picture of DS, DD, and DGchildren, I know from all our postings that all our families stepped up to the plate during this BC journey. The apples fell from wonderful trees, Hope all the gardens make it through the rain filled days we have had, today turned into a beautiful sunny day. I had 3 "shows" to watch today , American Idol which the whole family watches together, Dancing With the Stars finale and the WNY Senate race. I was pleased with all the results, though Idol has their finale tomorrow. Took my grandson to vote with me, never to early to begin teaching our right to vote. I did bike during the shows, got 2 hours of biking in for the whole day. I am on the thread E LAB Project, it is a support group of women broken into teams, to lose both my AI weight and my Quit Smoking weight. doing fairly well on both threads, another great groups of women. Not the same as we are, since we will be able to meet face to face, we are truly friends about to meet for the first time, can't wait to hear the heymoose story! hugs to all Karen Maureen, you will have your hair done for DS's graduation, I know you are wildly excited, another milestone for you!!
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Good evening ladies, hope all is well. Kindone, hope your cat is home safe and sound where he belongs. Karen, hope you enjoyed your shows. Congradulations on the smoking and weight loss, you are a champ. I went to see the pyscic today and told me things I couldn't believe she knew, one of which was breast cancer. Don't know if I feel better or worse right now, kind of creepy really.
Heymoose, looks like your garden is in for more abuse, more rain tomorrow urggggg
Have a great night ladies.
Maureen
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Karen, It is great to have him home again. I wonder if he thought I abandoned him. I did cry when saw him, even though they warned me how he word look. He already took the cone off that they wanted on for 14 days. But I did get his pain meds into him. I kind of related to him, if you know what I mean?
I am so glad you are doing good on the E Lab Project, I know how hard it is to lose weight and be consistent with exercising. It will defiantly pay off. HUGS
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I am from Central NY but I am wondering if anyone here will be at Camp Good TimesDays and Special Times the weekend of June 3-5 for the Women's Oncology Program?
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Dear Alexanjb, As a group we are meeting for the first time on June 4th in Williamsville, a suburb of Buffalo. We have been planning this since January when this thread was created. There are about 8 of us getting together, we are all pretty excited about it. Had not heard of the Women's Oncology Program for that weekend, thanks for passing the info along. Karen
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Alex, What is the Women's Oncology program?
Kindone: So happy Tigger is home safe and sound. I'll bet he's glad to be home. I can only imagine the grief of getting meds into a cat. The vet had to try twice to get into my cat, she's a stinker (LOL)
Hey ladies, can you pray for my friend tonight. I know she is struggling and I'm thinking about her and she really needs the Lord's help. Thanks.
Wow, need to get off threads, it's really lightening and DH is traveling tomorrow. Hope he gets home safe and sound so he can start the generator, have a feeling we're going to need it
Rain, rain, thunder, thunder. Love,
Maureen
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Here is the link for Camp Good Day and Special Times. I am going to the Arts and Crafts Program but as you can see there are others. I was signed up for the Women's Wellness last Fall but I really wasn't up to it yet, so I cancelled.
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Hi Alex, checked that site out, sounds like a lot of fun!!! I'll keep my eye on the site for upcoming events. Sorry I'll be missing that weekend, we have plans for a meet and greet. There's always next year. BTW, I see you're a Stage IIIer too!! Me too, on the cusp of IIb/IIIa but I think it's all the same. You are very close to my age too and that's my goal, to grow old and gray....well right now I have gray hair however little there is right now.(LOL) Went through the same tx you did too!! What a ride huh?
Update on the day, meetings (grrrrr) had to speak with HR for issues (grrrrr) and going to p/u hubby from airport (yaaaayyyy). Tomorrow, have MO appt. for follow up, get Vitamin B12 shot and maybe go out to dinner. Trying really hard to enjoy the memorial day weekend starting tomorrow, I just want sun, we need Vitamin D3 ladies.
Maureen
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Hi all, well we sure got enough rain this evening, DD and her friend walked to the neighborhood deli in the sunshine, on the way back the skies oppened up, they looked like they had taken a shower in their clothes. DGD had her 8th grade dance, she looked like a vision of loveliness. Seems like just yesterday I was picking her up from kindergarten. Went to a shop in Rochester to get measured for a new bra, the L side was just not filling up the cup and I looked off balance. Salesperson said I had had a severe reaction to the radiation, just like what you and I were talking about starbeauty. Was able to fit me in a molded bra which makes me look even. Definately makes a positive difference but the day filled me with a deep sense of melancholely (sp?) which I wasn't expecting and a craving for a cigarette like I had in the first week of quiting. Just didn't see this sadness coming. Hoping tomorrow will be a better day, and today was just an aberation. Send hugs ladies, I need them today. Karen
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Karen,
Sending all the HUGS you need. I quit smoking the day I went in for my bi lateral mastectomey. The drugs really helped me get over the cravings. However, I still have the cravings ( pnce in awhile) and I still dream about smoking. It is fewer and farther apart but still there. I just think about something else as soon as I get the craving. I will keep you in my prayers.
I hope all are doing well. I will be celebrating my 4th year cancerversary on 5/29. Dancing all day long!!!!!!!!!!!!!
Hugs to all and have a great holiday weekend.
Cheryl
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Hi Ladies, I'm ashamed to admit that smoking is next on my list, just haven't done it yet. Had my f/u today, they're scheduling a surgery to take the port out and I insisted I want that cyst in my breast they found at the last Mammo out. The girl gave me a little bit of a hard time but I think she realized I mean business. I'm trying to get my hair appointment moved up so it's done before I go back to work but he's booked up
He's gonna try to call me back. Please god, I don't want to go back to work with a wig. The big day is June 6th, with a few days here and there to have the port removed etc.... He told me today I have a 20% chance of recurrence, what's everyone else? I thought after all this nonsense it would be lower than that??? He did say almost all recurrences happen between 1-3.5yrs. I'm on hormone therapy for 5, doesn't that help at all? So it's a good/bad day today. 0 -
Hi Maureen, hope you can get your hair appt. moved up so you are all set to go back to work, will it be back to 40 hrs. a week? Al though I think you look just beautiful in your wig, if I didn't know, I never would have gguessed. Neither my MO nor my RO gave me any statistics about the definitive chance of recurrence, neither did I ask, just focused on the fact that the radiation and Arimidex would decrease the chance of recurrence. And that I should be vigilant about self-exam and keeping all my BS and MO appts., since the way they schedule my appts., would mean a good clinical physical exam every 6 mos. I have my annual mammo. in August and see if she then switches me to 1x a yr. or keeps me at 2. I do feel more comfortable at 2 though. I do think all the treatments you have had: chemo, surgery, rads., and now Arimidex along with all the f/u's with your team mean you have done all you can to prevent recurrence, I know too that it stays in the back of our mind always, I think it's part of the huge blow to who we are that cancer causes and that it is part of the PTSD, we wouldn't be who we are if we thought we had banished it forever from our lives. It would be great to think that but all of us have been dealt a huge blow that any thinking reasonable person has to have the thought that it might come back. And that is why we all have each other, sending hugs Karen
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Maureen, What DR did you have f/u with? Is Bauer taking your port out? He did mine. I got a higher % of recurrence 25-30, from onc. when I first got DX. Scary. He also said that it may never come back.
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Joe, the hairdresser is booked solid through June
I'm going to go back to work with the wig unless he gets a cancellation. Yes, going back to work 40 hours. only 40 hours though (vs. 50-60hrs). I'm going to try really hard to leave work at work. That will be a big change for me. I still have to see the onc every 2 months. It will always be in the back of my mind though. I think it is PTSD, however can't find anyone to talk to professionally, they're all booked up. Guess they'd do something if I had a nervous breakdown though (LOL)!! Betty, I had f/u with Dr. Soniwhala, I just love him, he's such a sweetheart. When he spoke with you about the recurrence was that post treatment? I was scared when he said that, but his favorite saying; "you go live your life and let me worry about the cancer". I couldn't agree more. Do you know when he does scans again? I forgot to ask him, had it written down too, just forgot. Yes, Doc. Bauer is taking port out. What does he do? Do you have to go to the hospital? I do want him to take out that cyst right next to the lumpectomy, it's worrying me and I want it gone, don't care if it's nothing, it scares me.
So DS is driving me crazy, been working on his car FOREVER making it just the way he wants it, now he wants to sell and buy another one. They don't think sometimes. Starting college = high cost of books etc... don't need to add another stressor in my opinion, but what do I know?
Have a good night ladies, tired today from just stress.
Maureen
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Maureen, You make me laugh, if you had a nervous breakdown they see ya. How true!! I went Sister's hospital outpatient dept. Its was no big deal and only took a 1/2 hr. You can harely see my scar. I don't blame you for having that cyst out, I would insist also.
Dr Soniwhala told me about my recurrence rate post treatment. I don't know how often we get scanned. I had to have cat scan bone scan and pet scan and breast MRI 2yrs after treatment bc my tumor markers went up out of the norm. For six months I had to go back for blood work and more scans. I thought I was stage 4 after ever scan, Thank God they all came back normal and my tumor markers came back down.. I don't want to be scanned anymore it take to much out of me. June 13th I go back for blood test and I am already a wreck... So I don't know how often he dose them as a rule.
My DS did the same thing with working on his car at his age. My garage was a mess, he put so much money into it. They blew the engine and would start all over. He still has the car and he is going to be 27. I guess is not a bad hobby.
I can toally relate to you about your hair. I was just a the point where I didn't need my wig when my son got married. I didn't know if I should ware my wig or go supper short. I when short people loved it. Hugs Betty
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Thanks Betty. Glad to hear surgery is no big deal. Did they put you under? Did you need to have someone come with you? Just need to make plans so when they call, I have someone around to take me. Having this stupid back ache and mentioned to him. He mentioned I have a DJD issue right around L5 and didn't seem concerned at all. I'm hoping this thing stays at bay. I'm done with cancer and hoping the feeling is mutual.
Sitting here because I HAVE NO WATER
I made coffee about 6:30AM, cleaned the kitchen from last night, etc. etc. DH went to turn on the water...poof nothing. I guess there's ANOTHER water main break in the area. This is the 3rd one in a year, what the heck is going on? Want to take a shower so I can go grocery shopping. Having some family over tomorrow for a cookout and have no food. This is a problem. I suppose I could brush my teeth with the cat water, although thinking she'd be upset Talk later friends,
Maureen
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HI All,
It is just one week, seven days away until we have our get together. Sooooooooooo looking forward to meeting you all.
Have a great Holiday weekend.
Hugs, Cheryl
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HI All, yes, the time is getting closer, I'm so excited for our get together, maybe we can plan the next one when we meet? That Roswell camp sounds like so much fun, wish I'd heard of it sooner. Happy Memorial Day and if your with an armed forces person, please give them a kiss from me and a heartfelt thank you. They're doing a great job and made sure Osma met his maker. Let him be the judge/jury of his fate. My hat is off to all of them (yes it's a wig but so what). Just waiting for company to come over for burgers, fruit salad, melon salad and beans cooking in the crockpot. I'm ready, but pooped. Finally got around to going through more of my mom's stuff yesterday. That's hard. She saved every card my kids have ever sent to her, very sweet lady, I hope to be half the mother she was to me and my sisters. I can finally say, I miss her, a year in a half later......
Love,
Maureen
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Hi All, I have wonderful news: My guy at Capello's moved my hair appointment to THIS Thurs. so I'll have my hair done for our luncheon and to go back to work. He's my hero. I went today to get new glasses too. I feel better knowing that I can go topless from the begining. For some reason I'm nervous going back to work, that's weird. Not sure where it's coming from but it's here. As for the hormone therapy, doing okay so far just a little bone pain here and there, thinking that's normal. Have an appointment with Dr. Bauer next week for port discussion and get a cyst removed from my nasty breast. If it causes me anymore trouble, it's going.
Getting invitations out for DS HS graduation, where did the time go?
Hope everyone is doing well and looking forward to our get together. What a beautiful day today, hot. I'm more of a 70F degree type of girl.
Take care
Maureen
PS, PM me in the event you are unable to attend the luncheon.
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HI everyone, I am so sorry I've been so absent lately. Its been a very busy few weeks and still struggling to get back to normal.
Karen - I am so proud of you for quitting smoking. It brings such terrible disease and your lungs begin to recover within 24 hours of your last cigarette. Congrats to you and I am sending lots of prayers for strength as you go through this.
Maureen - sounds like a fun week for you. I'm thrilled you have your appointment early. I'm sure it will really be a great day.
Betty - I am so glad all of your scans have been clear. Its scary to wait for results, but I am a big proponent of getting anything my insurance will pay for. I like the peace of mind it gives me. Its a personal thing I know and for many, it may not be worth the worry in between. So happy that all is well.
Talk soon everyone. Enjoy the warm night.
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Hi All... I've been away for a few days... Trying to catch up on everyone...
Karen... I hope you're feeling better... At least the rain is gone.
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Hi all, I have had family here for the holiday, they are leaving today, it was great fun, will catch up with everyone tomorrow, thank you for all the good wishes. Great news Maureen!! Back with you tomorrow. hugs, Karen
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Whew!!! I was getting worried about everyone. Glad to hear you're just living life!! Bevin, welcome back, we missed you soooo much. Ok, this computer is getting on my nerves, we had company for Memorial day weekend and the boys were playing with my computer. So far, they turned off the firewall, DH had to fix that including virus. Now when I type, sometimes the keyboard works, sometimes it doesn't, driving me crazy. I can spell,honest.
Still nervous about going topless. Beautiful day today, loving this weather.
Maureen
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Good Evening Ladies, I haven't been on alot lately b/c I have been busy. We have a summer cottage in Silver Lake NY and we had a lot of water damage over the spring with all the rain. We have mold on outside walls and now we have to gut two bedrooms. So much work and money. We did so much work on it last year. I just want to cry.
I have to work the next two days and looking forward to Saturday. See you all then.
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HI everyone,
It looks like everyone had a busy holiday weekend. Two days to our lunchon, see you all then. Please pray for my friend, she was admitted to Hospice Monday evening. I do not beleive she will be with us long.
See you all Saturday.
Hugs, Cheryl
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heymoose, prayers going up for your dear friend, may she be painfree and surrounded with love. hugs Karen
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kindone, so sorry to hear of all the damage, this spring with all it's rain really caused a lot of damage, I know all the farmers around me are just now able to plant. Local fruits and vegetables will be very pricey, but the farming community was very hard hit. Looking forward to seeing everyone at the luncheon, we've all been waiting for this day. hugs, Karen
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Kindone- omg as my daughter would say.. I feel so terrible for you. thats a lot of work and expense. Are you able to do most of it your self or do you need to contract out?
Maureen- let us know how your hair consult went.
Cheryl- sending many prayers for your friend. I am so sorry that she is not well. Hoping she is pain free.
Take care everyone and have a great Friday.
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Good evening ladies. Hope all is well.
Cheryl: Prayers for your friend, hope her journey is painfree and comfortable.
Betty: So sorry to hear about your summer home. This year's weather has caused so much damage across the country. Silver lake sounds beautiful. Not sure where it is? Hopefully homeowner's will help cover the cost of the repairs and you'll be enjoying beautiful weather at your home.
So looking forward to this weekend. I got my hair "cut" and colored. The cut took all of 10 seconds but the color was another story. That took some doing, but came out the same color as my wig and I like it. The cut, well I went topless today, a little nervous because it was a funeral for a cousin who passed over the Memorial Day weekend. No one knew me, not sure they would have anyway because not really close with these relatives but they all knew of the bc. I guess bad news travels fast. My cousin's passing was okay, she has been ill for sometime. I know she's in a better place.
Love to all,
Maureen
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Yeh!!!!! Today is going to be a wonderful day!!!
Maureen
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I let a friend on another thread know we were all finally meeting today, she thought it was just wonderful that we would have a super time. On half hour till starbeauty ( Esther) picks me up and we are on our way!! hugs to all, Karen
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Hi Ladies, Just a quick note to THANK YOU for the luncheon get together this afternoon. What a wonderful group of women. I am honored to spend time with each and every one of you. It was so uplifting to hear wonderful stories of your family and friends. I hope I'm included in the later category. You certainly have become my friends. I'd love to meet again in July or August. Any suggestions?
Starbeauty, Thank you for the beautiful roses. I smile every time I look at the vase. What a great memory.
Just gearing up for the garage sale next weekend. The whole area has a two day garage sale and quite the event in our area. After lunch, I went grocery shopping, then back to the basement to clear out stuff. DH was dragging the stuff up and I'm looking through it and pricing. Finally my DH said your getting tired, I can tell. When I asked him how he knew I was tired, he said you started crying at all the books you read the kids when they were little. I refuse to get rid of "The Little Red Hen or Mrs. Pigglewiggle, just can't part with the books.
If you get a chance, check out Susan's blog, it's beautiful poetry. Susan, you are so talented.
Karen/Laura: great to see you again.
Betty/Ester/Heymoose: I loved meeting you. Love the heymoose story
Kind regards,
Maureen
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Hi Everyone! I've been trying to read over this thread since I'm a relative newcomer. You guys are very prolific!
I gave up 4 or 5 pages ago. I had such a nice time yesterday afternoon meeting you all. It is so nice to finally see real faces instead of computer avatars! Ithink I will remeber you all. Well, at least I remember everyone's diagnosis and real names. Looking forward to joining the conversation and meeting again. Maureen: Thank you for the compliments to my writing. It is so nice to get feedback. Writing is lonely work with very little benefits. I will be in Europe until July 11th (my husband is French, so we will be visiting his parents and doing a small trip to Belgium), but would love to meet sometime after that. Hope work goes well tomorrow. You're hair looks great. I love the color! So, i'd say no wig and be comfy for the summer(and cool!)
Cheryl: Thank you for bringing us those beautiful roses. I brought home a yellow one. It's gorgeous!
So nice to meet you all!
Susan
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Thank you for the compliments Susan! Have a wonderful time in Europe. I'll make a note for post July 11th. I'll be pretty busy as well. Booked with college and high school graduation parties every weekend till July 16th. Good thing I'm returning to work. LOL.
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Susan and Maureen, beautiful writing Susan, brought back thoughts and feelings I could not express as you did. I sent you my daughter's email address as she has been my compatriot on this unexpected journey. These potent thoughts came to you at 2 in the a.m. in a semiawake state, it brought me to tears for this and the I am 42, which is her age. It was so good to meet you and share. Maureen, I will be away from July 15 to July 23, going to N.C. to visit my friend Sherry who you met. My vote is to go to work with your natural hair, it looks lovely and reflects the battle you have been through. Starbeauty, always good to see you, plus I got the bonus of driving time with you! Coffee on the last week of June? Laura, it was so good to meet you, I hope summer vacation comes real soon for you, Teachers Rock! Kindone, Betty, what a joy to get to share with you, especially pics of Ava, may she continue to thrive and be grandma's girl as well as your grandson, who is grandma's boy. Have a beautiful moldfree summer at Silver Lake. Cheryl, heymoose, how kind of you to bring the roses for all of us, mine sits on my armoire in an antique amethyst vase, the rose is a light pink and it looks superb. Hope you had a grand time at the pigroast, yesterday was definitely an eatting day! It was as beautiful day as I thought it would be, thank you Maureen for making it happen, I have a friend on the Quit Smoking thread that would like to join us on our next occassion, she visits her husband's relatives in Olean and would drive up to meet us, if that is OK with everyone. hugs to all, Karen
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Hi all,
I'm not strictly western NY, I am in the middle of Rochester and Syracuse, but I was told to visit this thread and see if any of you girls could recommend a new group of doctors for me so I can get a second opinion? So if any of you are near Rochester and could send me some suggestions, that would be great. You can PM me so the thread doesn't fill up
Thank you!
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Karen: I am so glad you could relate to my poetry. Not only do I want everyone to understand the feelings that I felt, I wanted to reach out to survivors as well. Thank you for the compliments.
Sue: i am near Buffalo, so I would recommend Roswell Park Cancer Institute, but that would be quite a drive for you. i think I've seen you on other boards, haven't I? I had DCIS and a 3 mm invasion.
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HI 37 Antiques, Susan is correct. Roswell is National Cancer Institute closest to you. Karen333 goes to Rochester, try and PM her or hopefully she'll be on the computer soon. I worked with a private BS and Onc that were all trained at Roswell. Bauer/Soniwala/Khalil (bs, onc and rad in that order). The are located in Amherst, NY; a suburb of Buffalo. Guessing about a 2.5hr. drive for you. What type of 2nd op are you looking for? BS, onc, ps or rads? I didn't have reconstruction so cannot offer an opinion. Feel free to join our group, great group of women I proudly call my friends. Good luck on your journey
Maureen
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37 Antiques, had one more thought while ironing (LOL). Gather all the recent tests/scans etc... so when you go for your second opinion they're not repeating everything 100 times, too much time will pass.
Best of luck and let us know how you make out, prayers and hugs
Maureen
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Hi 37 Antiques, On my P.M., I left out my Radiation Oncologist since I was not satisfied with his work. Dr. Yellin could undoubtedly give you the names of RO he refers his patients to. Karen P.S. you are certainly welcome to join us on the WNY thread, it is a fine group of women both on the computer and in person. We have met once this summer and are planning another luncheon later in the summer. Karen
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SusanHG, Yes we met on the boards before, tossing back and forth the question of water.
Maureen and Karen thanks for the welcome!
Well, I'm not really sure what kind of doctor I want. So, for a quick poll- who is the head doctor in your tx's? I was always under the impression that the Onc was the one in charge, but it doesn't seem to be for me, I have been getting the big shove lately and don't really know where to start. But I have been working on getting all of my records together, so I guess I'll be armed and dangerous!
My problems have nothing to do with reconstruction or anything like that, I'm just getting a lot of scans and referrals with no action. I changed BS a while back, I don't know how the new one will work out, she told me to see my PCP. My PCP is an OB/GYN, so he sees something going on but it isn't his expertise, so he doesn't know what to do with me, he told me to see my Onc. My Onc tells me he works with a DX, but doesn't DX himself, see a neurologist (useless), rheumetologist (useless) and my hematologist. My hematologist was my last hope, but when he started to refer me for yet another scan...so, who should the head man be?
I travel an hour now for this fine medical team I have. I'm thinking extra travel time might be tough, but it would be well worth it if I could get some answers.
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Maureen... Thx so much for putting our luncheon together... It was really relaxing.
Karen... I enjoy talking to you... You make it easy.
hey moose... The flowers were a real unexpected pleasure... and a nice reminder today.
Kindone... Thank you for sharing your story... It helps to hear someone talk about all this BC stuff... And know that they have made it through it all and are back to living.
Susan... I amso glad your rads are done...
Laura... You are fun!!
I needed that yesterday... Thank you all for your constant encouragement!
Bevin and Pasha... We missed you.
37antiques...welcome!!0 -
WOW, sounds like a mess!! While I was in tx, my MO ran the show. When I finished tx. I specifically asked this question. He told me to go live my life and let him worry about the cancer. With that said, he said my PCP will follow care, always remind them of the bc dx. and if I'm not happy mention when I see him or give him a call. My RO said the same thing. The BS just dealt with the surgery end of it. Can you take all the scans etc... to the MO and have a consultation with him. Reason for asking, when I was dx, I was staged at a 2b, but the MO dx was 3a and what he says goes, period. Any appt. or scans were set up by him/his office. If you PCP "sees something" who is he referring you to? You shouldn't have to decide what to do, he should be referring you to someone. Other thought is to contact a national cancer institute and fax all information for a board review. You should be able to call their 800 number and talk to a counselor or try the American Cancer Society.....oh and I'd drop those docs and tell them why.
Good luck, let us know how it works out.
Maureen
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hi ladies - I am so so sorry, I couldnt make it Saturday. The day just got away from me as my childs meet went long. On top of that, getting ready for my MIL Birthday party at 4 left little chance of getting to see you all. Its been a busy and stressful couple of weeks and still trying to work through all that happened too.
Hopefully we can schedule another lunch/dinner and I can join then.
It was a beautiful day today. Lots of swimming and sun. Its hard to think about going back to work tomorrow.
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Dear bevin, sounds like you had a very busy day, you were missed, we are definitely getting together again this summer, so we can all get to meet you then. I hope the rest of this month is soothing to you, you have been through a lot, only time seems to ease it. Antiques, Dr. Yellin has been the head of my treatment team working on the DX. with the Wende Logan Breast Care Center. As Maureen said bring all your mammos and US with you. I feel certain he will try to work you in soon. No problem giving you the phone numbers, you'll have a head start tomorrow. Karen
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Hi Sue! Yes, i remember talking about water and I remember you mentioned the Erie Canal??
As far as how Roswell Park handles things, they are a little different. When I go in to see them in November, I am followed by the team. I first see the nurse practioner, then the surgeon. I saw an MO once, but she pretty much told me I don't need chemo, so she doesn't need to see me. She gave me some words of wisdom about lifestyle changes which were very helpful, but I don't take hormonal therapy since I am triple negative. I think all e+ cases would then be followed by an MO because they would be taking something. Roswell is nice because all the departments are intertwined and communicate constantly. I just finished radiation and asked how many followups I will have. They told me I can come in as often as I want. Anything to make me feel more comfortable since it will be a few months until my mammogram in November. I thought that was nice that they understood how anxious we get after diagnosis. It will be nice to get frequent breast exams just in case.
Another reason why I recommend Roswell is that they work in teams to make decisions. When I first arrived there for a second opinion, there was a question about my chemo. They gave me a consensus decision of which they all agreed that chemo would not be warranted in my case. This gave me a good amount of peace of mind.
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Hi all you Western NY Beauties,
It was so wonderful to meet everyone. I had a great time and look foward to our next luncheon. Maureen, your hair looked great and I hope you enjoy your first day back at work. To everyone, have a great day and will check in later.
Hugs, Cheryl
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Hi All, 1st official day on-site. What a warm welcome. They decorated my office area with pink, white and blue streamers and welcome back signs. Then they cleaned the area top to bottom. I had a steady stream of people throughout the day with hugs and well wishes. I was so humbled by the genuine concern and happiness. Light meeting schedule and lunch dates the rest of the week. Busy, but a very nice busy. Oh, I went topless, had my head rubbed like a dog several times (LOL). Thank you everyone for the confidence to topless.
Bevin, we missed you too!! We will get together really soon and would love to have you make the next date.0 -
Good evening Ladies, It was so nice to have a face to place with your names. I really enjoyed our get together and hope to see you all again this summer.
Maureen, So glad you had a good day back to work, your coworkers sound great and supportive.
Bevin, Sorry you couldn't make it, and for all your going though. Looking forward to meeting you next time.
Susan, your writing is so beautiful and deep. I enjoyed reading your blog, very inspirational.
Hay moose, Thank you for the rose, I took the coral one, its holding up great. So glad we meet.
Esther, Karen and Laura, Maureen, Susan, Hay moose, Bevin We are quite the WNY group, Glad we found each other.
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Glad we found each other too, Betty!
Maureen-Glad you had a great first day back! Sounds like it was fun!
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Hi Maureen, what a wonderful first day back, you were truly missed! Enjoy all the lunch dates. See you soon, hugs Karen
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Hi Everyone,
It is with a heavy heart that I am sending you this post. My girlfriend Sandy passed away this morning. I am happy she will not have to suffer or be in pain any longer. However, I will miss her very much. Please keep her husband in your prayers, he is going through a very rough time.
I hope everyone is doing well. Have a nice evening.
Hugs, Cheryl
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Dear Cheryl, I am so sorry to hear of your friend's passing, this is truly a dreadful disease. My thoughts and prayers are offered for both you and her husband. May you both be surrounded by love during this time. hugs, Karen
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Dear Cheryl, Please send my deepest sympathies to Sandy's family. I'm sure Sandy is an angel at the Lord's table. I will pray for her family. May they find peace knowing she is pain free and peaceful. This disease takes so many too soon I pray they find a cure.
Hello to all my WNY friends, enjoy the beautiful weather.
Love,
Maureen0 -
Dear Cheryl, My deepest sympathy for your loss. I am hopeful in time you'll be able to focus on the good things she brought to your life rather than how this illness took hers. My prayers are with you and her family at this time.
xx
Bevin
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Dear Maureen- sounds like you had a splendid day back at the office. What a welcome. You obviously touched the hearts of many!
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Cheryl, I am so sorry to hear about your friend, what a great loss. My prayers are with you and her family. ((HUGS))
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Hi All!! Hope all is well in WNY. Waiting to see if DH gets home with storms, ugggh seems like we're having a lot of storms. Went to see onc due to some rather lousy SE of AI...so he took me off of them for a week. Don't know if I'll go back to them or another type but having really bad chills, tummy ache, etc.... the whole gamut. Then went to see BS, he's taking my port out and the lump by my scar so I can sleep at night. All will be done in July on a Friday and said I can go back to work on Monday, lucky me. Then off to a thyroid surgeon for the nodules, yep they will not let sleeping dogs lie/lay, not sure which word. I'm just disgusted with this never ending bc.
Cheryl, Hope all is well as can be considering the circumstances. Praying for you, Sandy and family that the next couple of days are okay.
BTW, we're suppose to get really nasty weather tomorrow and Saturday. The area garage sale is Saturday, I hope we don't get rained out!!!
Love,
Maureen
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Hi everybody, no air conditioning in my flat, it is hot. I am noticing that there are a few of us with thyroid issues, Maureen, me and three other women on the threads I frequent, had heard that radiation can really throw your thyroid off, I did not have a throat protector during rads, did you Maureen? I was on a regulated dose of Levothyroxin for hypothyroidism and all of a sudden my thyroid levels rose, it is now back in check. Have an appt. in late July with PCP to be sure it is at a proper level, will also be checked for high blood pressure, everytime I go to a doctor it measures high, so maybe another pill to add to the soup. Sorry you are experiencing such side effects Maureen, let us know if they subside with the week vacation from Arimidex. So many appts., so many doctors, you can be really sick of bc and the side effects it causes. Never a dull moment. Sending prayers your way too, heymoose, for you on the loss of Sandy and for her family too. I hope with the rain tomorrow also brings lower temps. Hoping the rain holds off on Sat, my friend is getting married in a planned outdoor setting. hugs, Karen
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Hi All, Thank you for your prayers, they are really helping at this time.
Have a great day.
Hugs, Cheryl
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My thoughts are with you, Cheryl, and your friend's family.
Hugs,
Susan
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(((Cheryl))) - I'm so sorry...
She is now at peace and out of pain... so I will pray for her hurting family and you - her frined instead. Hugs...
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Hi All, feeling a little better today off of the AI. Not sure what they will do now. Monday I have appt. with the thyroid doc too. All these appt. good thing I can make up hours from home. all doing okay, glad it cooled off a bit, my electric bill will be a fortune. Busy weekend, grad party, garage sale, shopping, laundry, work, etc...it's good to be back to life
Maureen
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HI everyone, I hope you're all doing well and happier w the cool weather. Its Allen Town art fesival this weekend, anyone going? I am planning for Sunday. I don't really need anything, but its nice to walk around, have lunch, etc...
Maureen - when I had trouble w pain while on arimidex, they switched me to aromasin. Its much easier on your body, but the cost is really pretty high . I have a high co=pay on that one. I hope you find some reliefe. For hormonal BC, its a really important drug to take so hopefully if they switch you'll do better.
This weekend aside from the art festival is going to be spent cleaning and doing laundry. FUN? WOW!!! But, I've been so busy with my family the house is now a bit out of control.
Susan- welcome to the WNY thread. I couldnt make the luncheon due to some family things, but will make the next one and wanted to say hello to you. I hope you have a great trip to France. Sounds lovely. I haven't been but its on my list!
My child is out of shool in 9 school days. Of course the count down has begun and then tonight she says she is going to miss school and didnt want off for the summer. Really?? why cant that be remembered each morning when I get begged " just five more minutes in bed mom??" - every morning is a battel. UGHH!!
woops - not sure how THAT happened with my letters, but I cant switch it back now without retyping. I guess thats what I get for sitting in bed doing this .
Talk soon. Hope everyone has a great Friday night.
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Hey bevin, so funny about the font. My kids used to do the same thing. Complain when school is in session and complain they're bored when out of session. Sometimes you just can't win. Sitting at the garage sale. I wanted to go to Allentown too and hubby said not this year. First thing that comes to mind, will there be a next year? Now isn't that depressing? I want that negative thinking to stop and say yes, next year we'll do this.......(fill in the blank). Last night I had to clean the whole house because co-worker's are stopping by the garage sale. Didn't finish till 11:30PM, the good new? I had the energy to clean it
(LOL). Really nice morning, sun, etc....Have a wonderful day, I'll check back tomorrow. Love,
Maureen
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Hi Maureen and bevin, my grandkids do the same thing!! My DGS is like a 3x affair to get him up in the morning. I know that the negative does lesson after a time, hope it does for you too Maureen. Your house must just sparkle, 11:30 wow, do you think the break from arimidex is giving you more energy? I could use some house cleaning energy, I do often feel tired, never been a ball of energy but this is ridiculous. The rain is holding off quite nicely for you and the yard sale, cloudy and peeks of sun here. I have a wedding of a dear friend to go to at 3:00. so I'm off downstairs, my daughter is giving me a pedicure. The bride is both of our's friend, so DD, DGD and DGS are all going, and we have a designated driver going too, 3 drinks for me, I'll be looped I bet on 2. hugs, Karen
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It will be great to meet you too, Bevin! Missed you at the luncheon. Hopefully we can find a day this summer when everyone is available :-)
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Hi All,
Karen, hope wedding went well. Graduation party was fun. Two groups of people, parents and college students. What a difference. After the garage sale, made 60.00, went to the grad party. So much positive energy as they talk of future and partying. The parents talk of good times past and retirement...so funny.
Hi Susan, Bevin, Starbeauty, kindone, heymoose, Laura: Hope all is well. Still want to go to festival today. I love people watching. DD ran in Komen run, but haven't heard how she did. Hoping well. Summer is such a busy time.
How is end of July? Everyone free?
Maureen
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Hi all, had a great time at the wdding, my DGS asked me to dance both a fast and a slow dance, he is growing up so fast and is a great dancer, had never seen him dance before. Also DD and DGD danced, they are both good dancers. Only 2 drinks, I was the champagne toast! Both my daughter and I are now smoke quitters, using nicorette gum, I'm so proud of her. The end of July is fine, will be back from N.C. on the 23rd. hugs to all, Karen p.s. if my friend from the Stop Smoking thread can make it, is it OK for me to ask her or shall I meet her on a separate date? Either one is fine with me.
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Absolutely she can join us, the more the merrier AND give me pointers to quit smoking. Stopped smoking during working hours so I'm really trying AGAIN. I need to do this, really do.
Gotta go, have to finish laundry, grad invitations, dinner etc.......never ending list.
Maureen
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Hi, all my friends, This is a busy time of year, Weddings, graduations, proms and vacations. Sunday on Fathers day Ava Marie will be chastened and party to follow. I hope we have good weather the party is outside.
We are doing alot of work on our cottage, totally gutted two bedrooms right down to the ground. Always something, but we just put it in perspective.
I have a onc appt. today at 3, and of course I dread those tumor markers, I am a wreck what a way to live. Please say a pray for me.
Hope all is going good for you all, I think about our group all the time, we are fortunate. HUGS
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Dear kindone, sending prayers your way for a positive outcome, I know we all worry when tests and appts. come around. You are right, we are so fortunate to have each other. hugs, Karen p.s. Maureen, I'll send you a P.M. on how I worked out the quitting, I know you can do it too. DD is 9 days out and chomping on the nicorette, I too am using the gum - my e cig is awaiting a part coming in the mail, did you get one when your DD did? I find it satisfied the need to have the smoking ritual in place.
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Hi All, Went to thyroid guy today and they sent me for bloodwork and ANOTHER SONOGRAM. Getting sick of doing the scan thing. Off the AI's for two weeks, then start them again and see if the same symptoms surface. Still not smoking at work. Thanks for the PM Karen, great suggestions and I'm using the wait for 15 minutes after the craving quits. It really helps, I'm really trying to see what works and what doesn't work.
Kindone, good luck today. It's so hard waiting for the results and so stressful. Focus on the future days you'll spend at the cottage, after it's all back in order.
Hi, hope is all great.
Love,
Maureen
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Hi Susan, I enjoyed meeting you at the luncheon at Brew Pub. You asked me to get you some information about something but I cannot remember what; surprise...surprise...If you think of what it was please let me know.
Take Care
Laura
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Hi All... Sounds like a great weekend had by all... My dd graduated in VA on Saturday. Very long trip, but so rewarding to see her make it through. glad to be back in WNY though... Pretty hot in VA.
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starbeauty, congratulations on you DD's graduation. I lived in Va. for 9 years and it surely does get hot, but made it through the winters with just a raincoat - sometimes with the lining in. In the summer it can get truly hot, had to have air conditioning. Glad you made it home safely. hugs, Karen
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Hi Everyone,
Starbeauty- how great your DD graduated . You must be so proud. What did she study and is she lined up for a job or more school?
Laura - I see you're from GrandIsland. Such a tragic story this weekend about that 2 year old. I made me so sad. I cannot imagine the pain that family is in.
Maureen- and others on the stop smoking thread..I am so so so proud of each of you. This is a fantastic thing you're doing. You'll save your life and save money!! win win situation. I know you can do it. Great job - sending you piles of strength to stay strong. Do you like the new thyroid doctor? I am looking for one, so happy to take a PM of a name if you like your guy. I hope evyerything is good.
Betty - I hope your Onco appt is good and your blood tests stable. Let us know how you make out. Sending good vibes!!
Ok - so worn out Buffalo talk, but it feels like fall tonight. Its supposed to be 80 Wednesday. I am hoping.
Well - off to bed soon. I hope everyone is great and has a Happy Tuesday.
Bevin
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Laura-it was info about the Tonawanda Coke plant lawsuit...I've been trying to find info on the internet, but all I have found was the lawyer's phone number. I know they started a new one last week. Really want to get involved somehow. Seems as though benzene coming from the plant could be causing our breast cancer outbreak here 0
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Hi All, Work is getting back to "normal" only took two weeks.
Laura, why don't you post the info on the site. I'd like to see it too!!
Starbeauty, congrads on your DD graduation. You should be so very proud of her. Welcome home.
Kindone, Bevin, Susan, HI!!!!
I'll work on the next get together this weekend. Need to get back into the swing of things again....
Love,
Me
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Hi, not happy to be joining you ladies.. but glad you are all so supportive for each other. I was just dx about a month ago and still wrestling with my options.... so far I have 2 areas of DCIS grade 3 on the right side, left is clear, but I am gonna do bmx as I had Hodgkin's at 14 yo followed by Thyroid Cancer at 25y.o. and now BC at 40... turning 40 really does suck:) I am a massive worry wart and the weeks between the mammo coming back funny and my path report from the stereostatic biopsy just about killed me... I need to do what will give me the greatest piece of mind. I have my last plastic surgeon consult in Rochester (I live in Camillus) tomorrow and then I hope I can get this surgery scheduled.. I have seen 3 surgeons and this will be 4 plastic surgeons tomorrow.... going to Rochester to see Dr, Vega as he does the TUG... the PS here said I didn't have enough tissue for a DIEP to give me more than a small A cup which was a shock as I am no where near skinny... also went to Sloan Kettering which really was a waste of time, they looked at me like I was crazy to consider a BMX and the PS there said he wouldn't even consider me for any of the reconstruction procedures that use your own tissue.. in all a very cold and clinical experience... happy to be staying up here for treatment. All this confusion over reconstruction has at least kept my mind off the cancer... those of you with implants please tell me they aren't so bad... I read the discussions on them and get so depressed... but it is people talking about problems they are having.. not those out there that are happy with their decision... I don;t care about perfect... breast feeding already wrecked this pair... I just don't want problem after problem.
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Hi Meg, So glad you found us, sorry to meet under these circumstances. The women on this thread are so supportive and comforting. You are on a difficult journey and I wish you the best possible outcome. I did not undergo the procedures you are inquiring about however I'm sure someone will come along soon to help you out. I know women who had success with implants on this site however I cannot remember the threads. You could try and search key words to find them. Please keep posting on this site and let us know how things are progressing on your journey. Sounds like you've had many challenges in your life, ((((((((((((hugs & prayers)))))))))))
Love,
Maureen0 -
Dear MegM, we are sorry that a BC diagnosis brought you to us but you will find loving, empathetic, strong women welcoming you into our group. Did not have implants so cannot offer any insight into that but I too chose Rochester as my home base for my treatment team. I am a little closer to Rochester than to Buffalo, but many of our members are followed at Roswell or have surgeons trained at Roswell. I have been so happy in treatment at Rochester General, my BS is wonderful, very open in answering my questions and experienced both in the operating room and at follow-up visits. I had a bout of an infected seroma that of course happened on a weekend and used his cell phone number to contact him, I was his 1st appt. on Monday. You have certainly done your research on BS's and PS's. I may have a breast reduction to even out my breast in the future and will look to you for advice. Again welcome, we are a chatty bunch who met for the first time two weeks ago and just had a wonderful time, are planning to meet again later in the summer, would love to have you join us. Take care, Karen.
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Dear Meg, Welcome about your diagnosis, you have been though so much already it's not fair.
I have implants. When I had my tissue expander's in after surgery. The rt one shifted into the middle of my chest so the pocket wasn't right. When I had my exchange done it still didn't look right but after a revision it looks very nice and I am happy with them. You do have to get use to them. It feels live a tight bra on all the time but after awhile you don't even notice it anymore. Tomarrow I am going for my tattoo nipples, I hope they come out ok.
Girls, Thanks for your prayers and good thoughts my tumor markers came back NORMAL.
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Welcome Meg... check out the thread re. micro fat grafting... PS about 5 hours from you doing some cool stuff... she does all three types of breast recon.
Thanks Karen... hugs to you too.
Bevin... she graduated from HS. We adopted her when she was 9 and it has been a real ride... I am hopeful she will go on for more education of some type, but accomplishment is such a rare experience I never expect too much. Right now she is being kicked out of where she lives right now... and is heading to visit her biological sister for the summer with the plan of coming back to go to college... I hope she does. She is still in survival mode and she sabatoges her own life constantly.
Kindone... happy dance... happy dance re. TMs!!!! Let us know how the nipples come out.
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Kindone, TM neg!!!!!!!!! Congratulations!!!!! Yes, let us know how the nips come out. Boy, only on this thread can one be so graphic and no one takes offense.
Maureen
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Kindone, so, so happy for you, today is just a fine day for us, hope nipple tats go well, yeah kindone!!
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Yaaay Kindone! Glad to hear you got good results! We'll celebrate next time :-)
Welcome, Meg! I also had a large area of DCIS plus3 mm. tumor hidden inside, but through much research and many opinions decided on a lumpectomy and radiation. It was such a tough decision and understand why you would want to go the BMX way. Can't give you advice about reconstruction, but I am 42, so can give moral support :-) Good luck finding your way through all the decisions. We are here if you need us!
Susan
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Kindone how was the tatoo? I am implant obsessed now as I finally decided to go the expander/ implant route...I scheduled my surg for July 1st, can't come soon enough... waiting as we had a get away planned for the kids the weekend of the 25th to celebrate school being over and it will be my last wild weekend for a while. Finally got a little good news, my BRAC test came back neg.... such a load off my mind, was worried about my daughter.
SusanHG thanks for the support, it is such a hard choice, I am not a candidate for radiation because of the Hodgkin's... so basically I would have been relying on large clear margins with a lumpectomy which would have left me misshappen anyway... just got a report from the path at Sloan who went over my slides and now they say there "might" be evidence of microinvasion.... freaking me out, but it does make me more and more sure of the BMX... I can't take waiting on pathology reports, by far it is the worst part for me.
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Good choice Meg. I wouldn't feel too good about not having radiation either. I am 2 1/2 weeks Post-Rads and watch my Incredible Shrinking Boob diminish daily 0
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Dear SusanHG, isn't that just the most incredibly tormenting thing to watch. I for one was completely unprepared for it. The RO mentioned it as a possibility not a for sure result, you are the third person in a month I have met who had it happen. I, too, had a lumpectomy and rads and now Arimidex. The difference in size is so obvious I had to be fitted for a bra at a mastectomy boutique, it is the ugliest bra I have ever seen, it does make me look even in clothes. It, the size difference and the color, is a daily reminder of the fact that I have BC, though I am NED now and try not to dwell on it. I am thinkin about having a breast reduction on the L side to balance them out, at least then I will not need to wear such ugly bras. MegM, I can well understand your decision to pursue a BMX, interesting that the doctors at Sloan are stepping back frm their initial decision. I am so glad you found support on this thread. Karen p.s. the waiting is truly intolerable, it was the worst part of the process for me and I think I speak for all of us here.
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Oh, my. I am thrilled to have found this thread! I am from Lakeview, just south of Buffalo. I was treated at Roswell, also. I would love to get in touch with others in the Buffalo area. I haven't joined any support groups since my diagnosis, and have no one close to me who has been diagnosed. Please let me know if you get together! Tammy
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HI Meg HI Tammy, welcome to our thread. The team did get together, I missed it due to my childs meet but am excited about the next time.
Meg- I didnt have a mastectomy - I had lumpectomy and rads. skipped chemo and am also 46 so close in age and can definately offer moral support but not any experience with your planned surgery. I definately did not want mastectomy as I was more afraid of additional surgery and more radical surgery so I went the other route. For me that was the right decision. My tumor is below at 6:00 and close to chest wall so the indent is not seen. I have a pretty good coesmetic outcome, just a smaller rt boob! Skipping chemo- wish I hadn't done that. Good luck -with the PS, I know many women are really happy and I believe there is a thread around here about reconstruction.
hi Tammy - I live in the amherst area - as you know- everthing in Buffalo is 20 mins away, so we're not too far away. .. ha. I was also treated at Roswell and my Onco is in Williamsville.
Hope everyone is well. Talk soon.
Bevin
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Tammy, you are very welcome here. We have a great group of women. We met for lunch once. We plan another get together this summer. We would love to have you. I live in South Buffalo.
Meg, the tattoo went well, not painful at all. They look pretty good as far is I can see (bandages still on) but I looked. The color looks very natural.
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Hi Tammy (coming to terms), I am so glad you have found us, we are always thrilled to have a new member in our group. We post fairly regularly, I know others will be by to greet you. While I live in Batavia now, I grew up in Buffalo and had an aunt who lived in Lakeview. Many of our members are or did have treatment at Roswell, my mom did years and years ago by the famously talented Dr. Namota, my godmother did also. Starbeauty and I are treated in Rochester since it is a little closer than Buffalo. We use this thread for everything: support, information, a shoulder, and to share our lives. You found a great support group to join. We met in early June and had a wonderful time, are planning another get together in late July. Feel free to join in any and all posts, if you read back through the threads, you can see the amount of feeling we all have for each other. It will also give you an idea of all of us and our families. Glad to have you join us. Karen
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Welcome Meg and Tammy, Sorry you had to join the club but so happy you found us. This is a great group of women and we all "get it".
Meg: Good luck with the mx. I know you'll get through this and we'll hold your hand all the way. Enjoy your post school trip and remember, it's all uphill from here.
Tammy, The support you will find on this thread is amazing, best support group around. Looking to get together the last weekend in July if everyone is free. If not, we'll try for August or Sept.
Everyone, last week of July sound good?
Maureen
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Hi Maureen, sounds great to me, I'll be back from seeing Sherry in N.C. on the 23rd. Maybe we'll get another summer meeting in. How is it being back to work? Karen
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HI Meg and Tammy,
Welcome to the group. Not the BC group, but the WNY group. I had a bmx three years ago w/ immediate reconstruction. The expanders were a little tight and uncomfortable but liveable. The exchange surgery was the best. The implants are so much softer. I still feel tight around the chest, but it is not that bad. I also had nipple reconstruction and I am happy with the results. If you have any questions please PM me and I will be happy to answer them.
AS you know my friend passed away last wwek from BC. The funeral was very rough for me. I ran into my ex husband and was very replused by him. I really hate to say that, but I do not know how else to explain my feelings towards him. He seemed to make the day about him and I was not very pleased. Okay enough about that.
On Saturday, I did the Komen 5k and actually ran it. My time was 38.50 minutes. This was my goal this year to run the race and I MADE IT!!!!!!!!!!!!!!!!!! My team Pink n Perky aslo raised $1,585.00. I also ran into Susan and her family at the race. She has a lovely family. Susan it was great to see you.
So now that I ran the 5k and thinking that, I reached my goal and will not have to do it next year, well guess again. My team mates have decided that we will all run next year. I really think they want to kill me. LOL!!!!!!!!!!!!
Kindone, glad the tattos went well.
Hope everyone is doing well. Have a nice day.
Hugs, Cheryl
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Hi Tammy, welcome to our great group! I was treated at Roswell (I am 2 1/2 weeks post-rads, so just finished) and love it there! Actually, didn't want to finish rads because loved going in to talk to everyone Weird, I know.
Karen-Sorry that you are having trouble with bras and such. I hope it won't get too much worse for me. Right now, I have a sink hole at my lumpectomy site (upper outer quadrant) and will definitely need to buy a smaller bra. One of my swimsuits shows the size difference because the top is much looser in that area. I had a huge chunk taken out. It was around 9x5x3 cm! Not sure if I would have a reduction unless it is absolutely noticeable.
Cheryl-You go girl! that is my goal for next year. I am going to SLOWLY work my way up to running if my spine doc allows it. It was great to see you!
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Maureen-Have my 25th high school reunion of the 30th. I think it starts at 5 pm? Lunch would be fine for me either day.
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Hi All, Thinking Saturday July 30th. Any suggestions where?
Doing okay, really tired right now. Just got home from grocery shopping, work, etc...and got roped into hosting co-workers from one of our affiliates next week. Not too bad, only one day but added stress just getting back to work. Then take them to airport on Tues. in rush hour traffic
etc. etc. etc...Oh well, welcome back to work. Heymoose, SO PROUD OF YOU and Susan, you girls are great. Are you doing the walk in Sept. in East Aurora?
Kindone, so happy the tatoos went well.
Hey Karen, miss you.
Hi Starbeauty, bevin, meg, tammy, Laura,,,,did I miss anyone?
Have a great evening ladies, going to watch my DVR soaps, (A Y&R and Bold & Beautiful fan)!!! on the couch.
Love,
Maureen
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Dear Cheryl, way to go girl, that is a wonderful achievement. Sorry the funeral was made even more difficult by the presence of your ex husband, just remember that was one of the reasons he is an ex. hugs Karen
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Dear Cheryl, way to go girl, that is a wonderful achievement. Sorry the funeral was made even more difficult by the presence of your ex husband, just remember that was one of the reasons he is an ex. hugs Karen Hi Maureen, I was typing while you were posting lol. Quiet day today, but our group is growing, that is so exciting, we will have even more women to match faces to screen names to real names. How to keep the mind nimble! Yesterday was my 5 month quit date for smoking, am using just 4 pieces of nicorette gum, it is now available at Walmart (OTC), in cinnamon burst and it is a burst. Hope you are still lurking on the thread, and doubly wish you take it easy with work, you have a lot on your plate. Did stopping the Arimidex make the se cease? hugs, Karen
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Hey Karen, Stopped the AI and the digestive issues cleared within days. They're keeping me off of the med for two full weeks. Start again this wed. I have weird issues going on, hip pain, clavicle pain, etc...and I'm really anxious, wonder if this is the AI still in system? don't know. Yes, still lurking on the ss thread. Trying to cut down and doing okay....the best that I can.
Getting ready for DS senior prom next week. The group rented a bus limo (good) and will be going to prom, Niagara Falls, etc... but it all starts here, so after co-worker thing, I'll have 24 kids plus parents on a Thurs. so today I'll be cleaning, shopping for food, getting flowers for DS "friend" and finish cleaning from the garage sale stuff. Anything that didn't sell is off to the Goodwill. My sister says, ooh you're gonna give that away? If she wants it, she can take it. I'm sick of the accumulated stuff, beds, books, ice and roller blade skates, tea sets, too many vases to count, lamps etc.... in the back of my mind, I'm thinking if I get sick again I wont' have the energy to get rid of all this stuff so doing it now. It has occurred to me some women don't do well with bc, I don't want to be one of them however at S3, have to wonder? I'm in a bit of a funk today, on the downside of the bc crap I think. Oh well, onto a better mood.
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BTW, had two thoughts for lunch:
Siena (main near Harlem)
Harry's Harbour Grill (downtown, I think Ontario St. right off the 190)
Not sure either has Sat. Lunch hrs. I'll call today and let everyone know. These are two of the places we take out of town coworkers for visit, might be pricey ($20-30.00 range?) or want more casual like Friday's, Applebee's type place?
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Hi Maureen! don't mind the price. I'm willing to pay more for good food. Harry's would be great on the water! Let us know if these are open.
Hope you are feeling better today. I know I was a depressed yesterday as well. I have so many back problems going on and yesterday I was convinced it was cancer, even though it's been going on for 2 1/2 years! Must have been something in the air yesterday
Take care all and hope everyone is feeling ok
Susan
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Maureen, if you ever need someone to talk to, vent with, or just a shoulder to cry on or person to laugh with, my phone number is 876-0844. Hate those moments myself and wish I could share them with my family, but don't want to bring them into my "hell" along with me.
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Hi Maureen and Susan, sounds like a really busy day to me, I think you are very wise to pack off all the "stuff" to Goodwill. I did that when I moved back home from Va., never missed any of it. I am less impressed with accumulating stuff as I get older I think, I used to have so many collections going at the same time. Always at yard sales getting more stuff, no more. As my DGD gets older I am beginning to pass on to her the "good" jewelry that neither DD or I wear, she loves to go through my jewelry case and ask what year she gets whatever, I can remember DD doing the same with my mother and her dad's mom. If we could, I.d be grateful if we can keep the driving time down for starbeauty and I, is there anywhere else on Transit that is good and that is a little pricey for me, retirement is grand but it comes with a fixed income I'm afraid. There is a bar and grill diagonally across from the Bison Pub, I think it is called Branigans or Brewers. It is in the strip mall that Country Buffet is in, as you are looking at that mall it is the farthest to the right. Or anywhere else in that area would be fine, the 30th works out great. Funny how those funky moods come on, sometimes there is nothing to pin it to, I think BC stays constant in the back of our brains. Could I ask all of you to say a prayer for my friend Sherry, she is getting biopsy results on Tues. afternoon. They saw areas of concern on her mammo and did two biopsies. Hope everyone is enjoying their summer, we have had beautiful weather, sending out a hug to both of you, starbeauty, kindone, heymoose, Laura, bevin and all our new members who have joined us, Tammy, and meg. hugs, Karen
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Hi Ladies,
Susan, you are so very sweet. Thank you for the support. Know the dark thoughts are crazy but I can't get by them sometimes. Worked through it for now. I know what you mean about not bringing your family into that place. My DH is really good at seeing the mood though. He gets upset which upsets me. I so want him to be happy with or without me, he deserves that happiness. He's a wonderful man and I thank God everyday that we have each other.
Karen, I understand the drive issue. How does Olive Garden sound? They built a brand new one right on Transit road across from the Eastern Hill Mall. Prices are usually reasonable too. Or the red mill in on Main. I'll call those places to confirm lunch hours. I absolutely will say a prayer for your friend Sherry and B9 results. I don't want any other woman to hear those words, they stab through your heart and change you forever.
So here's my news, sent DS announcements to out of town guests and they are trying to arrange a trip all the way from Kentucky!!! All 13 of them most likely will stay with us. Needless to say, life is going to get really busy. The good news, both are teachers (principal and music teacher) and have a catering business on the side. My BIL will absolutely make the cake. My DS would love that!! His cakes are known throughout the state of KY. Told him many times he should quit work and do the catering business full time. One wedding cake he made was 5 cakes, two were ice skating rinks for a winter wedding, they are delicious too!! Love them to death, nicest people you'd ever want to meet. Yep, it's gonna be busy. They want to get away from the bad weather too. I might ask for vacation time too, work will love that!! Still lurking on the no smoking thread and have begun the decent. Something I need to do for myself.
Time for bed, thinking I'll rest with Prince Ativan tonight
Love,
Maureen
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Dear Maureen, I think you should take time off to enjoy your relatives, your time off before wasn't a vacation at all. BIL's cakes sound fatastic, it sounds like a wonderful graduation party with the whole family to celebrate together. Red Mill Inn sounds like fun, I've seen it but never eatten there. Congrats on beginning the descent on smoking,are you going to use any of the nicotine aids when the time comes, I seem to remember DD used the e cig, my DD is using the nicorette gum and doing well, I know the kids are thrilled. DGD threw out all the ashtrays to celebrate. hugs, Karen
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Hi Ladies, How is eveyone? Busy I see. Maureen you have your hands full.
Hay moosse, congratuations on your run. You go girl!!
Karen, said prayers for Sherry Of course, we don't want anyone in our shoes,
Today was Ava's Christening, it was great beautiful day and she looked like a little angel in her dress. Anywhere we go for lunch is good with me. I am free on the 30th, so it works for me.
As far as the tattoos go they look good and are healing well. My probable is the pressure put on my implant when doing the tattoo let me feeling bruised. It's very sensitive to the touch, just like when I just had my implant put in. I guess it will just take time for it to heal. It it my radiated side so I am such that has alot to do with it.
Hope all is good with you all.
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Hey everyone, things are crazy here with the school year wrapping up... my youngest "graduated" from pre-k last week... I can't believe I have no more preschoolers (I am gonna be a wreck when they are off to college instead of off to Kindergarten
)I saw a mention of Ativan on here.. I am starting to think I am going to need some anti-anxiety meds either right before my surg. date or for the time after when I am waiting for my path results.... I can feel the tension starting to build up already... but I have never taken any of those types of meds and just wondered how good they work?
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MegM, they work quite well, I use klonipin which is also an anti-anxiety drug, as is Xanax. I use it in combination with talk therapy with a LCSW, who I see once a month now. I am his only patient with BC, but he is a regular reader of bc.org., familiarizing himself with the challenges of BC. Many threads say to get a therapist with experience with BC, but I already had a relationship with him and was more comfortable talking to him. Many women use just the medication itself for it's anti-anxiety properties. Hugs from one who was in your shoes with the anxiety creeping up, Karen
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Hi Meg, I also had help during my initial diagnosis days. I took xanax and it really helped me to sleep . My mind would just whirl and not quiet down. I think I didnt sleep for 2 weeks straight. Once I asked, the doctors for help and shared my anxious feelings and lack of sleep they were more than happy to give me Xanax and ambien. The Doctors are used to people feeling anxious with this diagnosis and all the decisions that go with it. And honestly - there is no reason to have to feel that way and not take treatment if you need it.
I was a bit afraid about taking those meds too, but found I didnt have any bad reactions. I was just able to sleep and I was not constantly going over things in my head. I was relaxed, but it doesn't give you a "high" feeling, a super tired feeling and nor did I notice I felt any different. It wasn't until I was finally able to sleep that I realized it was even working.
I also found I walked and that allowed my mind to look at the world around me rather than think about my cancer diagnosis.
Now, being 1 year out from diagnosis , I dont take Xanax but do take a mild antidepressent. Its to relieve the hot flashes I get and it helps a ton. Its a really low dose (37.5mg) so doesnt really help at that level if you're depressed, but it does help hotflashes!!
Maureen you are the busiest person I know. I wish I had some of your energy!!
Betty - congrats on the christening. You'll nee to bring pictures to lunch. I love that name Ava- so so pretty!
On lunch at this point, I am good for the 30th too.
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Hi All, Hope all is well. Made reservations at a restaurant for the 30th. Please PM me if you want to go and I'll provide all the details, place, location and time. I'm so excited, we are going to meet again. Bring pictures
Love,
Maureen
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Please let me know if you are having trouble PMing me. I'd like to avoid posting info on the thread just in case a weirdo is lurking LOL!!!
Maureen
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Hi all,
Such a vibrant, busy, supportive group you western New Yorkers are!!! I wish that I could meet for lunch in July, but we are camping in Alleghany that weekend. Please let me know if you do it again? How many lovelies are on this thread? I am two years out and the smells of early summer remind me of chemo and fear and fatigue, not to mention gratitude and a suprising, unexpected amount of peace. Tammy
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Tammy, so sorry we will miss you!! When we get together again, I'll absolutely count you in... Have a great time on your vacation. Beautiful land in Alleghany. My caniversary is in August and I remember how I felt too! The sites, sounds, smells etc... Hope they go away some day and I die an old, miserable fiesty lady....like Marge jokes that lurk around the internet (LOL).
Maureen
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Dear all, had my 6 mo. check up with MO today, everything is A OK, my blood pressure was even lower, usually I am high at all my Dr. appts. hugs Karen
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Hi Tammy, didn't see your post at first. We used to camp at Alleghany years ago, it is just beautiful there. Like Maureen, August is my cancerversary, I feel like this one, two years out, will be easier than last year. Maureen, I'll be Madge's cranky friend, old old friend. hugs, Karen
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Karen... so glad to hear everything is perfect... it sure is a relief to know all is well and even the b/p is coming down.
Happy Dance! (((Hugs)))0 -
Yay!!!!!! Karen!!!! Low BP and good report!!!!!!! We have something to celebrate. and yes you can be my old, old, old friend. Love you girls, you are great. Just getting home at 10PM ugggg, tired and cranky just like Marge LOL goodnight friends till tomorrow
Love,
Maureen
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Just spoke to Sherry, please keep praying, there was no cancer in the biopsied areas but there were "multiple myiolomas", they are going to do blood work to see if she has cancer of the blood. She had an aunt who had it and died of it, so she is really scared. Blasted disease!!!!
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Karen, I am so happy you got a good DRs report, and of course I will continue to pray for Sherry, that poor girl going through this awful disease.
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Hi WNY ladies, Everyone must be very busy. Its been very quite. I miss you all, hope all is well.
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kindone, it is very quiet, I've been checking this site yesterday and today. Thank you for your continueing prayers for my friend, Sherry, talked to her today and she is a little calmer but still anxious, the waiting time is the worst. My granddaughter had her graduation from 8th grade tonight, she won 3 awards, one for National Honor Society, one for artistic achievement and the third for mentoring younger classmates, quite proud of her. No air conditioning in the auditorium, it was sweltering in there!! It was a relief to get outside. Starbeauty (Esther) and I are meeting for coffee on Tuesday, it is so wonderful to be making new friends, that is the one benefit BC gave us. Hope all the heavy repairing is finished on your cottage, it looks like we'll have a really warm summer for you to enjoy it. Just got 4 seasons passes for Darien Lake, it is about 20 minutes from here and they were running a special, plan on spending the summer by the wave pool with my daughter while the kids ride the rides. Have a great weekend Betty, hugs Karen
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Karen- Darien Lake sounds fun. Haven't been by the wave pool yet. I know my child would love to go. Hopefully plan to get there a couple times this summer.!
Hope everyone is well.
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Hi All... seems like the weeks are simply flying by... My most valued staff member and basically my other half at work decided to take a new position. She is able to double her salary and work at home... can't compete with that. Will miss her terribly, but glad she will be making tons of money to send her kid through college. Trying to get my thesis done... find that BC has left me feeling much less confident than before BC and struggling to think of words that used to come so easy. Oh well... I'm still NED and that is all that matters to me today.
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Maybe I'm just a little down today because of general life issues, but it seems like so many girls are becoming "angels" on this board. It just makes me lose it when I see another precious beautiful woman that I have read copious threads with...is just gone... I guess it is just way too "real" lately. I'm saying a prayer that God keeps all of us WNY girls in the palm of his hand... I need to remember He is with us no matter what... but sometimes I just don't want to go through it at all... not the cancer, not the chemo, not the loss of friends to this beast, not the AIs and rads and scars and all of it... I just want to bury my head and wish it gone... and wake up and find my breast back on my body and my life the way it was before.
I'm going to go get a pedicure and have my toenails painted some wild color - just to pick me out of this funk. How stupid is that?
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Dear starbeauty, This month has been brutal with the loss of so many beautiful women, sometimes I read the whole thread, sometimes I just can't do it, all the women on the stage IV forum are just reeling from the losses. Each time I see ______ is an angel, I make a concious decision whether that day I have the inner strenth to read it, sometimes I must read it, like konakat (Eliizabeth). She was a truly wonderful spirit, taken too soon. It affected me like a punch to the stomach, and took me days to assimulate, as if she was a close friend,like all of us. I like that prayer for God to keep all the WNY women in the palm of his hand. You've had a double assault, the losses and the pending loss of your better half at work, Plus you are working on your thesis. All together quite a bit to contend with, if a wild color on your toenails makes you feel better, go for it, I personally think a weekend at a high end salon and spa would not be too much. sending hugs, see you and your toenails Tuesday, Karen
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Addendum, on the Stop Smoking thread there are 4 of us who used to be insatiable readers, sometimes a book a day, now our ability to concentrate is just not there, the meds, the treatments, the whole business of fighting the beast, is that what has affected our abilities? I personally have 4 books started from at least a month ago, all with bookmarks. I thought it was just me but there are many of us.
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Hi All, Oh boy, what a week!! Had all parents and kids for the prom night. All went well even with the rain. Had pictures on the porch. DS looked so handsome, I cried like a baby. His date, gorgeous. She's a princess, I'm surprised he tolerates that type of girl. He's more of a suck it up and do the right thing kind of guy. Her dress was a deep purple, beautiful. I'll print pics and bring to lunch. Now onto a slew of grad parties, then graduation on Sun. Then we get a week reprive for the 4th to prepare our house for the 60+ guests for our grad party. I'm a little flustered though. After everyone left, I fell asleep on the couch till the morning, almost overslept for work today. Had to run to work.
Karen: still praying for Shelly, I'll keep her in my prayers. she's in a tough spot.
Hi Kindone, bevin, starbeauty, Susan, Pasha, ElleD, Laura, heymoose, Meg, hope you are all well and enjoying life.
Starbeauty, I understand the place you are in. Think that way myself very often. My first thought after DS left for prom was, thank you God for letting me see another milestone. I appreciate things so much more now. That is a positive of bc, appreciation of the little things. Then I see women that are obviously careless about their health and think, they're in better shape then me, bc did that to me too. Good and bad. I read the SIV threads too and it breaks my heart at the unfairness of it all. Olga, Elizabeth all of the brave women that barrel through and still keep positive, they are some of the strongest women I know and I have such a deep respect for their will.
Later ladies, Love,
Maureen
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Thanks Karen and Maureen for the encouragement! I can so relate to the book thing Karen... I was a voracious reader... Now just can't. the toenails are purple... DH hates them... But I love them! I talked Tracys ear off at the salon and walked out feeling better... Not about stuff we talk about... Just day to day stuff, but somehow it helped to remind me to stay focused on my faith and not fear.
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starbeauty, so glad it helped, purple is mild, sometimes my DGD and her friend's paint each nail a different color! Now that is wild. hugs, Karen Tomorrow, my stepdaughter is coming to visit DD and I, we lost track of each other about 7 years ago, DD found her on facebook, Karianne lived with us for about 5 years and we were very close, cannot wait to see her again, she moved to a new town, Brockport, which is about a half hour or so drive from us. All these important people coming into my life, how lucky am I.
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So cool Karen...we had several foster children I would love to know how they are doing and what happened in their lives but I don't know their adoptive names. I am so glad you get this chance to pull the past into your current life... I think we carry stress when pieces of our lives are left dangling... Have a wonderful day with her!
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Hi all, change in plans, my stepdaughter couldn't get all her children together for today, so we have postponed it for someetime this week. I was very close to her first born, even visited me in Virginia for a week. He had to work today and really wants to see me, this is getting more and more exciting, A.J. was such a darling boy, he is a young man now, used to call me nana, it would be so great to have him in my life again. I'll let him set the pace if that is something he is interested in doing hugs to all, Karen ps. starbeauty - we had foster children when I was growing up, always wondered what became of them too. All the tangents our lives are made up of, so glad to have a second chance with my stepD.
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HI All, sorry to hear your DSD couldn't make the weekend. Hopefully this week will be a joyous day for you and your family. Hope Shelly is doing well.
Me? Let's see..another thyroid scan today. I guess it's okay. DS graduated from HS, (yes, I did shed a tear or 100
Planning the grad party, working full time, and the doc appt. have me really busy. Hope everyone is well and enjoying life. Haven't heard from many these past couple of days. Don't forget to PM me if you need details of the lunch. Gotta run,
Love,
Me
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Well survived our trip to Old Forge...lots of rain but the waterpark was empty so kids got to ride and ride and ride... It was a good trip, but glad to be home. I am trying to stay away from my compulsive Internet searches as my surg. Is rapidly approaching and I just scare myself..but I caved tonite and here I am:) so far staying calm..denial maybe? Just wanted to say hi.
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Hi Meg, Prayers for your upcoming surgery and lots of hugs. Just tuck my support in your surgical gown and I'll stay there through your surgery. Let us know how you make out. LOVE the Adorandiack mountains. Went every year for years to Eagle Bay until my mom died in 2009. EB is about 10 miles northeast of Old Forge. Went to OF all the time, love the stores and the waterpark....my kids grew up in that water park. So much to do there. Did you go on the train ride in Thendora? They have a bunch of thieves on horseback rob the train during the trip, it's great fun if you have younger kids. Let us know the date of surgery too or just PM if you don't want to post. Oh yeah, stay away from Dr. Google, scared the hell out of me.
Love and hugs
Maureen
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Hi Meg, just checking in to say prayers are coming your way for your upcoming surgery and calm, soothing thoughts to keep you calm as you wait. Glad you had a good vacation though rainy, one trip there we tented it and it rained for the better part of our stay, just made us more thankful for the gorgeous days, I too was glad to get home. That was the year we bought our trailer for obvious reasons. Stay calm, cool and collected - we are all here rooting for you. Heymoose, haven't heard from you lately, hope everything is going fine. Had a Chai Cooler as starbeauty and I went to the Coffee Culture, a new cafe in Batavia. It was a wonderful visit, we have so many things to share. My stepson found us on facebook, he was only 6 when I married and will be coming to see us also. He lived with us for 6 years, I am so anxious to hug him. I found all our old camping pictures to share with him, it was a special time in our lives, now we get a chance to make more memories. This will be an awesome week for my daughter and I as we get to reunite with a missing part of our family.
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Surg is Friday morning, starting to freak out a little, but can't wait to have it done... I will be sure to check back in when I am back on the computer.... going to take quite a break from it and catch up on all the sleep I have missed worrying. Have a great 4th of July!
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Hi Meg, thinking of you, I remember feeling so anxious before my surgery too. By the time you get to the hospital everything goes so quickly it is almost sureal. Sending calming thoughts for you as you wait. We will be waiting to hear how you are doing. [[[[hugs]]]] for you, Karen
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Just a quick not to send Meg my prayers for her surgery. Remember to rest and relax for a quick recovery. Strength and courage and all the support are sent your way.
(((((HUGS)))))
Cheryl
p.s. will catch up w/ everyone over the weekend, when I can breath.
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Hi All, hope everyone is doing well and living life. Just ordered all the catering for DS grad party, now onto decorations, getting house ready. Feeling okay, just dealing with some unpleasant se's from my anti-hormal therapy that I just don't need right now. Trying everything, excerise, diet, water till I'm ready to float and nothing is working.
Meg, good luck tomorrow, remember we're holding you cyber hand with prayers in your surgical gown.
Love,
Maureen
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Hi Maureen, aren't those SE's just a treat, some days nothing seems to budge them. I know we are fortunate to have them in our tools to battle the BC, but some days are just a killer. On those days know your cyber sisters are holding you up. [[[[[Maureen]]]]] and [[[[[Meg]]]]] hugs from Karen
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Hi ladies, I made it! waking up hurt more than I ever expected, but I am so much better today and so happy to have it done. they only took one lymph node and it was negative..doing a happy dance. My path is gonna take a while because of the holiday weekend, should know by thursday. I am just so happy to have it behind me... Gonna take the expansion supper slow... This muscle stuff really hurts, but I have to say already it doesn't look so bad. Thanks for all the good wishes, gonna go nap now!
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Yay Meg, all done and a negative SN, great news, doing the happy dance for you. Enjoy your nap.Hugs, Karen
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Meg- really great news. I am so glad your surgery if over and no lymph node involvement. Happpy Healing.
Everyone- Have a great 4th of July!!
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Hi Meg, GREAT NEWS!!!! node negative, good for you. Doing the happy dance with you. Now onto healing a great long, healthy life. Keep us posted on the progress.
Happy 4th folks, probably won't post for a few days.
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Hi all, I had my fourth of July celebration 1 day earlier. Had a reunion with my stepdaughter and stepson and stepgrandson today. It was a tears of joy, huggy, lots of laughter occasion. I could not ask for a better gift than today. Karen
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Karen, glad to hear your reunion went well. What a treat
Update on me: countdown to grad party is going well. Almost everything purchase, ordered or organized.
Hope all is okay. Only 2 people responded to info for get together. Do we want to re-schedule or is anyone else interested?
Maureen
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HI to all you lovely WNY BC Friends,
I am in for the 2nd get together, just remind me of the date. Meg, HAPPY DANCE!!!!!!!!!!! for you.
Karen333, so happy you were able to have a great celebration. It must have been wonderful to reunite w/ your step family.
Maureen813, great your grad party plans are all falling in place. You may relaxe the day of the celebration.
Hey Bevin, how are you doing? Hope you had a nice 4th.
To all have a great week. Will keep checking in to see how everyone is doing.
Huggs and prayers,
Cheryl
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Hi, all its been quite. I have been watching the Casy Anthony case and I am pissed at the outcome. We are still doing work on our cottage we were up for the 4th, it was nice but a mess.
Meg, how you doing? I am glad you got good news (no nodes) Thank God.
To all the rest of you, I hope to see you all for Lunch at the end of July. Hope your all doing well.
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Hi...doing pretty good, think I overestimated my recovery speed, getting a little frustrated over how sore I still am...but no complaints, so happy to have it out. I see my PS today, doubt I will get the drains out, not draining much but one side is still very bloody, other side is more yellow/clearish. my surgeon called yesterday... He knew how freaked out I was waiting on Path and got really Great news...I was all DCIS on the right side...no micro invasion...so happy. They did find more than the 2 spots they saw originally so thank goodness I did not do just lumpectomy... But according to him my margins are "hugely" clear, and as expected my left side had no cancer. Still waiting on hormone receptor status, but I feel like so much stress has gone away.
Gotta go start my 2 hour showering process to get ready to leave the house.haha
I doubt I will be up for the meeting at the end of the month because I live so far...maybe 3 hours but I will do one later on, maybe as a celebration for myself I will incorp. An ovenight to one of the casinos in Niagra Falls..I am a slot machine sucker!
pS don't you hate the words they substitute in when you are typing..I do not usually proof read and above they put in overbite for overnight0 -
Dear Maureen, a very Happy Graduation party for your DS, we are to have beautiful though hot weather. With all your lists completed, may it be a happy day for you. We all have been so quiet on the boards, I hope it is just that we are so busy with our lives. Hugs to all of you, Maureen, Susan, kindone, Cheryl, Laura, starbeauty, and Meg, hope I didn't leave anyone out . Karen
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HI Maureen- Hope everything goes swimmingly for your graduation party. The weather is supposed to be really nice.
Meg- take it easy and relax. Take your time to feel better and heal. I am so glad you had a great pathology.
Kindone - hope you get to enjoy some of the cottage weather and dont spend toooo much time cleaning
Karen- your reunion sounds so nice. How lucky for you and them to have such an extended family. My own is so small so I envy that.
Well - hope everyone enjoys the weekend. I am off to take a nice evening walk with the dog!
xoxo
Bevin
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bevin, I know what you mean, my family was my daughter, grandson and granddaughter, and my DD and I are only children, both of my parents have passed on, so adding more family is sooo nice. Sorry I didn't greet you, I was going around the table at lunch, next time you will be sitting with us and I can connect a name to a face. I'm looking forward to meeting you bevin! Karen
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Hi all, last breather before party. Tent delivered and assembled, caterer dropped off the table so we can decorate. Guests at 4PM, dinner @6PM and I'm done decorating. Whew, now is time to have fun.
Hope everyone is doing well and enjoying this beautiful day. Might go to the taste of Buffalo tomorrow. Also, bought a book, 100 places to visit in your lifetime. That's next on my list of things to do. Busy week next week too, thyroid guy on Monday, and Friday I am deported
The hormone therapy is not behaving very well. giving me a weird heartbeat, like a skipped beat. I see the onc on the 25th, I'll ask him then. Have a super weekend all
Love,
Maureen
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Hi all, very quiet here, is it the heat. I have fans going in every room, can't wait till tomorrow when it is supposed to be in the 70's, won't that feel delicious and good sleeping weather. Yesterday, I must have woken up 4 times, just from the restless sleep. Kindone, hope you are at the cottage and enjoying this. hugs to all, Karen
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Hi All, Grad party was fabulous, all had fun and I'm really glad it's over. Hot, hot, hot. Everyone kept migrating to the air conditioning and I must admit I was one of them. We had a nice breeze under the tent but it was hot just the same. I'd rather have the cold. I can't take this heat, even with the chills as a result of the hormone therapy. Can you believe I'm having chills? So weird. going to call the onc on Wed. and see what the heck is going on. I have heart palpataitions and chills, worried a little bit. Has anyone on hormone therapy have heart palpatations? Looked on other threads and didn't see that as a se so I'm trying to figure out what is going on. Hope everyone is well, looking forward to our outing. Don't forget to e-mail me for info.
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FYI, so far I have me, kindone, heymoose, karen and Susan for our outing. Anyone else interested?
Maureen
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Hi Mauureen, I haven't had chills or heart palpatations, just hot flashes (which are so appreciated right now) and I just started with fairly sore knee joints. I have been taking 2 alieve which helps some. If it continues past two weeks, I'll have to have it checked. Could be the humidity and age though (sad thought). My friend from another thread, who I thought might join us, has her DS's grad party that day, so we will be a small group. I'm glad your DS's grad party went off so well, you had put a lot into making it a grand event. I am going to visit my friend, Sherry, in N.C. from the 15th - 23rd. She had a second set of blood testing with no results yet, I thought our wait period was slow! Prayers please for Sherry ladies. I hope the coming week is not sweltering down there, I can't take the heat either. We may visit in her air conditioned house more than I expected. Or I may get a glimpse of that going from air conditioned car to airconditioned event, game we hear southerners talk about. I could really stand 5 minutes of snow right now! hugs, Karen
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hey Karen, know what you mean about the 5 minutes of snow (LOL) watering my gardens and getting eaten by mosquitoes grrrrrr. Anyway, knew the girl who was hit by a drunk driver on Saturday night. DS went to school with her for a few months then she went a different educational path to get a GED otherwise she would've graduated with his class. Hard working girl. Also knew the doc who hit her, brilliant surgeon who was drinking and driving. DS asked my opinion and here is how I feel and told him this: People drink and drive, sad but true and accidents happened, exactly what happened, an accident, tragic accident. But he drove away and left that poor girl there to die. That is fundamentally wrong and against the very oath he took when he got his medical degree. For that, they should nail his a$$ to the wall!!! Take care, time to move the sprinkler....forget walking today too hard.
Love,
Maureen
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the mosquitoes are unreal aren't they. Terrible accidents this week, on that doctor, I agree with you completely, the soldier getting thrown off the ride at Darien, absolutely tragic, I would so hate to be the poor 18 yr. old who let him on the ride. Tragic for the soldier and his family. Survived but terrib;y hurt, had served how many tours, to go in such a way. The papers and news have been all recording it as a tragic event. hugs, Karen
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Hello Ladies, Looking forward our second get together. Maureen, glad your party went well and I know how you feel about it being over. Two tragic accidents this week, we just don't know our future. I have been on femara and Aromison and no heart palpation's or chills. Just alot of joint pain. Let us know what the doctor has to say.
Karen, prayers going out for your friend. Are you coming to our lunch?
I am going to Ohio to marrow for two days to see my girlfriend, be back friday. Enjoy this heat soon we will be shoveling again.
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kindone, I''ll definitely be at our lunch. Wouldn"t miss our getting together, it's so good to be with people who know where you are coming from, We are so fortunate to have each other. Karen
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Hello Ladies,
Sorry I haven't checked in in a while. I have been home from vacation for a week and a half. We had to come home early because my brother passed away when we were gone. It was quite a shock and i am still numb from it all. We have no idea how he died. He lay down for a nap and asked his friend to wake him up in an hour and when he came in to wake him, he had passed away. Autopsy results will take 3 months. He was an alcoholic, so probably something related, but he was only 37 years old. Life is so unfair sometimes. Spending lots of time with my mom, getting her through this and cleaning out his apartment. Nice to read about all the good news on this thread. Good news keeps me going these days. Looking forward to our get-together.
Susan
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Hi Everyone,
I hope you are all surviving this heat. I love this weather, yes I know some of you wish for snow, not me, not even in the winter. I am a warm weather person, so what am I doing in the north, have to wait for DH to retire before hitting the south or west for the winters. This is going to be awhile.
Karen, I wish your friend Sherry good results and will keep her in my prayers.
Susan, I am so sorry for your loss. I am sending you and your family hugs and prayers to get through this time. I will pm you.
Heading to MA this weekend for my great nephews 1st birthday. This is a raod trip with my sister and mother, we should have a great time.
Hope everyone enjoys their weekend. Looking forward to our luncheon. Hugs and prayers to all.
Cheryl
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Susan, I am so sorry, your mother must be just devastated and you, understandably are in shock from all of this. It is so hard to bear the sudden death of a family member. Sending prayers for your family and for you. hugs, Karen
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Hi all,
Cheryl: looking forward to seeing you too!! This weather is a little to warm for me, even with the AI chills.
Susan, my heart goes out to you and your family. I'm sure this is devastating to you and your family. I've been praying for you and family ever since I saw on facebook. Let's just pray he's in a better, safer place with God and angels.
Karen, Kindone, Meg, Laura and Bevin, hope you are all well and enjoying life.
Me: Update, off of the AI's until I see the onc on 25th. Can't take the one I've been taking, chills, digestive issues and yesterday had shooting pains in my brain with index finger twitching at random, had to come home from work cause I was convinced it was a migraine. Just a dull ache today. Tomorrow being deported and having that node they found on my mammogram removed. Hopefully all is fine. Dr. Bauer will do both. I'm excited and hoping to have everything uphill from here. Needless to say my stress smoking is on the rise. I still do not smoke at work, on my quit plan. Hopefully I can get this done and move on.
Love,
Maureen
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Maureen, sending prayers your way for tomorrow, may you be given the all-clear tomorrow so you can put this behind you. Glad you are temporally off the AI, boy you were having horrid side effects, hope there are others you can try, is this the second one they've tried on you? Karen
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Hi all, had to postpone trip to N.C., woke up at 2:00 am with some kind of stomach flu. So disapointed, as is Sherry, glad though I was home when I got it, a few more hours and I would have been on the bus. Drinking gingerale and munching (sparingly) dry toast. All things happen for a reason, as my DD reminded me. Maureen, still sending prayers your way and Susan, they are coming your way too. Karen
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Dear Susan, I am so very sorry for the loss of your Brother. I know too well how difficult this time for you and your family is and my heart aches for you. I know this sounds trite, but it is what I cling to. In time the heart ache and mourning and pain will all pass and you'll remember the fun and the good of your Brothers life. It must be so difficult for your Mother. Children shouldnt die before their parents. That is so difficult and I pray your mother finds strength as she goes through this period.
Please send me a note if there is anything I can do for you and the family. I am happy to run errands, send meals, whatever you need.
My deepest and sincere sympathy for you and your family during this difficult time.
xoxo
Bevin
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Dear Susan, I am so very sorry for the loss of your Brother. I know too well how difficult this time for you and your family is and my heart aches for you. I know this sounds trite, but it is what I cling to. In time the heart ache and mourning and pain will all pass and you'll remember the fun and the good of your Brothers life. It must be so difficult for your Mother. Children shouldnt die before their parents. That is so difficult and I pray your mother finds strength as she goes through this period of grief and mourning.
Please send me a note if there is anything I can do for you and the family. I am happy to run errands, send meals, whatever you need.
My deepest and sincere sympathy for you and your family during this difficult time.
xoxo
Bevin
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Sorry about the deletion everyone , I am not sure why, but my posted showed up 2x. the exact same post. Not sure what I did wrong, but apolgies!
Maureen- not chills here. Just joint aches and hot flashes!! Chills would be much more to my liking!
Dear Karen- a stomache flu is going around. I had something similar last week. lasted several days. Yuck!! I hope you feel better soon.
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Susan, I am so sorry to hear bout your loss, life is not fair. Prayers for you and your family.
Karen hope you feel better sorry about your trip. That's disappointing.
Maureen, Hope all went well, Let us know how you make out.(your in good hands)
Hello to everyone else, see you all soon.
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bevin and kindone, thank you for yourr kind words, the only thing worse than this heat - having a stomache bug too. I am feeling better today, resting and drinking lots of liquids. I don't know how the people in the midwest stand temperatures in the three digits, everyone must have air conditioning. A friend of mine who lives in a trailor, had her motor on the air condi. burn out, a mouse had gotten in it. Really bad timing on that. Hope everyone is staying as cool as possible. Susan and Maureen sending healing thoughts your way. hugs, Karen
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Thank you to all of you for the outpouring of thoughts and prayers. I'm trying not to let all the heartache bring me down too much. Trying to concentrate on getting healthy right now so that I can be here for my mom and my family. Knowing there are people who care really gives me the strength just when I need it. Looking forward to seeing you all at our luncheon and thanks again for being there. It means so much to me.
Susan
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Hi All, Thanks for well wishes and concern, I'm doing okay today, a little more pain than I expected. They took that little growth out and Doc told hubby not to lose a minutes sleep over it, he believes it was nothing. He'll call next week with results. The deporting hurt like heck. Had my usual trouble with anesthesia, blood pressure and heart rate bottoms out so they had to give meds to raise that. Took me 4 hours to wake up to go home. Then went back to sleep the rest of the day. Now dealing with the usual twitching that will last a few days, then hopefully back to normal.
Susan, hope you are feeling a little better during this really tough time, my prayers are with you.
Karen, really sucks with upset tummy in this heat. Make sure you drink lots of fluids, with this heat you can get dehydrated really quickly.
Kindone, hope you are enjoying that summer home, this is the weather for it!
Bevin, hope you are well, miss talking to you. Hope the job is okay, had a close friend lose their job recently due to the restructuring.
Anybody heard from Pasha?
Talk later, love,
Maureen
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Dear Maureen, sorry you are feeling pain, I had the same thing happen to me with the anesthesia, my blood pressure, heart rate and breathing rate nosedive, I had trouble waking up, took 4 hrs. before they would let me go home. My friend stayed overnight, DD had been up early and we got home late, my friend was instructed to wake me each hour to use a breathing apparatus. You rest easy, that reaction to surgery takes awhile to get over, all surgeries over for you now, that is great. Will see all of our group soon, seems like a long time ago that we were together, hugs, Karen Susan, you take care of you too, while taking care of your mom and family. It's such a hard thing to cope with losing a family member unexpectedly. Good plan to stay focused on staying healthy, you are a strong woman. hugs, Karen Have not heard from Pasha.
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Maureen,
So sorry you had such a bad surgical reaction. Rest now and hope you are feeling better very soon.
Hugs,
Susan
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Thanks Susan. I'm doing better today, took off the bandages and have stitches on both sides ugggh. Just glad this will all be over soon. Hope you are doing better today. Can't wait to see everyone, I miss our friendship. Have a really bad back ache today. not sure what that is from? anyway, take care and talk soon.
Hope everyone is doing well too!!
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WOW WNY'ers can you say hot!!!!!!!! Hope all are finding a way to stay cool, this is just unreal for us, still holding out for that 5 minutes of snow each day! hugs to all, Karen
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Ok, this is ridiculous!! The heat is unbelievable. My BIL in south west KY said his thermometer read 108F. I believe this is global warming. Doing ok today, se from AI's are going away and I got to shower AND I'm going for another hair cut on Saturday, life is good
Have a great evening ladies. love,
Maureen
PS. Karen, I'm copying a post from earlier in this thread:
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This was Karen's post earlier in the year:
Can't wait til summer, both for the obvious reasons and to meet my new friends! For awhile this A.M. it was snowing horizontally, my grandson is getting sick of shoveling, and I'm sooo tired of seeing it. I usually reach this point in March, but this season I'm so over it now. I think because its been so bitterly cold and constant with a few inches of snow each day.
I choose to remember this post to keep cool and not complain about the heat....at least not today (LOL) probably will tomorrow though and definitely on Wed, thrus.
Maureen
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Dear Maureen, I am so busted! I can't believe you remembered that and were able to retrieve it, you are good! So glad you are feeling better today, another haircut, can't wait to see it. hugs, Karen
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So got the surgery report back and everything is fine B9!!!! Yay!!! Now if they get the antihormonal okay, I'm good to go! Hot, again, my sister is getting central air, she can't stand it anymore, I asked what took her so long. The few hot days in this area are really hard to deal with because of the conditioning of cool weather we have in this area. Tomorrow is suppose to be worse
My hair actually looks like a short hair cut vs. stupid comb over (LOL) Have fun ladies, and stay cool Maureen
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Hey all, I haven't been on the computer much lately, so I have no idea what has been going on with everyone, but congrats Maureen B9 is ALWAYS fabulous) hope everyone is well, I am staring at our pool wishing I could jump in, but not really feeling up to a swimsuit yet, my PS said I could swim at 3 weeks which will be in a few days, but I have my 1st fill this week, not looking forward to it as these darn tissue expanders are still killing me. I had my onocology appt today and all my path came back great.. all DCIS with really big margins so I do not have to do chemo or rads, and we decided not to do tamox. either as I had BMX.... so happy, feel like I just cleared the last hurdle.. will help keep my chin up through the reconstruction which is not going to be as easy as I had hoped... why would anyone get implants who didn't medically need them? I know they don't do expanders but still..ouch...why??
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Yay Maureen, let's hear it for B9!!!!!!!!!!!!, getting a window unit tonight, at leeast will have 1 room that is cool. You are so right, we are conditioned by our cold weather and this hot spell is absolutely too much. Have had to sponge down my older cat, she doesn't fight me or try to escape. If I had gone to N.C. I wouldn't have been able to give her the extra care, all things happen for a reason. Yesterday, Sherry and I would have been in Ashville and not home to negotiate the sale of her second car, she wanted to go to Ireland and the proceeds will go for her trip. Stay cool ladies. Karen
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Yay Maureen, let's hear it for B9!!!!!!!!!!!!, getting a window unit tonight, at leeast will have 1 room that is cool. You are so right, we are conditioned by our cold weather and this hot spell is absolutely too much. Have had to sponge down my older cat, she doesn't fight me or try to escape. If I had gone to N.C. I wouldn't have been able to give her the extra care, all things happen for a reason. Yesterday, Sherry and I would have been in Ashville and not home to negotiate the sale of her second car, she wanted to go to Ireland and the proceeds will go for her trip. Stay cool ladies. Karen p.s. Meg, great news on your path. report, hope the fills are not too painful.
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Hi Meg, great news on your pathology report, all clear with clear margins - woo hoo, aren't those the sweetest words you ever heard. No rads, no chemo, what a fantastic report. Hope the fills are not too painful. Karen
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HI Meg and Maureen - great news for both of you. I am so so happy.
Agree the weather is awful, BUT in the winter, we had snow snow snow almost every day, so I am not complaining - YET!
Hope everyone is at least eating icecream everyday to make this summer a bit cooler!
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Whew... I am so behind on everyone... Except Karen who blessed me with a coffee hour today. Don't know what I'd do without those little chats!
Maureen... So glad you are dancin with NED!!!!
Susan...such sad news... Hoping your family is healing from such a harsh blow.
Bevin... Glad to hear you'll be joining the next get together. Karen promised to tell me all about you!
hey moose and kindone... Hope the summer is wonderful for you.0 -
Hi all, I have been without AC during this weather, not a unit to be found in Batavia. The heat upstairs has been just incredible, I stayed at the coffee shop on Wed. after starbeauty left to be in AC area. She knew I was without one and has been checking in on me. I ordered one from Sears that will be delivered on Mon. or Wed. Starbeauty found me a used unit to get me through till then, she and her DH will be bringing it over tonight! The definition of a compassionate friend, one who feels your discomfort, who does kindnesses quietly without fanfare. Just had to acknowledge her on the thread. hugs to all, Karen
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Starbeauty you are a lifesaver. WOW this weather is incredible. Just run from work to car, to house. Still on my treadmill for 30 minutes a day. I am so proud of myself. Went to BS today and they removed the bandages. I'm doing okay, just nervous as usual. Does anxiety ever go away? Next milestone is scans end of August after ONE year of this nonsense. On Monday I find out what hormonal they will try this time, hopefully one that works and doesn't make me crazy LOL!! Stay indoors ladies and enjoy!!
Maureen
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HI everyone, it is hot hot hot!! Glad to have the warmth! Doubly glad to have AC!!
starbeauty - how kind of you. You really are thoughtful.
Karen- they are giving away new ac window units in Tonwanda to applicants. Channel 2 had it on the news this afternoon. You need to fill out an on-line application. I assume there is some needs assessment so it may not work for you, but free is always good to checkout!
I am planning on nothing this weekend. Relaxing, swimming, nothing!!! Next month is a year post diagnosis. wow - fast year. lots of scans and appointments. They drive you nuts but I am glad to be able to have them !!
Maureen - I am now on aromasin. I too had fast heart rate on arimidex. The aromasin stopped that, but I have gained weight. NOT happy about that, and the bone/joint pain is only a tad less on this one. Still have hot flashes , but the effexor really does keep them at bay most the time.
Hope everyone has a great weekend.
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bevin, thank you for the information, I'll check it out. The AC is on, I feel like a human being again, got to meet starbeauty's DH and her son. They are as kind as she is. I had been wetting down my two cats since they cannot pant like a dog would to get rid of heat. They are gradually migrating to the living room, which is where the unit is, had been on the linoleum under the clawfoot tub. My landlord came over to secure the unit and to block the spaces around the unit, he is just such a good guy. I am extremely fortunate. Hi and hugs to everyone and see you soon. Karen
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Jeepers... I am no saint, but gosh you guys you should have felt how awful and oppressive the heat was in Karens home... I don't know how she was doing it!!!! I would have been mean and looney... She was as sweet as always. Her cats are beautiful. I'm glad it is working for her!
Maureen... Keeping you in my prayers... Hope your new AI treats you a little better!0 -
Got to laugh picturing the kitties getting cooled off.. Before we had kids my husband and I were up to 6 cats when we moved in together..we have 3 of them left..like a senior center for cats around here, but my one cat has gotten so strangevand stopped bathing himself..so aboutbtwo years ago I couldn't take it anymore and caught him gave him a bath and trimmed all the matted hair off his back...he is shorthair but his undercoat is thick and gets yucky...anyway swear i have not been able to touch him since that day...boy can he hold a grudge. He would spazz if I tried to cool him off.
Everyone hang in there...i am looking forward to some days in the low 80's. We are hoping to take the kids up to Niagra falls next month..they would love the maid of the m,ist and my daughter would love marine land..she is crazy about animals.0 -
Hi Ladies, Just looking at the GREEN grass. One night of rain and the grass turned green again. Hope everyone is doing well and cooler temperatures come our way. Don't know how you survived this heat without air conditioning Karen. I just don't like the heat, don't like cold weather either. I need to find a place where it's 70 degrees year round (LOL). Doing okay this AM, the heart palpations seem to have subsided. I'm really begining to think it was from the AI, however I'm sure the onc NP will disagree. Go to the onc on Monday afternoon for a check up and the new RX of anti-hormonal, not sure which one he'll put me on this time, we'll see.
Reminder: Next week is lunch. If you don't have the info, just send me a PM and I'll give you all the info. I'm looking forward to seeing everyone on the upcoming weekend.
Love,
Maureen
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Hi all, thank you for your prayers - my friends' blood tests have come back, the results are benign! The proteins in her blood are a result of her Lupus, which has and still is in remission for many years. I am so thankful it wasn't anything serious Karen see you soon!!
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Hello Ladies, Well, it is nice to be cool again!! No air conditioning here, except for the bedroom, but we get a nice cross breeze when there is a breeze. I seem to remember a couple days last week that were completely stagnant
So glad you received B9 results, Maureen, and Meg, great news about your "lack of treatment". I just needed rads, which, I must say, were no fun at all. Still having lots of soreness under my arm and staying out of the sun is challenging, but on a good note, I am almost two months out and the girls seem to be almost the same size. The "bad one" still a little bigger than the "good one". I keep tearing my muscles around my rib cage every time I do something crazy, like pulling myself out of the water to climb on the ladder into our boat, and trimming a tree a few days before vacation. You'd think by the age of 42 I would learn to take things slow, but still the same old me. Enjoy the coolness while it lasts and looking forward to our get-together!Susan
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Hi Ladies!!
Karen, so glad your friend is okay.
Susan, glad heat is letting up a little bit. Glad to hear your "girls" are doing well. Be careful when trying to do all the old stuff, but I completely understand wanting to "be normal" again, I do that all the time.
Update on me: Went to onc, am officially off the anastrole (sp?), onto another form BUT WAIT: I have to have stat bone scans, lung ct scan and wear a heart monitor for the next 24hrs. starting tomorrow to rule out any damage. WTH? I didn't expect that nonsense. So I'm going to work, leaving to go to doc, back to work to make up time blah, blah, blah. Yes I'm complaining. My day started at 6AM this morning and ended work at 9:30PM after spending 2 hrs. in the doc's office today and I get to do this all day tomorrow too!! Can't wait to see everyone, I'm so excited I may even have a glass of wine
Say a prayer all goes okay tomorrow, I'm getting a little nervous and I really don't want to start the next AI. Hope everyone else is doing awesome!!
Maureen
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Dear Maureem, sending prayers your way for tomorrow, I can't imagine working as hard and for so any hours as you do.Sending calming thoughts to you that all goes well tomorrow, so many tests. I think we should all celebrate with a drink on Saturday to our being together again. hugs, Karen
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Maureen: Hope you have good luck today at your scans. Yes, wine is a great idea! Hopefully, my gall bladder won't get too angry. Boy, was he angry on vacation! I had a beer a day in Belgium and trying their famous french fries (not many people know that fries actually come from Belgium, not France). With all the BC worries, I totally forgot that I have a dysfunctional gall bladder, but he reminded me pretty quickly. Fried foods and alcohol are my triggers. Starting to feel better now so I think a glass of wine is safe. Liking the rain and cool weather!
Susan
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HI Ladies, scans went okay, I'll know more when the onc calls. Didn't take extra pictures, so I'm encouraged. Looking forward to seeing everyone. Glad for the cooler weather too. Went to scans and was watching the rain during the wait, I could've gone to sleep LOL. I was so relaxed by the time scan time came, I just didn't care about anything. Glad it rained today, god was watching over me.
Love,
Maureen
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Hi Maureen, glad the scans went well, I too worry when they take extra views. The rain was so welcome, we have been parched here. See everyone tomorrow - hugs, Karen
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Maureen, Keeping my fingers crossed for good news on the scans.
Wine sounds good on Saturday.
(((((Hugs and Prayers)))))
Cheryl
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Looks like six for luncheon, looking forward to seeing all!! Scans are all good, everything is fine, just waiting for the heart results next week then back to the hormone therapy. Definitely something to celebrate.
Love,
Maureen
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Great news Maureen! So happy for you! See everyone today!:)
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Maureen - I'm very happy for your clear scans.
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Wow, I can honestly say, lunch was the most fun I've had in a long time. Thank you everyone for coming out today and being who you are!! Even with that annoying fly
. I didn't eat dinner tonight, I'm still stuffed from lunch. Bevin, you are a sweetheart. I'm so glad to finally meet you face-to-face.
Karen, always great to see you dear friend
heymoose, you are so funny
Susan, sweet as ever, hope your reunion goes well tonight
Kindone: great lady, so much fun have a great time at the lake
Have a great weekend everyone. Off to nephew's bd party tomorrow, then back to the work grind.
Love,
Maureen
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Thanks for all the well wishes on the scans. good news indeed.
M
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Hi All,
Lunch was fabulous!!!!!!!!!!!!!! I had a great time with all. Bevin, the chocolates are great and thank you for lunch, it was very unexpected and greatly appreciated. You are so sweet.
Okay the fly was very annoying, but the company was great. Have a great weekend. Susan let us know how the reunion was.
(((((Hugs and Prayers)))))
Cheryl
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Hi all. we are so lucky to be in driving distance from each other, thank you Bevin - for your gifts, as your mom says, "just say thank you". So good to celebrate together. hugs, Karen
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HI everyone, Had a Fab time. The fly was annoying but the company the BEST!! Hope to see everyone again soon.
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Hi All! Had such a nice time with you all on Saturday! Nice to meet you Bevin and thank you for the yummy chocolates and for very stealthily paying for our lunch
. What an amazing gift to give all of us. May have been a couple of hours spent together on a Saturday, but I think everyone will all join me in saying that it really means so much to have the ability to share in our journey on the Breast Cancer trail. I will be looking forward to the next time and love our little group. Thank you to Maureen for starting it all and making our lunch arrangements.My reunion went wonderfully! I am so glad I decided to go. It was such a nice way to revisit high school as an adult without all the emotional upheaval of being a teenager. I'll admit there were a few there who hadn't matured much in 25 years, but for the people who I came there to see, it was great to see the amazing people that they have become. Plus, almost everyone recognized me without looking at my name tag. I guess I'm not doing to bad!
Take care ladies and happy trails to you! Until next time...
Susan
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Maureen... So glad to hear about your scans....
Missed seeing you all... Heard it was great meeting Bevin!
Hope all is well with everyone.0 -
Hi Susan - that's really funny about some of your school mates not growing up. I didnt go to mine, but my girlfriend said the same thing about ours. Some of the gals still acted like they were in highschool and vying for popularity. ohh well.
Starbeauty - hope to meet you at the next lunch/dinner.
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Hi All, Starbeauty, missed you too!! Sure Karen missed the driving company too. Would you believe I had my camera in my purse and forgot to take a picture? Can I still blame chemo? That's my story and I'm sticking to it LOL
All is good here, really busy at work lately, think it's a full moon. So DS is washing his truck today because he washes it all the time, like something out of a Stephen King movie Christine and just as he finishes washing the windshield, it started pouring, I mean really raining with hail et all, felt sorry for him but funny at the same time. Doing laundry and enjoying my new dishwasher. Didn't want to spend the money but it was time, I had to wash the dishes before putting them in the dishwasher. I was okay with doing it however DH is working from home and he had to do it a couple of times so we have a new dishwasher. I couldn't agree more. Take care and will try to post tomorrow
Maureen
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Lol Maureen.... Just got my own new dishwasher for the exact same reason... I think I'll have him do the laundry this weekend.... Maybe I'll get a new washer!
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Hello Ladies, I had a great time at lunch Sat. I told my family what a wonderful group of women you are. I very fortunate to have met all of you.
Bevin, Thank you for everything, you are a beautiful person.
Starbeauty, missed you!
Karen, Sue and Maureen great seeing you again. Can't wait for our next get together.
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I'd like to have my husband vacuum the carpets.. do you think I'd get a new carpet??!!
Love the laundry and dishwasher stories!
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ha ha bev, you are so funny. I have an idea: do you have a cat? Have the cat puke on the rug and "forget" to clean it up, when he steps in "it" voila, new carpets!!!
Doing okay today, getting ready for a short outing on the weekend that I mentioned at our lunch. Wish me luck. The company has a variety of baskets and all money is donated to charity, really nice baskets, lottery tickets, kindles, ipods etc...the only reason I go to the picnic is to bid on the baskets. One year I won bills tickets 50 yd. line almost could touch the field...of course they lost, but really fun
Enjoy the weather, it's suppose to rain, thank god my garden looks like crap, straggly plants and I've been watering 2X/day. 0 -
It has been a veeeerrrryyyy long week. Looking forward to tomorrow and a drink out w my friends.
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Hi All,
Bevin, sorry you had such a long week. Have fun with your friends tomorrow and have a nice reisling for me.
Off to the races tomorrow. I'm exicited, then to company work picnic, should be a fun weekend. Hopeful the weather holds.
Have a super weekend ladies. I'll start searching for a place on Monday for next month's lunch or dinner .
love,
Maureen
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just got home had a great lemon drop martini!!! YUMMMM
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I heard that there is a chocolate martini, would love to try it. Glad you had a good time bevin, it was a long hot week, a lemon drop martini sounds like a good solution .
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ooooo - chocolate martini sounds yummy too.
I have a quick question for any of the WNY ladies on the AI's . Do you find your eyes are really itchy now? Mine are so itchy since being on the aromasin it's as if it an allergic itch. I have been using some antihistamine eye drops, but the reliefe doesn't last long. Also have gained a TON of weight since being on it. About 10lbs and since I could already use to drop a few, thats not good.
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bevin, no itchy eyes but the weight gain definitely yes. Plus it is really hard to take off since it is right in the midsection and I hate to do crunches. hugs, Karen
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Hi Ladies,
Bevin, they took me off of the Anastrozle (sp?) because of very weird issues, now waiting for test results to understand the next steps. Those anti-hormonals are some really nasty stuff. Your drink sounds divine
I'm doing well, went to the races, lost more than I won however it was a lot of fun, then tried my hand at the slot machines, again, just broke even and don't like to play any higher than the penny slots so my chances of a big win are......zero. I have fun though, then onto nephew's bd party at the hotel, then onto company picnic, then grocery shopping, now bed, I'm pooped!! I look at all the families with young children and think, how do they do it. I'd be sleeping by 10AM.
Thought is was suppose to rain today? We had great weather at the park, nice breeze, not too humid, overcast and I found a really cute hat to wear gardening for 15.00 at the park. I was so excited, I wore it most of the day because I'm worried about being in the sun and received so many compliments, I felt so good.
Hope all is well with everyone. Going to bed, I'll catch up tomorrow.
Love,
Maureen
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Maureen, Sounds like you had some busy days. Glad you had a good time.
Girls, I just had a chocolate martini a couple of weeks ago, at the Chocolate Factory it was Delicious. Maybe we can get one the next time we get together.
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Chocolate martinis, sounds like a plan. Any suggestions or ideas, I can make reservations etc...just need ideas.
Thundering is getting too close, need to go do laundry too.
Later, hugs & prayers,
Maureen
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One more question: when you were diagnosed was your breast hot? My sister had appt. tomorrow due to a hot breast? Trying not to worry but really scared. My diagnosis anniversary is coming up and everyone wants to know what I want to do for my birthday, I want to climb in a hole for a day, it was the worst day of my life and not sure I want to celebrate that day
M
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Maureen, when I had an infected seroma my breast was hot, could be just an infection. My first cancerverary I felt the same way, it will be especially trying for you since you knew it was cancer when you went to the birthday party and had to act OK. This year will be easier for me since it is the second anniversary, the passage of time helps. We got 5 minutes of rain out of the thunderstorm. hugs, Karen
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Dear Maureen,
Celebrate, dont let cancer take that day from you, your husband and your children. You Birthday is a day to celebrate. Dont let cancer win!
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Maureen... No heat... No clue... No lump... Nothing... And it had already made it into 3 of my nodes and all the way to my chest wall. Karen is right... It could be from a lot of other things. Maureen... We celebrate that we have had a chance to know you... And we are so grateful that there is a anniversary... And there is another birthday... Cuz it means you are here to make us laugh, encourage us, and find joy in the moment. Like Bevin says... Celebrate!!!!!
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Hi everybody. I'm doing okay today, just remembered my driver's licence expires on Saturday so I go to the DMV to get renewed and of course they take a picture, one more reminder of my pending anniversary
Doc started me on Femera and already feeling funny AND to top it off my DH lost his job today, does it get any better. At this rate, I'll it's going to take more than ativan to get me through the next couple of months. My hands are shaking so bad, its' hard to type. What next? M
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Dear Maureen, I am so sorry all this is falling on you right now. It's like things just raining down on you. Hopefully the Femara is going to come with no side effects, right now it's probabley hard to tease out what effect is due to the medication, what is due to stress. So sorry to hear of DH's job, just too much coming at you. We are all here for you. sending showers of prayer for you and your family, (((((((hugs))))))) Karen
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OH Maureen, I am so sorry. This must be very difficult for the family and especially your husband. I will say a prayer for all of you that this sorts itself out quickly.
Wow - I am also sorry about the Femara. I had read that was one of the least bothersome AI's. Maybe he can try aromasin, thats what I am on.
Hope everyone else is doing well. Here, we are in home work hell for the new school year.2 book reports and math package to complete. You'd think I was pulling my childs teeth out.
UGHHH
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OMG Maureen, I am so sorry to hear about your husband's job. Positive thoughts for your family. Maybe you just have to get use to the Femara, just use your own judgement for how you feel on it. They can always change it again it it don;t feel right. Sorry your having a hard time with it.
Hello WNY Ladies, Hope you are all enjoying the rest of the summer. Why is it summer goes by so fast and winter lasts so long? Hope to see you all soon.
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Maureen, my prayers and thoughts are with you and your family during this difficult time. If the al you are on is making you feel funny this soon, you should check w/ your DR about it. You do not need to have side effects at this time.
Hope everyone is having fun these last weeks of summer.
(((((Hugs and Prayers))))).
Cheryl
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Maureen... so sorry to hear the tidal wave of stress is hitting you. Please know you are in my prayers tonight... Don't let the side effects go too long... I know Tamoxifen is usually just for premeno women - but I really have done pretty good on it other than my massive hot flashes, joints hurting and depression in the beginning. They can give that med to postmeno women too... not sure what your thoughts are on that... but in other words... just keep changing until you find something that fits your body best.
Hi all... hope you are enjoying the break in the heat like I am... such a beautiful evening.
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Great night out with my girlfriend and yummy pomagranite martini's. YUM.
Work hard tomorrow and then the weekend.
Hope everyone is well.
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hi Ladies, just dropped in to say hello. Busy week and feeling down lately, keep thinking, what next? Have a great weekend.
M
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Maureen -I am so sorry. I am sure you and your family right are struggling right now processing all that happened. I wish I knew how to help . Please call me if you'd like to walk, go for coffee. You're right around the corner and I am here if you want company.
Hugs
Bevin
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Dear Maureen, sending you and your family many (((((((hugs))))))). Went to see Shakepeare in the Park yesterday with a friend who was feeling down. It is "As You Like It", it was a nice relaxing upbeat experience, if you feel in the mood for it. Karen ps. got there at 5:00, got really good seats, had a glass of wine, excellent troupe this year. Show starts at 7:30, we had time for a relaxing tour through the rose gardens and watched the paddle boats. Just place your blanket down to save your space. It is the last weekend performance. Take care, Karen
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Hello Ladies, How are things going? Summer is almost over and we just got finished with our cottage. I've been spending as much time as possible up their. Putting a lot of miles on my car going back and forth for work every other day.
Any one plan on going to the fair? We will probably go Thursday, we go every year. Lots of good food. Hope the weather holds up.
Hope everyone doing good. Waiting to see ya soon.
Maureen, How are you and your family doing?
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Hi all, just got back from 2nd annual mammo and US - all clear!!!!!!!!!!!!!! I was certain they had found something when I had to wait a fairly long time between mammo and DR. reading the films. The woman ahead of me had to get a biopsy and that was why I had to wait. I could hear her quietly crying, boy did that hurt to hear, I felt so bad for her. Now I go to once a year mammos and warned to religiously do self exams. Maureen, how are you doing and how is DH? hugs to all, Karen
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Dear Karen- I am so happy for your clear scans. How sad to hear that other patient crying. That must have brought back difficult memories.
Kindone- Hope that your now on to the enjoying/fun parts of owgning a cottage..It seems like we have a bit of summer left- I'm thankful for that.
I hope everyone is good I am well, trying to clean up my house and get ready for the start of school. Lots of supplies and clothes to purchase.
Went to dinner the other night at JoJo's - it was terrific. Highly recommend the Pizza and the warm pita and humus!
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Hi Ladies, Been MIA lately, just don't feel like talking too much. Having an issue with my breast, yellow discharge from the incision and general yucky feeling. Finally called BS today and wants to see me tomorrow, no surprise, when it rains it pours. Doing okay and glad to hear everyone is doing well and enjoying the great weather. My DH planned a really nice BD party, small with family. Just what I needed to get through the day. Guess who showed up? DD old boyfriend, doggies and all. It was like my family was reunited. Didn't ask any questions, just enjoyed the day. Getting ready for kids to go back to school, college books are REALLY expensive. Never used to worry about that stuff, but now worrying.....
off to dinner. DH made chicken, one less thing to do
Please say a prayer he finds something soon. 2 kids in college and too much stress is getting to me. Love,
Maureen
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Oh Maureen... You and your DH are in my prayers... I 'm just begging God to work a miracle and give your husband a really great new job quickly. I'm so worried about you... Please keep us updated.
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Dear Maureen, your family is in my prayers and thoughts. I know how stressful this must be, may DH find the perfect job for him - sending calming thoughts to you. Sounds like your birthday was the perfect solution, just like you not to question and just enjoy the reunited family! love to you, Karen
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Maureen, Praying for you husbands job situation and you and your family. Just take care of your self, thing will get better. Keep the faith. Love ya
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Hi all, just came from doc and now I have a breast infection so on antibiotics for the next 10 days. It's getting funny actually. Kids go back to college next week. Suppose to go to Wisconsin for a few days but might skip it, we'll see. They cancelled my one year mammo/us because they can't squish the boob otherwise it leaks all over. Just another bump in the road I guess. Take care ladies...oh DH had 4 interviews today so hoping something comes out of that.
Love,
Maureen
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Dear Maureen, when I had the breast infection the antibiotics (2 courses) took care of it. Hope DH has success with the interviews. Kindone, had a chocolate martini for my birthday, you are right, they are just delicious! Coffee with Esther tomorrow, its been a great week. hugs to all Karen
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HI everyone,
Maureen - yuck - but sounds like your doctor is taking good care of you. I am so encouraged your husband had 4 job interviews. That is fantastic. I am adding my prayers he has success soon.
Karen- yum - now I want a chocolate martini and its 7am. Think I will have to wait
Everyone else on our lovely board - helllo and hope you enjoy today. Happy Friday!
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bevin, it was good enough to want to bathe in it!!! Had a wonderful visit with Esther at our local coffee cafe, we did a little happy dance for my good results at the counter
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Yes... Karen has much to celebrate!! Plus it is her birthday today!!! Thanks to a skilled BS and MO... we still have our Karen. Coffee today was just the break in the chaos that I needed... such a wonderful listener you are Karen. I got to work on being a good listener for you too. Happy Birthday my friend!
Maureen - how did DH's interviews go... anything look promising?
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Karen, Happy Birthday to you, Happy birthday to you, happy birthday dear Karen, Happy Birthday to you!! DH said the interviews looked really promising. One he's hoping for is local, so he'd be home every night, yeah, take some getting used to for me though. Thanks ladies for the prayers and well wishes, seems when I fall you are the people that cheer me on and make me keep going. I am so grateful to have you in my lives. Glad it's friday, worked 50+ hours and more to do by Monday, I think it takes me longer to do things post chemo...like I struggle to concentrate, weird huh? Have a great weekend.
Love,
Maureen0 -
Hi Maureen, thank you for the song, you sang it well, my daughter had a chocolate cake and ice cream and flowers for me when I got home plus a beautiful Birthday card which made me cry. The cake is gone already, my grandson can really demolish anything edible. We had a barbequed chicken for dinner from my DGD's track fundraiser, it was a really lovely day. I'm so glad to hear that DH's interviews were promising, it would be so great to hear something positive about it next week, prayers are winging your way. How is the infection going, are you running a fever? It's really weird isn't it to get an infection so far out from the surgery, the BS had no idea of how I got it, but apparently it is fairly common. Ladies, if you are looking for some great summer reading, try The Help, available in hard and soft cover at Walmart. The movie was very touching, but the book is just excellent, I've read it twice, it is a good read and I was able to concentrate on it, something that is gradually working its way out, several people on other threads have complained about having trouble concentrating and organizing, don't know if its from the Arimidex or what. We must all have chocolate martinis the next luncheon, had one on kindone's recommendation yesterday when my girlfriend took me to the movie and out to eat yesterday, it was just luscious! hugs to all Karen
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Happy Birthday Karen- It sounds like your day was perfect. Happy Birthday wish wishes for a wonderful year.
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Karen, Happy Birthday and many many more.
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Karen, sending you Happy Birthday (((((HUGS))))). Sounds like your day was great. The Chocolate Martinis are a hit. They are a definate at the next luncheon.
Maureen, hope your DH has a job offer this week, and the infection clears up.
Hope everyone else is doing fine and enjoying the rest of the summer.
(((((Hugs and Prayers)))))
Cheryl
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Hi All, Glad to hear your birthday went great. Raining cats and dogs here, unbelievable. My incision is still pouring out yellow goo, but it's clear. I wonder if it's something to do with the Femara. I seem to be tolerating that AI better than the last one so I'm keeping my fingers crossed. Saying a prayer that DH will hear some good news this week. Kind of stressful in the unknown but nothing like the BC unknown
What does everyone think of the Olive Garden? it's right on transit and we could do sometime in Sept? I'll look for coupons or hope DH hears good news and we can celebrate.
Take care ladies, I'll keep you posted.
Love,
Maureen
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Hi everyone I am not a huge Olive Garden fan, Long waits and food is ok. BUT there is a place right across the street on Transit with Italian food that is really reasonable, home made and yummy. Of course, I am now not recalling the name. But when it pops back in my head ,I'll suggest it.
Maureen- glad this AI is better.
oops, just popped in, it;s called Carmine's. Check out the menu on line and see what you all think!
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Hi Bev, We've eaten at Carmines too, really good Italian food. Checked their website and they don't do lunch? Do you know if that's true? Website says they don't open till 4?
What do you think ladies, Carmines' in Sept? Let us know.
Hubby hasn't heard anything but has more interviews tomorrow. Keep praying, I'm getting nervous.
Maureen
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Hi Maureen, more interviews, that is just great, so glad to hear it. Carmines in Sept.sounds good to me. Karen
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You know, I am not sure about lunch, though, I am open for dinner too - more fitting for those martini's we're all going to have this time. I'll call though and check.
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Dinner and a chocolate martini works for me too. Karen
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Sounds like dinner on the schedule. Chocolate martini? Never had one however I'll try anything once
Still leaky at the incision so back to the bsurgeon on Friday to find out what's next. Antibiotic is really strong so can't wait to stop taking starting Saturday. Funny story yesterday, in meeting with colleagues from Frederick MD yesterday and all of a sudden you could hear the panic in their voices commenting how the room was shaking etc....then about 3 minutes later I felt like the floor moved. We laughed and later discovered an earthquake had hit the east coast. It really was surreal the way it all happened real time and the delayed response across states. We actually felt little tremors during the meeting. DH hasn't heard anything yet and I'm getting nervous. I keep thinking in this economy, what if? Now watching the east coast hurricane. What the heck is going on? Have a great night ladies and say a prayer DH gets a job an we see light at the end of the tunnel. Love,
Maureen
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saying tons of prayers maureen.
Can't wait for our next get together.
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sending prayers your way Maureen. hugs, Karen
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To all my WNY friends, this is what you are to me, saw it on another thread, I am crying listening to the song. Just go on You Tube and type in "I'm gonna love you through it" - Martina Mc Bride. hugs, Karen
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Hello Ladies,
I guess I have been away for too long! Too much has happened since I checked in last---Maureen, so sorry about your husbands job loss. I am sending him lots of luck to find another soon. Also, so sorry to hear about your breast infection. I had two bouts after my second lumpectomy, one during radiation and I know they are not fum, especially when they are draining. Sleep gets very difficult! Hope you are feeling better. Karen-Happy belated birthday! Hope you had a great one. I felt the earthquake the other day. Actually felt there was something medically wrong with me. I was sitting at the breakfast table with my son and yelled at him for shaking the table. He stands up and says, "Look I'm not doin it!" So I say, "Then it must be an earthquake!" Weirdest feeling in the world. The table was swaying! Definitely thought it was vertigo or something
Well, hope everyone is doing well. I start grad school on Monday, so my free time is going to go down to zero, but I will try to check in when I can.Susan
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Hi Susan, congrads on starting grad school. Tomorrow is the big day at college for both of my kids too, one is a senior and one is a freshman. I wish it was kindergarten again. They are so grown up. Glued to the weather channel due to Irene. Many friends and colleagues are in harm's way. I pray for their safety. Last day of 1st round antibiotics so I'm hoping I'm in the clear. They postponed my scans for another month until the stuff heals, then we'll see.
Bevin, do you want to make reservations and IM us the details? Dinner sounds good. Sept. 24th is out for me, BIL 50th surprise party. I can do if you have too much going on. I remember how hectic back to school for younger kids can become. In college, it's just money, money, money
BTW, I jinxed myself about the cat vomiting trick, I won't go into details but had the cat at the vet and will be cleaning my living room carpet this week too Hoping darling kitty feels better. I will comment on the vet's assistant and the way she treated my Iris during her office visit, usually she's a real nasty beast when they try to get near her in the vet's office. This young girl had her purring through IV's, shots and exam. She really has a gift with animals, I've never seen anything like it. Made my day, knowing there are really genuine people in this world. Love,
Maureen0 -
Love your kitty story Maureen... Hope we hear a new job story re your DH this week... Sending up a prayer.
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Hi Ladies,
Don't know why I'm just finding this thread now... I'm from Rochester and had a BMX with immediate reconstruction Aug 2, and am still recovering slowly. I think I have an infection in my incision, but everyone tells me it is just an irritation (which is becoming irritating!)... Besides that, I have a week of Mommy Camp while recovering before my little boy starts First Grade next week.
Glad to find people in the same geographical area who know what a Wegmans is!0 -
Welcome eema... This is a great group... You can see people are really supportive so just lean on us as you heal. a couple of us are from Batavia and get together for coffee, plus just found another BC vet out in Leroy had coffee with her Thursday. Take care of yourself... Don't push yourself to do too much.
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Thanks, starbeauty! I can't say I'm glad to be here, but glad I found ladies from the same geographic location as I! I trying to keep it relaxing today, but don't want to just play movies all day.
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Dear Eema, I am the other member of the WNY group who lives in Batavia. I think you will like the other members of the group who are in Bflo. and surrounding suburbs. We try to meet in Williamsville every other month when the weather is good, and usually communicate on the thread and by PM during the winter months. There are 6-8 of us who make the luncheons, in Sept. we are meeting for dinner, have not set the date yet. You are certainly invited to join us both on the thread and in person. Other members will be dropping by to welcome you too. It's good to have you! Karen
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HI Eema, welcome and I hope your healing goes easy and fast. What is mommy camp? If its R&R with martnini's and messages, I could go for that!
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Hi All, Welcome Emma, old saying welcome to the group no one wants to join. My friends on this board is the absolute best thing to come out of my cancer experience. Hope you are doing well on the mend. Mommy camp sounds like fun. I could use some R&R. 1st grade, wow what a special time for you and your family. You'll be attending the high school graduation parties before you know it. Good luck. Please join us for our upcoming outing.
Bevin, kindone, Karen,, Starbeauty, heymoose,Susan: Thank you for all the prayers and well wishes. Had to run to college bookstore with DD tonight for last minute supplies and sure enough I leaked everywhere from my incision. I'm getting frustrated with this nonsense. Don't know what the heck is going on. I where a kotex pad in my bra and still leaks? Anyone ever heard of this? Iris is feeling better and back to her usual unfriendly personality. She's so funny, she makes me laugh.
hugs,
Maureen
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I wish mommy camp was martinis and massages! It is taking care of my little boy, and boy is he a handful, even for someone that isn't recovering from surgery! I felt bad today, as soon as my DH got home from work, I ran to bed for a nap, no one woke me for dinner! I woke up in pain and DH had to help me up. I have an appointment with my PS on Wednesday and hopefully the visiting nurse will come tomorrow and look at my incision. I think it is infected, but everyone tells me it is just irritated, which is irritating! I'm going to try not putting bacitracin on it in case I'm allergic to it.
Anyway, tomorrow is another day, hopefully I will be able to find a play date for my son and I will be able to rest a little. Nice meeting all you ladies, I just wish it were in a better kind of "club"!!!!!0 -
Eema, welcome. Sorry you are joining this group, but happy to have you. I grew up in Rochester and will be home this weekend. We will have to get together hopefully at dinner this month or sometime when I am home.
Maureen, praying your DH has a job offer soon.
Karen, the song is unbelievable. I cried through it twice. It is so special.
Susan, great success in grad school. Hope you can touch base once in a while.
Okay, once again I would like to ask for your prayers. A childhood friend has small cell lung cancer stage 4. I will be in Rochester this weekend to visit w/ her and a couple of other friends. This should be a nice visit. I will be involved w/ her life as long as she needs me. Prognosis is not goood. Your prayers will be greatly appreciated.
To all I am sending ((((((Hugs and Prayers)))))). See you at Carmine's. One of my favorite places to eat, at least twice a month.
Take care,
Cheryl
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Cheryl,
I will keep your friend (and you!!!) in my special prayers. Get the rest you need, too!0 -
Eema, Welcome to our group. It would be very nice to met you at one of our outtings. As you heard we have a great group.
Cheryl, prayers going up for your friend.
Maureen, prayers for your husband also, is your breast filled with fluid a seroma? I had that under my arm and my sister had one in her breast where she had her lumpectomy. We had to keep having in aspirated.
Hope everyone else is going good can't wait to see you all again.
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Hi all, waiting for a late night meeting with Asian co-workers so thought I'd jump on to say hi. Heymoose: saying many prayers for your friend. Prognosis doesn't sound so good but miracles can happen everyday. Hope everyone is doing well and enjoying life.
Kindone, not sure what is going on, even NP is not sure. if it is a seroma, I certainly don't need it aspirated, it drains all by itself at the most inconvenient moments
Hey Ladies, How does Sept. 10th or 17th sound? Most votes win. I vote the 17th, to give mom's time to get into back to school routine.
Have a great night.
love,
Maureen
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Hi , the 17 sounds good. Thats a Saturday night which works well for me.
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Hi Maureen, the 17th sounds good to me. I'm off for a week to Pa. to see my godmother's family so I will be off line, starbeauty - how about coffee when I get back? hugs to all, Karen
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Hi Karen, Have a great trip!! Enjoy the coffee with starbeauty when you return. I'll call and make reservations this weekend. Let me know who wants details and I'll PM you the date, time, place etc....
DH had several interviews but no job offer yet. I'm getting nervous, I keep thinking what if something happens to me? Screwed is 1st thought to come to mind.
Love,
Maureen
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Karen... Absolutely... Pm me when you get home... Have fun my friend!
Maureen... I am afraid I can't make it... 17 is day DH gets home from Washington...
Heymoose... Keeping your friend in my prayers.0 -
Ladies, Rather do the 12th? Only day I can't is 24th.
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12th is fine, Karen
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Everyone else, how does the 12th sound? Funny story, going to work today took me an extra 15minutes due to the kindergarten kids getting their first bus ride along with all the parents, grandparents and videos, really made me smile.
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The 12th sounds fine with me. Let me know what the plans are. Thanks everyone for keeping my frien in your prayers.
(((((Hugs)))))
Cheryl
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Beautiful day yesterday. Sun, swimming. Ahhhhhh- Child back to school next week. UGH. Not looking forward to the morning struggle.
The 12th should work for me. Just need to check my calendar and make sure husband and I didnt sign up for anything.
Anybody doing any labor day shopping or parties? I need to go matress shopping. A job I dread cuz I always feel like I am being ripped off.
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Hi Ladies, I screwed up. I meant to say the Saturday the 10th. Looking at the wrong day I guess. Having my kids and GF & BF for dinner on Sunday then off to sister's house on Monday. We had to do the matress shopping thing a few years ago. The matress store right by BJ's on Transit had decent prices and good matresses. I was convinced I wanted a temprapedic (sp) until I laid down to try one in the store...absolutely hated it, too hard. If I had unlimited resources, I'd go with the matress that you can dial the firmness of the bed. Good luck.
Cheryl, Hope you friend is comfortable and happy, keeping her in my prayers.
Karen, hope you have a safe and enjoyable trip.
Kindone, thanks for well wishes.
Update on me, DH still on the interview track, (please keep praying). Hoping we hear from one of them really soon. I'm still leaking and getting worried cause now the leak looks bloody tinged...sorry if I gross anyone out. Anyway, I'm going to be calling doc tomorrow and refilled my antibiotic cause I think I will probably need it.
Happy Labor Day.
Love,
Maureen
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Oh Maureen - I cannot believe you're still struggling with the incision weeping. Definately time for them to re-check and see if treatment needs to be changed. I guess weeping is good in a way as all the junk isn't staying in and causing more infection.
Have a great labor day everyone.
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Happy Labor Day!!!!!!!!!!!! I love Mondays off. I will not be able to make the dinner on the 10th. We will be out of town. We are leaving for Maine and MA on Thursday and returning the following Tuesday. Need the break and can't wait.
I was in Rochester yesterday to see my girlfriend Shelly who has the lung cancer and a couple of other childhood friends. It was very nice to catch up and visit. Shelly does not look that good. She is having a very hard time remembering things, concentrating and is in pain. She is on mophine for the pain. In March they gave her a year to live. I keep telling her that she does not have an expiration date stamped on the bottom of her foot. She just laughs. She has kept her sense of humor and a positive attitude. I hope it goes on for years. It was sad but a good visit at the same time.
Thanks for your prayers and if you could continue them, I would greatly appreciate it.
Maureen keeping you and your DH in my prayers.
Sending ((((((Hugs and Prayers)))))) to all.
Cheryl
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HI Ladies, Just waiting for my sister and thought I'd pop in to give an update. I have a leaky seroma. They want me to stay on antibiotics till see the doc on Wed. He'd see me on Tues. however he has jury duty, talk about sucky.....anyway they might pack it or just stay on the course. Not sure if I'll be able to do the MRI, US, mammo even by the end of Sept. Spent most of the weekend doing the minimum cause just tired. I know I'll regret later in the week but who cares?
Anyway, We now have 3 choices for get together:
1. Sept. 10th
2. Sept. 17th
3. October 1st.
All are Saturdays. Let me know by Tues/Wed. so i can go for reservations. Late afternoon/early evening.
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Sorry ladies
I am only available on the 17th. Fall is a busy time for us here. Pot luck dinner with the French Alliance (my hsband is VP) on the 10th and birthday party for my son on the 1st.Maureen-so sorry to hear you are still leaking. I think that was one of the worst parts of my treatment. Hope it closes soon. It will just needs to get some scar tissue formed in there.
Keep me posted on the definite date
Susan
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So far, the only one not available on the 17th is starbeauty. I hate to miss you starbeauty however that's the only day most of everyone is available. I'll call for reservations tomorrow, so if you get a chance, let me know who is coming either on the thread or via PM.
Have a great evening ladies,
Maureen
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HI all! the 17th is good for me so far. Have a nice night.
(((((Hugs and Prayers)))))
Cheryl
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Good Evening Ladies, the 17th is good for me also.
Maureen, I had a seroma under my are from my biopsy, I had to have it packed daily. My daughters did it for me nightly. Hope all goes well.
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Maureen-
I can come! Can you PM us with the place and time when you have them?
See everyone soon!
Susan
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Hi , didin't get a chance to call the restaurant yet, I'll do tomorrow. Had to pull weeds tonight as it was driving me crazy and get to go back to the BS tomorrow AGAIN for god only knows what, maybe for a bathtub plug (hehehe).
Looks like the 17th, I'll PM details after BS appt.
Susan, how's school?
Love,
Maureen
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Hi Ladies, I just sent out the invite for our next get together. If I missed anyone, please, please e-mail me as I'm not very good at remembering who said could and couldn't make that date.
Update on me. Went to BS again, and he said all looks okay, he'll keep an eye and steri-stripped the wound again. There was a piece of something in the incision he removed and said could be irritation so I'm cautiously optimistic.
How was the first day of school ladies? Hope it all went well.
Love,
Maureen
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HI Maureen, I am so glad , it sounds promising that at least you have new steri strips and doctor doesnt seem to concerned. So while obviously very annoying, I am soo glad he isn't overly worried.
Day 2 of school in our home today. All went well and school is off to a good start!
I am lookiong forward to the nice weather forcasted this weekend. Have been very very very fatigued. Can't seem to shake this and now - a huge late summer cold . UGH!
To top if off, I am feeling fat, tired, sick of not fitting in my clothes and way to tired to do anything about it.
wow - I am way to negative today.
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Hi Bevin, Sorry you have such a lousy cold. You are not fat AT ALL!!! You are beautiful young mom who is working her a&& off to make a home, work, be a mom at all costs. That is exhausting. Your daughter is young and still needs a lot of care, go easy on yourself my friend. Get some sleep and take care of you, we need you!!!
Update on me, no leaks today:) Cautiously optimistic, and DH got a job. Yay!!! So far so good.
Karen, where are you? Did you come home to us yet? Hope your trip went well, we miss you.
Maureen
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Maureen... So incredibly glad we have two answers to our prayers... So glad you had a good day... And so glad your DH now has a job!!! So happy for you.
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Hi all, just got in from Pa., it is just such a long drive - 165 miles. Had a great time, had elderberry pie made by an Amish woman, it was fantastic. All the shops in Conneautville have hitching posts in front for the horse and buggy, it's like going back in time. I am sooo happy DH got a job, yay - what a load off your mind and his, that was scarey. I too had an infected seroma, was on two courses of antibiotics, glad the leaking has stopped. Is the restaurant on the same side of the street as the mall?, about how far away from the mall?, or would I be better off coming down Sheridan? Starbeauty, how about coffee next week, you pick the most convienent day and time. hugs to all and see you soon, Karen
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Karen... So glad you are back... Will check my calendar and get back to you. Your trip sounds wonderful... And the pie is making my mouth water.
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Hi Karen, Welcome back, I missed you. Glad to hear you had a great time. Yes, on the same side as the mall. That pie sounds delicious, I can taste it right now. I'll bet the crust was made with lard too!! The best pie crusts are made with lard. Yummmmmyyyy. The doc didn't really think the seroma was infected, just saw a piece of tissue or stitch or something and removed it, didn't hurt at all. Then he put the strips across and said to leave on until they fall off. I just want it to stop leaking.
Hi Starbeauty!!!
Love,
Maureen
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